Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Kids Testing

jaimi alderson

Recommended Posts

jaimi alderson Enthusiast
jaimi alderson
Posted

I was diagnosed 2 weeks ago so I am taking my kids today to get their blood drawn. I do not want to do this repeatedly over the next year so I am asking to have them tested for the genetic test (HLA/DQ2/DQ8), the celiac panel & a cmp to check for any nutrition problems. Does anyone have any advice on other tests that should be done with their blood while we are already poking them? The celiac panel will prob not be accurate on my son who is only 16 months but want to check anyway since we are drawing blood. Has anyone ever had all of these tests done for their kids? I want to make sure I am doing all the testing I can. Luckily they have no symptoms, except irritability in my 4yo (could be just her age!) and reflux in my son (this is not a black/white celiac symptom as he is HUGE weight wise-50%-which is very big for our fam!) Anyway, any advice on these tests and/or the blood draw would be much appreciated. Ped. is putting topical anesthetic patches on their little arms so hopefully that will help!

thank you!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


VydorScope Proficient
VydorScope
Posted
I was diagnosed 2 weeks ago so I am taking my kids today to get their blood drawn. I do not want to do this repeatedly over the next year so I am asking to have them tested for the genetic test (HLA/DQ2/DQ8), the celiac panel & a cmp to check for any nutrition problems. Does anyone have any advice on other tests that should be done with their blood while we are already poking them? The celiac panel will prob not be accurate on my son who is only 16 months but want to check anyway since we are drawing blood. Has anyone ever had all of these tests done for their kids? I want to make sure I am doing all the testing I can. Luckily they have no symptoms, except irritability in my 4yo (could be just her age!) and reflux in my son (this is not a black/white celiac symptom as he is HUGE weight wise-50%-which is very big for our fam!) Anyway, any advice on these tests and/or the blood draw would be much appreciated. Ped. is putting topical anesthetic patches on their little arms so hopefully that will help!

thank you!

Prbly should ask for a BMP (basic metabolic panel) and might as well check normal stuff like Anemai (Iron Levels) and basic vitaman/nutrient levels. If they have celica, they are likly to be deficient in somthing so might as well find out now. Assuming your INS will cover all that of course. :D

I am told that in some European countires its standard practice to screen all first degree blood relatives if any one of htem has Celiac.

nikki-uk Enthusiast
nikki-uk
Posted
I am told that in some European countires its standard practice to screen all first degree blood relatives if any one of htem has Celiac.

I think I can safely say it's not England! :lol:

jerseyangel Proficient
jerseyangel
Posted

I have read they do this in Italy, for sure.

marja Newbie
marja
Posted
I have read they do this in Italy, for sure.

I've heard and read that in Holland they have the bloodtest and after that a bioptie and that's the only way to get the cleiac disease answer from a doctor...

I have to check it here for aruba...

Our son ,almost 2 ,is having problems from 4 monthts old, we were thinking that it was something from the vacinations because tit started directly after his DTP . it started with the diarree,changed formula,did all the lab test ,bloodtest for infections etc ...only his iron was low and sometimes they saw infections...We started very late with 'normal'food because of his pain and diarree and checked everything for the response on it. He has fever attacks coming and going (only for one or two days)mood swings...a bigger than normal baby tummy and a lot of gas in it (thats what the PD also told us) A couple of weeks ago we dicided to skip all the heavy carbs and that was better for him but still there were nights with a lot of pain and screaming and moodswings in the morning. Now for 4 days we've started with the gluten-free diet and he is doing great! Yesterday he was eating patatoes and special apple sauce:he was so happy and of course we were so afraid for the night but:nothing and his diaper was pretty normal! Now we have to go to the PD next week and we are going to ask the question:could it be Celiac disease...we have allready decided that we do not want to have very heavy testing because we are to happy that he is happy and he is so small...and we want to wait with the haevy testing untill he is able to talk about his feelings and that we can explain something to him. But I am only struggling with one thing:is it not dangerous to put him on a gluten-free diet without diagnosed? He loves the food and he can eat with this diet more than with is other diet....Is there anybody with some answers?

We also want to put are other son on the gluten-free diet becasue of the positiv stories about gluten-free for autistic kids.

thanks for all the help in :) this forum!

i've forgot to tell that he is allready lactose intolerant..so he is drinking soya formula because the PD is still afraid to give him something else and we also!

:rolleyes:

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,969
    • Most Online (within 30 mins)
      7,748
    Stav
    Newest Member
    Stav
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.5k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • TerryinCO
      Status Update...

      By TerryinCO · Posted

      The Docs' and NP haven't committed to Celiac determination yet but say go gluten-free diet because...  And I have with improved physical results - feeling better; overall functions better, and more energy.  Still 10 pounds down in weight but I still have BMI of ~23.  It's been just over a month now gluten-free diet.  I'm fortunate I get along with diary/milk well and most other foods. I wanted ask about this site's sponsor, gliadin X.  If this is legit, seems like a good product to keep on hand. Though it says it's only a safety for incidental gluten contact - not a substitue for gluten-free diet. What's your input on this? This may be sensitive subject since they're a sponsor. I've used resources here and other sites for information, gluten-free food/product lists. So thank you for all that support. That's it for now - Stay warm...  -2F this morning in Colorado!
    • cristiana
      Increasing symptoms after going gluten free

      By cristiana · Posted

      I did suffer with gastric symptoms before diagnosis, but got all sorts of weird and wacky symptoms after going gluten free.   Things got much better once my antibodies fell to normal levels, but it took years (please don't panic, many people's go to normal levels relatively quickly when following a gluten-free diet). Causes of the symptoms you mention that I also experienced were iron supplements, a temporary dairy intolerance (this is common in coeliacs and should pass when your gut heals properly), and eating oats, as mentioned above.  Other symptoms I got were musculoskeletal pain after diagnosis, but again, once my coeliac blood tests were normal, I had no more pain. I did notice patterns emerging in foods that I reacted to and learned to steer clear of them, then gradually reintroduced them when my gut healed, such as soya, pure oats and dairy products.    You might like to keep a food diary. Cristiana
    • Jy11
      Conflicting results

      By Jy11 · Posted

      Well the conflicting results continue as the biopsy has come back negative. 😵‍💫 Waiting to discuss further but I really don’t know what to think now? Eight biopsy’s were taken from duodenum which surely should be sufficient if it was coeliac? 
    • Pasballard
      Increasing symptoms after going gluten free

      By Pasballard · Posted

      I have Celiacs and want you to be aware of the amount of weight you can potentially put on if you rely on gluten free snacks, bread etc.,they  are high in carbs.  I put on 25 lbs in a short amount of time.  Whole Foods are the best way to go but I struggle with this.  The cost of gluten free is also a problem.  I love black licorice but most have gluten.  My favorite chili seasoning as well.  The list is endless.  I take  Advil liquid gels and had no idea until I read this.  I hope you do better than I have done.  I feel I am destined to suffer daily no matter what.  My aunt didn’t take care of herself and died from complications.  I hope you can get on a good routine.
    • growlinhard1
      Colonoscopy with large area of inflammation

      By growlinhard1 · Posted

      Thank you, I appreciate the response. I'm going to begin the gluten free diet and wait for the biopsy results. I feel fairly certain that it's the right thing for my well being. I will keep you posted.
×
×
  • Create New...