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Omg...i Might Be On To Something


Rachel--24

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CarlaB Enthusiast

You know, Nyxie, even when you said you were seeing my doctor in chat Saturday, I still didn't think of this thread .... since I've been feeling so much better, a lot of people PM me to see who my doctor is, so I just thought you knew from LN. LOL

Paula, the only problem I can see with chat with us is that we all post at different times of the day, it might be hit or miss ... but it would be fun, I'm game for it!


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confused Community Regular
You know, Nyxie, even when you said you were seeing my doctor in chat Saturday, I still didn't think of this thread .... since I've been feeling so much better, a lot of people PM me to see who my doctor is, so I just thought you knew from LN. LOL

Paula, the only problem I can see with chat with us is that we all post at different times of the day, it might be hit or miss ... but it would be fun, I'm game for it!

That is true, i keep forgetting we are from all over the world. Once i take the kids to school i will look around and see waht i can find for a chat room and then i can pm it to everyone or something. I just thought it might be nice cause there are sometimes things i want to say but dont want everyone in the world to read it, and i would feel better just saying it to the people that would understand, if that makes sense, the brain fog has just kicked in, ughhhh

paula

aprilh Apprentice

How in the world am I ever going to rid my body of metals if I can't deal with detoxing? I am just not sure where to go now??? or what to do? :blink:

Everytime I try and detox something gets all wappy jawed inside and it just doesn't work. If metals are the root cause and I can't get rid of them.....then what?

UGH! I am frustrated!

confused Community Regular
How in the world am I ever going to rid my body of metals if I can't deal with detoxing? I am just not sure where to go now??? or what to do? :blink:

Everytime I try and detox something gets all wappy jawed inside and it just doesn't work. If metals are the root cause and I can't get rid of them.....then what?

UGH! I am frustrated!

what are you doing to detox, i had to stop taking epson baths at night cause i had really bad insomia. I have slept better the last two nights, i still get up but go back to sleep faster now.

everyone

i got up and did 15 minutes of pilates/yoga it felt so great, but now im tired cause i just shoveled snow after i took the kids to school, i havent done this much before 9 am for 3 weeks lol, but it feels so good lol.

paula

aprilh Apprentice

OMG! I think I just found a dr! The lady on lymenet that told me about that other dr that didn't sound good to me sent me this info. It's an MD that is "integrated" and treats metals, lyme & co-infections, ect. He can do iv chelation, labs, all that! I went on his website and it felt much more my style.....Anyway, I have an appointment on THURSDAY!

I am not sure if he does muscle testing. So, I need to find someone that does ART. My chiro does muscle testing but she doesn't test for things like infections and parasites.

Now, I gotta get a list together!!

dlp252 Apprentice
How in the world am I ever going to rid my body of metals if I can't deal with detoxing? I am just not sure where to go now??? or what to do? :blink:

Everytime I try and detox something gets all wappy jawed inside and it just doesn't work. If metals are the root cause and I can't get rid of them.....then what?

This is the main reason my LLMD isn't rushing into chelation or treating the lyme aggressively. He was very pleased that I had already been going to BioSET when I came to see him, but he also knows I'm still exposed to the mold and that as long as I am, my body will not handle the treatments well--it will overwhelm my body. The first thing we did in BioSET was to clear all the pathways that I would need for my body to detox on its own. Both the BioSET practitioner and my doctor then started supplementing me with things to support all that and the detox pathways. Unfortunately, I can't remember what I was taking for what. :(

It's frustrating because I just want to get rid of it all, but I'm trying to trust him on this one.

dlp252 Apprentice
OMG! I think I just found a dr! The lady on lymenet that told me about that other dr that didn't sound good to me sent me this info. It's an MD that is "integrated" and treats metals, lyme & co-infections, ect. He can do iv chelation, labs, all that! I went on his website and it felt much more my style.....Anyway, I have an appointment on THURSDAY!

YAY!!!! That's great!


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AndreaB Contributor
How in the world am I ever going to rid my body of metals if I can't deal with detoxing? I am just not sure where to go now??? or what to do? :blink:

Everytime I try and detox something gets all wappy jawed inside and it just doesn't work. If metals are the root cause and I can't get rid of them.....then what?

UGH! I am frustrated!

Rachel and Donna used BioSET. I don't know if anything else helped. The LED's, I believe, helped reduce some of the toxin load on Rachel and get her to where she is now. I think BioSET was what cleared pathways though. I don't know if specific supplementation to build up the body would help or not.

AndreaB Contributor
OMG! I think I just found a dr! The lady on lymenet that told me about that other dr that didn't sound good to me sent me this info. It's an MD that is "integrated" and treats metals, lyme & co-infections, ect. He can do iv chelation, labs, all that! I went on his website and it felt much more my style.....Anyway, I have an appointment on THURSDAY!

I am not sure if he does muscle testing. So, I need to find someone that does ART. My chiro does muscle testing but she doesn't test for things like infections and parasites.

Now, I gotta get a list together!!

Yay, keep us posted.

I read everything......boy has it been busy this morning!

Susie, Hope your phone consult goes well next week. Definately try to look into lyme if you are able.

Jin, hope things go well on Thursday. You've got to get this tooth out. Abcess teeth can throw all sorts of toxins everywhere.

Nyxie, sorry about the glutening. Let us know when you call Dr H.

Paula, I'm glad you'll able to get the vents done using your tax return.

covsooze Enthusiast

Nyxie, I know the system for referrals works differently here in the UK, but my referral for a bone density scan was to a radiologist. The dr who actually interpreted the scan was a gynae dr though - but that's just because he's acquired a specialism in it as the majority of his patients who are scanned are menopausal.

Donna - can't beleive your age!! :o I was thinking you look my age from your piccie :)

S x

dlp252 Apprentice
Donna - can't beleive your age!! :o I was thinking you look my age from your piccie :)

I can't believe it either! :o:lol: I am a big kid at heart, so I think that helps, lol. I'll be 53!

NoGluGirl Contributor

Dear Susie,

Knowing where to start could be tricky with Lyme in England. :unsure: Carla made the best recommendation. Considering your sister has a similar history, chances are good you have Lyme. Also, the trouble with alcohol certainly speaks volumes. This is very typical of this illness.

It is quite unusual for someone with a slow Thyroid to be underweight. Parasites may be an issue for you. They are more common than most people think. Specific testing needes done for them. Most mainstream physicians do not have a clue about these things.

Nearly everyone on this thread seems to worry that the good feeling will not last. I hope the Lay's Stax I ate will not irritate my system. I have gone back to eating more simple foods. That is helping a bit. Keep your fingers crossed! Maybe we both will do okay.

I am glad the neti pot is so helpful! Sinus issues are a major thing for me, too. My wisdom teeth and this bad tooth do not help matters. I may begin doing a saline rinse. This is fairly inexpensive and easy to do.

I have decided I am ordering the test kit myself. Then my doctor will have no excuse not to do the testing!

I am not waiting on her anymore! This is the last time I just take crap from doctors. All 25 years of my life I have suffered, and it is time I begin being able to live! It might be time magick intervenes, since it is a last resort.

I will be anxious to hear about your phone consultation. Keep us updated! We will all be wanting to know how it went. Maybe something actually gets done this time! I hope so!

I have no idea where to go for a bone scan. Mom had one done. It has been a while. She might not remember now who did it. I think it was a bone specialist.

Donna does look younger than her actual age, for sure! You never would guess she is 52. I thought she was in her 30s. These Italian chicks just make us all look bad! What are we going to do?

Dear Nyxie63,

I am sure Alison knew what you meant. :) Losing a child is devastating. Many people are not open to the idea that even children are often around them all the time. They do not even know it. Sometimes they grow up in spirit. My best friend's parents lost an infant son before she was born later on.

You speak from the heart. That is the best place to speak from. Knowing this pain has given you a level of compassion for others that is very unique. This is a good thing, because you know where people are coming from. Just being understood is so important when you are going through a rough time.

I will try my very best not to barf on the dentist! He is a nice man. I have spoken to him before. He listened to all of my concerns. This is very nice. Few doctors do that.

At least you are on Day 2 of the stool test already! That means only one more day to go! Then, you will be done! I hate doing any kind of stool sample tests. They really are disgusting.

Hemp milk is one thing I have not tried. It probably cannot even be found around here. If not, finding it online would be easy. That is why the Internet is so wonderful. You are connected to everything this way.

Your endocrinologist might not like the iodine treatments. Like you, I hardly see what good removing the Thyroid does. Herbie probably agrees. Why take out body parts when it is not necessary? You never know when you might need that part.

Sweeney Todd did look interesting. Naturally, only because Johnny Depp was in it, and he sings. This is something he has never done in a film before. I do not usually go for guys in eyeliner, but he is an exception.

It is a bummer about the condiments. Hot, buttery popcorn is so good!

I hope Dr. H can get you in soon! It would be great if he can. Carla has done so well since seeing him, measuring the progress can be done by leaps and bounds. He will do anything he is able to. Wellness may be just around the corner!

Sorry to hear the meatballs got you! :( We often do not think about it, but they usually have bread crumbs in them. No wonder you felt so rough! Gluten is bad. I have to make sure I have things to eat ahead of time, because my blood sugar gets low, and I get hungry and get sick from it. Having food readily available is necessary.

I get overwhelmed a lot, too. I do not want to do anything at times. There is just so much to deal with! If the house were cleaned up, that would help tremendously. Now, if I can just handcuff everyone so they cannot mess anything I clean up, everything will be fine.

Dear Carla,

Do you have to take Samento on an empty stomach? Or, can you take it with food? I always have to eat every four hours. My blood sugar is so crazy. Even right after I eat it will be low. WTH?

So, the Bart did not cause the dysbiosis. It just added to it? Is that what you mean? I take my probiotics, and they definitely make a difference. If I am late taking them, I automatically begin feeling worse.

Dear Donna,

I only did one stool test the other year where I had to put the sample in the fridge. It was for h. pylori. Nothing showed up in it. I ended up doing the Helidac Therapy for two months anyway. That was rough.

I can just see you crashing into somebody on your skates! :lol: That is hilarious! I am great on rollerblades, but getting used to rollerskates again might be difficult. The last time I wore them, I was really young. My mother is a good skater, but Dad was never into anything that involved movement.

Yes, my insane parental units really are amusing. If nothing else, they would be great if I were doing stand-up comedy. I have contemplated this. At least my life experiences could make others laugh and bring them joy. I also need a shirt that says "You think I am weird? I am the normal one in this family!" :blink:

Extra deoderant for cute rain boots! :lol: I will keep that in mind. When it rains, I have to be inside. The rain makes me ache. Today is one of those days. We are expecting severe weather again.

Guatemala, Mexico, The Panama Canal, and Jamaica all are places with unsanitary water and food is not monitored like it is here. It came as no surprise about you and your friend becoming ill. My best friend knows someone who went to China and got sick from the food there. Our practices are safer. Still, there have been E. Coli and Hepatitis A outbreaks. Room for improvement is still plentiful.

You probably did feel odd after eating that candy if it had alcohol as well. Sugar can do strange things to people as it is. Add in something like alcohol, and things really get interesting. As good as some candies are, they are not always worth the trouble they cause. Take the Lib's candy that is made on undedicated lines.

I know I am safe with Nestle Turtles, but Lib's had no warning on the box for wheat although they are produced on the same lines as gluten-containing candies! I got violently ill from them last year. I plan on writing them a letter. Those things are not gluten-free! I did treat myself to some Jif Peanut Butter with honey the other day. I got sick from it, so no more!

Forgetting the magnesium would explain the C. It helps with regularity. That might be your trouble! How long have you been forgetting it? Was it just this week? Or, was it around the time the C started?

Being overwhelmed is something I deal with as well. I am not sure where to start sometimes. There is so much needing done. When you are not well and have limited energy, that never helps matters. Hopefully, that will improve soon.

Detoxing is important. Blocked pathways makes it impossible to get rid of burdens. That is why BioSet is so great. LED really helped Rachel. Unfortunately, it is not that widely available.

Dear Paula,

I would enjoy chatting online! We could get together on aol AIM. I can PM you my AIM. Dad taught me how to open a chatroom when I was finishing my Associate's degree. I started a study group for Finance.

A bunch of us met and discussed the assignments. It worked out pretty well.

I will definitely PM you when I start the 6WBMO. I am open for tips for sure. If you felt so good while doing it, it cannot hurt to try it again. You might feel great! Plus, this is good for low blood sugar, because you eat every few hours.

Air vents are good to have cleaned for a variety of reasons. It keeps your house from being so dusty. Ours is terribly dusty. No matter what, there is a ton of it all over the place! Maybe it is due to living so close to the cornfields?

Shoveling snow is exhausting! You sure have had a busy morning! Pilates is nice. I miss doing that. It is good to hear you are feeling better this morning. Bleach kills mold a lot of the time. That might explain some of it.

I am glad the insomnia is better. Maybe you had a bit too much magnesium from the baths? Perhaps it had an opposite affect on you? Certain things aggravate more than help at times. Detoxing can cause a lot of weird sleep patterns and odd stuff.

Dear Andrea,

I thought you and the others would like to know I heard from Judy. She has been having a rough time lately, too. I e-mailed her the other day. Judy said she will try to catch-up on here by herself. She did not go into specifics, but I assume her stomach is in knots again.

Mr. Molar needs to go! You are right. I think the bacteria from my tooth could be moving down into my stomach. Why couldn't it? That would explain the terrible GI symptoms.

Dear Rachel,

Mainstream doctors do not have any idea about parasites. They tend to ignore them. Interestingly, Dr. Larry Jones that is President of Feed the Children often addressed parasites in African children. You would think more physicians would learn about them. The affect on the body is awful from these organisms.

I am pretty sure you spelled Giardia correctly. I go by if it looks right. It is one of those things. How a word looks can tell you if it is spelled properly. Do what works!

Your worm may be large. I remember reading about tapeworms on the link Patti provided. Those things easily regenerate. They attach directly to the intestinal wall. No wonder you have such a hard time keeping weight on!

What amazes me is how much more accurate muscle testing is. So many other methods are used. Yet, they rarely turn up anything of note. ART and BioSet are more helpful than most blood or stool tests. Doctors often waste pateints' time, energy, and money on the other diagnostics.

Dear April,

Rachel was facing the same predicament for quite a while. She had metals trapped. Her sulfur pathways were blocked, making metals impossible to chelate. LED laser detoxing is what really helped her.

I understand why you would worry. However, I am sure you can fix this.

That is great about the appointment! How wonderful! I am so glad you are going to finally see someone who is integrated. Now you are getting somewhere! I cannot wait to hear about your appointment!

Sincerely,

Jin

Green12 Enthusiast

Hi guys, I am super behind, like 15+ pages or more.

I had my monthly angioedema outbreak, when I'm not posting and disappear that is the reason :lol: .

I had it in my esophagus and throat again this time around and I hate that, it's so scary. I keep my epipen close and pray that it doesn't close up, I don't want to go to the ER!!

Anyway, I have to say this one was much less in intensity and length, knock on wood. I think the high doses of fish oil and vitamin D are finally helping calm the immune response.

I also took an epsom salt baking soda bath every morning and I took my charcoal at night, so I think that also helped with the toxic load during the breakout.

So, if all continues like this I might have beat this angioedema thing and it could very soon be a thing of the past for me :D:D

April, I know you asked me pages and pages ago about apple pectin, I ended up throwing in the towel with the powder :wacko: . No matter what I tried I couldn't make it doable for me.

My store was out of capsules, and I am considering those (although I don't like taking the cellulose caps), but in the meantime I bought tablets to try. I thought I would break the tablets up a little with the back of a spoon to make them digest easier, swallow, and chase with water. We'll see.

I have an appt with a new practitioner on Sat. I had emailed The Better Health Guy and he gave me a recommendation. She does ART, LED, hair analysis, and a bunch of other things.

Rachel, one thing that I wanted to comment on was you getting sick on the donuts. I know the flour they use in a regular grocery store bakery is enriched and toxic like you posted, but I immediately thought of the oil that donuts are fried in, no doubt rancid, and that could be a reason you reacted more strongly to the donuts than the other foods with flour you tested out.

Susie, here are the UK lyme networks through Lymenet:

Open Original Shared Link

Open Original Shared Link

Jin, thanks for the PM!

happygirl Collaborator

Note: Study done in India.

Dig Dis Sci. 2007 Aug 31 [Epub ahead of print] Links

Parasites in Patients with Malabsorption Syndrome: A Clinical Study in Children and Adults.Behera B, Mirdha BR, Makharia GK, Bhatnagar S, Dattagupta S, Samantaray JC.

Department of Microbiology, All India Institute of Medical Sciences, Ansari Nagar, New Delhi, 110029, India, mirdhabr@hotmail.com.

Background: Intestinal parasites not only cause diarrheal diseases but also significant malabsorption. Literature on the role of parasites, such as intestinal coccidia and microsporidia in malabsorption syndrome is limited. Methods: Three consecutive stool samples from 50 adult and 50 children patients with malabsorption syndrome and an equal number of healthy controls without diarrhea were examined for intestinal coccidia, microsporidia and other intestinal parasites by wet mount, Kinyoun's modified acid-fast staining and chromotrope 2R staining. Results: Celiac disease was the commonest cause of malabsorption syndrome in both adults (52%) and children (74%). Forty (80%) and 41 (82%) adults and children, respectively, with malabsorption syndrome were infected with parasites. These results were significantly higher in comparison to those from the healthy adults and children controls (22% and 16%), respectively (P < 0.001). Of them, 48% and 46% of the adults and children, respectively, with malabsorption had pathogenic parasitic infections. The pathogenic parasites detected in adults were Giardia lamblia 12 (24%), E. histolytica / dispar 5 (10%), Ancylostoma duodenale 4 (8%), H. nana 2 (4%) and Cyclospora cayetanensis 1 (2%). The pathogenic parasites detected in children with malabsorption syndrome were Giardia lamblia 8 (16%), Cryptosporidium 7 (14%), E. histolytica / dispar 3 (6%), Ancylostoma duodenale 3 (6%), Isospora belli 1 (2%), and H. nana 1 (2%). None of the stool samples from healthy controls were positive for Cryptosporidium spp., Cyclospora and Isospora belli. All the patients infected with intestinal coccidia were HIV sero-negative. Conclusion: Celiac disease is the most common cause of malabsorption syndrome in both adults and children. These people harbor significantly more pathogenic parasites and are more frequently colonized with harmless commensals as compared to healthy controls. Intestinal coccidia are associated with malabsorption syndrome, particularly in malnourished children.

NoGluGirl Contributor

Dear Julie,

You are so welcome for the PM! I hope that helps you catch up some. There has been a lot going on lately. Everyone's fingers are moving! We have been active.

Sorry to hear about the angioedema. At least it was shorter in duration. Those supplements must be helping some! It never hurts to have the Epi-Pen nearby. You never know when you may need it.

A roux is too difficult to mix. I tried that with my B-12 powder. Can you say ick? You still have to stir it, then hurry up and gulp some of the lumpy mess down.

All you can do is try! Maybe the capsules will work for you.

That is an interesting note on the doughnuts and oil. I used to feel really sick after eating doughnuts sometimes. I bet the oil was why. My gallbladder being removed did not help the situation any. Foods are just loaded with junk!

Dear Laura,

Thank you for the article! I have read about a correlation between Celiac and parasites. They are commonly present together. This is fascinating. We had a rabbit that died suddenly after contracting severe diarrhea. I suspect he had Coccidiosis.

Dear Donna,

The Humaworm really removed the trouble! I am glad the magnesium is helping again. I know when you were on the HW you had severe D for a bit. Sometimes, those things should not be mixed. It is just too hard on you.

Sincerely,

Jin

dlp252 Apprentice
Forgetting the magnesium would explain the C. It helps with regularity. That might be your trouble! How long have you been forgetting it? Was it just this week? Or, was it around the time the C started?

Well, the C started when I stopped the Humaworm. I think the magnesium helps so that it's not as bad, but I really think the Humaworm killed off whatever it was that caused the D in the first place! So basically, I stopped the Humaworm the day after Christmas and I've had C since then. I stopped the magnesium the week I finished the Humaworm because during that last week, I felt like the magnesium was giving me issues, but then I forgot to start the liquid version I have. I finally remembered to take that last week, but only three days...during those three days I was more regular, and no issues with it. :P

AndreaB Contributor
So, if all continues like this I might have beat this angioedema thing and it could very soon be a thing of the past for me :D:D

Yay! That is such good news. :D

That's great about your upcoming appointment too! Is this a consult type appointment or will you have anything done like the ART?

dlp252 Apprentice

Thanks for the info Laura!

I had it in my esophagus and throat again this time around and I hate that, it's so scary. I keep my epipen close and pray that it doesn't close up, I don't want to go to the ER!!

...

So, if all continues like this I might have beat this angioedema thing and it could very soon be a thing of the past for me :D:D

Wow, that throat thing really scares me for you! I so hope that all continues like it is then!

I just started taking my Vit D again...my LLMD was kind of shocked that I wasn't on it anymore. :(

I have an appt with a new practitioner on Sat. I had emailed The Better Health Guy and he gave me a recommendation. She does ART, LED, hair analysis, and a bunch of other things.

YAY!!!!! I can't wait to hear about the appointment! Scott is just the nicest guy!

AndreaB Contributor

Thanks for the article Laura.

I have parasite too, just don't know the extent of them. Won't do anything til I get my teeth taken care of anyway.

NoGluGirl Contributor

Dear Andrea,

It would be great if Julie did not have to deal with that anymore. This condition really causes her major trouble. That is frightening what it does. I have never heard of anything like it. Experiencing that must be scary!

Dear Donna,

I read about Vitamin D deficiencies recently. The being worn out so easily and wiped out for days after doing a lot of activity is part of that. It makes sense. I just drag sometimes. I barely can get off of the sofa.

Sincerely,

Jin

confused Community Regular
So, if all continues like this I might have beat this angioedema thing and it could very soon be a thing of the past for me :D:D

.

I have an appt with a new practitioner on Sat. I had emailed The Better Health Guy and he gave me a recommendation. She does ART, LED, hair analysis, and a bunch of other things.

[

julie,

Could you pm the new practioner you are going to see. Im not sure what part of colorado you are in, but once im a little better i would see another practioner.

paula

Green12 Enthusiast

Thanks :wub: I would LOVE to not have to have the angioedema anymore, it has by far been the single most debilitating issue I have had to deal with in my entire life.

Well, the C started when I stopped the Humaworm. I think the magnesium helps so that it's not as bad, but I really think the Humaworm killed off whatever it was that caused the D in the first place! So basically, I stopped the Humaworm the day after Christmas and I've had C since then. I stopped the magnesium the week I finished the Humaworm because during that last week, I felt like the magnesium was giving me issues, but then I forgot to start the liquid version I have. I finally remembered to take that last week, but only three days...during those three days I was more regular, and no issues with it. :P

Donna, I don't know if this factors into the C or not, but you also mentioned last week that around the same time as these changes above you stopped taking the Pectasol product :huh:

Laura, interesting info. Thanks for posting.

Jin, you asked about the enemas in your PM.

There are tons of different enema recipes that address different things.

Lemon juice enemas serve to cleanse out the colon, so if you are impacted, have C, then this recipe is great to get all of clear out all of that old fecal matter.

Acidophilus enemas help to restore the good bacteria.

These are the 2 types of enemas I did the most.

I started out doing coffee enemas but was told by my practitioners that my state of health, and liver, was not to the point where I could handle them, and they would cause me more harm than good.

confusedks Enthusiast
Dear Kassandra,

My Phenergan dosage is 25mg as well. I can take it as often as every 6 hours if need be. In the hospital, they injected me every 4 hours. That is probably why I felt like I was being thrown to the floor and my mother had to help me walk. I try not to take it unless I get glutened or something, but lately I have had to take it more than usual.

I was wondering, can you have low ferritin and not be anemic? I used to be anemic when I was your age. This is interesting. After my periods were lightened up by the Depo, that got better. Fatigue is a major symptom for me.

Stitches do itch! At least you know you are healing that way. I remember after my gallbladder surgery I itched where my incisions were something awful. I had to leave it alone, though. Are you still flushing out your PICC line daily?

I might have to check on those 10 minute workouts! I may be able to do something like that. Of course, I am pretty sure I am going to do the 6WBMO. Everyone says it is the real deal. It could help my health and my shape.

I used to love rollerblading. I found out later that was bad for my body type. It makes your butt, thighs, and hips bigger. What a bummer! Right now, the streets will be too flooded for you to skate on anyway.

Too bad the rain did not last a little longer so you could have worn your adorable outfit!

OMG, I just realized what the 6wbmo is...6 Week Body Make-ever!!!! :D I was so confused! I think it's a great plan. And, it's a health diet. My friend is doing a special K diet right now and I laughed at her because it is so ridiculous.

Yes, you can have low ferritin and not be anemic...that's my problem. Well, all of my other iron numbers get low, except my hemoglobin. That means you are iron deficient, NOT anemic. They are two different medical conditions, technically. If it makes you feel any better, I am extremely fatigued and my ferritin should be fine. I think that's a major Lyme symptom for me.

This morning, I set my alarm for 9.30 and I slept through my blasted iPod (my alarm...in an iHome) for one whole hour! :o Fatigue sucks!

Yea, we are still flushing my PICC everyday. ;)

Paula,

I would be game for a chat also! I agree, posting on the internet is a little scary. ;)

dlp252 Apprentice

Here comes the rain! :( Today's storm is supposed to be a big one...they predicted (on one channel I happened to pass by) that it would hit around 10:00...not too far off...and storm until 7:00 tonight. I promised to go to choir tonight, now I'm wishing I hadn't, lol. Anyway, it's not too bad yet...the parking lot across the street is just wet, at least it doesn't look like a lake yet. :P

Donna, I don't know if this factors into the C or not, but you also mentioned last week that around the same time as these changes above you stopped taking the Pectasol product :huh:

Yes that's true too and I DID think about the pectasol, and actually considered about ordering more today, lol. Dang stuff is SOOOO expensive and I took it for over a year, but I think it does help and at the very least it's a natural fiber supplement without taking something like benefiber.

~~~~

Ooops, in the time it took to type this it started raining a bit harder, lol. :P

ShadowSwallow Newbie

Julie,

I'm so glad your angioedema is improving! And that you have found another good doctor to work with! :wub:

Rachel,

At this point I'm certain that this tingling is related to the toxins... I need to get on a binder in addition to the parsley.

Jin,

I hope you get your hands on the Igenex test very soon! :angry: I'm actually going to have another BioSet appointment and a visit with my allergist at the end of the month (I'm thinking it's going to be a lot of talk about metals), and then I'll see the LLMD February 11.

Nyxie,

I'm taking Trace Mineral's Liquimins Ionic Magnesium. I'm surprised at how much my body's loving the stuff. :lol: This morning after waking up I had that dull ache in my liver again, and was going to post about it, but then I remembered to take the magnesium, and it cleared it up in about 10min. :blink: And yesterday I was so sure that it was exactly the wrong thing for me to take.... :lol: :lol:

Donna,

Yes, take your magnesium! :lol: :lol:

April,

I hope the magnesium you've just started taking will help you as much as it has helped me. :) That's FANTASTIC that you've found an LLMD!!!! And you have an appointment so soon!!

Everyone,

Ever since my copper came up high on the EAV (biounavailable and toxic) I've been researching copper toxicity and it describes me perfectly. :o I think this might be one of the root causes of my problems... it affects the ligaments, which would probably explain the baker's cysts, and estrogen, which would explain why (if I don't have lyme... which I'm actually beginning to suspect less and less) my problems go in monthly cycles! I'm going to start journaling my symptoms (I know, something I should've been doing for a while now :ph34r:) and see how things line up. There's definitely more going on than just this, but I think it could be a huge part of it.

Here are the two main article I found:

Open Original Shared Link

Open Original Shared Link

Oh, and I think I forgot to mention that h. pylori came up in my EAV as well. That was one insightful session. :rolleyes:

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