Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something


Rachel--24

Recommended Posts

Green12 Enthusiast
Julie--I've not checked on the Redi Tabs as I've not ever used them. I was talking about the regular Claritin pills. Maybe the Redi Tabs are better? Would the citric acid=corn? I'm so confused :blink:

I hate to hear such things about chocolate :angry: Dumb histamine :angry::angry:

Patti,

I have been using the RediTabs, they disolve under the tongue and go to the blood stream quickly. Maybe they are free of dairy then? The citric acid and gelatin most likely=corn, but I need to use them right now until I get the histamine down with my reactions.

Yes all the good things are problematic when it comes to histamine, totally sucks :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 33.4k
  • Created
  • Last Reply
penguin Community Regular
Hey, but it's been almost two weeks since I've had a bumble bar! :lol:

God, grant me the Serenity to accept the things I cannot change, Courage to change the things I can, and the Wisdom to step away from the bumble bars...

...and the chocolate

Are we going to have food anonymous meetings in Rachelville? :P

DingoGirl Enthusiast
Are we going to have food anonymous meetings in Rachelville? :P

Why on earth would we need them? we get to eat ANYTHING we want and AS MUCH OF IT as we want!! :)

Daxin Explorer

Premature post....still 5 pages to read.

Susan -- No it was not flippant. As far as the Canadian Forces is concerned, there is no way to get what I want without going to Greenland or Norther Northern Alaska for a year by myself first. They are such small remote places there is no room for families. Even for the Americans and Danes in Greenland.

Everyone else. There is a bit of history with my wife and I that I am not quite ready to get into just yet...I will tell one day, as it will be relevant while I am gone, but not today. Neither of us are thrilled about me being gone for a year, but there is nothing I can do about it, excpet turn down the Colorado Springs thing, and that is HUGE for my career.

Julie -- Thanks for the tip about the bakery...I'll check it out.

Back to reading.

Patti -- I may turn to you later for advice on the military seperation thing and how to dela with it.

jerseyangel Proficient

Ryan--

My husband isn't in the military. He just got transferred a lot with his job! The year I told you about was the longest separation, but there were other times while our boys were young that he had to move on ahead of us. When my oldest was in 2nd grade, we had just bought a home in South Jersey, got settled in and they asked him to take a position in Atlanta. It was not really a "request" if you know what I mean ;) So, for the rest of that school year, we were in NJ, and he was in Atlanta. It was crazy, but we learned to be flexable :lol:

Still, if there's anything I can do to help, please let me know :) I guess for whatever the reason, the separations feel the same.

Camille'sBigSister Newbie

Hi, y'all! Everyone is so witty today! Love it!!!

So many postings, so many comments to make, so little time. It's overwhelming me!

Welcome, David, Rachel's friend-but-not-boss.

Susan, possibly msg (Auxigro :angry: ) in the broccoli?

Cecile, I miss you.

Donna, citric acid = corn.

Lynne, where can I find the wedding post?

To all who feel bad today, hugs and prayers.

Beverly, UCCF is University of Celiac ????? Somebody! Help!!!

Guess what! I got the results of my tests from Entero Lab! Yay!!!

I've spent all day trying to translate, :blink: and composing an email to send to every member of my family who has a computer. At this point I'm mentally exhausted, so it's early to bed for me tonight.

Cissie

Guest BERNESES

GOOD GOOGLY MOOGLY- I'm out having a crisis for four hours and I come back and so much to read. I love the good googly moogly! I was sure I had heard it somewhere before so I asked my hubby (thought it was a "Flanderism" from the Simpsons but it's not. i guess it has a long history!

OK- let's see. Susan- Blue Diamond is NOT my friend and they should not be yours. I ate them New Year's Eve (my very kind friend bought them for me for her party). I had to do a polar bear swim the next day in the ATLANTIC glutened as all heck. Poo on them. :angry: But they do taste good.

Christine- I have TMJ and bruxism. I have a mouth guard from the dentist that I wear at night which prevents damage. My physiatrist (I love them- great doctors as they really attend to the whole person and not just the bones/muscles etc) also prescribed skelaxin which is a non-narcotic muscle relaxer. I take one at night and poof! The grinding disappeared. It may be worth asking about. I cut out all soy at the same time so it could have been the combo of both.

donna- I have been chocolate free for over a month. It stinks!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! :( i live for the day I can eat a Reese's

Ok- thanks for all the concern and goodness. I am going into Boston tomorrow for a quick colonoscopy so it looks like I'll be hanging out a bit in Rachelville tonight (between trips to the bathroom as i sip the lovely everage they have concocted for me). My GI called today (she is AMAZING) and said i've been suffering too long and she's going on vaca next week so she put me in for 8:30 tomorrow. Hey maybe this stuff I'm drinking will evacuate whatever's making me sick!

She asked me what my chief complaint was and I told her that besides the diarrhea, it felt like a system melt down. Exhausted, nauseous, no appetite, joint ache, headache, irregular peeriod. Uhm.. did I miss anything? Oh yeah- foul noxious gasses :ph34r: I kinda feel like I felt before i went gluten-free only now I'm gluten-free, soy and legume free and currently lactose free. I mean all I've put into my body over the last month are chicken (antibiotic free) rice potatoes, veggies and spices (organic all) and I still feel hideous. No brain fog, but definitely moody biach. My poor hubby. :unsure: He's been so good and he's struggling with his own stuff at the moment.

Oh yes- hubby could definitely be involved in the town computers with Vincent- they'd get along great- both have long hair :P He also plays guitar, bass, keyboards, drums and is very social. He could actually run the Rachelville Lounge (all food and drinks gluten-free). he'd LOVE that!

Anyhoo.. Lynne- I know just fine what F-I-N-E fine stands for. :P But right now for me it's frustrated, incensed, gnarly (silent G) and emotional. :P:P:P You silly girl.

It's good to be here and Julie- I think your new pic looks so pretty- you look LIKE a queen.

Hugs to all- it's gonna be a long night. Beverly


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



DingoGirl Enthusiast

Bev - this is rubbish that you are feeling this way! OMG I vividly remember that poison one must drink and the FIRE HYDRANT D following - - that should clean you out but glad you're having the procedure tomorrow and hopefully you can find out what's wrong! But could it be Lyme or some mysterious thing like that??

Cissie - - hi there! You must also (well you must only do so if you want to of course) tell US your results as well!

Where's Andrea today? is she being mommy/teacher?

Cecile - - I see you and am glad you're on finally......

have to venture out and get some safe food now....ugh.....

Ryan - - share when your'e ready - wise to be discreet and I remember you saying what a big deal the 3 1/2 year anniv. was - sounds like you have a very special relationship. (dang. I am an over-sharer here, you poor people, I have used this thread as my freaking personal online journal :ph34r: and will stop - could attract stalkers, though, come to think of it, that wouldn't be so bad, I would be really flattered to have a stalker now......... :lol::lol::lol:

jerseyangel Proficient

Hi Celia--I've missed you today! Wondered if you were ok :)

Sorry about your arm :( Can't believe you have to go through that every day.

Yep--I think "Good Googly Moogly" is the new "Have a Nice Day" or "Don't Have A Cow"--it will sweep the country! Celebrities will be using the term on the late night talk shows! No one will know where it came from but us :D

Tony sounds like such a sweetheart! We have to find my husband a job in R'ville so they can get to be friends, too.

jerseyangel Proficient
Awww Patti you are so nice to me and you don't mind my drama :lol: ... oh and no I only have my injections every other Monday... I'm just a baby about it :ph34r::lol:

Ohh and do you mean "Mister"? He's a trouble maker :o:lol:

What job would you give your husband?

I love drama! :D

Oh, every other Monday is better than every day, but still--ouch :angry:

Uh oh--you're still calling him "Mister" :lol: I was thinking about what Mark could do. He's an Operations Manager, so I don't know. His hobbies are old cars and toy truck collecting. Help me here...I really can't live there without him--I mean we're married and everything. :P

Guest BERNESES

Floridian- is patti really your twin sister? Like in real-life? Or Rachelville life? Sorry about your arm.

Oh Lynne- I meant to tell you that my tenured post was at UCCF (University of Celiac something something) Rachelville. Best job I'll ever get!!!!!!!!!!!!!!! :D

AndreaB Contributor
Oh yes- hubby could definitely be involved in the town computers with Vincent- they'd get along great- both have long hair :P He also plays guitar, bass, keyboards, drums and is very social. He could actually run the Rachelville Lounge (all food and drinks gluten-free). he'd LOVE that!

Bev...he needs to answer the questions on the application. I posted one for Dave on page 305.

If he passes (which I'm sure he will) then I will add him as Computer Tech and One Man Band. :P

I would need him name too.

I sure hope you get to the bottom of whatever it is that's got a hold of you.

rinne Apprentice
Thanks Susie, no I didn't see your post. I am so far behind on reading I just jumped in and didn't go back. You know how scary it is going back in Rachelville, lions, tigers and bears....

:lol::lol::lol:

Julie, I do think histamines are a problem for me, I know it means sacrificing the bananas for a while. :(

Susan, I'm in Manitoba, Canada. It is incredible to think that just one thousand dollars can buy so much but in these little prairie towns there are houses that sell for five and ten thousand dollars.

I got really sick after eating broccoli last week but I had also taken liquid vitamins so I wasn't sure but it lasted for several hours. Sounds like it was the nut thins though.

I couldn't help but notice the correlation between you and Rachel. She goes on an ice cream binge, tries veggies she know causes problems and feels miserable. Take things slow, add only one item at a time with at least a week in between, preferably longer.

So true Andrea. :ph34r: I think I've just wanted to live in denial. I focus on the ways I am feeling better and don't take the time to just heal. Last night I finally phoned a friend I was planning on travelling to see to say I wasn't going to come. I'm just not up it.

Great post Robbin.

gonna curl up with a bag of frozen spinach and lay down for now.
:(:):( Sorry you are feeling so bad.

"Listen here Mister! (Oh yes..when he's in trouble I call him "Mister")... I said, "You better watch that kind of attitude or you will get kicked out of RACHELVILLE"..... and I came on here to play.... I can still hear him giggling in the livingroom.

That is hilarious. :lol::lol::lol: But so sorry about your arm. :(

I'm off to read about the wedding, I'm glad to hear it was a wonderful day.

AndreaB Contributor
Cissie - - hi there! You must also (well you must only do so if you want to of course) tell US your results as well!

Where's Andrea today? is she being mommy/teacher?

I have used this thread as my freaking personal online journal :ph34r: and will stop - could attract stalkers, though, come to think of it, that wouldn't be so bad, I would be really flattered to have a stalker now......... :lol::lol::lol:

Yes, Cissie, please share.

I posted this morning Susan and was on here way too long. I'm back for a bit and will be off and on the rest of the day. I usually just leave the connection up in the afternoon/evening until bedtime.

Susan.....the stalker must be a gorgeous male speciman and not hurt you. :lol::lol::lol:

Isonic Newbie

Thanks for the welcomes, everyone - that was 10 pages or so back! OMG do you guys move fast, and there are so many of you it's really hard to keep up. Seemed like every time I got to the bottom of a page another page had been added.

Christine - way back there with the teeth problem - I know it sounds cranky but please do some research into bio-compatible dentistry (google) and consider not having root canals. Check out my post on another thread Open Original Shared Link. I had six root canals, three of which ended up necrotic because the infection in the jawbone couldn't drain and my compromised immune system couldn't cope. There is no point in 'saving' a tooth if it's going to become a locus of infection, and peeps with immune disorders do not want additional burdens on their health.

Donna - the itch, did the dermatologist consider Dermatitis Herpetiformis? It's one of the first things s/he should consider when a Coeliac presents with an unbearable itch! On a 0-10 scale of itchiness DH is around 12. I have been known to wake up with a completely raw arms where I've scratched off several layers of skin in my sleep. It starts with little raised red lumps and progresses to blisters filled with fluid. It's usually, but not always, bilateral on the body, meaning if you have it on one leg you might find it in the same place on the other as well. It's aggravated by gluten and dietary iodine (too much salt or seafood).

Which reminds me that some posters in other threads use DH to represent Dermatitis Herpetiformis and others use it to mean Darling/Dear Hubby (or something similar) and I find that a bit....confusing! :blink:

DingoGirl Enthusiast
Floridian- is patti really your twin sister? Like in real-life? Or Rachelville life? Sorry about your arm.

Oh Lynne- I meant to tell you that my tenured post was at UCCF (University of Celiac something something) Rachelville. Best job I'll ever get!!!!!!!!!!!!!!! :D

Dang you guys, try to get it straight, it's the

University of the Celiac Cult Farm * * * *

(I put asterisks in because Cecile thinks they're "pretty" ha ha ha ha)

I'm back from the store, and I have nuggets :ph34r: help me....

YOu know that man, the one that's supposed to be here holding my hand and soothing my brow - he needs to also hide the nuggets from me :lol:

DingoGirl Enthusiast

oh Andrea - - that's right, was in quite a fog this morning..... :blink:

Camille'sBigSister Newbie
Dang you guys, try to get it straight, it's the

University of the Celiac Cult Farm * * * *

(I put asterisks in because Cecile thinks they're "pretty" ha ha ha ha)

I'm so embarassed. :( How could I, Distinguished Chair of Celiac Literary and Historical Oddities Department at UCCF, have forgotten the name of the esteemed university to which I have dedicated half my life, my fortune, and my sacred honour. I bow my head in shame. Let us now observe one minute of silence in solemn acknowledgement of my mental lapse.

Okay. I'm all better now. The pretty asterisks cheered me up. What a terrific comedy team we have, broadcasting unrehearsed repartee here, there, and yon!

I'll share my test results with all and sundry tomorrow. Might even do the signature thingy.

Good night and pleasant dreams!

Cissie

AndreaB Contributor
I'm back from the store, and I have nuggets :ph34r: help me....

YOu know that man, the one that's supposed to be here holding my hand and soothing my brow - he needs to also hide the nuggets from me :lol:

Susan,

You want to be sick tomorrow too!!!!!

If I lived closer to you I'd come hide them myself.

I don't know where you are, aren't you in Central Cali. I know a friend in high school (many years ago and before speed limit change) said it took 19 hours to get to his house outside of LA. He was up here with his mom for part of the year. We are about 5-6 hours from Medford OR.

miamia Rookie
Miamia... I can see you!!!! How are you doing? :D

Hi -

I am not great I went away for the weekend for this yearly family trip and there all still there and I am here- not a good sign. I wasen;t feeling well when I went away and it only got worse I tried to tough it out and made it a few days but finally today I gave up and came home. I went to this health center and now I am finally home ..... My brain is mush and my body is not so happy

miamia Rookie
Hi -

I am not great I went away for the weekend for this yearly family trip and there all still there and I am here- not a good sign. I wasen;t feeling well when I went away and it only got worse I tried to tough it out and made it a few days but finally today I gave up and came home. I went to this health center and now I am finally home ..... My brain is mush and my body is not so happy

sorry I sound really whinney-

how are you

evie Rookie

:lol::lol::lol:

Julie, I do think histamines are a problem for me, I know it means sacrificing the bananas for a while. :(

Susan, I'm in Manitoba, Canada. It is incredible to think that just one thousand dollars can buy so much but in these little prairie towns there are houses that sell for five and ten thousand dollars.

I got really sick after eating broccoli last week but I had also taken liquid vitamins so I wasn't sure but it lasted for several hours. Sounds like it was the nut thins though.

So true Andrea. :ph34r: I think I've just wanted to live in denial. I focus on the ways I am feeling better and don't take the time to just heal. Last night I finally phoned a friend I was planning on travelling to see to say I wasn't going to come. I'm just not up it.

quote

Sorry you got broccolied, not spinached!!! last week rinne, hope you are better now!! Maybe I should have bowed out of a dinner Sunday noon :angry:. anyway been a long big D day with all that goes with that. Just live and learn, should have known better!! Earlier you spoke of the wedding, do you know the page number, must have missed that? Still trying to catch up, Hi to everyone!! :)

miamia Rookie
What did the health center say?

I actually had a colonics- and she did not see good things. I have really not been well lately it seems like nothing I am doing is working. I am really frustrated, everytime I make any progress I seem to go backwards and often I end up worse then I was to begin with.

DingoGirl Enthusiast
I'm so embarassed. :( How could I, Distinguished Chair of Celiac Literary and Historical Oddities Department at UCCF, have forgotten the name of the esteemed university to which I have dedicated half my life, my fortune, and my sacred honour. I bow my head in shame. Let us now observe one minute of silence in solemn acknowledgement of my mental lapse.

:lol::lol::lol::lol::lol::lol::lol::lol:

miamia Rookie
Did she help you at all?

Yes a bit in some ways - and she actually just called me to see how I am feeling- she is an angel! But I am just very uncomfortable she told me I shoulden't try to lay down for a while but I really don't wnat to stat awake feeling like this.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,913
    • Most Online (within 30 mins)
      7,748

    JodyRonald
    Newest Member
    JodyRonald
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.8k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Do you eat processed gluten free foods?  
    • Scott Adams
      You may want to wear an N-95 mask to filter out any possible gluten, at least when you handle the flour.
    • Scott Adams
      It sounds like you've been on quite the journey trying to understand your symptoms and diagnosis. It’s great that you’re planning to consult a doctor for allergy testing, as distinguishing between a wheat allergy, celiac disease, or another gluten-related condition is crucial for moving forward. The fact that you’ve tolerated barley and wheat products without recent symptoms might suggest something other than celiac disease, but as you noted, the absence of immediate symptoms doesn’t necessarily rule out potential underlying damage, especially if celiac disease is still a possibility. It’s worth discussing whether you should undergo updated testing, such as genetic testing for celiac markers (HLA-DQ2/DQ8), or even revisiting an endoscopy if appropriate. In the meantime, keep documenting your experiences with food and symptoms—it could provide valuable insights for your healthcare provider. It’s also important to test for other possible causes of your original symptoms, like IBS, food intolerances, or even other autoimmune conditions, to ensure nothing is overlooked. 
    • Scott Adams
      Your daughter's results, along with her symptoms and family history, certainly suggest further investigation for celiac disease is warranted. The low total IgA can explain why some IgA-based tests, like tTG-IgA, are negative, as there's simply not enough IgA in her system for reliable results. The weak positive tTG-IgG is notable, especially with her symptoms and the vitamin D deficiency, which is common in celiac disease due to malabsorption. I’d recommend discussing these results with her doctor or a gastroenterologist. They may suggest an endoscopy with biopsy for a definitive diagnosis or explore other potential causes for her symptoms. Meanwhile, keeping a food and symptom diary can help track patterns until a formal diagnosis is made. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease.    
    • Scott Adams
      Thank you for sharing your story—it really highlights the lifelong challenges of living with celiac disease, especially during a time when gluten-free options were nearly nonexistent. It’s heartbreaking to hear about your mother’s struggles and the severe health complications she faced, and I completely agree that more research is needed into the long-term effects of celiac and its associated autoimmune disorders like Hashimoto’s. The cost and availability of healthy, truly gluten-free foods remain a huge issue, and navigating hidden gluten and cross-contamination can make social situations and even eating out incredibly stressful. I also share your frustration with the lack of understanding among some medical professionals and the difficulty in finding specialists who truly get it. Your point about the need for affordable medical treatments, food vouchers, and better resources like travel guides for celiacs is spot on. Hopefully, as awareness grows, there will be more support for people facing these challenges. Thank you for raising such important issues! You should find a new GP in the New Year, because you cannot cure celiac disease by detoxing/cleaning your gut, and there is a lot of junk science out there which makes claims like this one.
×
×
  • Create New...