Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something


Rachel--24

Recommended Posts

tabasco32 Apprentice
Okay...I need a dairy intervention!!!! All I want to eat is DAIRY. Even though I am waking up with dark circles under my eyes and PALE skin, lol...I still want to eat it! :ph34r:

I'm not one to, yeah deffinetely not one to tell you to stop eating cow milk.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 33.4k
  • Created
  • Last Reply
mftnchn Explorer
For me, green stools indicate the presence of bile. Bile salts are green. This can also happen if you are taking iron suppliments. If your stool is green often, you may wish to mention this to your doc.

Now, if it ever turns white, that indicates a blockage in the bilary tree and is "run screaming to the ER" time. :o I've had white stool and that's freaky. But also accompanied by lots and lots of severe pain so you get the idea that something is seriously wrong. :(

I have had some greenish/blackish stools; I haven't worried too much and assumed it was a combination of the charcoal I'm taking, or the andographis tincture I was on. When I have loose stool it tends to look this way. I think of bile as being yellow, but maybe also with a green hue.

Rpm999 Contributor

i haven't ate anything green....to me the only thing i could think, is maybe fungus infection related? if that's possible

Rachel--24 Collaborator
i haven't ate anything green....to me the only thing i could think, is maybe fungus infection related? if that's possible

I dont think it would be fungal but heres what I found...

The liver constantly a bright green fluid called bile that is secreted into the small intestine or stored in the gallbladder.

Bile is needed to absorb fats and fat soluble vitamins. It also helps to soften stools and is responsible for giving stools their characteristic brown color.

As bile makes its way through the intestines, it progressively changes color from green to yellow to brown, due to the action of bacteria in the large intestine on the bile salts.

Green stool often indicates that food has passed through the intestines faster than normal (called decreased bowel transit time), before it could be changed from green to brown.

Diarrhea decreases bowel transit time, so any condition that causes diarrhea can result in green stool.

Other causes of green stool include:

Laxative use

Antibiotic use

Medication side effects

Food poisoning

Celiac disease

Ulcerative colitis

Crohn's disease

Malabsorption

Irritable bowel syndrome

Bacterial overgrowth

Infectious diarrhea - especially salmonella and giardia

Traveler's diarrhea

Cancer

Foods and supplements that can cause green stool include:

Chlorophyll

Iron supplements

Algae

Rpm999 Contributor

i never have diarrhea really which is good....thing that makes most sense to me is malabsorption or a bacterial overgrowth, none of it's consistent so...i'm not on any diet at this moment and some days my bowels are perfectly normal :huh:

nora-n Rookie

About milk being addictive, it is proven that casein breaks down to opioids...see karl Ludwig Reichelt's articles and all the autism Gluten-free Casein-free pages etc.

There is even an urine test for those opioids.

nora

Nyxie63 Apprentice

Donna,

Congrats! Wonderful appointment! And no more mold. Bet that's a relief. :)

Kass,

My weaknesses are ice cream and melted cheese (not together). Would still consider slightly maiming someone for a grilled cheese sammich.

And of course, when I stopped eating dairy, a Brewster's opened up 5 minutes away from our house. They has wonnerful ice cream. :P

Andrea,

How are you doing these days? No, really.

Jin,

Where are youuuuuuuuu?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rachel--24 Collaborator
About milk being addictive, it is proven that casein breaks down to opioids...see karl Ludwig Reichelt's articles and all the autism Gluten-free Casein-free pages etc.

There is even an urine test for those opioids.

nora

The majority of autistic kids benefit from a Gluten-free Casein-free diet for that reason. They are in a drugged state while consuming these foods but improve significantly while on the diet.

Although in my case I feel the strong cravings and an unsettling feeling when I couldnt have milk...I did not have the "drugged" effect. My behavior was the same regardless.

In the kids once these foods pass through the leaky gut the opiates are able to attach to opiate receptors in the brain....and the kids remain drugged. They will go through withdrawl with the removal of these foods.

The ASD kids can also have a similar drugged effect from phenols. They can make great gains with the removal of certain fruits, veggies, artifical flavorings, preservatives, food colorings and other foods containing high amounts of phenols.

The phenols are where I have the most noticeable "brain" symptoms. I can get very spaced out, have trouble communicating, trouble concentrating, no focus, poor memory, depression, etc...when I eat those foods. :(

If I eat dairy or gluten I dont really notice these changes...if they occur its minimal...I'm still able to focus, no depression, still able to communicate, etc.

Rachel--24 Collaborator
Kass,

My weaknesses are ice cream and melted cheese (not together). Would still consider slightly maiming someone for a grilled cheese sammich.

I miss grilled cheese!!! I have a weakness for grilled cheese but an even stronger weakness for MAC & CHHESE!!!! yummy.

Nyxie63 Apprentice
I miss grilled cheese!!! I have a weakness for grilled cheese but an even stronger weakness for MAC & CHHESE!!!! yummy.

Oh Yes! Real mac & cheese, not that silly boxed stuff.

dlp252 Apprentice

Oh yes, I miss CHEESE and yogurt the most. Could care less about ice cream, but man I miss CHEESE and YOGURT! :lol:

Way to go Donna! So does mean you are not that toxic no more?

Yep, not toxic...that doesn't mean I won't react to stuff though...it just means my pathways are open and I'm not holding on to stuff.

Rachel--24 Collaborator
Oh Yes! Real mac & cheese, not that silly boxed stuff.

You mean the boxed stuff isnt real Mac n Cheese?? :o

I LOVE the boxed stuff...and I'd drown it with milk. :P

My mac n cheese isnt too creamy because its floating in milk. :lol:

I'd also put lots of black pepper on it....back when I could tolerate that stuff.:rolleyes:

CarlaB Enthusiast
Oh Yes! Real mac & cheese, not that silly boxed stuff.

You'd like my mac and cheese. :D I still use Tinkyada for it!

confusedks Enthusiast

It's really hard now to stay away from dairy because other than a little eye puffiness and darker than usual circles, I don't have any symptoms.

I knew this would happen...once I started I wouldn't be able to stop. I think I'm going to have my mom throw all dairy away!

It's definitely addictive, but it's not causing me any opiate-like effects. I have brain fog all the time anyway, LOL. :lol:

confusedks Enthusiast
You mean the boxed stuff isnt real Mac n Cheese?? :o

I LOVE the boxed stuff...and I'd drown it with milk. :P

The organic white cheddar kind is the BEST!!! In a box from Trader Joe's and the cheese is gluten free, so I just throw away their pasta and use Tinkyada. ;)

Nyxie63 Apprentice
You mean the boxed stuff isnt real Mac n Cheese?? :o

LOL! Not if you've ever had good homemade mac&cheese. My ex's Aunt used to make the BEST! 4 different kinds of cheese in it. Da-rool! :P

You'd like my mac and cheese. :D I still use Tinkyada for it!

I'm on my way, start cooking! :lol::lol:

confusedks Enthusiast
LOL! Not if you've ever had good homemade mac&cheese. My ex's Aunt used to make the BEST! 4 different kinds of cheese in it. Da-rool! :P

I agree, but sometimes there is a place for the boxed kind. It really serves its purpose. :lol::P

Rachel--24 Collaborator
LOL! Not if you've ever had good homemade mac&cheese. My ex's Aunt used to make the BEST! 4 different kinds of cheese in it. Da-rool! :P

I tried making my own mac n cheese when I first went gluten-free. I used Tinkyada and velveeta. OMG...it was a disaster! Cooking was a whole new concept for me a few years ago. :ph34r:

I had to post on this board....asking for help with melting the cheese. :lol:

The box stuff is EASY. :)

Rachel--24 Collaborator
I agree, but sometimes there is a place for the boxed kind. It really serves its purpose. :lol::P

Yeah....especially for those of us who are challenged in the kitchen!

AndreaB Contributor
Andrea,

How are you doing these days? No, really.

Overall I'm doing good. Since the virus and starting to take magnesium I'm not having abdominal pain. My hair is not doing good so I must be going through something. If I remember correctly the hair follicles were part of my toxic focus areas.

I still read along, just not much going on as we aren't doing any treatments.

We eat raw cheese and are thinking of having some organic dairy at times. We are going to have to leave our mostly organic diet. We are still choosy about our meat but other than that will try to keep fruit organic. Don't have much choice with the food prices starting to go up and gas over here is supposed to be up around $4 a gallon, so I'm sure they'll continue to rise.

confusedks Enthusiast
We eat raw cheese and are thinking of having some organic dairy at times. We are going to have to leave our mostly organic diet. We are still choosy about our meat but other than that will try to keep fruit organic. Don't have much choice with the food prices starting to go up and gas over here is supposed to be up around $4 a gallon, so I'm sure they'll continue to rise.

We don't buy most organic things because it's way too expensive. I mean, some things we do, but most things we don't. I guess we should, but when things are tight, the first thing to go is organic food. ;)

CarlaB Enthusiast

Oh, my, my herx is here! It's the first decent size herx I've had in a long time, LOL! Clearly, babesia has been a big problem for me .... makes me wonder how much of a problem Lyme ever was, LOL. I'm just lying around today, though I did play flute this morning at Mass (badly, LOL, due to brain fog and having trouble reading the music, not to mention counting!), and made pancakes for everyone.

LOL! Not if you've ever had good homemade mac&cheese. My ex's Aunt used to make the BEST! 4 different kinds of cheese in it. Da-rool! :P

I'm on my way, start cooking! :lol::lol:

When will you be here?

Hmm, four cheeses? I'll have to try that! I usually use a blend .... so it might have that many, but it probably only has two ... I think last time it was cheddar and monterey jack. :P

I agree, but sometimes there is a place for the boxed kind. It really serves its purpose. :lol::P

Sure it does .... when the parents are gone and the kids are feeding themselves! I never eat the stuff! :lol: :lol:

I tried making my own mac n cheese when I first went gluten-free. I used Tinkyada and velveeta. OMG...it was a disaster! Cooking was a whole new concept for me a few years ago. :ph34r:

I had to post on this board....asking for help with melting the cheese. :lol:

The box stuff is EASY. :)

To make it properly, you have to know how to make a good white sauce. ;) Then, after it's all made, you put it in the oven, top it with a sprinkle of cheese, and bake it. Yum! Melting Velveeta isn't much different than the boxed stuff! :lol:

Speaking of dairy, Rachel, aren't you Mexican? WHY on earth were you melting ice cream???

We eat at this Mexican restaurant here .... sometimes we are the only Americans in there (that's saying a lot in Ohio, LOL). Anyway, we were sitting in the back of the restaurant yesterday and saw where the drinks are and asked about this one drink .... it was horchata .... tasted like melted ice cream!!

What did I have? Well most of the time I get enchiladas mole. Yum. And a Mexican Coke (no corn syrup).

confusedks Enthusiast
Sure it does .... when the parents are gone and the kids are feeding themselves! I never eat the stuff! :lol: :lol:

:lol: :lol: EXACTLY! LOL! Although my mom has been home and I've still been eating it. As a matter of fact, I just racheled a whole box of it! :ph34r: Now I'm very sick to my stomach, so I guess I won't be indulging in dairy any time soon. :(:angry:

Rachel--24 Collaborator
Speaking of dairy, Rachel, aren't you Mexican? WHY on earth were you melting ice cream???

Yup....and for desert last night I melted strawberry sorbet. :P

I miss my melted ice cream! :(

:lol: :lol: EXACTLY! LOL! Although my mom has been home and I've still been eating it. As a matter of fact, I just racheled a whole box of it! :ph34r: Now I'm very sick to my stomach, so I guess I won't be indulging in dairy any time soon. :(:angry:

Awww....same thing happens to me everytime I've tried mac n cheese. I get a really upset stomach. Its not the dairy doing it to me though...there are other ingredients that would be more problematic for me. I havent tried the box stuff...only Amy's microwave stuff...its got annatto in it. The box stuff has even more ingredients. Boo! :(

Rachel--24 Collaborator
Rachel,

Hope your phenol experiement goes well for you. :)

Thanks Andrea. :)

I think it went really well.

Of course I went WAY overboard. :rolleyes:

I just started buying the things I really wanted to try....apparantly I prefer all the stuff thats VERY high in salicylates...the worst offenders.

I'm sure it would be best to NOT start out with the foods with the highest content....but yeah...I always do things backwards....so I guess I'm sticking with that trend. :P

I got my enzymes Fri but when I went shopping for food I didnt know they'd arrived. They got shipped FAST. I didnt go back to the store and the only fruit in the house was a banana. I decided to try it even though bananas are low salicylate. I have major problems with them...but for other reasons.

The bananas are high in histamines...I'm not sure if No Fenol helps with histamines or not. The bananas are also "yeasty". I didnt have anything else to "test" though.

I took one capsule and I still got some symptoms from the banana...but maybe less than what I'd normally experience.

Yesterday I found something else in the house I could test. I had a can of Jennies macaroons. I can NEVER eat these...I've tried a few times but usually get really messed up from just ONE of them. Last time I tried I was reacting after the first bite.

They have honey which is very high in salicylate and I cant tolerate at all...then theres coconut which is either high or moderate...then theres egg whites which dont contain salicylate but high in histamines.

So I ate 1 of them in the morning after taking one capsule of the No Fenol....I didnt feel anything so I ate 2 more. I never really felt anything but I stopped eating them because I got scared.

I also noticed that I seemed to tolerate tortilla chips better than normal.

Later on I got crazy and started eating the macaroons again. OMG...I ate about 10 of them!! :blink:

I did end up feeling some symptoms but I felt like I'd been able to eat ALOT before getting there.

Also, my symptoms didnt get worse like they normally do....but I've also been taking 1 or 2 epsom salt baths per day so it might be helping.

My brain didnt get all fuzzy like it normally does. :)

I decided it might be better for me to take 2 capsules before eating things that have high amounts of salicylate. Some of the reaction could have been histamine because of the egg whites but I know that there was some amount of salicylates that didnt get through even with the enzyme.

I had a small amount of swelling of nasal polyps that I really think is only caused by salicylates. I never notice anything else causing those to flare up.

I think I can tolerate alot more salicylates with the enzymes but I can still exceed my tolerance...especially with the foods that are really high...like honey.

So I went shopping and bought spaghetti sauce w/ basil, strawberry sorbet, avocado, guacamole, tomato, peach jam w/ cinnamon, pears, apples, pineapple, lettuce and olive oil.

Only problem is that alot of what I bought is also really high in histamine.

Anyways, I've eaten the spaghetti sauce twice now, the strawberry sorbet 2x, half a can of pineapple, salad w/ olive oil, 1/2 of the avocado and some guacamole.

I've had some minor symptoms that seem to fade faster than normal and so far no digestive symptoms and totally normal bm. :huh:

It seems to be working but I think I'm pushing the limits with eating only foods with the highest amounts of salicylates and amines. I'm still getting some symptoms but nothing close to what I'd typically experience. Uusally only one macaroon would have done me in and the rest wouldnt even be a possibility!

I'm gonna start toning it down and choosing some of the fruits and veggies that are "low" or "moderate" and see if I get any symptoms at all.

I also ordered more enzymes from the same company. I'm going to be taking 3 different capsules which will cover most things.

Its only one more week till I see Amy! :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - SaiP replied to SaiP's topic in Coping with Celiac Disease
      2

      Dangerously underweight, Perfect gluten free and insomnia

    2. - trents replied to SaiP's topic in Coping with Celiac Disease
      2

      Dangerously underweight, Perfect gluten free and insomnia

    3. - cristiana replied to sillyyak52's topic in Coping with Celiac Disease
      1

      Family education

    4. - sillyyak52 posted a topic in Coping with Celiac Disease
      1

      Family education

    5. - SaiP posted a topic in Coping with Celiac Disease
      2

      Dangerously underweight, Perfect gluten free and insomnia


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,154
    • Most Online (within 30 mins)
      7,748

    Rowan CP
    Newest Member
    Rowan CP
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      69.9k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • SaiP
      Hi Trents  Many thanks for the response. My average intake ranges from 3000 - 4000 calories per day. In regards to carbohydrates, the majority of my calories are coming from white rice. I eat around 2000+ calories of white rice per day, so definitely not low in carbohydrates. I was thinking of adding sweet potatoes to the diet. Yes, fats are low, looking into it. I've seen people complain about the same issue in 3-4 threads, but there hasn't been any solution. I was thinking of eating the same diet as stated above and each day, eat small pieces of toast to see, by how many hours my sleep improves.  What makes you think gluten widrawal would subside? Is this insomnia happening because maybe I've been a asymptomatic then symptomatic celiac all my life and the body is "shocked"? There seem to be almost no information on gluten widrawal and insomnia anywhere.    
    • trents
      Welcome to the forum, @SaiP! Have you been officially diagnosed with celiac disease or are you self-diagnosed? What is your average calorie intake per day? Your diet seems to be low in carbohydrates. The only carbohydrate rich food in your list is the white rice. A snack high in simple carbohydrates before retiring for bed at night may help with sleep. Can you do potatoes? Also, tryptophan is reported to help with sleep. Turkey meat is a rich source of tryptophan.  Also, your diet would seem to be low in fats and oils. Apart from the avocado, there is not much in your diet to supply this vital category of nutrient.  Your theory about the connection between gluten withdrawal and insomnia seems reasonable. Especially since you have experimented with it. Gluten withdrawal should subside in a few weeks I would think.
    • cristiana
      @sillyyak52 Welcome to the forum! I'm just about to go away for a couple of days but read this and just had to reply.  I am so sorry for what you are going through... it is really tough. Perhaps finding a short video online which explains the seriousness of celiac disease might help.  Just sit your family down and say, "Please just watch this one video with me."    There is one, here for example, on Coeliac UK, which I think is convincing - What is Coeliac Disease? https://www.coeliac.org.uk/healthcare-professionals/resources/videos-for-newly-diagnosed-patients/?&&type=r&set=true#cookie-widget I was watching a TV comedy programme we have in the UK over Christmas called Doc Martin.  If you get this programme where you live, there is a case on the final ever episode (Christmas 2022).  The seriousness of celiac disease is explained in that episode,. Perhaps watching something rather than reading would help?  But if you are after something short to read, I am not sure what country you live in but you might be able to find a coeliac charity that produces pamphlets, or perhaps your GP could let you have something?  Perhaps even better, would you be able to attend the GP surgery with your mother and get your GP to explain the seriousness of not complying with the diet? Cristiana
    • sillyyak52
      I was diagnosed with celiac disease just over a year ago. I never had any gastrointestinal symptoms before I started eating gluten free, and the diagnosis did come somewhat as a shock. The symptoms that led to my diagnosis were fatigue, and an ongoing Iron and Vitamin D deficiency that worsened even when taking supplements. I visited my GP with these symptoms, which consequently led to a positive celiac blood test and eventually a positive biopsy. Since starting the gluten free diet, I no longer have any deficiencies or unexplained fatigue. When I am glutened now, I experience bloating, severe constipation (that often affects my sleep!) and an onset of fatigue.  My family does not believe that I actually have celiac disease, and thinks that all these symptoms are a 'placebo' effect of being told the 'wrong' diagnosis. Ever since my diagnosis, they have constantly been telling me that I should seek a second opinion. I really don't see the point of getting a second opinion. I trust that the blood test and biopsy were accurate, and the improvement in my blood tests, fatigue and the symptoms I experience now when I now accidentally consume gluten are enough for me. On top of that, if I were to seek a second opinion now, I believe I would need to do a gluten challenge to get an accurate diagnosis, which I am definitely not willing to do just to please my family.  Because they don't believe in my diagnosis, they think that I take the diet 'too seriously'. They are always comparing my celiac disease to my siblings' mild peanut allergy, and it is so exhausting trying to explain it when they just look at me like I am crazy. For example, since my siblings can eat products with 'may contain peanuts' with no issues, they tell me I am ridiculous for avoiding 'may contain gluten' products when possible.  I am also very careful about cross-contact in restaurants, which they will make similar comments about. I have been told are that "I need to stop being so fussy because I live in the real world". Recently, when I did not want to buy my birthday cake from a local bakery that confirmed their gluten free items are not coeliac-safe, my family told me "Well, who cares? They said it's gluten free. What more could you want? Do you need to take them to court to prove it's gluten free so you'll eat it?" It is truly so upsetting that after a year they have made no effort to understand celiac disease, and why I am so strict or 'fussy'. I have thought about giving them information to read, but my mom never ever reads anything. Not even her own emails, and will often make me read things and summarise them for her. She is honestly the one who is most difficult and very obviously still sees my celiac disease as something that I choose to believe.  How do you deal with people close to you who just refuse to understand? Are there any resources anyone could recommend for families that are short and easy to read?
    • SaiP
      Hi guys,  I have been reading this forum for quite a while now, so I decided to create an account and post my story.  I've had celiac disease since September 2015 and yet over the years i have still eaten gluten and gradually went from 65kg to 43kg in a 9 year period. I am severely underweight and  and decided to go gluten free. Age - 34, Male  Weight - 94lb - 43 kg (look like a skeleton, ribs showing etc) Height - 170cm Main symptoms - Severe weight loss + severe brain fog Allergies - (all life threatening) - eggs, nuts, peas, lentils, sweetcorn and many antibiotics. I am on a 100% strict gluten free diet (all made at home) i.e. I only eat:  cooked chicken thighs (with salt+pepper) White rice Bananas, apples, avacados  Brocolli, spinach, beetroot Tuna Water After trying this diet for a week I suddenly developed severe insomnia and can barely get 1-2 hours of sleep, however when I start eating gluten again, my sleep is perfect. I have seen other threads on this forum from people experiencing the same thing, and other people recommending e.g. B12, magnesium etc. However, I highly doubt this insomnia is caused by a lack of vitamins+minerals. I am thinking this insomnia is caused by some kind of gluten widrawal. I am now eating small amounts of gluten daily to see whether the insomnia will improve and gradually reduce the amount of gluten, so my body gets used to the sudden change and the insomnia will stop I am fairly confident this approach will work,  but unsure. The main issue is, I am dangerously underweight now, but sleep is much more important, so I am in a conflicted situation. Your thoughts? Thanks!  
×
×
  • Create New...