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Omg...i Might Be On To Something


Rachel--24

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Rachel--24 Collaborator
Rachel,

What would be the best thing to do for son then. Will just getting the mold out of the house make an huge difference on him? And of course keeping him away from smoke.

Do you still think that metals is more a factor in my body then the mold is?

I agree with April....I think the priority would be to get rid of the mold. Everyone's body is different so there's no way to know for sure if your son will have huge improvement once the mold is gone or not. Some people recover quickly and others continue to have problems.

I think alot of it depends on genetics. Sometimes once you overload your body with toxins its not able to recover on its own. Thats pretty much the reason all of us are here on this thread. The source of toxicity might vary in each of us....but we are all dealing with a toxic overload.

If your son isnt having any major issues he will most likely be fine once he's not around the mold.

Its impossible to say which is worse for you...the mold or the metals. If you're having problems related to toxicity....they are both contributing. Smoking is contributing as well.....basically if you're already toxic *everything* else adds to the overall body burden.

Metals and problems with mold/yeast kind of go hand-in-hand. So it could be that the metals make you much more susceptible to the mold. It could also be that the mold itself is overwhelming your system making you less capable of dealing with the mercury from your fillings. There's no way to know for sure what came first.....but usually by the time you get sick things have started to pile up....so its not ever just *one* issue at that point.

Okay, since we talk about anything on here... anyone had a transvaginal ultrasound? :ph34r: :ph34r: If you have, can you PM me your experience? Ugh, such NOT a fun topic, LOL! :lol:

I had one. I think I even posted about here in the thread. It wasnt really a big deal....I actually wasnt aware that it was "that kind" of ultrasound....I just thought they'd rub stuff on my tummy like they'd done previously. :huh:

Other than being caught off guard and a bit uncomfortable it wasnt all that bad. It was like getting a paps.

Does anyone know of a supplement or something to get rid of a tapeworm? I have a friend named John and I think he's had it for about 20 to 30 years and it's grown as big as an anaconda and it is literally killing him. He's tried all kinds of supplemental approaches.

I heard that cream of tarter is good. hum......

I took Alinia. Its not a supplement but if he's got a huge tapeworm it might be good to go for the big guns. ;)


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aprilh Apprentice
Well the contractor came today. He said he would do the boiler room for about 4000 grand and make me a closet with empty space in there. But he wants the mold inspector to come, cause he dont trust online mold labs lol. He also wants to check if there is mold in other aras before he gives us a quote to what it is going to cost. He said one reason for mold for out house is that it is not properly vented and wants to put new vents in.

We will be without water for 3 days tho, cause the water heater has to come out for them to do their work. Im like what is 3 days, we were without water for 3 weeks lol. The only bad thing is it might take 3-4 weeks before he has time to do the job. But he said if the mold guy feels it is very important to get it done asap then he will fix it asap.

The mold guy is a friend of ours. Ours kids play many sports together. So I know he will be truthful and honest with us. Now to wait til friday, til he gets here.

paula

who got her nails done and can not type today lol

Paula,

I think its good that he is looking into preventing it in the future by adding some venting. Seems like it keeps coming back - for some reason. I am glad you know the mold guy. Hopefully he will be completely honest with what you need to do.

aprilh Apprentice

I have been doing a little research on Zeolite. Does anyone have a recommended brand? Seems like you have to be careful that the metals were removed in processing.

Guest tamedandfoxed

GAHHH i should be sleeping but i get sucked in when i am trying to catch up and now i can't stop reading!!

I went to Earlham over the weekend-- it's the college i graduated from last summer--i went back for commencement this year. It was surreal and amazing to be back there and see everyone else graduating. It was an experience that totally filled me up. I'm glad I went. I did cheat a few times with dry cider and ice cream (Haggan Daaz caramel--which i don't even know if it's gluten-free! but whatever it was SO GOOD). My tummy was a little bloated and cranky but nothing terrible.

The morning I left the gyno dr called me (or her nurse lady whatever they're called) and told me that the infection is not localized on my cervix (Strep) and they'll just give me antibiotics. I informed her that antibiotics had done NOTHING for it the last three times and was there any other options? "NOPE!" i wanted to throttle them all. I'd told the dr i couldn't handle anymore AB. so much for listening! So I'm going to see a Dr at the University of Michigan on June 3rd. The person on the phone seemed pretty open to treating something without AB so I am hoping that will pay off. I see the Chiropractor next tuesday though, and am hoping for some relief before JUNE! god.

Can you guys tell me more about these detox foot pads? do you get them online? are they specific for something?

And I am totally going to try that whatever veggie blend drink for C in the morning. i think it sounds tasty...

Rachel that car story sounds a) scary and B) the beginning scene of a really good Lifetime movie... god i love Lifetime movies.. sorry it is going to be another costly hassle to tackle. I wish my body did better like yours with crappy foods! lucky! I was eying McDonalds at every exit on the highway over the weekend... sigh.

Funny story: Just now as I'm reading this (haven't eaten anything for about 5 hours) I thought i was "high" in my arms (tingles and such) but then i realized it was just Piper (my golden retriever) snoring hot breath on my arm. It was a very hilarious moment.

Kassandra, I would not take Flagyl there are tons of bad things about that drug! people have had brain issues and such... it's not a stable compound or whatever that science phrase is.. Diflucan has never been a problem for me. And yes, I definitely get the dissociated body thing.. but it's mostly when i'm at work and have cranky customers so i go to my happy place and pretend i'm eating chocolate instead of taking an order of food i cannot eat.. but then they notice and i have to come back. It's not quite the same as what you were talking about, but i get that too. Sorry about your loss. Sometimes the body cannot process things like this.

I've been thinking about exploring mold in our house. Everyone in my family is sick with something... something nonspecific in most cases.. Is there a cheap and easy and SAFE way to begin searching / exploring places for molds??

Oh boy, sleeeeeeepy time!!

glad to "see" you all again!!

~Katy

mftnchn Explorer
Does anyone know of a supplement or something to get rid of a tapeworm? I have a friend named John and I think he's had it for about 20 to 30 years and it's grown as big as an anaconda and it is literally killing him. He's tried all kinds of supplemental approaches.

Hmm, the combo of pumpkin seeds and raw pineapple as a cleansing diet, 3-10 days is just for tapeworm. Pumpkin seeds--the thing gorges on that, it caused paralysis and it lets go for awhile. The bromelein in pineapple kills it. But he might have a hard time staying on these two things long enough to kill it.

Sherry

mftnchn Explorer
I sure hope so! Dr H was VERY vague about it...I assumed it was just a regular pelvic ultrasound. I've had that before, but never a transvaginal! LOL! The tests are getting to be more and more interesting (read: INVASIVE!!!) as the days go by! :lol:

Nope but I watched one--well tried not to but...

Here in China there is no such thing as privacy; I was scheduled for an abdominal ultrasound and was sitting in the row waiting. Seeing woman strip, no sheet no nothing....It was very traumatic!!

Not sure if they use the same equipment in the USA but here it is like a big machine arm thing, with a probe about the size of what they would put in you for a pelvic exam. And it goes inside you like that too...so that the ultrasound can be very specific in that area.

Definitely not pleasant to think about.

My DIL has PCOS and has had two babies and a third on the way. They now treat with one of the medications used to treat diabetes and it is quite effective. It is good to rule this out.

Sherry

confusedks Enthusiast
It was like getting a paps.

I've never had a paps. So, I have nothing to compare it to.


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mftnchn Explorer

Rachel,

Do you know what test is reliable for learning if your cysteine is high? I tested low...but wonder if you have to check in a certain way.

Sherry

CarlaB Enthusiast
I have been doing a little research on Zeolite. Does anyone have a recommended brand? Seems like you have to be careful that the metals were removed in processing.

I take Nutramedix. They have just plain Zeolite that you take first, then you take Zeolite HP. They are energetically treated to pull metals out in the right order.

Kassandra, I would not take Flagyl there are tons of bad things about that drug!

Unfortunately, with Lyme Disease, we often have to take drugs that are a higher risk ..... the disease is a higher risk than the drug, so we take the drug. You always have to weigh the risk.

Here in China there is no such thing as privacy; I was scheduled for an abdominal ultrasound and was sitting in the row waiting. Seeing woman strip, no sheet no nothing....It was very traumatic!!

I couldn't do that .... I just couldn't. :o

I've never had a paps. So, I have nothing to compare it to.

Kassandra, it might be rather uncomfortable if you have never had a pap or been sexually active. Be sure you let the tech know. You've been through a lot worse, though, I'm sure. You'll do fine.

jerseyangel Proficient
Here in China there is no such thing as privacy; I was scheduled for an abdominal ultrasound and was sitting in the row waiting. Seeing woman strip, no sheet no nothing....It was very traumatic!!

Luckily, it's nothing like that here. You are in a room alone with the technician, the lights are dimmed (so she can better see the computer screen) and there are sheets for you to use as needed.

dlp252 Apprentice

Katy,

:lol: very funny! I did an "at-home" mold kit, but I wouldn't say it was cheap...it cost somewhere between $180 and $200 I think, and I don't know how reliable it really is.

Paula,

Wow, the mold guy sounds perfect!

Everyone,

I've got parasites! :angry: !! Kept thinking that it'd been a long time since I did my labs, so I asked when I was at HN yesterday. Sure enough my labs were in, they just hadn't called me. I have to discuss them with the doctor, but the receptionist did show me the stool lab...don't remember the name of the stupid bug, but I know I have to take a prescription to get rid of it. Don't know what the script is for...she couldn't give it to me until I see the doctor, and that won't be until next week. She only works Fridays and Wednesdays in the mornings, and since I have today off for my annual exam, I couldn't take tomorrow off.

Now I feel stupid not taking my second round of Humaworm!! :rolleyes: I knew something was wrong too because I've been having issues and the "rice" things are back.

Stupid bugs! :angry: Harumphf!

AndreaB Contributor

Sherry,

I don't think I could deal with the no privacy thing. :ph34r:

Donna,

Sorry about the unwanted critters. Hope the med is something that does well for you.

CarlaB Enthusiast

Donna, you might get tested to see how well you do with Enula, the Cowden herb. I notice it's getting rid of parasites. :ph34r:

Guest LittleMissAllergy

I'm going to respond to all of the wonderful responses that you all had to my questions about having a social life AND lyme later...this morning my brain is just too foggy :huh: But you all had wonderful things to say. I just love talking to you all.

But ANYWAYS...I've been on Nystatin for three days...and I'm about to take Biaxin for the first time in about an hour...any advice?

I'm also going to get some IVs at the doc today...glutathione, magnesium, and phosphytital choline I think? Anyone ever get one of these?

I've also been on a probiotic for three days for the first time in 2 years...seems like im tolerating it *okay*. I'm kind of worried that it won't be enough though and that I'll have even worse GI issues...hmmm...

dlp252 Apprentice

Candice,

my only experience with Biaxin was with the PrevPac I took last year...it was in conjunection two other meds for H Pylori...it seemed to be okay for me, but I only had to take it for 14 days. I haven't had to do IV stuff YET, but I think that's coming up soon for me.

Carla,

Hum, maybe I'll order some of that, lol. I'm on a couple of Cowden herbs already and I printed off the "schedule" that I found on the website for what not to take with what, lol.

Everyone,

Back from my exam. I lost my mind and let her give me a TETINUS SHOT!!! I can't believe I did that. My arm is very sore at the moment to constantly remind me of my stupidity! :angry::lol:

She also x-rayed my foot to see why my toe hurts so much.

She's running lot of bloodwork, but mostly it'll all be the conventional stuff conventional docs usually run, but she is testing for uric acid to rule out gout. She'll also be checking a couple of other things not usually done.

I had a great nurse today...didn't feel the needles at all, either time.

She is referring me back to Dr. R (gastroenterologist) for followup. It's been a couple of years since I've seen him and I think she'd like to know just as much as I would whether the cells around my ampulla are normal. This all came about because I asked her if any of the testing we did today would catch cancer if the cells had turned cancerous in the last two years. What she said in response was, "well we don't want to wait until it shows up in a blood test". So that's when she suggested I see Dr. R for a followup.

Green12 Enthusiast
I have been doing a little research on Zeolite. Does anyone have a recommended brand? Seems like you have to be careful that the metals were removed in processing.

April, Lisa is the only one I recall taking zeolite. She will be able to tell you.

My DIL has PCOS and has had two babies and a third on the way. They now treat with one of the medications used to treat diabetes and it is quite effective. It is good to rule this out.

There definitely is an insulin component to PCOS

Everyone,

I've got parasites!

Oh no!! Although not so surprising.... :lol:

I meant to ask if you had the Humaworm tested when you went in on one of your last appt, maybe you mentioned already and I just forgot?

WIll you be taking Humaworm or did they give you soemthing else?

dlp252 Apprentice

I never did have the Humaworm tested. If I did it's completely gone from my head, lol. :lol:

There is already a script written for something prescription, but the receptionist couldn't give it to me until I've seen the doctor.

I may try taking more herbal stuff until then.

I sure hope this doesn't delay the DMPS testing! I don't think it will, but I know he wanted to make sure I was over the virus...not sure this is the same thing. As soon as I find out what it is I'll be taking I'm going to call the nurses and ask them if it will interfere or cause any problems with the testing.

confusedks Enthusiast
Kassandra, it might be rather uncomfortable if you have never had a pap or been sexually active. Be sure you let the tech know. You've been through a lot worse, though, I'm sure. You'll do fine.

Yup...that's what I keep reminding myself! LOL! I called Dr H yesterday, and he talked to me about my concerns and said that there won't be any problems. :)

confusedks Enthusiast

Donna,

I tested positive for parasites too...but Dr H won't treat me! LOL! He said it would be too much for my body to handle. And with all this IV stuff, I'm not pushing.

Katy,

Carla said it well about Flagyl. I wouldn't ever take half of the drugs I am taking for Lyme if I didn't have Lyme. I hadn't been on abx since I was 3...so 14 years without them. But it gets to the point where I was no longer willing to live the way I was living, so the risk associated with the abx was so minimal to me.

Guest tamedandfoxed
Katy,

Carla said it well about Flagyl. I wouldn't ever take half of the drugs I am taking for Lyme if I didn't have Lyme. I hadn't been on abx since I was 3...so 14 years without them. But it gets to the point where I was no longer willing to live the way I was living, so the risk associated with the abx was so minimal to me.

Ugh that sucks, i am sorry you have to take those evil drugs..I hope you don't get so loopy that you can't function.. you have my sympathies!

Was it Donna who has the bugs? I forgot and my internets is being fussy... either way, no fun! The idea of something living inside me petrifies me. I think of Aliens the movie.. but i guess it'd be nice to have something to KILL... i mean, yes Yeast is living but it's not the same.. heh

funny story, don't tell anyone: today at work i found a frozen chocolate chip RAW cookie on the floor in the freezer. It disappeared. into my belly. I swear i had nothing to do with it.. It made me really "high" but no other ill effects yet, haha. i'm such an idiot, but i can't help it sometimes. it's only the second time EVER that i've cheated with gluten. (ever being since november..) i think it was a manifestation of my needing to LEAVE Panera. I turned in my application at the health food store. crossing my piglets! :D

Katy

confusedks Enthusiast

I just got a call from Dr H to see how I'm doing! :D I'm so shocked! LOL! :lol: He wanted to see how the IV therapy is going...but nothing is happening until June 2nd.

miamia Rookie
:lol::lol: Donna that cracks me up everytime!

Hi Candice, nice to put a name to the.....name. You know what I mean!

All of these feelings are totally understandable and things we all have had to/or still are working through. It's an ever changing process, I think. On the really bad days the isolation is obviously unavoidable. That's when it's helpful to have a few people in your circle to lean on that know exactly what that is like.

As for relationships, I began a long term relationship after I had been already sick for a handful of years. At first I hid my condition and all that went along with it (i.e. all my appts and food issues). It made things so much more stressful for me, keeping what essentially was a secret, not showing him all of me or my illness which was a huge part of my life.

After talking with a few very wise people I realized that I needed to let him in and share this with him. When I did it was like clouds parted, he was so wonderful, so understanding, and it made our relationship that much stronger. It truly was a test of the "in sickness and in health" or "for better or for worse" aspect of a relationship, and he passed with flying colors :lol:

Often times we don't give people enough credit, there are many caring wonderful people out there that are understanding. And if they aren't, they aren't really the people you want to be with anyway, right?

As for progress, I've taken a lot of steps forward and some steps back. I still have some food issues but I am able to eat so much more than I used to. I am still a work in progress :lol:

Just wanted to mention, you might not want to put your email address out here in the thread. Even though it seems we are only amongst friends, this is a public forum and everyone has access to it, unless you don't care :lol:

Birdy! I'm so happy you had such a great appt, it sounds like lots of interesting things were covered.

Thanks for the links, although I do have to admit my eyes kind of glazed over :lol: I'll revisit them when I am less foggy.

That's awesome about the liver support supplement, and that you now can tolerate some more things :)

I'm not sure about the B's making me sleepy before, but it's been so long I was on just straight B's.

Keep plugging along like you are, things sound very positive for you :D

I did, took lots of Diflucan. It's been several years though so I have no memory of side effects, or how I felt on it.

Excellent idea April to recommend Mold lady for Paula!

Paula, I am so sorry about the mold :( I hope you find some answers and get things fixed quickly. I know you are frustrated and scared, and so many other emotions, probably pissed too!

Hang in there with everything.

I havent written much but i am trying to catch up. Julie- what you said here baout relationships is really beautiful. I am so happy you have someone in your life that is so understanding. It made me hopeful that I too will be able to find someone who will understand and help me get through all I am going through one of these days.

miamia Rookie
Okay, since we talk about anything on here... anyone had a transvaginal ultrasound? :ph34r: :ph34r: If you have, can you PM me your experience? Ugh, such NOT a fun topic, LOL! :lol:

So, that whole PCOS thing that my Dr thinks I have, it's really interesting. I've had just a pelvic ultrasound before, and it came back with "abnormal findings" that basically said one ovary was "enlarged." My dr didn't think anything of it at the time. (This was when I had my period for 90 days, and they wanted to rule out cancer.)

But now looking back, that is one of the diagnostic signs they look for in a regular pelvic ultrasound. But now Dr H wants me to have a more "detailed" one. :ph34r:;)

had one of these becasue the regular ultrasound was not giving them a clear picture. Got to say one of my least favorite memories!!! And the lady took her sweet time. No fun indeed

Rachel--24 Collaborator
I'm also going to get some IVs at the doc today...glutathione, magnesium, and phosphytital choline I think? Anyone ever get one of these?

I've had glutathione...it was not a good experience for me. I dont tolerate oral glutathione and the IV wasnt any better. I ended up testing badly for it so I totally avoid it now.

I've had plenty of magnesium....I was getting trace mineral IV's twice a month. The IV's were a very slow drip so they'd take around 3 hours. If magnesium goes in too fast it can cause some unpleasant symptoms....any time they tried to speed up my IV I would get symptoms from the magnesium.

Guest LittleMissAllergy

Rachel- just got back from my IV, didn't go to well...broke out in a rash and got dizzy for about 15 minutes. But now I'm okay. Have you ever tried glutathione cream? I couldn't digest it either, so that's what I try to do when I'm not doing these silly IVs. I think it was the choline though...isnt it a fat? I react to ALL fats. Oils are the very worst...don't know why.

And Julie, I second what Mia said...what you said about relationships WAS beautiful and it gives me lots of hope :)

It's just kind of hard because at this point in my life, this medical stuff is ALL im doing. Literally. I've got no interaction with the outside world besides this computer and the IV room at the doctor's office <_< I'm sure you all know how that feels though, so I'm sure I'm just preaching to the choir in a sense here!

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    • ZandZsmom
      Are you using the same mixer that you used for your gluten containing baking? That could be your culprit.
    • trents
      I would ask for a total IGA test (aka, Immunoglobulin A (IgA) and other names as well) to check for IGA deficiency. That test should always be ordered along with the TTG IGA. If someone is IGA deficient, their individual celiac IGA test scores will be artificially low which can result in false negatives. Make sure you are eating generous amounts of gluten leading up to any testing or diagnostic procedure for celiac disease to ensure validity of the results. 10g of gluten daily for a period of at least 2 weeks is what current guidelines are recommending. That's the amount of gluten found in about 4-6 slices of wheat bread.
    • jlp1999
      There was not a total IGA test done, those were the only two ordered. I would say I was consuming a normal amount of gluten, I am not a huge bread or baked goods eater
    • trents
      Were you consuming generous amounts of gluten in the weeks leading up to the blood draw for the antibody testing? And was there a Total IGA test done to test for IGA deficiency?
    • jlp1999
      Thank you for the reply. It was the TTG IGA that was within normal limits
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