Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something


Rachel--24

Recommended Posts

dlp252 Apprentice

Thanks Birdy, that was interesting...I know that all my levels were off, I think copper was one of them, but can't remember if it was high or low...I think they had me supplementing it for a while, so I'm thinking low.

I found this interesting (from your second link) because of my adrenal problem:

Adrenal insufficiency: The Major Cause of Copper Toxicity

Although there are numerous reasons for the prevalence of copper toxicity, the most important cause is adrenal gland insufficiency. Individuals with adrenal insufficiency are unable to utilize copper properly. The reason for this is that copper can only be utilized in the body if it is attached to a protein substance for transport and storage.

The major protein that copper is attached to is called ceruloplasmin. Ceruloplasmin is a protein which binds copper so that it can be utilized in biochemical reactions.

When the adrenal glands are underactive, they are unable to send out a message to the liver to release ceruloplasmin from the liver and, therefore, copper becomes biounavailable.

As a result of excessive tissue storage of biounavailable or unbound copper, a deficiency of available copper occurs, even when dietary intake of copper is more than adequate. The result may be a craving for foods high in copper, such as chocolate, avocados, etc. The other result is multiple bodily dysfunctions as a direct or indirect result of copper imbalance.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 33.4k
  • Created
  • Last Reply
confused Community Regular

Ok i made an chat room, if anyone wants the link then pm me, since im not sure who wants to be involved in chatting i dont want to pm everyone on the board lol, and i dont think i should post it here lol

paula

confusedks Enthusiast

Paula,

Yea, I wouldn't post it here. Do it through PM. I'll PM you. I'd like the link. :)

aprilh Apprentice

Ok. Now I know why I have been having all these wierd symptoms. I just started my period! I get really wierd symptoms around that time. Doesn't make sense to me at all!

CarlaB Enthusiast
I started out doing coffee enemas but was told by my practitioners that my state of health, and liver, was not to the point where I could handle them, and they would cause me more harm than good.
Why was this? Is it because it pulls out too many toxins?

(if I don't have lyme... which I'm actually beginning to suspect less and less)

Didn't you have a positive WB?

Ok i made an chat room, if anyone wants the link then pm me, since im not sure who wants to be involved in chatting i dont want to pm everyone on the board lol, and i dont think i should post it here lol

paula

I'd like the link.
confusedks Enthusiast

Carla,

I am wondering, the lady I talked about a while ago who tested positive for Lyme years ago, her periods are really bad. Well, around the time of the time of the month, she gets bad "meningitis flares"...isn't that also suggestive of Lyme?

Julie,

I wonder what my LLMD will say about the ecoffee. I have a REALLY sensitive system, so I wonder.

CarlaB Enthusiast

My LLMD says it's normal to flare during your periods.

Paula, I left chat when that guy showed up.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



confused Community Regular

carla

I kicked the freak out.

paula

Green12 Enthusiast
Why was this? Is it because it pulls out too many toxins?

I assume so. I was under the care of a Naturopath at the time, and the main modality they used was bioenergetics (bioscan, bioset, vibratory/energy medicine).

My body DID NOT want to detox, my system was very touchy, so they had to proceed slowly with treatment and only what my body was ready for.

Birdy, great links on the Copper. Wilson's disease is something that was suspected for me a long time ago. i had a lot of symptoms and signs of heavy copper levels, especially copper flecks in my eyes.

Paula, I left chat when that guy showed up.

I kicked the freak out

Sounds wonderful guys :lol::lol::lol::lol:

Paula, I pm'd you the practiitoners name.

I would like the chat link also, whenever you can pm it to me :)

dlp252 Apprentice
Ok i made an chat room, if anyone wants the link then pm me, since im not sure who wants to be involved in chatting i dont want to pm everyone on the board lol, and i dont think i should post it here lol

Well, you can PM me the link, but I'm not sure how often I can visit. They have blocked chat rooms here at work (I've tried, lol) and at home I don't spend a LOT of time on the computer anymore, but may make an exception, lol.

Ok. Now I know why I have been having all these wierd symptoms. I just started my period! I get really wierd symptoms around that time. Doesn't make sense to me at all!

I used to get HORRIBLE symptoms around my period. Awful! I absolutely HATED my period. Did I shout enough for ya'all, lol.

Paula, I left chat when that guy showed up.

I kicked the freak out.

Egads, new chat room and already a freak?! :lol:

CarlaB Enthusiast

Here's the link to Lymechat

Open Original Shared Link

It's a hopping place Saturdays at 8PM Eastern

Green12 Enthusiast

April,

Our menstrual cycles are a built in body detox for us women, during flow the body is doing a cleansing of sort so I think it's pretty typical to have a flare up of symptoms at that time.

dlp252 Apprentice

Ooh goody, my new neurotransmitter supplements just came. CalmPRT sounds like something I need, lol.

confusedks Enthusiast

LOL! A freak! That's funny!

Donna,

When I actually *do* get my periods, I am bed-ridden and don't want to eat, drink, talk or anything. I hate them too! Ugh, and the cramps. Makes me glad I haven't had one since August. :P

Everyone,

So I think this silly thread is why I never can get any hwk done! LOL! I seemingly think "uh oh, what if I missed a post" :lol::lol::lol:

I signed up for the chat too, but I still haven't gotten the email. I may sign up under a different email, because hotmail never gets those emails. Hmm

confused Community Regular

Carla do u think they would mind us using it until i can figure something out, i went over there now.

paula

kassandra,

it goes to your junk email

paula

confusedks Enthusiast

I looked there...not there. What is the subject?

ShadowSwallow Newbie

Carla,

No, I don't have a positive WB. The results from labcorp aren't back yet (and even so I wouldn't trust that lab's negative). I'm feeling amazing now (I think it's the weather and chelation) but I still have some lyme-typical symptoms such as stiff shoulders.

Paula,

I'd also like the link for the chat. :)

AndreaB Contributor

Me too Paula.....although I don't know how much I'd be over there.

What about group messaging. I just signed up for yahoo messaging.

AndreaB Contributor
So I think this silly thread is why I never can get any hwk done! LOL! I seemingly think "uh oh, what if I missed a post" :lol::lol::lol:

:lol::lol::lol:

I'm like that too. Then I don't always get the post notifications.

dlp252 Apprentice

The only time I can possibly miss a post is when I'm sleeping, lol. I hit "new posts" every few minutes while I'm at work. :P

CarlaB Enthusiast
Carla do u think they would mind us using it until i can figure something out, i went over there now.

paula

If most of us weren't Lymies I wouldn't have suggested it .... I figured it was relevant .... Most of us are on LN anyway, though it's not affiliated with LN.

confusedks Enthusiast

Yea, Carla...I don't know how I am EVER going to get anything done! Who wants to learn about Socrates anyway?! LOL!

Andrea and Donna,

I know...Celiac.com has taken over my life! :lol: When I went to school, I got a new phone so I could check the posts! LOL! I'd get caught in class looking on here! :lol::D:lol:

confused Community Regular
The only time I can possibly miss a post is when I'm sleeping, lol. I hit "new posts" every few minutes while I'm at work. :P

I do that to, this forum is always on since my laptop is always on, so just you all know even if it shows my name as reding this thread, im not always actually here lol.

that chatroom didnt work very good, carla couldnt backspace, so im still trying out a few things, but i spent so much time trying to do that i forgot to eat and im feeling sick now lol, so im off to eat then i will try a few more places.

paula

confusedks Enthusiast

Paula, how about something like Yahoo or AIM? That may work. I already have an account with both actually. And, I have another chat for Lyme teens I do on Wednesday nights...so that may work.

confused Community Regular
Paula, how about something like Yahoo or AIM? That may work. I already have an account with both actually. And, I have another chat for Lyme teens I do on Wednesday nights...so that may work.

Does anyone use msn messenger. I have an yahoo messenger account, but i can not remember what it is now or what about myspace messenger, no that wouldnt work lol.

kassandra,

no wonder u dont get anyting done, between chats and this forum lol.

I blew up the microwave so i have to wait for my eggs to boil now and i need to eat.

paula

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Maura Gissen's topic in Food Intolerance & Leaky Gut
      5

      Autoimmune Reaction to SO many foods

    2. - Maura Gissen replied to Maura Gissen's topic in Food Intolerance & Leaky Gut
      5

      Autoimmune Reaction to SO many foods

    3. - trents replied to Maura Gissen's topic in Food Intolerance & Leaky Gut
      5

      Autoimmune Reaction to SO many foods

    4. - Maura Gissen replied to Maura Gissen's topic in Food Intolerance & Leaky Gut
      5

      Autoimmune Reaction to SO many foods

    5. - trents replied to Maura Gissen's topic in Food Intolerance & Leaky Gut
      5

      Autoimmune Reaction to SO many foods


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,977
    • Most Online (within 30 mins)
      7,748

    Sam777
    Newest Member
    Sam777
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      71.4k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      I'm a little confused. In your second post you said, "but these symptoms have been ongoing for a long time before the pregnancy" while in your most recent post you say, "I was doing a lot better on the AIP diet. However, I was unable to do the full reintroduction process because I went off the AIP diet when I got pregnant and was experiences chronic nausea." CBC = Complete Blood Count. This is the typical bloodwork most people would have done routinely with an annual wellness checkup. I would include things like iron levels, various blood cell counts including reds and whites and other infection fighters. CMP = Complete Metabolic Panel. This would measure things like blood sugar, kidney and liver function, plasma proteins and various enzymes. Non cellular things that the body produces. Also typical of an annual wellness check. Have you tried cutting out dairy and oats? These two are the most common cross reactors in the celiac community. I know it must be tough trying to get adequate calories and nutrition when you are pregnant while at the same time eliminating foods that are good sources of those things.
    • Maura Gissen
      They did. I was doing a lot better on the AIP diet. However, I was unable to do the full reintroduction process because I went off the AIP diet when I got pregnant and was experiences chronic nausea. This is what makes me believe it's food related.  I do check all of my food products and supplements and I am very careful about them being gluten free and trying to stay away from corn starch etc. However, I am eating gluten free breads that sometimes have rice flour, yeast, etc. - I seem to do fine with these breads/bread products some days, but then am sick other days.  I have never really had any GI symptoms outside of bloating. My symptoms are dizziness, brain fog, and a general feeling of unwellness or malaise, sort of like when you're going to get the flu.  I have had a lot of bloodwork done over the last three years, but I don't recall doing the CBC, CMP, or a celiac-specific test recently. That's helpful so that could at least provide some insight to see if I'm still being exposed.  Do you see most individual with celiacs having to take a period of time away from even gluten free breads and other cross-reactive foods to let their guts heal? I'm not sure how restrictive to get with my diet again since it's so challenging. 
    • trents
      Did the symptoms commence after you discontinued the AIP diet? Have you checked all nutritional supplements and oral hygiene products for possible gluten content? Have you recently checked all the labels of purchased processed foods in your pantry to check for formulation changes that might have introduced gluten? Historically, when "glutened" did you have GI symptoms or were you a "silent" celiac whose symptoms were non GI. Is what you are experiencing now like what you were experiencing at the time of diagnosis? Have you had recent blood work done (CBC and CMP) and if so, were there any parameters out of norm? I know you have Hashimoto's but you say that is well controlled now? It certainly wouldn't hurt to get celiac antibodies rechecked. Because you are essentially gluten free I would not expect to see any big departures from normal levels but if there are even weak positives it could indicate you are getting glutened from some unexpected source.
    • Maura Gissen
      Hi Trent! Thanks so much for your warm welcome and questions! They do, but these symptoms have been ongoing for a long time before the pregnancy. However, it's hard for me to know what's a celiac response vs. a Hashimotos one. I haven't, maybe it's worth getting those checked again? 
    • trents
      Welcome to the forum, @Maura Gissen! Don't those same symptoms often come along with the territory when pregnant? And then throw in Hashimoto's.  Have you had your celiac antibody levels checked recently?
×
×
  • Create New...