Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something


Rachel--24

Recommended Posts

Rachel--24 Collaborator
MOLD OR BIOTOXIN SYMPTOMS

Fatigue

Weakness

Aches

Cramps

Unusual Pain

Ice Pick Pain

Lightning Bolt Pain

Headache

Light Sensitivity

Red Eyes

Blurred Vision

Tearing

Sinus

Cough

Shortness of Breath

Abdominal Pain

Diarrhea

Joint Pain

Morning Stiffness

Numbness

Tingling

Metallic Taste

Vertigo

Memory

Focus/Concentration

Confusion

Decreased Assimilation of New Knowledge

Decreased Word Finding Ability

Disorientation

Skin Sensitivity Excessive Thirst

Frequent Urination

Static/Shocks

Sweats - especially night sweats

Mood Swings

Temperature Regulation

Appetite Swings

I just found this list and there is not one thing on here that hasnt been a problem for me. So no wonder i did so bad on the vcs test.

paula

Paula...I highlighted the ones that have been problems for me.

I think if you are having this many symptoms and they arent totally resolving then you probably should continue trying to get to the bottom of it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 33.4k
  • Created
  • Last Reply
confused Community Regular

I didnt finish that post cause the tree guys came knocking lol.

I wanted to say I have had all of those symptoms at one time or another. I am not having them all now. The major one I am dealing with is the red eyes. They get better for a bit then they get worse. My mom was here when i had the oldporch was still up and my eye was just a littel red. We spent 2 hours on the porch talking and my eyes kept getting redder. My mom was the one to notice and i was like well i bet its my allergies. But now i know it was from the porch.

I can tolerate alcohol just fine, which i find kinda odd, since so many of you cant.

I have been going from room to room spraying tea tree oil to kill any mold that still might be here. I aslo got the mold cleaner from my mold inspector last night and I am going to start cleaning with that.

Rachel,

I agree i always start to feel awesome when i first take away something but then it all comes back. That is why im not too optimisitic that i am going to stay feeling this way lol. I remmeber when i gave up gluten, i was like wow im normal again, well then 2 months later i had to give up dairy, then soy, they garlic and onions, then beans. After every time i thought i was cured. Now i get rid of the porch and i think im cured (which i know I am not), im just in remission.

ughhh cant finish my train of thought again, contractors need to leave me alone lol

CarlaB Enthusiast
I PASSED!!!!!! :blink:

Apparantly I'm the least toxic! :unsure:

:lol: :lol: :lol: Who woulda guessed THAT?!! :lol: But you have been working hard on this for quite some time now.

I never took the test.

Three days ago I started feeling human again, today I don't even feel sick. :) I give today a 92%.

That's great! Do you have any special way that you keep the relationship so strong or is it just natural.

No, I don't think there's anything natural with a man and a woman getting along! :lol: :lol:

I think the secret is that I take care of him and he takes care of me. When you're fulfilling each others' needs, then you don't tend to think so selfishly. If you don't feel like your getting enough, maybe you're not giving enough. (rhetorical "you")

It's easy to fulfill a man's need .... his job is much more difficult! LOL First he has to figure out what we need/want, then he realizes there's so much more on our list than his .... but if he's taken care of, he'll do everything he can to take care of you.

Carla-ing??? :unsure:

Yeah, remember the 1/4 of a donut??

I can tolerate alcohol just fine, which i find kinda odd, since so many of you cant.

This has come and gone with me. Sometimes I'd drink just fine, other times I'd be sick for days after just two drinks.

Green12 Enthusiast
I must've missed this, but it sure looks like the results are helpful.

What test was this & through who where?

Thx in advance, Julie. :)

Hey Tom, yeah I haven't talked about it all that much so you didn't really miss anything :lol:

It's the LEAP test, a MRT (mediator release test) Food Sensitivity Test and then a LEAP Immunocalm plan based on those results, through Signet Diagnostics.

My Dr has had great results with many of his patients.

It's a blood test and it quantifies how strongly your immune cells react to the foods/chemicals tested by measuring intracellular mediator release indirectly. Chemical mediators such as histamine, cytokines, and prostaglandins when released from immune cells produce damaging effects on body tissues and symptoms result.

So the test serves to identify these harmful foods/chemicals to eliminate and the individualized LEAP eating plan systematically builds your diet of foods that are tolerated in order to calm the immune response.

Rachel--24 Collaborator

I communicated with Scott about my VCS results. He said the test is not for mercury....its for biotoxins...so basically the toxins produced by living organisms.

Thats what I was hoping because since those things dont show up in ART....and mercury does...then it does make sense that I would pass the test. :)

However, there is this statement on the VCS site.

As noted in the full text of our peer-reviewed research articles available in Our References, chronic exposure to organic solvents, mercury and some other neurotoxins, and well as some medical conditions, can cause VCS deficits. VCS deficits induced by these neurotoxins are not thought to be reversed by use of our treatment protocol or any other known treatment protocol (although one physician treated a case with positive results for what was thought to be illness induced by mercury exposure, that case may have actually been ill due to biotoxins).

Some of our registered users who had chronic exposure to solvents or other neurotoxins causing irreversible deficits used our VCS test to demonstrate an effect from those exposures.

Green12 Enthusiast
Three days ago I started feeling human again, today I don't even feel sick. :) I give today a 92%.

Yeah, remember the 1/4 of a donut??

92% is pretty darn fabulous :D

I remember your 1/4 of a donut, Carla-ing to the major degree :lol: If I have a donut I would be having several, not just one....and never 1/4 of a one! There's just no Carla-ing in me.

AndreaB Contributor
I remember your 1/4 of a donut, Carla-ing to the major degree :lol: If I have a donut I would be having several, not just one....and never 1/4 of a one! There's just no Carla-ing in me.

Ditto on this! :P

Carla,

I also agree that it's great you are feeling so good! :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CarlaB Enthusiast
92% is pretty darn fabulous :D

Yes, it is. :D I was dragging in the morning, but was still up by 10 (I wake up and just lie around after taking my thyroid meds, which has to be an hour before I eat), then I got up and was fine.

This afternoon I was at the softball game longer than I thought I would be so got a little sunburned .... thought it would be over about 30 min. after I got there, but it was more than an hour .... so I'd a little drained from that ... you know how a sunburn drains you a little? But other than that, it's good. :)

The nice thing about being able to eat just a little bit of a donut is that a sample at Starbucks is plenty .... I don't actually have to buy a treat. :lol:

dlp252 Apprentice

OMGosh, what is the world coming to when Rachel passes a toxicity test! :lol: :lol: :lol:

Thanks one and all for the commiseration (how do you spell that stupid word anyway, lol).

Well, last night I took my last Tindamax and the last Amphotericin-B!!! Hope all the stupid bugs are gone.

I'm caught up reading, just don't have a lot to comment on that hasn't already been said, lol. My back is killing me today so just came on to say hello...going back to the couch now, lol.

Rachel--24 Collaborator
OMGosh, what is the world coming to when Rachel passes a toxicity test! :lol: :lol: :lol:

I know....its CRAZY! :o I still cant believe it myself.....even though these infections arent a big problem for me its still hard to imagine that I'd pass ANY kind of toxicity test! :lol::lol:

Yeah....it was a nice birthday present...but we'll see how well I do on the porphyrin test. <_<

That one is indicating toxicity from heavy metals.

Rachel--24 Collaborator

By the way....how was the VCS for you guys that took it?? Could you guys not see the bars? For me the lines were pretty clear I went through it really fast because I could see everything on the screen. Towards the end there were a few that appeared blank to me.

I was thinking I wouldnt do well because one of my symptoms I get from food chemicals is blurred vision. I ate a bunch of stuff a couple hours before I took the test and my eyes were kind of blurry but I wasnt having any difficulty seeing those lines.

I missed 6 out of 45 on each eye....so 12 out of 90. Interestingly they were the same 6 boxes with each eye. :huh:

confused Community Regular

When I took the test,there were so many that i could not see. It just looked like tons of little dots on the square. I could not see any line. There were even times i would really try to focus to see and nothing. I tried to get back on the website to see how many i missed, but i could not log back in for some reason.

Rachel,

Did you check alot of the symptoms that they asked in the question part. I admit i checked more then half but not all of them.

paula

ShadowSwallow Newbie

Julie, yay for progress with the foods and less inflammation!!!! :D :D :D

Rachel,

I couldn't see any bars at all. Nothing. It just looked like white screen to me, well, except for the colored "fireworks" dancing across the screen. :lol::P And we had inverted scores... I only got 12 right overall. :P

Paula,

I know this really isn't what you want to hear... but my allergist told me a while back that you can never get rid of mold in a building. The spores are everywhere and it will only "go into remission" (where there's no visible mold), but they'll still be there making you sick. Also, he said that when you move due to mold any books/papers/cushioned furniture need to be tossed out or you'll just move the spores into the new house, and all the bedding/clothing/fabric needs to be washed (in hot water with strong soap) before it gets into the new house or it will just spread the problem. Very daunting and discouraging... but he knows his stuff. :( :(

Rachel--24 Collaborator
Rachel,

Did you check alot of the symptoms that they asked in the question part. I admit i checked more then half but not all of them.

paula

Yeah...I checked alot of them. I tested positive for parts A and B. I've had most of the symptoms but I think the source of toxicity isnt related to biotoxins...so I passed the VCS.

Heres my results:

0 - you have this symptom more often than when you were well

1 - you have this symptom only slightly more often since becoming ill

2 - you have this symptom somewhat more often than before becoming ill

3 - you have this symptom quite a bit more often than before becoming ill

4 - you have this symptom very much more often than before becoming ill

--------------------------------------------------------------------------------

0 Cough

0 Short of Breath

0 Diarrhea

0 Dizzy after standing

0 Vertigo

0 Red Eyes

1 Metallic Taste

1 Tearing

1 Disorientation

1 Sinus

2 Muscle Cramp

2 Joint Pain

2 Skin Pain

2 Confusion

2 Weakness

3 Fatigue

3 Muscle Ache

3 Depression

3 Abdominal Pain

3 Tingling

4 Reduced Concentration

4 Memory Loss

4 Bright Light Sesnsitivity

4 Headache

4 Other

Rachel--24 Collaborator
Rachel,

I couldn't see any bars at all. Nothing. It just looked like white screen to me, well, except for the colored "fireworks" dancing across the screen. :lol::P And we had inverted scores... I only got 12 right overall. :P

Wow...does that mean you couldnt even see the boxes?? Could you see the "samples" on the bottom?

I think I would have gotten frusterated if I couldnt see the lines at all. I know I was pretty bothered by the few that looked totally blank to me. Since I had seen all the other boxes so clearly I was wondering why those few were showing me nothing. I was thinking maybe it was a "trick" and that there really wasnt anything there to see. :lol:

Apparantly it wasnt a trick though...cuz those were the ones I missed. :P

ShadowSwallow Newbie

Nope, I could see the sample boxes just fine... just nothing above them (other than the lettering and that black horizontal line that popped up during the last few). It was really frustrating, though. :lol:

AndreaB Contributor

Birdy,

That is scary (if you will) about having to replace everything, thoroughly wash everything. Some things would get ruined in hotter water. :(

confused Community Regular

Rachel.

Mine didnt ask questions like that, i just had to say yes or no. I also cant find what i aswered to them. I did look and found i missed 15 from left and 13 from right. It also showed that i missed the top one in every row. That is why I did so bad.

Birdy,

I know when we had the major mold problem, we had to get rid of everything. We threw away all dishes, everything in the closets, they took out all floors and walls that were affected. That is why the insurance paid over 65,000 to replace everything. The only place that has mold left is the boiler roon and nothing is in there but the boiler and water heater.

paula

ShadowSwallow Newbie

Andrea, yes, that's very scary. I hope I never have mold issues. Ever. :(

Paula, I hope that took care of your mold issues elsewhere. But if you keep narrowing things down and nothing else really comes up, it's something to keep in mind. :)

Everyone,

So I'm thinking of calling my dr up and asking if he'll prescribe a desonide cream (very weak steroid) that's supposed to be ok for topical use on the face. I'm kinda worried that he'll wonder what I was doing looking up this stuff, but, gracious, it hurts! And I'm very unsure that anything herbal will help at this point. :(

Birdy

AndreaB Contributor
And I'm very unsure that anything herbal will help at this point. :(

I'm sorry Birdy. :(

aprilh Apprentice
:lol: Lisa!!! I was crazy addicted, but I've refrained for a week or two now so I think I am ok.

I'm Carla-ing the movie trivia quizes :D

Awww Sherry, that's so wonderful to hear :wub:

rinne, what a fabulous update post from you :D. I am so happy to hear you are doing so well!!!

Thanks for the book info.

Keep us posted as to what you decide to name your diner, I would think that would be a fun process.

Aww April, I am sorry you aren't getting much support from your hubby re all these health issues.

You can always vent and share here!

So I am actually feeling really positive about this food allergy test that I had, some of the things I am allergic to I had no idea because I didn't have any immediate symptoms. It's not actually some of the foods I thought, but the ingredients in with them.

i.e. I am not allergic to potatoes or corn but I am allergic to sunflower seeds and sunflower oil so if I ate corn chips or potato chips (or prepared corn or potato products) I was experiencing lots of inflammation due to the sunflower oil they are made with.

Also I am not allergic to sugar or dairy, but when I would have anything with sugar or dairy in it I had mass amounts of swelling and I blamed it on the sugar and dairy. A lot of the things I would eat with dairy and sugar had cocoa and vanilla in them for example and I am allergic to vanilla and cocoa.

I am eating all of my safe green foods, even dairy, sugar, and things I stayed away from before and I am losing a lot of inflammation.

I'm glad I did the test.

Julie

This is great that you are getting to the bottom of some of the foods. Hopefully, inflammation will continue to go down and no more outbreaks!!!

The nice thing about being able to eat just a little bit of a donut is that a sample at Starbucks is plenty .... I don't actually have to buy a treat. :lol:

A sample just gets me started. Then I want to Rachel it!!! I wish I had more self control.

confused Community Regular

I was just wondering how much sleep does everyone get. Like hat time do u usually go to bed and what time do you get up, When I read that carla gets up at 10, it made me think of this.

I go to bed between 9-11 and get up at about 5 every morning. If I sleep in it is til 6 am.

paula

Green12 Enthusiast
Everyone,

So I'm thinking of calling my dr up and asking if he'll prescribe a desonide cream (very weak steroid) that's supposed to be ok for topical use on the face. I'm kinda worried that he'll wonder what I was doing looking up this stuff, but, gracious, it hurts! And I'm very unsure that anything herbal will help at this point. :(

Aww Birdy, sorry you are having so much discomfort. I don't blame you for wanting to try anything that might help alleviate the breakout and the pain.

Julie

This is great that you are getting to the bottom of some of the foods. Hopefully, inflammation will continue to go down and no more outbreaks!!!

A sample just gets me started. Then I want to Rachel it!!! I wish I had more self control.

Thanks April :) I am hoping the same, my fingers are crossed for sure!

I am the same, a sample would only be a warm up for me :lol:

I was just wondering how much sleep does everyone get. Like hat time do u usually go to bed and what time do you get up, When I read that carla gets up at 10, it made me think of this.

I go to bed between 9-11 and get up at about 5 every morning. If I sleep in it is til 6 am.

I get about 9 or 10 hrs, on bad days I sometimes will sleep more. Sometimes it is less if my symptoms are interfering with my sleep, but for the most part I get between 8-10.

Sleep to me is just as an important part of a healing protocol as anything else.

confused Community Regular

Julie,

I have never been an person that has needed lots of sleep. In college I use to function on like 2-3 hours of sleep and be just fine. When i worked and was in college, i would be lucky to get 4 hours sleep, i worked graveyards alot. Then after that I got married and popped out 4 kids in 5 years, so i never slept then lol. So now that I get 6-8 hours of sleep, it is alot for my body. Of course I still have days that I have to take small naps, if hubby is home. I cant nap when the kids are home and im the only adult. I really dont know what i would do if i needed more sleep then that to function.

paula

confused Community Regular

Birdy,

The whole house has been tested for mold, we only have dead mold spores that we are killing in the boiler room as we speak. Once those are all dead, the house will be mold free.

paula

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,128
    • Most Online (within 30 mins)
      7,748

    Paulen
    Newest Member
    Paulen
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      69.9k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      It took me 2-3 years to feel like my gut recovered, and then I still had gluten ataxia issues for well over a decade.  This study indicates that a majority of celiacs don't recover until 5 years after diagnosis and starting a gluten-free diet: Mucosal recovery and mortality in adults with celiac disease after treatment with a gluten-free diet However, it's also possible that what the study really shows is the difficulty in maintaining a 100% gluten-free diet. I suspect that if you looked closely at the diets of those who did not recover within 2 years might be that their diets were not 100% gluten-free. Perhaps they ate out more often, or didn't understand all of the hidden ingredients where gluten can hide. Either way, it shows how difficult recovery from celiac disease can be for most people. According to this study: This article explores other causes of flattened villi:    
    • Thelma Cadieux
      Good idea, but make sure she does not require lactose free cheese,it is common in celiac patients. 
    • pmarklesparkle
    • pmarklesparkle
      I was diagnosed with dermatitis herpetiformis and ultimately celiac disease in September 2024.  I am trying to navigate the world with celiac, unsuccessfully, still having dermatitis herpetiformis outbreaks.  Grocery shopping is difficult, shopping for toiletries is nearly impossible. Dining out is also a challenge. Can anyone recommend iPhone apps that will make these easier?  Thanks so much!
    • trents
      Welcome to the forum, @pmarklesparkle! Thanks for sharing your diagnostic journey as it may be helpful to others who are getting mixed results during the diagnostic phase. Kudos to the gastro NP who dug deeper and ordered the endoscopy/biopsy. You may also wish to investigate a low iodine diet to get a handle on your continued outbreaks of dermatitis herpetiformis.
×
×
  • Create New...