Omg...i Might Be On To Something

[confusedks]

Oh my, we'll have a totally wild Kassandra in medical school in just a few short years!!!! Watch out!

LOL!

[confusedks]

I went today to see the Dr that Dr H wanted me to see for NAET treatments. I'm even more confused now than when I went in there!

She basically muscle tested me for all the medications I'm on and apparently Mepron, Zithromax AND Rocephin aren't working. That is my entire Lyme/Babs treatment plan! She tested me for Malarone and my body "liked" it. So she is going to talk to Dr H about changing my entire treatment. I'm very very confused and don't know who to believe at this point.

She said if I'm not significantly better in 8 weeks of her treatments (2 appt's a week) that she won't string us along any further and she'd recommend another Dr to us.

She tested me for a few things and apparently I have TONS of parasites in my intestines. She also said she thinks there is an intestinal bleed which is partly causing my iron problem. Also my body is unable to make its own ferritin, so the reason the Iron IV's aren't sticking is because I am not making my own, so they go through me. She said the reason I can't make my own is because the babesia eats it before my body can reproduce it fully.

When she tested me for Lyme, she said I don't have it. I don't know if that's true or not. She did say that in a couple weeks for example, it could be a "stressor" and it could show up. My concern is that she wants to take me off the Lyme drugs because I'm not testing for Lyme. I don't think that's a great idea. I am willing though, to stop the Rocephin and go on an IV babs medication.

I am now SOOOOOO confused! I don't quite know what to do quite yet about all of this. It sounds like she has a good plan, but I think it's easy for any new Dr to come in all gung ho about their new, great plan. She does have a lot of my medical history, but not as much as Dr H has. It took them 3 hours to get all my info, and she only took 1 hour, although she wanted to have me stay for another hour, but her next patient was there.

I will see her again on Thursday and she is going to test all kinds of things such as heavy metals, my environment, toxins, etc. Hopefully that will shed some more light with what is going on. I also hope Dr H calls me back soon so I can come up with a game plan.

[confusedks]

Did anyone hear about the 5.8 earthquake in Chino!? They felt it all the way in Las Vegas and San Diego! I'm not too far from the epicenter and OMG it was SO SCARY!!! I thought everything was about to start flying, LOL!

Luckily there was no damage to my mom or I, but most buildings in downtown LA were evacuated. It was SO scary.

[aprilh]

I went today to see the Dr that Dr H wanted me to see for NAET treatments. I'm even more confused now than when I went in there!

Kassandra,

I have had very good results with muscle testing and it has been very accurate for me. I don't know about lyme not being an issue "yet" but if she says malarone works then go with it. I know lots of people that have had great results with NAET. She sounds sort of like Dr Amy in that she can detect what is stressing your body the most at the moment.

If you could get rid of those parasites you might see huge improvements! Will she test your for Enula? It would be great if she and Dr. H could work together on this.....And if you could get at the bugs eating the ferritin First - then maybe you could hold onto some iron!

Sounds like a great appointment to me! I can understand your reservations though.

[Rachel--24]

I went today to see the Dr that Dr H wanted me to see for NAET treatments. I'm even more confused now than when I went in there!

She basically muscle tested me for all the medications I'm on and apparently Mepron, Zithromax AND Rocephin aren't working. That is my entire Lyme/Babs treatment plan! She tested me for Malarone and my body "liked" it. So she is going to talk to Dr H about changing my entire treatment. I'm very very confused and don't know who to believe at this point.

I think any of us who are really sick, really sensitive and having alot of issues will find that when we are energetically tested....alot of what we're doing is not working. Even if you test well for something....it can change in a week. Just like how you once tolerated the iron....and now you dont.

I think the main thing to ask yourself is if you are experiencing any improvement on the treatment. I think with a true herx....people will feel better after the herx passes. Not better as in "phew.,..glad thats over with"....but better as in "I feel better than I did before I started this treatment."

If you are not feeling that way then its very likely that the treatment is just not working for you. Alot of times the herxing is just the body under stress from the treatment....because its not what you need.

Its really hard to know what the right thing is when everything suddenly gets turned upside down. Its happened to me a few times already....for instance with Dr. Amy totally taking all of the focus off of the metals for now. But the fact is that I wasnt improving with the chelation treatments....at least not as much as we would have expected. The purpose with any type of treatment is to make gains....and if thats not happening...its probably not going to happen unless some changes are made with the treatment itself.

Obviously, I'm a big believer in energetic testing. I think that if Dr. H. has enough faith in this person's abilities to send you to see her....then he probably respects her opinions to some degree. I know my Dr. never really questioned anything Anna had to say....he has a great deal of respect for her because he has seen many of his patients improve with her help.

She tested me for a few things and apparently I have TONS of parasites in my intestines. She also said she thinks there is an intestinal bleed which is partly causing my iron problem. Also my body is unable to make its own ferritin, so the reason the Iron IV's aren't sticking is because I am not making my own, so they go through me. She said the reason I can't make my own is because the babesia eats it before my body can reproduce it fully.

All of this does make sense. Personally, I think its more important to address the underlying cause with the iron situation because otherwise you'll just end up going in circles and stressing your body with the iron treatments.

Babesia does eat iron. Anyone with Lyme who has low iron...more than likely has Babesia...and thats why the iron is low.

Since your iron situation is severe you may have a BIG problem with Babesia and a smaller problem with Lyme.

When the iron stuff first came up I posted a link to Klinghardt's interview where he briefly talks about this. Lyme eats magnesium and Babs will eat iron. Its a long interview about candida, metals, detox, Lyme, ART, etc. If you're interested I can repost the link.

Since your iron is so low...I think the Dr. could be right on target in saying that Lyme isnt your problem right now. It could be that you need to be treating babs and the Lyme meds are just stressing your system.

The only way to know if shes right is to try it. Honestly, if it were me I'd do it....not because I think ALL muscle testing is completely accurate...but because what she's saying makes sense.

I think ALOT of people treat things that are not necessarily their biggest issues...and just never really get very far because of it. I feel like having a good muscle tester is almost essential for people who are having alot of things going on.

I agree that Lyme could show up next time....but right now its not showing up...so something else is a bigger issue (if her muscle testing is accurate). Thats how the body reveals the "stressors"....in layers. So if you've got some big stressors which are needing attention now....but those are going untreated....it makes it really difficult for anything else to work. Your body is just too heavily burdened by the other things.

I am now SOOOOOO confused! I don't quite know what to do quite yet about all of this. It sounds like she has a good plan, but I think it's easy for any new Dr to come in all gung ho about their new, great plan. She does have a lot of my medical history, but not as much as Dr H has. It took them 3 hours to get all my info, and she only took 1 hour, although she wanted to have me stay for another hour, but her next patient was there.

I think "ideally" you would want both of them to work together. So if Dr. H. is willing to make changes based on her recommendations....and if she begins to earn your trust...it might turn out really good for you.

[Rachel--24]

Oh...and about the parasites. I dont doubt that one bit!

[AndreaB]

Kassandra,

I ditto what Rachel and April said. Muscle testing shows the current stressors. It would seem Dr H trusts her if he sent you to her. I know you're not completely comfortable with dropping lyme treatment, but it sounds like with everything else going on that it's not as big of an issue right now. Doesn't mean that won't change down the road....however short or long that road may be.

[AndreaB]

April,

Enterolab's gene test is accurate. What it means as far as celiac, I don't know. They only test the beta chain, not the alpha chain. I don't know if the beta is more prominent in the celiac department or not.....and it has been said there may be other genes than the dq2 and dq8.

Could be a gluten intolerance brought on by something else.......

[aprilh]

Rachel,

Do you think its a possibility that you still have parasites and they are continuing to stress your system?

Just a thought.

April

[Rachel--24]

What is everyone's opinion on Enterolab's Gene testing?

I used Enterolab. Honestly, I dont really concern myself too much with what Enterolab is saying about the "sensitivity" genes. Like Carla mentioned.....according to Enterolab the entire country (with the exception of the asian population) has either Celiac genes....or sensitivity genes....or a combo (1 of each).

What I learned from the genetic testing is that I do not carry either of the Celiac genes.

I have two sensitivity genes. I've never seen anyone tested through Enterolab only have one gene.....you get one from mom....and one from dad. So every person getting tested has a copy of a gene that Enterolab referes to as either "Celiac gene"....or "sensitivity gene".

There is no other lab that is testing for these sensitivity genes...its only Enterolab that is referring to these genes as "gluten sensitivity" genes. So far I am not convinced.

EDIT:

As far as accuracy....yes...the test is accurate. However, its not diagnostic.

As Jess (the scientist) says.....the genes are "interesting".....but not "informative".

Having a Celiac genes predisposes someone to Celiac....it doesnt mean they have it....and it doesnt mean that they will "get" it.

We dont really know what the "sensitivity" genes mean. Dr. Fine says they predispose to gluten intolerance. OK...so then if you are tested by any other lab for DQ2 and DQ8 (Celiac genes)...and you dont have them.....you can be 100% sure that if you're not asian you have gluten sensitivity genes.

[Rachel--24]

Rachel,

Do you think its a possibility that you still have parasites and they are continuing to stress your system?

Just a thought.

April

April....no....I dont think its a possibility. I think its an absolute CERTAINTY.

I cant take anything for parasites right now...and they dont show up strongly in testing. Its not they they arent a factor....but yeast has always showed up as a bigger stressor. Other things are showing up ahead of the parasites....and this has been the case with ART, muscle testing and electrodermal screening.

Definately parasites are there. Dr. M. had told me that my gut was a major area of stress and there were probably alot of parasites. Its just that other things were appearing to be more *important* in terms of the order of treatment.

I tried a short round of Alinia (a strong multi spectrum antiparasitic) with no changes.

But no....nobody has really ever thought that I'm free of parasites. I'm sure my gut is loaded with bad bugs! Its not gonna do me much good to treat them if I still have other issues which will allow the parasites to come right back. Thats why I'm hoping to get a better idea of what the gut issues are with the OAT results....if I ever get them.

I called the lab today....they're suppossed to be looking into it. They were suppossed to call me back earlier today.

I think my results are lost.

[AndreaB]

Rachel,

I hope they didn't lose your test......I'm beginning to get suspicious though.

[Rachel--24]

Rachel,

I hope they didn't lose your test......I'm beginning to get suspicious though.

Yeah....and I'm not happy with the service I got today!

They cashed my check so they better be sending me some results!

If they dont have them...fine...just let me know so that I can retake it w/out wasting more time!!

[Rachel--24]

What they're saying is, some have celiac genes, the rest are gluten intolerant except for Asian .... more severe than Asians I guess?

Yeah...what she said.

[Rachel--24]

Does anyone know anything about the EOSIN in the cbc. I just looked at my sons was at an 1 last year and now its at 6.8 and the cut off point is 7. That just seems to close to me. I found something talking about parasites.

paula

Sorry Paula.....I'm not familiar with it.

[tabasco32]

I know that it was said that Kassandra's problem could be the baps and that she has this. That is why her iron is low because of the baps? Baps eats iron and lyme takes our magnesium. But what about the bleeding?

Couldn't that also be why she is iron defficient?

Can't lyme hide itself?? What if the muscle testing isn't showing lyme as a stressor but in reality it really is? Cant the lyme bacteria cause metals to accumulate in the tissue? Without treating the lyme how can you get rid of the metals?

Rachel is there any traumatization that has happened to you or maybe it is being blocked out and that is what's causing the gut issue and the metals to stick? I know this is a whole body illness where you have to heal all things, mind, body and spirit.

[Guest tamedandfoxed]

GAH they messed with the format and it's all little things at the bottom... i know someone has told me before how to fix this but i don't remember HELP!!

[Rachel--24]

Carla,

You're going to Germany! YAY!!

I think alot of people will be going and I'm looking forward to seeing how well people do with it. I sooooo hope that it works!

I wouldnt be going until either late this year or (more likely) early next year. By then I'm hoping to know for sure how I feel about the treatment. If I'm feeling excited about it then I'm gonna do it.

I'm just really looking forward to going there. My friend sends me pictures and it looks beutiful there.

Only thing is it'll probably be snowing when I'm there. Cold is NOT my friend.

[Rachel--24]

GAH they messed with the format and it's all little things at the bottom... i know someone has told me before how to fix this but i don't remember HELP!!

Go to the top right hand where the "Option" drop down list is. Click on "Standard".

[ShadowSwallow]

Does anyone know anything about the EOSIN in the cbc. I just looked at my sons was at an 1 last year and now its at 6.8 and the cut off point is 7. That just seems to close to me. I found something talking about parasites.

paula

EOSIN refers to the number of Eosinophils in the blood. There should be both an absolute number and a percentage. The more eosiniphils you have the more "allergic" you are (true allergies). I have both an eosinophilic disease (EE) and high eosinophil levels (11%, the highest "normal" level for the labs I've had CBCs at is 10%). My drs aren't too concerned about it, as long as my percentage isn't increasing. And it isn't. It's been this way for years and years.

There was an article on ILADS about high eosinophil levels being linked to babesia, which I found interesting.

Kassandra,

I completely understand about the college thing. Although I'm at a point where going to college is reasonable, I probably can't carry a full load. So I'm just hoping to get into college, then do the whole disability thing. And take forever to get a medical degree. Not that it takes a lot of time in the first place.

Sounds like the person who does NAET can be an excellent resource for you. As Rachel and April said, things show up in layers. Lyme never showed up for me in BioSet, but I've herxed. Babesia has show up, but my LLMD doesn't believe in this stuff. *sigh*

I hope Dr H can help you interpret what she's said and help you get a plan in place.

Birdy (Sara )

[Guest tamedandfoxed]

Go to the top right hand where the "Option" drop down list is. Click on "Standard".

omg thank you rachel! it had me going nuts!!

[aprilh]

Rachel,

This confuses me. How could the parasites come back when they come from outside sources? Yeast, living inside the body, obviously can - which you could treat with antifungals, but as far as i know, the parasites come from food, water, or dirt - right? If the gut is weak then they can take hold and multiply. If you were to treat them some more, wouldn't more gut healing take place?

I thought you showed some improvement after getting rid of one of your alien babies? According to Humaworm's website- they recommend that treatment be followed up to get the younger babies and eggs.

April

[confused]

EOSIN refers to the number of Eosinophils in the blood. There should be both an absolute number and a percentage. The more eosiniphils you have the more "allergic" you are (true allergies). I have both an eosinophilic disease (EE) and high eosinophil levels (11%, the highest "normal" level for the labs I've had CBCs at is 10%). My drs aren't too concerned about it, as long as my percentage isn't increasing. And it isn't. It's been this way for years and years.

There was an article on ILADS about high eosinophil levels being linked to babesia, which I found interesting.

Birdy (Sara )

I never thought of lyme until now. But it kinda makes sense, he gets joint pain all the time. He gets disorientated and really bad mood swings. His Eos has gotten higher in the last year. I need to find that article on ilads, do you know were i should look.

Im also interested in this EE disease, were can i find information about this.

paula

[Rachel--24]

I know that it was said that Kassandra's problem could be the baps and that she has this. That is why her iron is low because of the baps? Baps eats iron and lyme takes our magnesium. But what about the bleeding?

Couldn't that also be why she is iron defficient?

It could be.....more than likely its BOTH...and thats why she's so deficient. I know people who have excessive bleeding but who arent THAT anemic.

Can't lyme hide itself?? What if the muscle testing isn't showing lyme as a stressor but in reality it really is? Cant the lyme bacteria cause metals to accumulate in the tissue? Without treating the lyme how can you get rid of the metals?

If its really a stressor then it will show up when the other stressors are dealt with. Thats how it works....the body is saying "This is what I need help with right now".

Its like if you have this major fire raging all around you....and then you're putting all of your attention on one little tiny bush fire...the rest is just gonna continue to burn out of control. Its better to put the BIG fire out first....and then take care of the little stuff.

Obviously, you cant ignore the little fires because eventually they will get out of control as well....but you have to prioritize.

Yes....Lyme can cause metals to accumulate. Also, metals can weaken the immune system and impair detoxification making us more susceptible to Lyme and other pathogens. With muscle testing you treat the bigger problems first...but you treat *everything*. You cant completely get rid of metals without treating Lyme...and you cant get rid of Lyme if you dont do anything about the metals.

Rachel is there any traumatization that has happened to you or maybe it is being blocked out and that is what's causing the gut issue and the metals to stick? I know this is a whole body illness where you have to heal all things, mind, body and spirit.

Yes, it is a whole body thing. I havent had any traumas in my life though. Well....OK...this illness has been pretty darn traumatic....but prior to that...no.

The psychological traumas or unresolved conflicts which can block detoxification dont seem to be a big factor for me. Dr. M. tested me briefly for this type of problem....Anna also tested me and both did not find it to be a factor. I really cant think of anything in my life which would have significance. Life was never difficult for me until I became sick. I was pretty fortunate and for the most part I was happy.

[Rachel--24]

Rachel,

This confuses me. How could the parasites come back when they come from outside sources? Yeast, living inside the body, obviously can - which you could treat with antifungals, but as far as i know, the parasites come from food, water, or dirt - right? If the gut is weak then they can take hold and multiply. If you were to treat them some more, wouldn't more gut healing take place?

Yup...parasites come from outside the body. But parasites are *everywhere*.....so if the immune system is weakened....it is not able to fight them off. Thats why people with Lyme, heavy metals, yeast, etc....also tend to have a bunch of parasites. One of my Dr.'s told me that we're exposed to pathogens about every 10 minutes. A strong and healthy immune system can fight them all off...a weakened immune system cannot.

If my body is not tolerating the parasite treatments....then its more of a burden. Its not going to help me to cause stress to my system. If other issues are testing more strongly and my body is needing help with those issues FIRST...then thats pretty much how the Dr. would want to treat.

After that I may be able to tolerate more aggressive parasite treatment. There is always an order of significance....and I dont think it would be the same for everyone. Sometimes people get worse when they are aggressively treating "out of order". This is kind of what I was talking about with the raging fire analogy.

If the fire is a bacteria overgrowth and I'm doing alot for parasites but nothing for the bacteria....I may end up just giving the bacteria more room to grow. I end up with a bigger fire and the parasites are still gonna find their way back. Same with yeast...you can end up trading one problem for the next.

I'd rather treat in the order that things are showing up.

I dont think that more gut healing would take place if you have other infections that will simply take over the space. Most likely if there are parasites there is also yeast and bad bacteria. The whole environment is out of balance.