Omg...i Might Be On To Something

[nikki-uk]

[quote name='Rachel--24' date='Jul 23 2006, 02:09 PM' post='17258

In the meantime...here I am sweating, arms all bloodied with numerous scratches from all the bushes I've been trimming in the over 100 degree heat.

[VydorScope]

I have no freakin idea why I'm laughing at this cuz I have no idea what it means.

Rachel,

Open Original Shared Link

You should read it , its very good.

[jenyanderson]

Good Morning!! I have to clean house this morning.. See ya'll around noonish!

[Rikki Tikki]

Ok Susan I have been sitting on the edge of town for hours, no lights are on yet. Now the sun is coming up here and I must get off to work. I will try to enter Rachelville again tonight. Can you ask the dingos to chase away the tumbleweeds? They kind of scared me away!

[penguin]

the spoons.....chelsea is goign to have to give that link again, it was quite good, and too many chapters back to search.

Two other people already beat me to it, remind me every few pages to post the link again so nobody is in the dark when we refer to spoons

All of you already know this, but gluten challenges suck. I just have to make it to Aug. 21st.

My mom is visiting this weekend, and I think she'll probably be shoving vitamins down my throat, as she is wont to do when I'm sick. Add in obvious malnutrition and I don't even want to know what she'll do. This is the woman who tried to get me to drink boost and spirulina when I had mono and was throwing everything up anyway. Yuck.

I'm holding steady at only 20 lbs gained, so that's good It's funny, if I'm gluten-free like, half the day, I lose 3 lbs overnight. Coincidence? I think not.

I think I'm going to take my mom to the big whole paycheck downtown, the place is like a Six Flags of food. Seriously, the WF flagship store is crazy.

[Rikki Tikki]

Oh my gosh Chelsea:

You have to eat gluten until your test? That is just awful, why do you have to do it? Is it a must to have the biposy? I can't imagine what you must be going through. If the damage has not been done to your villi when you have the biopsy that doesn't mean you don't have celiac, it just means that the villi is not yet damaged. At least that is what I have read from other posts.

What is the big whole paycheck? Do you mean whole foods?

[penguin]

Oh my gosh Chelsea:

You have to eat gluten until your test? That is just awful, why do you have to do it? Is it a must to have the biposy? I can't imagine what you must be going through. If the damage has not been done to your villi when you have the biopsy that doesn't mean you don't have celiac, it just means that the villi is not yet damaged. At least that is what I have read from other posts.

What is the big whole paycheck? Do you mean whole foods?

I have to be eating gluten for 3 months before the biopsy. My regular dr diagnosed me with celiac based on inconclusive bloodwork and dietary response, but she has also made some comments about celiac being a "faddy" diagnosis right now and something about "real" celiac and it kind of freaked me out. I mean, if this is going to be on my record forever, I want all the testing, especially since she was kind of wishy-washy about celiac in general. The GI I'm going to is really good, most of the celiacs in town go to him. I've had 3 different doctors and a PA that I'm definitely gluten intolerant and that I can never eat gluten again. We're just trying to see what damage there is, if there is any they can find. They said that the damage could also be further down the tract and they'd miss it, or it would be patchy and they'd miss it. I need it for my own peace of mind, it would always bug me that I never got all the testing done, you know? Besides, if the biopsy comes back negative, I have a bargaining chip with insurance companies later when they see celiac on one record and not the other.

And yes, Whole Paycheck = Whole Foods

Here are some pictures of this ridiculous store: Open Original Shared Link

[VydorScope]

And yes, Whole Paycheck = Whole Foods

[christine 25]

Another relevation,

I didnt start getting better until I stopped eating everything except my pears, mangos, rice and chicken.

It sounds like you are doing better.

You guys have been joking around and keeping a busy lives.

Rachel--- Is that all you are eating for now is basically pears mangos rice chicken, corn tortollas, etc.

did you cut out the friut and vegitables, cause I know you said they were causing you problems.

I am so desperate to get better and heal, im in pain every day, and to add to it.

Jack, my bf broke up with me yesterday, he said he cant handle the stress and pressure, and that I had emotional problems and that hes tried to help but that my problems werent fixable, that that he couldnt be there for me more than one or two days a week and that I would have to deal with that. I wanted him for comfort and support I wasnt asking for marraige, kids, or even to live together, just that he moves out of his moms house, I didnt even pressure that until recently when she was mean to me, yelled at me. I just wanted him to touch me and rub my shoulders and be affectionate, but he isnt really that kind of guy. I am just so hurt, we talked together ever day on the phone, but didnt see eachother much because we have opposite schedles. But when he was around he made me feel good, and through all the physical pain he was my security blanket. I reason to get up in the morning. He's right he did hurt me a lot because he didnt meet my needs, he still lives with his mother and she yelled at me last week , for comming over and "ignoring her and not giving her attention" shes weird, He didnt really stand up for me, and it really hurt. He said hes not going to move out, so basically Im not welcome in his home anymore, and that cuts down on out time together. And he can only see me on the weekend he says he doesnt have time to himself, because he works all week comes home tired and sleeps. I cant tell him anything because he gets mad and turns the situation on me saying that im selfish because he feels inadequate because hes still at home and doesnt like his job etc, and isnt happy. He doesnt understand me.

Theres more to it than that but he said that he wants to be my friend, thats after he didnt call and I had to go to his house and he told me outside on the door step. He said that I just need to accept it and he got angry at me for wanting to continue the relationship.

Im so weak right now, just as I was needing him most, its like somone took away my blanky, and its gone, not now not when im sick and vulnerable.

I dont feel like doing anything. How am I going to get over this.

The physical pain is comprimising my ability to feel good and independent. Im sinking into a depression again.

I just need a good diet, please sombody help im so desperate, im not usually like this, before I was sick I was independent and happy.

I dont want this to get me down, but it is.

I dont feel like I can handel much more.

He said he would be my friend and that he would call me later on this week maybe, all i can think about is him.

[DingoGirl]

Dang Chelsea, that really is Six Flags over Expensive Organic Luxury...

going to get a bit scientific here regarding biopsies and lab results. (what, ME?) Was talking to a fellow Celiac who said - I have not verified this yet - that often endoscopy results are mis-read due to the layout of the sample on the SLIDE. That, the lab tech prepares the sample, and if it is not actually displayed a certain way, set down on the slide or whatever rather sideways for full view of the surface of the intestine and the villi, the doctor who reads it may not SEE the condition appropriately. This was shocking and then not-so-shocking, really. So he says celiacs are often NOT diagnosed due simply to mishandling of specimens and inferior lab processing.

Can anybody verify this? I hadn't heard this but it DOES make sense, that so many suffer, see great results with removal lf gluten, but still, endoscopy results come back negative.....rather a pisser with insurance, really.

Penguin - hope you feel better - - -

bloody dang hot here, can't take it any more....morning to all....Sally I'll speak to the dingos about the tumbleweeds -

[jenyanderson]

It sounds like you are doing better.

You guys have been joking around and keeping a busy lives.

Rachel--- Is that all you are eating for now is basically pears mangos rice chicken, corn tortollas, etc.

did you cut out the friut and vegitables, cause I know you said they were causing you problems.

I am so desperate to get better and heal, im in pain every day, and to add to it.

Jack, my bf broke up with me yesterday, he said I was stressing him out, and that I had emotional problems and needed too much, that he couldnt be there for me more than one or two days a week and that I would have to deal with that. I just wanted him to touch me and rub my shoulders and be affectionate, but he isnt really that kind of guy. I am just so hurt, we talked together ever day on the phone, but didnt see eachother much because we have opposite schedles. He hurt me a lot because he didnt meet my needs, he still lives with his mother and she yelled at me last week , for comming over and "ignoring her and not giving her attention" He didnt really stand up for me, and it really hurt. He said hes not going to move out, so Im not welcome in his home. And he can only see me on the weekend and he would rather watch tv clean and shoot his guns, etc.

Theres more to it than that but he said that he wants to be my friend, thats after he didnt call and I had to go to his house and he told me outside on the door step.

Im so weak right now, I dont have hardly any friends and I was needing him, it like somone took away my blanky, and its gone, not now not when im sick and vulnerable.

I dont feel like doing anything. How am I going to get over this.

The physical pain is comprimising my ability to feel good and independent. Im sinking into a depression again.

Wow Christine!! Sounds like he's not ready to grow up yet. I've dated a few "Momma's Boys" and it seems like when the going gets tough, they get going. Take care of yourself and do what you can to make yourself happy.

[DingoGirl]

Im so weak right now, I dont have hardly any friends and I was needing him, it like somone took away my blanky, and its gone, not now not when im sick and vulnerable.

I dont feel like doing anything. How am I going to get over this.

The physical pain is comprimising my ability to feel good and independent. Im sinking into a depression again.

CHRISTINE - - - I am so sorry and have been there - - - just hang in there! Time heals, trust me, you must work on getting stronger yourself.....an unhealthy man can keep US unhealthy, and an unhealthy relationship doesn't benefit anyone! I know, blah blah blah, just words, but from what you're describing, it wasn't a healthy relationship - rather unbalanced.

Not to inflict my religious views on you, but I strongly recommend prayer, and lots of it! I could go on and on about needing a man as a security blanket - - that's what R was to me when I was so sick....and it doesn't work.....but I'll save that lecture for another day. but a human can never be our security, I learned that the hard way....

Just hang in, take each minute of each day, keep yourself comfortable and try to occupy your mind somehow....when you're better you'll have to work on developing a bigger life...but baby steps....

Blessings - hang in - it gets better -

[Green12]

One of the persons was me.... I can NOT take any vitamin, dietary supplement or enzyme... they kill my tummy... why? I have no idea maybe Rachel knows... to my knowledge they were "clean" of any of the ingredients I can't have and the enzymes were suppose to HELP... good gaaawwwwddd no way.

Cecilia, you're breaking my heart

You're shaking my confidence baby

Oh Cecilia, I'm down on my knees

I'm begging you please to come home

Come on home

I thought of this Simon and Garfunkel song when you told us your real name I don't know what to call you now. Help me out.

Enzymes made my intestinal situation worse, I feel. I had already had leaky gut, and then ulceritic conditions in my stomach and intestinal lining from ibuprofen use, and then I was told to take mass amounts of enzyme supplements between meals

Bad, very bad.

Welcome Sally, any friend of Susan's is a friend of all of us here in Rachelville

Susan- I love the new picture of our glorious fabulous Dingo girls!

[DingoGirl]

Cecilia, you're breaking my heart

You're shaking my confidence baby

Oh Cecilia, I'm down on my knees

I'm begging you please to come home

Come on home

Welcome Sally, any friend of Susan's is a friend of all of us here in Rachelville

I do love that song....

ALERT: I am going to quit recruiting from other threads .....(I"ve only brought in TWO and we needed them here) I mean, more people = more posts = many pages/science lessons = not being able to keep up with our reading....

Now, if anybody WANDERS IN to R-ville, led by the allure of our beautiful spot, or led by the geese, whatever, THAT is fine....

[jenyanderson]

I do love that song....

ALERT: I am going to quit recruiting from other threads .....(I"ve only brought in TWO and we needed them here) I mean, more people = more posts = many pages/science lessons = not being able to keep up with our reading....

Now, if anybody WANDERS IN to R-ville, led by the allure of our beautiful spot, or led by the geese, whatever, THAT is fine....

This thread is going to make it easy to become an Advanced Community Member again.

[Green12]

All of you already know this, but gluten challenges suck. I just have to make it to Aug. 21st.

OMG! I don't know how you are doing it. I know how miserable I felt just after 7 days, I can't even imagine making it as long as you have.

I guess you could tell your mom at this point you aren't even absorbing anything so the vitamins would be money down the drain?

[jenyanderson]

Now I have that song stuck in my head...

[penguin]

OMG! I don't know how you are doing it. I know how miserable I felt just after 7 days, I can't even imagine making it as long as you have.

I guess you could tell your mom at this point you aren't even absorbing anything so the vitamins would be money down the drain?

Yeah, tried that

I'm already taking some surprisingly tolerable iron with b-vitamins. I think her logic is that any effort is better than no effort, and she'll REALLY start pushing the issue once I'm gluten-free again. Ever since I got mono, I can't seem to do vitamins, they make me sick. At least she believes me, I guess. Hopefully my bone density scan comes back normal, or I may get the cavalry

[Green12]

On a serious note--I am worried about the whole eye thing too. Had a visit Fri to the surgeon, I thought the lenses were clouding over or a detached retina, but he said the retina looked ok, but my vision is getting bad again after being pretty good right after the surgery. I broke out in hives from the drops to dilate, and he had me use the prednisone drops 4 times Fri night and keep up 2 times a day and wants me to come back next Fri. The whole thing is upsetting me so much. I knew I couldn't see as well again and when the tech had me read the chart I couldn't believe it. I asked her if I could read the lines before and she said yes, and I couldn't help it, I just started tearing up and crying. I didn't bluther, but I was shocked. Enough whining-----(sorry) Cissy, I have been to so many drs. over this, I don't know who to turn to next. The dr. I am seeing is a surgeon-he is #6 I think (lost count).

I was searching in the 'related illness' topics for a thread that was started about a month or so ago regarding a type of hives and it was recommended by someone to try cortislim-to reduce cortisol levels to help with the hives-some itch and some are painful-well, I think Julie's post clinched it for me-thank you , Julie, last week I bought some cortislim and I took one Saturday and wow, I am not joking, within a hour and a half I felt so calm, no itching, no food craving, totally headache free. I definitely will continue this, not only for the adrenal calming and lessening of histamine symptoms, but for the related food/sugar craving (which is totally gone!!) I am forever thankful to whoever posted that advice on the thread and I hope they read this. I also hope that this information helps you all in some way, because I think the adrenal function IS the key to the histamine levels and it makes sense that we have so many thyroid problems as well since the adrenal function is so important to the thyroid function. I am hoping the adrenal healing will help my thyroid and in turn help with everything else, including the eyes. Thank you all for the wonderful help you keep bringing me, and Rachel --thank you for the relentless searching and your sharing on here.

Robbin, I am so sorry about your eyes. I hope you find someone that can help you.

The hive issue, I did find a histimine restricted diet for uticaria and angioedema that I am going to try out, it's a 4 week trial diet. The only thing I don't like is they list foods to avoid rather then the allowed foods. I do better following a plan when they list the allowed foods, there's no guessing work involved then. You can check it out: (scroll down past the chart to where it says, "Histamine Restricted Diet for Control of Urticaria/Angioedema")

Open Original Shared Link

I think supporting the adrenals will benefit as well, that really is the root of the histamine issue, imo.

Good luck with everything Robbin!

[Rikki Tikki]

Dingo-girl Susan:

Can you help a sister out? I think Christine needs your words of wisdom, she seems to be in quite a lot of pain. I know you have said you have been through this before. I have also but I am so old now that I just say no man is worth feeling like hell over, been there, done that, and with the grace of God I will never have to go there again. So I don't really have the right words. HELP

[VydorScope]

I am so desperate to get better and heal, im in pain every day, and to add to it.

Jack, my bf broke up with me yesterday, he said he cant handle the stress and pressure, and that I had emotional problems and that hes tried to help but that my problems werent fixable, that that he couldnt be there for me more than one or two days a week and that I would have to deal with that. I wanted him for comfort and support I wasnt asking for marraige, kids, or even to live together, just that he moves out of his moms house, I didnt even pressure that until recently when she was mean to me, yelled at me. I just wanted him to touch me and rub my shoulders and be affectionate, but he isnt really that kind of guy. I am just so hurt, we talked together ever day on the phone, but didnt see eachother much because we have opposite schedles. But when he was around he made me feel good, and through all the physical pain he was my security blanket. I reason to get up in the morning. He's right he did hurt me a lot because he didnt meet my needs, he still lives with his mother and she yelled at me last week , for comming over and "ignoring her and not giving her attention" shes weird, He didnt really stand up for me, and it really hurt. He said hes not going to move out, so basically Im not welcome in his home anymore, and that cuts down on out time together. And he can only see me on the weekend he says he doesnt have time to himself, because he works all week comes home tired and sleeps. I cant tell him anything because he gets mad and turns the situation on me saying that im selfish because he feels inadequate because hes still at home and doesnt like his job etc, and isnt happy. He doesnt understand me.

Theres more to it than that but he said that he wants to be my friend, thats after he didnt call and I had to go to his house and he told me outside on the door step. He said that I just need to accept it and he got angry at me for wanting to continue the relationship.

Im so weak right now, just as I was needing him most, its like somone took away my blanky, and its gone, not now not when im sick and vulnerable.

I dont feel like doing anything. How am I going to get over this.

The physical pain is comprimising my ability to feel good and independent. Im sinking into a depression again.

I just need a good diet, please sombody help im so desperate, im not usually like this, before I was sick I was independent and happy.

I dont want this to get me down, but it is.

I dont feel like I can handel much more.

He said he would be my friend and that he would call me later on this week maybe, all i can think about is him.

Okay speaking as a man here (cuase thats all I realy could with wth out alot of pyscho-thearpy, durgs and major surgy...) Jack is a freaking dork, drop him like a dead fish and move on. Sorry, I am not very subtle, never did learn how to do that, but thats the truth. If a man does not put "his" woman first, yes even over his mom, then he is not serious about her, and she needs move on.

And BS to that friend crap. Cut off ties with him, do not prolong the pain any longer. Burn his pictures, it can be very theraputic.

Get out with your girlfriends and have a good time. Close friends are the cure for depression most times.

[Green12]

I was talking with a friend, her husband has Crone's and she worked in Health Food Stores for over twenty years, she recommends liquid vitamins when we are ill. She said the other ones are just to hard for our bodies, when they are inflamed, to digest. I'm going to look into it because I am concerned that I am not getting all the nutrients I need.

I've been wondering how many people go through gluten withdrawal, I'm particularly thinking of night sweats because mine are gone. I had been relating them to menopause and now I am not so sure. I was reading another thread tonight about someone coming off a drug and it sounded like they were experiencing withdrawal and I was wondering if the night sweats were part of gluten withdrawal and why if you simply stopped poisoning yourself you would go through withdrawal. Does anyone have any ideas?

rinne, I would love to know about the liquid vitamins, if you find out any information on them.

We have discussed night sweats, earlier in the thread, there was some connection to msg. Several of us seemed to have them. I always thought mine were connected to hormones, and sometimes they might be, but I also think when I have eaten something that I reacted to I will have them, almost like I am sweating the toxin/poison out.

But yes, there was a singer, I thought we might have our retreats at his property in Big Sur, except that would entail talking to him, which I prefer not to do.....

we will now leave this topic.

Susan

Hi Karen! You daughter is such a cutie Great picture!

[Rachel--24]

I think supporting the adrenals will benefit as well, that really is the root of the histamine issue, imo.

Julie, I keep forgetting to address the adrenal thing. You know more about this than I do but I agree that it somehow plays a part. I had some questions I wanted to ask but dont have time right now...dont let me forget.

Now...I'm going to attempt to find something I posted a few days back in this crazy thread. I dont like going backward here in R-Ville.....it scares me.

If I'm not back by the end of the day....I'm lost in the thread...send out the dingos!!

[Green12]

Susan is doing a much better job at "healing" than I did. My heart broke 3 years ago and its been a really slow healing process. I think I might be almost over it now. My friends from Rachelville are helping me with this. Actually Andrea said she will do anything for me to not contact my ex. Thats why she gave me her number....dont call the ex...if you feel the urge call me!! I'm thinking she really wants me to move on.

Andrea's the best!

I agree, Rachel, Andrea is the best. She has been missing from R'ville for much too long.

And I think Mango is gone.......

Now...I'm going to attempt to find something I posted a few days back in this crazy thread. I dont like going backward here in R-Ville.....it scares me.

If I'm not back by the end of the day....I'm lost in the thread...send out the dingos!!

Ok, we'll send out a search party if you get lost back there in the scary scary pages.

I think the dingos are really enthusiastic about special missions, Susan??

[Rachel--24]

Phew...I found the link I wanted and made it back safely. The dingos can rest now.

Yeah....in my search I saw a post from Mango....it made me realize that she must be gone now???

Hopefully we will hear something from her soon...I hope she doesnt forget about her Koala mission.