Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something


Rachel--24

Recommended Posts

AndreaB Contributor

Have fun playing today Donna. :) I really enjoyed seeing all the avatars last year. :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 33.4k
  • Created
  • Last Reply
Rachel--24 Collaborator
No, Rachel, you can't feel heat.

Well that sucks. :(

Oh well....it might still work for me. Who knows....it might be exactly what I need. My cells will get supercharged by the light. :D

Anyone see Lake House? I love that one, too.

I saw it. It was alright....not one of my favs though. I think the only reason I really remember it at all is because I saw it the movies with someone special. :wub:

Ok....my Dr. appt. is tomorrow after work...and I'm soooo not prepared. :huh:

I've never met him so I think I'm just gonna go in without a plan and see how it goes.

Rachel--24 Collaborator

Does anyone know why I cant use the little dude with sunglasses emoticon?? He just never works anymore. :(

Rachel--24 Collaborator

My friend watched the first video I sent her and she's not too excited about the gastric bypass anymore. Thank God! :)

She watched it with a friend who is also considering having it done. They both decided to try to lose weight with diet and exercise first. YAY!

They can help each other stay motivated. I hope it works. :)

confused Community Regular

I googles rhubarb the other day after i posted about it. Well i found some stuff about it. It is a laxative. And let me tell you all, it sure does it job. Im thinking i only need to eat a few bites a day and ill be all good to go lol. It does have alot of health benefits so its all good. Of course im sure i will react to it sooner or later like i do everything else.

paula

confused Community Regular
My friend watched the first video I sent her and she's not too excited about the gastric bypass anymore. Thank God! :)

She watched it with a friend who is also considering having it done. They both decided to try to lose weight with diet and exercise first. YAY!

They can help each other stay motivated. I hope it works. :)

That is awesome. Im so happy for them and for you.

Tell her one way to lose a few pounds is drink some apple cider vinegar with water in the monrning. I know many people have lost weight doing this. And hey there are other health benefits doing it.

I tried once, it was so nasty i could never do it again lol

paula

confused Community Regular

Does anyone know if hay grows mold. My husband thinks im getting molded by the hay next door that the dog sleeps on. He says i act fine all day til i go into the bedroom then i have my mold attacks lol. We sleep with the windows open cause it is so hot and the hay is like maybe 3 feet away from the window. I guess i could goggle that to lol

paula


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



confused Community Regular

Ok i went to edit my last post and it disappeared lol. I googled hay and mold and sure it enough it is not good. This all makes sense the other day i went to my room to watch tv and i got really really sleepy. I feel asleep and dont even remember my mom calling me, i always hear the phone. She even called the house phone and my hubby tlaked to her right next to me and i didnt remember. Im a light sleeper, i wake up if the wind blows lol. Hubby said he had to keep seeing if i was breathing. I finally made myself wake up and left my room and felt much better. I guess my hubby is right about the mold and hay.

Im going to go make me a huge bubble to live in lol

paula

dlp252 Apprentice

Yay about your friend Rachel!!! I'm so happy she has decided to try other means first!!!!

Paula, yeah, I'm pretty sure hay could be moldy.

Well, I just made an appointment with my GI to go over any second opinion results regarding the ampulla. I haven't heard anything from them yet, but it's been at least 3 weeks, so if it's not back by the time I see him something is wrong, lol. He is REALLY busy and at first they said his next opening was in September, but I told them it was a follow-up/second opinion so she sqeezed me in on the 25th. So that's probably over a month after it was sent out, so yeah, it has to be back by then I would think. I'm thinking the reason I haven't heard from them yet is either because I saw him while I was in for my foot surgery and he knew I was down with my foot and would be making an appointment when I could get around, OR they sent it out for a third opinion.

CarlaB Enthusiast
Does anyone know if hay grows mold. My husband thinks im getting molded by the hay next door that the dog sleeps on. He says i act fine all day til i go into the bedroom then i have my mold attacks lol. We sleep with the windows open cause it is so hot and the hay is like maybe 3 feet away from the window. I guess i could goggle that to lol

paula

Hay kills me .... and not too many things bother me, so that should tell you something about hay!

tabasco32 Apprentice
Oh dear :huh:

The word is MANY talents, such as pizza making, zeolite selling, and film critiquing, just to name a few.

My apologies to Lisa :lol: (my typing can be atrocious, lots of typos :rolleyes: )

Yes, Dan In Real Life is definitely one to add to your collection Rachel. Don't you think it was such a cute feel good movie?? Made me feel all fuzzy and warm inside, and Steve Carell cracks me up! When he was dancing in the bar I was laughing hysterically, almost crying :lol::lol:

That one post threw me for a loop. :P I was trying to figure it out but I felt like I was suffering from an on coming brain aneurysm so I stopped.

My thoughts were," I didn't know you had to be a talented man to critique a movie." :huh:

I really liked Dan In Real Life, especially when, oh maybe I shouldn't say anything. Don't want to ruin it for the people who haven't seen it yet.

I will watch anything Steve Carell. He Cracks me up. :lol:

Hey Rachel I was thinking maybe you can get one of those Mrs. Beavis typing tutor programs. :)

or here you go,

Open Original Shared Link

Just kidding Rachel

I love ya ;)

AndreaB Contributor

Rachel,

Yay on your friend and her friend making the decision to BYPASS the GPS. :D

I'll be waiting to hear about your appointment tomorrow. :)B)

Donna,

I certainly hope they have the results/opinion back by the 25th! This is taking too long, IMO.

mftnchn Explorer

Donna, glad you are making progress and sorry about the bump on the sore toe. I'd like to see your paintings, sounds fun!

Carla, that's funny that you didn't tell your LLMD about the worms. I told mine, but not about the most recent ones since that happened after my appointment. I don't think he has been surprised. He told me he has a colleague that picked up a tapeworm in China that has simply not been able to get rid of it. Not sure how he/she knows they have it.

April, I was pretty ticked at the lady, enough that I forgot to go to the compounding pharmacy to pick up my DMPS and had to make a second trip. :(

Rachel, thanks for re-posting that quote about Dr. K. Is that information about the lab testing in India in any kind of official format that I could print off and give to a doctor?

I agree with the "head buried in the sand" comment; seems like it is even more like an arrogance that somehow we know it all--and dismiss any other possibility. I just realized that I have a bit of a radar now about health care practitioners that are dismissive about anything outside their experience or training.

About the parasites...I think that before I start my next round of Humaworm, I am going to try some more of the dietary treatments--see if I can figure out more of what might weaken them so the Humaworm works better.

Sherry

aprilh Apprentice
My friend watched the first video I sent her and she's not too excited about the gastric bypass anymore. Thank God! :)

She watched it with a friend who is also considering having it done. They both decided to try to lose weight with diet and exercise first. YAY!

They can help each other stay motivated. I hope it works. :)

Thats great! You helped her make a more "informed" decision which is great.

Does anyone know if hay grows mold. My husband thinks im getting molded by the hay next door that the dog sleeps on. He says i act fine all day til i go into the bedroom then i have my mold attacks lol. We sleep with the windows open cause it is so hot and the hay is like maybe 3 feet away from the window. I guess i could goggle that to lol

paula

We put hay in our garden to keep away the weeds. It seems to stay pretty wet and moist most of the time.

I would think it could definately be the culprit.

Ok i went to edit my last post and it disappeared lol. I googled hay and mold and sure it enough it is not good. This all makes sense the other day i went to my room to watch tv and i got really really sleepy. I feel asleep and dont even remember my mom calling me, i always hear the phone. She even called the house phone and my hubby tlaked to her right next to me and i didnt remember. Im a light sleeper, i wake up if the wind blows lol. Hubby said he had to keep seeing if i was breathing. I finally made myself wake up and left my room and felt much better. I guess my hubby is right about the mold and hay.

Im going to go make me a huge bubble to live in lol

paula

Why is their dog's bed so close to your window? Try sleeping with the window closed and see if that helps. An air cleaner in your room might help too.

So that's probably over a month after it was sent out, so yeah, it has to be back by then I would think. I'm thinking the reason I haven't heard from them yet is either because I saw him while I was in for my foot surgery and he knew I was down with my foot and would be making an appointment when I could get around, OR they sent it out for a third opinion.

I hope its because he's super busy.......its so hard waiting....waiting.....waiting. Can the nurse *verify* if the results are at least in the office?

Rachel--24 Collaborator
Hey Rachel I was thinking maybe you can get one of those Mrs. Beavis typing tutor programs. :)

or here you go,

Open Original Shared Link

Thanks Lisa! :lol:

But I kind of think I have an advantage right now. I can eat and type at the same time....how many of you can do that?? :P

I'll be waiting to hear about your appointment tomorrow. :)B)

How come you can use the little sunglasses dude and I cant? :huh:

EDIT: SEE.....he wont even show up in my post when I'm quoting you. WTH?? :unsure:

Rachel, thanks for re-posting that quote about Dr. K. Is that information about the lab testing in India in any kind of official format that I could print off and give to a doctor?

No...this is just stuff that Dr. K. shared (from his experience) with one of his patients. They're friends....she posts alot of the info. that she's learned from him over the years. That was from a thread having to do with parasites. She's talked about them alot on LN.

Dr. K calls them the "knights in shining armour"....because they absorb the metals.

Worms, etc. have an unbelievable affinity to store large amounts of metals in their skin without being metabolically disturbed by it. So when a patient is on a heavy metal detox, the worms immediately take that stuff (mercury, tin and other trace metals) coming down into their coat and they become completely invulnerable to our own immune system, because one thing our white cells cannot handle is large amounts is mercury.

Our white cells die when they are trying to gobble up the mercury; and that doesn

mftnchn Explorer
My son came here again last night about midnight and used my light, LOL.

I wonder if he is feeling something but not too self aware to pick it up? Sounds like he is getting a bit of a high or something.

Sherry

CarlaB Enthusiast

Well, that could be (that he's not self-aware) .... but I don't know about getting high off it! :lol:

His girlfriend gets migraines, so I think that's part of the reason that he's reading so much about it .... but that wouldn't make him use it all the time.

dlp252 Apprentice

I see Mia!!! Hi Mia!!!

I hope its because he's super busy.......its so hard waiting....waiting.....waiting. Can the nurse *verify* if the results are at least in the office?

Yeah, I may call by the end of this week just to see if they are actually back.

But I kind of think I have an advantage right now. I can eat and type at the same time....how many of you can do that?? :P

Yes, you got us...it's highly annoying to have to stop eating when I type! :lol: :lol:

Testing my cool guy:

B) B) B) B) B)

tabasco32 Apprentice
Thanks Lisa! :lol:

But I kind of think I have an advantage right now. I can eat and type at the same time....how many of you can do that?? :P

Hey I can eat and type at the same time. :) But can you chew gum and rub your stomach one way and your head the other for 30 seconds?

Yeah testing 1,2 B)

AndreaB Contributor
How come you can use the little sunglasses dude and I cant? :huh:

EDIT: SEE.....he wont even show up in my post when I'm quoting you. WTH?? :unsure:

I don't know. :unsure: That certainly is odd! :huh:

Rachel--24 Collaborator
Yes, you got us...it's highly annoying to have to stop eating when I type! :lol: :lol:

Yeah....no wonder I trained myself to type with one finger. :lol:

Why would anyone wanna use BOTH hands....one hand HAS to be available for munching. Thats my rule. B)

EDIT: Ooooh.....my "cool guy" actually showed up this time.

I guess he just comes and goes as he pleases. Thats so NOT cool. :rolleyes:

Rachel--24 Collaborator
I don't know. :unsure: That certainly is odd! :huh:

Yeah...some options are not available to me....so I thought maybe my "cool guy" got taken away too. :lol:

I'm just not cool enough!! :P

Rachel--24 Collaborator
Well, that could be (that he's not self-aware) .... but I don't know about getting high off it! :lol:

Its all seeming very mysterious to me now....there must be *something* about the light! :unsure:

I think I really need one now. I have to admit though....I'm more than a little disappointed that there is no heat coming off of it. :angry:

What the heck kind of light doesnt give off heat?? I asscociate light with heat....and this is a major bummer for me. <_<

Oh yeah...my friend said Prague is beautiful and we're definately going there when I get to Germany. :)

YAY....I get to go to a fairyland!! :D

Hey Carla....what city is Dr. W. in?? My friend is in Grafenwoehr....I wonder how far away that is.

CarlaB Enthusiast

Rachel, he's in Pforzheim.

B) B) B) B) B) B) B) B) B) B) B) B) B) B) B)

I think the cool guy just doesn't show up in quotes.

confusedks Enthusiast

Just another update...

I am having menstrual problems again. :( Since yesterday I have been in horrific pain from cramps. My period is also super heavy, which my gyno didn't want to happen because it's my first period post D&C, and the rate at which I'm bleeding is "bad." So I called her office today to ask for something stronger than vicodin (took 2 and NOTHING happened! :o ) and they called me back and lectured me saying I should have called sooner.

So they are forcing me to go in on an emergency basis first thing tomorrow morning. I'm not very happy about this all. I've truly never had so much pain though, as far as cramps. It has been awful.

On a happier note, I've been on the alinia and malarone for a few days now, and it seems to be going well. The alinia is causing some bad diarrhea though, so Dr B said if it continues to call Dr H and we'll have to switch meds.

I had another NAET treatment today for cortisol. She said that is the cause of my menstrual pain...so who knows? All I know is I'm really tired from it. I also had a treatment yesterday for Babesia and that kicked my butt also. :rolleyes: Hopefully this will all start to work soon.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,175
    • Most Online (within 30 mins)
      7,748

    Janice Emmendorfer
    Newest Member
    Janice Emmendorfer
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.7k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Once you have removed the inflammatories, it is time to focus on the deficiencies.  A lot of them not specific to Celiac, but deficiency in them elicits symptoms associated with Celiac. According to research, celiac disease tends to be more prevalent in urban areas compared to rural areas.  Same is true with airborne viruses.  Because urban residents get less sunlight.  To top it off we use lotion and gear to block the little light there is.  This compremises the vitamin D blood level.  A virus attack further lowers vitamin D and the immune system loses control over the Celiac genes and they go into acute symptoms. 40% to 75% depending depending on country are vitamin D deficient. 50% do not eat the Adequit Intake for potassium (4700 mg a day) 90% do n ot eat the Adequit Intake for Choline. Iodine intake since 1970 had dropped 50%.  The western diet is typically excessive in omega 6 fatty acid compared to omega 3.  Above 14:1 by some estimates.  So they sell us expensive, processed oils to compensate.  Anyway after 10 years gluten free myself,  here is what has helped me in just the past few years; once I realized I was at a healing plateau and just GFD would not cut it, and reallized my deficiencies.  Most recently, I started a statin which I only took for two weeks before it started to cripple me.   Got a prescription for Nicotinic Acid to 2000 and am more flexible now Plus HDL went 29 to 44, eGFR from 55 to 79. I also learned if the pharmacist gets a prescription for Niacin that it is dealer's choice whether you get Nicotinic Acid or Niacinimide.  And it comes out of a regular vitamin manufacturer.   "likely deficiencies and what I take to boost my intake (I get anorexic at the drop of a hat so I take them to keep me stable):  the ones that helped me the most noticibly Was increasing vitamin D blood level to 80 ng/ml and Iodine to 500 mcg once or twice a day, Thiamine, Choline, and Iodine. 10,000 IU vitamin D 500 mg Thiamine or more Choline Iodine – 600 to 1200 mcg of Liquid Iodine Vitamin B2 helps break down proteins, fats, and carbohydrates. It plays a vital role in maintaining the body's energy supply.  500 mg Nicotinic Acid - increase capillary blood flow, lower cholesterol. I recently started 2000 mg a day instead of a statin which I cannot tolerate. I the first month my HDL went from 29 to 44. eGFR (kidney function) jumped from 55 ti 75. It also has make my whole body less stiff. The ichy, flushing with the first few doses goes away. The non flush forms of vitamin B3 do not work. It is the relaxing of the capillaries and tendons. 500 mg Pantothenic Acid vitamin B5 Omega-3 and Omega-6 Fatty Acids in Vegetables  Eating more of the vegetables low in omega six and high omega 3 can reduce inflammation Whole Milk Vanilla yogurt to which I add 100 grams of raspberrys, black berries and blueberries has lots of probiotics and makes my tummy and body happy. Red Bull has sugar (not high fructose corn syrup) and the vitamins (B2,3,5,6 need to metabolize to ATP energy and Taurine as an antioxident). It is a good source of energy for me because my genetic hyperlipidemia does not process complex carbs well.        
    • trents
      Gluten-like cross reactions to other foods are from the proteins that make them up. Dextrose is the sugar component found in corn.
    • Ryangf
      I just found out a few days ago that some salt like table salt contains dextrose that’s derived from corn. I’ve been thinking about getting rid of using table salt and just using my own kosher or Himalayan salt, but tbh I’m reluctant to do it. I’ve cut out a lot of things and I don’t really want to cut out anything else that I’m not sure will effect me…in a super small amount that it might be added to salts to stabilize the iodine. I don’t want to be further alienated when I have to go to a restaurant with my friends. Also most of the items at my house that have salt in it canned food etc. are some of the few quick things I can eat- because I’m not the one paying for the food in my household and i can only ask for so much. I’m not in a place financially where I can get a lot of my specialized items- although my family tries their best to get items I Can actually stand. I get I can bring a my own salt with me at a restaurant and ask for no seasoning but it feels like a lot to me- cause I already check for cross contamination and ask if the food has like a high volume of corn in it like cornstarch etc. I’ve also heard most dextrose is not derived from the Zein (corn gluten) portion of it- so it might be safe- but idk if that’s true. I just wanna know if anyone actually responded to it negatively.
    • Scott Adams
      For my first couple of years after discovering my celiac disease I also had to avoid cow's milk/casein and eggs, as well as other things, but could tolerate duck eggs and sheep and goat's milk products. I'm not sure if you've tried those, but it could be worth testing them out.
    • knitty kitty
      Hello, @Kwinkle, How are you doing?   Have you tried adding a Magnesium supplement?   The B Complex vitamins need magnesium to work properly, especially thiamine vitamin B 1.   Magnesium deficiency symptoms and Thiamine deficiency symptoms both include gas and bloating.  Thiamine deficiency symptoms also include loss of appetite and fatigue.   My gas and bloating resolved rather quickly when I took Benfotiamine (a form of thiamine shown to promote intestinal healing) and Magnesium Glycinate in addition to my B 50 Complex (all twice a day plus the following...).   I found Magnesium L-Threonate or Magnesium Taurate are better when taken with a form of thiamine called TTFD (Tetrahydrofurfuryl dusulfide) because all of these cross the blood brain barrier easily, which corrects the loss of appetite, fatigue and anxiety.    Like @Celiacandme said, keeping a food/mood/poo'd journal is a big help in finding problematic foods, and for making sure your diet is not carbohydrate heavy.  If you're eating a lot if processed gluten free facsimile foods, be aware they do not have vitamins and minerals added to them like their gluten containing counterparts.  For every 1000 kcal of carbohydrates, we need an extra 500 mg of thiamine to turn them into energy and not store them as fat.   Let us know how you're doing!
×
×
  • Create New...