Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Casein Intolerance

Rachel--24

Recommended Posts

ncteacher Newbie
ncteacher
Posted

Saw this thread and thought I'd revive it to see if there are further discussion. I have maintained that I am lactose intolerant along with my gluten intolerance. I have only consumed lactose-free milk with my Chex every once in awhile with no serious complications. It seems my diet has been otherwise dairy free, since I'm "scared" of dairy right now. Last night, I got brave enough to put a slice of Swiss cheese on my turkey burger patty and WHOA! :blink: Within 30 minutes I got a WAY too full feeling, back pain, and bloating. Today, I had to stay home from work--mostly due to my abdominal pain, but also to be close to my own, personal bathroom.

Does this point to casein sensitivity too? I'm having major trouble finding stuff to read about it (everything is focused on the allergy, not the intolerance, and I'm not swelling or getting hives). I thought I was smart picking Swiss since it's really low in lactose.

Exasperating. :huh:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 51
  • Created
  • Last Reply
Ninja Contributor
Ninja
Posted

If I recall correctly, the lactose in cheeses, yogurts, buttermilk and so on is "digested" (aka: broken down) by the enzymes during fermentation. You could try something like lactaid to see if it helps or not. If it doesn't, I would look at a casein intolerance

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      126,329
    • Most Online (within 30 mins)
      7,748
    PhotocowGirl
    Newest Member
    PhotocowGirl
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.3k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Help with results please. As I have a appt after the New Year.

      By trents · Posted

      JettaGirl, there are a number of serum antibody tests that can be ordered when diagnosing celiac disease. Unfortunately, most physicians will only order one or two. So, a negative on those one or two may or may not add up to seronegative celiac disease since had a "full celiac antibody panel" been ordered you may have thrown some positives. False negatives in the IGA antibody tests can also be caused by low total IGA count. So, a "total IGA" test should always be ordered along with the single most popular test, the tTG-IGA. Unfortunately, many physicians only order the tTG-IGA. And then there are other tests that are IGG based. A full celiac panel will include both the IGA tests and the IGG tests. Here is a primer:  And here's another article on seronegative celiac disease: https://pmc.ncbi.nlm.nih.gov/articles/PMC4586545/
    • JettaGirl
      Help with results please. As I have a appt after the New Year.

      By JettaGirl · Posted

      Thank you! It was never explained to me why it didn’t show up in the labs. This makes so much more sense to me now. The endoscopy test was very easy though. I was worried about my first one and have had 2 since. I don’t think I was able to eat after midnight because of anesthesia, the procedure itself took 20 minutes. I did need a driver to get me home after just where I was put under anesthesia for the procedure. 
    • trents
      Help with results please. As I have a appt after the New Year.

      By trents · Posted

      You are confusing two different things. You are confusing seronegative celiac disease, in which all celiac antibody tests will be negative despite a positive biopsy, with mixed positive and negative antibody tests. It is normal for someone with celiac disease to not have all antibody tests throw positives. That's why they have developed different antibody tests. What one misses, another may catch. It is the same way when diagnosing many other medical conditions. Usually, not all diagnostic tests for that condition will be positive. You have to look at the total body of evidence.
    • Celiac comments
      Help with results please. As I have a appt after the New Year.

      By Celiac comments · Posted

      I had 2 blood tests at the same time. One negative, one positive.  No insurance coverage for endoscopy but felt MUCH MUCH better after three days gluten-free and many hair, skin, and rash issues cleared or improved in a week. It seems there are lots of false negatives in Celiac blood tests. 
    • DALTE04
      My bone structure is disintegrating and I’m having to have my teeth removed

      By DALTE04 · Posted

      Check out Sally K. Norton’s work on oxalates. She wrote a book called Toxic Superfoods. Your symptoms are similar to some of mine. Many of us with celiac disease have oxalate toxicity because of the damage to our guts. Oxalates chelates our minerals and calcium binds to oxalates. At least check out her website, it may help a lot. Good luck.
×
×
  • Create New...