Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something


Rachel--24

Recommended Posts

mftnchn Explorer
The problem areas correlate with meridians if I'm not mistaken. The kids had lots of tooth things come up with ASYRA, I forget about me and Mitch.

I specifically asked to her muscle test me for cavitations and then the xray the dentist wanted also showed them.....because he knows what he's looking for.

My root canal was number 3 and I had a nasty cavitation under that one, but my ASYRA came up with #5, 6 and 11 for disturbances. Those refer to the meridians they are connected to.

Oh, then it could be as it sounds like the opposite side corresponds!

Okay, I already wrote and mentioned this to Dr. E and asked for an appointment on the 25th if at all possible.

Andrea, was it the dentist you mentioned who did the x-rays? There's no one in Portland that does that? How hard is it to get into the one in Seattle?

Sherry


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 33.4k
  • Created
  • Last Reply
AndreaB Contributor
Okay, I already wrote and mentioned this to Dr. E and asked for an appointment on the 25th if at all possible.

Andrea, was it the dentist you mentioned who did the x-rays? There's no one in Portland that does that? How hard is it to get into the one in Seattle?

My dentist doesn't do xrays himself. He had us go to some other place for a panoramic, they did the xrays and then we waited 10-20 minutes and they gave them to us to take to the appointment. He's easy to get into for the most part. I think the hours were 9-5 M-Th.

There are dentists in Portland who can do this, but they were more expensive. The one I'm seeing told me I don't need more crowns which I had thought I did (from the previous dentist who did my crowns) so I was thinking it would be a lot more than it's going to be. I know of 2 in Portland that I'd checked into. I can dig up the names if you'd like. I do remember the business name of one of them though.

confusedks Enthusiast

I'm sick of sleep problems. :angry: Dr H gave me the highest dose of Lunesta and it has done NOTHING!! I'm still wide awake hours after taking it. :( I have to call tomorrow and ask for something else. I just need something to GET me to sleep.

(Sorry for the vent...this is just getting old ;) )

mftnchn Explorer

Andrea,

I think my current dentist did a panoramic view last winter, do you think that would be enough if I ask for copies? So that is how the diagnosis is made, just looking at the x-rays?

Yes, I'd appreciate the names if you can find them. Portland would be much easier for me, but I will need to figure out the projected cost and whether I have enough coverage. I also need to ask if this is for medical reasons if it might have more coverage than simply dental work.

I can't get to the website of the Seattle person. :(

Thanks for your ideas and help.

Sherry

mftnchn Explorer

Re: digestive enzymes I take prescription pancreatic enzymes, 2 with each meal. The current ones are called pangestyme UL20. Then I take Carb Digest (Kirkman) and Digest Plus (Professional Formulas). So I am on a LOT of enzymes.

Kassandra, have you had neurotransmitter levels done yet? I was surprised to get a huge help with sleeping from taking Travacor, which is a neurotransmitter support. Insomnia got worse for awhile last month but now is better again.

Sherry

CarlaB Enthusiast
I'm sick of sleep problems. :angry: Dr H gave me the highest dose of Lunesta and it has done NOTHING!! I'm still wide awake hours after taking it. :( I have to call tomorrow and ask for something else. I just need something to GET me to sleep.

(Sorry for the vent...this is just getting old ;) )

Try the Sonata I just started. I take it at 3AM when I wake up and it works for fast I can't even remember if I got up, I have to really think about it.

I'm taking two of my girls up to Akron (4 hours away) for a professional women's softball game with some of their teammates. I think it will be a fun trip. My girls are on a great team where the coaches really teach them. They play our local league, but are not part of it .... they are undefeated. :) Anyway, we're spending the night there, so I'll catch up tomorrow.

confused Community Regular
Paula, I've never heard of it. I tried to look it up but couldnt find anything on it.

Ill find the information later on today and post it. I gues i should of done that last night lol

I'm sick of sleep problems. :angry: Dr H gave me the highest dose of Lunesta and it has done NOTHING!! I'm still wide awake hours after taking it. :( I have to call tomorrow and ask for something else. I just need something to GET me to sleep.

(Sorry for the vent...this is just getting old ;) )

Im sorry you cant sleep. Maybe what carla recommended would help you.

paula


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



confused Community Regular

UltraForm (Available through our Essentially Yours Store)

Taking UltraForm on a regular basis may increase your energy and vitality.

UltraForm aids the body in the detoxification process, especially of toxic metals

and chemicals.

Recommendation: 1 Tablespoon in 1oz water or juice first thing in the morning

on an empty stomach and then wait 20+ minutes to eat anything.

Rachel here is the info about ultraform. I tried to send you the whole list of stuff that was recommended but your inbox was full.

If anyone else wants me to figure out if i really need the other stuff recommended, send me a pm and ill send you the list. I just didnt want to list it all on here.

paula

AndreaB Contributor
Andrea,

I think my current dentist did a panoramic view last winter, do you think that would be enough if I ask for copies? So that is how the diagnosis is made, just looking at the x-rays?

Yes, I'd appreciate the names if you can find them. Portland would be much easier for me, but I will need to figure out the projected cost and whether I have enough coverage. I also need to ask if this is for medical reasons if it might have more coverage than simply dental work.

The panaromic should still be good from last year. You need to have someone who's able to read them though, so you will need to ask if they do cavitations. I had found a person in Spokane that has a cavitat machine (it has mixed reviews) but I don't think they are common.

I'll message you the dentists. I'll have to see if I still have the links. One of them was on a list of practitioners that my doctor had given me.

I'm taking two of my girls up to Akron (4 hours away) for a professional women's softball game with some of their teammates. I think it will be a fun trip. My girls are on a great team where the coaches really teach them. They play our local league, but are not part of it .... they are undefeated. :) Anyway, we're spending the night there, so I'll catch up tomorrow.

Sounds like fun! Have a good time and we'll talk to you when you get back. :)

aprilh Apprentice
April and Rachel,

Which ones do you recommend in digestive enzymes.

Has anyone taken ultra form, that is one that was suggested by the hair people to help move metals out. But wasnt sure if i wanted to take it yet.

paula

Paula,

I take Enzymedica - "Digest". Now that I am used to that I am going to try "Digest Gold" next time. It has a few more enzymes in it. I like the formula because it has enzymes to digest every part of a meal. Carbs, proteins, ect. They sent me 2 celiac disease's which I am learning from with my order. Then later I saw it in the local health food store :)

April

confusedks Enthusiast
Kassandra, have you had neurotransmitter levels done yet? I was surprised to get a huge help with sleeping from taking Travacor, which is a neurotransmitter support. Insomnia got worse for awhile last month but now is better again.

Sherry

No I don't think so. Every time I have more tests done, it just costs more money for supplements. <_< I never used to have insomnia problems, but it's just because I'm not physically active enough. When I was in Vegas, I slept fine (with only melatonin) because we had a busy day or two.

Try the Sonata I just started. I take it at 3AM when I wake up and it works for fast I can't even remember if I got up, I have to really think about it.

I'm going to call and ask for something else. I mainly just need something to get me to sleep, so something fast acting might be good.

dlp252 Apprentice

Yeah, the neurotransmitters are definitely at least part of the problem for my insomnia. Supplementing (yeah, you're right about all the tests leading to more supplements, lol) for the specific imbalances of neurotransmitters has seemed to help a little with it. I know the imbalance is caused by the lyme, mold or metals, but at least supplementing the imbalance is letting me get a little more sleep until we can fix the other stuff. But, the supplements are definitely NOT cheap!

confusedks Enthusiast
Yeah, the neurotransmitters are definitely at least part of the problem for my insomnia. Supplementing (yeah, you're right about all the tests leading to more supplements, lol) for the specific imbalances of neurotransmitters has seemed to help a little with it. I know the imbalance is caused by the lyme, mold or metals, but at least supplementing the imbalance is letting me get a little more sleep until we can fix the other stuff. But, the supplements are definitely NOT cheap!

Yea, the supplements are SO expensive! And, like I said, I've never had insomnia problems and don't think this is a Lyme symptom for me. It's mainly because I don't have enough energy to get tired enough to fall asleep. Catch 22.

mftnchn Explorer

Kassandra, I wonder if you could schedule a late afternoon walk or something. It might not need to be vigorous exercise, but just a little more active to help your body clock?

Thanks Andrea for the info.

Sherry

mftnchn Explorer

Also, ditto on the expense of supplements!! Expense of all of these treatments!

Hey, the VCS people wrote back to me and said after I have my left eye checked, reply to their email and they'll credit me with a test to take it over again! That was nice of them!!

Sherry

Rachel--24 Collaborator
When I was in Vegas, I slept fine (with only melatonin) because we had a busy day or two.

Could also be that something in your home "environment" is contributing to the insomnia. If you slep fine elsewhere....and are never able to do that at home...it could be something you are exposed to. Just a thought.

About neurotransmitters. Hmmm....I guess my test kit for that is sitting in my closet at home...for almost 2 years now. :blink:

Yeah...I think I forgot to take that one. :ph34r:

The Organic Acid Test actually checks neurotransmitter metabolism....so that should tell us something when I get those results back. I would have to say that my main symptom associated with neurotransmitters would be an inability to handle stress. I really dont have any sleep disturbances after removing so many things from my diet.

Everyone,

My porphyrin results are in....I dont know anything yet because when I called the office the results had *just* arrived and Dr. S. has to reveiw them first.

I requested a blooddraw for the copper/zinc testing, the OAT kit from Great Plains and the CDSA from Genova. I'm told they have the kits and I'm scheduled to go in for the bloodraw (and all the rest) tomorrow....providing that Dr. S. gives his approval.

So hopefully I'll get the porphyrin results when I go in tomorrow. I'm really nervous though! :ph34r:

AndreaB Contributor

Can't wait to hear the results Rachel.

Hopefullyt hey'll approve the other tests for you too. :)

confusedks Enthusiast
Could also be that something in your home "environment" is contributing to the insomnia. If you slep fine elsewhere....and are never able to do that at home...it could be something you are exposed to. Just a thought.

I don't think that's the case. When I was in school, I was always able to sleep here at home without problems. When I have sleep problems, it usually doesn't matter *where* I am. They follow me. :P

mftnchn Explorer

Kassandra, are you getting out in the sun during the day at all? One thought is to make sure you get sun, and then make sure at night the room is totally darkened. This is one part of dealing with jet leg, and is about melatonin levels...

Just a wild idea.

Rachel, I am really looking forward to hearing about your results.

Sherry

confused Community Regular

Rachel,

I cant wait to hear the results. I am going to make it an point to check email many times today lol.

Everyone.

My aunt is doing better. She is still in the hospital and they are still debating on dialysis. I told her some stuff to do to detox her organs and i hope she will listen and do them. The dr.s said she was 24 hours away from dying when she came into the hospital.

I am just trying to figure out what next step I should take. I know since all the mold is out of the house I am feeling somuch better. But i know i need to work on things that made me flunk the vcs test, i just havent wanted to do any research the last week. I also know i need to move this arsenic out of my body.

We are just doing so much work around the house that I havent wanted to do anything about my health cause then i will just be so overwhelmed, and you all know what happens when i get overwhelmed lol.

Sherry,

When you re-do the vcs test please dont forget to let us know how you did. Im thinking I will re-do it next month just to see if taking the mold out of my house, will help my biotoxins.

carla,

Hope you having a great time with the girls.

Kassandra,

Have you ever tried Calorad is a collagen formula which contains naturally occurring amino acids.

These amino acids can support the strengthening of the body's muscles and

tissues while helping the body maintain a healthy weight. This blend of amino

acids works best to support connective tissue healing while you sleep. It is

important to not eat or drink anything accept water after dinner (it is ok to take

medication with it). Take the Calorad right before you go to sleep. (it works

while your body is asleep)

Calorad can be helpful for:

thin hair and nails, people needing to firm and tone, chronic pain, weight loss,

lean muscle mass, depression, anxiety, insomnia and more.. It was one of my supplements on my hair test. It is supposed to help with sleep

I need to research it more before I order it. But just didnt know if it is one that you have tried or not.

paula

confusedks Enthusiast
Kassandra, are you getting out in the sun during the day at all? One thought is to make sure you get sun, and then make sure at night the room is totally darkened. This is one part of dealing with jet leg, and is about melatonin levels...

Lately I haven't been getting out much...been in bed herxing.

Kassandra,

Have you ever tried Calorad is a collagen formula which contains naturally occurring amino acids.

These amino acids can support the strengthening of the body's muscles and

tissues while helping the body maintain a healthy weight. This blend of amino

acids works best to support connective tissue healing while you sleep. It is

important to not eat or drink anything accept water after dinner (it is ok to take

medication with it). Take the Calorad right before you go to sleep. (it works

while your body is asleep)

Calorad can be helpful for:

thin hair and nails, people needing to firm and tone, chronic pain, weight loss,

lean muscle mass, depression, anxiety, insomnia and more.. It was one of my supplements on my hair test. It is supposed to help with sleep

I need to research it more before I order it. But just didnt know if it is one that you have tried or not.

paula

I haven't tried it before. Dr H suggested something called HerbSom for sleep, but he wants me to take 5 caps at bedtime and one bottle (which is $30) only has 30 caps. So it would be SO expensive.

I will look into Calorad. Haven't heard of it before. The thing is Dr H's PA keeps wanting to call in anti-depressants that help with sleep. I was on remeron for about a week, and it made me SO depressed. I don't want something for depression...just sleep.

Then, last night I took the Lunesta at about 9.30 and I fell asleep by 10.15! :o So I don't get it. I wonder if I've been taking it too late and my body is too "awake."

lynne1978 Rookie

Hiya not written for a while. Just got some of my result back, I have HIGH levels of elastase in my stools, but am unsure what this means. Anyone know? I have been looking on line but can only find explanations for low levels.

cheers

mftnchn Explorer

Lynne, sorry I don't know.

Kassandra, YAY on the sleep!!! I know the feeling about being in bed herxing, seems like the last three weeks I have hardly been out of bed.

Sherry

mftnchn Explorer

Hi everyone,

I came across this website protocol for CFIDS Open Original Shared Link and the zero-based protocol. What was fascinating to me was the first step is to supplement deficiencies, especially Vitamin D. That may need to be done slowly in some people. The target level of D is higher than most, at 108.

But anyway, the protocol says this brings on a herx and you keep going up on D until you stop herxing.

So apparently there could be something to the idea I have had that my current symptoms could be related to D.

Sherry

CarlaB Enthusiast

Hi Guys, I'm back. :) It was a lot of fun and I kept up. :D

I hope all you herxers feel better soon.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    2. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    3. - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

    4. - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

    5. - trents replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,342
    • Most Online (within 30 mins)
      7,748

    Muhammad
    Newest Member
    Muhammad
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • asaT
      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.