Omg...i Might Be On To Something

[AndreaB]

Yeah, it was stolen right off his wrist.

is right!!!!

Did they get a good look at the person?

[CarlaB]

No, he didn't even notice it was gone until this morning. But he remembers that it was unclasped at the bar, which never happens, so he thought it was strange, reclasped it, and didn't think more of it till it was missing this morning.

His friend had a wad of cash stolen.

Must have been a professional thief.

[aprilh]

Being on abx doesnt guarantee that you'll herx and get better. Some people are taking abx for years and years and still fighting the infection. I dont know of anyone who just has Lyme....however, I do know of alot of people who *think* they only have Lyme and those are the ones who tend to take much longer to recover.

You're bound to have other things to address along the way...its part of the chronic lyme picture. As you address these things you are building your body back up...so that at some point you wont need abx to treat Lyme...your immune system will do it all on its own.

Dont worry about it taking years to get better. If you address these things you will be saving yourself alot of time. You might be treating various things for awhile...but as long as you're noticing improvement and moving forward you wont be feeling so frusterated. You will get to the point that you're doing more things....like homework, hanging with friends, feeling less tired, feeling more positive, etc. Those days will come....little by little you'll feel more like yourself...and it doesnt have to take years.

You may not need to go off of abx...but if thats whats best for you then it just means that you're not benefiting from them right now. Theres no use in taking something that is not helping or that may be causing more harm than good. Unfortunately, alot of people do suffer from taking the abx.

Because your friend had to go off of abx doesnt necessarily mean that shes taking a step backward...it means that shes taking time to prepare her body so that when she does take the abx she will be making progress that otherwise may not be made. In the short term it seems like a hassle....but in the long run it can be a huge difference in the amount of time it takes to recover.

It really isnt such a bad thing...considering that many people do have these types of issues but arent fortunate enough to have good Dr.'s who can get them through it.

You'll be fine.

I think you are right on the money, Rachel!

Kassandra,

If I could see Amy, I definately would. She is nowhere near me and I haven't found another ART practioner, but it sounds like a very important tool in recovery. I wish I could go.

Good luck!

April

[nora-n]

Oh so sorry about the watch being stolen.

About the copying and pasting text from a pdf, there is a T one can click and then one can mark text, highlight it and then the usual ctrlCand ctrl V or how you do it on your keyboard. The funny thing is that on some forums it shows up with an empty line between each line but I do not hink it does here.

do yo9u find the T? There is also a symbol to highlight images to copy them from a pdf. I have the free version, not the professional version.

Test:

"

Cowden protocol: Treatment Arms

of 6 month study

[CarlaB]

Oh so sorry about the watch being stolen.

Thanks.

You know, I was thinking, why would there be such a professional pick-pocket in a bar in Louisville on a Thursday night? I mean, you'd expect that in NY, but Louisville?

Then I remembered it's Derby weekend.

Oh, and it's not covered.

This herx is relentless. I started having some minor air hunger last night, so my regular monthly herx should be kicking in now ..... that's good, because that's generally when a new med herx ends.

[confusedks]

Oh my goodness...no wonder I've been feeling so awful! Aunt Flo is here!!!

[dlp252]

And now for something totally out of nowhere...

I want a Mini Cooper!

Okay, back to your regularly programmed thread.

Oh my goodness...no wonder I've been feeling so awful! Aunt Flo is here!!!

Well THAT'LL do it for sure!

[CarlaB]

And now for something totally out of nowhere...

I want a Mini Cooper!

ROFL! I have one!!! I highly recommend it. I've had mine for three years and it's wonderful.

Sorry about your aunt, Kassandra.

[AndreaB]

Then I remembered it's Derby weekend.

Why did I think the derby was earlier in the year?

Hope your herx isn't bad and you get a break soon.

[tipnpat]

Rachel,

Corn is one of the main allergens - all grains are immune challenging. Potatoes, tomatoes, eggplant, and ?was it almonds are also immune challenging and I'm sure you know dairy is. I'm new and haven't read your previous posts so I don't know what you've tried, but have you tried the SCD diet? In one of the books I've read for ADHD/Autism for my son the doc recommends this diet when the child is not responding to others. You're not a child obviously but helping my son was how I came about helping myself. I noticed in your sig you had candida in March '07. I've read that this can sometimes take awhile to clear, like a year or more sometimes. I came upon a nutrionists' website that took a more thorough approach to candida tx. I'll try to remember what it was.

tipnpat

[Clark Bent as Stupor-Man]

Quick question: Does anyone know of an organic bar that is gluten-free (preferably dairy and soy free as well though not necessarily) that has a decent protein-carb ratio and not made with almonds or cashews? I've actually found a few recently that have good protein-carb ratios (20+g of protein) and satisfy all of the above criteria except for having almond ingredients. Surprisingly enough, I think I'd handle ones made with peanut ingredients better and would think there should be some out there with peanuts the only nut used but haven't been able to find any that don't include the other nuts.

Also, I'm sure some of you know (I saw your reply on lyme net, carla), and you may have already discussed it here, but Blumenthal's investigation into the IDSA has concluded with a number of findings critical of their development of the treatment guidelines and the IDSA has agreed to re-assess their guidelines with certain stipulations implemented. Who knows how it will all eventually turn out but great news nonetheless as far as the investigation goes.

[AndreaB]

Charlie,

Good to see you!.

I don't know of any bars offhand though, sorry.

Carla posted out the ISDA on the lyme thread.......pretty interesting. I'm among those hoping for wide, sweeping changes that will help people with chronic lyme.

[tabasco32]

Rachel,

Corn is one of the main allergens - all grains are immune challenging. Potatoes, tomatoes, eggplant, and ?was it almonds are also immune challenging and I'm sure you know dairy is.

tipnpat

YEah Rachel,

You know what else is bad? CAKE!! Lots and lots of Cake!! Can't wait huh?

[tabasco32]

Don't send me back there again Those people are crazy.

Ha! See Jin your not the only one...

I never go on there hardly ever myself.

[Guest LittleMissAllergy]

Just got my western blot back...

POSITIVE!!!!!

YAYYYY..

wait...why am I so happy about this?

maybe because its an answer

Okay but I need help figuring out what it means. I remember seeing somewhere a guide on how to interpret the results, but now that I'm frantically looking for it, I can't find it. Help!!

So here's the results:

IGG- Result Positive

18 kDa -

22 kDa -

23-25 kDa -

28 kDa -

30 kDa -

31 kDa IND

34 kDa IND

39 kDa ++

41 kDa +++

45 kDa +

58 kDa -

66 kDa -

73 kDa -

83-93 kDa

And then the IGM (what's up with the IGM? I need help with this. haha...) came up negative.

IGM- Negative

The only positive was band 58. What's band 58? Heeeelllppp...hehe..

I'm so excited right now. This is so sad. My family's emotions are so mixed. We don't know what the heck to think.

Antibiotics on Monday....

Looking forward to hearing what you guys think

And I hope everyone is well...well rested, not constipated, and not herxing hopefully hehe. Oh yes, and no missing wedding rings either!

[confused]

i found this about bands

This is something I had copied over from earlier in the thread. Don't remember who first posted it.

18 kDa the specificity of this protein has been recently established; excellent marker for late infections.

9 cross-reactive for Borrellia

12 specific for Bb

18 unknown

20 cross-reactive for Borrellia

21 unknown

22 specific for Bb, probably really the 23/25 band

23-25 outer surface protein C (OspC), specific for Bb

28 unknown

30 unknown; probably an outer surface protein; common in European and

one California strain

31 outer surface protein A (OspA), specific for Bb

34 outer surface protein B (OspB); specific for Bb

35 specific for Bb

37 specific for Bb

38 cross-reactive for Bb

39 is a major protein of Bb flagellin; specific for Bb

41 flagellin protein of all spirochetes; this is usually the first to appear after a Bb infection and is specific for all Borrellia

45 cross-reactive for all Borellia (sometimes people with Lyme who have

this band positive also have the co-infection Ehrlichiosis)

50 cross-reactive for all Borrellia

55 cross-reactive for all Borrellia

57 cross-reactive for all Borrellia

58 unknown but may be a heat-shock Bb protein

60 cross reactive for all Borrellia

66 cross-reactive for all Borrelia, common in all bacteria

83 specific antigen for the Lyme bacterium, probably a cytoplasmic membrane

93 unknown, probably the same protein in band 83, just migrates differently in some patients

[CarlaB]

Congratulations Little Miss!!! I know exactly how you feel .... you can go to pg. 649 and see my reaction to my positive WB. In fact, I asked the same question as you, what does it mean to be IgG positive and not IgM?

Well, for one, it means you're in the minority, most are IgM.

It doesn't matter which is positive, either means you have Lyme. Congratulations on the diagnsis.

[Rachel--24]

YEah Rachel,

You know what else is bad? CAKE!! Lots and lots of Cake!! Can't wait huh?

Thats hysterical Lisa.

Yeah....me want more CAKE!!

Ha! See Jin your not the only one...

I never go on there hardly ever myself.

Me either...its pretty rare that I venture over there these days. I only read posts from a couple members...thats about it.

I got tired of the nasties on that board.

Okay but I need help figuring out what it means. I remember seeing somewhere a guide on how to interpret the results, but now that I'm frantically looking for it, I can't find it. Help!!

You are positive on band 39....its the most specific of all the bands. The only thing that can make that band positive is Borrelia....so no doubt about it...you have Lyme.

Everyone around here gets excited when they are diagnosed. Might sound crazy to those who havent been where we've been....but yeah....it feels REALLY good to get answers.

IGM- Negative

The only positive was band 58. What's band 58? Heeeelllppp...hehe..

Band 58 is not known to be Lyme specific.

Antibiotics on Monday....

Good luck! Let us know how it goes.

[Rachel--24]

The thyroid is overactive, usually due to the presence of toxic metals such as mercury in the thyroid or pituitary glands or other toxic metals such as copper, lead, iron, cadmium or others. Metabolic balancing is usually very effective at restoring normal thyroid activity.

I'm pretty bummed out right now because for some reason I decided to look into my Graves/hyperthyroid....even though its not an issue anymore.

I read all kinds of stuff stating that zinc/copper imbalance causes thyroid problems. The presence of the toxic metals and the imbalances they cause can trigger hyper or hypo....and then its corrected with detoxification and mineral balancing.

Stupid mainstream Dr.'s.

Now I have to take thyroid meds for life but it probably would have completely resolved on its own once everything got back in balance.

[mftnchn]

Here's a link I found that has a nice overview of lyme, and talks about HBO therapy.

I've been looking into this a little bit because I found out that HBO is readily available here. Don't know prices yet though.

I'd love any input you all might have.

Open Original Shared Link

Sherry

[mftnchn]

Little Miss, great to have an answer! And you continue to just fit right in with this group as so many of us do have lyme.

Carla, hope the herx lessens very soon. Sounds rough. I keep wondering if my symptoms are an almost constant herx on the andrographis.

Andrea, that's still a low dose of magnesium. Wish I could give you the numerous bottles of Mg So4 I have that I can't use!! I am sooo glad you are going to celebrate your anniversary! Yay!

Rachel, the scientificness has registered enough that the terms are getting more familiar. I just struggle how to fit the pieces I know about myself into the picture. I need a block of time where I am not tired, brain fogged and way behind on stuff to delve in and try to figure it all out. I have come to the conclusion as well that I need to figure out what to ask for with my doctor. He's good, and he listens to me, but I am the one living in my body and he is only able to help me as I can give him the information that he needs.

Lisa, yeah on the good day, sounds like something I would have enjoyed.

Sherry

[mftnchn]

Little Miss, great to have an answer! And you continue to just fit right in with this group as so many of us do have lyme.

Carla, hope the herx lessens very soon. Sounds rough. I keep wondering if my symptoms are an almost constant herx on the andrographis.

Andrea, that's still a low dose of magnesium. Wish I could give you the numerous bottles of Mg So4 I have that I can't use!! I am sooo glad you are going to celebrate your anniversary! Yay!

Rachel, the scientificness has registered enough that the terms are getting more familiar. I just struggle how to fit the pieces I know about myself into the picture. I need a block of time where I am not tired, brain fogged and way behind on stuff to delve in and try to figure it all out. I have come to the conclusion as well that I need to figure out what to ask for with my doctor. He's good, and he listens to me, but I am the one living in my body and he is only able to help me as I can give him the information that he needs.

Lisa, yeah on the good day, sounds like something I would have enjoyed.

Sherry

[mftnchn]

Constipation and detox treatment from my Chinese friends:

If you can handle raw foods this might work. They take 2 stalks of celery, about 4-5 inches of carrot, an apple, 4-5 inches of cucumber, 1/2 green pepper, and 4-5 inches of "bitter melon", all cleaned, pealed, etc., and blend it with a little water into a pulpy juice.

Drink this within 15 minutes of making it on an empty stomach first thing in the morning.

The ku gua (bitter melon) can be purchased in an Asian grocery or market, and they said using it once a week is okay. They use it every day because it and also kale have beneficial properties for controlling blood sugar.

It's pretty palatable with the apple in it.

Sherry

[mftnchn]

You mean those links with the heavy duty scientificness that my eyes just glazed over on?!?!

Ha ha...I'm not alone it seems. But I keep hoping it will sink in after many repetitions.

Sherry

[AndreaB]

wait...why am I so happy about this?

maybe because its an answer

You're just as excited as the rest of us because you have found an answer! That is exciting because you can start down the road to better health.

Now I have to take thyroid meds for life but it probably would have completely resolved on its own once everything got back in balance.

I'm sorry Rachel.

Andrea, that's still a low dose of magnesium. Wish I could give you the numerous bottles of Mg So4 I have that I can't use!! I am sooo glad you are going to celebrate your anniversary! Yay!

I'd take some. If you still have no use for it next month you can bring some with you.....if you have space for it.

I'm thinking your switch to a new protocol is behind your symptoms. I hope they start getting better real soon. Sounds like the andrographis is working.

Constipation and detox treatment from my Chinese friends:

If you can handle raw foods this might work. They take 2 stalks of celery, about 4-5 inches of carrot, an apple, 4-5 inches of cucumber, 1/2 green pepper, and 4-5 inches of "bitter melon", all cleaned, pealed, etc., and blend it with a little water into a pulpy juice.

Drink this within 15 minutes of making it on an empty stomach first thing in the morning.

The ku gua (bitter melon) can be purchased in an Asian grocery or market, and they said using it once a week is okay. They use it every day because it and also kale have beneficial properties for controlling blood sugar.

It's pretty palatable with the apple in it.

Ok, hubby's ex just had me try a bite of bitter melon a couple weeks ago. I wasn't super impressed with it but I'm sure it would be fine with the other things.......I hate green pepper though! If the apple takes care of that too it might be worth a try.

We went out to the Old Spaghetti Factory tonight. It was pretty good. They serve corn pasta for those who are gluten free. Dear daughter is upset about being excluded next weekend so we thought we'd make it up to her this weekend.