Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something


Rachel--24

Recommended Posts

mftnchn Explorer

Okay here's the abstract I mentioned:

"The relationship between childhood abuse and subsequent chronic medical conditions was researched in 121 patients from a medical practice in the northwestern United States during a 2-year period from 1994 to 1996. The patients


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 33.4k
  • Created
  • Last Reply
mftnchn Explorer
I am good about winging it. And I like to make soups - just never used bones in there. What would you use for beef bones??? What kind of beef?

I've heard that you break up the bones a bit, so that the marrow is open...not sure if that would help with calcium.

CarlaB Enthusiast
I am good about winging it. And I like to make soups - just never used bones in there. What would you use for beef bones??? What kind of beef?

I don't know .... I'd talk to the butcher. :)

Sherry, that is interesting. Was there any difference between verbal/emotional and physical abuse in the study?

NoGluGirl Contributor

Dear Everyone,

I will do as I did last time when I got behind. I will type out PMs and e-mails to topics covered over the last couple of weeks. Anything from page 1820 onward will be posted in my usual column on the thread. I have not been home much because of the ongoing makeover. So far, I have spent twelve hours at the salon!

Sincerely,

Jin

P.S. I should be able to go to Lyme Chat on Thursday and Saturday.

CarlaB Enthusiast

When will we see a picture, Jin?

confusedks Enthusiast

Sherry,

That was a very interesting study. I am so amazed at how all of the emotional and physical stuff is interconnected. It makes so much sense. It's so interesting that things from our childhood's can have so much ipmact forever, not just in relationships, but with our health!

ShadowSwallow Newbie

Hi Everyone,

I just sent out the email. :) If anyone else wants a copy, just PM me. :D

To generally sum up: I was diagnosed clinically with Lyme, I have a positive Ehrlichiosis test (so we know I have at least that coinfection!) and h. pylori test. I also have strep at the moment. The LLMD put me on Zith and I have so many scripts for bloodwork and other tests I don't know if I can make that much! :P

Jin,

I can't wait to see those pictures!!!! :D :D

Birdy


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mftnchn Explorer
Sherry, that is interesting. Was there any difference between verbal/emotional and physical abuse in the study?

I'd have to look back at the whole thing. What I recall is that the verbal/emotional didn't show up as much, I might not have had enough data on just that alone without accompanying other forms of abuse. I tried to look for all the major chronic illness issues that I noticed in the records, but sometimes the number was just too small to see any trend.

Sherry

mftnchn Explorer

Yay, Jin. I can't wait to see the results!

Woohoo Birdy! Not that you have lyme disease, LOL, but for getting some answers and starting treatment!!

Nyxie63 Apprentice
One of the interesting things I have read is about PTSD (post traumatic stress disorder)..... People can say, "I know it up here" pointing to their heads, and then say "but it doesn't compute here" pointing to their hearts.

That's so true. I was dx'd with PTSD a little over 8 years ago after a breakdown. The traumatic event wasn't childhood abuse or anything like that, but devastating nonetheless. I know how to deal with it in my head - the exercises, the visualization, etc. The problem is that the hole in my heart/spirit is still there and no amout of "proper thinking" will make it go away. I've seen plenty of therapists and even did a 2-week (voluntary) in-patient stint at the hospital. It sounds like a self-defeating attitude, I know. It isn't. Its the simple truth. The hole is a part of me and always will be. The best I can do is work around it.

Jin,

Yeah, we wanna see pics! :D

Birdy,

Congrats on the dx... I think. Well, yeah. Congrats! Progress is a goooood thing.

Rachel--24 Collaborator

Just popping in to say hi. :)

As always I'm thinking of all of you. I've been reading along but my brain hasnt been too focused on scientificness...I've been pretty "scattered" to say the least! Hence....my lack of long winded posts. :P

I sort of got side-tracked lately. I kind of unexpectantly fell for someone! :blink:

See what happens...I totally lost my focus!

Anyways...I'm trying to get it together. :rolleyes:

Sorry to anyone that I failed to respond to in pms, emails, etc. There are lots of things I've wanted to reply to....hopefully I'll get back on track soon. :)

So thats my explanation for lack of scientificness. ;)

mftnchn Explorer

Nyxie, thanks for sharing. I read a book called Shattered Assumptions that made so much sense to me about how these experiences undermine these simple assumptions we make that let us move through life without such anxiety that bad things will/might happen. I really liked what she talked about in terms of how we have to come to grips with it and create some new assumptions that fit better and are more realistic. That sounds very cognitive and in a sense it is, but I liked how it talked about living with these realities.

Carla, I looked back at my research and I think there wasn't enough information to differentiate. I was looking more in depth at sexual abuse because that seems to be (on average) more severe in the emotional impact and impact on normal development. So I only asked one question about verbal abuse. My assumption was that if that showed some connection, further exploration could be made about the rest. I did list the percentage of patients that reported verbal abuse which was, interestingly enough, lower than the reported sexual abuse. I also looked at the total number of patients who reported any type of abuse. It was 71% of my sample!

Part of the issue was that this was a master's thesis, so I didn't analyze every bit of data I collected. There was enough there for a much more in depth exploration. I was encouraged to go further with it and seek a PhD but life has gone on and I have never gone back to it.

I can email a copy of the study if someone wants it. What I have on my computer might not be the final draft but it is close. It's 92 pages with references...so that might be more than anyone wants. What might be interesting is the review of the literature of some of the diagnoses that in the research literature were linked with sexual abuse. It was quite surprising to me.

mftnchn Explorer

Rachel, I wondered if that might have happened...LOL! What a GREAT reason to be side-tracked and not posting....hope you are having fun with this. Nice to know you are more and more getting your life back!

mftnchn Explorer

Julie, I tried my first castor oil pack today, except years ago I tried a liver pack. Anyway, noticed a flare of toxic like feeling for awhile. I took extra chlorella, and was going to take some charcoal but it seems to be better.

I might have kept it on too long.

I know that my doctor recommended them to me at the outset of my lyme treatment so I thought I could safely try. I'll check in though about how often and stuff.

Sherry

confused Community Regular

JIn,

Thanks for the email, im so glad you are having an makeover at the salon and will now also start the 6wbm, you will be amazed on how fast u lose weight and feel great. Im so jealous of the makeover, what all are you having done. In april my mom and I are going to the spa for an day, i cant wait to spend the whole day with just her and be pampered, i so need it.

I am working out again and love it, i feel so much better about myself. I cant wait for tax money to buy some cute clothes for spring and summer (even if hubby said they cant be too cute lol)

My leg twitching has gone away and i am so happy for that. Who knows what it was but if it comes back i will probably have it checked out or at least go across the street and ask my doctor (an beneift of ur md living across the street lol)/

paula

CarlaB Enthusiast
I sort of got side-tracked lately. I kind of unexpectantly fell for someone! :blink:

:wub: :wub: :wub: :wub: :wub: :wub: YAY!!! I'm so excited!!!!

hopefully I'll get back on track soon. :)

Let's hope not! You have something better to do than spend all day online! LOL

Sherry, that is interesting. I would think sexual abuse would be more traumatic, I can't imagine much worse. I'll let you draw your own conclusions of why I'm more interested in the verbal/emotional abuse part. ;) I'd ask for the paper, but honestly, I don't think I could wrap my brain around 92 pages, LOL.

Nyxie, it's okay to have a hole ... donuts have holes and they are very sweet and everyone loves them! :wub::D With something like we've been talking about here, there will always be a hole .... we're not trying to fix it, but fix the way we react to it. We were robbed of something special, no matter what caused the pain .... there is no getting that back, but it is important for our own health to come to terms with the trauma, in the sense that we've processed the emotions from it and haven't blocked them inside causing illness (I had trouble letting go of the emotions, like I said, I boxed them up so as not to deal with them) .... not in the sense that we ever get back what was lost or ever stop missing it.

I realize this is easy for me to say ..... we all have different pasts .... but it is interesting that NO ONE here said, "No, Carla, I don't have any emotional issues behind my illness." ;)

I started taking artemisia again yesterday. I was having air hunger .... I am wearing a mouthpiece that makes it hard to breathe and Adam was saying he thought it was from that, but I was having it even after having the mouthpiece out for an hour.

I don't feel bad, at all. I guess there is just going to be more maintenance than I would like. I was at least hoping babesia would not be an issue any longer. I had a little sweat last night .... nothing like I used to ... and I don't really know what's normal, is it normal to sweat at night? I'm thinking it was a mini-herx from the artemisia. I have a phone consult in a couple weeks, so I'll ask about the new Cowden babs herb then.

Another thing that might be a factor is that I'm supposed to take Lariam every 5 days .... I took it after 7 days one week, then after 6 the next .... so maybe that allowed it to flare up a little. At any rate, I know it's still there and I'm not letting it get the better of me this time! I'm not going to be in denial when I become symptomatic and end up with a full blown relapse! :P

Overall, I'm feeling good. My knee hurts regularly, but I'd put it at a 1 on a 10 point scale. I'm just aware that it's not right. I'm sleeping well with a half an Ambien, 5 HTP, and Melatonin before I go to bed. Last night I only slept for six hours, but I feel rested .... the night before my alarm woke me up at 8, so I had a great night's sleep, I was hoping for that today because the kids have a snow day and I didn't set my alarm, but, NO, I had to go and wake up at 6! :angry:

confused Community Regular

Im thinking i want the 92 page abstract, i love reading stuff like that, my undergraduate work was done in psych and sociology, who knows i might have read it before lol.

paula

jerseyangel Proficient
I sort of got side-tracked lately. I kind of unexpectantly fell for someone! :blink:

I just have to pop in for this! :D

How wonderful, Rachel--I'm so happy for you :D:D

Nyxie63 Apprentice

Rachel,

WooHoo!!! You go, girl! :D

Nyxie, thanks for sharing. I read a book called Shattered Assumptions that made so much sense to me about how these experiences undermine these simple assumptions we make that let us move through life without such anxiety that bad things will/might happen. I really liked what she talked about in terms of how we have to come to grips with it and create some new assumptions that fit better and are more realistic. That sounds very cognitive and in a sense it is, but I liked how it talked about living with these realities.

I'd be very interested in your study. Will PM you with my e-mail. Dunno what I'll be able to get out of it at this point. Maybe if I chew it in small bites. ;)

My key interest is changes in interactions with other people after trauma. Its not an anxiety that the trauma will reoccur, but an expectation that something like it will happen again. Especially if one has a history of similar experiences. Does that make any sense? Its not a matter of feeling "deserving" of the trauma like I've heard about in many abuse cases. Rather more like feeling "fated" to repeat the experience again on some level - that such things happening is inevitable. I suppose my assumption has become "its painful, but not a surprise".

Btw, who's the author of that book? Sounds interesting. Might pick it up when I have a brain again.

:Nyxie, it's okay to have a hole ... donuts have holes and they are very sweet and everyone loves them! :wub::D With something like we've been talking about here, there will always be a hole .... we're not trying to fix it, but fix the way we react to it. We were robbed of something special, no matter what caused the pain .... there is no getting that back, but it is important for our own health to come to terms with the trauma, in the sense that we've processed the emotions from it and haven't blocked them inside causing illness (I had trouble letting go of the emotions, like I said, I boxed them up so as not to deal with them) .... not in the sense that we ever get back what was lost or ever stop missing it.

Awwwww! :) Thanks.

Shoving down the emotions from the trauma is how I ended up having the breakdown. Stifled it all for 4 years. One morning, it woke up and bit me on the azz. Got up, got ready for work, went to leave the house..... and couldn't. I simply could not force myself to go out the front door.

Gotta tell you tho, I'd highly recommend a breakdown for everyone. Only half kidding. It's a great (albiet painful) way of having to take a look at yourself and deal with unresolved issues. It's also a great opportunity to reshuffle your priorities.

I guess what you're getting at here is the old, yet true, standard that dis-ease causes disease.

--------------

Oh! And I finally got that bloodwork done this morning that I've been putting off for 2 months. Ugh! Only 6 tubes this time. Yay? Wondering what my cortisol level is going to look like since I've only gotten about 4 hours sleep each night for the last week.

dlp252 Apprentice

To Jin (this won't make sense to anyone else, lol):

Yeah, I'm finding out the purer that my products are the better for me. So far so good with the EM stuff!

Yeah, I feel bad too if I eat too many carbs of any kind...it actually causes low blood sugar feelings in me, not to mention the awful bloat and gas it causes.

I had my appraisal for the refinancing on Sunday...now I just have to hope she appraises my place at more than what I want to borrow...I should think it would be, but one never knows...that's the last hurdle I have to pass I think. I haven't heard yet.

My doctor said I could do the B-12 shots once OR twice a week. The bottles both say 1x per week. I tried two times per week for a couple of weeks, but I just CAN'T give myself shots that often, lol. I just can't. Once a week is hard enough.

I'm awful at taking pictures...just awful. I have a decent camera, but no matter what kind of camera I have, my pictures just don't come out well, lol. I have a friend who can take a picture with one of those cheap disposable cameras, and it comes out like a professional picture, not me, lol.

The caffeine really seems to be the culprit with the breast pain. I haven't had a single episode of the searing pain since I cut it out. I've been having a little decaf, so it's probably not the coffee itself, but seems like it might be the caffeine. I'm getting ready to test that theory out by having a little caffeine every day for a week or two and see what happens. Haven't started that yet though. I don't take calcium...I should, but I don't. :(

dlp252 Apprentice

Woohoo Rachel!!! You DESERVE a little distraction!!! Enjoy it!!! :P

CarlaB Enthusiast

Breakdowns for everyone! :lol:

Lyme disease allowed me to reshuffle my priorities. :)

dlp252 Apprentice

I'm reposting something I posted on the makeup thread because it's just too exciting for me. Some of you know what a long road it's been for me, some of you don't. I've been sick for the better part of 10-12 years and the last 5 years have just basically floored me. The difference I've seen in the last few months has been astonishing, but it's stuff like this that really brings it home for me:

Well, I'm pretty excited here girls...I've mentioned before how excited I am about EM because for the first time in years I'm actually excited about putting makeup on and taking care of my appearance...well, apparently it's spilling over into the rest of my life, lol.

For the first time in about 12 years....I actually feel excited about fixing up my condo. I haven't felt that way in a long time...couldn't really because I felt so bad. I actually pulled out paint chips (old ones--will have to get new updated colors this weekend), and started planning what paint goes on what wall, and actually started thinking I could do the painting myself! I'll have to get low VOC paint of course, but if I only do one wall at a time (in a day if I have to), I think I can do it myself.

Nyxie63 Apprentice
Breakdowns for everyone! :lol:

I'll bring the chips! :P:lol:

For the first time in about 12 years....I actually feel excited about fixing up my condo. I haven't felt that way in a long time...couldn't really because I felt so bad. I actually pulled out paint chips (old ones--will have to get new updated colors this weekend), and started planning what paint goes on what wall, and actually started thinking I could do the painting myself! I'll have to get low VOC paint of course, but if I only do one wall at a time (in a day if I have to), I think I can do it myself.

Cool! We'll need before and after pics, you know. ;)

dlp252 Apprentice

Yep, I think I can do before and after, lol. I have pictures of when I first moved into my condo...that was bad, lol. I did some improvements myself before I got sick, but those are nearly 12 years old now, lol. It's really time for some work. :P

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - DebD5 commented on Scott Adams's article in Spring 2026 Issue
      1

      The Dark Side of Gluten-Free: Counterfeit Labels and Global Food Safety Failures

    2. - Jmartes71 replied to Jmartes71's topic in Doctors
      6

      Second chance

    3. - trents replied to EssexMum's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Concerning GP advice

    4. - knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
      327

      Terrible Neurological Symptoms

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,643
    • Most Online (within 30 mins)
      7,748

    MariSmit
    Newest Member
    MariSmit
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jmartes71
      Thats the thing, diagnosed in 1994 before foods eliminated celiac by biopsy colonoscopy at Kaiser in Santa Clara  now condo's but it has to be somewhere in medical land.1999 got married, moved, changed doctor's was with former for 25 years told him I waz celiac and that.Fast forward to last year.i googled celiac specialist and what popped up was a former well known heard of hospital. I thought I would get answers to be put through unnecessary colonoscopy KNOWING im glutenfree and she wasn't listening to me for help rather than screening me for celiac! Im already diagnosed seeking medical help.I did all the appointments ask from her and when I wanted my records se t to my pcp, thats when the with holding my records when I repeatedly messaged, it was down played the seriousness and I was labeled unruly when I asked why am I going through all this when its the celiac name that IS what my issue and All my ailments surrounding it related. I am dea6eoth the autoimmune part though my blood work is supposedly fabulous. Im sibo positive,HLA-DQ2 positive, dealing with skin, eye and now ms.I was employed as a bus driver making good money, I loved it for the few years my body let me do until I was yet again fired.i went to seek medical help because my body isn't well just to be made a disability chaser. Im exhausted,glutenfree, no lawyer will help and disability is in limbo thanks to the lax on my health from the fabulous none celiac Google bay area dr snd team. Its not right.
    • trents
      Welcome to the celiac.com community @EssexMum! First, let me correct some misinformation you have been given. Except in the case of what is known as "refractory" celiac disease, which is very rare, it is not true that the "fingers" will not grow back once a consistently gluten free diet is adopted. Celiac disease is an autoimmune condition whereby the ingestion of gluten triggers an inflammatory process that damages the millions of tiny finger-like projections that make up the lining of the small bowel. We call this the "villous lining". Over time, continued ingestion of gluten on a regular basis results in the wearing down of these fingers which greatly reduces the surface area of this very important membrane. It is where essentially all the nutrition from what we eat is absorbed. So, losing this surface area results in inefficiency in nutrient absorption and often to medical problems related to nutrient deficiencies. Again, if a gluten-free diet is consistently observed, the villous lining of the small bowel should rebound. "We was informed that her body absorbs the gluten rather then rejecting it and that is why she doesn't react to the gluten straight away, it will be a build up and then the pains start. " That sounds like unscientific BS to me. But it does sound like your stepdaughter may have a type of celiac disease we know as "silent" celiac disease, meaning, she is asymptomatic or at least the symptoms are not intense enough to usually notice. She is not completely asymptomatic, however, because you stated was experiencing tummy aches off and on. Cristiana gives some good suggestions about ordering "safe" food for your stepdaughter from restaurant menus in Europe. You must realize that as the step parent who only has her part of the time you have no real control over how cooperative her other set of parents are with regard to your stepdaughter's needs to eat gluten free. It sounds like they don't really understand the seriousness of the matter. This is very common in family settings where other members are ignorant about celiac disease and the damage it can do to body systems. So, they don't take it seriously. The best you can do is make suggestions. Perhaps print out some info about celiac disease from the Internet to send them. Being inconsistent with the gluten free diet keeps the inflammation smoldering and delays or inhibits healing of the villous lining. 
    • Scott Adams
      Here are some articles on cross-reactivity and celiac disease:      
    • knitty kitty
      @HectorConvector, Here are some articles about "dry Beriberi" and neuropathy.  I hope you've been able to acquire thiamine hydrochloride or Benfotiamine.  I'm concerned.   Dry Beriberi Due to Thiamine Deficiency Associated with Peripheral Neuropathy and Wernicke's Encephalopathy Mimicking Guillain-Barré syndrome: A Case Report and Review of the Literature https://pubmed.ncbi.nlm.nih.gov/30862772/ Dry Beriberi Manifesting as Acute Inflammatory Demyelinating Polyneuropathy in a Patient With Decompensated Alcohol-Induced Cirrhosis https://pmc.ncbi.nlm.nih.gov/articles/PMC7707918/ A Rare Case of Thiamine Deficiency Leading to Dry Beriberi, Peripheral Neuropathy, and Torsades De Pointes https://pmc.ncbi.nlm.nih.gov/articles/PMC10723625/
    • cristiana
      Good evening @EssexMum You are quite right to be concerned about this situation.  Once diagnosed as coeliac, always a coeliac, and the way to heal  is through adopting and sticking to a strict gluten diet. That said... I have travelled twice to France since my diagnosis, firstly in May 2013 and again in August 2019.   My spoken French isn't bad, and whilst there I tried my best to explain my needs to chefs and catering staff, and I read labels very carefully when shopping in supermarkets, but both times I came away with worsening gastric symptoms and pain. Interestingly,  after the second holiday, my annual coeliac review took place the following month and although I'd been very careful to avoid gluten all year, thanks to that August holiday my coeliac antibodies were elevated,  Clearly I hadn't been imagining these symptoms and they must have been caused by gluten sneaking in somehow. When I spoke to my gastroenterologist on my return, who is an excellent doctor, he told me with a smile that this was a very common experience in France among his patients, and not to worry too much about it! In fact, before we went away in May 2013, which was just after I had been formally diagnosed, he told me not to even bother trying to adopt a gluten free diet until I returned, knowing what France was like, but I was feeling so awful at that time I ignored his advice and at least tried to make a start with it. (I ought to say - both these visits were some time ago, so perhaps things are a lot better there now.) So what to do?  I would say at least try to explain to catering staff the situation - they should be able to rustle up a plate of cheese, boiled eggs, tuna, salad and fruit, and if things like crackers and gluten-free pot noodle or oats can be packed in the UK, those can be produced at mealtimes.    Of course, most larger supermarkets in France do now cater for coeliacs, but when I was last there the the choice wasn't as wide a range as we have in the UK but I think that is partly because the French like to cook from scratch, whereas our gluten-free aisles have quite a lot of dried or pre-baked goods in them/convenience foods, because I think we as a nation tend to use them more. I would be worth doing a bit of research on the internet before the trip, - the words you want are 'sans gluten'.  I've just googled 'sans gluten Disney Paris" and this came up.  I do hope at least some of this is of help. https://www.tripadvisor.co.uk/Restaurants-g2079053-zfz10992-Disneyland_Paris_Ile_de_France.html  Whatever befalls in France, at least your stepdaughter can resume her usual diet on her return. On a related tack, would you be happy to post any positive findings/tips upon her return - it might be of use to others travelling to Disneyland Paris with children in future? Cristiana
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.