Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something


Rachel--24

Recommended Posts

dlp252 Apprentice
Donna (or anyone who is interested):

a great list (and its very shocking!)-

Open Original Shared Link

Thank you Laura! Mind boggling isn't it?! I think I've determined that corn isn't the problem (at least not in it's purest form) for me, but I've bookmarked the page just in case. I see many things on that list that DO bother me for some reason so it's good to have.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 33.4k
  • Created
  • Last Reply
CarlaB Enthusiast
Thank you Laura! Mind boggling isn't it?! I think I've determined that corn isn't the problem (at least not in it's purest form) for me, but I've bookmarked the page just in case. I see many things on that list that DO bother me for some reason so it's good to have.

I avoid obvious corn ... don't really think I have a problem, but I think that until I feel better it's a good idea for me to avoid major allergens. Hopefully, it won't develop into a problem!!! Yikes!

Laura, I thought of you when I ate my short grain brown rice last night .... you are the one who asked that of me, right?

happygirl Collaborator

x

CarlaB Enthusiast
Yes I did. Thanks for the thought! I am really missing my carbs. I ate a steak for breakfast this morning (hey, I was hungry!)

My husband usually buys me a porterhouse on Friday ... then I eat the leftover steak with eggs and gluten-free toast on Saturday! YUM!! He's in Florida right now, so I guess I'll buy my own steak this week!

Are you intolerant to all carbs at this point?

dlp252 Apprentice
Yes I did. Thanks for the thought! I am really missing my carbs. I ate a steak for breakfast this morning (hey, I was hungry!)

Great minds think alike, lol...I also had steak, ribeye to be exact...also had corn which I know you can't have. I've been having steak for breakfast since Whole Foods has been sold out of my beloved Bumble Bars, lol. :lol:

happygirl Collaborator

x

CarlaB Enthusiast

-


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



happygirl Collaborator

x

CarlaB Enthusiast
Carla, I sure hope so. But, if part of the problem is that I'm reacting to lectins, I'm not sure how that works....many people have lifelong intolerance to lectins. (Not trying to be pessimistic, just trying to be realistic!)

That's probably true, but it could be that those people never bother to go to the trouble to heal their gut. Let's think positively!!

jerseyangel Proficient

I react to all the lectins, too--except potatoes, thankfully. I really have no idea how long it will be before I can eat any of them again. (or if) Some cause more severe reaction than others, some immediate, some delayed. That's why it's so hard to figure it all out.

I plan to go at least a year at my present diet. I know my sensitivites are due to leaky gut, and I want to give it enough time to heal. Sometimes though, I feel like I'm "flying by the seat of my pants" on this! I know that I do ok when I stick to meats as my only protein source--all of the plant sources give me problems. That's why I feel it's leaky gut--it's the proteins that leak out and cause reactions. I think..

CarlaB Enthusiast

I'm eating only meat and eggs as my protein, then just veggies. I do eat some potatoes, rice and gluten-free bread, but only twice a day (I know, it's better than nothing!!). Veggie sources of protein don't sit well with me either.

jerseyangel Proficient

I can get away with rice--but not more than about once or twice a month. Any more often, and it starts to bother me. I wish I could eat eggs--but they make me terribly nauseous.

I usually just eat meat, fruit, veggies, almonds and potatoes. Oh, and some dark chocolate :ph34r:

Writing it down makes it seem very restrictive, but in reality, I manage to eat pretty well.

happygirl Collaborator

x

AndreaB Contributor

Laura,

Thanks for the website. I've bookmarked it, but haven't looked at it yet. I'm not intolerant to corn but won't have the test results back on the others (except the baby) for a couple weeks yet. I also don't like the gmo corn and I assume that is what is used for all the derivatives. Grrrrr, maybe I'll have to study that list and see how much we can leave out. I do believe gmo stuff wrecks havoc with our systems. Could be part of the puzzle as to why so many intolerances develop, especially with leaky gut.

What do you guys think?

I have found that the veggie sources of protein have become more of a problem for me. I can tolerate a few beans/legumes but most are out.

happygirl Collaborator

x

jerseyangel Proficient
Ah, theories. One day the puzzle will be completed.

You said it, Laura! And sooner, rather than later would be nice :D

Mtndog Collaborator

I just wanted to say I really care about the people on this thread and I'm not going anywhere. Y'all should come visit the Tickle Me Elbow thread in Gab/Chat. It's ALL jokes ALL the time. Laughter IS the best medicine.

Rrachel- rest and take care of YOU!

CarlaB Enthusiast
I just wanted to say I really care about the people on this thread and I'm not going anywhere. Y'all should come visit the Tickle Me Elbow thread in Gab/Chat. It's ALL jokes ALL the time. Laughter IS the best medicine.

Rrachel- rest and take care of YOU!

Forty women is another place ... I don't think we've seen you there yet, have we Beverly?

eKatherine Apprentice
What is the problem with just posting a question if you can't figure this thread out? How hard is it to just ask? If you don't like the chit-chat, just ignore it.

No need to ask, there's nothing to figure out. Either it's on topic - some topic - or it's all over the place.

I had just been checking this thread out every month to see if it looks like it's on topic (anything to do with celiac). I read a page or two or three. Nope, just chit-chat, check in again in a month.

This time I came in on the page where Vincent was complaining about being cut off while somebody needed support, and I couldn't figure out what was going on, so I went back 20 or 40 pages to see. I was horrified at what I read. :o:blink::unsure:

AndreaB Contributor
This time I came in on the page where Vincent was complaining about being cut off while somebody needed support, and I couldn't figure out what was going on, so I went back 20 or 40 pages to see. I was horrified at what I read. :o:blink::unsure:

The posts Vincent was talking about were deleted. This thread has been one largely of support of whatever people have been going through. We've covered the gamut of corn, dairy, msg, auxigro, sulfur, lyme, mercury toxicitiy, water and filters, along with others I'm sure I'm forgetting. We've had chit chat and laughter in between to elevate some of the stress that people have been going through.

It would be nice if threads could be renamed, but once people jump in and see that this is an all inclusive "intolerant" thread, the ones that want to stay do. We welcome everybody that wants to try and figure out things based on the collective responses of others on this thread.

Is the topic dairy anymore. Not usually, but lots of us still love dairy even though we can't/don't have it anymore. :D

Simply-V Newbie

Hmm Talking about lectins.. I found a page which talked about IgA involvement in binding lectins.

Open Original Shared Link

Got me to wondering if that isn't why my IgA was so high. Because when I was tested I was eating soy & peanuts (which I found out later are closely related to the white bean which I'm IgE to.)

I may have my doc re-run the test for IgA and see. This is the only reference I've seen anywhere online a reference to IgA doing something other than gluten.

Anyway, I don't think I have problems with all lectin foods, but it does help fill in some blanks. I still eat most grains (cept corn) with no problems, potatoes, and tomatoes. Just everything else that I avoid: Dairy, legumes, peppers, corn.

Anyway, just thought I'd share my info.

AndreaB Contributor
Hmm Talking about lectins.. I found a page which talked about IgA involvement in binding lectins.

Open Original Shared Link

Got me to wondering if that isn't why my IgA was so high. Because when I was tested I was eating soy & peanuts (which I found out later are closely related to the white bean which I'm IgE to.)

I haven't looked at the page yet.....I will bookmark it for later though.

I wanted to comment on the white bean, soy and peanuts. I left my binder with my doctor by accident so I don't have ready reference. I am intolerant to the navy bean (does that count for the white bean?), soy bean, pinto bean and kidney bean. I tested ok for peanuts IgE/IgG but don't eat them since I don't want to develop a problem with them and I've read that soy or peanut intolerance will usually lead to becoming intolerant of the other.

lindalee Enthusiast

She is also concerned with my mercury level, but even more so, my aluminum level (so much for all the great gluten-free uses of FOIL!! :blink: ).

CarlaB Enthusiast
Carla, I got sick the other night eating grilled fish wrapped in foil. I have been suspecting that foil... :blink: just saw your post.... maybe that aluminum is the problem. :ph34r:

That's interesting, depending on the fish, you may have gotten aluminum and mercury all in one meal!! I used to cover things with foil all the time to cook ... I stopped doing that.

happygirl Collaborator

x

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,555
    • Most Online (within 30 mins)
      7,748

    zhanhuo
    Newest Member
    zhanhuo
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      @LynnM, when you say, "today, his numbers were high", what numbers do you refer to? Are you speaking of celiac antibody scores? Can you be more specific and can you post the test names, the numbers and the reference ranges for the tests? So, I am understanding you to say that topical exposure to gluten doesn't cause him GI reactions but ingestion of gluten does but at the same time you are attributing the "high numbers" to the topical exposure?
    • Ginger38
      So I recently had blood work and my hemoglobin, hematocrit, protein and alkaline phosphatase were all low. They have never been low in the past but since august of last year I have been on the in and off gluten rollercoaster as I mentioned in previous posts. Should I be concerned with these new findings? I am worried I have made myself really sick and done damage or something this past year 
    • LynnM
      Thank you Scott. My son doesn't have a reaction topically, only when ingested. Interestingly though, the doc told us the face cream getting gluten into his bloodstream doesn't do the damage akin to when gluten is ingested. He had no reaction when using the face cream, it only presented in blood-work. I'm hopeful from all the comments today and will wait for the GI doc to reply. If he is cleared to use it, I will encourage SHIELD to get a gluten-free certification 
    • Scott Adams
      It’s great that you’re taking the time to research products carefully for your son with celiac disease—especially since accidental gluten exposure through skincare can be a real concern for sensitive individuals. Based on the ingredient lists you’ve shared, none of the products appear to contain obvious sources of gluten like wheat, barley, or rye derivatives. Ingredients like glycerin and tocopherols (not listed here but often a concern) can sometimes be derived from wheat, but many manufacturers use plant-based or synthetic sources. SHIELD’s transparency and willingness to share their full ingredient list is a good sign, and their note about not intentionally adding gluten is reassuring. Still, because ingredient sourcing can vary and sensitivities differ from person to person, it’s wise that you’ve reached out to your GI specialist to be sure these products are safe for your son’s specific needs. In the meantime, if you do try any of the products, consider patch-testing them first and watching closely for any signs of skin irritation or reactions. PS - Most people with celiac disease won't react to skin products that may contain gluten, but I still recommend finding gluten-free products.
    • LynnM
      Greetings Trents and Scott. This is the first time I'm posting here so I apologize in advance if I'm not replying properly. My 13 YO was diagnosed at age 5 and once gluten was removed from his diet, he grew 3" in a year, skin became much better and dark circles around his eyes disappeared. Today his numbers were very high and our new dietician discovered his face cream (Clinique dramatically different lotion) contained gluten. My fault for not checking.    His acne really has only just started and he's using OCT gluten-free products but the SHIELD is nothing short of miraculous for my 16 YO son and the 13 YO is eager to start. I will await his dietician's reply or google each ingredient.    I don't want to put him on that Rx as it's not that bad and isn't painful either. Just a boy starting 8th grade and doesn't want bad acne.    When I hear back I will circle back. 
×
×
  • Create New...