Omg...i Might Be On To Something

[dlp252]

But at least hopefully we will ahve some more info to work with.

So good to hear from you...this is my feeling too. I don't mind going through the testing if it AT LEAST tells me what it's not, lol. [ETA: And, this is one of the problems with conventional doctors...I can't trust that the testing they did was thorough enough, as evidenced by teh comment Laura's doctor made about not ordering a bunch of tests! harumph, lol]

Susan, if you decide you want to see these doctors the place is called HealthNow, on Mary Ave in Sunnyvale. They have a website which I'll see if I can post a link to. You can also email them to ask a question plus they offer FREE consultations, my free consultation lasted at least 30 minutes I think. I emailed them way back in April to see what kind of food allergy testing they did, and one of the doctors emailed back and forth with me for a while after that. I get the sense that they MEAN it when they say they want to find the CAUSE of symptoms rather than just medicate them.

[dlp252]

x.

I might have gone on for years just feeling bad if it weren't for this thread where everyone has discussed what they know they have and what they suspect they have. I don't know if I ever would have thought seriously about adrenals or mercury if not for this thread. Yes, the idea is that once this mercury is out, my body can start to heal. Mercury can be stored in the tissue though, so even after the mercury is out, some sort of "detox" might be necessary. I'll be asking the dentist about that and also these new HN doctors about that part. There are therapies to get the metals out...Carla isn't that what you're doing the saunas for? or was that to get something else out...sorry, I can't seem to remember anything anymore. I do know that the receptionist told me a couple of pretty nifty stories about people who were having problems that were cleared up after having the mercury out (she didn't need to tell me stories, because I'd already decided to do this and had already set the appointment up).

I'm not actually far behind you on consumption of foods. I can easily go through 1/2 pound-1 pound a day of meat and I love beef! Makes me wonder how I survived veganism for 3 years and vegetarianism for 5 or so before that. My body didn't like it....I'm intolerant to vegetable protiens.

No wonder we get along so well. We'd probably have a lot of fun when we meet up. You and I would be in one corner eating huge amounts of food. Of course I only eat 2 meals a day....does that count? Unless my hubby is home to make sure I eat in the morning....that means the weekends I either eat 2 meals and a snack or 3 meals.

Then count me in the beefy club, lol. When my friends and I go anywhere to eat and the server asks what I want, they all say simultaneously "she wants a side of beef", lol. Truly I eat a lot of it! One could say I RACHEL it, lol.

I returned tonight from Calgary, after spending the day in a 6 hour Hoffman Seminar on his Seven Levels of Healing.

...

Before I forget sardines are low in mercury,.

...

Rachel, it sounds like we had much the same test though the name of the company on my print out says BioMeridian and the report is called a Meridian Balance index. I showed wide bands of green bands as inflammatory but at least not red. All organs show stress, as do lymphatics, endocrine system, although now that I look at it in fact my small intestine looks balanced and I have been saying my digestion is working better. Food groups gluten although she said I didn't react much to barley and rye and could perhaps eat them again but not wheat, no dairy, no nightshades, no Guar Bean, MSG and hydrolzyed anything. No rice. Also looked at Lyme and saw Lyme.

Wow, the seminar sounds great! Very interesting! I think that when I was searching the Internet for BioSet, I saw some things about Merdians so perhaps they ARE similar. Hum, I don't know if I like sardines, lol. Can't say that I've ever had one though.

Susan (or anyone else interested), here is the link to the HN clinic website:

Open Original Shared Link

[rinne]

Judy, I am sorry you are feeling so badly.

I think the problem with doctors within the system is that they are within the system and so even if they are good doctors and genuinely want to help you, the reality is they don't have the knowledge, experience or support within that system to do that.

How is everyone this morning? Donna, Andrea? and Miamia were you tested through a reliable lab for Lyme?

[dlp252]

Judy, I am sorry you are feeling so badly.

I think the problem with doctors within the system is that they are within the system and so even if they are good doctors and genuinely want to help you, the reality is they don't have the knowledge, experience or support within that system to do that.

How is everyone this morning? Donna, Andrea? and Miamia were you tested through a reliable lab for Lyme?

I have not been tested yet for Lyme...I probably will want to at some point though. I don't think I had a huge window of exposure, but I DID go on a 7 day hiking vacation in Vermont around 1994 or 1995, so that was right around the same time that all my dental work was being redrilled & refilled...I don't remember ever seeing any bites, but I really don't know if I would have noticed back then especially if it wasn't in a noticable place.

[jerseyangel]

Hi Donna--Great news about your appointment!! I'm so happy for you--it all sounds so promising! I'll bet you can't wait to get started.

I'm also with you beef eaters. For years, I ate very close to vegitarian--no red meat, a little chicken, lots of beans and rice sort of thing. I went back to meat around the same time my anemia got bad a couple years ago. It makes me feel so much better. I actually try and have some meat with every meal--always with lunch and dinner, though. I have no trouble digesting beef, and like Rachel, can go through hamburger pretty quickly! I get the kind without hormones and stuff.

Last night I made my favorite pot roast--using bottom round I cooked it slowly in the oven with potatoes and carrots (after browning it first) for about 4 1/2 hours. It was so tender and juicy

I'm making myself hungry....

[happygirl]

x

[Rachel--24]

Good morning Donna and Rinne!

Thought I'd be the only one not sleeping in on a Sat. morning.

Rinne.....I wake up with the same feeling of anxiety...I think its built up inside me with so many new developments. I dont like the feeling though.

It doesnt sound like we had the same Lyme test...there was no green or red bands in my test.

I just touched all the little vials.

Are you still having the Igenix test or is the Dr. satisfied with these results for making the diagnosis?

I'm still concerned about the Bioset....even though it seemed to identify all my problems I just dont know how it works!! I can drive myself crazy with this...I'm just gonna have to ask the lady to explain it all to me next week.

I was suppossed to schedule an appt. for next week but totally forgot to do it when I left....I was just overwhelmed with everything and had that little crying episode and some brainfog from overload of info. I gotta call on Mon. and schedule.....I'm suppossed to go once a week now.

The first thing the Bioset lady did was test my overall toxicity. I think she said a score of 7 indicates a toxic body and anything over 10 is really bad. My score was 11.

She said we cant do anything until my body is able to detox and the number is down to 7. She gave me some drops but since I'm really toxic and sensitive to evrything she only wanted me putting the drops on my wrists because she said it will have a slower entry into my system that way....but it will still be absorbed. I'm also taking another type of drop to help detox from my Dr. I've been taking those drops for like a month now. I think they've helped me so I'm wondering if my # would have actually been even higher than 11 before I started the drops.

Anyways at my next visit she will see if the number is coming down.

Donna,

I used to like to eat sardines on crackers.....that was when I could eat sardines and crackers.

In the fish category of my test I reacted to 16 out of 18 different fish. The lady was like "Oh my....you shouldnt eat fish"

Ummm...ok. I'm not really gonna cry over the loss of sardines or any of the fish. They all make me feel pretty crappy and its not like they taste anything like ice cream. I only started eating fish when I went on the candida diet last year cuz I was trying to eat healthy.

When I started feeling bad from fish I got worried about mercury so have avoided all fish for months now.

The test says I can eat black bass and catfish....woohoo!

[happygirl]

x

[Rachel--24]

I have no trouble digesting beef, and like Rachel, can go through hamburger pretty quickly! I get the kind without hormones and stuff.

Me too Patti.....only the organic stuff from Whole Foods....its really expensive though considering I'm eating a pound a day. I'm eating $7 worth of beef everyday. I dont even wanna know how much that will add up to in a month....or a year even.

and Miamia were you tested through a reliable lab for Lyme?

Yeah...I'm wondering about this too Miamia. Do you know which lab tested you? Alot of the labs arent reliable so you might want to double check on this?? Alot of people test negative repeatedly through these labs only to find out later that they do have Lyme but the first labs werent sensitive enough to pick it up.

nope-i'm up too! but it was sleeping in for me...didnt roll out of bed til 830!

Ahh...I'm behind you here in Cali....I was posting at 6:30 and it was still dark and I felt like I really should be back in bed.....

[happygirl]

x

[Green12]

Good morning!

I'm up, but it's a little later here, and I'm generally a morning person. Times a wastin

Rachel, it is really early for you

I have the Igenex link, bookmarked it after rinne posted it. Here is is again for anyone who doesn't want to go back :

Open Original Shared Link

I have been looking the site over, don't see anything about doctors that use the lab, will keep looking. Might have to do some calling next week.

I think it is a good idea for you to have the lady explain the Bioset to you Rachel, lots of scientificness. I know for me, it helped when the bioscan was explained, and I asked lots of questions too. But I like understanding everything.

I also eat some beef, about 3-4 times a week. I didn't used to be a big beef eater so it took me some time to get used to it. Frankly meat doesn't appeal to me, I would love to be a vegetarian, but with my health issues I just can't. I tried, I really tried, but beans and grains and soy and all the vegetarian fare makes me sick, and I need the meat for energy and blood sugar control- the other stuff just didn't cut it when it came to that.

rinne, just what are you eating these days? The mango bean salsa sounds GOOD!!! Would love to dip corn chips into that, yum. Will have to just dream about it no corn, beans, or fruit for me....Have a great party!!!!!!!!!

Oh, I would suspect that Lyme feeds on sugars. It seems that all pathogenic-like organisms (bacterias, viruses, fungi, yeasts, molds, parasites, etc) do, so I would not be surprised if it weren't the same case for Lyme.

[miamia]

Hi Donna--Great news about your appointment!! I'm so happy for you--it all sounds so promising! I'll bet you can't wait to get started.

I'm also with you beef eaters. For years, I ate very close to vegitarian--no red meat, a little chicken, lots of beans and rice sort of thing. I went back to meat around the same time my anemia got bad a couple years ago. It makes me feel so much better. I actually try and have some meat with every meal--always with lunch and dinner, though. I have no trouble digesting beef, and like Rachel, can go through hamburger pretty quickly! I get the kind without hormones and stuff.

Last night I made my favorite pot roast--using bottom round I cooked it slowly in the oven with potatoes and carrots (after browning it first) for about 4 1/2 hours. It was so tender and juicy

I'm making myself hungry....

ok you guys are convincing me - its time for me to start eating beef!!!

[rinne]

Ummm...ok. I'm not really gonna cry over the loss of sardines or any of the fish. They all make me feel pretty crappy and its not like they taste anything like ice cream.

LOL, thanks for my first morning giggle Rachel. The test for Igenex was sent but Hoffman was quite definite, the funny thing was that at the beginning of the physical I mentioned Lyme coming up on the Meridian Stress test and he was like, yes that is an strong indication but not definite and then he looked at me and said if you have Lyme it is atypical. I thought, WHAT does that mean but then we were talking about so many things I didn't ask. He did a physical examination, turns out my lymph glands are swollen and after that the Muscle testing. At the end he said, it's Lyme and it was such a clear and definite statement that I forgot to ask what Atypical Lyme is. They also did a Biological Terrain Assessment, urine and saliva, checked heart.....

I am in an turmoil this morning, so much to do for the party tonight but all I really want to do is try and write about this whole experience. That would mean hanging out here.

The great thing about this clinic is that everyone is under one roof and they all communicate with eachother, they do lots more treatments there. I got a B12 shot which was great and I learned why they want you to use the methyl colbamin, when it breaks down it has an effect which is beneficial aside from the B12 but when the synthetic B12 breaks down it adds "can't recall" which has a toxic effect. She said if you really need B12 then it is better to take it than not but that the Methyl is a win/win for the body and the synthetic is a win/lose.

I am in a turmoil this morning, I know the landscape has changed beneath me, Hoffman said to me and what will you do with this? He relates health to a spiritual journey and emphasizes owning your experience. Some of it I don't relate to, the questionaire included, "are you fulfilling your mission in life?" I had answered, my mind does not work this way, I have no mission, I am the mission. LOL" and when he read that he laughed. We really connected on a personal level and he asked me to stay after the seminar to talk, he is a long time meditator too, and I would have liked to do that but had my flight, party, see how hard I'm working at that and just couldn't. Probably a good idea, I have an inkling of what transference means now.

[miamia]

I'm happy you are all amused by the picture I figured I needed to put something silly up given all this. Its amusing because I'm about as preppy as they come... Eric refers to that pic as his "little gangster" so your comment made me smile, Dave.

Rachel, please eat some ice cream for me. I miss it so much. Even my lemon-sugar-water (makes like an italian ice) recipe that I posted some back irritates me now so I have given that up to. I miss ice cream. I even have multiple ice cream scoopers (one has a wooden handle and has penn state engraved in it--from a college roommate-who said its the two things I love the most- Penn State and Ice Cream!)

Judy, i sure hope you find some answers. You are in Philly---there are apparently two places that use the Bioset in northern virginia (near me.) I know its not super close (depending on where you are, 2 hours+?) but if I end up going to someone here, I'll let you know if they are worth it. We could meet up then! I'll pass your greetings on to my mom

Andrea and Rachel- Add me to the beef loving group. Ribeye steaks are up there on my list of heavenly foods. Having to rotate each day (for lunch and dinner, I never eat the same protein, and also make sure that I never eat it even in back to back meals-(i.e. dinner one night and then lunch the same day). I'm having steak tonight (broiled) and then when Eric is here, he's going to grill them for me. MMM. I'm even eating plain ground beef (no seasonings, onions, nothing!!!!!) but ya gotta do what ya gotta do.

Rinne, It sounds like the seminar was really interesting and thought provoking. I'm so happy you are on a "track!" Where are you located? (I'm considering just throwing my hands up and flying somewhere because I'm sick of trying doc after doc). Like you, I am determined to get better. I have a lot left to do in my life!!!! This is preventing me from doing those things, so we have to fix that! So it seems like what you had done was similar to Rachels---I have to check this out! I enjoy reading yours-and everyone's- long posts. They are so informative and keep me encouraged.

Miamia-The scary thing is, NIH is the leading research etc hospital in the US. You don't much higher up than that. So its frustrating when a doc there gives me some of the same BS that I've gotten from my 1st GI in Auburn (who didn't ever suggest Celiac until I asked to be tested by another doc), my GP and OB in Auburn, my GP and GI in Virginia Beach (My GI there is #1 on my list of bad docs)...I even switched GIs at the very end and she called about something else yesterday and was so "surprised" to hear I was doing so poorly. She did say that she wanted me to call when they find something so she knows. But yes, I have heard the same thing in two "phases" (one-the pre-Celiac; and two-now). Its so frustrating. My mom really thought I was going to blow my lid when he brought up acid reflux, IBS, and chronic fatigue, and some of the misinformation on Celiac. He and I obviously bantered about this. He just seemed interested in treating the symptoms and not the problem....I understand that, but not before they've even run any of their tests etc. I was told I had all these horrible things before my Celiac dx by my rheumatologist (that I would be confined to a wheelchair within 2 years because of my progression and that I would never have children...I was 23 and married for 2 months at that point---talk about shocking!) --- but going gluten free solved all those probs---I didn't "have" any of that other stuff. One suggestion he made was to eventually put me on a feeding tube (I am still dropping weight...down to 100.3 lbs at 5.4...so I understand) ... he seemed like it was only a cosmetic concern that I was concerned about my weight (He asked if it was a goal of mine to gain weight. Well, yes, technically, but only as a result of stopping whatever is going on in my body!)

Donna---Your docs on are on my list now! Thank you for posting the link---I am going to check it out and save it. I'm still learning about this mercury and adrenal thing. I hope that this is "it" for you. I'm happy you have docs that are working with you!!!

Mmmmm---Patti----dinner sounds yummy. Delicious, I'm sure!

xoxo to all.

Laura-

Yeah I live in NY I went to the the top gastro doctor who ended up basically telling me good luck- no literally telling me that when he decided he coulden't help me . I went to the celiac center at colombia and the doc told me she coulden't figure out what was wrong and maybe I should go to this place - basically for eating disorders becaus eI probably wasen't eating. My father was with me- who has to watch me eat everyday and sees how painful it is for me he almost jumped across the table at her. The "top" docs really are not always very good!!!

I actually asked to be put on a feeding tube- I can';t gain weight no matter what I eat and I don't get hungry because I don't digest my food properly so basically I have to force feed myself 3 times a day and it is not a comfortable experience. My doc is worried to put me on a tube though becaus eit seems like every time I cut something out my body gets more and more sensitive and if I were to rely on a food tube my body might start rejecting alll food or something. The worst part of this is I love FOOD!!! I still take time in preparing every meal and making it taste good even if its not necessarily pleasent to eat it.

Me too Patti.....only the organic stuff from Whole Foods....its really expensive though considering I'm eating a pound a day. I'm eating $7 worth of beef everyday. I dont even wanna know how much that will add up to in a month....or a year even.

Yeah...I'm wondering about this too Miamia. Do you know which lab tested you? Alot of the labs arent reliable so you might want to double check on this?? Alot of people test negative repeatedly through these labs only to find out later that they do have Lyme but the first labs werent sensitive enough to pick it up.

Ahh...I'm behind you here in Cali....I was posting at 6:30 and it was still dark and I felt like I really should be back in bed.....

Rachel

I checked with my doc last week and he said he always uses igenix.

But what you were describing about the test sounds different than what I had. What did your test entail

Miamia

[jerseyangel]

The worst part of this is I love FOOD!!! I still take time in preparing every meal and making it taste good even if its not necessarily pleasent to eat it.

This just about broke my heart Why, if there so many of "us", dosen't someone actually specialize in these types of problems. It seems like we have to hunt for and track down people to listen. I'm so glad and happy that some of us are on the right track, but why is it that others of us still can't even figure out what to eat? Sorry for the negativity, but sometimes it just gets to me.

[miamia]

This just about broke my heart Why, if there so many of "us", dosen't someone actually specialize in these types of problems. It seems like we have to hunt for and track down people to listen. I'm so glad and happy that some of us are on the right track, but why is it that others of us still can't even figure out what to eat? Sorry for the negativity, but sometimes it just gets to me.

don't apologize all of us are struggling and its hard!!! I think for me its more than just reacting to a food- but food- I mean defintly things like dairy, gluten and other things and I am sick for days but I think my system is so messed up that all food just sits bad.

I agree its so crazy that there are so many of us- I sometimes want to print this whole thread and mail it to my old doctors who never even thought to test me for food allergies even though I told them when I acertain foods I felt like my throat was closing up, coulden't breathe, etc.

[Rachel--24]

Some of it I don't relate to, the questionaire included, "are you fulfilling your mission in life?" I had answered, my mind does not work this way, I have no mission, I am the mission.

Rinne....you are something else!

I'm so excited about this clinic you went to....it sounds awesome!

The Bioset lady will be working with my Dr. and whoever ends up treating the Lyme will work with them as well. It will be teamwork!! I thinks thats the best way to go about it because when there is multiple things going on they can each focus on their own expertise while also being "clued in" to the whole picture of whats going on with me. I feel like more things will be addressed and less chance of missing something when there is communication between the people helping me.

I'm getting a little excited about starting the process. Rinne your own joy and excitement is contagious.

I have swollen glands too....its chronic...been there the whole 4 years almost. Its mainly in my neck and head but also under my arms. The Bioset lady said that my lymphatic system is very affected by this. I asked her about TMJ and if it can be caused by Lyme. She said the lymphatic system is what the Lyme is getting into and so it ends up creating lots of problems with drainage and the joints and everything thats in that area where I have swelling and pain. She said it can get a whole lot worse if it doesnt get treated....there can be blockages and drainage problems and the Lyme can really get into the brain and stuff like that.

I may be off a little with the specific "wordage".....or perhaps I'm alot off...just trying to remember all I can. Good thing I have Dave to correct me when I'm having these moments of "offness".

Anyway I hope what I'm saying is pretty close to what she told me.

[rinne]

This just about broke my heart Why, if there so many of "us", dosen't someone actually specialize in these types of problems. It seems like we have to hunt for and track down people to listen. I'm so glad and happy that some of us are on the right track, but why is it that others of us still can't even figure out what to eat? Sorry for the negativity, but sometimes it just gets to me.

I've asked Hoffman for a complete list of doctors in the US who are like him, he is going to do that, if I don't have it soon, I will remind him. His week last week was insane, on Monday his 18 year old son nearly died of meningitis.

I may be off a little with the specific "wordage".....or perhaps I'm alot off...just trying to remember all I can. Good thing I have Dave to correct me when I'm having these moments of "offness".

We're glad you have "The Dave" too.

The glands swelling in my case are fairly new, or at least I think they are, I could remember later that they were before just like I did with the numb toe thing. I must have read that symptom 10 times and didn't relate it to me at all and then one day when my toes felt dead, I went, Oh yah, I have this one too.

Yes, I feel Lyme Alive, it is a radical world, I am feeling very feisty. I know now on a cellular level that with each breath we make choices that determine our wellness and if I want to be truly well I have to take responsibility for my every action. It goes to my pillows or rocks theory.

[happygirl]

x

[Rachel--24]

Rinne,

Would love that list of doctors when you get it. You are so thoughtful! I can't believe his son died---how heartbreaking.

Laura....I dont think his son died...I think he *almost* lost his son to meningitis.

Rinne.....that would be great for everyone if you can get a list like that!

Rachel

I checked with my doc last week and he said he always uses igenix.

But what you were describing about the test sounds different than what I had. What did your test entail

Miamia

The Igenix test was bloodwork. If you dont have the results to the test see if you can get them. If a Dr. isnt too familiar with Lyme they might "miss" what could be a positive test. One of my Igenix tests was technically negative but when you really look at it and read the explanation its clear that it was very likely positive.....just didnt meet the criteria for diagnosis. My Dr. knew this though. There was another test that Igenix ran that came back positive and then the Bioset test was used to confirm the Lyme diagnosis.

You might want to get your hands on your Igenix results to be sure that nothing was missed and that the results were interpreted accurately.

[DingoGirl]

Susan..having a good nite?

judy

Hi Judy, you sweet lady! Yes, had a good night but I Think the donut binge is catching up wiht me...have had that "kicked in the gut" feeling for three days, which means I really did hurt my poor villi, and lots of gas which I don't really have any more. Judy...hope you are feeling better and that awful D goes away.....

Susan, if you decide you want to see these doctors the place is called HealthNow, on Mary Ave in Sunnyvale. They have a website which I'll see if I can post a link to. You can also email them to ask a question plus they offer FREE consultations, my free consultation lasted at least 30 minutes I think. I emailed them way back in April to see what kind of food allergy testing they did, and one of the doctors emailed back and forth with me for a while after that. I get the sense that they MEAN it when they say they want to find the CAUSE of symptoms rather than just medicate them.

Donna - that is awesome! thank you for this info, I've bookmarked the link.

Ahh...I'm behind you here in Cali....I was posting at 6:30 and it was still dark and I felt like I really should be back in bed.....

you girls....I REALLY think you should be getting MORE SLEEP! Now don't make me send the dingos after you...I think Laura was up way TOO LATE and got up too early, now listen to me, SLEEP IS RESTORATIVE and your bodies need it! Lots of it, you need to heal!

I agree its so crazy that there are so many of us- I sometimes want to print this whole thread and mail it to my old doctors who never even thought to test me for food allergies even though I told them when I acertain foods I felt like my throat was closing up, coulden't breathe, etc.

Mia - - - my heart breaks for you. It would be so great if doctors could read this thread (well....not ALL of it - maybe we could leave out a month or two from the summer - and of course delete ALL of my posts ).....I think the problem with so many doctors is they have NO TIME. they just get patients in and out like cattle....I think many of them are frustrated by it, but just as many, sadly, really don't care. So awful.

My own grandafather was a doctor, born in Norway and raised in US. I have in my home an ancient and exquisite tapestry, which was traded to him from a patient who couldn't afford care. Many patients bartered with him, and evidently he was the kindest, most caring doctor that many had ever known (he died two weeks before I was born). He is in a book, in fact, about doctors in the Plains States who traveled and worked in arduous conditions to reach their patients. I think even doctors of his ilk would not be able to practice medicine as they wished in present conditions, and it's so sad.

Rinnie - - I am so happy for you, and BTW your writing and descriptions are just so beautifully poetic and elegant. What a bright spirit you are, despite your body dragging you down....enjoy your party! Wish we could be there.

OMG guess what.....was reading a magazine last night on organic/ natural lawn and garden pest control, and one of the things to kill weeds, crabgrass, dandelions....CORN GLUTEN. HOw evil and scary is that???

Well....the dingos are staring, I think they know it's SAturday and we have got to go do something fun.....

[Fiddle-Faddle]

I dont know if Scott ever allows people who've been banned back on. Tailz is very passionate in her beliefs which isnt a bad thing...but if she tells everyone Lyme causes Celiac its gonna cause the same problems and I dont think he'll go for it.

Did she say that? I didn't know that. I thought she was just saying that she thought a lot of people who were diagnosed as celiac actually had Lyme, and that the two sets of symptoms are nearly identical. I didn't get the impression that she was saying anyone here could go back on gluten or anything like that. She actually never told ME that she thought I should be tested

[Rachel--24]

Well....the dingos are staring, I think they know it's SAturday and we have got to go do something fun.....

Yup....its Saturday....and the sun is out.

The Dave is off today....maybe he will want to do something fun...will hafta call and wake him up.

[happygirl]

x

[Rachel--24]

Did she say that? I didn't know that. I thought she was just saying that she thought a lot of people who were diagnosed as celiac actually had Lyme, and that the two sets of symptoms are nearly identical. I didn't get the impression that she was saying anyone here could go back on gluten or anything like that. She actually never told ME that she thought I should be tested

I believe what she was saying was that Lyme Disease CAUSES Celiac....there is no evidence that this is true. Not everyone who has Celiac has Lyme. Personally I think Lyme can be a trigger for Celiac (if you have the genes) just like anything traumatic can trigger it.....but obviously not everyone with Celiac has Lyme. I dunno....there was obviously some confusion as to what she was saying....so maybe I'm wrong but I was under the impression that this was the reason she was banned. For going into numerous threads and pm'ing people saying that Lyme causes Celiac.

She did pm me saying that she felt I had Lyme because she said I looked skinny and unhealthy in my avatar....the pic was actually from my moms wedding 4 years ago and I was normal and healthy at that time. I was already in the process of testing but she didnt know this. She must of been sending similar pm's to other members because I think that was one of the reasons she got banned.