Omg...i Might Be On To Something

[NoGluGirl]

Dear Carla,

Now is it the Babesia or the Bartonella treatment you are herxing from? Are they treating both at once, or each separately? I know you have been forgetting your Lariam. You only take it once every five days, right? You will be due for it again soon since you took it last on Wednesday.

The disagreement on Lyme Chat occurred the other night. It was not when you were on, but the next night. That was Thursday. I understand why you left early. I know that LLMDs are good doctors, but I have not been fortunate enough to meet one of those yet!

Truth be told, that group of people is very negative. It was so disappointing. Although there have been disagreements on here, they were resolved and respect was maintained among members. I have no desire to come into contact with some of those individuals again! One person who I thought was my friend made a comment that got it all going in the first place. The person also has a reputation for animal cruelty!

Dear Kassandra,

I got your PM. I will respond soon. Being overwhelmed about all of these health issues is normal. I feel the same way. You just hate to think of what all is wrong, since keeping up with what you already have addressed is so difficult.

Rachel is definitely the go-to gal for metals information! Without her knowledge, so many of us would be completely lost. There is so much that you never would have known otherwise! Who would realize how connected to Leaky-Gut Syndrome it is? Plus, so many other people may be wondering why their Candida stays in them despite a lot of dietary changes.

It is great your massage went well. Sorry it hurts, though. On the bright side, you definitely know it is working, because if not, you would not be sore! Things are certainly getting stirred up! One thing I could do is start rebounding. I do have a jogging trampoline. Finding a place to put it is another story.

Dear Julie,

Trying to catch up is very daunting. However, I am afraid I will miss some good information. I will just keep up with the current posts as far as responses go. That will simplify things. I know I place absurd demands on myself, but cannot stop them! Being OCD sucks!

Lyme Chat is an experience I can do without. No more of that! I get into enough arguments with family members. They judge me as it is. Who needs people pretending to be your friend then stabbing you in the back?

I will keep that bath ball information in mind. It is something to look into. Those detox pads look great on Scott's site. Their price is reasonable as well. All of my Christmas and Birthday money is going toward the WBs I am getting.. The other $100 went for my physical the other day. It sucks because I did not get to buy myself anything, unlike my parents.

My mother got to buy herself a gorgeous butterfly diamond ring. Dad bought himself a new shirt and tie, and more for his fountain pen collection. They came home with a new pair of jeans for me and a few nice shirts. Then we got in a fight because I ate almost all of the chocolate peanut butter, and now he is making me buy him some more. I know I had promised to only eat some, but I had nothing else to snack on, and I was so hungry!

Am I really being unfair here that I should at least get to use my Christmas and birthday money for something I want for once? I do a lot around the house, and in fact am the only one who does dishes, laundry, cleans out the fridge, or cares for the dog when no one else is home. It is not like I sit around and do nothing. Dad said before he would pay me back for the physical, but now he will not. Mom told him the other day I did not want to put my money in their account because I do not trust him with my money, and I think this has something to do with it.

We have to worry about money because he spends it on a book about pens or whatever, then tells me we cannot afford my medication or food. Who would not be upset? People have no clue what this is like.

If his selfishness did not affect everyone else in the house negatively, this would not be a problem. Tell me, why would this make me selfish?

Everyone has needs for food, clothing and shelter. Some of the Lyme Chat members were twisting my words and telling me I was an ingrateful, self-centered, lazy daughter. You cannot tell someone they are just holding onto resentment when the trouble is you are stuck in the situation and have dealt with the same crap for years. If it was in the past and buried, that would be different. The trouble is, things like Dad not paying the bill and leaving my mother and I in the lurch are a common thing. Everyone is entitled to mistakes, but hurting others with your bad decisions is quite another.

I just find it amazing how we always manage to afford low-carb ice cream, but cannot get my almond butter or an avocado, because they are "expensive" and "too exotic". Just because people are your parents does not give them the right to abuse their authority. Yes, there are ingrateful, lazy children. However, there are just as many self-centered parents that could not care less how they impact their children. Every single day is a fight, and a struggle for survival and remaining sane. Being profoundly depressed is impossible to avoid in some cases.

Some people find it easy to say hurtful things, because they are on the outside looking in. They do not know what goes on your life. These people only see anger, and resentment. What they do not see is the mind games and mental torment, or the physical abuse from when you were a teenager being bullied by your own parents. Eventually, you just shut down. You stop trusting people.

So much has happened to me in these years, I come across as cold. On the outside, there is a tough exterior. You see this angry, hateful, inappreciative woman. But, mind you, on the inside, there is a deep hurt that wedges itself in her heart that is similar to a spiked spear. Blood is gushing all over the place. All of the blood running out is the sorrow of everything experienced, that no one can understand. Perhaps that will provide a more accurate description.

Fortunately, there are people like all of you who understand. Then, there are the people on Lyme Chat who do not. Why people say such horrid words, I will never know. One thing is for certain. Their bad karma will come around and bite them soon enough. When you hurt others deeply and willingly, it is you who will end up the most wounded later. All of the bad energy they send out will return to them threefold, as it does when you send good.

Well, now on to less emotionally depressing stuff. On second thought, menstrual irregularities are quite non-glamourous. I have had constant breakthrough bleeding for three years now. This is not uncommon with the Depo-Shot, but it still seemed strange after being on it with none of that for the first five years. Like yours, my cycle was like clock work. Stress is a good possibility, but there are other possible causes. What about those new supplements you began taking?

Not feeling like eating is something anyone with nausea has. Somedays, I want to eat everything not nailed down, and others I can hardly stand to eat at all. This varies daily. Nausea makes eating very difficult. The other day was one of those days.

Dear Sherry,

It is good to hear things are settling down a bit for you. You have been quite hurried. Any news on your daughter's upcoming wedding? I know it is a ways off, but figure some things she is arranging now.

Work probably keeps you pretty active as it is.

Let us know what Dr. E says! We will be anxious to hear her reply. Information on Andrographis would be helpful. I do not know much about it. Whether or not it is a cyst buster is another story. I know GSE is.

Do not even bother with Lyme Chat. There is one particular member that some others informed me picks fights with others on a regular basis. That is someone you want to avoid. This person apparently jumps at any chance to attack someone they get. Everyone is so much more supportive here! No one here is trying to make anyone sound like their situation is worse than everyone else's, and that everyone else has it so easy.

Wow! Loss of muscle control from perfume is frightening! Exposure to so many things bother a lot of us. It is so frustrating trying to deal with at times. Candles and lotions are just two scented items that make me feel bad. Sometimes they do not bother me, but most of the time I avoid contact with them when possible.

I will keep Ozark Water Services in mind. It would be interesting to test our tap water. There is no telling what all poison is in that stuff. I rinse my bananas before I eat them, and it turns the peel black!

That cannot be a good sign. Could that indicate the presence of lead?

We use a gas stove, and I do react to the fumes. The trouble is, using an electric range is difficult here. When the power goes out, there would be no way to cook! This is tornado alley, so it happens quite often. If not for being Celiac, this would not be an issue.

Dear Patti,

Chemical sensitivities are a major problem for me, too. They do cause a lot of misery. Sneezing is one of my symptoms. I also tend to get queasy from perfumes and scented candles. Avoiding these things is very difficult.

How wonderful switching products helped you! You just never know what could be causing trouble. So many soaps have dyes, scents, etc. Everyone has a specific thing or two at least that bothers them more than others. That is so scary about you passing out at work from perfume once! My brother knows a woman who starts coughing up blood if she gets exposed to chemicals like that.

We still use a gas stove. I do notice feeling light-headed sometimes when standing over it. That is terrible about the gas leak in your home. Thank goodness that is taken care of, and no one got hurt! Those fumes can be so dangerous!

Dear Lisa,

You have that metallic smell too? I get that. I used to think it was because I wear rings, but now I am not sure. This body is so crazy, who knows? At least the horrible foot and body odor has improved since killing some yeast off.

Way to go for kicking the ice cream habit! I am working on the sugar, but so far I am doing poorly.

That stupid hypoglycemia does not help at all. Peanut butter keeps my blood sugar steady, but it is moldy.

Could almond butter be as good for that?

ROTFLMAO! Which is worse? Metal or rotten eggs? That is a tough one. Many odors are quite awful. Rotten eggs are pretty bad.

Dear Paula,

A bath ball does sound like a good thing to have. They may have some here. Whether our healthfood store has it is another story. If not, there is always the internet! Of course, that is assuming it is affordable.

It would be nice to have something as pure as rainwater! The unit is expensive. Kangen water is supposed to be good. It has various levels of Ph for specific needs, such as killing germs and fighting illness in the body, or sanitizing hands. Lois is the lady who represents them, and the smallest unit they have is about $1,600, but is available through a payment plan. She also sent me some health information about Candida and some research from Dr. Cowden!

We are currently drinking Ice Mountain. I can taste the plastic in the water, though. Is that odd?

Maybe it is due to being so incredibly sensitive to chemicals. If only Perrier was cheap. Getting a RO filter for the shower, sinks, and everything else would be a good move if it is affordable.

Detox foot pads are supposed to be pretty good. The ones on www.betterhealthguy.com on reasonable for what you get. There was a rumor that the Kinoki foot pads were not what they claimed to be. Do you know anything about that? You know how sometimes there are rumors about natural products to throw people off.

Dear Andrea,

These wisdom teeth are evil! Cavitations are something to consider, but the pain is excruciating. This situation does not feel very simple either way. If only there was a way to avoid cavitations. The oral surgeon is very nice, though.

Yes, LN is a bad place. Do not go there for any reason! People will mentally torture you and insult your character. You will be left defending yourself. Rachelville is a good, supportive environment.

I have not gotten the IgeniX labwork done yet. I had my physical Thursday. You need to get that done on a Monday, Tuesday or Wednesday. Your blood has to be as fresh as possible so that you can have it shipped the next day by air. Accuracy depends on it. I hope to do it Monday. My doctor told me to drop the kit off that afternoon, but I was so afraid they would lost it and we would be up crap creek without a paddle.

This is wonderful you are all eating more foods! Caesar salad dressing should not have gluten. However, soy is likely in there. You can make your own with canola. Go to www.recipesource.com and check some recipes. They have something for everything on there!

Mitch has two Celiac genes, yet does not react to gluten? That is interesting. The thing is, whether or not the disease is activated. There are probably tests for determining that. If this is the case, genetic testing may not be as helpful as once thought.

Thank you for the information on phenols. This is good to have. You never know what you may react to. It is always smart to be open-minded about such things. Keeping a record of information like this is important to identifying offending foods.

Dear Rachel,

People only appear to be interested in arguing over at LN. No one can heal with all of that negative energy around. No wonder everyone is so miserable over there. Having a support system is essential. When you cannot depend on family for that, the last thing you need is others who you thought understood you just use you to provoke hurt. Maybe they have nothing better to do, but I am not that bored!

Congratulations on starting your TD-DMPS! This is exciting! Sorry to hear the smell is so bad. That reminds me of when we had to dip our guinea pigs, because they had lice when we got them. Fudgie, my guinea pig, smelled it and squealed and ran the other way! If a pig rejects it, it has to be bad!

I really want to catch up, but think responding to the most recent items was best. I am going to read the previous pages, though. I do not want to miss your scientificness! Thank you for your kind words.

They mean a lot, as do everyone else's. I have missed you all so much!

Dear Mia,

Lack of appetite is something I have dealt with more recently. It is sort of strange. I am either hungry every second, or not at all. When I am on abx, it is difficult to eat. I think it is probably because you know you have to, and it makes food less appealing.

I recall you having a motility issue. Those are nasty. I may have one, too. It appears that I have alkalosis. If I had not done the urine test the other day, I never would have known. This is an important clue.

Dear Nyxie63,

My appetite is like yours. Somedays I want to eat all the time. Other days, I barely can eat at all.

I knew I was sick the other week when I did not want to eat. The trouble is finding a balance, but think the Zone is a good idea to try again.

Since you have been herxing, the appetite missing is not uncommon with that. Feeling rough during one of those is typical. Appetite tends to decrease during such a period. Thank goodness you seem to be functioning, though. For a while, you were really struggling.

Dear Everyone,

Well, I just decided to jump right in! Thank you for your encouragement and support. Without friends like you, I would not have anything to be happy about. It gives you strength to know others understand and do not judge you. If only more people were like that in this world!

Hey, where is Donna? Is she alright? She was ill a while back. Is she still having trouble? There are not any posts from her lately.

Sincerely,

Jin

P.S. Welcome to our new members!

[AndreaB]

Jin,

I'm glad to hear you'll be able to get the blooddraw real soon.

I'm sorry for the trauma and stress you've gone through, both with LN and your parents.

Mitch's celiac genes just haven't been activated. I don't know about the rest of us. We came up with gluten on our intolerance testing but I don't know if it had progressed to the gene being activated.

I don't know how Donna's been. Haven't heard from her lately aside from her post about being busy at work. Maybe she's posted over on the Essential Minerals (is that it?) thread.

[NoGluGirl]

Dear Andrea,

I sure hope to get that blood work sent to IgeniX Monday. The hospital is where I will have to go. The doctor said the lab in their building did not know how to do that type of test. So, I will have to go out there Monday and hope for the best. Dr. B said they would have to keep the kit for a few days, but I was too afraid that the lab would misplace it. Keep your fingers crossed!

You are so sweet! There is nothing you could do about the LN situation or my parents. These people in my family are insane! I really think there had to be a mix-up at the hospital when I was a baby. One member from chat already has contacted me and apologized, but I want nothing to do with it anymore. I do not want to experience this upheaval and hurt again.

That is so weird about your husband's Celiac genes. What you really need is a test that tells whether or not those genes are activated. Unfortunately, I do not know anywhere that performs that test. However, I know up at IU Med they are able to find genes for bipolar and other mental illnesses.

They also test for whether or not they are active. Somewhere is bound to test for them, we just need to find out who! This could be very helpful for you and the children.

Checking the EM Cult Thread is a good idea. Donna may have been on there. I will see. Work is quite demanding for her. Law offices are not exactly the least busy places to be employed!

Sincerely,

Jin

[miamia]

Hi all,

I have a question, it's not gluten related, but I think I may have multiple chemical sensitivites.....I have narrowed it down to things with "fragrance".

I already had stopped using laundry products with fragrances and never wear perfumes. I do mineral makeup, when I wear makeup and was doing fine till recently.

After going through everything with the old fine toothed comb , I stopped using my shampoo, conditioner and soaps (which were most definately gluten-free), replacing them with California Baby "extra sensitive" products and only unscented Dove soap. Immediately, the neck/headaches, dry itchies and slightly off stomach went away.

Can scents and possibly other ingredients like this really cause such symptoms? It seems I get one thing figured out, and another issue crops up. Perhaps this is not as much multiple chemical sensitivites as much as just being sensitive to certain things. Confusing....

Patti-

I am super sensitive to anyhting with fragrence, etc.

These are some of the products I use I don't know if it will helpful

Kiss my face liquid soap- fragrance free (for hands)

Kiss my face- pure olive oil bar soap (for body)

Alba- Very Emollient Body Lotion ( not just original but fragrance free original)

And when I have areas of really try skin I have a tub of Pure Shea butter by Savonnerie

[miamia]

Rachel,

Thanks for your reply about Dr Amy and metals. I totally agree with you about metals being a problem for most Lyme patients. I would bet they are a problem for me too. I will try to remember to ask Dr H about this when I see him. He has explained to me what you said, that even if the levels are low, they can still be a problem.

I am interested in ART, but I really don't think we could afford to go and see Dr Amy right now. I feel like we are just putting one foot in front of the other. Right now money is going to massages, colonics and acupuncture.

I'm sorry if I sounded narrow minded. I just get overwhelmed at the thought of having more problems! I have viruses, mycolpasma, lyme, babesia, and I feel like if I also have metals....ugh! And I know...denying it doesn't make it go away. But for today, this is all I can handle.

Everyone,

I had a lymphatic drainage massage. It went really well. I feel HORRIBLE now, LOL! It definitely stirred things up...big time! I'm glad I'm going soon to have a colonic, to help take out the toxins we stirred up from the massage.

The masseuse was really nice. She said I had a lot of fluid and I actually could feel her moving fluid around my body! She only works on Saturdays, but she told me that if I wanted to, she would come in during the week for me. Dr H wants me to have them done 2x a week, so this might work out.

Kassandra-

it sounds like we are doing the same typr of thing. The massage/ colonics combo. The first time I had the massage done I ahd it alone and I felt horrible- it stirred up way to many toxins. After that I started scheduoling them back to back. There is actually someone who comes in to give me my massage at the colonics place so I don'[t even have to go anywhere. aving them back to back makes a world of difference with how I feel afterwards. I really recomommend this for ou.

Miamia

[NoGluGirl]

Dear Mia,

I will keep those beauty products in mind. You would not happen to know of anything that is good for oily skin, would you? I may just have to experiment and make my own soap. I have been reading up on herbals, and think making my own may be the most effective thing. If I attempt it, I will let you know how it works out.

These things probably do work better in conjunction with each other. Colonics are normally good for people, but when you have a major toxic load, it is another story. Lymphatics massages do stir up a lot of toxins. If you cannot detox, stirring them up is best avoided until you figure out what is causing your body to hold onto them. For instance, if it blocked sulfur pathways, you can address that then begin detoxing.

Sincerely,

Jin

[CarlaB]

Jin, that's really strange .... Lyme chat has never really been like that while I've been on .... I'm not doubting you, of course ..... I'm just glad it hasn't been like that while I'm there. It's different there than LN because the handful of people on LN who stir up trouble don't come to chat.

The people on chat have actually helped me like you guys have .... for a shorter time, of course.

Thanks for the Lariam reminder .... tomorrow. I have been good about taking it lately, it's been a couple months since I've been late with it.

I think I was mainly herxing from the bart ..... a little from the Lyme, but not much. I actually felt better on the mino with a little dizziness like I had been drinking, but nothing too unpleasant, LOL. Mino is for Lyme. I think that's because I've been on Lyme herbs, so it didn't hit me as hard.

The Levaquin for bart hit a little harder. I'm feeling better now though. We'll see .... the herx started lifting late yesterday, so I'll check in with how I'm feeling later today when I know .... but I can tell you now, it's a LOT better.

[Green12]

Alba- Very Emollient Body Lotion ( not just original but fragrance free original)

And when I have areas of really try skin I have a tub of Pure Shea butter by Savonnerie

Mia, I have been using the Alba Botanica lotion too, for years now. I was so excited to find something of such high quality with no scent (or gluten ingredients) that I didn't react to.

I am going to look for that shea butter, I am so dry from the baths. Thanks for mentioning it.

The Levaquin for bart hit a little harder. I'm feeling better now though. We'll see .... the herx started lifting late yesterday, so I'll check in with how I'm feeling later today when I know .... but I can tell you now, it's a LOT better.

Glad you are feeling a little better Carla, hope it continues

Jin, sorry about all the stress at home

[confusedks]

Kassandra-

it sounds like we are doing the same typr of thing. The massage/ colonics combo. The first time I had the massage done I ahd it alone and I felt horrible- it stirred up way to many toxins. After that I started scheduoling them back to back. There is actually someone who comes in to give me my massage at the colonics place so I don'[t even have to go anywhere. aving them back to back makes a world of difference with how I feel afterwards. I really recomommend this for ou.

Miamia

I did a massage at 11.15 and then had a colonic at 4. Is that too far apart? I tried to find places that do both at the same location, but I couldn't find any!

And, are colonics supposed to be painful? It was one of the most painful things ever! I was completely pale and sweating because I was in so much pain!!

I'm definitely going to call Dr H on monday and ask what he suggests I do. It was pretty unbearable. I have only heard great things about the place I went to, but I don't know. It could have been her, or it cold be my GI issues.

[Green12]

I did a massage at 11.15 and then had a colonic at 4. Is that too far apart? I tried to find places that do both at the same location, but I couldn't find any!

And, are colonics supposed to be painful? It was one of the most painful things ever! I was completely pale and sweating because I was in so much pain!!

I'm definitely going to call Dr H on monday and ask what he suggests I do. It was pretty unbearable. I have only heard great things about the place I went to, but I don't know. It could have been her, or it cold be my GI issues.

Kassandra, my first few colonics were not very pleasant. They did get a little easier when I got the technique down, but I never was completely comfortable. They did take a lot out of me.

I am sure it is different for everybody, but that was just my experiences.

[CarlaB]

Kassandra, I don't think they're supposed to be painful. Did you tell the person doing it that it hurt?

Julie, thanks. I'm doing about 90% now, so that herx really helped.

[nora-n]

About the fragrances, I cannot have even one thing in the house with any fragrance in it. I have carried stuff into the carport several times (things snuck back in and a box of stuff belonging to a daughter consisted of fragrance candles and soaps and scents....end that even after I had told her I got sick from stuff like that....It got stored in the barn we have some other place. Why store stinking stuff like that in a house peopel live in, especially people that get sick from it?????

About leaky gut, I can feel it. My skin crawls and I get unconfortable and I have to put on real loose underwear and clothes, nothing feel comfortable and I have to kick the walls or table or chair. i found out potassium tablets help me. I get leaky gut from NSAIDs and gluten. I used to have this all the time when I was little, ehen I was tired and they did not let me go to bed.....

I am trying LDN now (found some references on it here, actually) and I feel a lot better (even though I am under-medicated thyroid-wise (because of a TSH-worshipping doctor)) and by the way, it takes away chocolate cravings etc. too. I had fibromyalgia-like pains and they went away too (Ithink I got them because of being under-medicated thyroid-wise in the first place....) I got it from theantiaging site. Got a lot of energy too so was over-doing everything but I am not so over-active longer. It felt like my old self, not like some mania if you know what I mean. I do 3 mg every other day and take it in the daytime as suggested by Elaine Moore. She is writing a book on LDN now.

nora

[confusedks]

Kassandra, my first few colonics were not very pleasant. They did get a little easier when I got the technique down, but I never was completely comfortable. They did take a lot out of me.

I am sure it is different for everybody, but that was just my experiences.

When you say not pleasant...do you mean REALLY painful? Or just a little discomfort? It was really bad pain. The actual insertion of the tube, etc. didn't bother me at all, it was the filling up and the releasing part that was horrible.

Kassandra, I don't think they're supposed to be painful. Did you tell the person doing it that it hurt?

Yea I did. She could also tell, I lost all color in my face and started to sweat profusely. It was pretty obvious it was hurting me really badly.

I just don't know if it's normal to have the amount of pain I had, or if it aggravated my intestines. I will call Dr H to see what he thinks.

[confusedks]

Has anyone tried any of the supplements off of Dr Mercola's website? I'm wondering if I should try a multi vitamin from his site because they are made from food sources, so they are easier to digest.

[mftnchn]

Wow Sherry, thank you!

I only drink spring water since I am very intolerant to coconut and it is used in most filtering systems, I found. We had a gas stove until a month ago, when we developed a gas leak/stove regulator problem. At that point, we decided to switch to electric--so I'm good there--although I'm not so happy about having had such a leak and the whole family breathing it in.

I agree it's a very good idea to try and reduce the chemicals I use for cleaning, etc--yes, I will be taking (even more) steps to reduce my exposure since this last incident proved to me that it does build up without us even realizing it sometimes. Very incidious.

A number of years ago, I had a similar experience with perfume--I actually passed out at work and had to be driven home. I can relate to the loss of muscle control you felt, as I was very shaky and it lasted a while even after I went home.

Welcome! Perhaps the switch from a gas stove will help you, but it takes awhile. When I first got MCS, I learned that turning on a gas stove without open windows or ventilation turned on, and cooking for an hour causes much higher air pollution then one ever encounters in LA.

I avoid all perfumes whenever possible but shampoos are terrible--very hard to find any without. Castille natural soap might be an option.

[mftnchn]

thanks sherry, i will look into them. Im sure i can find their website and find their number.

Remember i had an guy come and talk to me about the water that is like rain, from the steam filtration. Well just for an filter for the kitchen sink that holds 7 galloons a day, it would 2600 bucks. I really hate when people charge such high prices cause they know that we are in dire need here for clean water. I of course have no contacted him back.

paula

I bought a R/O unit with a pre-filter for under $200 from Ozark. The unit was refurbished, only the outside plastic case was used, everything else was new. It was $150. Then if you need to kill bugs in the water, the UV light unit attaches and is another 200 maybe. So 2600 sounds excessive.

Sherry

[aprilh]

April, are you doing any better with the Nattokinase? If I remember correctly you started out ok but now you aren't sure since you are having gall bladder pain? I think Sherry was the one doing fine with it.

Rachel reminded me in another post about the other things that are given to treat fibrin (Rachel, hope you don't mind me mentioning it here also)

I thought it was Nattokinase I was going to be put on, but it's Rechts Regulat. I tested really strongly for it through ART. It's a richly fermented product, which my body seems to love.

Rachel, it probably will not be the thing for you

Hi Julie,

I have been out of town with no internet connection. Getting caught up!

I have been doing pretty good on nattokinase. I still take it with the gallbladder pain because I don't think its related. I think my gallbladder issues might be related to my liver issues. I have been taking Lecithen and Gold Coin Grass and the pain is gone, for now.

Everytime I make a statement about something being better, I jinx myself

April

[miamia]

Mia, I have been using the Alba Botanica lotion too, for years now. I was so excited to find something of such high quality with no scent (or gluten ingredients) that I didn't react to.

I am going to look for that shea butter, I am so dry from the baths. Thanks for mentioning it.

Glad you are feeling a little better Carla, hope it continues

Jin, sorry about all the stress at home

Julie

I am so tired but I am going to PM you in the morning

[aprilh]

One of the ladies in Lyme chat knows someone who had this happen. Her sister has Gastroparesis due to the stomach being too base. Now we could be getting somewhere! However, I am not going back on Lyme chat again. I was brutally verbally attacked, and sense some of the members are energy vampires who start arguments. I deal with that enough with my family, and go online to escape that. I thought I had found people who understood and were true friends.

None of you have ever treated me this way. I know you never would. No one here blames me for my illness, or the troubles with family

Jin,

When I was researching Lyme and went on lymechat, just poking around, I noticed some people on there that were very judgemental. It was definately a different aura than on this board!

Andrea,

Glad you are able to add things back with the kids. What kind of testing did you do to determine the foods?

I have recently added back wheat and dairy (only raw milk variety) with my kids. I found a source for raw milk. Its supposed to be a lot more tolerated than pasteurized. Anyway, no outward symptoms except i saw a tiny patch of ezcema show on my son. Now I have to redo the test with 1 food at a time since I didn't seperate the two. Otherwise, he seems to feel fine. No intestinal symtpoms, no dark circles under the eyes, no gas or bloating. We will see.

Carla,

Happy Belated BD! I am getting caught up on my reading.

Kassandra,

That is very interested about the sulfite test strips. Can you send me the link?

Rachel,

Water guy sounds nice! I think its nice that you found someone with knowledge about these type issues. I am sure he would find all your scientificness very interesting! That's so cute that he asked you out for...water...HE HE!

Zeolite...I got to do some research on that. Is that for detoxing?

[jerseyangel]

When I first got MCS, I learned that turning on a gas stove without open windows or ventilation turned on, and cooking for an hour causes much higher air pollution then one ever encounters in LA.

Very interesting. I've had gas stoves for the last 20 years at least--plus gas heat, dryer, and hot water heaters. It'll probably take a lot of time for my system to come back from that--not to mention all the other stressors.

Maybe this place will be better for me in the long run--well water for showering, no natural gas and no lawn care! I always felt the need to keep a "perfect" lawn when we had close neighbors in our subdivisions--out here, I can just let the dandelions grow and not worry about it!

Thanks again Sherry

[jerseyangel]

Dear Patti,

Chemical sensitivities are a major problem for me, too.

Hi Jin--I was so sorry to hear about what you're having to deal with at home and on LN. I'm glad you could type it all out--sometimes that helps--the getting it all out, and telling those you can trust to understand. You will always have a soft place to land here

I don't know how Donna's been.

Andrea, Donna's been very sick and for a while there was actually unable to even sit at the computer for any length of time. She's posting a bit more lately, though, so hopefully she's doing a lot better.

Patti-

I am super sensitive to anyhting with fragrence, etc.

These are some of the products I use I don't know if it will helpful

Kiss my face liquid soap- fragrance free (for hands)

Kiss my face- pure olive oil bar soap (for body)

Alba- Very Emollient Body Lotion ( not just original but fragrance free original)

And when I have areas of really try skin I have a tub of Pure Shea butter by Savonnerie

Thanks Mia I love the Olive Oil Bar Soap! I do need to try that lotion--both you and Julie speak so well of it. Hope you're doing better

[AndreaB]

April,

We didn't have any testing done. The last testing was the ASYRA in September. We had some dairy products come up then (different for pretty much everyone). I forget the gluten with the children but they had been through the food LED's so I think that helped.

We're just trying to find ways to make eating a little more affordable. My oldest son has been having some intermitant tummy aches so I'm not sure exactly what that could be. We are all laying off anything but the raw cheese again to see if that makes a difference. I added the new cereals plus the peanut butter at the same time so I don't know what the problem food is for him. He's double DQ2. I'm just hoping that the food intolerance to gluten doesn't necessarily mean the celiac genes have been activated. May just be wishful thinking though......

We all have at least 1 celiac gene and as far as I know my hubby is the only one that tested fine with gluten (Enterolab, ELISA and ASYRA).

Raw dairy is supposed to be tolerated very well so I hope that works out for you. Even just being able to have dairy would make things easier, although raw is pretty expensive.

Please keep me posted if you will and I'll do the same with my children.

[aprilh]

Has anyone ever tested there water. If so were did you get the stuff to test it. I really want to test it myself before i let anyone in this house drink it. I also was looking for an place that sold the water test and mold test. Id rather do business at one place lol. I did find one place that has a thing for drinking water, lead in paint, mold. It is at www.discoverytesting.com and its the home inspection kit.

paula

Paula,

I ordered a test here. www.leadtesting.org. Very affordable. They also have lead paint test kits, although these are sold at most hardware stores. We have lead paint on our cabinets and some trim.

I have also had a full water analysis done that cost about $250. This checks for more things in the water. PUrchasing an under the sink R/O filter would cost you the same amount, in my opinion.

I'm with you, Paula, I would be very careful before drinking that water! You can't always trust the city/state to protect us in these situations. Have you been able to buy the R/O water system yet? You would probably only need one under your kitchen sink to filter drinking water and cooking water. You can run a T-line to go to the fridge for fridge water and ice.

[aprilh]

Yeah...definately WORSE than garlic. Garlic actually smells quite good in comparison.

At least I know I'm using the right stuff...apparantly the "real" stuff should smell pretty bad.

Yes....I did feel the need to look into this.

Yup...that pretty much describes it...milky white drops that smells REALLY bad. I'm talking BAD...my whole room reeked of the stuff just cause I opened the bottle!

I'm really looking forward to increasing my drops.

That glutathione supplement I tried to take was VERY STINKY! That was the worst thing I have ever taken! Almost worse than that Ionic Magnesium drops.

[aprilh]

I didn't know that about gas. I have often wondered though. All my appliances are gas, except the dishwasher and fridge.

April