Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help With Aching Body?


marypelly

Recommended Posts

marypelly Newbie

Can anyone offer me any advice on what to take to help with my aching body?

I woke up this morning and felt like I couldn't get out of bed because someone hit me across the lower back with a baseball bat....my whole body hurts!!!!!!!!! ughhhhhhhhhhhhhhhhhhh!!!!!!!!!!!!!!!!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient
Can anyone offer me any advice on what to take to help with my aching body?

I woke up this morning and felt like I couldn't get out of bed because someone hit me across the lower back with a baseball bat....my whole body hurts!!!!!!!!! ughhhhhhhhhhhhhhhhhhh!!!!!!!!!!!!!!!!!!

That happens to me sometimes, too. I take Extra Strength Tylenol (NOT the Fast Acting--not gluten-free) and a warm shower. Try to get extra rest, if you can. :)

TCA Contributor

I do the same. Tylenol has worked best for me, but it doesn't get rid of the pain. a heating pad is nice too.

marypelly Newbie
Can anyone offer me any advice on what to take to help with my aching body?

I woke up this morning and felt like I couldn't get out of bed because someone hit me across the lower back with a baseball bat....my whole body hurts!!!!!!!!! ughhhhhhhhhhhhhhhhhhh!!!!!!!!!!!!!!!!!!

It is aweful when you're 38 years old and feel like an 80 year old woman. I have been taking tylenol rapid release and had no idea that it had gluten in it...it wasn't listed on the label. Does anyone have a list of over the counter medicines with gluten in it? This whole thing is such a vicious cycle it is hard to stay positive! :(

jerseyangel Proficient
It is aweful when you're 38 years old and feel like an 80 year old woman. I have been taking tylenol rapid release and had no idea that it had gluten in it...it wasn't listed on the label. Does anyone have a list of over the counter medicines with gluten in it? This whole thing is such a vicious cycle it is hard to stay positive! :(

Yes--the rapid release is not safe for us--I bought it, but fortunately called and checked before I took any. Always best to call if you're not sure, we can't assume anything is gluten-free until we check it out. You can try www.glutenfreedrugs.com/ -- I am not sure how up to date their info is, though. Here is a list that I received recently--hope some of it helps--

Dear patti,

Thanks for visiting our website.

In reference to your inquiry concerning the gluten content in our

products, I have listed below the products which have been tested and do not

contain detectable levels of gluten.

Patti

April 12, 2006

Page 2

The following McNeil products have been tested and do not contain

detectable levels of gluten:

Children's TYLENOL® Meltaways Grape Punch

Children's TYLENOL® Meltaways Bubblegum Burst

Children's TYLENOL® Meltaways Wacky Watermelon

Children's TYLENOL® Suspension Grape*

Children's TYLENOL® Suspension Bubblegum*

Children's TYLENOL® Suspension Cherry Blast

Children's TYLENOL® Suspension Strawberry*

Children's TYLENOL® Flavor Packets Bubblegum

Children's TYLENOL® Flavor Packets Chocolate

Children's TYLENOL® Flavor Packets Apple

Children's TYLENOL® Flavor Packets Strawberry

Infant's TYLENOL® Drops Cherry

Infant's TYLENOL® Drops Grape

Jr. TYLENOL® Meltaways Grape Punch

Jr. TYLENOL® Meltaways Bubblegum Burst

Children's TYLENOL® Cold Suspension Grape

Children's TYLENOL® Plus Cold Chewable Tablets

Children's TYLENOL® Plus Cold & Cough Chewable Tablets Cherry

Children's TYLENOL® Plus Cold & Cough Suspension Cherry

Infant's TYLENOL® Drops Plus Cold

TYLENOL® Allergy Sinus Caplets*

TYLENOL® Sinus Day Caplets

TYLENOL® Sinus Severe Congestion

TYLENOL® Cold Severe Congestion Caplets

TYLENOL® Severe Cold & Flu Liquid

TYLENOL® Cold Day Non Drowsy Caplet

Simply Stuffy Liquid

Simply Cough Liquid

Extra Strength TYLENOL® Geltabs

Extra Strength TYLENOL® Gelcaps*

Extra Strength TYLENOL® Tablets

Extra Strength TYLENOL® Caplets

Regular Strength TYLENOL® Tablets

TYLENOL® Arthritis Pain Relief Caplets

TYLENOL® 8 Hour Caplets

TYLENOL® 8 Hour Geltabs

TYLENOL® PM Caplets

Simply Sleep Caplets

Children's Motrin® Suspension Grape

Children's Motrin® Suspension Berry

Patti

April 12, 2006

Page 3

Children's Motrin® Suspension BubbleGum

Children's Motrin® Suspension Dye-Free

Children's Motrin® Chewables Grape

Children's Motrin® Chewables Orange

Infant's Motrin® Drops

Infant's Motrin® Drops Dye-Free Children's Motrin® Suspension Grape

Children's Motrin® Cold Suspension Berry

Children's Motrin® Cold Suspension Grape

Children's Motrin® Cold Suspension Dye-Free

Motrin® IB Caplets

Motrin® IB Gelcaps

Motrin® IB Tablets

Motrin® Cold & Sinus Caplets

Imodium® Advanced Chewable Tablets

Imodium® AD Caplets

St. Joseph® Enteric Coated Tablets

St. Joseph® Adult Chewable Tablets

*Children's TYLENOL® Suspension (Grape Splash, Bubblegum Yum and

Very Berry Strawberry), Extra Strength TYLENOL® Rapid Release Gels

(replaces Extra Strength TYLENOL® Gelcaps), and TYLENOL® Allergy

Complete Caplets (replaces TYLENOL® Allergy Sinus Caplets) have not yet

been tested. These products have been reformulated to improve the

flavor or release of medication. We would not expect to find gluten in the

new ingredient components necessary to reformulate these products.

The following JV products have been tested and do not contain

detectable levels of gluten:

Children's Mylanta® Tablets Bubblegum

Regular Strength Mylanta® Liquid Original Flavor

Maximum Strength Mylanta® Liquid Original Flavor

Mylanta® Ultra Tablets Cool Mint

Infant's Mylicon® Drops Non-Staining

Maximum Strength Mylanta® Gas Mint Tablets

Pepcid® AC 10 mg Tablets

Pepcid® Complete Chewable Mint Tablets

For the remainder of McNeil's/JV's products:

Glutens are naturally-occurring proteins found in grains such as wheat,

rye, barley, and oats, but are not found in corn.

Patti

April 12, 2006

Page 4

The primary source of starch in our formulations is corn. Relatively

small amounts of other materials used in our formulations may contain

starch from other sources (e.g. potato, rice).

We are not aware of published reports associating the use of our

products with a worsening of symptoms in patients with celiac disease.

We hope this information is helpful.

Tracey Ely

MYLANTA Consumer Relationship Center

Mango04 Enthusiast

You can try glutenfreedrugs.com

Sometimes soaking in a bath with Epsom salts can be helpful for aching muscles as well.

Jnkmnky Collaborator

A nice massage can really help.. :) Pay for one if you don't have someone to do it for free! Maybe it's your bed??? I got a sleep number bed and my life has changed! Hello, I'm a 30. :lol: It's like sleeping in a hammock at 30, but my back loves it. :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

I find that I get awful backaches from all foods containing lectins (which includes all dairy, eggs, all grains, lecumes, including soy and peanuts, and all nightshades). Do an elimination diet to check for other intolerances that might be causing back pain (and other pain, if you have any). Eliminating all lectins sure beats taking painkillers 24/7 for me!

marypelly Newbie

Thanks for all of the good advice on the aching back pain....couldn't stand the pain so I went to the docs and now am being tested for Lupus, Thyroid Disease and also Arthritis..more auto immune diseases. She doesn't seem to think that it (the pain in my back and joints) is due to Celiac disease. I have to say so far I have been lucky with my doc as her sister is a diagnosed Celiac....so I have faith. If anyone out there can shed light on these other problems, please post. I will let all know the results when they come back.

Thanks

Mary Pelly :unsure:

jenvan Collaborator

Mary-

Is your pain an all over constant thing or from time to time?

key Contributor

I have been waking up with pain in my lower back near my kidneys. It feels like my kidney's ache. It isn't incompassitating yet, but has been happening for about a month now. I am 31 and falling apart. It is frustrating to say the least. I hope you figure out what is going on. I did have severe leg and pelvic pain and it was related to gluten, so it can cause muscles to ache. My GI said if you have celiac and you get gluten it is an inflammatory response, even in your muscles. It could be something else too though.

Monica

marypelly Newbie
Mary-

Is your pain an all over constant thing or from time to time?

Jen....the pain comes and goes along with numbness in my legs and face. She is testing me for Rheumatoid Arthritis, Thyroid disease, Lupus, MS, Addison's Disease and a few other auto-immune diseases (are there even any more!) I am finding out that people diagnosed with Celiacs are 30% more likely to also aquire another auto-immune disease. I am fortunate that my doctor is championing for me....her sister is a diagnosed celiac. So I know she knows....I really am not crazy, even though that is how I feel right now.

Not sure where I would be without this message board. Sure is tough to stay positive when you feel like crap.

Mary :(:(

jenvan Collaborator
Sure is tough to stay positive when you feel like crap.

Mary :(:(

I understand...like Monica I feel like I am falling apart too--been worse over recent months and more problems post gluten-free then before it seems. :blink:

Was asking b/c I wondered if it was a Fibromyalgia type of pain, but doesn't seem like it. Have you been tested for neuropathy or been to a neurologist? That might be a good place to start b/c of your numbness and the pain occurring in conjunction with that...

Hang in there!! And vent or be discouraged with us for a time if you need that! It bad times for me I try to 'meditate' or remember the blessings I have and how my situation could be so much worse than it is. Its good for me to remember I really have more of an abundance of blessings in my life than harship...

scarlett Newbie
I have been waking up with pain in my lower back near my kidneys. It feels like my kidney's ache. It isn't incompassitating yet, but has been happening for about a month now. I am 31 and falling apart. It is frustrating to say the least. I hope you figure out what is going on. I did have severe leg and pelvic pain and it was related to gluten, so it can cause muscles to ache. My GI said if you have celiac and you get gluten it is an inflammatory response, even in your muscles. It could be something else too though.

Monica

Hello, I am new to all of this so please bear with me... I have had chronic back pain for so many years. I have been tested and what the specialist said was that I have a muscleur inflamnation disease. To make a long story short, I have tried so many things to relieve my pain to no effect. A friend told me today that I may have celiac disease. I eat alot of wheat and the pain in my back and neck is horrible. I need people who are familiar with this disease to guide me through this.

Mango04 Enthusiast
Hello, I am new to all of this so please bear with me... I have had chronic back pain for so many years. I have been tested and what the specialist said was that I have a muscleur inflamnation disease. To make a long story short, I have tried so many things to relieve my pain to no effect. A friend told me today that I may have celiac disease. I eat alot of wheat and the pain in my back and neck is horrible. I need people who are familiar with this disease to guide me through this.

Hi - You could have Celiac Disease or gluten intolerance (both mean you would need to follow a strict gluten-free diet). However, gluten does cause inflamation in the body, so even if you don't have celiac disease or a gluten intolerance, you may find that a gluten-free diet helps with your pain. My mom suffers from a severe back and shoulder injury, so she follows a gluten-free diet to aleviate the pain and help with the inflamation, even though gluten doesn't otherwise make her sick.

You've come to the right place for information and guidance. You should definitely consider the gluten-free diet. It's easier than it sounds and it might really help you :)

scarlett Newbie
Hi - You could have Celiac Disease or gluten intolerance (both mean you would need to follow a strict gluten-free diet). However, gluten does cause inflamation in the body, so even if you don't have celiac disease or a gluten intolerance, you may find that a gluten-free diet helps with your pain. My mom suffers from a severe back and shoulder injury, so she follows a gluten-free diet to aleviate the pain and help with the inflamation, even though gluten doesn't otherwise make her sick.

You've come to the right place for information and guidance. You should definitely consider the gluten-free diet. It's easier than it sounds and it might really help you :)

thank you for responding! I have had years of frustration and because of the strick diet requirements for celiac's disease I have been hesitant. But, I am tired of the pain and no relief. My husband just brought us a new bed ( therapeutic?). My doctor has me on flexaril, and I swim quiet often. I have a massage every week...etc. The pain is not going away and my morning's are especially painful. I have been doing yoga now for 9 months. I also have osteoporosis. I guess my thought's are that for 20 years I have gone to so many doctor's, too many pills and I want an answer to this chronic muscle weakness.

Guest BERNESES

I was just thinking about posting on this topic this morning because I have been waking up VERY achey lately. I do have arthritis in my neck (and a fusion at C4 and C5 as well as a cervical rib) and 2 completely degenerated discs in my lower back. But it's not normally painful unless I get glutened. lately it's been acting up and I was starting to worry about taking ibuprofen etc. I remembered Arnica gel and I have been taking a hot shower and then rubbing it on in the a.m. and at night before I go to bed. It's a natural anti-inflammatory and the gel I use just has an alocohol/witch hazel base. if that doesn't kick it, then I take 2 Tylenol Arthritis. I try to take ibuprofen in moderation only, but the arnica gel really helps. You can get it at health food stores, drig stores and my local grocery store carries it now too.

Do the gel or the oil. Let me know if it helps. I know the I'm 38 but feel like 80 feeling!

scarlett Newbie
I was just thinking about posting on this topic this morning because I have been waking up VERY achey lately. I do have arthritis in my neck (and a fusion at C4 and C5 as well as a cervical rib) and 2 completely degenerated discs in my lower back. But it's not normally painful unless I get glutened. lately it's been acting up and I was starting to worry about taking ibuprofen etc. I remembered Arnica gel and I have been taking a hot shower and then rubbing it on in the a.m. and at night before I go to bed. It's a natural anti-inflammatory and the gel I use just has an alocohol/witch hazel base. if that doesn't kick it, then I take 2 Tylenol Arthritis. I try to take ibuprofen in moderation only, but the arnica gel really helps. You can get it at health food stores, drig stores and my local grocery store carries it now too.

Do the gel or the oil. Let me know if it helps. I know the I'm 38 but feel like 80 feeling!

I am 47 and I feel like 80! The problem is my back and the pain make my feel almost crippled. I live an active lifestyle but, it is getting harder and harder. But, I feel encourged that this could be my answer to a life of pain.

I was just thinking about posting on this topic this morning because I have been waking up VERY achey lately. I do have arthritis in my neck (and a fusion at C4 and C5 as well as a cervical rib) and 2 completely degenerated discs in my lower back. But it's not normally painful unless I get glutened. lately it's been acting up and I was starting to worry about taking ibuprofen etc. I remembered Arnica gel and I have been taking a hot shower and then rubbing it on in the a.m. and at night before I go to bed. It's a natural anti-inflammatory and the gel I use just has an alocohol/witch hazel base. if that doesn't kick it, then I take 2 Tylenol Arthritis. I try to take ibuprofen in moderation only, but the arnica gel really helps. You can get it at health food stores, drig stores and my local grocery store carries it now too.

Do the gel or the oil. Let me know if it helps. I know the I'm 38 but feel like 80 feeling!

I am 47 and I feel like 80! The problem is my back and the pain make me feel almost crippled. I live an active lifestyle but, it is getting harder and harder. But, I feel encourged that this could be my answer to a life of pain.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,830
    • Most Online (within 30 mins)
      7,748

    Mary Katherine
    Newest Member
    Mary Katherine
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cameo674
      Does it taste like black licorice?  It said it was chewable.  I do not like that flavor.     Since the burn at the back of my throat is there everyday, I usually only take something when it is unbearable and keeping me from ADL especially sleep.  
    • Scott Adams
      Your concerns about Nando's cross-contamination practices are valid and important for the celiac community. It's disappointing that Nando's does not have stricter protocols for children's portions, especially given the risk of cross-contact with gluten-containing items like garlic bread. Cooking gluten-free items on shared surfaces, even if cleaned, is not safe for individuals with celiac disease, as even trace amounts of gluten can cause harm. While the adult butterfly chicken may be a safer option, the inconsistency in practices for children's meals is concerning. It's frustrating that Nando's headquarters did not take responsibility, but sharing your experience raises awareness and may encourage them to improve their protocols. Consider reaching out to celiac advocacy organizations to amplify your concerns and push for better standards. Always double-check with staff and emphasize the importance of avoiding cross-contamination when dining out.
    • Scott Adams
      I had this symptom when I was diagnosed. Are you sure that your diet is 100% gluten-free?  Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):      
    • Scott Adams
      Based on your results, it seems unlikely that you have celiac disease. A negative endoscopy and the absence of HLA-DQ2/DQ8 genes (the primary genetic markers for celiac) strongly suggest you do not have the condition. However, the elevated TTG-IgA (22) could indicate a temporary immune response or another issue, such as a different autoimmune disorder, intestinal infection, or even a lab anomaly. The presence of DQA1*05 alone is not diagnostic for celiac. Meeting with an allergist and GI specialist is a good next step to explore other potential causes for the high antibodies, such as non-celiac gluten sensitivity or other immune-related conditions. Keep a detailed food and symptom diary to help guide further testing and discussions with your doctors. Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Captain173
      I had celiac panel done back in October, only ttg iga came back high  (22 with positive being over 3). Endoscopy done in January, it was  negative. Genetic test done after endoscopy, negative for both hla dq2 & dq8. Did show positive for dqa1*05.  Scheduled to meet with an allergist next week. Not scheduled to meet with GI specialist till after allergist. Confused if I have celiac or what caused high the antibodies originally if I do not.
×
×
  • Create New...