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Omg...i Might Be On To Something


Rachel--24

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Rachel--24 Collaborator

Kassandra,

Heres the list. :)

High sulfur (sulphur) food list:

artichokes, Jerusalem but not French

asparagus

bakery products containing whey, cysteine, eggs or enzymes

bean curd/tofu milk

bean sprouts

beans of all sorts

bok choy

broccoli

brussels sprouts

cabbage

carob

cauliflower

cheese of all sorts

chives

chocolate

coffee

collard greens

cream

daikon

dairy products

eggs

garlic

green beans

horseradish

jicama

kale

leeks

lentils of all sorts

milk from any animal

miso soup

onions

papaya (slightly)

peas I've never seen this on any other list and I can actually tolerate frozen peas

peanuts

pineapple (slightly)

radishes

rutabaga

sauerkraut

shallots

sour cream

soy cheese

soy milk

spinach

split peas

tempeh

Tofu

turnip

greens

whey

yeast extract

Meat is also high sulphur. Most people however, can tolerate it and it depends upon how sensitive you are. If you need to limit meat, then you would also need to supplement amino acids, especially glutamine. This also helps to heal the gut lining.

Also, avoid foods preserved with SULFITES - many chopped vegetables from Supermarkets are preserved with this, so are dried foods, and wines also have it added in. Sulfites are not the same as sulfurs, but some people are allergic to both. A common reaction to sulfites is skin rashes or asthma.

Most processed foods have some sulfites. This site is good for learning about sulfites Open Original Shared Link

Supplements high in Sulphur (avoid):

ALA (Alpha Lipoic Acid or Thioctic Acid)

NAC,

glutathione,

DMSO,

chlorella,

extracts of the high sulphur foods,

bromelain and papain (use enzymes derived from animals)

dairy source acidophilus,

MSM,

cysteine

And things that support sulfur pathways and may help to try:

pantothenic acid (B5 - also helps adrenals)

molybdenum (low in SA soils)

magnesium

glutamine (also heals the gut)

B6 (pyridoxine)

folic acid

Vitamin B12

DMG or TMG (betaine) (also helps the liver)

niacinamide (form of B3)

iron (considering your low ferritin - Dr should advise)

B-50 complex (like Viridian brand - on occasion, some sulfur sensitive people react to thiamine)

-----------------------------

Heres some misc. info.

The negative effects of sulfur on high cysteine people may occur over a 4-7 day period after the last sulfur ingestion.

Sulfur foods can worsen yeast issues.

Symptoms of too much sulfur while high cysteine are:

emotional instability or volatility

depression, lethargy

motor difficulties, other cognitive issues

overactive immune system

Symptoms of introducing sulfur foods after a week of exclusion for high cysteine: "You typically get a couple of hours of feeling good, energized, happy, and then libidinous, then you feel tired, draggy and depressed, which goes on for a day to a week. Of course if you are eating sulfur foods at each meal these all get stacked up and you can never figure out what is happening."

I find that last statement to be true for me. Sometimes I feel really good when I eat something like garlic.....then shortly after I start feeling worse. I used to think it was yeast die-off...but it wasnt....it was too much sulfur. :(

I also get alot of pressure in my head.

Hope this info. helps....and yes....if you get the genetic testing done I'd love to see your results. :)


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confusedks Enthusiast
Supplements high in Sulphur (avoid):

ALA (Alpha Lipoic Acid or Thioctic Acid)

NAC,

glutathione,

DMSO,

chlorella,

extracts of the high sulphur foods,

bromelain and papain (use enzymes derived from animals)

dairy source acidophilus,

MSM,

cysteine

It's funny, I used to use B&P the enzyme, and it never made me feel any better...actually made me feel worse. But, chlorella tested REALLY well for me... so did all of my probiotics. I will leave those in my supplement regimen for now, and if I need to later, I will change them around.

And, thanks for the list. It looks like I'll be eating lots of chicken and hmm...I don't even know! LOL! :lol:

Is there a difference between salicylite foods and sulfur? Because I noticed that apples are not high in sulfur, but I think I remember seeing them on some list somewhere. Also, almonds aren't on this list. Hmm....

Rachel--24 Collaborator
It's funny, I used to use B&P the enzyme, and it never made me feel any better...actually made me feel worse. But, chlorella tested REALLY well for me... so did all of my probiotics. I will leave those in my supplement regimen for now, and if I need to later, I will change them around.

Yeah...if something is working for you you might as well keep taking it. Peas work for me...soooo lots and lots of peas for me. :rolleyes:

I actually threw up 3 times after I started taking chlorella. It was not working for me....but I do test really bad for it. I've never tested well for any of the things on the list and I also dont tolerate those enzymes or most probiotics.

Is there a difference between salicylite foods and sulfur? Because I noticed that apples are not high in sulfur, but I think I remember seeing them on some list somewhere. Also, almonds aren't on this list. Hmm....

Yeah...salicylates are totally different. Foods high in salicylates include most fruits, herbs, spices, most nuts, some veggies. If you can tolerate aspirin you probably dont have a problem with salicylates. Aspirin is really high in salicylate. Other foods that are really high are mint, honey, berries and most spices. Almonds are pretty high too.

Some foods are high in sulfur AND salicylate.....broccoli and cauliflower are high in both.

dlp252 Apprentice
ROFL! I have one!!! I highly recommend it. I've had mine for three years and it's wonderful.

Yeah, I watched "The Italian Job" last night just to dream about it, lol. :lol:

Quick question: Does anyone know of an organic bar that is gluten-free (preferably dairy and soy free as well though not necessarily) that has a decent protein-carb ratio and not made with almonds or cashews?

Gosh, don't know off hand...all the ones I eat have one or more of those (except dairy) of those.

Just got my western blot back...

POSITIVE!!!!!

Congratulations on the diagnosis...! I've updated my Excel spreadsheet with your info, if you have Excel and would like me to email it to you, PM me your email address.

And anyone else that wants an updated sheet, just let me know.

Stupid mainstream Dr.'s. :angry:

Now I have to take thyroid meds for life but it probably would have completely resolved on its own once everything got back in balance. :(

Stupid mainstream docs!

So I realized today that I'm going to be having surgery this week! (Assuming everything goes as planned...) It hasn't hit me yet, but woah! I'm kinda trying to not think about it, but I've never been under general anesthesia before. I've had local, but not general...ahhh!!! :P

Wow! What day is the surgery? I've had general anesthesia a couple of times now...the worst thing that happened was I got nauseated afterwards, but they can give you something for that.

CarlaB Enthusiast
And things that support sulfur pathways and may help to try:

iron (considering your low ferritin - Dr should advise)

I wonder if the problem is a function of low ferritin.

You'll do fine in the surgery. Did you decide which port to get?

Donna, LOL on the Italian Job. Come for a visit, I'll let you drive one. :D

dlp252 Apprentice
Come for a visit, I'll let you drive one. :D

Automatic or manual? :lol:

confused Community Regular

Small update:

Since i stopped the detox foot pads and charcoal, i feel so much better. I took the kids to the park yeesterday and we ran and played soccer and baseball. it was an great day. Last night i stayed up til 1 am watching my hockey game, dang 4 overtimes lol. Today I feel pretty good to.

I am not sure if its from stopping detox tho or from being away from home. What do you all think?

I am also wondering if my body cant detox or something.

paula


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dlp252 Apprentice

Paula, it could actually be a little of both. I don't know why I was having problems detoxing, could be the mold, or the metals or the lyme, or a combo of any or all of them.

AndreaB Contributor
And anyone else that wants an updated sheet, just let me know.

Wow! What day is the surgery? I've had general anesthesia a couple of times now...the worst thing that happened was I got nauseated afterwards, but they can give you something for that.

I think I'm on your always list. :D

Hubby got nauseaous from general too. But that was from having to back the needle out a bite or something like that.

I am not sure if its from stopping detox tho or from being away from home. What do you all think?

I am also wondering if my body cant detox or something.

Boy I don't really know. How long have you been out of the house? Did you stop detox the same time? Could be both. I'm convinced the house was making you sick, it's just whether the other stuff was contributing.

Rachel--24 Collaborator
I am not sure if its from stopping detox tho or from being away from home. What do you all think?

I am also wondering if my body cant detox or something.

I think that getting away from the exposure is bound to make you feel better. The other stuff may have been contributing but I do think being in the house is making you sick.

When your body is overwhelmed with toxins it can be more than what your detoxification pathways can handle. We're all exposed to toxins all day long....most of the time the body is capable of moving them out. If you keep piling on more than what your body can move out...eventually things will back up...and in the process those toxins which are not leaving might start to cause some damage.

The more you overload your system the more things tend to pile on top of what is already there. It means that the more you expose yourself to mold the more susceptible you become to other toxins....including mercury from amalgams (if you have any), infections such as candida, Lyme (if you've been exposed to it), etc. etc.

Eventually too many things can pile up and you may not recover just by leaving the house...thats why its really important to not expose yourself to the mold.

confused Community Regular
Paula, it could actually be a little of both. I don't know why I was having problems detoxing, could be the mold, or the metals or the lyme, or a combo of any or all of them.

It probably is both. I Wish i could get my hair analysis test here, so i can see about metals and such.

Boy I don't really know. How long have you been out of the house? Did you stop detox the same time? Could be both. I'm convinced the house was making you sick, it's just whether the other stuff was contributing.

The house is making me sick, im ready to just blow it up lol. I cant wait for wednesday.

I think that getting away from the exposure is bound to make you feel better. The other stuff may have been contributing but I do think being in the house is making you sick.

When your body is overwhelmed with toxins it can be more than what your detoxification pathways can handle. We're all exposed to toxins all day long....most of the time the body is capable of moving them out. If you keep piling on more than what your body can move out...eventually things will back up...and in the process those toxins which are not leaving might start to cause some damage.

The more you overload your system the more things tend to pile on top of what is already there. It means that the more you expose yourself to mold the more susceptible you become to other toxins....including mercury from amalgams (if you have any), infections such as candida, Lyme (if you've been exposed to it), etc. etc.

Eventually too many things can pile up and you may not recover just by leaving the house...thats why its really important to not expose yourself to the mold.

Thanks for all that rachel. I hate that this house is making me sick. It makes me so sad and mad.

I think my body is super overwhelmed. I hate to see what damage has been done from all this mold in the last few years.

Yes I still have amalgams. I have been looking for an dentist to go to, to get them removed.

I have been reallit trying to figure out everything that is going on in my body. I think once i have the hair analysis done, I can have an better picture at what im looking at. Which to tell you the truth is starting to scare the crap out of me lol.

I should have the mold results by friday. I also put an mold plate in the bathroom. They said to check it after 24, 48 and 72 hours. If there is mold on it then, you have mold. But to send it in if u want to know what kind. I had sent in the one from the kitchen/boiler room. Well its been 76 hours for the bathroom one, I actually didnt look at it last night, and there is two little pink spores. Nothiong compared to what was in the other room. Should i have this one sent in to, or just wait for the other one to come back.

paula

NoGluGirl Contributor

Dear Everyone,

I just wanted to say hello since I have been busy lately. I am 30 plus pages behind, so it will take me a bit to catch up! Meanwhile, this morning I have renewed my SMC membership, called my brother, and some other things. We have been actively campaigning for my cousin, who is running for county commissioner. Tomorrow it is the primary, so it is crunch time!

Another thing that is going on is my step-grandmother fell and broke her arm. She is in the hospital. They were supposed to operate this morning, since it was a nasty tear. Poor Grandma slipped on one of their dog's toys. Being a pet owner is quite hazardous.

We have had numerous earthquakes recently. The last one we had was about a week ago. That one was a 3.3, but two we had since the original 5.2 earthquake were 4.5 in intensity. Our area is seismically active, on top of being in Tornado Alley. I do not think anyone knows what to expect here!

On the bright side, it is not boring lately.

Unfortunately, my Lyme testing will have to wait yet another week. I had to put my Christmas and Birthday money in my parents' account. Since I do not have a driver's license, the bank would not allow me to have an account. Due to medication and other things, we have to use my money to float us until Friday. Between the utilities, house payment, etc., it is just about survival. This certainly does not help the stress level any.

On a more positive note, I finally found some Naturopaths by doing a Yahoo search. The one in Indy does BioSet, too! No one anywhere near here does ART. I would have to go to Chicago for that.

My main concern is how we are going to afford anything at all.

I know some ways we can cut some corners, but whether or not my parents will comply is a different story. For instance, we have a storage unit that would save us $60 per month if we got out of there. Apparently, we have been there since the place opened in 1996! Chances are, if we do not need the stuff in there if we have not missed it yet! Mom and Dad pay someone to do the lawn, because none of us can physically do it. That is $35 per week.

I may just have to mow the yard in sections or something. We really need the money. One good thing is that Wal-Mart has that $4 prescription program. Dad's diabetes medications are the reason we have been coming up short lately. They are over $250! However, if he is able to get them at Wal-Mart, they will only be $8! I will let you know how it works out.

Sincerely,

Jin

P.S. I will type in my usual column soon!

Green12 Enthusiast

Kassandra, thanks for your appt update. When is your surgery?

Paula, what is happening Wed? I'm racking my brain and I don't remember :lol:

Donna, Italian jobs? Mini cooper? It's all over my head :lol:

Rachel--24 Collaborator

I'm having the worst day! :angry:

My car broke down during my commute this morning. Not only did it break down but it broke down in the most dangerous spot.

I was really scared cuz if anyone hit me I was going off a cliff.....and it was still dark out. :o

Luckily they have patrol people cruising all the major commute routes and they spotted me in less than 5 minutes and got me out of there real quick. Those guys were total heroes today....they rescued me in a matter of minutes. :)

I got towed to a safe place for free and then they had another towtruck take me the rest of the way....which was pretty far. My car is at the garage and I dont know how much its gonna cost me...but I'm thinking its gonna be alot. :(

I'm waiting for someone to pick me up and bring me to work. This sucks! :(

dlp252 Apprentice

Aw Rachel, I hope it doesn't turn out to be anything too serious or costly!

Jin, good to hear from you...sorry it's been rough lately!

Julie...mini coopers...very cute, see my new avatar, lol. The Italian Job was a movie released in 2003...the three main getaway cars are mini coopers. You can fit probably two in a normal parking space (one behind the other). :lol:

Green12 Enthusiast

Thanks to Donna Joy, I can now cut and paste from Klinghardt's Lyme protocol, which was in pdf format :D

This is what he said about minerals:

The Mineral Issue

To feed, fuel and perk up the cells of the immune system (especially NK cells and macrophages) numerous interventions have been attempted, mostly based on orthomolecular and herbal medicine principles. We found that amongst those approaches, abundant mineral substitution based on the red cell mineral analysis is most rewarding. Rarely should medical drugs be used.

Amazingly, the most depleted minerals in our Lyme patients are often copper, magnesium, manganese (in Lyme) and iron (in Babesiosis). Bb and Bartonella need magnesium to duplicate and deplete the host

CarlaB Enthusiast
Automatic or manual? :lol:

Manual. ;):D The FUN kind! And I look so cute driving it in my gardening gloves (because of the doxy). :lol:

Small update:

Since i stopped the detox foot pads and charcoal, i feel so much better. I took the kids to the park yeesterday and we ran and played soccer and baseball. it was an great day. Last night i stayed up til 1 am watching my hockey game, dang 4 overtimes lol. Today I feel pretty good to.

I am not sure if its from stopping detox tho or from being away from home. What do you all think?

I am also wondering if my body cant detox or something.

paula

I'd say mostly getting out of the house, but I think the detox stuff always takes a little out of you when you're highly toxic.

I'm having the worst day! :angry:

:(

Green12 Enthusiast

Hi Jin!! Good to see you :)

I hope your rebudgeting ideas will free up some money for treatment, I'll keep my fingers crossed for you.

30 pages is a lot to be behind, I am behind only 3 and I feel stressed about catching up :lol: You should just jump in where we are , I don't think anyone will mind.

Rachel, bummer about your car breaking down, that must have been real scary :( If it's not one thing it's another.....Hope it ends up not being something major to repair.

Sherry, if you didn't get to looking it up here is the exact quote from Klinghardt's Lyme Protocol about the HBOT:

Many treatment modalities have been surprisingly ineffective: ozone, hyperbaric oxygen, ICHT (intracellular hyperthermia).

He doesn't elaborate as to why or give any further explanation in this particular pdf, there might be some other right up where it's talked about more in depth.

dlp252 Apprentice
Manual. ;):D The FUN kind! And I look so cute driving it in my gardening gloves (because of the doxy). :lol:

Well, then, you'd have to give me driving lessons, lol! :lol:

confused Community Regular
Manual. ;):D The FUN kind! And I look so cute driving it in my gardening gloves (because of the doxy). :lol:

I'd say mostly getting out of the house, but I think the detox stuff always takes a little out of you when you're highly toxic.

:(

I bet you do look so cute in your gardening gloves lol. I miss manual vehicles. I get so bored in my automatic lol.

Seeing the words highly toxic just freaked me out lol. I guess i have been in denial over the toxic part and just thought i was slightly toxic. Even tho i knew I was highly toxic, i never wanted to admit to that lol

paula

Julie,

On wednesday i finally get an competent contractor over here to tell me the damage of my mold problem.

CarlaB Enthusiast
Well, then, you'd have to give me driving lessons, lol! :lol:

Oh, then let's rent one! LOL I taught Morgan how to drive a stick when mine was being worked on and I had a loaner. :lol:

You will need to learn to drive a manual ..... so much more fun! When you learn, then you can buy a MINI. :D

I bet you do look so cute in your gardening gloves lol. I miss manual vehicles. I get so bored in my automatic lol.

Seeing the words highly toxic just freaked me out lol. I guess i have been in denial over the toxic part and just thought i was slightly toxic. Even tho i knew I was highly toxic, i never wanted to admit to that lol

Sorry. :( Didn't mean to freak you out. :D But really, any of us who are symptomatic from toxicity are "highly toxic".

I notice that I have a difficult time doing coffee enemas when I'm more symptomatic ..... it's like my body says, "You are done now." But when I am feeling relatively good, I have no problems at all. Plus, if I'm symptomatic, after the ecoffee, I am really, really thirsty.

BTW, my fever is finally gone! I guess the monthly herx was only one day .... but then again, I did a LOT of detox yesterday, so maybe that just shortened it since the herxes are a result of toxins. I even went to the gym today .... and following my normal cleaning when I feel good, I cleaned the kitchen floor when I got home, LOL.

AndreaB Contributor

Jin,

I too, hope you'll be able to get some things done once finances can be rearranged. Don't worry about catching up if it's going to cause you more stress. Just jump back in.

Julie,

Thanks for the quote. I keep going back and forth on whether to get all my teeth done this fall or get 1/2 done and pay down some bills. I'm still leaning towards getting them all done and out of the way though, plus my dentist isn't getting any younger.

Paula,

I hope you guys don't have a lot of mold damage to the house and that the last remodel took care of most of it.

Rachel,

Yikes! I'm glad the cops came around when they did. I hope your car isn't a major expense fix.

confused Community Regular

Rachel,

I hope it doesnt take long to get your car fixed. I would have been freakin out, being broke down that early in the morning lol.

Everyone,

I was wrong with the mold test thing. It says to cheeck 72 to 96 hours later, to make sure there is no slow growing mold present. So i guess i do have mold in the bathroom, like i figured, but was in denial about lol.

Can you all tell im in denial alot lol.

Carla,

Its ok that you said it. It gave me an reality check. I do know one day I will not be so toxic.

paula

rinne Apprentice

Hi, just a quick drive by :) as I am only home for a short break from the restaurant. I am happy to report that with the door closed there have been no repeats of my violent throwing up. I am working seven days a week at least eight hours and sometimes ten or twelve and I am having fun.

I was here yesterday and caught up a bit, Rachel I am so sorry about the STUPID doctors but I know that what you have learned is helping others and hopefully will prevent even one person from going through what you have to.

Everyone else, hello.

Carla, glad the fever is gone.

Hi Mom Andrea. :wub:

They call me mother at the restaurant. lol

Question, does anyone know if Angostura Bitters have gluten in them?

Gotta run but I'll be back and yes Jin do what you can and don't stress, take care of your precious self. :wub:

tabasco32 Apprentice
It basicaly says he has found HBOT to be ineffective for his lyme patients, but that's just one opinion I guess.

There was this Dr. Mike Casey I met at a liquid zeolite city meeting. His wife was fighting with Lyme disease for a long time, about 35 to 40 YEARS! He is a naturopathic doctor and they tried everything, even the hypobaric oxygen treatment. It helped her for a little while then she got sick again.

So he spent all this money on this treatment she was getting in Germany. Thousands of dollars on lots of different treatment. She was almost going into wheelchair stage now.

Then skeptical as they were he got the liquid zeolite and he started using it. He felt great but his wife wasn't taking it. Months later she figured why not. So she started it and it removed a lot of toxins and heavy metals from the body.

See liquid zeolite is a healthy zeolite not abestos not in that family. It is in the family of clinoptilolite and what they do is bind with toxins and heavy metals because it has a negative charge and the metals and toxins have a postive charge.

The great thing about the zeolite compared to other binders is that it does not mobilize the metals and toxins and it also doesn't redistribute them like other binders. Liquid zeolite is better than powder because the powder one already contains too many toxins and metals in it because THATS WHAT IT DOES.

The liquid zeolites cages have been cleaned of metals and toxins due to a high heat cleaning so the cages are empty. I would recomend this to anyone like us who are dealing with all these toxins and heavy metals. It has a inreversible bind in it also. So if you are constipated the toxins wont go back into the tissue.

I know I learned a lot going to these meetings but I need a strong binder that wont make me feel sick or redistribute the toxins.

I feel better because zeolite also balances your ph so your not to acidic or alkaline. I was very acidic and my teeth started getting brown. I couldn't eat my food without lots of salt because I couldn't break it down with my saliva. My food would feel all waxy. That because the bugs like that environment. But they could die in a neutural environment.

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      I’ve just learned that I had been diagnosed with celiac and didn’t even know. I found it on paperwork from 15 years ago. No idea how this was missed by every doctor I’ve seen after the fact. I’m sitting here in tears because I have really awful symptoms that have been pushed off for years onto other medical conditions. My teeth are now ruined from vomiting, I have horrible rashes on my hands, I’ve lost a lot of weight, I’m always in pain, I haven’t had a period in about 8-9 months. I’m so scared. I have children and I saw it can cause cancer, infertility, heart and liver problems😭 I’ve been in my room crying for the last 20minutes praying. This going untreated for so long has me feeling like I’m ruined and it’s going to take me away from my babies. I found this site googling and I don’t know really what has me posting this besides wanting to hear from others that went a long time with symptoms but still didn’t know to quit gluten. I’m quitting today, I won’t touch gluten ever again and I’m making an appointment somewhere to get checked for everything that could be damaged. Is this an automatic sentence for cancer and heart/liver damage after all these symptoms and years? Is there still a good chance that quitting gluten and being proactive from here on out that I’ll be okay? That I could still heal myself and possibly have more children? Has anyone had it left untreated for this amount of time and not had cancer, heart, fertility issues or liver problems that couldn’t be fixed? I’m sure I sound insane but my anxiety is through the roof. I don’t wanna die 😭 I don’t want something taking me from my babies. I’d gladly take anyone’s advice or hear your story of how long you had it before being diagnosed and if you’re still okay? 
    • trents
      Genetic testing cannot be used to diagnose celiac disease but it can be used to rule it out and also to establish the potential to develop celiac disease. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% actually develop it. To develop celiac disease when you have the genetic potential also requires some kind of trigger to turn the latent genes "on", as it were. The trigger can be a lot of things and is the big mystery component of the celiac disease puzzle at this point in time with regard to the state of our knowledge.  Your IGA serum score would seem to indicate you are not IGA deficient and your tTG-IGA score looks to be in the normal range but in the future please include the reference ranges for negative vs. positive because different labs used different reference ranges. There is no industry standard.
    • Scott Adams
      Since nearly 40% of the population have the genes for celiac disease, but only ~1% end up getting it, a genetic test will only tell you that it is possible that you could one day get celiac disease, it would not be able to tell whether you currently have it or not.
    • KDeL
      so much to it.  the genetic testing will help if i don’t have it right? If theres no gene found then I definitely don’t have celiac?  I guess genetic testing, plus ruling out h.pylori, plus gluten challenge will be a good way to confirm yes or no for celiac. 
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