Omg...i Might Be On To Something

[LoriG]

For those of you who already responded to my questions about health:

I emailed my natropath telling him I am not any better and basically I need him to narrow down what he thinks it is. He uses biophysics/energetic testing and treats with homepathic type drops. He seems to have nailed it on the head what is wrong, but the drops aren't working. Ugh! Here is his response. What do you think? If it is mercury, I read that chelation is really hard on the body and I am at a very low point and don't know if I could handle that. What else can I try besides his "drops"?

Or this virus? Ugh!! Please help.

Hi Lori,

I can appreciate your frustration.

Looking at your file, I do think there is a probability of Heavy metals, and in particular Mercury. That is another issue that takes time to eliminate and result in improved symptoms. Your option there would be to cross-check with lab tests (I think Dr. Lindstrom could do that), or, assume it and take things to help the body eliminate it. I've used many products, including various chlorella products, but I've had the best results with the NES ES15 Infoceutical.

I also think there is a probability of chronic infection. The ET7 is suggestive of virus, not EBV but similar to that. I've tried to address that with the remedy. ET13 is associated with yeast and/or amoeba and/or spirochete, and I've noticed that that has been orange 2 of the last 3 scans. Lymes is of course very tough to test medically. My opinion would be, though, that if there are heavy metals, that is what would lead to chronic infection, so I would try to test that and/or address that first.

Hope this makes sense.

Thanks Lori,

[CarlaB]

Lori, it just doesn't sound like he has it narrowed down very well or that what he's doing is working. Can he (or the other doctor) sign for an IGeneX Western Blot? If so, I would do one. I honestly don't think this guy knows much about Lyme Disease since he misspelled it.

Can they sign for a heavy metal provoked urine test? I would also do one of those.

I would also test for viruses (I think there's one called something like HH6 that is often an issue).

Or I would move on to some more specific energetic testing like the ART that so many here use. I agree with his opinion that it's more than one thing .... it always seems to be.

[CarlaB]

Babysteps, I'm taking a D3 supplement until I can get some natural sunshine. I don't have any trouble with supps though, and take many of them. Obviously there is something in the supplements that you are allergic to.

[confusedks]

  CarlaB said:

Lori, it just doesn't sound like he has it narrowed down very well or that what he's doing is working. Can he (or the other doctor) sign for an IGeneX Western Blot? If so, I would do one. I honestly don't think this guy knows much about Lyme Disease since he misspelled it.

Can they sign for a heavy metal provoked urine test? I would also do one of those.

I would also test for viruses (I think there's one called something like HH6 that is often an issue).

Or I would move on to some more specific energetic testing like the ART that so many here use. I agree with his opinion that it's more than one thing .... it always seems to be.

I agree with everything Carla said. The virus she is talking about is the HHV-6 virus. I have it along with EBV. My LLMD is of the mindset that they are sticking around because the Lyme. Once we kill the Lyme, they will diminish.

The problem with not using lab work or medical tests is that sometimes the Eastern Dr's can't really figure out what's going on. I went to many Naturopaths but NONE of them could figure out what was going on. One told me I had Candida, which is true, I did. But that wasn't the only problem I had, actually it was the least of my worries.

I think you need some blood work done such as a Virus panel, and Western Blot. Then you can see what needs to be treated, etc. I would definitely keep this NP you are working with in the loop, because later down the line, he may be very helpful.

This is my own experience, so you may have a different one. But I did find it was VERY necessary for me to have blood work done.

[tabasco32]

Hey everyone,

Hey Carla, you take zeolite? I met these nice people at whole foods yesterday and they were talking about zeolite. Is it something safe to take? I heard it was good for toxins and metals.

lisa

[CarlaB]

  tabasco32 said:

Hey everyone,

Hey Carla, you take zeolite? I met these nice people at whole foods yesterday and they were talking about zeolite. Is it something safe to take? I heard it was good for toxins and metals.

lisa

Yes.

I get mine from Nutramedix. Nutramedix has two varieties, you use Zeolite first then Zeolite HP. They are somehow energetically enhanced to removed heavy metals .... but different heavy metals. So you use the plain one first, to lighten that load, then use the HP for the other metals.

I take two every third night before bed. I also use my green laser for metal detox the same night I take the Zeolite .... it just seemed like the right time to use my laser.

[LoriG]

  confusedks said:

I agree with everything Carla said. The virus she is talking about is the HHV-6 virus. I have it along with EBV. My LLMD is of the mindset that they are sticking around because the Lyme. Once we kill the Lyme, they will diminish.

The problem with not using lab work or medical tests is that sometimes the Eastern Dr's can't really figure out what's going on. I went to many Naturopaths but NONE of them could figure out what was going on. One told me I had Candida, which is true, I did. But that wasn't the only problem I had, actually it was the least of my worries.

I think you need some blood work done such as a Virus panel, and Western Blot. Then you can see what needs to be treated, etc. I would definitely keep this NP you are working with in the loop, because later down the line, he may be very helpful.

This is my own experience, so you may have a different one. But I did find it was VERY necessary for me to have blood work done.

Thank you both for your help. The 2 blood tests you mention, would that be covered by insurance? I'm sure my doc would write the prescription but I'm not sure where to get it done. And if I have this virus, he said it is called FLAVIVIRUS, then how do I get rid of that? I also have very few of the lyme disease symptoms. If I have mercury, what do I do about that? I've already spent a fortune and with this ND, I feel like I'm going around in circles and not getting better.

I am so overwhelmed!! Now I have to start treating candida and mercury on top of celiac's and adrenals and hypothyroid and on and on it goes. Where do I start??

[confusedks]

  LoriG said:

Thank you both for your help. The 2 blood tests you mention, would that be covered by insurance? I'm sure my doc would write the prescription but I'm not sure where to get it done. And if I have this virus, he said it is called FLAVIVIRUS, then how do I get rid of that? I also have very few of the lyme disease symptoms. If I have mercury, what do I do about that? I've already spent a fortune and with this ND, I feel like I'm going around in circles and not getting better.

The Western Blot needs to be done through Open Original Shared Link. They will not bill your insurance, but you can sumbit a claim form to see if insurance will cover it. I don't know if most insurance companies do or not.

The Virus panel I had done through a specific lab that my Dr thinks is the best for viral tests, called MDL. My TERRIBLE insurance company paid for most of the test. I would find out before though, because it was a $1,300 test! Make sure it gets covered before you do it.

But even if you have positive tests for these things, you will need a Dr who knows what they're doing in order for you to get well.

I don't know much of anything about heavy metals, as I have no experience with them.

[Rachel--24]

Lori,

The best way to really narrow things down and get some answers is to get the tests done. I've had alot of alternative testing to give us a good idea of what I'm dealing with...and then I've also had all the traditional tests to confirm.

Some tests arent straightforward...Lyme for example can be very difficult to determine. Mercury is also tricky but there are ways to get answers even if the tests arent clear. Knowledgeable Dr.'s who have alot of experience with these conditions and a good understanding of testing procedures can usually figure it out.

I agree that mercury does lead to chronic infection....candida, parasites, virus, bacteria, etc. Mercury invites them in by weakening your immune system. I dont know of anyone who is mercury toxic w/out having chronic infection....they go hand-in-hand.

Its important to know everything you're dealing with though. If for example if you did have active Lyme...but only focused on mercury....you would not recover. It would also be extremely difficult to detox mercury with an infection like Lyme on board.

I would suggest getting the western blots and also getting the testing for heavy metals....to start with. My insurance covered 50% for those tests.

I still use energetic testing throughout my treatment and I am also getting urine tests every couple months to look at the metals as I go through chelation.

Yes, chelation can be hard on your body. If your body isnt ready for it you will not do well with it. My Dr.'s had told me it would be necessary for me....that I would not likely recover without it....but they did not rush into it either. They worked on other things for a full year first ...and when I started to feel a little better they tested me for the metals and started the chelation. They started me on a very small dose and worked up to what seems to be working well for me. I've had 10 treatments over 4 months and have not suffered any setbacks or bad reactions. So far its gone very smoothly for me.

[CarlaB]

Lori, I think Rachel is probably most similar to you .... Lyme is a more minor player for her, but infections are there .... mercury is more major .... she has also used the energetic testing .... I guess I'm just saying, her advice is probably good for you.

[LoriG]

  CarlaB said:

Lori, I think Rachel is probably most similar to you .... Lyme is a more minor player for her, but infections are there .... mercury is more major .... she has also used the energetic testing .... I guess I'm just saying, her advice is probably good for you.

Thank you Carla and Rachel.

My dilemma is I don't know where to go to get help. I live in Wisconsin. Right now I could just take the "drops" that my natropath is offering, which is sort of like chelation but on a homepathic level. I think he said that would take 6 months. Do I even bother looking to test for lyme since I have such few of the symptoms? I am also very broke and now I'm starting IV's next week. I am so overwhelmed! I do trust my natropaths diagnosis - really! The problem is that his drops aren't helping and I don't know if I should just give it longer with him.

I know I'm probably dealing with these things: Celiac's, Hashimoto's, Adrenal Fatigue, Mercury Toxcity, Candida, Chronic Virus called Flavivirus. I am not eating gluten, dairy, or any grains right now. I am taking digestive enzymes, custom probiotics, 4500mg vitamin c, Nordic Naturals fish oil, armour thyroid, desiccated adrenal.

Where do I go from here especially with limited funds and lack of a doctor? Take his mercury drops? Start treating candida?

These are my current symptoms: overwhelming fatigue, depression, irritability, constipation (a tad better). Thank you all for your advice!

[CarlaB]

Lori, given your symptoms and your limited financial resources, I would probably look for someone to do the provoked urine test for heavy metals. I would do what I could to get rid of the heavy metal burden.

If the homeopathic stuff isn't working after the time you've given it, I'd start looking for something else. It's not a matter of not trusting your doctor, it's a matter of getting some other health care to compliment what you're already doing.

Once you lift the heavy metal burden, then you can more easily clear the candida. The candida can be there to protect you from the metals. You won't be able to get rid of it as long as the metals are there.

Also, the adrenal fatigue, which I have as well, can be from being chronically ill for so long. I take herbs for adrenal support, and now that I've taken away the metal and bacterial burdens, my adrenals are substantially better than they were.

Some people need help getting rid of viruses (Kassandra is taking something for them), but others are able to clear them once they get rid of the other burdens. Maybe the doctor who treats your metals can determine whether you need something to fight the virus.

I don't know how to find a doctor educated in mercury .... you might start by asking a dentist if there's one near you on this list .... www.mercuryfreedentists.com. I would think a mercury free dentist would be familiar with the docs in his area treating mercury.

Maybe as you lift the metal burden, more will show up in your energetic testing with your current doctor, then you can pursue those avenues. But, with the limited resources, I'd go with what the energetic testing has shown, which is metals .... when the metals are gone, the candida will be relatively easy to deal with.

You also might add some chlorella .... it binds mercury and helps you excrete it. Zeolite is good for that, too.

[LoriG]

  CarlaB said:

Lori, given your symptoms and your limited financial resources, I would probably look for someone to do the provoked urine test for heavy metals. I would do what I could to get rid of the heavy metal burden.

If the homeopathic stuff isn't working after the time you've given it, I'd start looking for something else. It's not a matter of not trusting your doctor, it's a matter of getting some other health care to compliment what you're already doing.

Once you lift the heavy metal burden, then you can more easily clear the candida. The candida can be there to protect you from the metals. You won't be able to get rid of it as long as the metals are there.

Also, the adrenal fatigue, which I have as well, can be from being chronically ill for so long. I take herbs for adrenal support, and now that I've taken away the metal and bacterial burdens, my adrenals are substantially better than they were.

Some people need help getting rid of viruses (Kassandra is taking something for them), but others are able to clear them once they get rid of the other burdens. Maybe the doctor who treats your metals can determine whether you need something to fight the virus.

I don't know how to find a doctor educated in mercury .... you might start by asking a dentist if there's one near you on this list .... www.mercuryfreedentists.com. I would think a mercury free dentist would be familiar with the docs in his area treating mercury.

Maybe as you lift the metal burden, more will show up in your energetic testing with your current doctor, then you can pursue those avenues. But, with the limited resources, I'd go with what the energetic testing has shown, which is metals .... when the metals are gone, the candida will be relatively easy to deal with.

You also might add some chlorella .... it binds mercury and helps you excrete it. Zeolite is good for that, too.

Thanks Carla for your help. I did call my nutritionist and she highly recommends me being tested for mercury before treating it. She recommended a blood test, though. I am assuming my regular doctor could just run a test covered by insurance. Would that be accurate enough? I trust my natropath's diagnosis but it would be nice to have it confirmed.

Thank you for clearing that up about the mercury first, then candida. I am so overwhelmed!

[babysteps]

Kassandra and Carla, thanks so much!

The calcium & vitD alone I tried first time last night & seem to be tolerating fine. At least that suggests I can take some supplements

I think I'll stick with this one for now and start trial and error next week for the rest of the vitamin & mineral world

[AndreaB]

Lori,

Rachel would know more about this but I don't think the blood draw for mercury is accurate unless it's a very recent exposure.

[CarlaB]

  LoriG said:

Thanks Carla for your help. I did call my nutritionist and she highly recommends me being tested for mercury before treating it. She recommended a blood test, though. I am assuming my regular doctor could just run a test covered by insurance. Would that be accurate enough? I trust my natropath's diagnosis but it would be nice to have it confirmed.

Thank you for clearing that up about the mercury first, then candida. I am so overwhelmed!

It needs to be a urine test .... you need to take a chelating agent prior to the test. Metals get stored in tissue, and this is the only way to see if you have a problem with them.

[aprilh]

Lorig,

The blood test won't be an accurate way of testing. The body does not allow these metals to circulate very long because they are deadly if left in circulation and if they were to accumalate in the blood.

The body stores them in our tissues. A provoked urine challenge would be the way to go. Here is a website for reference. www.genovadiagnostics.com.

A hair analysis is helpful, too, but like Rachel said, the mercury does not always show but skewed minerals indicate a mercury burden.

You can also go by your doctor's energetic testing and go from there. I am just not sure how effective these homeopathic drops will be. Mercury is hard to get out of the body and cells. I think there is a time and place for homeopathy and it is a great tool to put with many other methods, but just not sure how effective it will be alone in removing mercury.

It could be a good way to get started on the mercury and then down the road you could do a little bit heavier chelation.

I think the mineral iv's sound very good. I know they can be expensive, but you will need them (minerals) in some form while detoxing. When you chelate metals you also chelate minerals. Because the body needs minerals you have got to replenish with the good ones rather than leave an "open space" to let the bad ones in. if that makes sense!!

Just remember to go slow with everything you do. It might be helpful to sit down with this doctor and discuss the many different chelating options. It could be that the homeopathy might be a good choice. I just haven't heard much about it.

As you lift the metal burden the candida will start to clear. Hopefully he has something in mind if the virus starts to shift and become more active during the detoxing. That can happen.

Adrenal support would be nice to have along the way. Another good question for the doc.

It might be helpful to write all your questions down and sit down with him prior to treatment to be sure he is covering all the bases so you feel comfortable with what he's doing.

[Green12]

Just reading along, not much to add.

babysteps, a lot of us have really reacted to, or still react to many supplements. A multi-vitamin can be problematic for some like the others said because there are so many different things in them and it's possible to be allergic/intolerant to any vitamin. Sometimes it's best to break everything up and try one thing at a time.

I take a liquid Vit D supplement and take cod liver oil for a source of EFA and Vit D.

Lori G, I second and third what everyone else has suggested.

Last night Larry King had another Autism panel on his show. I just caught a little of it and then recorded the later showing. I hope to watch it sometime soon, it looked very interesting and they were talking about a lot of relative information that we have discussed here.

[confusedks]

  babysteps said:

Kassandra and Carla, thanks so much!

The calcium & vitD alone I tried first time last night & seem to be tolerating fine. At least that suggests I can take some supplements

I think I'll stick with this one for now and start trial and error next week for the rest of the vitamin & mineral world

You're welcome! Glad that you're not reacting to those supplements.

Everyone:

Just a little update on me!

I have taken a break from the Mepron because of the price of it. Well, it turns out I am feeling quite a bit better. I have more energy and I am not as blah feeling, lol. I also started Lyrica which is helping me sleep. I don't know if it's helping the body pain, but good sleep is always nice.

[CarlaB]

Kassandra, on my short breaks I always felt better. It's a good gauge on the progress you're making as it shows you how you feel when you're not constantly killing off bugs. Then, towards the end of my time off, my symptoms would always start returning .... it generally took about 3 days for the first symptoms to start coming back.

I guess that's also what kept me motivated to detoxing so much! I know it's the toxins from the bacteria dying that was making me sick and getting off the meds would prove it.

I'm wondering how much of my feeling bad might be from the Humaworm. I started it a couple days before the Malarone and felt bad before I got on the Malarone. I'm going to stop taking if for a few days and see what happens. If it is what's bothering me, I might start back at a smaller dose, or even wait till later to do it again so I'm not adjusting to Malarone and Humaworm at the same time. If I don't feel any different, I'll just go back on it and finish the 30 days. I haven't seen any worm this time.

[confusedks]

  CarlaB said:

Kassandra, on my short breaks I always felt better. It's a good gauge on the progress you're making as it shows you how you feel when you're not constantly killing off bugs. Then, towards the end of my time off, my symptoms would always start returning .... it generally took about 3 days for the first symptoms to start coming back.

I guess that's also what kept me motivated to detoxing so much! I know it's the toxins from the bacteria dying that was making me sick and getting off the meds would prove it.

I'm wondering how much of my feeling bad might be from the Humaworm. I started it a couple days before the Malarone and felt bad before I got on the Malarone. I'm going to stop taking if for a few days and see what happens. If it is what's bothering me, I might start back at a smaller dose, or even wait till later to do it again so I'm not adjusting to Malarone and Humaworm at the same time. If I don't feel any different, I'll just go back on it and finish the 30 days. I haven't seen any worm this time.

Yea, I mean, I don't feel great, but I feel decent. Instead of the 20% I've been feeling I feel maybe 40%. It's good, but conditional. Like, the thought of having to get up at 5.30 and get back into my regular routine is insane, but at least I was able to run 3 errands today. I also have an appt to go get some pampering done! I am glad I am having a little break from feeling bad.

I hope I don't start to herx like crazy when I come to see you!

[CarlaB]

  confusedks said:

I hope I don't start to herx like crazy when I come to see you!

Me, too. If you do, don't worry, you can sit around here as well as you can sit around there.

Chloe was concerned that you might be bored at home all day with no brothers and sisters there with you. That concept is so foreign to her, she can't imagine it.

[confusedks]

  CarlaB said:

Chloe was concerned that you might be bored at home all day with no brothers and sisters there with you. That concept is so foreign to her, she can't imagine it.

LOL! How cute! I am so used to it....I'm home all the time alone.

I got my eyebrows waxed today, and when I stood up to get off the bed/table thing I almost passed out! It was scary! I guess I got up too fast? Nonetheless my eyebrows look good!

[LoriG]

So in light of my recent posts, I saw my regular dentist today and he wants to replace one of my fillings because it has worn away from the tooth. I explained I wanted a non mercury one put back in. Of course, he gave me the run around but agreed. Now I'm worried about the mercury exposure when he takes it out especially with my probable mercury toxicity. Is there anything I can do? Also, what is the best test for mercury? that urine one? blood test (if so what's it called) or hair analysis?

[aprilh]

LoriG,

You can request goggles and a rubber dam. You can also take activated charcoal before and after the appointment to help absorb toxins that are released. And chlorella will help too.