Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something


Rachel--24

Recommended Posts

Rikki Tikki Explorer

Glad to make you giggle, nice to meet you Tavi, and I think town bum is a brilliant job. :) Does this mean that all the park benches in Rachelville will be cushioned? :lol:

I think the only cusion on these benches is when I am sprawled across them!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 33.4k
  • Created
  • Last Reply
dlp252 Apprentice
OMG, I LOVE these shows, have my British telly Sat. nights quite often, esp. in Monterey. "As Time Goes By" is my favorite....used to watch "are you being served" w/ my cranky grandma.....my nieces all watch these shows since the oldest girl had/has a british boyfriend and she's lived there three summers (near Manchester).....Robbin, are you my twin????

I like all those shows too.

I talked to my sister about three weeks ago...she was okay at that time...hum, maybe I should call her again. Didn't hear about rock slides, or at least didn't pay attention...

penguin Community Regular
Chelsea,

Are we down to the last month now? I don't know how you do it. I'm sorry to heare that the culinary school won't work out.....there must be something out there that you can get into, don't give up your dream.

We are down to the last month! 26 more days! Of course, even though I feel like hammered s*it, I'm compelled to eat everything in sight! Not only for the gluteny things I'll never be able to have again, but also for fattening stuff! I'm starting both the gluten-free diet again and weight watchers the day of my biopsy :rolleyes:

As far as culinary school, I'll figure something out. I ultimately want to teach cooking, mainly to kids and teens going to college. It's my mission, eating is the one thing you have to do everyday, but NOBODY KNOWS HOW TO COOK!!! No wonder we're all fat and unhealthy in America :rolleyes:

I think I'll get some sort of nutrition certification and go from there... I wonder if any of the instructors at either culinary school give private lessons? I wrote him back an email about how the gluten-free market is set to boom and the increase in diagnosis, etc. It's a learning opportunity...

OMG....Donna I need your help!!

I'm still having problems with these "biting" ants. No more being nice and swatting them away....I wanna squash these suckers right into the ground. :angry:

What the heck is going on?? How can regular black ants bite or sting me like this?? I'm finding the whole thing to be rather disturbing. These are some very mean ants. <_<

Fire ants are all kinds of fun :rolleyes: I saw on the news this morning that the U of Texas has found a certain type of fly that kills fire ants and they're going to introduce the flies to the population. Great. Isn't that how lots of frogs and killer bees happened :rolleyes:

dlp252 Apprentice
Thanks guys. If truth be told, it really, really is starting to get to me...... :(

In fact, one of the reasons I took a "sabbatical" from here for awhile was because I was starting to feel like a hypocrite, posting to all the newbies the things that you should be doing to get yourself better, yet it hasn't helped me to do the same...... How can I be a good example when my response to the gluten free diet has been a total failure????? I started to feel that I was just a shining example of "Celiac Disease Gone Wild", and if people came here to get re-assurance that all will get better once they are gluten-free, then I would only be a constant reminder that sometimes their is sooooo much damage done that a gluten free diet is worthless at this point.......

The diarrhea is very nocturnal. In fact, that is when it is most active. It will wake me up around 2 a.m. and be VERY active with cramping in between explosive diarrhea, right up until it settles down around 6 a.m. That's why alot of my posts are during the night! :P It is just such a part of me now that I can't imagine what life would be like otherwise......

I would love to be able to put my trademark "This too shall pass........", but I don't think it will........

So now you guys know why I have been so quiet in recent months........

Gosh, how awful...I'm so sorry you are going through all this!

Daxin Explorer

OKay...still back on page 217, but will read fast.

Update....son came home last night from hoildays, and we are ready to send him back already. Huge fight here, and ended up taking him to talk to his psychiatrist at midnight to see if it was his meds makin ghim goofy. IT's not....puberty and ADHD do NOT go well together. :huh:

OTher than that, things are fine. We are going to learn to try to cope with his problems, but he m akes it hard to keep my head some days. <_<

Back to keep reading now.

Edit: Okay...done.

Vincent -- Thank you so much for keeping u sall up to date over thelast little while. God truly does answer prayers.

All -- Off to get some work done before it get too much hotter here. Back in a bit.

Jean-Luc Rookie
As far as culinary school, I'll figure something out. I ultimately want to teach cooking, mainly to kids and teens going to college. It's my mission, eating is the one thing you have to do everyday, but NOBODY KNOWS HOW TO COOK!!! No wonder we're all fat and unhealthy in America :rolleyes:

Well, I have to agree. Our teachers on this board can probably chime in as well. Home Economics is gone for most schools. Schools are being forcrd to cut out programs such as art, music, home ec, etc over athletics. Due to high demands of organiized sports most children today cannot be just that CHILDREN.

Pardon this rant butt ....

Too many bloody parents think their children are the great athletes of all time and will 1) get a college scholarhip or 2) go pro. I cannot stand some uneducated parents on the sidelines of an 8 year old soccer match yelling at a 12 year referee. I get very mad and I want to smack the parent.

Too many "coaches" do not know what the F#$% they are doing. They read a book and think they "know" how to coach. Very frustrating. Team sports are supposed to show children how to work together and accept an outcome -- win or lose - -

Pardon the rant ...

dlp252 Apprentice
I'm still having problems with these "biting" ants. No more being nice and swatting them away....I wanna squash these suckers right into the ground. :angry:

That's my girl, lol! :lol: I mean, uh, okay, that's really what I mean. :lol::lol::lol:

I woke up this morning with a bunch of ants all over my stove! I 409'd them. :lol:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dlp252 Apprentice

Ryan - sorry to hear about the big fight!

Miamia - glad to hear you are doing well, especially after your trip!

Penguin - you can start your own cooking school for celiac chefs. :D

Susan - how are you today?

Hi everyone else...I know I'm missing a bunch of people and I'm sorry!

If the alien baby is being passed around I think I got the "morning sickness". I had to leave work early yesterday because I was sooo lightheaded and dizzy and was slightly nauseated and by the time I got home, was so VERY shakey I could hardly function. I tested my blood sugar which was 85 (that's in the normal range) and I checked my blood pressure which was pretty low (like 90/44 or something--wrote it down but it's at home). Felt pretty bad until around 6:45 when I turned my air conditioning on. Felt a bit better after that, but went to bed at 7:40 or so. Feeling better so far this morning, but am still a little lightheaded. So, don't know what is up what all that, but I was in no mood for those ants this morning, lol. They're history now. :lol:

Oh yah...so glad to hear about Megan!!!! :)

AndreaB Contributor
As far as culinary school, I'll figure something out. I ultimately want to teach cooking, mainly to kids and teens going to college. It's my mission, eating is the one thing you have to do everyday, but NOBODY KNOWS HOW TO COOK!!! No wonder we're all fat and unhealthy in America :rolleyes:

I think I'll get some sort of nutrition certification and go from there... I wonder if any of the instructors at either culinary school give private lessons? I wrote him back an email about how the gluten-free market is set to boom and the increase in diagnosis, etc. It's a learning opportunity...

Chelsea,

That sounds like a good approach. With people becoming more aware of celiac and gluten intolerance the need for gluten free chefs/cooks will be increasing.

Ryan,

I'm sorry about your son. My daughter is only 6 1/2 but she almost always seems to be worse after she sees grandma. She has only stayed the night with her once but now that we are gluten free we're keeping her home. Grandma is coming today so we'll see how tomorrow goes. Does your son get worse after seeing grandparents since they tend to dote.

Picard,

I agree with the poor "sportmanship" and the win-win attitude that seems to envelope these kids. I've heard many stories about how the kids just want to have fun and it is drilled into them to win, win, win at all costs.

VydorScope Proficient

MEGAN UPDATE!!!

TCA posted this to Megans thread...

I just had to check in and see how all my prayer warriors are doing!!!! THANK YOU!!!!!!!!!!!!!!!!!

Thanks Vincent for keeping everyone in the loop. I'm crying at the love I feel from all of you. I've read your entries on her guestbook and words can't express how wonderful each of you are. I'll keep updating as things progress. Love and Hugs! Gotta get back to my baby!!! Jarod's there too, but I just can't stand to leave for long!

If you want to reply, you'll need to do that on Megan's thread...

AndreaB Contributor

Donna,

I hope you continue to improve throughout the day. I know the heat can sap a lot out of you. I would have thought your blood sugar would have been affecting the shaking.....did you eat enough protein, drink enough water yesterday?

dlp252 Apprentice
Donna,

I hope you continue to improve throughout the day. I know the heat can sap a lot out of you. I would have thought your blood sugar would have been affecting the shaking.....did you eat enough protein, drink enough water yesterday?

I think I had enough protein. At the end of the day my protein was around 20% I think. I do know that my body does seem to need a lot of protein. By the time I left work I had had 4 glasses of water, plus one at home before I left for work. I drank at least two more (probably a bit more) glasses at home in the afternoon. It feels so much like a blood sugar issue but the numbers always come up normal. As soon as I got home I made some chicken soup with some brown rice rotini...the shaking stopped after I ate. It really hadn't been THAT long since I'd eaten (maybe about 4 hours) and I had only just started to get hungry. For breakfast I had two boiled eggs with mayo (for egg salad) plus some soy milk--I had something else too but can't remember now. For mid-morning lunch I had ground beef with a veggie blend of broccoli, cauliflower & carrots.

penguin Community Regular

Holy crap, looking at the University of Texas requirements for a nutrition/dietetics certification, I have to take FIVE SEMESTERS of chemistry! :o:blink::o:blink::o:blink:

That's not even degree seeking!

That immediately gave me a panic attack and an impulse to jump out my office window.

Principles of Chemistry 1

Principles of Chemistry 2

204 Intro to Chemical Practice

310M Organic Chemistry

369 Fundamentals of Biochemistry

OK, granted the organic chem and biochem are a little different for health type majors, but still. Not to mention the U of Texas is a really good school. Really good. Their chem department is ranked, I think. I'm in trouble.

My original career goal was chiropractic. Half a semester of chem 1 fixed that, and I switched to poli sci.

I'M BAD AT MATH! I'M BAD AT CHEM! CAN'T SOMEBODY JUST FRIGGIN TEACH ME HOW TO FRIGGIN COOK?!?!?!?!

I think I'm going to dig a hole under my desk now.

DingoGirl Enthusiast
:ph34r:

I dunno how it happened...I just started talking about how maybe I can eat dairy cuz maybe I'm just intolerant to corn and then I figured out that its actually MSG I need to worry about so I started eating veggies and got worse cuz they sprayed Auxigro chemicals on my yams (bastards!) and then I found out about sulfites and then somehow we became a cult farm cuz we didnt want to get sick living in the chemical ridden gluteney world out there and then people wanted to live here where its happy and safe and next thing I knew Rachelville was created and we have geese that protect the crops and cows that provide fresh milk and someone told me I was President and I'm really trying to do the best I can but presindency isnt really my forte but here we all are and now we even have glittery bats and we dont have to worry about pest control cuz we have Donna and lots of other people here to keep R-Ville up and running and full of laughs and love everyday. :D

ummm....is reveling a word?? :unsure:

morning to all my wonderful, kooky, dear R-ville cohabitants.....but WARNING, this is SO off-topic and with many personal relevations into my dysfunctional life.....the already-bored, just move on, nothing to see here, folks......

First of all, Rachel's above summary gave me a good top-o-the-morning cackle....how crazy IS all of this really? reveling is a word.....but you could change it to RELEVING and then it would be a relavating experience of pleasure :blink: ....all words are words here, if we say they are... ;)

To everybody, thank you so much for your kind words and wisdom and concern. I will try not to go into too much tedious detail here....but I'm sure I wil and then will regret it..... :ph34r: but, we have a very disparate family, very disconnected, and all I truly have is my mom and my dad's first cousin in Boston. My dad died 18 years ago (colon cancer and I am quite sure he was Celiac) and my mother's side, strongly Norwegian and suffering much depression and other health issues, I KNOW many of them are/were Celiac. Lost another brother 20 years ago to deep depression and the pit he fell into, addictions and then suicide....so my family is quite small, I have first cousins I have never met as no one seems to care (don't even know where they are), and my dad's two sisters......wealthy self-absorbed social x-rays (nod to Tom Wolfe there) who don't even answer emails, oh, AND they took their late brother's children out of the inheritance when my grandparents died - they got the money intended to go to us - isn't that sweet - though they were filthy rich already... So, when I moved back, I purposely moved two miles from my brother and the girls.....to re-establish closeness with them. They do love me very much, but his wife - - - she thinks I"m an alien spawn (it was her mother who just died) and doesn't remotely comprehend me...

Oh Dear God, i have turned this into my personal journal, haven't I??? :ph34r: Soon back to spiders/glittery bats/geese/koalas/dingos and the bum draped over the bench. :P Much more fun.

somebody stop me......I had two terrible grandmas, the stinky weird gramma (ewwww - AND SO CELIAC) and the cranky, brilliant tortured bee-och, so no love there. Never had tea wtih a grandma and such a nice conversation that - was it Rinne? - had.....no one cared or paid attention. A bunch of brilliant walking woundeds absorbed in their own pain. So, throughout life I made my own "family" and most of them are still with me, thank you God. Lovely, wonderful friends who "get" my personality. We do have some other rather eccentric charachters in our family, all in drama and music, but they are not around to lessen the load of the quirkiness I carry... ;)

Okay. whew. TMI I am quite sure.....just mending things now with my brother and his family, then will work on the other brother in Indiana.

celiac and gluten-intolerance has hit my family so h ard in areas of depression/addictions and general emotional malaise, guess that's why I'm explaining all of this. I am SO sorry if it's too much.....again, personal journal here.....if only I had the patience to print out 200 pages ;) er - guess I crashed the party in about the last 50.....

BUT THIS IS WHY (shouting here) I AM RESEARCHING CELIAC/GLUTEN INTOLERANCE and the effects it has on one's brain/emotions......and THEN I'll be able to contribute to SCIENCE LESSONS!!!!! :rolleyes:

Thanks for letting me into R-ville, the magical place. Enough ranting about Susan's dysfuntional family history.

GOOD NEWS ON LITTLE MEGGAN - - that made me so happy! God is good!

All of you, Karen with TOO much D (you found the right town!), Cecelia who is only on in eveings - I don't like that! - Rachel with those evil biting ants, somebody with a migraine, poor penguin wth the gluten misery, where is Christine? am going to PM her - - Andrea, so sweet, Robbin - my twin? Picard, thank you, and BTW my best friend is dealign with a teenage son with ADD - VERY difficult and I feel for you - - Vincent, thanks for the updates.....Julie, ambassador of sweetness and light, always......whom did I forget?

where's our Literary Chair Cissie?

A much better day in R-ville. Love to all of you.

Holy crap, looking at the University of Texas requirements for a nutrition/dietetics certification, I have to take FIVE SEMESTERS of chemistry! :o:blink::o:blink::o:blink:

I think I'm going to dig a hole under my desk now.

:lol::lol::lol: IN college, I began to take a chemistry class as wanted to study nutrition/dietetics.....after the teacher said "I'm Dr. So-and-so" I LITERALLY did not understand ONE WORD that came out of his mouth. Had a tutour five days a week, and had to drop out at end of second week....there went that career.....

I'm tellign you, take Paula Deen's recipes and FIX them for us.....

OOPS - edit - confused Picard with Ryan - - so sorry - so Ryan, I do empathize ewith the ADD/teenage son thing....but Picard, I do thank you for the kind PM!

penguin Community Regular

The sad thing is that DH is a chemical engineer. I really should be able to do it, what with an in-house tutor. On the other hand, he tried to help me on my football-player calculus class and it was so simple that he couldn't explain it.

It was like trying to explain to a 2 year old why the color blue is blue. IT JUST IS! I have a feeling that after a good 5 years of more advanced chemistry and engineering that makes my eyes cross, explaining molecular weight is going to be much of the same.

Man. I am so bummed :(

dlp252 Apprentice

Susan - I love reading your journal entries! :D My family is a bit different too...we are not really close. My mom has two brothers that live nearby and she's only seen the one 4 times in the last 40 years or so and the other we only see about 1 time a year. The only family member I see regularly is my mother and aunt. Like you I have friends that are much closer than most of my family.

Penguin - gosh, the thought of chemistry makes me shudder...course I bet I could hsve learned a thing or two about how to rid Rachelville of all those pesky pests had I only taken it.

DingoGirl Enthusiast
Penguin - gosh, the thought of chemistry makes me shudder...course I bet I could hsve learned a thing or two about how to rid Rachelville of all those pesky pests had I only taken it.

Glad SOMEONE can relate to the family disparity...

donna, no chemistry involved, we will simply SMASH the poor, hapless occasional pest we see in R-ville....

jenyanderson Newbie
Holy crap, looking at the University of Texas requirements for a nutrition/dietetics certification, I have to take FIVE SEMESTERS of chemistry! :o:blink::o:blink::o:blink:

That's not even degree seeking!

That immediately gave me a panic attack and an impulse to jump out my office window.

Principles of Chemistry 1

Principles of Chemistry 2

204 Intro to Chemical Practice

310M Organic Chemistry

369 Fundamentals of Biochemistry

OK, granted the organic chem and biochem are a little different for health type majors, but still. Not to mention the U of Texas is a really good school. Really good. Their chem department is ranked, I think. I'm in trouble.

My original career goal was chiropractic. Half a semester of chem 1 fixed that, and I switched to poli sci.

I'M BAD AT MATH! I'M BAD AT CHEM! CAN'T SOMEBODY JUST FRIGGIN TEACH ME HOW TO FRIGGIN COOK?!?!?!?!

I think I'm going to dig a hole under my desk now.

Chelsea,

Woohoo for choosing U of Texas!!!! Go Horns!! Another thing is that a good career to look into is a Registered Dietician or a Dietetic Technician. Those are the people that know diets and how to counsel people on what is right for them. I worked under one at a hospital who specialized in diabetics and she said that is was rewarding for her because she lost her mother to diabetes and a RD who failed to help her understand the dietary implications of her disease. Sorry for the lecture, but but it's another way to be with food and helping people like us.

AndreaB Contributor

Susan,

Add us to your new family. HUGS!

I can only say that your understanding of what is behind your family's depression will make you a stronger person and more compassionate to what they are dealing with. If they choose to stay blind to something like the gluten free diet that would help ease their depression then they will be like many others but you need to do what's right for you. My father would be like those that refuse to give up their food even if their health would benefit from it.

Donna,

The other night about 11 pm I got the shakes, dizzy etc. I hadn't had much in the way of protein. I ate a hot dog, lara bar, apple and fritos. Started out healthy anyway. I started feeling better after the apple as far as shakes but was still hungry. It was sooooo unlike me. I usually can't eat too many fritos or they'll make me sick but they were almost gone before I got to them. I usually only eat two meals during the week and have found if I don't have enough protein at night I get hungry real fast. I never used to be like this that I knew of but I always ate a lot of gluten and soy. And I mean gluten, I made my own gluten with gluten flour and bought some canned gluten as well. I had read a lot of protein wasn't good for the body but mine doesn't seem to agree with that theory anymore. :( I know I don't eat enough fruits and veggies.

DingoGirl Enthusiast

University of Texas....I think that is my deep love, Matthew McConnaughey's alma mater....he of the naked bongo-playing pot-smoking Airstream-driving heart-breaker fame.....I loved him so much I was an extra ON SET wtih him in a movie filming in SF ("Ed TV") but no, I'm on cutting room floor.....what a hoot, stood four feet from his glorious beauty and nearly fainted..... :rolleyes:

penguin Community Regular
Chelsea,

Woohoo for choosing U of Texas!!!! Go Horns!! Another thing is that a good career to look into is a Registered Dietician or a Dietetic Technician. Those are the people that know diets and how to counsel people on what is right for them. I worked under one at a hospital who specialized in diabetics and she said that is was rewarding for her because she lost her mother to diabetes and a RD who failed to help her understand the dietary implications of her disease. Sorry for the lecture, but but it's another way to be with food and helping people like us.

eeeek! booo!!! Hiss!!! RECOIL!!!! Let's make one thing clear:

I AM IN NO WAY CHOOSING THE UNIVERSITY OF TEXAS. (If I could make a horns gesture upside-down on here, I would)

(GO HOGS!)

I happen to live here, and that happens to be the nearest reputable university. If I don't think of it as UT, then it's not! I keep thinking I'm going to be struck by lightning just *thinking* about attending UT. Blech.

Those classes are for the registered dietician/dietetics tech. The nutrition classes look fun, though, it's just the chem that would kill me! :o

VydorScope Proficient

Peng-y isnt there a vocational/trade type school you could go to instead?

penguin Community Regular
Peng-y isnt there a vocational/trade type school you could go to instead?

Ideally, that would be culinary school, but their floury butts can't accommodate me and they suggested I do something else.

As far as nutrition goes? I'd see that as working backwards, I have a college degree, and going to the community college would seem counter-intuitive. There are other colleges in town, but they're private and likely more expensive.

I don't want to know how much red bull I'd need to be able to focus in chem class :wacko:

VydorScope Proficient
Ideally, that would be culinary school, but their floury butts can't accommodate me and they suggested I do something else.

As far as nutrition goes? I'd see that as working backwards, I have a college degree, and going to the community college would seem counter-intuitive. There are other colleges in town, but they're private and likely more expensive.

I don't want to know how much red bull I'd need to be able to focus in chem class :wacko:

WEll why not be self tuaght then? What will the degree get you? There are zillions of books out there to teach you. Or look in to an appreneticship?

jerseyangel Proficient

Hi Susan, I'm glad that you feel that you can come to us and get your feelings out in the open. I think that you are very insightful, and while I'm so sorry that some of your family members continue in their unhealthy ways, you have risen above a lot of obsticles. You live your life with a sense of humor, but don't gloss over the "bad stuff". Your healthy attitude is an inspiration! :) I come from a family who, on the surface, looks like the quinticential happy family group. On the surface. They never say what they mean, and play head games--to the point where it is just normal operating procedure for them. Knowing what I do now about the emotional effects of gluten, I believe that quite a few of them are affected by gluten intolerance. There is certainly a fair amount of depression at work there...I could tell you stories--but I'll hold on to them for now. I did not raise my sons that way (living in a different state than the families has helped!) and it shows. You take care of your cute self--and don't forget that you have your wacky family here ;)

Ideally, that would be culinary school, but their floury butts can't accommodate me and they suggested I do something else.

As far as nutrition goes? I'd see that as working backwards, I have a college degree, and going to the community college would seem counter-intuitive. There are other colleges in town, but they're private and likely more expensive.

I don't want to know how much red bull I'd need to be able to focus in chem class :wacko:

Mean old Culinary School :angry: (I'm giving it the raspberry right now)

This is probably a stupid suggestion but since you already have a degree, would it be possible to get a teaching certificate and teach cooking/home ec.? Not all schools have cut it, the high school I used to work at has it.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,311
    • Most Online (within 30 mins)
      7,748

    SWilson
    Newest Member
    SWilson
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.8k

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Cathijean90! I went 13 years from the first laboratory evidence of celiac disease onset before I was diagnosed. But there were symptoms of celiac disease many years before that like a lot of gas. The first laboratory evidence was a rejected Red Cross blood donation because of elevated liver enzymes. They assume you have hepatitis if your liver enzymes are elevated. But I was checked for all varieties of hepatitis and that wasn't it. Liver enzymes continued to slowly creep up for another 13 years and my PCP tested me for a lot of stuff and it was all negative. He ran out of ideas. By that time, iron stores were dropping as was albumin and total protein. Finally, I took it upon myself to schedule an appointment with a GI doc and the first thing he did was test me for celiac disease. I was positive of course. After three months of gluten free eating the liver enzymes were back in normal range. That was back in about 1992. Your story and mine are more typical than not. I think the average time to diagnosis from the onset of symptoms and initial investigation into causes for symptom is about 10 years. Things are improving as there is more general awareness in the medical community about celiac disease than there used to be years ago. The risk of small bowel lymphoma in the celiac population is 4x that of the general population. That's the bad news is.  The good news is, it's still pretty rare as a whole. Yes, absolutely! You can expect substantial healing even after all these years if you begin to observe a strict gluten free diet. Take heart! But I have one question. What exactly did the paperwork from 15 years ago say about your having celiac disease? Was it a test result? Was it an official diagnosis? Can you share the specifics please? If you have any celiac blood antibody test results could you post them, along with the reference ranges for each test? Did you have an endoscopy/biopsy to confirm the blood test results?
    • Cathijean90
      I’ve just learned that I had been diagnosed with celiac and didn’t even know. I found it on paperwork from 15 years ago. No idea how this was missed by every doctor I’ve seen after the fact. I’m sitting here in tears because I have really awful symptoms that have been pushed off for years onto other medical conditions. My teeth are now ruined from vomiting, I have horrible rashes on my hands, I’ve lost a lot of weight, I’m always in pain, I haven’t had a period in about 8-9 months. I’m so scared. I have children and I saw it can cause cancer, infertility, heart and liver problems😭 I’ve been in my room crying for the last 20minutes praying. This going untreated for so long has me feeling like I’m ruined and it’s going to take me away from my babies. I found this site googling and I don’t know really what has me posting this besides wanting to hear from others that went a long time with symptoms but still didn’t know to quit gluten. I’m quitting today, I won’t touch gluten ever again and I’m making an appointment somewhere to get checked for everything that could be damaged. Is this an automatic sentence for cancer and heart/liver damage after all these symptoms and years? Is there still a good chance that quitting gluten and being proactive from here on out that I’ll be okay? That I could still heal myself and possibly have more children? Has anyone had it left untreated for this amount of time and not had cancer, heart, fertility issues or liver problems that couldn’t be fixed? I’m sure I sound insane but my anxiety is through the roof. I don’t wanna die 😭 I don’t want something taking me from my babies. I’d gladly take anyone’s advice or hear your story of how long you had it before being diagnosed and if you’re still okay? 
    • trents
      Genetic testing cannot be used to diagnose celiac disease but it can be used to rule it out and also to establish the potential to develop celiac disease. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% actually develop it. To develop celiac disease when you have the genetic potential also requires some kind of trigger to turn the latent genes "on", as it were. The trigger can be a lot of things and is the big mystery component of the celiac disease puzzle at this point in time with regard to the state of our knowledge.  Your IGA serum score would seem to indicate you are not IGA deficient and your tTG-IGA score looks to be in the normal range but in the future please include the reference ranges for negative vs. positive because different labs used different reference ranges. There is no industry standard.
    • Scott Adams
      Since nearly 40% of the population have the genes for celiac disease, but only ~1% end up getting it, a genetic test will only tell you that it is possible that you could one day get celiac disease, it would not be able to tell whether you currently have it or not.
    • KDeL
      so much to it.  the genetic testing will help if i don’t have it right? If theres no gene found then I definitely don’t have celiac?  I guess genetic testing, plus ruling out h.pylori, plus gluten challenge will be a good way to confirm yes or no for celiac. 
×
×
  • Create New...