Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something


Rachel--24

Recommended Posts

aprilh Apprentice
Ok...so heres where the molybdenum fits in with the other stuff I've been talking about.

Very interesting info Rachel. What I think I need to watch for is over-intake of Molybdenum since it can raise uric acid levels. I have been on it a while. Although, until I get the toxins out of my liver, I probably will still need it.

My ND told me that when I am dealing with sulfites (as in red wine) or more sulphur in the diet, to up my intake of molybdenum and NAC. I was feeling a reaction when having a glass of wine or eating a lot of garlic. Now I don't have too much of an issue. I have to watch the red wine though :P

I am not sure if you tried NAC on its own or not but it might be worth trying along with the Molybdenum for full affect. I reacted to NAC by itself but do fine on it when taking it with the other liver support.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 33.4k
  • Created
  • Last Reply
miamia Rookie
I don't know how I missed this post April. Thanks for the update, I have been wondering how you and your daughter have been doing.

Glad your daughter's leg pain is better. My mom used to use a tens unit in her practice, glad it is helping.

You know yoga moves toxins, and then hot yoga can be stressful to a body with burnt out adrenals, so I wonder if that is why you felt not so great afterwards.

Have you done an ASI recently? I am doing mine and sending it in at the end of the week.

Thanks Paula for letting me know your bath routine.

Glad there is some progress with the water situation, I don't blame you for being upset. This could happen anywhere at any time. I'm a little alarmed about what is in our water supply in general, makes you think.

Is this the most you have done in a stretch like that since getting sick Carla (the back to back trips and several days in a row)? If so, what progress. It's probably par for the course that you are feeling a little fatigued, but good news it didn't take you completely down and flatten you to where you can't function.

I know you don't smell like a big stinky guy! So the sauna must do something, maybe getting the toxins (and the odor causing bacteria) out with the sweat instead of having them build up or trapped or something.

Thanks Kassandra.

I have a little radio I put on the side of the tub so I don't get bored. I just physically can't stay in, at that 12 minutes I'm like get me out of here.

Julie-

I owe you a PM-

I do epsom salt/ baking soda baths everyday. I use 2 cups salt/ 1 cup soda and i stay in for anywherer from 30-45 minutes. I live for them I cant tell you how much they help me. They may be the only thing that does!!

confusedks Enthusiast
I just wanna point out that spitting into a small tube (and filling it to the line) is not as easy as it looks!

Maybe its just me but I found it to be quite challenging. :unsure:

It was a PITA!!! :P

LOL! I did one for candida, and it was really hard! I would rather it over a blood draw though! :)

Rachel--24 Collaborator
I love lamb it is one of the very few foods I can tolerate- it is a weird phenomenom but I don't question it

I am just happy about it

I love lamb too! Unfortuntely I dont have that same phenomenom with it. It hates me. :(

What happened with the boy? :P You know, the one you had a crush on? He used to be taking up all your thoughts! :lol:;)

Hmmm...I dunno about ALL my thoughts. I think food is on my mind quite a bit too. :P

Carla, my "crush" is moving to another country in about 48 hours. So yeah...my head is buried in scientificness. Sulfites, PST enzymes and molybdenum deficiencies have been pretty good distractions for me this week. :D

My ND told me that when I am dealing with sulfites (as in red wine) or more sulphur in the diet, to up my intake of molybdenum and NAC. I was feeling a reaction when having a glass of wine or eating a lot of garlic. Now I don't have too much of an issue. I have to watch the red wine though

I think if a person becomes sensitive to sulfites because of an inability to convert sulfur to sulfate...the NAC would not be helpful and would likely make the situation worse. It really would depend on the individuals biochemistry.

If you're doing ok with dietary sources of sulfur as well as NAC you are probably not having too much of an issue with the enzyme...or possibly the supplementation of the molybdenum is helping enough that you no longer experience symptoms.

I'm not expecting to have those kinds of results with the molybdenum....although I would certainly welcome it! We'll see what happens. Right now I'm just hoping for some small improvements.

I think some of my enzyme systems are pretty severely impaired. Any improvement in this area should allow for more food choices....that would be a huge blessing to me. :)

I am not sure if you tried NAC on its own or not but it might be worth trying along with the Molybdenum for full affect. I reacted to NAC by itself but do fine on it when taking it with the other liver support.

NAC would not be helpful for me at this time. I think that I'm unable to convert sulfer to sulfate which is one of the reasons I'm wanting to try the molybdenum. Supplements (or foods) containing high amounts of sulfur make me feel alot worse.

NAC doesnt test well for me and the couple times I tried it it did not go over well. Same with glutathione and whey protein (which contains sulfur compounds such as cysteine).

Dr. K. has talked alot about the risks of NAC in patients who are mercury toxic. Even if I could tolerate it I dont think it would be something I'd take until later on in my treatment. Right now I think NAC would cause more harm than good.

AndreaB Contributor

Boy! Just caught up again......another day I didn't get updates.

I didn't check in since it has been quite lately.

Rachel--24 Collaborator
I do epsom salt/ baking soda baths everyday. I use 2 cups salt/ 1 cup soda and i stay in for anywherer from 30-45 minutes. I live for them I cant tell you how much they help me. They may be the only thing that does!!

Hi Mia. :)

How the heck do you stay in there for 45 minutes?? :blink:

I get really impatient and bored after about 10 minutes. I have to force myself to stay in after that. The only time I'm not thinking about how long I have to sit in there is when I'm on the phone. :P

Hehe...yes....my phone even goes into the bath with me. :ph34r:

I dont know what I would ever do if it fell in the water though! :huh: OMG...that would be a true heinosity! :o

Green12 Enthusiast
The conference on Lyme induced Autism is available to watch FREE online!!! Open Original Shared Link

Many famous names are speaking!

Thanks Carla.

xenobiotics are neurotoxins. Heres a list which explains (from Dr. K.)

The one that I havent ever tried is molybdenum...even though I've read alot about it and have always been curious if I might benefit from it. I did have it in my mineral IV's but I had other minerals as well...including lots of copper.

Elevated copper can reduce molybdenum so I want to try the molybdenum on its own. I ordered some earlier today. I wont be able to have it tested any time soon so I'm just gonna take a chance with it.

I had elevated copper/copper toxicity show up in my hair analysis. Did you also Rachel?

Then I noticed that some of the supplements I was given to address my deficiencies/excesses that were identified by the hair analysis had copper in them, which confuses me, I need to remember to ask my practitioner about this.

Just had to comment on the Botox listed under Biotoxins, just think about how many people are injecting this into their faces.

Soooo...I will start supplementing the molybdenum asap and see if it helps with the sulfur issue.

I think it fits...especially since I'm presenting with problems with sulfur metabolism as well as having had decreased levels of uric acid in testing. <_<

I suspect that if my urine was tested I'd still have low levels of uric acid as well as high levels of sulfur and low levels of sulfate (due to an inability to covert sulfur to sulfate).

and just think....if I'd never gone to that flippin dentist I wouldnt have the slightest clue as to what uric acid is...or even sulfur for that matter! I get to learn about all kinds of neat things cuz of my body being totally broken. :rolleyes:

Julie...yup when I get better I really really want to be on the other side of this whole thing! I would love to be able to take this whole experience and all the scientificness and do some good with it. :) I have alot of interest in autism particularly.

Thanks for the scientificness, all very interesting. It sure sounds like you are onto something, I hope you can get the right tests in order and start supplementing with some of these things and supporting what needs to be supported.

I think you would be very good at being on the other side of all this and using what you have learned to help others, the autism angle would be a perfect fit.

I can totally relate to this Julie. I'm so sorry that you have to be feeling this way right now. Hang in there....I think that you're doing better than I did when I was faced with tough times. I admire your strength. :wub:

P.S. I owe you a pm. My head has been buried in scientificness. :ph34r:

Thank you, I appreciate that.

I can tell you have been buried in the scientificness, these are some exciting developments.

Julie, I want to add my voice of encouragement to what you've been already given. I also understand that sense of not caring about stuff around. For me it seems like more a lack of energy to care or give things attention; as soon as I feel a little better physically my "caring" comes right back to normal.

Your recent flare has got to be discouraging after you thought you were making progress.

What I appreciate is that even when you are struggling, you are here giving support to the rest of us. Thanks.

Thanks Sherry.

You are right, when those flares pass and things even out a little bit there is more inner strenght to push on.

That's what is so great about this thread, outside of the scientificness and information shared, the support.

Exactly. You can gauge how well I'm feeling by looking at how clean my house is. Right now, it's medium messy.

I slept 10 hours both last night and the night before ..... plus a nap yesterday. I feel good, but really tired. I'm moving slow again this morning, but since I feel well at night, I think it's an adrenal issue. I also ran out of my adrenal herbs and am waiting for them, so that doesn't help any either!

So, the progress is, it's my adrenals, not the Lyme. :D

Your body needed that sleep, glad you got caught up!

Are you finding the adrenal herbs are helping with energy levels btw? It's the Cowden herd tincture right? I do notice a little bit of a difference when I am taking them, I haven't been able to take them for 2 weeks because it will interfere with the ASI test, but I am looking forward to getting back on them.

I meant to ask you earlier is Chloe still gluten-free? I haven't seen her posting in a long time, but I don't really pay attention to a lot of the other categories so maybe she still is.

oh, and I'm going to try and get as much information as I can about the test result from the company, but I think they're limited in terms of what types of questions they can answer and the woman I talked to when I called wasn't very helpful... I plan to have another blood draw done in the next few days to see if the test results are replicated and I'll take it from there...

thanks for checking some info out for me though...

Let us know what you find out Charlie.

I do epsom salt/ baking soda baths everyday. I use 2 cups salt/ 1 cup soda and i stay in for anywherer from 30-45 minutes. I live for them I cant tell you how much they help me. They may be the only thing that does!!

Mia, how are you feeling?

I would love to be able to stay in for that long, I actually like relaxing and soaking in the tub, especially when I have some good music on.

I get the water as hot as I can stand and the heat gets to me I think. Also some times my heart rate goes up so I have had to work up slowly.

So glad they are helping you!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Green12 Enthusiast
I did this test.

I just wanna point out that spitting into a small tube (and filling it to the line) is not as easy as it looks!

Maybe its just me but I found it to be quite challenging. :unsure:

It was a PITA!!! :P

LOL! I did one for candida, and it was really hard! I would rather it over a blood draw though! :)

I didn't even think about that, it probably is a challenge to get that much salive in there, and even more so since I seem to have deficient amounts of saliva production.

FUN.

I'm with you though Kassandra I would rather try to spit in a little vial than get a blood draw anyday. I so dread the blood draws.

CarlaB Enthusiast
Carla, my "crush" is moving to another country in about 48 hours. So yeah...my head is buried in scientificness. Sulfites, PST enzymes and molybdenum deficiencies have been pretty good distractions for me this week. :D

:( :( :( I wondered where this spurt of scientificness came from! :( But I'm happy to know it's not because you're feeling worse.

How the heck do you stay in there for 45 minutes?? :blink:

I get really impatient and bored after about 10 minutes. I have to force myself to stay in after that.

Yeah, me too. That's part of the reason I never sauna and take an epsom salt bath the same day. I listen to XM radio on my computer when I'm saunaing, bathing, ecoffeeing, etc.

Your body needed that sleep, glad you got caught up!

Are you finding the adrenal herbs are helping with energy levels btw? It's the Cowden herd tincture right? I do notice a little bit of a difference when I am taking them, I haven't been able to take them for 2 weeks because it will interfere with the ASI test, but I am looking forward to getting back on them.

I meant to ask you earlier is Chloe still gluten-free? I haven't seen her posting in a long time, but I don't really pay attention to a lot of the other categories so maybe she still is.

Well, we started focusing on adrenals, thryoid, and detoxing at the same time. I switched thyroid meds at the same time I started Full Cowden, including his adrenals. I also started Xymogen Adrenal Essence at the same time. I had a huge increase in energy/stamina with this.

In the beginning back in January, I realized I needed lots of sleep, and needed to take the morning very easy, then I'd have normal energy the rest of the day. If I pushed it by becoming active upon waking, after a few days, I'd be fried again.

So, after the two good night's sleep, and the day of resting and napping yesterday, I took it easy this morning and have an almost normal energy level this afternoon .... I was able to unpack and do some laundry. :) I'm not back to where I was, but I can see I will rebound from this in a couple more days. :D Now I know better, LOL. Adam told me on the phone earlier that I even sounded better.

I read two good books on adrenals before my Lyme diagnosis .... back then I was diagnosed with adrenal fatigue, but addressing it as adrenal fatigue didn't work because of the Lyme. Now that the Lyme is under control, the adrenal fatigue stuff seems to help.

Chloe went off the gluten-free diet when I did. She's also fine. It seemed to be Lyme related for both of us.

Morgan eats gluten, but probably not as much as the average person. She cannot drink beer. I had her try samento and cumanda to see what happened. Nothing. She felt no better, no worse. It was like water for her, so I don't think she has any kind of Lyme issue .... and I'm certainly not worried about her not being able to drink beer, LOL.

AndreaB Contributor
It was like water for her, so I don't think she has any kind of Lyme issue .... and I'm certainly not worried about her not being able to drink beer, LOL.

That's good.....on both counts. :D:lol:

confusedks Enthusiast
Hehe...yes....my phone even goes into the bath with me. :ph34r:

I dont know what I would ever do if it fell in the water though! :huh: OMG...that would be a true heinosity! :o

I once dropped my phone in the toilet! That was HORRIBLE! I thought I was going to die without it! LOL!!! (The reason I had it in the bathroom was because I had pulled an all-nighter and used to fall asleep in the shower...so I set my alarm. :ph34r: )

CarlaB Enthusiast

I just called Morgan .... she was napping .... tired from the weekend! I guess I don't feel so bad! :lol: :lol:

tabasco32 Apprentice
You know yoga moves toxins, and then hot yoga can be stressful to a body with burnt out adrenals, so I wonder if that is why you felt not so great afterwards.

:o

AndreaB Contributor
I just called Morgan .... she was napping .... tired from the weekend! I guess I don't feel so bad! :lol: :lol:

:D:lol:

confusedks Enthusiast

Ok, just a little venting. :rolleyes:

I was starting to feel a lot better. Got through some really tough things emotionally and was just feeling better about everything...life, my health, school, etc.

Now, I started going to my uncles' house yesterday...I got there at 12.15, then left at almost 5 PM. I am SOOOOOO exhausted today. I took a nap, and it's now 9 pm and I'm going to get into bed, to go to sleep.

I guess I just need to take things slowly and not over do things. I just felt good for a whole week which is amazing, now I feel like death, lol.

AndreaB Contributor
I guess I just need to take things slowly and not over do things. I just felt good for a whole week which is amazing, now I feel like death, lol.

Yep. :) It's easy to overdo things when you feel better. Hope some good rest will fix things up a bit again.

mftnchn Explorer

Yeah, it is frustrating to not be able to do what we want and think we should be able to do energy wise. That along with the down feelings when we are physically low has got me being reflective today.

For a class with my group of trainees this month, I am reading A Grace Disguised: How the soul grows through loss by Gerald Sittser. I've just gotten started, but so far it has been really clicking for me.

We all have experienced a lot of loss with what our health issues have cost us.

Sherry

AndreaB Contributor
We all have experienced a lot of loss with what our health issues have cost us.

Very true. Sounds like a good book.

Hugs :wub:

mftnchn Explorer

Open Original Shared Link

There is a pdf on this page about bell's palsy of the gut in lyme disease. Amazing reading. Talks about how celiac disease can be mimicked.

CarlaB Enthusiast

Andrea and Julie thanks for the picture comments. :)

Sherry, sounds like that book would encourage reflectiveness. :) I've read an article on Bell's Palsy of the gut before .... it rang a LOT of bells for me!

I once dropped my phone in the toilet! That was HORRIBLE! I thought I was going to die without it! LOL!!! (The reason I had it in the bathroom was because I had pulled an all-nighter and used to fall asleep in the shower...so I set my alarm. :ph34r: )

I didn't comment on this before but it's SO FUNNY!!! :lol: :lol: :lol:

Now, I started going to my uncles' house yesterday...I got there at 12.15, then left at almost 5 PM. I am SOOOOOO exhausted today. I took a nap, and it's now 9 pm and I'm going to get into bed, to go to sleep.

I guess I just need to take things slowly and not over do things. I just felt good for a whole week which is amazing, now I feel like death, lol.

The hardest part about having good days once in a while is learning not to overdo it. It happened to me back when I felt like you and would have good days mixed in, then it happened to me again when my doctor said I was doing better and took me off many of the meds.

You need to try to use some of that found energy for healing. Healing takes a lot of energy .... don't waste it all on school work!

I'm still resting a lot after my overdoing it last week .... but I did manage to get three loads of laundry done .... Adam came home from work and asked what I cleaned, when I said I just did laundry, he said then I wasn't really doing a lot better yet. :lol:

confusedks Enthusiast
I didn't comment on this before but it's SO FUNNY!!! :lol: :lol: :lol:

.........

The hardest part about having good days once in a while is learning not to overdo it. It happened to me back when I felt like you and would have good days mixed in, then it happened to me again when my doctor said I was doing better and took me off many of the meds.

You need to try to use some of that found energy for healing. Healing takes a lot of energy .... don't waste it all on school work!

Yes, those were the good ol' days...sleep in the shower! :lol:;)

I am usually pretty good about slowing down when I feel good, but I have felt really good, so I went WAY overboard. Like right now, I'm supposed to be at my uncles house, but I couldn't get out of bed, so I'm still in bed.

And, I guess I was REALLY tired because I fell asleep at 10 last night, and JUST woke up. Yay! :P Sleep is SO important for me...

tabasco32 Apprentice

Does anyone have a rebounder? Julie I know you have one. When you use it do you get jarring headaches afterwards? Anyone? I do and I feel moody. :angry:

Also I got diarrhea today. I had some organic animal cookies on Sunday. I don't know if maybe it was a real, real long delayed reaction? Dumb, dumb, dumb, dumb, dumb..........

dlp252 Apprentice
Does anyone have a rebounder? Julie I know you have one. When you use it do you get jarring headaches afterwards? Anyone? I do and I feel moody. :angry:

I have a rebounder...I sometimes get headaches, but not all the time. It's really supposed to stimulate the lymph system and probably indirectly the liver, so that could be it.

Green12 Enthusiast
So, after the two good night's sleep, and the day of resting and napping yesterday, I took it easy this morning and have an almost normal energy level this afternoon .... I was able to unpack and do some laundry. :) I'm not back to where I was, but I can see I will rebound from this in a couple more days. :D Now I know better, LOL. Adam told me on the phone earlier that I even sounded better.

I read two good books on adrenals before my Lyme diagnosis .... back then I was diagnosed with adrenal fatigue, but addressing it as adrenal fatigue didn't work because of the Lyme. Now that the Lyme is under control, the adrenal fatigue stuff seems to help.

Chloe went off the gluten-free diet when I did. She's also fine. It seemed to be Lyme related for both of us.

Morgan eats gluten, but probably not as much as the average person. She cannot drink beer. I had her try samento and cumanda to see what happened. Nothing. She felt no better, no worse. It was like water for her, so I don't think she has any kind of Lyme issue .... and I'm certainly not worried about her not being able to drink beer, LOL.

Glad you are rebounding quickly. With the lyme being addressed I imagine you now can get to your adrenals finally and make a difference there.

That's awesome you and Chloe can eat gluten again, you guys didn't have the genes? Or are you just going by symptoms?

Beer made me very very sick. I didn't do well with alcohol in general, I think we talked about this way back when in the thread. Even if I could tolerate it I wouldn't be a drinker anyway I don't think so no loss there for me.

I once dropped my phone in the toilet! That was HORRIBLE! I thought I was going to die without it! LOL!!! (The reason I had it in the bathroom was because I had pulled an all-nighter and used to fall asleep in the shower...so I set my alarm. :ph34r: )

This is hysterical.

That must have been quite the all-nighter. I learned my lesson, I didn't drop a phone, but I've flung other things across the bathroom landing right into the toilet before, like a hair dryer for one....so now I always put the lid down before doing any tasks in the bathroom :lol:

Ok, just a little venting. :rolleyes:

I was starting to feel a lot better. Got through some really tough things emotionally and was just feeling better about everything...life, my health, school, etc.

Now, I started going to my uncles' house yesterday...I got there at 12.15, then left at almost 5 PM. I am SOOOOOO exhausted today. I took a nap, and it's now 9 pm and I'm going to get into bed, to go to sleep.

I guess I just need to take things slowly and not over do things. I just felt good for a whole week which is amazing, now I feel like death, lol.

Vent away.

I completely understand the frustrations of the ups and downs. There will be high energy days and you feel like you are getting better and maybe you are through the roughest of times, then you do more and push it.

The next thing you know you feel terrible, no energy, fried.

Figuring a balance between the two is key.

Yeah, it is frustrating to not be able to do what we want and think we should be able to do energy wise. That along with the down feelings when we are physically low has got me being reflective today.

For a class with my group of trainees this month, I am reading A Grace Disguised: How the soul grows through loss by Gerald Sittser. I've just gotten started, but so far it has been really clicking for me.

We all have experienced a lot of loss with what our health issues have cost us.

Well said Sherry.

Thanks for this book mention, sounds interesting. I am going to look into it.

Open Original Shared Link

There is a pdf on this page about bell's palsy of the gut in lyme disease. Amazing reading. Talks about how celiac disease can be mimicked.

Thanks fo rthe link.

Andrea and Julie thanks for the picture comments. :)

The hardest part about having good days once in a while is learning not to overdo it. It happened to me back when I felt like you and would have good days mixed in, then it happened to me again when my doctor said I was doing better and took me off many of the meds.

You need to try to use some of that found energy for healing. Healing takes a lot of energy .... don't waste it all on school work!

I'm still resting a lot after my overdoing it last week .... but I did manage to get three loads of laundry done .... Adam came home from work and asked what I cleaned, when I said I just did laundry, he said then I wasn't really doing a lot better yet. :lol:

You're welcome, I hadn't in a while so I figured it was about time, lol.

Excellent points Carla. I think the natural thing we want to do when we have those increased energy times is do more, which a lot of times can back fire.

I like how you said use that energy surge to heal.

So I had a weird night last night. I could not sleep and found myself watching Kate and Leopold until it was over, which was 1 am. Then I tossed and turned and tossed and turned, the next thing I knew it was 3:45 am and I hadn't had a wink of sleep yet.

I got up and had to go to the bathroom, so I don't know if that is what was keeping me awake, maybe my body working hard to try to process something out. But my mind was racing, it was on overdrive with to do lists.

After another hour of tossing and turning I figured I would get up and do something so I started making lists of all the things that were going through my mind so I wouldn't forget in the morning and turned my laptop on, hence the very early morning comment Carla, lol.

I think I finally fell asleep at 6 am. I'm a zombie today on only 4 hours of sleep.

Green12 Enthusiast
Does anyone have a rebounder? Julie I know you have one. When you use it do you get jarring headaches afterwards? Anyone? I do and I feel moody. :angry:

Also I got diarrhea today. I had some organic animal cookies on Sunday. I don't know if maybe it was a real, real long delayed reaction? Dumb, dumb, dumb, dumb, dumb..........

Lisa, sorry about the "d".

What kind of headache is it?

Is it the kind you get from doing something too high impact and jarring your body parts around, if so maybe you are jumping too hard?

I only am jumping 5 minutes a t a time so far, and not very intensely. I sometimes get a nauseous headache, I often get this after yoga too. I think it's the moving of toxins from the lymph. This could be it for you too.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,138
    • Most Online (within 30 mins)
      7,748

    JennaferH
    Newest Member
    JennaferH
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      69.9k

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Katya773
      Ohh gotcha , thank you! Makes sense why I got so sick 😕 Definitely avoiding this in the future 
    • pmarklesparkle
      Thank you, Hopeful!  I've downloaded both of those apps and will try them out.  Much appreciated!
    • Thelma Cadieux
      Thanks but I will check it out with my doctor, usually stress will trigger it,
    • Hopeful1950
      Has any doctor suggested taking a round of Dapsone?  If you have dermatitis herpetiformis, dapsone will clear it fairly quickly.  It is not a drug you would want to take forever, but when all else failed my doc had me take it as a way to determine if it was dermatitis herpetiformis.  Sure enough it worked like a miracle and itch stopped and after 2 months the rash cleared.  Then I embarked on figuring out how to eat to avoid the breakouts.  It is my understanding that once you expose to gluten, the reaction happens and antibodies are deposited in your skin.  They can blister right away or hang around for a long time and get "activated" by other things like your monthlies, pressure, stress etc.... It makes it difficult to diagnose and difficult to manage.
    • Hopeful1950
      I use an app called Spoonful where you can scan labels and it will tell you whether it is safe, questionable (and why) and also something you can substitute.  It also makes it easier to see what is on the label.  There are some ingredients that I avoid in addition to gluten. You can also search the app by a category.  I just searched on "cosmetics and a few things popped up as compliant.  I think the app is mainly focused on food.  When I first started out reading labels was a nightmare and it took me so much time at the store.  This app has really helped me when I am looking at something new.  They update frequently, and if something isn't in their data base there is an AI function where you can enter the information from the label and it will analyze it right away for you. I have used an app called Find Me Gluten Free in the past when I am traveling to find restaurants.  People's reviews are very helpful because even when a restaurant claims to be able to accommodate, often people will find out differently and they report it on reviews. Hope this helps.
×
×
  • Create New...