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Omg...i Might Be On To Something


Rachel--24

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AndreaB Contributor

Kassandra,

Thanks for the update. :) Hope the specialist will be able to help you with your bleeding.

Labcorp! :angry: Unbelievable! Hope that doesn't take much to get straightened out.


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dlp252 Apprentice
No other changes in meds lately?

I would say the soy, or unless you had hamburger from safeway lately lol. That is what gave me food poisoning last week lol.

Nope, no changes in meds...I'm not on any prescription meds, and I'm only taking my neurotransmitter supplements...I haven't wanted to start up all the other supplements because I'll be having more surgery. I DID take my probiotics...started a few days ago.

I looked up food poisoining in one of my medical books, and it really seemed like that's what it was, except I didn't have the nausea.

My fever was gone by early evening, but the pain continued until I went to bed. I'd be laying there all comfy and suddenly the pain in my abdomen would be so bad it would double me up. This morning my temp is back to 97.6 and so far no cramping, pain or D.

We haven't even been to church lately because every time we went it seems we got sick. <_< I know we had colds or cold/flu in May, June and July.

I haven't been since my foot surgery either. My friend was going to pick me up yesterday, but I was sick so just stayed home. This no driving thing is really cramping my style. :P

I have read that Manuka Honey is good for H.pylori bacteria. The 15+ quality I think....

I've never heard of Manuka Honey. I bet Whole Foods has it.

confused Community Regular
With multiple food sensitivities, my allergist always suggested a four day food rotation to avoid this kind of reaction.

Sherry

Thanks for that info sherry. I am going to follow that for awhile and see if it makes an difference.

Paula=

I too have been noticing that I feel very sick when I am on the computer too long. Lots of head symptoms. My vestibular neuritis acts up, I feel pulsing and fullness in the head, I get nauseated and feel just not right and sick. This has been happening for years but only recently has it gotten really bad.

Nancy

Yep that is me. If im on for too long i have to go lay down cause i feel really odd and i feel safe just going to lay down.

Last night i kept my phone turned off, but i was still up all night, but its cause we have an stressful day going on today. So i know that is what was keeping me up.

paula

aprilh Apprentice
I've never heard of Manuka Honey. I bet Whole Foods has it.

Open Original Shared Link

Umf 16+ or greater of "active" manuka honey.

Whole foods might have it, but used to be you could only order it online.

ShadowSwallow Newbie

Kassandra,

Hope the specialist can figure out what's going on with your bleeding. Darned Labcorp! :angry:

Everyone,

I have the Sulfa LED today. I hope it goes well! No computer for me until tomorrow night. Eep! :P

Birdy

AndreaB Contributor

Hope all goes well with the LED Birdie! :) I'll be looking for your update tomorrow.......course when you see this it will be today. :lol:

mftnchn Explorer
Kassandra,

Thanks for the update. :) Hope the specialist will be able to help you with your bleeding.

Labcorp! :angry: Unbelievable! Hope that doesn't take much to get straightened out.

Ditto for me!

Sherry


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dlp252 Apprentice

Kassandra,

Ditto from me too!

April,

Thanks for the link, I've bookmarked it.

Birdie,

Good luck with the LED!

Everyone,

Well, I spoke too soon about the D, but fortunately I'm not having the severe pain I had yesterday...I can deal with a little D, lol. I'm waiting to see if my "lunch" sits well, then my big outing for the day...starting my car, lol!

CarlaB Enthusiast

I keep meaning to tell you all of miso. Those who can't have soy probably can't have it. :(

Anyway, I have known this since WAY before I was ever on this board, LOL ..... Miso is a GREAT detoxer of EMF's. Here's one website I found. Open Original Shared Link

I've recently added it back into our diet. I used to cook with it all the time.

AndreaB Contributor
Miso is a GREAT detoxer of EMF's. Here's one website I found. Open Original Shared Link

I've recently added it back into our diet. I used to cook with it all the time.

Sounds good Carla. :)

aprilh Apprentice

Carla,

I love miso. I didn't know that it helped with EMF's! That's very interesting.

How do you cook with it? Boiling it kills the good bacteria. Do you use the paste?

I need more ideas to incorporate this into my cooking.

April

aprilh Apprentice

Now you got me thinking....

I wonder if the computer EMF's contribute to my neck pain and shoulder pain. I am on the computer and phones all day at work and sometimes a lot at home, too. I try not to be on the cell phone that much.

It was really bad right before I went to the beach. Then after a few days of beach, ocean and sand....it felt better. My legs felt better, too. Other explanations could be that i got more sunlight/vit. d. or more minerals from the ocean water or just simply not sitting at a desk all day.

But today, first day back at work.....hurting again. Pretty bad, too. Its giving me a headache.

I think I'll go take a epsom bath and drink some Miso and see if it goes away!

CarlaB Enthusiast

Tonight I put the paste in the white sauce for linguini ..... I stirred it in at the end. I'll also put it into soups in the winter, again stirring it in at the end.

You can just make a cup of broth .... again, heat the water by itself, then add the miso.

I always make my own soup and I always used to use miso for the broth flavor, but got away from it.

I read somewhere that the overuse we have with soy is from things like soy milk, which are from the modern era. It used to be that only things like miso were eaten for soy. Miso is fermented .... so it has those benefits, too.

CarlaB Enthusiast

Here's another great article. Open Original Shared Link

At the time of the world's first plutonium atomic bombing, on August 9, 1945, two hospitals were literally in the shadow of the blast, about one mile from the epicenter in Nagasaki. American scientists declared the area totally uninhabitable for 75 years.

At University Hospital 3000 patients suffered greatly from leukemia and disfiguring radiation burns. This hospital served its patients a modern fare of sugar, white rice, and refined white flour products. Another hospital was St. Francis Hospital, under the direction of Shinichiro Akizuki, M.D.

Although this hospital was located even closer to the blast's epicenter than the first, none of the workers or patients suffered from radiation sickness. Dr. Akizuki had been feeding his patients and workers brown rice, miso soup, vegetables and seaweed every day. The Roman Catholic Church

dlp252 Apprentice

I LOVE miso. I used to have it all the time when I lived in Hawaii, but the last time I tried it here (maybe in the last 3 years) I reacted to it. That's probably because it is fermented though...I can do soymilk as long as I don't have it often, but the miso got me right away.

tabasco32 Apprentice

mmmmmmm......Miso soup. mmmmmm.... Japanese food. I'm hungry. ^_^

mftnchn Explorer

Quick check-in. My LLMD thinks the pain is due to lyme, not mercury or other things. I am to alternate Zithromax and Enula, 2 weeks on each for two rotations, then let him know how I am doing. (ART says I can't use them together).

He is basically throwing out the last vitamin D result as it totally doesn't make sense. The redone lab is more accurate, it shows I am taking a little too much D, which fits with the ART. I'm to back off to 4 a day, then go back up to 5 a day in two months.

Sherry

mftnchn Explorer
Here's another great article. Open Original Shared Link

I had no idea of the benefits of miso. I love miso soup, but alas, no soy for me.

Sherry

aprilh Apprentice

The pediatrician just called back regarding the Igenex Tick Test results being positive for Ehrlichia.

He said, " Ehrlichia can be more severe than lyme. Onset symptoms include high fevers and very sick - usually within 10 days to 2 weeks." He thinks she's out of the woods and fine. He also said he doesn't think it can have a delayed onset like lyme can - but we all know that isn't the case.

I am also pretty stressed right now because I learned my little boy is needing 4 shots instead of 1. And he starts school tomorrow. I don't have enough information to know how to get out of it. Some of the shots he has had enough of (before I stopped vaccinating) BUT the last shot was not done after his 4th birthday. That in itself is crazy. The dr's are the ones who advised to get the shots at the time.

CarlaB Enthusiast

Look at www.909shot.com (I think it's .com). It will tell you how to get out of it in your state. Here it's just a matter of writing a letter saying it's philosophical objections. In Indiana it was religious exemption. I've never been hassled .... neither have my two college students.

aprilh Apprentice

Thanks Carla. Those were VERY helpful links.

I found the information I needed to proceed. I cannot claim philisophical expemption in NC BUT I can do an antibody titer for the MMR & Varicella. The MMR was the most concerning vaccination that he needed.

I am switching Peds. to a doc who understands NOT wanting to vaccinate. I might be able to get him to do a medical exemption, but somehow I doubt it.

CarlaB Enthusiast

Can you take a religious exemption?

confused Community Regular

I did an personal exemption here. My have all have had their shots, but my girls had one set and got so sick from them, that i never had them get anymore. Now since being in this thread i know i did the right thing to never vacinate them again.

Today was the kids first day of school. I was so sad to see all 5 of my kids go to school.

paula

mftnchn Explorer

Anyone know if Humaworm is out of business? I've not received my last order, I have emailed 4 times to all the addresses on the website with no response, and the phone number is out of service.

confused Community Regular

sherry

On July 31st, 2008 - HUMAWORM, INC. suffered a complete loss due to fire. We will try to have all orders through today - August 2, 2008 filled and sent out by August 29th, 2008.

This site is still active and we can still take orders, but we cannot answer emails until sometime in the next two weeks. THANK YOU for your understanding.

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    • Lynnard
      Thank you - that makes perfect sense and I understand. celiac disease is an autoimmune disease which will cause further damage while gluten sensitivity is different. Based on my symptoms and bloodwork, I am almost certain I have celiac disease.  I kind of hate to hope for a positive biopsy but a negative one would be frustrating for sure. Regardless, I have done a lot of research on gluten-free diet and am prepared to begin a new lifestyle journey - with a lot of questions along the way.  I appreciate your information and advice! 
    • trents
      Let's talk about terminology for the sake eliminating (as much as possible) confusion. Unfortunately, the terms "gluten sensitive" and "gluten intolerant" have, historically, been used indiscriminately. There are two primary categories of gluten disorders whose "official" terms are 1. celiac disease and 2. Non Celiac Gluten Sensitivity or NCGS for short.  I believe there is an evolution toward using the term "gluten intolerance" to refer to celiac disease and "gluten sensitive" to refer to NCGS. I say that because the words "gluten sensitivity" are actually found in the official medical term for the non celiac medical disorder involving gluten. Does that make sense? The difference between celiac disease and NCGS is that celiac disease causes inflammation in the small bowel lining and (over time) does damage to it so that it becomes inefficient in absorbing nutrients from what we eat. This is the area of the intestinal track where all of our nutrients are absorbed. Of course, this can lead to any number of other medical problems. NCGS, on the other hand, does not cause inflammation or damage to the lining of the small bowel and therefore does not produce the antibodies that celiac disease antibody tests look for. Neither will NCGS, therefore, produce a positive biopsy result. NCGS and celiac disease, however share many of the same symptoms in the area of GI distress and NCGS is 10x more common than celiac disease. There is, at the present time, no defining test for NCGS so an NCGS diagnosis is arrived at by first eliminating celiac disease for which we do have tests for. Having said that, some experts believe that NCGS can be a precursor to celiac disease.  Yes, you are correct in stating that both conditions require a gluten free diet.  So, in the absence of official testing for celiac disease (and official testing done under the proper conditions) a person who is experiencing distress when consuming gluten cannot be certain whether they are dealing with celiac disease or NCGS. Not to have an official diagnosis of celiac disease while actually having the condition makes it difficult for some folks to stay on the gluten free bandwagon. It's just the psychology of the situation and wanting to rationalize away a very inconvenient and socially isolating medical condition.
    • Lynnard
      Thank you!  This is super helpful and confirms everything I have read. I was definitely eating lots of gluten before both testing and endoscopy. If the biopsies do come back negative, I'm wondering how conclusion/distinction is made between celiac and gluten intolerance is made.  Or does it matter because presumably recommendation of gluten-free diet will be the protocol??  
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      You are welcome! We frequently get similar comments. Knowledge about celiac disease in the medical community at large is, unfortunately, still significantly lacking. Sometimes docs give what are obviously bum steers or just fail to give any steering at all and leave their patients just hanging out there on a limb. GI docs seem to have better knowledge but typically fail to be helpful when it comes to things like assisting their patients in grasping how to get started on gluten free eating. The other thing that, to me at least, seems to be coming to the forefront are the "tweener" cases where someone seems to be on the cusp of developing celiac disease but kind of crossing back and forth over that line. Their testing is inconsistent and inconclusive and their symptoms may come and go. We like to think in definite categorical terms but real life isn't always that way.
    • Rogol72
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