Omg...i Might Be On To Something

[Nyxie63]

Nyxie, sorry about the allergies. Are you having all this sent to L. and Dr. H? I'm just curious what they think of it all.

I haven't talked to the holistic MD yet, so I dont' know if they've contacted her about doing the partnership thing with my treatment. Think it would be a good idea to fax my results to L?

OMG! You react to EVERYTHING! I can't wait to hear what your holistic MD has to say! LOL! I would LOVE to hear what s/he says for you to eat! Let us know, okay?

They've given me a diet, which excludes the foods I have high reactions to and rotates the foods I have moderate reactions to. It doesn't take the candida diet into account at all, so I'd have to do quite a bit of tweaking.

On the bright side, they also tested carrots, onions, lettuce, lemons, blueberries, and cucumbers and I don't react to those at all.

Will definitely post what the holistic MD says. This is going to be interesting.

Well I am very discouraged

My outbreak kept going and going, it turned from hives into full blown angioedema, and it was as severe as they have always been.

I am obviously not able to detox and I can't get on with treatment until I am able to detox

I'm sorry, Julie. Hope you find something that works, and soon.

----------------

Oh yeah! Met the cutest couple at allergy testing. We had the same time slot for all 4 weeks, so we did a lot of talking. What else are you going to do while waiting for more needles? I'm pretty sure he's got DH (has a rash all over) and and he tests at the top of the scale for gluten.

They just found this site yesterday. Yay! Nice peoples.

[CarlaB]

Nyxie, yeah, I'd fax the results to L. I think it's important for them to know all that's going on.

At least you'll be able to rotate those foods! There are some foods I rotate, too, not many though.

[AndreaB]

Im in the process of looking into get an Ro water system for the whole house. But they are so expenisive, does anyone know a place were they are more affordable then 3,000 and up. Or do i need an whole house filter, or would i be ok with an filter in the kitchen and in the bathoom shower.

paula

The guy we bought our kitchen water filter system from does sell a whole house filter for a reasonable price. I can pm you the site if you want to check his products out. He has excellent customer service as well.

Nyxie,

I'm sorry about all you're reacting too. I still think it's the lyme that's causing your food problems.

[AndreaB]

Well I am very discouraged

My outbreak kept going and going, it turned from hives into full blown angioedema, and it was as severe as they have always been.

I am obviously not able to detox and I can't get on with treatment until I am able to detox

I'm sorry Julie.

[confused]

The guy we bought our kitchen water filter system from does sell a whole house filter for a reasonable price. I can pm you the site if you want to check his products out. He has excellent customer service as well.

Nyxie,

I'm sorry about all you're reacting too. I still think it's the lyme that's causing your food problems.

yes please do.

thanks a bunch

paula

[Nyxie63]

Nyxie, yeah, I'd fax the results to L. I think it's important for them to know all that's going on.

At least you'll be able to rotate those foods! There are some foods I rotate, too, not many though.

You're right. Will get those results out to her tonight.

I'm sorry about all you're reacting too. I still think it's the lyme that's causing your food problems.

I'm not sure if I'll ever get a conclusive answer as to whether it's leaky gut or lyme. Not really sure it matters. Either way, I'll be on a restricted diet for quite a while and (hopefully) it'll be resolved at some point.

-----------------------

Ok, here's the run down via testing:

The foods I'm highly allergic to: beef, pork, tuna, corn, and wheat. These have to be eliminated completely. I've already eliminated the corn and wheat.

The foods I'm moderately allergic to and can rotate: almonds, chicken, coffee, eggs, garlic, gluten(?), green peas, milk, rice, soy, sugar, tomato, green pepper, celery, sesame, garbanzo, mushrooms, cabbage, strawberries, and spinach.

Out of idle curiosity, does anybody notice any trends among these foods? Oxalates or whatever???

I'm curious but don't know enough about any of this to know. Will be starting my homework tonight.

[ShadowSwallow]

Well I am very discouraged

My outbreak kept going and going, it turned from hives into full blown angioedema, and it was as severe as they have always been.

I am obviously not able to detox and I can't get on with treatment until I am able to detox

I'm sorry Julie. :(

[Rachel--24]

The foods I'm highly allergic to: beef, pork, tuna, corn, and wheat. These have to be eliminated completely. I've already eliminated the corn and wheat.

The foods I'm moderately allergic to and can rotate: almonds, chicken, coffee, eggs, garlic, gluten(?), green peas, milk, rice, soy, sugar, tomato, green pepper, celery, sesame, garbanzo, mushrooms, cabbage, strawberries, and spinach.

Heres some sites to look at...

For high histamine foods..

Open Original Shared Link

Salicylates

Open Original Shared Link

Open Original Shared Link

Oxalates

Open Original Shared Link

Open Original Shared Link

[Rachel--24]

Well I am very discouraged

My outbreak kept going and going, it turned from hives into full blown angioedema, and it was as severe as they have always been.

I am obviously not able to detox and I can't get on with treatment until I am able to detox

Aww Julie.

I was hoping that wasnt why you havent been posting much. Those damn outbreaks!!

I hope you feel better soon. We miss you!

When you feel up to it read some of my latest scientificness about PST and the sulfation pathway. I thought about you when I was researching this stuff. If you dont wanna go back and you're intertested just let me know...I'll repost it for you.

[Rachel--24]

would you happen to know an enzyme high in proteases?

Right now I'm only taking No Fenol but I already ordered AFP Peptizyde (high in proteases) and Zyme Prime.

I'll take all 3 of them if they end up testing well for me in ART next monday.

i was looking too and i saw this "Dr Rosemary Waring found that most people with autism conditions have a deficiency in a key detoxification pathway."

Its the PST (phenol sulfur-transferase) that is found to be deficient in the majority of autistic kids. Its thought to be caused by a shortage of useable sulfates in the body.

The PST sulfation pathway is necessary for the breakdown and removal of certain toxins in the body. This includes the processing of a type of chemical called a phenol. Phenols are a regular and necessary part of life. All foods contain some phenolic compounds. However, some foods have a much higher content than others do.

If the sulfation pathway is not functioning well, a person may not be able to process out the phenolic compounds as fast as they consume them. There is a cumulative effect. When the phenols start backing up in the system, it can cause a myriad of negative reactions. Symptoms of phenol intolerance include night waking, night sweats, irritability, eczema, and other skin conditions. The symptoms of phenol intolerance and yeast may be very similar because they both involve the body trying to deal with toxins.

This detoxification pathway processes other phenolic compounds including salicylates (salicylates are a subset of phenols), artificial food colorings, artificial flavorings, and some preservatives. Besides requiring PST, research has found the salicylates further suppress the activity of any PST enzyme present, making matters worse. Food dyes also have been shown to inhibit the PST enzyme.

detox issues came up, do you think having problems with that can cause a lot of neuro/mental problems? because it sounds like that would make sense, and i feel like those issues are much worst than the rest...and a few pages back, you posted the smallest sulfur thing can cause nerve/brain problems, and that could be a reason why i'm not detoxing right, right?

Anyone who has impaired detoxification (for whatever reason) is going to have some neuro/brain symptoms. Its because the body cant process out the toxins and they accumulate...causing these types of symptoms.

[Nyxie63]

Rachel,

Thanks for the links!

[confused]

Court update:

She didnt show, an warrant for her arrest, says she will turn herself in on thursday. But doubt it will happen. She is such an ......................................

paula

[dlp252]

I guess that means she's going to jail then?!

[CarlaB]

Court update:

She didnt show, an warrant for her arrest, says she will turn herself in on thursday. But doubt it will happen. She is such an ......................................

paula

What a shocker .... I hope they find her.

[confused]

I guess that means she's going to jail then?!

What a shocker .... I hope they find her.

Yep she is going to jail, judge was so pissed, i was trying not to laugh cause i didnt want contempt of court on me, but it is so hard for me to keep my mouth shut lol She was giving the judge so many excuses on the phone and the judge was not buying any of them. She even asked her for documents stating that she is being treated for depression. Once she turnes herself in we will go back to court in april and she will be sentenced then. Sad thing is i have to look over my shoulder now not knowing when she will come down here to turn herself in.

Hey julie do you want to go track her down for me lol.

paula

[confusedks]

Paula,

I'm glad your court day is over. That sounds very stressful.

[Rachel--24]

Heres more info about what can go wrong when sulfates are deficient in the body...especially with regards to the digestive system/intestinal lining.

The benefits of magnesium sulfate appear to be linked to an enzyme system known as phenol sulfotransferase (PST), which was shown to be functioning at sub-optimal levels in more than half of the autistic children tested by Dr. Rosemary Waring in England

Normally, PST is involved in a process called sulfoconjugation, whereby a group of potentially harmful chemicals known as phenols are attached to sulfate and thereby eliminated from the body. When there is a deficiency of sulfate in the bloodstream, as was shown to be the case in the majority of autistic individuals evaluated in another study, phenolic compounds may build up in the brain and nervous system, and this in turn can interfere with neurotransmitter function.

Sulfate deficiency and the resulting impairment of PST activity may explain why many children with autism are sensitive to a variety of phenol-containing foods, such as apples, grapes, chocolate, food colorings, and some herbs and spices.

Besides its adverse effects on neurotransmitter function, impaired sulfation can have a variety of other harmful consequences, including decreased production of peptides, bile acids, CCK, and possibly secretin.

Since all of these are involved in digestive function, there may be a resulting decrease in the absorption of certain nutrients from the intestinal tract. It is well known that maldigestion and malabsorption are significant problems in many children with autism.

Perhaps the most damaging consequence of impaired sulfation is on the health of the intestinal lining. Normally, the intestinal tract is coated with a layer of mucoproteins that contain important immune cells (specificially IgA) and provide protection for the integrity of the gut wall. Since these mucoproteins are actually sulfated glycoproteins, a deficit in the sulfation process can leave portions of the gut wall exposed, resulting in increased intestinal permeability (or

[Rachel--24]

Obviously this wouldnt be the case for everyone...but since most (if not all) people with chronic lyme also have issues with mercury I'm wondering if the main reason Lyme is so difficult to control is because of dysfunctional pathways and other metabolic process due to heavy metals.

Everyone with chronic Lyme has difficulty with detoxification....otherwise they would not be sick. If detoxification werent an issue none of us would be suffering. If pathways are faulty it would explain why metals remain in the body or continue to build-up even after treatment.

It would also explain why so many people have relapses after discontinuing abx treatment for Lyme. If the Lyme problem exists because of impaired detoxification...it seems likely that it will return for the same reason.

Just recently while I was in the IV room (and actually awake and alert) a patient had come in for bloodtests because all of her Lyme symptoms returned after successfully treating more than a year ago. She had been symptom free for over a year but little by little all the symptoms returned and she was back for more treratment.

That seems to be the case for alot of those with chronic lyme. I talked to one guy who is being treated for Lyme. He said mercury is an issue but he cant tolerate any treatments to address it...so he isnt doing anything for it....his main treatment is for Lyme.

I think by not addressing the impaired detoxification so that the metals can be more effectively chelated....the lyme situation can go on forever. The immune system would never fully recover with the burden of metals and other toxins.

People who do not have impaired detoxification dont have chronic lyme and other chronic infections. I think detoxification would be one of the main reasons some people are living with Lyme in their bodies without ever getting sick...and some of us are debilitated by it.

As Rinne would say....Lyme probably wouldnt be such a menace without all of its buddies (esp. the metals) to back it up.

Where are you Rinne??

Obviously the world is more toxic now than it ever was before and we are exposed to more environmental mercury and other harmful toxins more than we ever were. I think its probable that the increase in Lyme, autism and all types of chronic illness are a direct result of the toxic burden and its effect on the immune system as well as the body's ability to detoxify itself.

[Rachel--24]

This is a possible explanation for why some of us do not improve or have a negative response to glutathione.

Glutathione itself can be used in detoxification, but that function appears to be dependant on the presence of sulfated glucosaminoglycans (GAG'S).

Glutathione is a key to detoxification and it requires sulfur.

Detoxification is dependant on the role that sulfur plays in converting to sulfates and in being readily available for the production of glutathione.

This is a likely possibility for many of us who have difficulty detoxing, unhealthy intestinal environment, chronic infections, etc. The problem with toxic metals and faulty pathways is not limited to autism.

[Rachel--24]

I believe that in time the studies that are being done will reveal enough answers and that these conditions will be more understood and better treatments will be made available.

Dr. Wakefield found that the ileum of the intestinal tract lacks sulfur which can lead to "Leaky Gut Syndrome".

Hepatitis B vaccinations inhibits sulphation chemistry for one week in the typical person.

What type of problems would this cause for someone who may already have deficient sulfation due to mercury, genetics or some other cause??? Would the pathway become completey blocked? If I'm not mistaken this is the vaccination that babies are given at birth.

Sulfate is needed to release pancreatic digestive enzymes.

Many enzymes are impaired is sulfur levels are low.

Even if sulfur levels arent low but the body is unable to convert to sulfate....enzymes such as PST are impaired.

[Rachel--24]

Besides No Fenol in addition to other enzymes and possible use of magnesium sulfate cream I'm also planning on asking Dr. Amy about homeopthaic sulfur for aiding in mercury excretion.

I cant tolerate sulfur (its possible that I'm unable to convert to sulfate so it builds up to toxic levels) but homeopathic sulfur shouldnt have that effect and could be very beneficial.

[rinne]

........

As Rinne would say....Lyme probably wouldnt be such a menace without all of its buddies (esp. the metals) to back it up.

Where are you Rinne??

Hi, I'm here. I heard you.

:wub:

I've been wondering how you are all doing?

Rachel, great scientificness as usual, Carla, lovely photo, I see there are many new faces, how wonderful.

I continue to improve, this spring I go into rinne bar production with a co-packer and I am working on an idea that might not bring them into a grocer near you but would instead provide a kit for making them and a variety of recipes that could be adapted for particular diets.

I haven't been on-line so much for a while but Rachel you made me feel so special I may just have to come back more often.

[Rachel--24]

I haven't been on-line so much for a while but Rachel you made me feel so special I may just have to come back more often.

awww...you ARE special Rinne!!

We would love to see you here more often. Of course you are always missed but I just *knew* you would come back with some new and exciting news about your Rinne bars!

I'm working on getting my body fixed so that I can enjoy them in ALL flavors!

[rinne]

Wow, I didn't think that you would still be up Rachel.

I'm too sleepy to say more but I will be back.

[AndreaB]

I too, would like to see more of you Rinne.

And I'm not the only one.