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Omg...i Might Be On To Something


Rachel--24

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AndreaB Contributor
Oh Donna, you were hoping it wouldn't have to come to this :(:( ....bummer.

I know you have a lot to think over carefully, hope talking to your Dr next week will help with your decision.

You're in my thoughts.

I agree. I was hoping it was more of a lyme thing. I'll be waiting for your update next week.


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tabasco32 Apprentice
Dear Rachel

Happy birthday.

Hope you will have a real birthday cake next year.

Hugs Elisabet

Yeah a real birthday cake. Are you going to wait till next year Rachel???

I feel for some reason more insecure about myself being sick. I feel like no one willl even take a second look soooo.... I just wont worry about that right now.

Hey Julie how are the trivia quizez going?

Donna sorry about your bunions. :(

mftnchn Explorer
I agree. I was hoping it was more of a lyme thing. I'll be waiting for your update next week.

Me too. Although the pain and inflammation of it could still be connected.

Sherry

mftnchn Explorer

I have a best friend/sweetheart with those feelings for 30 years! :wub:

Rachel--24 Collaborator
Yeah a real birthday cake. Are you going to wait till next year Rachel???

Haha....I'm pretty sure we all know the answer to THAT!! :lol::P

I feel for some reason more insecure about myself being sick. I feel like no one willl even take a second look soooo.... I just wont worry about that right now.

Lisa...I felt that way for a long time. Once I got sick I felt soooo insecure...it was another big change that I wasnt really used to. I knew it had everything to do with the illness but there was a time that I felt like I'd never be "myself" again. I told myself I would just focus on getting better and not worry about anything else.

As I started feeling better little bits of ME starting come back. I'd say for the past year (maybe a little less) I've been more secure and feeling better about myself again.

Its totally because of the toxins...once you start feeling better you'll feel less insecure and you'll have more confidance. It happens so gradually that you dont really notice it until you look back and go "Wow....I've really come a long way!" :o

You'll see. ;)

Rachel--24 Collaborator
I have a best friend/sweetheart with those feelings for 30 years! :wub:

Awww....I guess you found the right one! Thats so cute. :)

mftnchn Explorer

Yep, I did! :)


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rinne Apprentice

Yes, much rachelling but then perhaps we carla the carlaing. :P:lol:

I hope you feel better soon Donna. :)

Rachel, what is this of butterflies?

I can't go back. :o

I am wound up tonight, I just got home after a fourteen hour day. If anyone had suggested to me that I would be working seven days a week, ten and twelve hour days, two months ago I would have thought they were crazy but here I am doing it and feeling better all the time.

I think I have found some good help and I am slowly pulling a menu together and looking at upgrading the decor slightly all on a very small budget. I have begun to sell the rinne bars though they are not called that out in the world and I am puzzling over what to call my diner.

I am so grateful each day just to be alive enough and well enough to venture out into the world, I know for too long I felt that I would never have a normal day again, a pain free day. It is possible.

I wanted to mention that the book I learned about the St.John's Wort tea is "Herbs for Health and Healing" by Kathi Keville.

So nice to find so many familiar faces here. :wub:

Rachel--24 Collaborator

Hi Rinne!

I love your updates...they always make me smile. :)

Glad you are still feeling good and still busy making this place "your own". :D

OMG....you guys arent gonna believe this. :o

Total VCS Score: 78, NEGATIVE

Overall Indicator Score: 30

I PASSED!!!!!! :blink:

Apparantly I'm the least toxic! :unsure:

Well...I'm not really sure what this means but I'm pretty happy about it. :lol:

Does it mean that I dont have problems with Biotoxins specifically...or all toxins?? Because really, I'd have to be living in a dreamworld (or extremely high from eating an entire cake :P ) to actually believe I'm not at all toxic. :rolleyes:

Maybe Scott can shed some light. :huh:

Rachel--24 Collaborator

Wow....I just saw my post. Looks like I got a little crazy with the emoticons. :lol:

Anyways....how come my results didnt come with a percentage?? I looked for it several times....its not there.

Maybe my eyes can see tiny (almost invisible) lines but not stuff thats totally staring me right in the face. :rolleyes:

Seriously tho....its not there. Is it because my results werent positive??

confused Community Regular

Rachel.

That is great that you passed the test. I bet you didnt get an percentage since you passed it. I would email them just to make sure that is why.

Rinne,

Im glad the business is goign great. I am so jealous. We have been talking about ownng out own business I just havent figured out what yet and im not sure im ready to work 10 hours an day, even tho i work 24 hours a day with 5 kids lol

paula

aprilh Apprentice
Paula, we still act like that too .....23 years of marriage. :rolleyes:

I have a best friend/sweetheart with those feelings for 30 years! :wub:

That's great! Do you have any special way that you keep the relationship so strong or is it just natural.

Back to emotions, I think that I blocked my emotions and it contributed to my sickness 3 years ago. My hubby is not very supportive of me and thinks all this stuff we talk about is a bunch of junk...which he really doesn't have a clue what we talk about!!! :rolleyes:

Plus right around that time I had my baby boy, we had money issues, went back to work about 4 days after giving birth, had the epidural, no sleep, baby sick all the time and worrying about that......I think lots of stress and more stress compounded and contributed to pushing my body over the edge. And with hubby starting his new business at that time, his head was in the sand and he was working 14 hour days.

I AM GLAD THAT IS BEHIND ME!!!

Rachel--24 Collaborator

Going back to some posts I wanted to respond to yesterday. :)

I have been in a crying mood today. I feel like Jude Law from the holiday.... :( I'm not depressed just......... I don't know something.

Awww Lisa....I hope you're feeling less of the "blah's" today. We all get hit with days like that. There's days I feel like that too....its just that I forgot to how to cry or something. :rolleyes:

Maybe my body just released enough tears in the first few years to last me the rest of my life. My body had enough of the crying....maybe I'm just "over it" it now. :lol:

I still get butterflies when he walks in from work and we still hold hands and act like newlyweds. I could never picture my life without him.

Paula,

I'm happy you found your true love. Your post was really cute. :)

Its great when you can keep those feelings alive and "new".....sometimes people just let love die...or sometimes it was never all that "real" to begin with.

You found a REAL love. :D

I may be getting surgery on my toe. I saw the doctor today, and there isn't much else they can do for it, and it WILL get worse over time.

Awww Donna....I'm sorry you're having to go through this. :(

If its that bad now I'd hate for it to get worse. I hope whatever you decide is gonna relieve you of this pain.

I've never had self control issues .... that's why showing self control around here is called Carla-ing .... not that that word ever has a use around here. :lol:

Carla-ing??? :unsure:

Yeah....I dont think that word applys to me all that often. :P

I dont have much control when it comes to the butterfly feeling either. Once its there...its THERE...I cant push it aside even if the situation isnt ideal for me.

Well...I suppose I could....if thats what I really wanted....just like I could NOT eat tons of bread, cake and other yummy things. Problem is I wanna rachel the butterfly feeling too. :rolleyes:

I figure "WHY NOT".....even if I know no relationship is possible I can still enjoy the butterflies while they're there. It just feels good to have those feelings again. :)

Dear Rachel

Happy birthday.

Hope you will have a real birthday cake next year.

Hugs Elisabet

Thanks Eliabet! :)

I will have cake much sooner than that....no doubt about that. ;)

Hopefully next year I can actually eat it and not feel like bouncing off the walls though. :lol:

AndreaB Contributor
I am so grateful each day just to be alive enough and well enough to venture out into the world, I know for too long I felt that I would never have a normal day again, a pain free day. It is possible.

So nice to find so many familiar faces here. :wub:

So good to get an update Rinne! Glad to hear how well things are going and that you're able to pull the long hours with no ill effects.

Rachel,

That is surprising about your test! :o

I didn't take that test, trying to decide if I want to pay for 2 of them so hubby can take it too. I'll have to talk to him again. We did bookmark the page though......if I can remember what favorites folder we put it in. :P

Rachel--24 Collaborator
Rachel,

That is surprising about your test!

Andrea,

I know! :blink:

It actually does make sense to me though. Especially since bugs dont really show up as huge stressors for me.

Even though they're there they're just not doing much...they arent contributing much to my symptoms. I dont think we would have ever known that without ART. I think in my case the ART and the other tests (including CD57) have been really accurate as far as getting to the root of the problem. Without the additional info. I think I could have ended up treating Lyme based on my symptoms, positive bands and positive IFA test.

I'm always concerned that the bugs can *become* an issue as I'm detoxing mercury but I also feel confidant that if that were to happen these things will start showing up in ART.

I'm not even sure that I have a HUGE load of mercury. Only thing I'm sure of is that whatever is there has had a really big impact on my health. I do think that I'm very toxic but the source of toxicity is different. Phenols are a huge issue for me...as well as ALL of the food chemicals and so many other things which are not actually Biotoxins.

My toxicity score was very high when Anna originally tested me but I *think* that my toxicity is based largely on the fact that certain biochemical/enzyme/pathway type things are dysfunctional and have caused an inability to break down and eliminate these chemicals.

It could be that the bugs are less of an issue because my immune system is still strong enough to handle them...or it could be that they dont have room to grow right now (mercury is holding them back).

I just dont know how heavy my mercury burden is because no test can determine it. It might *seem* like its high but I would also imagine that *any* amount could cause dysfunction....especially in those who are susceptible. I guess only time will tell.

For now all I know is that it shows up as a huge stressor. Dr. M. (who did my LED treatments) had said that my body could handle treating ALL forms of mercury in one LED treatment....while others typically needed 2 or 3 seperate LED's for mercury detox. I dont know if that indicates that my burden isnt as great...but he also said that when he tested me he found mercury to be having a profound effect on my body.

Dr. K states that .... "It is the microbial neurotoxins that are responsible for many, if not most poison related symptoms, not the poisons themselves."

I think it would be the same in all aspects. Mercury is the "poison" which invites the problems but it is not directly responsible for most of the symptoms we experience. The symptoms come from the problems which can develop as a result of the "poison"...whether its microbial, fungal, viral, parasitic....or an inability to process incoming toxic chemicals (like what I'm experiencing).

So now I'm having all the symptoms from every exposure to these toxins but they are a different kind of toxin...which might be why I passed the VCS test.

Thats my guess anyway. I'll mention this test to Amy on the 9th....see if she knows anything about it.

Green12 Enthusiast
Hey Julie how are the trivia quizez going?

:lol: Lisa!!! I was crazy addicted, but I've refrained for a week or two now so I think I am ok.

I'm Carla-ing the movie trivia quizes :D

I have a best friend/sweetheart with those feelings for 30 years! :wub:

Awww Sherry, that's so wonderful to hear :wub:

I am wound up tonight, I just got home after a fourteen hour day. If anyone had suggested to me that I would be working seven days a week, ten and twelve hour days, two months ago I would have thought they were crazy but here I am doing it and feeling better all the time.

I think I have found some good help and I am slowly pulling a menu together and looking at upgrading the decor slightly all on a very small budget. I have begun to sell the rinne bars though they are not called that out in the world and I am puzzling over what to call my diner.

I am so grateful each day just to be alive enough and well enough to venture out into the world, I know for too long I felt that I would never have a normal day again, a pain free day. It is possible.

I wanted to mention that the book I learned about the St.John's Wort tea is "Herbs for Health and Healing" by Kathi Keville.

rinne, what a fabulous update post from you :D. I am so happy to hear you are doing so well!!!

Thanks for the book info.

Keep us posted as to what you decide to name your diner, I would think that would be a fun process.

Back to emotions, I think that I blocked my emotions and it contributed to my sickness 3 years ago. My hubby is not very supportive of me and thinks all this stuff we talk about is a bunch of junk...which he really doesn't have a clue what we talk about!!! :rolleyes:

Aww April, I am sorry you aren't getting much support from your hubby re all these health issues.

You can always vent and share here!

So I am actually feeling really positive about this food allergy test that I had, some of the things I am allergic to I had no idea because I didn't have any immediate symptoms. It's not actually some of the foods I thought, but the ingredients in with them.

i.e. I am not allergic to potatoes or corn but I am allergic to sunflower seeds and sunflower oil so if I ate corn chips or potato chips (or prepared corn or potato products) I was experiencing lots of inflammation due to the sunflower oil they are made with.

Also I am not allergic to sugar or dairy, but when I would have anything with sugar or dairy in it I had mass amounts of swelling and I blamed it on the sugar and dairy. A lot of the things I would eat with dairy and sugar had cocoa and vanilla in them for example and I am allergic to vanilla and cocoa.

I am eating all of my safe green foods, even dairy, sugar, and things I stayed away from before and I am losing a lot of inflammation.

I'm glad I did the test.

confused Community Regular

Ok I have been doing some thinking about my health the last few days since i have actually been feeling pretty good. I need to get all of your input.

1. Why do i feel so bad when i try to detox even by simple ways. I feel worse when i do the foot pads and when i do lots of charcoal and lemon water and detox baths. But yet i feel good when i just stay gluten, casein and soy free. So this is what I am thinking

a. My body cant detox.

b. i dont need to detox. ( i can dream right)

c. im so toxic that even a litlte bit of detox throws my body crazy.

d. other

Also since I did so poorly on the vcs test, does this mean that I am not barking up the wrong tree by thinking mold and metals are an problem for me?

paula

Rachel--24 Collaborator

Heres a list of neurotoxins...in order of importance.

(i)Heavy metals:

mercury, lead, cadmium, iron, manganese and aluminum (are the most common).

Common Sources: metallic mercury vapor escapes from dental amalgam fillings (they contain about 50 % mercury, the rest is zinc, silver copper, tin and trace metals). Cadmium: car fumes, cigarette smoke , pigment in oil paint Lead: outasing from-paint, residues in earth and food chain from time when lead was used in gasoline, contaminated drinking water Aluminum: cookware, drinking water

(ii) Biotoxins:

such as tetanus toxin, botulinum toxin (botox), ascaridin (from intestinal parasites), unspecified toxins from streptococci, staphylococci, lyme disease, clamydia, tuberculosis, fungal toxins and toxins produced by viruses. Biotoxins are minute molecules (200-1000 kilodaltons) containing nitrogen and sulfur. They belong to a group of chemical messengers which microorganisms use to control the host

confused Community Regular

Julie,

That is great news. I have problems with sunflower oil in chips also. What else is sunflower oil in? I amso glad you are doing so much better.

paula

confused Community Regular
Heres a list of neurotoxins...in order of importance.

(i)Heavy metals:

mercury, lead, cadmium, iron, manganese and aluminum (are the most common).

Common Sources: metallic mercury vapor escapes from dental amalgam fillings (they contain about 50 % mercury, the rest is zinc, silver copper, tin and trace metals). Cadmium: car fumes, cigarette smoke , pigment in oil paint Lead: outasing from-paint, residues in earth and food chain from time when lead was used in gasoline, contaminated drinking water Aluminum: cookware, drinking water

(ii) Biotoxins:

such as tetanus toxin, botulinum toxin (botox), ascaridin (from intestinal parasites), unspecified toxins from streptococci, staphylococci, lyme disease, clamydia, tuberculosis, fungal toxins and toxins produced by viruses. Biotoxins are minute molecules (200-1000 kilodaltons) containing nitrogen and sulfur. They belong to a group of chemical messengers which microorganisms use to control the host

tom Contributor
So I am actually feeling really positive about this food allergy test that I had, . .. .

I must've missed this, but it sure looks like the results are helpful.

What test was this & through who where?

Thx in advance, Julie. :)

Rinne! Great update :)

I'm surprised no one asked what you DO call the Rinne bars out in the real world.

"Everything-free Frozen Tasty Treat"?

Rachel--24 Collaborator

Julie, do you have problems with salicylates or high phenol foods?

Cocoa is a huge one....I have problems with sunflower and vanilla too.

I think in *most* cases where we're reacting to foods its not the foods themselves we're reacting to....its the chemical make-up of the food or the added ingredients. The list is long which is why its hard to figure out and most people who react to one type of chemical...will also react to other types.

There's phenols (salicylates), amines, glutamates, preservatives, dyes, sulfur, additives (like aspartame and MSG), etc. etc.

A long time ago I read an article which discussed this and stated that MANY people who *think* they are reacting to dairy are actually reacting to something else other than the dairy itself. We are exposed to alot of different things in the foods we eat...especially the processed stuff so it made better sense to me than to think that my body all of a sudden became "allergic" to every food. It REALLY made sense to me when I'd react strongly to a food that I've never even eaten in my life.

How could I react immediately to something I've never eaten?? It had to be something other than the food itself...which is why I looked into those other things.

confused Community Regular

MOLD OR BIOTOXIN SYMPTOMS

Fatigue

Weakness

Aches

Cramps

Unusual Pain

Ice Pick Pain

Lightning Bolt Pain

Headache

Light Sensitivity

Red Eyes

Blurred Vision

Tearing

Sinus

Cough

Shortness of Breath

Abdominal Pain

Diarrhea

Joint Pain

Morning Stiffness

Numbness

Tingling

Metallic Taste

Vertigo

Memory

Focus/Concentration

Confusion

Decreased Assimilation of New Knowledge

Decreased Word Finding Ability

Disorientation

Skin Sensitivity

Excessive Thirst

Frequent Urination

Static/Shocks

Sweats - especially night sweats

Mood Swings

Temperature Regulation

Appetite Swings

I just found this list and there is not one thing on here that hasnt been a problem for me. So no wonder i did so bad on the vcs test.

paula

AndreaB Contributor
I am eating all of my safe green foods, even dairy, sugar, and things I stayed away from before and I am losing a lot of inflammation.

I'm glad I did the test.

Julie,

That's great news! That test certainly sounds interesting.

Rachel,

Interesting info on the neurotoxins. I may have to break down and do that test. I don't think I'm that toxic, but parasites did come up on ASYRA.

Paula,

That's a pretty long list of symptoms.

Rachel--24 Collaborator

Paula, I agree that the mold and Lyme arent the big issues for me. I would totally *know* if I was in an environment where I was exposed to toxic mold....and I *know* that I'm not.

My Dr. drilled me about this during my first couple visits with him because its such a common cause of chronic illness symptoms. My house was brand new...I watched it it be built from the ground up. It was only 3 years old when I got sick and I didnt feel worse in my house than anywhere else. My symptoms stayed the same regardless of where I was. Same with my mom's house...it was also new when she moved in and I dont feel any better/worse while I'm here.

Food, chemicals, cigarettes, perfumes, alcohol, certain cosmetics...those are the things that were making me worse.

I had ALOT of reaction to molds in my BioSET testing and I also had candida but I dont think I ever had chronic exposure to mold in my environment. My body was reactive to *everything* so I just think I couldnt tolerate molds because they were yet another incoming toxin that my body cant deal with right now. I dont think mold is actually overwhelming my system though.

I went to a friends house a few years ago and he DID have a HUGE mold problem. He had just moved in and I was actually helping him move his stuff. As soon as we got there I noticed I felt much worse. All of my symptoms were worse and I could *smell* the muskiness of mold. It was coming from one end of the house and not as bad on the other side...and with the doors open.

I stayed overnight and I was depressed and crying most of the time. I definately felt better leaving his house and I told him I was never coming back as long as he lived there. He didnt stay there long. He and his roommate realized the extent of the mold problem and they quickly moved out.

So I'm pretty sure if I was being exposed to mold I'd know it right away because of how it affected me when I was at his house.

If you continue to feel better and are not having anymore symptoms I wouldnt be too concerned...but if the symptoms just keep persisting then you probably should continue looking into the other things.

Remember, as we remove each "stressor" we feel a little better each time. Removing the problem foods could help alot, then getting rid of the porch could also give your body a big lift....each thing could make you feel better.

However, if the underlying problem is still there....things may build up....making you feel worse again.

I'm not sure why you arent tolerating the detox stuff very well. There can be so many reasons and its not uncommon at all. It could be that your sysatem was overwhelmed. If you continue to feel better and better maybe you can try these methods again later and maybe you'll be less sensitive to them.

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      BRAND NAME: NOT BURGER PLANT-BASED PATTIES  A product I came across labeled gluten-free bought it when I got home I read the back ingredients further to notice that it says gluten with a line going through it u will see in the attached pics.     The label says down below that it is processed in a facility that also processes "WHEAT".  I tried to put this on the Gov. website as false advertisement but couldn't do it.  Maybe on here at least the word can get out to others not to purchase anything gluten-free without throughly reading the whole label....It won't let me upload 2 pics.  says to contact manager.   The products name is Not Burger    INGREDIENTS: Water, Pea Protein, Coconut Oil, Sunflower Oil, Natural Flavors, Bamboo Fiber, Less than 2% of: Methylcellulose, Dried Yeast, Rice Protein, Salt, Cocoa Powder Processed with Alkali, Psyllium Husk, Potato Fiber, Red Beet Juice Powder (color), Chia Protein Concentrate, Spinach Powder.   Manufactured in a facility that also processes wheat and soy.          MANUFACTURED FOR: The NotCompany, Inc, 438    Treat Avenue, San Francisco, CA 94110.
    • jimmydee
      Let me start by saying that I am self- diagnosed Celiac. I didn't want to pay for tests, because I don't have health insurance and the doctor said I would HAVE to eat gluten for the tests and I am afraid it will kill me. I diagnosed myself by quitting dairy, sugar and gluten for a couple weeks and figured out the problem by process of elimination.  ANYWAYS.......here's why I blame "Aspirin low dose safety coated" for my Celiac Disease.  I started taking regular Aspirin for a couple weeks for back pain and decided to switch to low dose safety coated Aspirin because I thought a smaller dose was safer for regular use. Well about 3 days after starting low dose safety coated aspirin, I got a terrible UTI. I didn't know what to do (should have gone to doctor) I started taking cranberry pills and read Aspirin can cause UTIs, so stopped taking that. A week later, the UTI was getting worse but then my Dad gave me some probiotic pills and the next day I felt better, so I took those for a week and the UTI was gone. About a week later, I bought my family cake and pizza for a birthday party. I ate a whole bunch and there was some leftover the next day, so I ate a bunch again. Welp, that was my first Gluten attack. I was home alone and almost called an ambulance, my stomach was so full of gas I couldn't breathe, I was covered in sweat and thought I was having a heart attack.  Since quitting Gluten I haven't had the "gas attacks" or had the awful constipation that lasts 3 days. So I'm certain I'm Celiac and I absolutely blame low dose safety coated Aspirin, I think it's the time release binder that is the problem, because I was fine with regular aspirin, I was just breaking those into halves or quarters. Actually now that I think about it I may have even used the regular aspirin at other times in my life before that, just not the little low dose safety coated Aspirin, that's what I think caused it. What's weird is my Dad took the low dose safety coated Aspirin for years and years, for it's reported heart benefits, and he never got Celiac.  Anyways, I felt this was important to share, so they can find the cause of this disease, which seems to be affecting more people than ever before. At least Gluten Free Pizza exists, that's been my new staple food in my diet.         
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