Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something

Rachel--24

Recommended Posts

mftnchn Explorer
mftnchn
Posted
On her website she says she has a "fun program" for kids so they won't be scared. I think she starts out very slow with them. I am going to call today to check it out.

Do you find that you have trouble moving out the toxins that it releases? That is my only concern.

Quick note before I close down my computer for travel...

I haven't noticed trouble so far. It opens the pores so you excrete more from the skin I think. The first time on the second day I was tired, they told me that was normal. I do keep taking my charcoal, and drink water.

Sherry

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 33.4k
  • Created
  • Last Reply
mftnchn Explorer
mftnchn
Posted
I don't envy you the jet lag and getting used to a different time schedule while you're on this side of the "pond". Looking forward to you hitting stateside though.......safely that is. :lol:

Thanks...I do okay with the ambien at night...but have to take it for 10 days in a row now. Guess it is my age.

We'll be headed by you on Friday, we have to get to Oregon City by mid afternoon to pick up the key to the place we are staying. We wouldn't have long to stop, but maybe could if there is an easy place to meet?

Otherwise we'll catch you on our next trip north in mid February.

Sherry

confusedks Enthusiast
confusedks
Posted

Quick update: The mepron is supposed to be $564 with insurance, but apparently we are about $100 away from hitting a deductible! That's amazing! So, I'm going to call tomorrow and ask the insurance company what it would cost if we paid and hit the deductible, because if it's only $15 or something close to that, we will gladly pay so it's cheap from here on out.

:D Just wanted to report good news! :D

Green12 Enthusiast
Green12
Posted

Good news on getting the cost of the meds down Kass and Nyxie, good news on the appt!

AndreaB Contributor
AndreaB
Posted

That's great Kassandra! :D

confusedks Enthusiast
confusedks
Posted

Okay now I have bad news. It seems there is something wrong with my PICC line, so we are waiting to hear back from the Dr to see if we need to go to the ER! <_< UGH! If it's not one thing, it's another. ;)

truthsearcher Rookie
truthsearcher
Posted

Hope everything is ok with PICC line Kass.

Hang in there.

Laurie

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


AndreaB Contributor
AndreaB
Posted
Hope everything is ok with PICC line Kass.

Hang in there.

Ditto.

confusedks Enthusiast
confusedks
Posted

He called back and he said unless I have a fever or get flu-like symptoms, I don't need to go to the ER. He said if I do get either of those, go right away to the ER and it's not to be taken lightly. He wants me to go tomorrow and have it pulled because he said he doesn't want to keep it in anymore, it's making him too nervous.

Also, he got my blood results back and my ferritin is over 100 now! He doesn't remember exactly what the number is, but since I won't need more for about 4-5 months, he wants to pull the line. YAY! It's really annoying me. Showering with Lyme is hard enough, let alone having to tape my whole arm every time!

AndreaB Contributor
AndreaB
Posted

Good news Kassandra. :)

Green12 Enthusiast
Green12
Posted
Also, he got my blood results back and my ferritin is over 100 now! He doesn't remember exactly what the number is, but since I won't need more for about 4-5 months, he wants to pull the line. YAY!

Yay!! This is wonderful news :)

confusedks Enthusiast
confusedks
Posted
Good news Kassandra. :)

Thanks guys! :DB) I am now trying to remind myself not to eat in the morning in case they need to use anesthesia to take it out, I have to have fasted. Hmm...I wonder if I wrote a note on my forehead?! :lol: :lol: I probably wouldn't see that!

Nyxie63 Apprentice
Nyxie63
Posted

Kassandra,

What great news! :D

And to everyone, thanks so much for your encouragement, support and kicks in the butt (motivation). I'd probably still be wallowing if it weren't for you. :wub:

Hubby's grumbling about money this morning (which he pretty much does every payday), but we have enough for the appt and he grudgingly agreed. Looks like I'm going to have to find some way of bringing income into the house.... and soon.

I'll be calling Dr H's office to make the appt. Will let you know when it is.

CarlaB Enthusiast
CarlaB
Posted

Good news Kassandra and Nyxie! :)

dlp252 Apprentice
dlp252
Posted

Wow, how fun!!! Great news from Kassandra, Nyxie and Paula! Nice to wake up and see good news all around in Rachelville!

Speaking of waking up, lol. I don't know how it happens, but this is the second time it has...my clock somehow changes time. Today the alarm went off at 4:40 like it's supposed to, only the time on my actual clock got set ahead somehow, so it was actually 3:40! Blah, lol. I'm not sure how that is happening because the button to hit to change the time is a tiny little button and it's not easy to hit! Egads, I may have to get a new clock. This one was nice because it's a C D/Radio/Clock unit, but it's trash bound if it can't keep time, lol. I made good use of the time though and actually put on makeup...so like Paula, I'm feeling good with my EM makeup on. :P

Had an eye exam yesterday. The good news is that he says my eyes are very healthy and look really good. Bad news...getting new glasses and YOWZER were they expensive, lol. I was able to put it on my FSA account though.

Okay, I'm nervous again...I'm going to give myself my B12 shot today. :wacko: I've had one a week for the last 3 weeks, so I'm going to try 2 a week for at least a couple of weeks to see what that does. Dr. S said I could have them 1 or 2 times per week.

confused Community Regular
confused
Posted
Wow, how fun!!! Great news from Kassandra, Nyxie and Paula! Nice to wake up and see good news all around in Rachelville!

Speaking of waking up, lol. I don't know how it happens, but this is the second time it has...my clock somehow changes time. Today the alarm went off at 4:40 like it's supposed to, only the time on my actual clock got set ahead somehow, so it was actually 3:40! Blah, lol. I'm not sure how that is happening because the button to hit to change the time is a tiny little button and it's not easy to hit! Egads, I may have to get a new clock. This one was nice because it's a C D/Radio/Clock unit, but it's trash bound if it can't keep time, lol. I made good use of the time though and actually put on makeup...so like Paula, I'm feeling good with my EM makeup on. :P

Had an eye exam yesterday. The good news is that he says my eyes are very healthy and look really good. Bad news...getting new glasses and YOWZER were they expensive, lol. I was able to put it on my FSA account though.

Okay, I'm nervous again...I'm going to give myself my B12 shot today. :wacko: I've had one a week for the last 3 weeks, so I'm going to try 2 a week for at least a couple of weeks to see what that does. Dr. S said I could have them 1 or 2 times per week.

Well it was a good day.

But at least i feel better today and look awesome lol.

Good luck on the shot, that makes me hurt just thinking about it lol. But after u getting up so early maybe u need that boost of energy today lol

paula

dlp252 Apprentice
dlp252
Posted
Good luck on the shot, that makes me hurt just thinking about it lol. But after u getting up so early maybe u need that boost of energy today lol

Yes, especially since I have ensemble group practice tonight, which doesn't start until around 9:00 (when I usually go to bed!).

AndreaB Contributor
AndreaB
Posted

I'm so happy you'll be able to make the appointment Nyxie! :D :D

Donna,

I don't what to think about your clock. :huh: I think I'd say.....they don't make things like they used to. On the other hand, we've had some clocks for quite a few years that are still doing great!

Hope you do ok with giving yourself the shot. :)

I emailed Dr E about the abdominal pain and she wants me to increase my probiotics for now. She will get back to me in a few days when she's had time to go over what I'm taking and try to figure things out. She's trying to keep me from needing to go up. Now I also have some pain where I'm thinking the stomach is......between the bottom of the rib cage. I think the abdominal pain has gotten a little better the last week, but it's still there. I've also not been sleeping that well since this all started. Would that be semi insomniac or insomniac? :rolleyes:

Anyway, that's an update on me. I had a raging headache yesterday which is why I wasn't posting much. I tend to get headaches when I'm tired. So if you just see vague, short comments that may be why. Know that I'm reading and thinking about you all. :)

dlp252 Apprentice
dlp252
Posted

Oh Andrea, any disturbance of sleep is insomnia to me! :lol:

Yeah, I'm thinking I should go back to the very simple old-fashioned alarm clock. I've had this one for a few years now, and never had any trouble, but two times in the last month or two the time has "changed". So, unless I'm sleep walking, I don't think I'm doing it, lol.

confused Community Regular
confused
Posted
Oh Andrea, any disturbance of sleep is insomnia to me! :lol:

Yeah, I'm thinking I should go back to the very simple old-fashioned alarm clock. I've had this one for a few years now, and never had any trouble, but two times in the last month or two the time has "changed". So, unless I'm sleep walking, I don't think I'm doing it, lol.

That is why i use my cell phone for my alarm, well we all do. Its funny hubbys goes off at 4, mine at 4:45, and my stepsons at 6. I have to set mine just in case hubby pushes snooze in his sleep lol.

paula

Nyxie63 Apprentice
Nyxie63
Posted

Paula,

That thing about your alarm made me laugh. We only set the alarm if hubby has to get up for the early shift (he's on swing shift). Its on to wake me up so I can wake him up. He wouldn't hear it. :D

Andrea,

Sorry you're not feeling well now.

Donna,

Good luck with the shot! Steady hand and keen eye, etc... or is it the other way around? :huh::D

Everyone,

To add to the further good news, just got off the phone with Mom. She's sending us $500 to take the owie out of the financial situation right now. We'll have to pay her back over time, of course, but it's something. She was so pleased I finally have an answer (of sorts).

Will be calling Dr H's office once they're back from lunch. Woot!

AndreaB Contributor
AndreaB
Posted

That's great Nyxie! Certainly helps to ease some of the stress right now. :)

confusedks Enthusiast
confusedks
Posted

Off to go get my PICC pulled! I'm so nervous it's not even funny! I'm so afraid it's going to hurt when they pull the 5 stitches! Ahhhh

AndreaB Contributor
AndreaB
Posted
Off to go get my PICC pulled! I'm so nervous it's not even funny! I'm so afraid it's going to hurt when they pull the 5 stitches! Ahhhh

Hoping it goe better than you think it will.

dlp252 Apprentice
dlp252
Posted

Yay, more good news from Nyxie!!!

Kassandra, hope all is going well for you! I'm sure it will!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,874
    • Most Online (within 30 mins)
      7,748
    LeeD
    Newest Member
    LeeD
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      71.3k
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      How long after being diagnosed with Celiac do you feel better?

      By trents · Posted

      Thanks for sharing, Karen. Certainly a needed reminder what we already knew (and I've posted many times on this forum) but sometimes forget, namely, autoimmune disorders tend to cluster. Where one is found, you can look for others to show up eventually. The thing that is unusual in your son's case is the onset of several of them at such a young age. My sister in law, who is in her early 60's has Crohn's and struggles with constipation so I don't think that is unusual with Crohn's. If nothing else, it's the outcome of not eating much because of the pain. Now that you know what is going on with your son and the Crohn's, we hope he is beginning to improve.
    • Nathan.
      How long after being diagnosed with Celiac do you feel better?

      By Nathan. · Posted

      Hi there. My son is turning 16 this month. He had an endoscopy and biopsy to confirm celiac. He went gluten-free and his pain never got any better. I think it got worse. Months went by. The pain started around 7th grade. He missed a lot of school in 8th grade, and a whole lot in 9th grade. He couldn't go to school in 10th grade. All along the gastroenterologist prescribed Hyoscyamine, didn't help at all. Cyproheptadine, no less pain. Peppermint oil, ginger, Miralax, Senna. Doc said he was constipated, but I couldn't get him to have Miralax daily. Eventually he went on Linzess and no senna or Miralax. Sorry this is long, there will be a point.  We gave his school not just a doctors not, but everything, and U of M makes a lot of notes. They still turned us in for Truancy.  I didn't get him enrolled in online school fast enough.  The school would not recommend an online school and i didn't know which one to choose.  Doc thought it was nerve pain and mental. He recommended the u of m my pain program.  Nathan did so good, 3 days a week supposed to be for 4 weeks.  Never missed, always on time.   After two weeks, they discharged him. Said it was not  benefitting him.  Pain went on. I had been asking if there were any other test they could do. Ultrasound, colonoscopy. Doc said we can do it, but I don't think we'll find anything.  Finally he had a colonoscopy and another endoscopy.  Guess what, they did find something. They found a ton of tiny ulcers everywhere, from the esophagus to his rectum. They think Crohn's. I understand they didn't check for that because he was more constipated, not much diarrhea. He is getting an MRI with contrast on Sunday. Also they want him to do a cal-protectin (give a poop sample). Then an appointment on the 16th to talk about treatment. Then the probation officer on the 17th. In the meantime he is taking Budesonide extended release.  $276.00 for 30 pills, and that's with insurance. Also he was diagnosed with hyperthyroidism, Graves disease a few months ago. If it is for sure Crohn's,  it will be three autoimmune diseases. If someone is gluten-free for a month or more, and the pain is no better, don't stop looking. I was beside myself. Did they think he was exaggerating, lying? I was considering taking him to a holistic doctor, who would probably recommend Peppermint oil and ginger.  He's such a good kid. Kind of an introvert. He was on the 9th grade soccer team. He would try to go to practice and kept having to stop, the pain was that bad. Every time he ate, it didn't matter what, gluten-free chicken tenders, mac and cheese, pizza, ice cream, all gluten-free, he would eat a normal amount but stop and say, I can't eat anymore, my stomach hurts.  If anyone reads all this, thank you. I had a gut feeling, no pun intended, that he had an additional problem. They found celiac and stopped looking. If you don't feel better, keep on your doctor to check further, keep looking.   Take care, Karen  
    • Scott Adams
      Recent blood test results check in - TTG- IGA

      By Scott Adams · Posted

      Most likely cross-contamination I believe.
    • cristiana
      How long after being diagnosed with Celiac do you feel better?

      By cristiana · Posted

      I think it takes different people different amounts of time, but in my own case I had pain,  bloating and loose stools for some time, exacerbated by a lactose intolerance, which eventually went.  I would say the really bad diarrhea got better quite quickly, but the bloating pain carried on for a few months, until I was told to give up lactose for a few weeks.  That helped enormously and once I realised milk and yoghurt was the cause, after a short break I went back to lactose very gradually and felt a lot better.  Now I can tolerate it well. From Coeliac UK "The enzyme lactase is found in the brush border of the small intestine. This is why people with coeliac disease can be deficient in lactase at diagnosis. Once established on a gluten free diet, the gut is able to heal and lactose digestion returns to normal. Lactose intolerance is therefore usually temporary." So if this helps your daughter, this doesn't mean you have to give up lactose forever, especially as dairy is such a good source of calcium for growing kids.   Bear in mind you should be able to reintroduce it. As for fatigue, this can be due to vitamin and mineral deficiencies,such as iron, vitamin D and B12.  Were these levels tested?  If not, I would suggest you get them done.  If your daughter is deficient in these, it is vital you address the deficiencies, and get the tests redone in a few months, particularly the iron, because too much can be dangerous.
    • knitty kitty
      Inhaler problem

      By knitty kitty · Posted

      Hello,   The medication in these inhalers can cause a thiamine deficiency if used by someone already low in thiamine.  We don't absorb sufficient amounts of vitamins and minerals due to the inflammation and damage done to our villi in Celiac Disease.  Even a long term strict gluten free diet may not provide sufficient amounts of vitamins and minerals.  There are eight B vitamins that all work together.  Thiamine deficiency often shows up first because our bodies use so much of it and it can't be stored very long. Thiamine deficiency symptoms can appear in as little as three days.  Without thiamine, the other B vitamins may not be able to function properly.   Thiamine is needed to clear lactic acid accumulation caused by the inhalers: Shoshin beriberi provoked by the inhalation of salbutamol https://pubmed.ncbi.nlm.nih.gov/12951730/    Significant Lactic Acidosis from Albuterol https://pmc.ncbi.nlm.nih.gov/articles/PMC5965110/ Albuterol-Induced Type B Lactic Acidosis: Not an Uncommon Finding https://pmc.ncbi.nlm.nih.gov/articles/PMC7263006/ Lessons of the month 1: Salbutamol induced lactic acidosis: clinically recognised but often forgotten https://pmc.ncbi.nlm.nih.gov/articles/PMC6964186/ An Overview of Type B Lactic Acidosis Due to Thiamine (B1) Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC10731935/   Thiamine has antifungal and antibacterial properties.  Thiamine helps keep Candida in check.  Thiamine helps keep SIBO in check.  Thiamine helps with black mold, Aspergillis infection.  Riboflavin helps fight Candida infection in the mouth. Riboflavin Targets the Cellular Metabolic and Ribosomal Pathways of Candida albicans In Vitro and Exhibits Efficacy against Oropharyngeal Candidiasis https://pubmed.ncbi.nlm.nih.gov/36625571/   Thiamine deficiency can make ones voice hoarse and can cause localized edema.  Niacin deficiency can make ones voice hoarse.  (Niacin deficiency and Thiamine deficiency can each cause irritability, agitation, and lability.) Hoarseness in pellagra https://pubmed.ncbi.nlm.nih.gov/21507655/ Hidden Hunger: A Pellagra Case Report https://pmc.ncbi.nlm.nih.gov/articles/PMC8152714/   Anesthesia can cause B12 deficiency.  B12 deficiency can show up as mouth sores and geographic tongue, diarrhea, and dementia. Vitamin deficiency, a neglected risk factor for post-anesthesia complications: a systematic review https://pmc.ncbi.nlm.nih.gov/articles/PMC11823251/ Neurologic degeneration associated with nitrous oxide anesthesia in patients with vitamin B12 deficiency https://pubmed.ncbi.nlm.nih.gov/8250714/ Subacute combined degeneration of the spinal cord following nitrous oxide anesthesia: A systematic review of cases https://pubmed.ncbi.nlm.nih.gov/30144777/ The Effect of Vitamin B12 Infusion on Prevention of Nitrous Oxide-induced Homocysteine Increase: A Double-blind Randomized Controlled Trial https://pmc.ncbi.nlm.nih.gov/articles/PMC4052402/     Eating a diet that is heavy in carbohydrates can precipitate a thiamine deficiency.  As the amount of carbohydrates consumed increases, additional thiamine is needed, otherwise the carbs will be stored as fat.   Thiamine deficiency disorders: a clinical perspective https://pmc.ncbi.nlm.nih.gov/articles/PMC8451766/   Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/   The deficiency symptoms of some of the B vitamins cause gastrointestinal symptoms that resemble the same symptoms as when being glutened.   Thiamine deficiency can present as vomiting, diarrhea and abdominal pain (Gastrointestinal Beriberi).  Niacin deficiency can present as diarrhea (Pellagra = diarrhea, dermatitis, dementia, then death ).  B12 deficiency can present as diarrhea or dementia.  Not everything is caused by hidden gluten.  Gluten free processed foods are not required to be enriched with vitamins lost in processing like gluten containing foods are. Blood tests are not accurate measurements of vitamin levels, but do talk to your doctor and nutritionist about supplementing with the eight B vitamins, Vitamin C, the four fat soluble vitamins and minerals like magnesium.  Your physician can give you a shot of B12 before anesthesia administration.   By the way, Celiac Disease genes have been traced back to having originated in Neanderthals.  I'm not a singing teacher on the net.  I earned a degree in Microbiology after studying nutrition because I wanted to know what vitamins are doing inside the body.  I've experienced nutritional deficiencies myself. Hope this helps!  Keep us posted on your progress!
×
×
  • Create New...