Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something

Rachel--24

Recommended Posts

confused Community Regular
confused
Posted

I had an lightbulb moment at 2 am this morning. My body hates citric acid. Remember how i got sick from the spaghetti. Well yesterday i had some iced tea that has citric acid and i felt a little off but still able to clean and cook lol. Well then my stomach was cramping and my head hurt at midnight.

I guess i need to stay away from it. I still kinda feel out of it this morning. I guess just one more thing to add to my list lol

I only got to page 7 last night. The talk about corn is kinda boring lol. I need to get to the good stuff like metals and stuff lol

paula

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 33.4k
  • Created
  • Last Reply
mftnchn Explorer
mftnchn
Posted

Kassandra, my prayers are with you too!

Sherry

dlp252 Apprentice
dlp252
Posted

Paula, I think the metals issue came after the corn, histamines, and probably about two or three more "issues", lol. Keep reading!

Green12 Enthusiast
Green12
Posted

Thinking about Kassandra :wub: :wub:

AndreaB Contributor
AndreaB
Posted
I think they just do a leg block with a light sedation, but I can't imagine being awake for 90 minutes while they cut my bones, so I may ask for the "forget everything" drug. One of those things really messes me up though, but I think it might be worth it to not hear the sawing. :lol:

What about ear plugs? I did have something done on my toes a long time ago. I don't remember them sawing bones though. Mine was toenails that grew from the inside of my toe. Seems like that problem came back a little but it doesn't hurt nearly as much as it did.

I had an lightbulb moment at 2 am this morning. My body hates citric acid. Remember how i got sick from the spaghetti. Well yesterday i had some iced tea that has citric acid and i felt a little off but still able to clean and cook lol. Well then my stomach was cramping and my head hurt at midnight.

I only got to page 7 last night. The talk about corn is kinda boring lol. I need to get to the good stuff like metals and stuff lol

Isn't citric acid on the moldy side?

MSG isn't too far into the thread. I had run across that within the first 90 pages. That was stuff I had started commenting on.

dlp252 Apprentice
dlp252
Posted

Ear plugs might work...I'll bring some, lol! They're soft foam, so shouldn't be objectionable to them.

Guest tamedandfoxed
Guest tamedandfoxed
Posted
Katy,

Dont give up...hang in there. You'll get this figured out.

Is the Dr. "guessing" about the infection?? Have you had any tests run??

I've had several labs... they run a culture and about a week later (4 times now) the culture grows this strepticochous bacteria.. the logical treatment being antibiotics. but antibiotics have done nothing but give me candida. so they put me on this other drug which is a really old anti-depressant that for some reason they've seen good results with..but the side effects have made me brain foggy, depressed and really anxious / easily agitated. i.e. NOT FUN and it hasn't helped anything...

i feel disengaged from everything..

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


confused Community Regular
confused
Posted
Ear plugs might work...I'll bring some, lol! They're soft foam, so shouldn't be objectionable to them.

What about an ipod or mp3 player or even an old celiac disease player with head phones.

paula

aprilh Apprentice
aprilh
Posted

Paula,

Citric acid is now derived from fungus. That's probably why your body doesn't like it. It would feed any candida issues that you might have. That might be a good one to avoid. I think Moldlady talked about it back on the candida thread???

Kassandra,

OH NO! :( That's all you need!

Does anyone know if it was from Iron IV's or IV abx?

aprilh Apprentice
aprilh
Posted

Lisa,

About Zeolite....I was all into trying it and then I started researching it and found all of these websites saying DON"T take liquid form?? Have you read any of that? Some websites were really adamant about it. Something about the liquid form not being known if the structure is still in tact as it is in a mineral (powdered) form.

I guess I need to do some more reading. I know there are always somebody saying something bad about a natural product. I guess I just don't know enough about this stuff to judge either way.

It sounds like its working wonders for you - so maybe I'll just take a chance to try it!

April

confused Community Regular
confused
Posted

April.

That all makes sense. I might have to dig up that old thread and see what it says. I have lived in denial about the candida isue long enough now lol.

The one thing i dont get is why can i drink beer that hs yeast and feel fine. But i cant have citric acid without feeling like death. I just dont understand lol.

Im guessing i better not even try cheese even with these enzymes. Im ao upset about this.

Whatever you find out about the zeolite please post here. Im thinking of trying it, but so afraid to try anything anymore.

paula

Rachel--24 Collaborator
Rachel--24
Posted
  • Author

I believe citric acid is from aspergillus specifically. Maybe you're sensitive to aspergillus??

Damn...I wish I could I could have a beer and feel fine!!

OK...I need supplement help!

I need calcium citrate....without any Vit. D added in. Just plain calcium....NO excipients and no other unnecessary junk. I just need calcium....is that too much to ask?? :rolleyes:

I cant find anything. :(

confused Community Regular
confused
Posted
I believe citric acid is from aspergillus specifically. Maybe you're sensitive to aspergillus??

Damn...I wish I could I could have a beer and feel fine!!

OK...I need supplement help!

I need calcium citrate....without any Vit. D added in. Just plain calcium....NO excipients and no other unnecessary junk. I just need calcium....is that too much to ask?? :rolleyes:

I cant find anything. :(

I bet you hit the nail on the head with that assumption. That is one of the molds they found in the boiler room when i was so sick in the kitchen. I bet that is the mold that hates my body. Is there a test to test for that lol.

paula

AndreaB Contributor
AndreaB
Posted
I need calcium citrate....without any Vit. D added in. Just plain calcium....NO excipients and no other unnecessary junk. I just need calcium....is that too much to ask?? :rolleyes:

I cant find anything. :(

Yep, too much to ask. They like to put everything into everything. :angry: I had to get more supp's with the stearates. Can't be avoided and I need them for the amalgam removal for one.

mftnchn Explorer
mftnchn
Posted

Quick drive by, I'll write an email update later for my LLMD appointment.

Biggest change is that I have to go on the SCD diet. The tests show that I cannot handle disaccharides at all. My LLMD thinks this will make quite a bit of difference in how I feel.

Also he wants my 25 Vit D levels at 80, so I'm to take 10,000 a day and they'll do another blood draw in 2-3 weeks.

Sherry

confusedks Enthusiast
confusedks
Posted

I'm back. Man that was rough! I started breaking out in hives and welts all over my body. Had horrible back and knee pain out of nowhere while infusing at the Dr's office, but I thought it was Lyme related so I didn't say anything.

I called the Dr, after I drove myself home, lol, and he said to take benadryl, lay down and call him back in 2 hours. Within 20 minutes I was having difficulty breathing. My face and eyes were swelling quickly. So we called the dr back and I was gasping for air as I was talking to him. He said to go right to the nearest ER.

We went, and they gave me all kinds of stuff to stop the reaction. Including steroids. :( But it was a life and death situation, so there wasn't much to say. They gave me oxygen and breathing treatments to open my lungs. Put all kinds of heart monitors on. Gave me pain meds.

They then decided because of the Lyme, etc. that since my body was so weak, I could continue reacting for a while, so they wanted to observe me overnight.

I'm still in a lot of pain. I talked to Dr H yesterday and he was concerned that they gave me steroids, but obviously there wasn't anything we could do about it. They infused Rocephin last night and that went fine.

It had to have been a reaction to the Iron IV, but it's strange because I've had 12 other Iron IV's and no reaction. So the problem is, now they don't want to give it to me again, but I'm still really iron deficient. My Hematologist said no more IV's, and he wants to follow up with me next week.

My concern is that I am so anemic, and I can't do iron IV's now. He said he might admit me back into the hospital to have another one, and have them observe me.

AndreaB Contributor
AndreaB
Posted

Kassandra,

Could it be the IV abx that threw things off with the iron IV.

That sounds like a scary ordeal, I'm glad you're ok.

jerseyangel Proficient
jerseyangel
Posted

Kassandra,

I'm so sorry---that must have been very frightening for you. Take care, I'm sending good, positive thoughts and a hug your way :)

mftnchn Explorer
mftnchn
Posted

Kassandra, so good to hear from you, and ditto to Andrea's question.

Sherry

dlp252 Apprentice
dlp252
Posted

Gosh Kassandra, that is absolutely FRIGHTENING!!!!

confusedks Enthusiast
confusedks
Posted

There's no known interaction between the Iron and Rocephin. I will have to talk to the Hematologist on Tuesday and see what he wants to do.

It is possible to develop allergic reactions to anything and any given moment. People eat peanuts their whole life, then suddenly stop breathing one day....so it was definitely the iron. The thing that is so bizarre is that I had one on Monday and had NO problems at all! Then yesterday had a severe reaction. So who really knows? :P

jerseyangel Proficient
jerseyangel
Posted
It is possible to develop allergic reactions to anything and any given moment.

Very true--allergies can appear at any time and can come and go throughout life.

So scary....

Green12 Enthusiast
Green12
Posted
I need calcium citrate....without any Vit. D added in. Just plain calcium....NO excipients and no other unnecessary junk. I just need calcium....is that too much to ask?? :rolleyes:

I cant find anything. :(

Did you look into Pure Encapsulations Rachel?

Biggest change is that I have to go on the SCD diet. The tests show that I cannot handle disaccharides at all. My LLMD thinks this will make quite a bit of difference in how I feel.

Oh wow Sherry, that's an interesting development. I hope the diet will make a difference for you.

I started breaking out in hives and welts all over my body. Had horrible back and knee pain out of nowhere while infusing at the Dr's office, but I thought it was Lyme related so I didn't say anything.

.My face and eyes were swelling quickly. So we called the dr back and I was gasping for air as I was talking to him. He said to go right to the nearest ER.

We went, and they gave me all kinds of stuff to stop the reaction. Including steroids.

They then decided because of the Lyme, etc. that since my body was so weak, I could continue reacting for a while, so they wanted to observe me overnight.

I'm still in a lot of pain. I talked to Dr H yesterday and he was concerned that they gave me steroids, but obviously there wasn't anything we could do about it. They infused Rocephin last night and that went fine.

My concern is that I am so anemic, and I can't do iron IV's now. He said he might admit me back into the hospital to have another one, and have them observe me.

Oh Kassandra, I'm so sorry you had to go through this, how very scary :(

That's the ER procedure for anaphylaxis, epi, antihistamines, and steroids, unfortunately :)

I'm keeping you in my thoughs, love and hugs to you.

Keep us posted as you are able.

tabasco32 Apprentice
tabasco32
Posted
I've known this girl for awhile and no WAY could she eat pizza before! In fact she couldnt even TOUCH pizza before...and actually I'm not even sure if she could LOOK at pizza without getting sick (or without totally ruining the pizza :P ).

Now she's putting up a picture of a whole pizza that she made....she's TOUCHING it and its not turning to WAX!! :o This is REALLY BIG news!!! :D

AND....she's eating leftovers!! :blink:

I'm not really touching it. Look closely at my HANDS!!! :lol:

tabasco32 Apprentice
tabasco32
Posted
Lisa,

About Zeolite....I was all into trying it and then I started researching it and found all of these websites saying DON"T take liquid form?? Have you read any of that? Some websites were really adamant about it. Something about the liquid form not being known if the structure is still in tact as it is in a mineral (powdered) form.

I guess I need to do some more reading. I know there are always somebody saying something bad about a natural product. I guess I just don't know enough about this stuff to judge either way.

It sounds like its working wonders for you - so maybe I'll just take a chance to try it!

April

If that were the case I would be getting sicker and not better. Zeolites cannot harm you in anyway. They are not absorbed by the body and something not absords is not being utilized. They clean the body out. Cleaning the cages of the zeolite does not change the structure.

I don't even know if this Dr. which I heard about before is even a certified biochemist like Rik Dietch. Rik is a very, very intellegent guy. I have asked him many questions with incredible answers.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,113
    • Most Online (within 30 mins)
      7,748
    Vegan Brandy
    Newest Member
    Vegan Brandy
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      69.9k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Soleihey
      Gluten Ataxia and Malabsorption

      By Soleihey · Posted

      I have been on supplementation for almost 11 months with no deficiencies showing up on blood work. So was just hoping to hear someone else’s story where it took longer to heal. 
    • Erain
      Orgain Protein Powder

      By Erain · Posted

      Here’s the answer from the company 😊   Hi Emily,    Thank you for reaching out to us! We can confirm the Organic Protein + 50 Superfoods Powder is gluten free. The organic barley and wheatgrasses we use are harvested prior to jointing, before the grain forms and any gluten protein is present. Rest assured appropriate measures are taken to ensure our gluten free products comply with the FDA final rule to be labeled as gluten free, as claimed on the side-panel label. Our suppliers are required to verify each ingredient and in order to ensure that our gluten free products comply with the FDA requirements, our manufacturing facilities use the ELISA test method to confirm gluten levels are less than the standard limit of <20 ppm.    If you have allergy concerns about consuming the grasses, we recommend consulting further with your healthcare provider. I hope this information helps! Please let us know if you have other questions.   
    • Erain
      Orgain Protein Powder

      By Erain · Posted

      That’s great to know. Thanks Scott
    • trents
      Postponing seeking a diagnosis?

      By trents · Posted

      Welcome to the forum, @kim-d! Recently revised guidelines or the "gluten challenge" recommends the daily consumption of at least 10g of gluten for at least two weeks up until the day of the antibody test blood draw. 10g of gluten is the amount found in about 4-6 slices of wheat bread. IMO, I would wait until you have time to do it right so as to remove all doubt as to whether or not your gluten consumption was adequate for long enough to ensure valid testing. In the meantime, focus on removing gluten from your diet and see how your symptoms improve (or not) as one piece of the diagnostic puzzle.
    • kim-d
      Postponing seeking a diagnosis?

      By kim-d · Posted

      Hello. I'm a 22 year old college student and I've had constant stomach problems since I was 14. Recently I noticed that my problems get worse when I eat more wheat. I tried to follow a gluten free diet, which didn't end up entirely gluten free, but I still had reduced my gluten consumption very much, and I felt a lot better. I also have fatigue, inability to gain any weight, iron deficiency, possible vitamin deficiencies, really bad memory and brain fog that increases by time, unexplainable muscle aches and tachycardia which all can possibly explained by celiac/NCGS.  I wasn't able to continue a completely gluten free diet as I am eating from my school and dorm's cafeteria and almost all food there have gluten so I was going very hungry. They do offer a gluten free menu with a report though. So I decided I should try getting a diagnosis if I can, especially after reading how it was much harder to do gluten challenge after quitting gluten for a while. I was able to get an appointment for next week, and started eating around 150gr of bread per day to be sure.  First 24 hours I didn't feel any worse so I was starting to doubt myself, but then bloating hit hard. It wasn't anything unbearable, but the problem is I have finals soon and I'm now realizing this is a really bad time to do this. I can't begin studying from pain distracting me. I'm thinking of cancelling the appointment and eat low gluten until exams are over.  I worry about one thing. Before I went low gluten, I was eating a lot of bread already for over a month, which is what clued me into gluten, and I only went low gluten for around 10 days before going high gluten again. I wasn't that worried about a false negative. But if I eat low gluten until my exams are over, it means over a month of low gluten, and I would need a lot more time eating high gluten later to get a correct result.  I'm not sure which one should I do, bear it until my appointment or cancel it and try again when I'm free later. And If I choose the second one, how long would I need to do the gluten challenge for a blood test?
×
×
  • Create New...