Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Blood Test Questions

mwilliams34

Recommended Posts

mwilliams34 Newbie
mwilliams34
Posted

Hi,

I am new to this forum. I was diagnosed with IBS and fibromyalgia about 6 years ago. Recently, I began having constant problems with abdominal bloating, cramping, and D ( particularly after eating). Also, I was experiencing extreme fatigue, much worse than normal. I finally went to my doctor and did some bloodwork. I asked him to test for celiac, as I noticed that I felt much better when I do not eat wheat or gluten. I also tried eliminating dairy, but did not notice much difference.

I got my results back yesterday. Basically, everything was negative. My doctor said it is just IBS, and not to worry about it. I am wondering if it is possible to be intolerant to wheat, but not celiac. Also, he only did 3 tests. Are these the correct ones?

tTG antibody, IGA --negative

IGA serum --normal

Gliadin antibody, IGA--negative

If anyone has any ideas, please let me know.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


julie5914 Contributor
julie5914
Posted

Yes, those are the right test, and they pretty much mean you do not have celiac. It is certainly possible to be intolerant to wheat and a whole slew of other things and not have celiac. I would do an elimination diet for wheat first - stay completely off it for a few weeks then try it back. If that doesn't do it, try it with milk - it sounds like it could be a milk problem. IBS is such a frustrating diagnosis - I wouldn't settle for it. Try figuring out what's ticking off your belly.

Rachel--24 Collaborator
Rachel--24
Posted

The tests arent 100% reliable and you didnt get the full Celiac panel as far as the bloodtests go. You could also have a gluten intolerance that isnt Celiac. Gluten intolerance can cause the same symptoms as Celiac and still cause damage to tissue. Also if you limited your diet prior to testing or went off gluten for any amount of time...that could skew the results of the test and give a false negative.

If you feel gluten is a problem for you...it probably is.

It was a big problem for me and my bloodtests were negative.

mwilliams34 Newbie
mwilliams34
Posted
  • Author

Thanks for your responses. How can I check for food intolerances? I have been reading about Enterolab. Would it be worthwhile to pursue testing through them, or not to bother since the other tests were negative? I know that I feel better when I do not eat wheat, but I was hoping for a firm diagnosis. I also am wondering about my children.They both have allergies, and my son cannot have dairy products. I am not getting much help from my doctor. He says it is just IBS and take Imodium!!

Ursa Major Collaborator
Ursa Major
Posted
He says it is just IBS and take Imodium!!

Oh, how convenient for him! Lets not bother to find out what IS irritating the bowel, and use a bandaid solution to cover up the symptoms. I say, time to find a new doctor who is actually willing to put up the effort to find out what is CAUSING your symptoms!

I am not saying that Immodium is bad, it works to help you feel better when necessary. But it isn't a permanent solution. And it obviously won't cure the cause of your symptoms.

I say, ignore the doctor and try an elimination diet, to find out what is causing you to feel bad. IBS is just a junk diagnosis doctors give when they're too lazy or incompetent to figure out causes, because that is work, and it can be frustrating. Well, what the heck are they paid for? They might as well use their brains for a change!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,685
    • Most Online (within 30 mins)
      7,748
    Janahawk
    Newest Member
    Janahawk
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.3k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Testing positive for antibodies, are there visible changes to the colon that could be seen without a biopsy?

      By trents · Posted

      Thanks for the additional information. I was thinking of asking you if your daughter was taking methylated vitamins since she has the MTHFR gene but you beat me to it. To answer the question you posed in your original post, as I explained, celiac disease does not damage the colon but the lining of the small bowel. If the damage is pronounced enough and the doc doing it is experienced, yes, the damage done to the lining of the small bowel can be spotted with the naked eye.
    • cameo674
      Testing positive for antibodies, are there visible changes to the colon that could be seen without a biopsy?

      By cameo674 · Posted

      I could not locate the correct Gary Brecka video where he explains the methylation process and specifically states things about how people with the MTRR homozygous gene mutation are known to suffer from heartburn due to a weakened valve/sphincter where the esophagus and the stomach connect.  My brother had the youtube video sent to him from 10x health which is probably why I cannot locate it.     I will have read up on mast cell activation.  I do not know anything about it.  Tums is my preferred gerd treatment.  I always figured a little extra calcium could not hurt me.  
    • cameo674
      Testing positive for antibodies, are there visible changes to the colon that could be seen without a biopsy?

      By cameo674 · Posted

      Trents: Due to a genetic mutation, my daughter has inherited from both parents she cannot process the Folic Acid provided in the fortified American grains.   An MD told her to avoid eating fortified grains.   My daughter makes the assumption that unless she makes the food item, that the baker used a fortified grain so she has been limiting her gluten intake since 2020.   Her Psychiatrist was who tested her for MTHFR gene issue because she suffers from depression and severe anxiety. The Psychatrist also instructed my daughter to supplement with a methylated version of folate once she knew my daughter was homozygous, because the methylated version bypasses the mutated gene step so her body can absorb it.  Low folate absorption impacts serotonin and dopamine production.  My husband and I also both have two other homozygous gene mutations that interfere with vitamin absorption: MTRR and VDR taq.  The first interferes with B-12 absorption which requires us to take a methylated B-12 vitamin and the second with Vitamin D absorption so we have to take higher doses to stay within normal levels.   My brother, who has the exact same gene mutations, went through 10x health genetic testing for vitamin supplements (paid by his employer) and received a huge report saying the same things about which types of supplements had to be taken.  Gary Brecka does videos on how these gene mutations impact the vitamin absorption pathways.       If my brother had not gotten his testing through work, he would never would have started his supplement journey.  His testing is what triggered my getting functional health testing that tested similar biomarkers to his.  Again the celiac testing was an add-on test that I did off the cuff.  
    • trents
      Colonoscopy with large are of inflammation

      By trents · Posted

      Welcome to the forum, @growlinhard1! If eliminating gluten from your diet makes significant improvement in your symptoms then there are two possibilities. Either you have celiac disease (aka, gluten intolerance) or NCGS (Non Celiac Gluten Sensitivity, aka, gluten sensitivity). The difference is that celiac disease is an autoimmune disorder that creates inflammation and, over time, damages the lining of the small bowel which inhibits nutrient absorption whereas NCGS does not damage the lining of the small bowel. They share many of the same symptoms. At the end of the day, the antidote for both is to abstain from foods that contain wheat, barley or rye, the three gluten-containing grains. Some countries supply stipends and healthcare benefits for those with an official celiac diagnosis. If you live in the USA that does not apply. The main reasons for seeking an official celiac diagnosis are psychological and social. Many people have a hard time not falling off the gluten free bandwagon without an official diagnosis. They find it easy to rationalize it all away as being temporary or due to something else. When you have an official diagnosis, you tend to take gluten-free eating more seriously. Socially, family and friends are more likely to respect and attempt to comply with your need to eat gluten free if you have an official diagnosis of celiac disease. Your physician is more likely to take you seriously as well if you have an official diagnosis because there are typically other health problems that are spinoffs which develop from celiac disease in time. One autoimmune disease invites others. There are no tests for NCGS. Celiac disease must first be ruled out. We do have specific tests for celiac disease. By the way, some experts believe that NCGS can transition into celiac disease. If your endoscopy/biopsy is only a month away, I would encourage you to stick it out and go back on gluten to get an official diagnosis. You still have time to get a valid test result if you start back on gluten now, 10g of gluten daily which is about the amount found in 4-6 slices of wheat bread.
    • BoiseNic
      dermatitis herpetiformis outbreaks while on strict gluten-free diet

      By BoiseNic · Posted

      I have the same problem. No matter what I eat, I seem to get a break out every 1 to 2 months. I do not do oats, citrus fruits, apples, onions and other foods also, as those cause reactions. The only time I have zero problems is when I fast. The only staple grain I have is quinoa, as that doesn't seem to cause me issues. I have linked mine to a microbiome imbalance. I am currently on month 3 of Skinesa. It's supposed to take 3 months before seeing results. I guess we'll see.
×
×
  • Create New...