Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something


Rachel--24

Recommended Posts

dlp252 Apprentice
Donna, I am thinking the inflammation and the histamine issue might go hand in hand as well.

"Histamine is an important protein involved in many allergic reactions. Allergies are caused by an immune response to a normally innocuous substance that comes in contact with lymphocytes specific for that substance, or antigen. In many cases, the lymphocyte triggered to respond is a mast cell. For this response to occur, a free-floating IgE (an immunoglobulin associated with allergic response) molecule specific to the antigen must first be attached to cell surface receptors on mast cells. Antigen binding to the mast cell-attached IgE then triggers the mast cell to respond. This response often includes the release of histamine

The release of histamine (hist = because it's made up of histidine residues, amine = because it's a vasoactive amine) causes several allergic symptoms. 1) It contributes to an inflammatory response. 2) It causes constriction of smooth muscle.

Histamine can cause inflammation directly as well as indirectly. Upon release of histamine by an antigen activated mast cell, permeability of vessels near the site is increased. Thus, blood fluids enter the area causing swelling. This is accomplished due to histamine's ability to induce phosphorylation of an intercellular adhesion protein (called (VE)-cadherin) found on vascular endothelial cells. That is why histamine is known as being vasoactive. Gaps between the cells in vascular tissue are created by this phosphorylation, allowing blood fluids to seep out into extracellular space. Indirectly, histamine contributes to inflammation by affecting the functions of other leukocytes in the area. It has been suggested that histamine release triggers the release of cytokines and inflammatory mediator by some neighboring leukocytes. These chemicals in turn increases the inflammatory response. "

Things to associate with Donna- Bumble Bars and a nice bottom :lol::lol::lol:

:lol: Thanks for the info...yes that does seem to tie in with what I've read so far in the book. The biggest factor that triggers the inflammation response is a dietary related. The book mentions celiac and gluten intolerance a few times. Their basic diet premise is to follow the Paleo diet and to balance pro and anti-inflammatory foods. Still reading.... :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 33.4k
  • Created
  • Last Reply
Camille'sBigSister Newbie

Good morning to all citizens of Rachelville! :)

Returning to yesterday for a brief comment: Okay, okay, OKAY! Now I know! Brad and Angelina indeed! LMAOAM :lol::lol::lol::lol::lol:

AM = at myself

Cissie

dlp252 Apprentice
Wow...that truelly is amazing. :o

Will we get "People" in Rachelville?? Are we gonna be totally lost on all the gossip? I think I may need to smuggle some mags. in from my endeavors over the hill to the Over-The-Mountain-Mall. ;)

As long as it's auxigro histamine inflammation gluten dairy free...bring it on. :lol:

Camille'sBigSister Newbie
As long as it's auxigro histamine inflammation gluten dairy free...bring it on. :lol:

:lol::lol::lol::lol::lol:

Cissie

Rachel--24 Collaborator
Good morning to all citizens of Rachelville! :)

Returning to yesterday for a brief comment: Okay, okay, OKAY! Now I know! Brad and Angelina indeed! LMAOAM :lol::lol::lol::lol::lol:

AM = at myself

Cissie

:lol::lol::lol:

Cissie you are hilarious!!

dlp252 Apprentice

Well now I'm all caught up on the pages I missed since yesterday afternoon, phew...now I have to run out to church, lol. I'll post more later on the book and some of the points that stood out to me later!

Picard - great name, love it! :D

Rachel--24 Collaborator

Donna,

My friend just called. She's in San Jose and she's all PO'd cuz they are having a BROWN OUT!!

LMAO...how is it that I never heard of this all my life and now....2 X's in one week?? :blink:

She said its been going on since last night so like 13 hours now and shes gotta throw all the food out in the fridge. She said "its not a black out....its a brown out" and then proceeded to tell me the difference.

Yeah...yeah....I already know exactly what a brown out is. :rolleyes: I learned it from one of the cult farm residents. :lol::lol:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dlp252 Apprentice
Donna,

My friend just called. She's in San Jose and she's all PO'd cuz they are having a BROWN OUT!!

LMAO...how is it that I never heard of this all my life and now....2 X's in one week?? :blink:

She said its been going on since last night so like 13 hours now and shes gotta throw all the food out in the fridge. She said "its not a black out....its a brown out" and then proceeded to tell me the difference.

Yeah...yeah....I already know exactly what a brown out is. :rolleyes: I learned it from one of the cult farm residents. :lol::lol:

:lol::lol::lol: Ha, see we in Rachelville are in the know! :lol: Oh, it's going to be a long day in Donnaville, lol. :lol:

Rachel--24 Collaborator
Rachel, check out this link for me and let me know what you think, there's a link at the bottom following the article for the low histimine diet this guy/girl followed.

Open Original Shared Link

Julie,

I just had a relevation

I looked at this girl/guy's diet again. I could swear she's more on a gluten-free diet than a low histamine diet. <_<

It looks like shes *almost* gluten free but still eating all the foods high in histamine.

Could it be that she feels great because she took alot of gluten out of her diet??

Just a thought. :unsure:

Jean-Luc Rookie
Genevieve :) that name is very common in my family.... so pretty!!!!!! And I will pray for you and your wife that all goes well with the pregnancy!

Thank you. I guess the names we picked for our children are old school -- Raymond and Genevieve -- and both are very French, I was actually teased about that fact yesterday. :lol: Oh well.

Rachel--24 Collaborator

Another relevation,

That week that I got all messed up on my vacation. I had so much mucus cuz of all the reactions. I had major histamine overload. I thought if my head got any more swollen it would explode for sure....and then there was all the loose stools and weight loss.

Well besides the digestive enzymes and "auxigro poisoned sweet potatos" being suspect....I was eating a ton of fruit....more than normal actually and I had added in a couple new ones. I was eating peaches, necatrines, all different melons, apricots, pears, all different apples and I added in kiwi and plums. I think I might have had at least one banana as well. I figured out that the kiwis were not a good thing...and the plums also. I do fine with apples but not red apples for some reason. Most of the apples I ate that week were red.

So basically almost all the fruit I was eating is high histamine. Plus...if anyone can remember that far back...the first thing I suspected was making me sick was the avocados I was eating at the beginning of that week. I thought it might be cuz of the fat content because thats when my stools started getting loose and I felt yucky. I eliminated the avocados but this was after I'd already eaten about 5 of them. Since I didnt get better the rest of the week I figured the avocados had nothing to do with it.

Now I'm thinking different. I think the avocados (plus all the other fruits) may have sent my histamine levels through the roof. Even after I stopped eating them the levels would have remained high due to all the "high" fruits I continued to eat. Plus...the auxigro sweet potatoes would have released histamine (being poisoness and all). I was in histamine hell that week!!!

I didnt start getting better until I stopped eating everything except my pears, mangos, rice and chicken.

jerseyangel Proficient

Good morning and Happy Sunday everybody! :)

Picard, I love the name you and your wife chose for the new baby. It's lovely! I, too, will keep good thoughts for all to go smoothly. A baby in Rachelville--how exciting :D

Donna, thanx for the book update. It sounds good.

We actually had a brown out last Tuesday night during the storm we had that knocked out electricity completely for a lot of places around here. The lights dimmed, but never went out completely. We were lucky.

Ryan, I agree about products produced on the same lines in the same facility, bla bla bla :angry: . Most of the time, I react to those. There are very few products I consume anymore--I tend to just buy whole foods and try and make them interesting. The last (and hardest) to go were my Lay's chips :( I "knew" they were causing some trouble, but I didn't want to give them up, too. I finally had to get a grip! They can put a man on the moon, but why can't they make a potato chip in a dedicated facility? Celiacs need snacks, too! Rant over :ph34r:

Celia, the new picture of the baby is so cute. :D

Jean-Luc Rookie
Teased????? Oh you tell me who.... :lol:

A darn Brit ... :lol: They still cannot get over losing to the Americans with French help ... hooray for Lafayette :o

rinne Apprentice
I just had a relevation

I looked at this girl/guy's diet again. I could swear she's more on a gluten-free diet than a low histamine diet.

It looks like shes *almost* gluten free but still eating all the foods high in histamine.

Could it be that she feels great because she took alot of gluten out of her diet??

Just a thought.

Rachel, you are brilliant and one relevation leads to another. :)

I just went and looked at "Arthritis, Fight it with the Blood Type Diet" by Dr. Peter j.D'Adamo and saw for the first time that he recommends avoiding wheat for ALL blood types. I was attracted to this diet because of his recommending O types avoid wheat but I hadn't looked before at the other types.

We know the Atkin's diet worked for Celiacs and now I'm wondering if there aren't other diets out there that are essentially gluten free or with minimal gluten that people are using and unaware that the root cause of their problems could be Celliac.

Camille'sBigSister Newbie
Teased????? Oh you tell me who.... :lol: My full name is Cecile... but people can't pronounce French so that's why I go by Celia.... they end up calling me Cecil.... HA... and I'm not a boy... well at least last time I checked. :lol:

I love your name! I'll call you Cecile from now on. (I know how to pronounce it, okay?)

Your granddaughter is beautiful!!!!!

Cissie

rinne Apprentice

May I call you Cecile too? And what a beautiful baby. :)

Camille'sBigSister Newbie
Another relevation,

So basically almost all the fruit I was eating is high histamine. Plus...if anyone can remember that far back...the first thing I suspected was making me sick was the avocados I was eating at the beginning of that week. I thought it might be cuz of the fat content because thats when my stools started getting loose and I felt yucky. I eliminated the avocados but this was after I'd already eaten about 5 of them. Since I didnt get better the rest of the week I figured the avocados had nothing to do with it.

Now I'm thinking different. I think the avocados (plus all the other fruits) may have sent my histamine levels through the roof. Even after I stopped eating them the levels would have remained high due to all the "high" fruits I continued to eat. Plus...the auxigro sweet potatoes would have released histamine (being poisoness and all). I was in histamine hell that week!!!

I didnt start getting better until I stopped eating everything except my pears, mangos, rice and chicken.

Another startling relevation from our esteemed President and Medical Sleuth-in-Pursuit-of-Truth!!! :o:o:o More clues to add to your ever-growing list.

However, and please forgive me for this, do you know why people say, "An apple a day keeps the doctor away."? To quote my beloved grandmother, Mama Lou, "It keeps your bowels working, child." In my opinion, Madame President, you ate enough fruit to make an elephant spinach! :)

Cissie

rinne Apprentice
However, and please forgive me for this, do you know why people say, "An apple a day keeps the doctor away."? To quote my beloved grandmother, Mama Lou, "It keeps your bowels working, child." In my opinion, Madame President, you ate enough fruit to make an elephant spinach!

Cissie :lol::lol::lol:

Jean-Luc Rookie
Another relevation,

So basically almost all the fruit I was eating is high histamine.

passion fruit???? :ph34r:

Rachel--24 Collaborator
passion fruit???? :ph34r:

ROFLMAO

Ummm..yeah...I suppose you could say that. :lol::lol:

nikki-uk Enthusiast
Nikki,

Good Gawwwdd you're in London? I thought you were in Georgia... hmm I'm sicker then I thought :lol:

Um yes,that's London England!!.

Cecile is a lovely name BTW and I can pronounce it!

A darn Brit ... :lol: They still cannot get over losing to the Americans with French help ... hooray for Lafayette :o

Careful now,there is a Brit amongst you in R-ville.

Ha,so my secret's out-I'm not American,and I'm not even a coeliac!! :ph34r:

LOL :lol::lol: ,how did I end up here?!! :huh:

Rachel--24 Collaborator
P.S..... don't anyone faint... I do "think" now and then... :lol:

:lol::lol::lol:

Too funny Celia,

I knew you had it in you all along! :P

Everything you wrote makes sense. Certain foods if eaten together can bother someone...and those same two foods may not have any effect at all eaten seperately. Its all very complicated and we'll never fully understand how it all works....especially since we're all so different. I do think that the more healing that takes place and the more the body is able to return to its natural healthy state....the less of this scientific crap we'll have to deal with. :D

Oh...I wasnt about to faint either. It takes more than that to shock me...now, if the other half of our comedy team busted out with a "scientific" post....well, then I might be needing some CPR. :lol:

Susan,

No worries, even if you never ever read any of our scientific ramblings....you will not be banished from the cult farm. We need you too much....for the laughs and the crazy stories you bring to Rachelville.

Besides....you have the dingos. :P

Camille'sBigSister Newbie
So does this thought on antihistamines suggest that if one suffers from a migraine headache (presumably caused by an allergy) or has morning hangover from drinking wine the night before, that taking an antihistamine will help?

P.S..... don't anyone faint... I do "think" now and then... :lol:

Cecile, an antihistamine wouldn't help my msg-induced migraines, but I can only speak for myself; don't know about other folks. The only thing that helps me is a suppository called Cafergot. I can't take anything by mouth, because I would just throw it up.

Cafergot is a powerful combination of caffein and ergot, and the doses must be carefully regulated. Ergot is a fungus that grows on grains, mostly rye, if the rye is growing in damp, soggy conditions. It affects the central nervous system, causing extreme muscle spasms and hallucinations; its effect on the body is like the effect of LSD.

Farmers, bakers, and shamen have known about ergot for thousands of years. (Can't you just see it! Shaman gathers clan around communal fire in cave; announces intention to communicate with Spirit World; turns around and whispers to acolyte, "Pass me that bowl o' grain, son; there's gonna be a hot time in the old cave tonight!") But I digress. In bygone days, fungus-infected grain occasionally slipped by, and was ground into flour for baking bread.

In a small French village in the mid-1700s (I think I've got the right century, but don't quote me on it.), so many folks went barmy with muscle contortions, hallucinations, and jumping out of windows, that they put the baker on trial for murder. I don't remember whether they hanged the poor guy or not.

See also: Salem, Mass.; cold, rainy summer; rye bread; teenage maidens twisting, jerking, and contorting upstairs, downstairs, and all around the town, screaming to high heaven about devils and witches. Who you gonna call? Why, your local witch busters of course!

Sorry. :( You can't even ask me a simple question, can you!!!

Thus endeth The Lesson of the Day.

Cissie

DingoGirl Enthusiast
In my opinion, Madame President, you ate enough fruit to make an elephant spinach! :)

Cissie

:lol: I JUST GOT BUSTED FOR TOO MANY EMOTICONS AND AM EDITING

this is so funny, that we have our own verbs and words. Newcomers must be really confused. Reading along, fascinating science lessons and new theories/conjectures and facts coming fast and furious, and then silly dingbat words we have made up!!!! LMAOAC (LMAO At Cisse and CECILE - - -oh yes, studied six years of french and you can be darn sure I"ll look for any excuse to use it) :P Beautiful name, as is Genevieve....gorgeous baby Cecile!! what a cutie, I want to kiss her!!

I missed Penguin's post that you guys think is funny.....did it have to do with :ph34r:

the nut thins - what is up with that....and the Lays potato chips...say it isn't so Patti!!

I just met a Celiac at my church that a couple of people had told me about, we talked a bit, scary thing is, I told him about this forum and even my name here :ph34r: and he is going to be able to read my posts. :ph34r::o I think he already knows I'm a kook though.....But we shared some similar experiences, pretty interesting. AND NO EVERYBODY, I DO NOT HAVE A NEW MAN!!!!

one thing I have been meaning to address, and will chortle to myself over, is RACHEL'S SCRUNCHIES.

Remember, the only thing she made in her homemaking class..... :lol: I didn't really SPINACH my pants laughing, but had some good guffaws over that.

RINNE - - where is that place you metioned? can't even remember the name - are you up in Northwest Territories, or something like that???? I assume you're in Canada......

A couple of dingos might possibly die today.....driving me nuts when it's this hot....they want in, then out, then back in, then out again, then in and STARING at me, then out..... driving me @#*!!# bonkers today.....I'm gonna need an occaisonal dog sitter in R-ville - - - - :blink:

I am now going to recline in the cool, cozy darkened living room with a fan blowing, a good magazine, and a British movie. Sounds like heaven, wish you were here!! B)

Ha,so my secret's out-I'm not American,and I'm not even a coeliac!! :ph34r:

LOL :lol: ,how did I end up here?!! :huh:

Wellllll.....the "UK" part of your name kind of gave you away, at leas to me, a while ago.... :blink::lol::lol: But indeed, if you are not Celiac, how on earth DID you wander into Rachelville? I mean, besides the fact that we had an opening for a hairdresser? :P Of course we'll let you stay, because we like you!

jerseyangel Proficient

Hi Susan--sounds like a nice way to spend a hot afternoon! We're getting a one-day break from the heat today. It's in the low 80's with bearable humidity. Back to hot and humid tomorrow, but this is a nice break! I even turned off the A/C and opened the windows :D

That's great about your new Celiac friend. Wonder if he'll check into R'ville? Sounds like you guys really hit it off--I'm happy for you ;)

I should be painting....I just don't want to :ph34r: At this rate, the room should be done by Christmas :o

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Maura Gissen's topic in Food Intolerance & Leaky Gut
      5

      Autoimmune Reaction to SO many foods

    2. - Maura Gissen replied to Maura Gissen's topic in Food Intolerance & Leaky Gut
      5

      Autoimmune Reaction to SO many foods

    3. - trents replied to Maura Gissen's topic in Food Intolerance & Leaky Gut
      5

      Autoimmune Reaction to SO many foods

    4. - Maura Gissen replied to Maura Gissen's topic in Food Intolerance & Leaky Gut
      5

      Autoimmune Reaction to SO many foods

    5. - trents replied to Maura Gissen's topic in Food Intolerance & Leaky Gut
      5

      Autoimmune Reaction to SO many foods


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,977
    • Most Online (within 30 mins)
      7,748

    Sam777
    Newest Member
    Sam777
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      71.4k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      I'm a little confused. In your second post you said, "but these symptoms have been ongoing for a long time before the pregnancy" while in your most recent post you say, "I was doing a lot better on the AIP diet. However, I was unable to do the full reintroduction process because I went off the AIP diet when I got pregnant and was experiences chronic nausea." CBC = Complete Blood Count. This is the typical bloodwork most people would have done routinely with an annual wellness checkup. I would include things like iron levels, various blood cell counts including reds and whites and other infection fighters. CMP = Complete Metabolic Panel. This would measure things like blood sugar, kidney and liver function, plasma proteins and various enzymes. Non cellular things that the body produces. Also typical of an annual wellness check. Have you tried cutting out dairy and oats? These two are the most common cross reactors in the celiac community. I know it must be tough trying to get adequate calories and nutrition when you are pregnant while at the same time eliminating foods that are good sources of those things.
    • Maura Gissen
      They did. I was doing a lot better on the AIP diet. However, I was unable to do the full reintroduction process because I went off the AIP diet when I got pregnant and was experiences chronic nausea. This is what makes me believe it's food related.  I do check all of my food products and supplements and I am very careful about them being gluten free and trying to stay away from corn starch etc. However, I am eating gluten free breads that sometimes have rice flour, yeast, etc. - I seem to do fine with these breads/bread products some days, but then am sick other days.  I have never really had any GI symptoms outside of bloating. My symptoms are dizziness, brain fog, and a general feeling of unwellness or malaise, sort of like when you're going to get the flu.  I have had a lot of bloodwork done over the last three years, but I don't recall doing the CBC, CMP, or a celiac-specific test recently. That's helpful so that could at least provide some insight to see if I'm still being exposed.  Do you see most individual with celiacs having to take a period of time away from even gluten free breads and other cross-reactive foods to let their guts heal? I'm not sure how restrictive to get with my diet again since it's so challenging. 
    • trents
      Did the symptoms commence after you discontinued the AIP diet? Have you checked all nutritional supplements and oral hygiene products for possible gluten content? Have you recently checked all the labels of purchased processed foods in your pantry to check for formulation changes that might have introduced gluten? Historically, when "glutened" did you have GI symptoms or were you a "silent" celiac whose symptoms were non GI. Is what you are experiencing now like what you were experiencing at the time of diagnosis? Have you had recent blood work done (CBC and CMP) and if so, were there any parameters out of norm? I know you have Hashimoto's but you say that is well controlled now? It certainly wouldn't hurt to get celiac antibodies rechecked. Because you are essentially gluten free I would not expect to see any big departures from normal levels but if there are even weak positives it could indicate you are getting glutened from some unexpected source.
    • Maura Gissen
      Hi Trent! Thanks so much for your warm welcome and questions! They do, but these symptoms have been ongoing for a long time before the pregnancy. However, it's hard for me to know what's a celiac response vs. a Hashimotos one. I haven't, maybe it's worth getting those checked again? 
    • trents
      Welcome to the forum, @Maura Gissen! Don't those same symptoms often come along with the territory when pregnant? And then throw in Hashimoto's.  Have you had your celiac antibody levels checked recently?
×
×
  • Create New...