Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something


Rachel--24

Recommended Posts

AndreaB Contributor
I'm totally bummed, apparently Jenny McCarthy was on Larry King Live again last night with another Autism panel and I missed it! I am always interested in what they say.

I sent you something on that. :)

Sherry,

I'd be curious as to what Dr E says as well.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 33.4k
  • Created
  • Last Reply
Green12 Enthusiast
I sent you something on that. :)

Just now Andrea? I haven't received anything :huh:

edit: scratch that, just got it

Rachel--24 Collaborator

I got the results of my last provoked urine test.

The results look just like Dr. Amy had predicted. I still have all the metals coming out (9 of them)....but just barely. So yeah...the mercury is locked up. Theres no reason to continue with IV DMPS right now.

I have an appt. with Dr. S. tomorrow and I plan on asking him for some specific tests to check out certain minerals and I also want to test my uric acid again.

The minerals on my Dr.'s Data report cant really give me any conclusive answers....Dr. S. had said its pretty useless as far as determining whats really low or high.

The report actually says this...I didnt notice it until today but it states:

Urine element analysis is intended primarily for: diagnostic assessment of toxic element status, monitoring detoxification therapy, and identifying or quantifying renal waste conditions.

It is difficult and problematic to use urinary elements analysis to assess nutritional status or adequacy for essential elements. Blood, cell and other elemental assimilation and retention parameters are better indicators of nutritional status.

As with my previous 2 tests the copper was off the charts but no way to tell if its truelly elevated.

The report says...Urine analysis (provoked or unprovoked) is not an adequate procedure to assess copper stores or copper metabolism. Blood levels, erythrocyte copper content, erythrocyte superoxide dismutase activity and serum ceruloplasmin are more indicative measurements for copper status.

So...I think I wanna have this checked with the proper test to see where I stand.

My molybdenum was also elevated in this test as well as the last one. In the first test it was not elevated...but once I started the mineral IV's it went up quite a bit.

The results says that Administration of supplemental copper in high doses can result in elevated urine molybdenum; copper and molybdenum are mutually antagonistic with respect to body retention. Tungsten is a more powerful antagonist.

It also mentions that molybdenum is an essential activator of those 3 important enzymes (mentioned in my earlier post) in the body.

April...I guess tungsten can come from welding. It says that individuals doing tungsten-inert-gas (TIG) welding may episodically excrete high amounts of molybdenum (but may actually be subnormal in body tissue levels).

So I need to find out if copper is high and then try to bring it down because it may very well be impairing enzyme function. One things leads to the next.

So if copper is high and causing low molybdenum then those 3 enzymes are impaired. If the sulfur oxidase enzyme is low then sulfites cannot be converted to sulfates. If sulfates are low then the PST enzymes are deficient (causing problems with breaking down food chemicals) and the sulfation pathway is impaired. Another consequence of sulfate deficiency is leaky gut.

And then theres also the other two important enzymes that are affected. One having to do with the formation of uric acid and the other is necessary for processing aldehydes.

Rachel--24 Collaborator

For anyone who's dealing with candida this page has some good info. on candida and molybdenum.

Open Original Shared Link

Rachel--24 Collaborator

duplicate

mftnchn Explorer
Do you think the fatigue is travel related? Glad it is better today.

I don't know about the corn based grain alcohol, I hope you get some answers. Let us know what you find out.

I don't know, could be. Yesterday was pretty good, and this morning I felt quite good until I ate lunch, and then about 30 minutes after that I crashed a lot, not okay yet. I ate lima bean soup, only things in it were lamb, onion, salt and pepper. Ihave been eating this fine on occasion if I don't overdo so I don't know why such a strong reaction today. Only thing might be I have been having some inhalent allergy issues, maybe on top of that I reacted to the beans.  I am somewhat allergic to them.

I haven't heard back from Dr. E. yet.

I know that the distillation is supposed to take care of the gluten, however, I know there are people on the forum who are sensitive to it even then.

Sherry

mftnchn Explorer

Sorry for the weird font...it's fixed now. I had my browser set to type Chinese and it wouldn't switch out of that mode. I could type in English by toggling to that, but the font was totally weird. Had to close and restart...

Headed to bed...I'm too sick to stay up. I'm bummed. Everytime I think I am turning a corner--whammo. :ph34r:

Sherry


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kmps Newbie

My son and I both just tested positive for corn allergy. The ALlergist said that it wasn't bad enough to eliminate corn if we didn't care to, but that we should rotate it deffinitely.

He gave me papers on rotation which state that we can all develop allergies if we eat the same food over and over so rotation is the key to many allergies. I know a bunch of people that rotate and all their crazy symptoms went away.

CarlaB Enthusiast
Sorry for the weird font...it's fixed now. I had my browser set to type Chinese and it wouldn't switch out of that mode. I could type in English by toggling to that, but the font was totally weird. Had to close and restart...

Headed to bed...I'm too sick to stay up. I'm bummed. Everytime I think I am turning a corner--whammo. :ph34r:

Sherry

Sherry, Sorry you're feeling bad. The trip probably took more out of you than you think. I'm still not back to normal after mine, but I'm doing a better each day.

elisabet Contributor

Rachel,

Do you remember what your copper was?I mean the exact value?

thanks

dlp252 Apprentice

Hi everyone...just a drive-by hello.

I took a turn for the worse again and haven't been able to focus on anything more than a sentence or two of scientificness. :(

Makeup threads...yeah, that's about all my brain can handle right now. :P

AndreaB Contributor
Headed to bed...I'm too sick to stay up. I'm bummed. Everytime I think I am turning a corner--whammo. :ph34r:

I'm sorry Sherry. :( The travel you just undertook can tire anyone, that makes for a very long day.

Other than that, I'd keep a log of when you hit down times. Could part of it be China?

Maybe getting the R/O installed with help as well......I don't know. Lots of little things can build up to make a big thing though. Could the gua sha (or whatever it is :P) have stirred up stuff even though you looked a lot better as far as coloring?

I took a turn for the worse again and haven't been able to focus on anything more than a sentence or two of scientificness. :(

Makeup threads...yeah, that's about all my brain can handle right now. :P

Sorry Donna. I can relate to the lighter threads. :P

confused Community Regular
Hi everyone...just a drive-by hello.

I took a turn for the worse again and haven't been able to focus on anything more than a sentence or two of scientificness. :(

Makeup threads...yeah, that's about all my brain can handle right now. :P

I can so relate, im so sick and trying to figure it out.

Yesterday i started to take l-glutamine in themorning then about 3 hours later i took my b 12 that i have been taking for weeks now. Then i was driving to watch my stepsons baseball game and i got all hot and light headed and dizzy. So i turned back home and came to bed and my hands were on fire and my feet were all tingly. So im not sure what caused it. Then yesterday i turned on the heat, and i have water base board heat, so im sure chlorine was seeeping threw the heating system. Today i still feel terrible and cant focus or anything.

paula

Green12 Enthusiast
I got the results of my last provoked urine test.

I have an appt. with Dr. S. tomorrow and I plan on asking him for some specific tests to check out certain minerals and I also want to test my uric acid again.

Thanks for more of the copper scientificness Rachel.

Have a good appt today, I'm interested in hearing what your Dr has to say about your results and all of this.

For anyone who's dealing with candida this page has some good info. on candida and molybdenum.

Open Original Shared Link

Thanks for this link. My eyes kind of glazed over :lol: It's very scientific, big words and chemistry, it will require lots of focus.

I don't know, could be. Yesterday was pretty good, and this morning I felt quite good until I ate lunch, and then about 30 minutes after that I crashed a lot, not okay yet.

Only thing might be I have been having some inhalent allergy issues, maybe on top of that I reacted to the beans.  I am somewhat allergic to them.

I'm bummed. Everytime I think I am turning a corner--whammo. :ph34r:

Sherry, I was wondering why your font was so fancy.

Sorry you aren't feeling so great. It could be any number of things. You were so rushed and stressed before you left trying to get everything in, you might just be feeling effects from that and after you got there just crashed (which can be a normal response after a stressful situation or time)

You also could have picked up something on the plane, the air is just circulated around with everybody's bugs.

And if you are mildly allergic to beans, could be you are reacting to those.

I hope you rebound quickly.

I'm still not back to normal after mine, but I'm doing a better each day.

Glad you continue to improve every day Carla.

Hi everyone...just a drive-by hello.

I took a turn for the worse again and haven't been able to focus on anything more than a sentence or two of scientificness. :(

Donna so sorry you took a turn for the worse :(:(

Stupid bugs again, they need to go away for you.

Green12 Enthusiast
I can so relate, im so sick and trying to figure it out.

Yesterday i started to take l-glutamine in themorning then about 3 hours later i took my b 12 that i have been taking for weeks now. Then i was driving to watch my stepsons baseball game and i got all hot and light headed and dizzy. So i turned back home and came to bed and my hands were on fire and my feet were all tingly. So im not sure what caused it. Then yesterday i turned on the heat, and i have water base board heat, so im sure chlorine was seeeping threw the heating system. Today i still feel terrible and cant focus or anything.

Paula, I'm sorry.

I hope this isn't side effects of the chlorine in the water.

I researched chlorine a couple years back and I remember reading that it kills all the beneficial bacteria in the gut so it can really throw off the flora balance, but I don't recall what else it can do.

dlp252 Apprentice

Yes, can't wait to hear about Rachel's appt today with Dr. S! I had to bookmark that link...I took one look at the first paragraph and knew I'd have to wait at least until next week to look at it again. :P

I can so relate, im so sick and trying to figure it out.

Aw Paula, I'm so sorry! I haven't been reading much...how is the water situation?

Donna so sorry you took a turn for the worse :(:(

Yeah, this is a bad one. You mentioned a few pages back about not "caring"...I was sort of in that same place BEFORE this bug hit, and now it's just magnified a bunch. I'm just tired. :P

confused Community Regular
Paula, I'm sorry.

I hope this isn't side effects of the chlorine in the water.

I researched chlorine a couple years back and I remember reading that it kills all the beneficial bacteria in the gut so it can really throw off the flora balance, but I don't recall what else it can do.

Im really thinking it is the chlorine, cause i cant find no side effects for l-glutamine but stmach problems, and i dont have them.

Im going to go and research more about chlorine, i know if i call the health department, they will shrug me off.

paula

AndreaB Contributor

Paula,

I hope you feel better soon.

Have you taken l-glut before? Maybe that contributed.....along with the chlorine.

confused Community Regular
Paula,

I hope you feel better soon.

Have you taken l-glut before? Maybe that contributed.....along with the chlorine.

No i Havent and im not sure i ever will again lol.

Im wondring if i am having an relapse also. I have been off the candida diet and eating what ever i want, well besides glutem soy and casein. And i have been under so much stress from the water problem and isues with my stepsons mom (who is on the run) and im having nightmares she will come and take him or something.

Today i am just so frustrated and not sure what to do next.

paula

AndreaB Contributor

Paula,

All that you are going through could definately contribute. One thing I've been dealing with is the fact that stress does put you in a worse spot healthwise, as well as emotionally and physically.

My husband was involved in an unavoidable accident last month. Luckily he was in the semi and hit the overturned car before another car came by, otherwise someone may have been critically injured. He was uninjured but his truck was badly damaged. He's been driving a single trailer truck and the pay is much less, but at least they are keeping him working. We are hoping he'll be back to doubles within the next few weeks. His truck is being turned into a logging truck so we don't know what he'll be getting.

Rachel--24 Collaborator
Rachel,

Do you remember what your copper was?I mean the exact value?

thanks

Elisabet....I havent ever been tested for this yet.

It is measured in my provoked urine tests (along with all the other elements) but this is not a valid method of testing for copper toxicity. DMPS pulls out copper first so its normal for it to be elevated in the urine test following a dose of DMPS.

I do have the exact values for all 3 of my urine tests but they dont mean anything except that I had taken a chelator (DMPS) and it was effective....I excreted alot of copper.

Urine tests are not a good indicator of whats going on with copper.

I plan on getting the proper testing to see where I stand.

Rachel--24 Collaborator
I took a turn for the worse again and haven't been able to focus on anything more than a sentence or two of scientificness. :(

Makeup threads...yeah, that's about all my brain can handle right now. :P

Awww Donna....sorry to hear that you're still not feeling good. Stupid ugly bugs! :angry:

Hopefully I'm not traumatizing too many brains around here with all this heavy scientificness. :ph34r:

I was gonna put a *warning* with my link to the molybdenum/candida page..."Do not open if brainfogged....scientificness may cause a worsening of symptoms!" :o

Next time I'll be more careful. :)

Oh...I'm not seeing Dr. S till Tuesday now. They didnt have room for me afterall...they wanted me to come in earlier than I was scheduled....but due to total chaos in my dairy dept. it just aint gonna happen. :rolleyes: Gonna have to wait till Tues.

Its amazing how fast things can fall apart.....yesterday I was feeling like my dept. couldnt be in better shape...and then walk in this morning to a total freakin disaster. I think people just wanna torture me by making things as difficult as possible. Like I dont already have enough on my plate.

Well....ok...I really would like to have more on my plate. Like maybe some spaghetti and meatballs...with a whole loaf of garlic bread. B)

Rachel--24 Collaborator
Sherry, I was wondering why your font was so fancy.

Me too.....talk about traumatizing. :blink: My eyes havent been that scared since the board turned a heinous color of green. OMG...Sherry I'm really glad you were able to fix it. :lol:

Sorry you're not feeling good....hope you take a turn for the better very soon.

Rachel--24 Collaborator
Have a good appt today, I'm interested in hearing what your Dr has to say about your results and all of this.

Well I already know what he'll say about my results. He already said it.....either I dont have a problem with metals or they arent coming out. He was waiting to see what Amy says since he isnt capable of getting the type of picture that she can get with ART.

Now I have to tell him that the mercury is still there....and not coming out. :(

I mostly wanna see if he can order some of the tests to help us figure out some different metabolic problems I might have affecting my pathways. Copper is one of the things I wanna have tested.

Rachel--24 Collaborator
Thanks for this link. My eyes kind of glazed over :lol: It's very scientific, big words and chemistry, it will require lots of focus.

Sorry Julie. :P

I skipped over parts of it. It was interesting....they used kinesiology to come to their conclusions and found that molybdenum helped with most patients who had problems with candida.

Alot of what was mentioned was the same stuff I'd been posting but in greater (and more scientific) detail.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,465
    • Most Online (within 30 mins)
      7,748

    AngelaFaith
    Newest Member
    AngelaFaith
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.2k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • jimmydee
    • robingfellow
      The Celebrity brand Luncheon Loaf (found at dollar tree, distributed by Atalanta Corporation) is gluten free according to the distributor. I emailed their customer service line for information on the ingredients, and they contacted the vendor and followed up with me that the "starch" ingredient I was worried about is corn and potato. It should be safe.
    • trents
      Welcome to the forum, @jimmydee! Celiac disease is an autoimmune disorder, meaning the consumption of gluten triggers a response by the immune system that causes the body to attack it's own tissue. Celiac disease has a genetic base that requires some kind of trigger for the genes to be turned on. We know that there are two primary genes responsible for providing the potential to develop celiac disease and we know that about 40% of the population carries one or both of these genes. However, only about 1% of the population actually develops celiac disease. So, that tells us that something more than just having the genes is necessary in order to develop celiac disease. Something must trigger those genes to wake up and produce the active disease. It's that "something" that we are struggling to understand and that is somewhat of a mystery. But there is a growing body of evidence pointing to the culprit being a disruption of the proper balance of microorganisms in the gut. Apparently, the microorganisms that live in our intestines produce chemicals that regulate the size of the openings in the mucous lining of our small bowel. A disruption in the healthy balance of this microorganic community causes an increase in the size of the openings in the mucous lining. This in turn allows protein fragments from the food we eat that are larger than normal to invade the mucous lining where they are detected as threats by the immune system. This is what is happening with gluten for those with celiac disease. The attack in the mucous lining of the small bowel by the immune system on these incompletely broken down gluten components causes inflammation and, over time, as we continue to consume gluten, it damages the mucosal lining of the small bowel which results in the loss of efficiency of nutrient absorption. This mucosal lining is made up of millions of tiny finger like projections that create an enormous surface area for the absorption of nutrients when healthy. The "wearing down" of these millions of finger-like projections due to celiac inflammation greatly reduces the surface area and thus the ability to absorb nutrients. This in turn typically results in numerous health issues that have a nutrient deficiency base. But the answer to the question of why there seems to be an epidemic of celiac disease in recent years may not be simple. It may have many facets. First, we don't know how much of this epidemic is real and how much is apparent. That is, how much of what we perceive of as a dramatic increase in the incidence of celiac disease is simply due to greater awareness and better detection methods? Celiac disease is not new. There is evidence from ancient writings that people suffered from it back then but they did not have a name for it. And it wasn't until WW2 that gluten was identified as the cause of celiac disease. Current thinking on what is causing imbalance in gut biology has put forth a number of causes including overuse of antibiotics and pesticides, environmental toxins, fluoridation of drinking water, preoccupation with hygiene and sanitation, and the western diet. https://www.celiac.com/celiac-disease/theories-on-the-growing-prevalence-of-celiac-disease-and-gluten-sensitivity-over-the-last-half-century-video-r6716/?tab=comments#comment-25345 All this to say that I doubt your UTI or the low dose aspirin had anything to do with the onset of your celiac disease. It was probably just coincidence unless the UTI was the stress trigger that activated the celiac potential genes. The onset of celiac disease an happen at any stage of life and many people report it following a period of illness. But what is interesting about your low dose aspirin theory is that aspirin is in a class of medications known as NSAIDs (Non Steroidal Anti Inflammatory Drugs). Scientific studies have shown that long term use of NSAIDs can damage the villous lining of the small bowel in the same way as celiac disease.  The other thing I wish to point out is that unless you have actual testing done for celiac disease, you can't be sure if you have celiac disease or NCGS (Non Celiac Gluten Sensitivity). They share many of the same symptoms, the difference being that NCGS doesn't damage the lining of the small bowel. There is no test for NCGS, celiac disease must first be ruled out. NCGS is 10x more common than celiac disease. The antidote for both is a gluten free diet.
    • julie falco
      BRAND NAME: NOT BURGER PLANT-BASED PATTIES  A product I came across labeled gluten-free bought it when I got home I read the back ingredients further to notice that it says gluten with a line going through it u will see in the attached pics.     The label says down below that it is processed in a facility that also processes "WHEAT".  I tried to put this on the Gov. website as false advertisement but couldn't do it.  Maybe on here at least the word can get out to others not to purchase anything gluten-free without throughly reading the whole label....It won't let me upload 2 pics.  says to contact manager.   The products name is Not Burger    INGREDIENTS: Water, Pea Protein, Coconut Oil, Sunflower Oil, Natural Flavors, Bamboo Fiber, Less than 2% of: Methylcellulose, Dried Yeast, Rice Protein, Salt, Cocoa Powder Processed with Alkali, Psyllium Husk, Potato Fiber, Red Beet Juice Powder (color), Chia Protein Concentrate, Spinach Powder.   Manufactured in a facility that also processes wheat and soy.          MANUFACTURED FOR: The NotCompany, Inc, 438    Treat Avenue, San Francisco, CA 94110.
    • jimmydee
      Let me start by saying that I am self- diagnosed Celiac. I didn't want to pay for tests, because I don't have health insurance and the doctor said I would HAVE to eat gluten for the tests and I am afraid it will kill me. I diagnosed myself by quitting dairy, sugar and gluten for a couple weeks and figured out the problem by process of elimination.  ANYWAYS.......here's why I blame "Aspirin low dose safety coated" for my Celiac Disease.  I started taking regular Aspirin for a couple weeks for back pain and decided to switch to low dose safety coated Aspirin because I thought a smaller dose was safer for regular use. Well about 3 days after starting low dose safety coated aspirin, I got a terrible UTI. I didn't know what to do (should have gone to doctor) I started taking cranberry pills and read Aspirin can cause UTIs, so stopped taking that. A week later, the UTI was getting worse but then my Dad gave me some probiotic pills and the next day I felt better, so I took those for a week and the UTI was gone. About a week later, I bought my family cake and pizza for a birthday party. I ate a whole bunch and there was some leftover the next day, so I ate a bunch again. Welp, that was my first Gluten attack. I was home alone and almost called an ambulance, my stomach was so full of gas I couldn't breathe, I was covered in sweat and thought I was having a heart attack.  Since quitting Gluten I haven't had the "gas attacks" or had the awful constipation that lasts 3 days. So I'm certain I'm Celiac and I absolutely blame low dose safety coated Aspirin, I think it's the time release binder that is the problem, because I was fine with regular aspirin, I was just breaking those into halves or quarters. Actually now that I think about it I may have even used the regular aspirin at other times in my life before that, just not the little low dose safety coated Aspirin, that's what I think caused it. What's weird is my Dad took the low dose safety coated Aspirin for years and years, for it's reported heart benefits, and he never got Celiac.  Anyways, I felt this was important to share, so they can find the cause of this disease, which seems to be affecting more people than ever before. At least Gluten Free Pizza exists, that's been my new staple food in my diet.         
×
×
  • Create New...