Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Supplements - Please Help

Guest Babbia

By Guest Babbia
in Post Diagnosis, Recovery & Treatment of Celiac Disease

Recommended Posts

Guest Babbia
Guest Babbia
Posted

I have heard people mention these on this board. Just wondering what to look for when going out to buy these.

Can anyone help????

Thanks,

Babbia

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


shayesmom Rookie
shayesmom
Posted
I have heard people mention these on this board. Just wondering what to look for when going out to buy these.

Can anyone help????

Thanks,

Babbia

In a probiotic, I usually look for a refrigerated brand as the potency is higher and thereby more effective in smaller doses. In my dd's case, I also look for a dairy-free version as she has a dairy allergy. One of the more studied and effective probiotic strains is Lactobacillus GG. There is also a lot of research out on acidophilus and bifobifidus. You can choose between, capsules, powder and pearls. I've also read that Culturelle is a very good brand but we use one by Metagenics as it is almost tasteless.

As for digestive enzymes, I go for a good protoelytic enzyme. However, you really have to be careful with the more powerful ones if you are on any blood-thinning meds like Cumadin (sp?). Protoelytic enzymes also thin blood and must be used with extreme caution if there is any meds for heart problems or strokes. Serralone, made by Generations is excellent. It is also being used in Europe as an alternative to open heart surgery and even amputation as it really can reduce inflammation and eats all non-living matter in the system (including scar tissue, cysts and arterial plaque). I believe Germany is where most of the studies on it comes from. In any case, I've understood Celiac Disease to also come with a deficiency in producing enzymes so to me, it seems like a good idea to supplement....even if it's with something as simple as a chewable papaya or bromelain enzyme (which helps a lot of with lactose problems).

HTH

Rachel--24 Collaborator
Rachel--24
Posted

Hi,

I use HLC probiotic by Pharmax.....I'm not sure if its sold in stores but I get it from my doctor. I use this one because it doesnt have any extra stuff in it and its gluten and casein free and good quality....I dont trust stuff thats not refrigerated.

Open Original Shared Link

For a digestive enzyme I use Digest Gold by Enzymedica. I got it at whole foods and its expensive but its working great for me.

julie5914 Contributor
julie5914
Posted

My doctor recommended Jarrow formula bifidus and prescribed an enzyme called Creon to help me digest protein.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,090
    • Most Online (within 30 mins)
      7,748
    Kerischultz
    Newest Member
    Kerischultz
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.6k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Years of testing - no real answers

      By trents · Posted

      Thanks for following up with us on the results. This might be helpful to you now:  
    • Kiwifruit
      Years of testing - no real answers

      By Kiwifruit · Posted

      Hi I just wanted to update you all and let you know that I finally have my diagnosis. 2 weeks ago I had my third gastroscopy and the biopsy confirmed the damage. Thank you for giving me the information I needed to advocate for myself when I a was a feeling so lost!
    • Scott Adams
      Celiac Disease and Mild Chronic Gastritis

      By Scott Adams · Posted

      I agree that the gastritis may go away after you've been on a gluten-free diet for a while. If you are concerned, it might make sense for you to do a follow up biopsy after  a year or so on a gluten-free diet. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • Scott Adams
      Testing for celiac

      By Scott Adams · Posted

      Getting tested for celiac disease is a valid concern, especially given your history of microscopic colitis and the potential risks associated with undiagnosed celiac disease, such as cross-contamination, nutrient malabsorption, and increased cancer risk. Since you’ve been gluten-free for years, reintroducing gluten for the standard celiac blood tests or endoscopy would be challenging, as it requires consuming gluten for several weeks to months, which could worsen your symptoms and disrupt your daily life. Gene testing (HLA-DQ2 and HLA-DQ8) through a lab like EnteroLab could be a helpful first step. While these genes are present in nearly all celiac patients, having them doesn’t confirm celiac disease—it only indicates genetic susceptibility. If you don’t have these genes, celiac disease is highly unlikely, which could provide some peace of mind. However, if you do have the genes, it doesn’t confirm celiac disease but suggests further testing might be warranted if you’re willing to undergo a gluten challenge. Another option is to discuss with your doctor whether a follow-up endoscopy or other non-invasive tests (like stool tests for gluten antibodies) could provide insights without requiring a gluten challenge. While a formal celiac diagnosis can be important for ensuring strict dietary adherence, access to gluten-free options in hospitals, and monitoring for complications, it’s also worth weighing the risks and benefits of reintroducing gluten. If you’re already strictly gluten-free and managing your symptoms well, the urgency of a formal diagnosis may depend on your personal health goals and concerns. Consulting a gastroenterologist familiar with celiac disease and Microscopic Colitis can help guide your decision.
    • Scott Adams
      Glutening symptom? oily stool

      By Scott Adams · Posted

      Steatorrhea (oily or fatty stools) can indeed be a symptom of malabsorption, which is often linked to gluten exposure in individuals with celiac disease. While it’s possible that a single glutening event, like cross-contamination at a restaurant, could trigger temporary steatorrhea, it’s also worth considering whether there’s a more chronic source of gluten exposure, such as in medications or ongoing dietary mistakes. Since you’ve been less careful recently and experienced this symptom after eating out, it’s plausible that the fries or other cross-contaminated foods could be the culprit. However, if the steatorrhea persists, it might indicate ongoing gluten exposure or another underlying issue, such as pancreatic insufficiency or bile acid malabsorption. Until you can see a GI doctor, it might help to strictly avoid any potential sources of gluten, including cross-contamination, and monitor your symptoms. If the issue continues, it’s important to investigate further, as persistent steatorrhea can lead to nutrient deficiencies. In the meantime, keeping a detailed food and symptom diary could help identify patterns or triggers. Good luck finding a new GI doctor—hopefully, they can provide clarity soon!  
×
×
  • Create New...