Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Shakiness


Guest Babbia

Recommended Posts

Guest Babbia

I have had the shakes all day, but did not know why. I discovered that the Vitasoy choc milk that I had for BK has gluten in it. Do any of you get the shakes when glutened? I was also tired and depressed all day, but could not figure out why!!!!

Or....am I just drinking too much coffee?

:)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest Viola

Yes, I get the shakes with gluten contamination. It's one of the symptoms that drive me crazy.

Jnkmnky Collaborator

Maybe that answers why I had the shakes a couple weeks ago. I then had horrible joint pain for nearly 7 days and brain fog that was debilitating. I didn't actually eat a large portion of gluten, must have been in a sauce on a meal I ordered at a restaurant. Adding shakes to my list of gluten symptoms... <_<

jerseyangel Proficient

I most definately get the shakes from gluten :angry:

schuyler Apprentice
I most definately get the shakes from gluten :angry:

Me too.

TCA Contributor

I get the shakes, but I've been attributing it to low blood sugar. Who knows, though? :blink:

Guest cassidy

It always happens to me. I hate that feeling!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



num1habsfan Rising Star

I get the shakes, even with gluten-free! Ever since getting Celiac I have been very unsteady. Its so annoying sometimes :P %L0

NicoleAJ Enthusiast

I've gotten the shakes pre- and post-diagnosis. I also think it's low blood sugar--I need to graze throughout the day; otherwise, I get the shakes, migraines, upset stomach, and I crave gluten to the point that I've held a croissant in my hand before realizing how bad it would be even to take a single bite.

VegasCeliacBuckeye Collaborator

Besides the usual digestive "trauma", I get hot/cold flashes, DH, and severe lathargia...

ebrbetty Rising Star

I get them a lot lately, but I think its from not eating enough

GlutenFreeAl Contributor

Does anybody get blurred vision with their shakiness??

Lisa Mentor

I get the hand shakes alot and it also seems to be associated with a dry mouth, somewhat slurred speach and stuggleing to find the right words. (brain fog). Sometimes I feel that I am walking sideways.

Sometime, when I type, I find my fingers all over the key and can barely type a sentence.

This is the scariest part of the symptoms for me, because I feel that it is neurological. I can sit on the potty for the rest of my life, but don't mess with my brain, kind of scary.

I have lived 2/3's of my life, I have done my duty and done it well. Now, I want to have fun --- SO GLUTEN DON'T BE MESSING WITH ME.

(i'm a small dog with a big bark :huh: )

Guest Viola

Lisa, you are so right! It's the neurological things that are so scarry and frustrating! I've been brain fogged and shaky so bad that I'm scared to drive. And living so far from town makes that a tough one at times.

Lisa Mentor

Shirley, I know that I will never be the person that I was before I got sick. But is really makes me feel concerned. I try to do mind games with myself....For instance, when you lying in bed drifting off to sleep, sometimes I try to retrace my thoughts backwards. It is really hard to do, but I do think it will help keeping the brain muscle active. For example: A thought about a boat, what made me think about a boat, the water, what brought up the water.......

It is hard to do, but it can also kinda figure out some dreams.

Who knows :blink:

Guest Viola
Shirley, I know that I will never be the person that I was before I got sick. But is really makes me feel concerned. I try to do mind games with myself....For instance, when you lying in bed drifting off to sleep, sometimes I try to retrace my thoughts backwards. It is really hard to do, but I do think it will help keeping the brain muscle active. For example: A thought about a boat, what made me think about a boat, the water, what brought up the water.......

It is hard to do, but it can also kinda figure out some dreams.

Who knows :blink:

:lol: I do mind games too. I think my biggest mind game is trying to figure out new software in my computer. :rolleyes:

But yes, at night I lay awake and try to solve problems, sometimes my biggest computer, sewing or personal relation problems get solved before I go to sleep. It's funny how that works ... now I just have to remember the solutions in the morning. :D

With this disease it's really good to have a sense of humour!

slpinsd Contributor

Yeah- I feel jittery, too when glutened.

i canary Rookie

I was glutened by my dentist yesterday and was shaky all afternoon and evening. I didn't know why. I'm glad you brought this up. I was begining wondering what else was going wrong with my body.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,829
    • Most Online (within 30 mins)
      7,748

    Mellz28
    Newest Member
    Mellz28
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cameo674
      Does it taste like black licorice?  It said it was chewable.  I do not like that flavor.     Since the burn at the back of my throat is there everyday, I usually only take something when it is unbearable and keeping me from ADL especially sleep.  
    • Scott Adams
      Your concerns about Nando's cross-contamination practices are valid and important for the celiac community. It's disappointing that Nando's does not have stricter protocols for children's portions, especially given the risk of cross-contact with gluten-containing items like garlic bread. Cooking gluten-free items on shared surfaces, even if cleaned, is not safe for individuals with celiac disease, as even trace amounts of gluten can cause harm. While the adult butterfly chicken may be a safer option, the inconsistency in practices for children's meals is concerning. It's frustrating that Nando's headquarters did not take responsibility, but sharing your experience raises awareness and may encourage them to improve their protocols. Consider reaching out to celiac advocacy organizations to amplify your concerns and push for better standards. Always double-check with staff and emphasize the importance of avoiding cross-contamination when dining out.
    • Scott Adams
      I had this symptom when I was diagnosed. Are you sure that your diet is 100% gluten-free?  Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):      
    • Scott Adams
      Based on your results, it seems unlikely that you have celiac disease. A negative endoscopy and the absence of HLA-DQ2/DQ8 genes (the primary genetic markers for celiac) strongly suggest you do not have the condition. However, the elevated TTG-IgA (22) could indicate a temporary immune response or another issue, such as a different autoimmune disorder, intestinal infection, or even a lab anomaly. The presence of DQA1*05 alone is not diagnostic for celiac. Meeting with an allergist and GI specialist is a good next step to explore other potential causes for the high antibodies, such as non-celiac gluten sensitivity or other immune-related conditions. Keep a detailed food and symptom diary to help guide further testing and discussions with your doctors. Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Captain173
      I had celiac panel done back in October, only ttg iga came back high  (22 with positive being over 3). Endoscopy done in January, it was  negative. Genetic test done after endoscopy, negative for both hla dq2 & dq8. Did show positive for dqa1*05.  Scheduled to meet with an allergist next week. Not scheduled to meet with GI specialist till after allergist. Confused if I have celiac or what caused high the antibodies originally if I do not.
×
×
  • Create New...