Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something

Rachel--24

Recommended Posts

mftnchn Explorer
mftnchn
Posted
What test did you do for disccharides?

I tried SCD a couple years ago and quickly got much worse. I couldnt handle any of the SCD foods.....phenols and all of that. :(

Rachel, that's the Rosmed test. The test results themselves just give a result for sugar level in the stool. My level is 1.62, and the norm is 0.0-0.5. The explanation mentions disaccharides, and my doctor mentioned needing to eliminate disaccharides. The SCD diet talks about disaccharides and polysaccharides because the body needs to break them down first. My LLMD said that the sugar (my level was extremely elevated) is toxic and stimulates bad bacteria, perpetuates inflammatory response.

Here's what the lab explanation is: " Increased "sugar" is stool indicates mainly digestive disorders in small intestine which causes inssufficiences of disaccaridases. We interpret increased sugar as an indicator of small bowel inflammation followed by lack of mucosal disgestive enzymes like lactase, sucrase, amylase. Insufficiency of saccharidases can apply to monosaccharides, disaccarides, and polysaccharides. The acidifying flora utilizes these undigested sugars and form large quantities of lactic, acetic, butyric and propionic acid. Yeasts species also proliferate in a high carbohydrate environment...."

The SCD doesn't eliminate monosaccharides, so I guess until I am on it for awhile we won't know if it is enough to just eliminate the more complex sugars that have to be broken down to be absorbed.

Of course I hope this is temporary and not permanent!

Sherry

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 33.4k
  • Created
  • Last Reply
mftnchn Explorer
mftnchn
Posted

Took my first glutathione IM shot last night at bed time and after not sleeping well for 1-2 weeks, I slept like a rock for 10+ hours! Feel much better today! I must have really needed that!

Sherry

CarlaB Enthusiast
CarlaB
Posted

Lisa, I can't really say how much zeolite is helping because I havent had much of a toxicity problem. A little of course but not enough that a binder would make me feel much different. I am taking it for the low levels of remaining metals.

I need to write an update but its too hard on my phone.

tabasco32 Apprentice
tabasco32
Posted

Hey guys I just got busted for promoting my business on this forum. Damn I got caught! I guess that guy with the police wasn't the only one. :)

bad girl, bad girl, watcha gonna do.........

tabasco32 Apprentice
tabasco32
Posted
Ha, I ate enough for BOTH of us and most of this thread too yesterday. Made myself SICK as a dog, which didn't help me get any sleep last night! :lol:

You mean you ate more than 2 king size milky ways and a half a can of whip cream that was sprayed directly into my mouth? And I got high from the nitrous oxide? :D

mftnchn Explorer
mftnchn
Posted
I need to write an update but its too hard on my phone.

Looking forward to that!

Donna, sorry you are having to wait for your results, it must be very hard to have this all hanging.

Lisa glad you have much such progress, and hope it will work for Rachel and April. I'm going to ask Dr. E to test it too. My allergist once told me, if it helps one person it is worth looking at. LOL about getting caught.

Sherry

AndreaB Contributor
AndreaB
Posted
OMG--the town lists! :lol: They just got longer and longer....Andrea kept them all up to date :D

Yep--good times! :rolleyes:

I think I still have them......Paula, if you want a copy and can't find one (there are still lots cuz Susan loved the lists, :lol: ) then pm me.

Took my first glutathione IM shot last night at bed time and after not sleeping well for 1-2 weeks, I slept like a rock for 10+ hours! Feel much better today! I must have really needed that!

YAY!!! Great news!

Lisa,

Sorry......between you and Rachel I'll probably be thinking of that song now. Haven't watched tv in years but used to watch that. Now we just watch DVD's.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


AndreaB Contributor
AndreaB
Posted

For you old timers that were on the thread last year when my dad died.....they are finally going to bring his ashes to the Oregon coast. South of Newport (that's where Keiko was before being transferred to Greendland area...or somewhere around there.....Keiko is the one in Free Willy) in Yachats for those of you who know the area at all.

So I'll be gone the weekend of Aug 9/10. We'll be staying at the beach so I'll be in heaven for the night we are there. I love the ocean and find the waves soothing......I just like listening to the water, even streams or rivers. About 10-12 years ago I used to get off work, round up the boys (stepsons) and Mitch and make a mad dash to the coast to watch the sunset......1 1/2 hour drive one way. We'd stay for the sunset....bout 1/2 hour and head back home. :P:lol:

Would never dream of that with gas prices these days though. :angry:

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
Hey, if you gotta go, might as well go with chocolate cake...I can't think of a better way to go! :lol:

Well...."technically" it was brownies....I guess I thought it was cake for some reason. :rolleyes:

Anyways, yeah....totally yummy with caramel spread on top. I'm telling you.....the yeast just LOVE me right now. :lol:

Yikes about peeking over the fence to see that though. Glad no shots were fired......you didn't say any were anyway. Were you able to eat your meat? Chocolate cake.....sounds nummy!

Nope...no shots fired. Good thing because me and my "cake" were really close to the action. :o

I did save my beef just in time. :D

I cant eat any pieces that get overcooked because I react to them...so I just picked those burnt pieces out. ;)

Don't get me started! I haven't had chocolate in like 60 days, OMG talk about torture!!!!!

:o:o HEINOUS!!

Funny how *essential* chocloate is now that I have problems with it. Its totally irresistable...yet when I COULD have it....I never really wanted it. :rolleyes:

Rachel, you have to eat extra for me :D:D

Done!! :lol:

I'm exhausted. There isn't anything new and exciting to tell. :lol: I'm kinda worried that if I do truly react to the Iron IV, what are they going to do?

Kassandra....something has to be causing the anemia. So maybe if that underlying problem were addressed the situation would improve?? Just a thought.

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
Rachel how much does just the basic OAT test cost? I tried signing up and seeing but their site is confusing...

Katy,

You dont have to sign up to view the tests or the prices. I'm not sure where you were looking??

Anyways....here's the link to the pricing page.

Open Original Shared Link

Green12 Enthusiast
Green12
Posted
Ha, I ate enough for BOTH of us and most of this thread too yesterday. Made myself SICK as a dog, which didn't help me get any sleep last night! :lol:

Well I hope you at least enjoyed every bite before you got to the point of feeling sick! :lol:

I rode and rode my new bike today with the kids. My legs are cramping now lol. Im debating on that ice cream and cake tonight for the kids birthday lol.

Is it one of your kid's birthday today Paula?

I'm exhausted. There isn't anything new and exciting to tell. :lol: I'm kinda worried that if I do truly react to the Iron IV, what are they going to do? I'm so miserably anemic I can't stand it. But, my hemoglobin is fine. So I can't really get a blood transfusion.

I am supposed to go shopping today with my mom for a dress for a wedding I'm going to on Saturday. My mom had to drag me this afternoon to go. I used to LOVE shopping! Now, I could totally care less. <_<

I'm sorry you are so tired Kassandra, you've been through so much on top of everything. I hope they will figure something else out for you if it turns out you are reacting to the iron. We've got to get some energy in you!

Yeah Paula....you'll eventually get to read about Julie and her cop. Right now she's saying that the cop pulled HER over.....but I actually think it was the other way around! :lol:

I think you are right Rachel.......it's all starting to come back to me now! :lol::lol:

Paula, if you come across the post about me and my cop let me know how it went :lol:

Took my first glutathione IM shot last night at bed time and after not sleeping well for 1-2 weeks, I slept like a rock for 10+ hours! Feel much better today! I must have really needed that!

Yay, this is great Sherry!

Hey guys I just got busted for promoting my business on this forum. Damn I got caught! I guess that guy with the police wasn't the only one. :)

bad girl, bad girl, watcha gonna do.........

:lol: Lisa, so did you get a warning, or what? I wonder about that warning feature, what does it all mean?!?!?

So I'll be gone the weekend of Aug 9/10. We'll be staying at the beach so I'll be in heaven for the night we are there. I love the ocean and find the waves soothing......I just like listening to the water, even streams or rivers. About 10-12 years ago I used to get off work, round up the boys (stepsons) and Mitch and make a mad dash to the coast to watch the sunset......1 1/2 hour drive one way. We'd stay for the sunset....bout 1/2 hour and head back home.

How neat Andrea, I'm glad you are going to get to go :)

AndreaB Contributor
AndreaB
Posted
Funny how *essential* chocloate is now that I have problems with it. Its totally irresistable...yet when I COULD have it....I never really wanted it. :rolleyes:

Isn't that the way it always is..........chocolate is definately irresistable though. :P Course I really like the carob chips but they are not a gluten free food. I did fine off chocolate if I had my carob. I used to consider myself a chocoholic. :lol:

Green12 Enthusiast
Green12
Posted
Funny how *essential* chocloate is now that I have problems with it. Its totally irresistable...yet when I COULD have it....I never really wanted it. :rolleyes:

That is so true! It's not that I need to have it, it's the fact that I can't have it that makes me want it more :lol::lol:

Green12 Enthusiast
Green12
Posted

ooops! :)

Rachel--24 Collaborator
Rachel--24
Posted
  • Author

Thanks for the info. on the Rosmed Sherry.

No doubt I'd benefit from the SCD if it werent for these issues with phenols and probably oxalates. So I cant do the diet AT ALL...almonds, carrots, etc...are NOT a good thing for me! :(

Anyways there's a ton of info. available as far as following the diet. I read "Breaking The Vicious Cycle" which was pretty informative.

Its a strict diet but definately serves its purpose.....you have to watch for starches and other things that might be in any of the supplements you take.

I only made it as far as the beginning stage...the cleanse with chicken soup and carrots.

I'm actually doing better now....even with the chocolate brownies! Go figure...I've always said that my body hates veggies and anything even remotely healthy. :rolleyes:

tabasco32 Apprentice
tabasco32
Posted

I don't know what a warning is but I'm sure they don't have a 3 strikes your out. I probably wouldn't be able to post anything. I would have a new screen name and be incognito. :ph34r:

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
Hey guys I just got busted for promoting my business on this forum. Damn I got caught! I guess that guy with the police wasn't the only one. :)

bad girl, bad girl, watcha gonna do.........

Sorry Lisa....it was my bad. :(

I guess I was absent that day in "moderator training"....I thought it was only a violation to put a link in your signature. :huh:

....maybe I just eat way too much chocolate. :P

bad girl, bad girl,.....whatcha gonna do............

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
:lol: Lisa, so did you get a warning, or what? I wonder about that warning feature, what does it all mean?!?!?

Julie.....it means dont do it again!! :ph34r:

A warning is issued when you violate one of the board rules. When your warning bar is maxed out....well, I guess I dont have to tell you what that means.

So yeah........be good. :)

tabasco32 Apprentice
tabasco32
Posted
Julie.....it means dont do it again!! :ph34r:

A warning is issued when you violate one of the board rules. When your warning bar is maxed out....well, I guess I dont have to tell you what that means.

So yeah........be good. :)

Yeah I got two bars.

I'm scared. I'm almost maxed out! :o 33% warning. Anyone else?

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
So I'll be gone the weekend of Aug 9/10. We'll be staying at the beach so I'll be in heaven for the night we are there. I love the ocean and find the waves soothing......I just like listening to the water, even streams or rivers. About 10-12 years ago I used to get off work, round up the boys (stepsons) and Mitch and make a mad dash to the coast to watch the sunset......1 1/2 hour drive one way. We'd stay for the sunset....bout 1/2 hour and head back home. :P:lol:

Awww Andrea.....that sounds so perfect. The children are so gonna love this.

I love the beach! I love everything about it. :)

I just wanna have my toes in the sand and I can sit there forever (as long as its not too cold!) just watching the waves. Its the most perfect place to watch the sunset. :)

tabasco32 Apprentice
tabasco32
Posted
the first time i took zeolite (3 drops liquid) i felt strangely high for a few mins.. then i got panic-y and went for a bike ride, which helped.. i will try uping the dosage now that i seem more accustomed to it. it's expensive though! one bottle cost me 50 bucks!!! from the health food store..

~Katy

What zeolite was it? Did you take the drops in water or under your tongue? Don't take any other zeolite that's not pure! Many liquid zeolites are not pure and can be toxic. If it's not Waiora which it can't be because we are not allowed to sell our products in the health food stores it might just be zeolite that's mixed with minerals that was powdered and they also added water to it and said it was liqud zeolite.

Was it from the clinoptilolite family?

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
Yeah I got two bars.

I'm scared. I'm almost maxed out! :o 33% warning. Anyone else?

Everyone who's been issued one warning has 33%....you're ok....just dont put up the link to your site again. ;)

tabasco32 Apprentice
tabasco32
Posted
Awww Andrea.....that sounds so perfect. The children are so gonna love this.

I love the beach! I love everything about it. :)

I just wanna have my toes in the sand and I can sit there forever (as long as its not too cold!) just watching the waves. Its the most perfect place to watch the sunset. :)

I love the beach too! I was just thinking of the beach today. I want to go to Morro Bay or Monterey. I use to live 5 minutes from Ocean Beach and I loved going thier. We use to have bonfires their too. I love sunsets.

tabasco32 Apprentice
tabasco32
Posted
I'm exhausted. There isn't anything new and exciting to tell. :lol: I'm kinda worried that if I do truly react to the Iron IV, what are they going to do? I'm so miserably anemic I can't stand it. But, my hemoglobin is fine. So I can't really get a blood transfusion.

I am supposed to go shopping today with my mom for a dress for a wedding I'm going to on Saturday. My mom had to drag me this afternoon to go. I used to LOVE shopping! Now, I could totally care less. <_<

Hey Kassandra has your gyno checked you for fibroids? I was telling my mom about you and she was curious as to what is going on.

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
My allergist once told me, if it helps one person it is worth looking at.

Yup....and it helped Lisa so now I just GOTTA try it!! :P

Seriously though....zeolite was something that came up quite a bit in the stuff I research having to do with Autism. So there's definately something to it. Now, whether or not its gonna do anything for ME....I guess I'll just have to wait and see.

I'm always very optimistic going into something new.....but even moreso when its something that has peaked alot of interest....like zeolite has as far being helpful in the autistic population.

I'm sure its very obvious fom my posts...but if something is really working for these kids it tends to carry alot of weight with me. I get really excited about those things. :)

So yeah....we'll see what happens. ;)

It generated enough interest that a clinical study is underway.

As the first ever clinical study examining a natural chelator's effect on autism disorders moves into it's second year, it's expanded protocol was approved by its FDA approved Independent Review Board. To date, approximately sixty children have been identified or accepted into the study. Recruiting will continue until the needed eighty children have been accepted and an additional twelve alternatives have been identified.

Portland, Oregon

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Maura Gissen's topic in Food Intolerance & Leaky Gut
      5

      Autoimmune Reaction to SO many foods

      I'm a little confused. In your second post you said, "but these symptoms have been ongoing for a long time before the pregnancy" while in your most recent post you say, "I was doing a lot better on the AIP diet. However, I was unable to do the full reintroduction process because I went off the AIP diet when I got pregnant and was experiences chronic nausea...
    2. Maura Gissen
      - Maura Gissen replied to Maura Gissen's topic in Food Intolerance & Leaky Gut
      5

      Autoimmune Reaction to SO many foods

      They did. I was doing a lot better on the AIP diet. However, I was unable to do the full reintroduction process because I went off the AIP diet when I got pregnant and was experiences chronic nausea. This is what makes me believe it's food related. I do check all of my food products and supplements and I am very careful about them being gluten free...
    3. trents
      - trents replied to Maura Gissen's topic in Food Intolerance & Leaky Gut
      5

      Autoimmune Reaction to SO many foods

      Did the symptoms commence after you discontinued the AIP diet? Have you checked all nutritional supplements and oral hygiene products for possible gluten content? Have you recently checked all the labels of purchased processed foods in your pantry to check for formulation changes that might have introduced gluten? Historically, when "glutened" did...
    4. Maura Gissen
      - Maura Gissen replied to Maura Gissen's topic in Food Intolerance & Leaky Gut
      5

      Autoimmune Reaction to SO many foods

      Hi Trent! Thanks so much for your warm welcome and questions! They do, but these symptoms have been ongoing for a long time before the pregnancy. However, it's hard for me to know what's a celiac response vs. a Hashimotos one. I haven't, maybe it's worth getting those checked again?
    5. trents
      - trents replied to Maura Gissen's topic in Food Intolerance & Leaky Gut
      5

      Autoimmune Reaction to SO many foods

      Welcome to the forum, @Maura Gissen! Don't those same symptoms often come along with the territory when pregnant? And then throw in Hashimoto's. Have you had your celiac antibody levels checked recently?
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,977
    • Most Online (within 30 mins)
      7,748
    Sam777
    Newest Member
    Sam777
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      71.4k
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Autoimmune Reaction to SO many foods

      By trents · Posted

      I'm a little confused. In your second post you said, "but these symptoms have been ongoing for a long time before the pregnancy" while in your most recent post you say, "I was doing a lot better on the AIP diet. However, I was unable to do the full reintroduction process because I went off the AIP diet when I got pregnant and was experiences chronic nausea." CBC = Complete Blood Count. This is the typical bloodwork most people would have done routinely with an annual wellness checkup. I would include things like iron levels, various blood cell counts including reds and whites and other infection fighters. CMP = Complete Metabolic Panel. This would measure things like blood sugar, kidney and liver function, plasma proteins and various enzymes. Non cellular things that the body produces. Also typical of an annual wellness check. Have you tried cutting out dairy and oats? These two are the most common cross reactors in the celiac community. I know it must be tough trying to get adequate calories and nutrition when you are pregnant while at the same time eliminating foods that are good sources of those things.
    • Maura Gissen
      Autoimmune Reaction to SO many foods

      By Maura Gissen · Posted

      They did. I was doing a lot better on the AIP diet. However, I was unable to do the full reintroduction process because I went off the AIP diet when I got pregnant and was experiences chronic nausea. This is what makes me believe it's food related.  I do check all of my food products and supplements and I am very careful about them being gluten free and trying to stay away from corn starch etc. However, I am eating gluten free breads that sometimes have rice flour, yeast, etc. - I seem to do fine with these breads/bread products some days, but then am sick other days.  I have never really had any GI symptoms outside of bloating. My symptoms are dizziness, brain fog, and a general feeling of unwellness or malaise, sort of like when you're going to get the flu.  I have had a lot of bloodwork done over the last three years, but I don't recall doing the CBC, CMP, or a celiac-specific test recently. That's helpful so that could at least provide some insight to see if I'm still being exposed.  Do you see most individual with celiacs having to take a period of time away from even gluten free breads and other cross-reactive foods to let their guts heal? I'm not sure how restrictive to get with my diet again since it's so challenging. 
    • trents
      Autoimmune Reaction to SO many foods

      By trents · Posted

      Did the symptoms commence after you discontinued the AIP diet? Have you checked all nutritional supplements and oral hygiene products for possible gluten content? Have you recently checked all the labels of purchased processed foods in your pantry to check for formulation changes that might have introduced gluten? Historically, when "glutened" did you have GI symptoms or were you a "silent" celiac whose symptoms were non GI. Is what you are experiencing now like what you were experiencing at the time of diagnosis? Have you had recent blood work done (CBC and CMP) and if so, were there any parameters out of norm? I know you have Hashimoto's but you say that is well controlled now? It certainly wouldn't hurt to get celiac antibodies rechecked. Because you are essentially gluten free I would not expect to see any big departures from normal levels but if there are even weak positives it could indicate you are getting glutened from some unexpected source.
    • Maura Gissen
      Autoimmune Reaction to SO many foods

      By Maura Gissen · Posted

      Hi Trent! Thanks so much for your warm welcome and questions! They do, but these symptoms have been ongoing for a long time before the pregnancy. However, it's hard for me to know what's a celiac response vs. a Hashimotos one. I haven't, maybe it's worth getting those checked again? 
    • trents
      Autoimmune Reaction to SO many foods

      By trents · Posted

      Welcome to the forum, @Maura Gissen! Don't those same symptoms often come along with the territory when pregnant? And then throw in Hashimoto's.  Have you had your celiac antibody levels checked recently?
×
×
  • Create New...