Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something


Rachel--24

Recommended Posts

Rachel--24 Collaborator
Rachel,

Any other reason you're bubbly today?

Andrea....in conjunction with my response to Susans post about my melodramatic w/end.....Nope, no other reason for my bubbliness....it just came outta nowhere. :unsure:

Maybe the overload of toxins cleared my system??? :huh: The most IMPORTANT thing is that I am now rational and of sound thinking...and Oh what a relief it is. :D

I asked the Bioset lady about this....told her how I got all crazy and emotional.....could it be from the floorwax??? :huh:

She said yes, definately..a toxic liver affects emotions and stabilty and all that. I told her I had balls of stress inside my stomach...hurting me. I wasnt even able to sleep well from all the "panicky" feelings. Today it all kind of "washed away". She said after all these treatments it will be washed away for good....no more toxic buildup and balls of stress in my stomach. :)

This one gave a little scientificness behind the modality:

Ahh...thanks Julie...will check it out. :)

Your post remided me of something else...actually the word "modality" reminded me....

The Bioset lady told me tonight that there was something going on with my gut mobility....or something like that. :unsure:

I was thinking yeah.....my gut is really mobile...that would be the alien baby....he likes to move around. :rolleyes:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 33.4k
  • Created
  • Last Reply
evie Rookie
Thank you all for the birthday wishes, they make me smile.

Can't get caught up!! :( Been gone most of day. Hope rinne can see my Happy Birthday to you.. before she goes to bed?? Hope you have had a VERY good day. evie

Rachel--24 Collaborator
I think that fear or panic is the body's way of attempting to communicate its' distress to us but because our attention is generally directed outward we attach that feeling of fear to events in our lives rather than looking inward.

Rinne....

Would this be the same as me having balls of stress and anxiety in my stomach for no apparant reason but then *looking* for a reason and lashing out because I dont know what the heck is going on??

This seems to happen to me now and then.....when I get really toxic...like last week. It affects my behavior.....it brings the worst out of me but all I really wanna do is make the balls of stress disappear. Except instead I end up making people disappear and create even bigger balls of stress inside me. :(

Green12 Enthusiast
I was thinking yeah.....my gut is really mobile...that would be the alien baby....he likes to move around. :rolleyes:

:lol::lol::lol::lol::lol::lol:

The alien baby kills me......

Goodnight all! Lots of wub to everyone :wub:

AndreaB Contributor

Rachel,

I don't know (rinne's post). But is does make sense (your post).

Goodnight all! Lots of wub to everyone :wub:

Night Julie.

Rachel--24 Collaborator

Andrea....You got a new horse!! :)

Julie....how come you are chocolatey and chunky again?? :unsure:

I was liking the new pic....now I'm seeing Pamela's again?? Please say its just my computer....

Good night everyone.

Sweet dreams :)

rinne Apprentice
Rinne....

Would this be the same as me having balls of stress and anxiety in my stomach for no apparant reason but then *looking* for a reason and lashing out because I dont know what the heck is going on??

This seems to happen to me now and then.....when I get really toxic...like last week. It affects my behavior.....it brings the worst out of me but all I really wanna do is make the balls of stress disappear. Except instead I end up making people disappear and create even bigger balls of stress inside me. :(

It makes sense to me, I've been in the same kind of space. :ph34r:

Evie, I received your birthday wishes on my birthday :) thank you.

Now, total indulgence in strawberry ice cream, very bad birthday girl. :lol: Julie, see where your cheese has led me. :lol:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AndreaB Contributor
Now, total indulgence in strawberry ice cream, very bad birthday girl. :lol: Julie, see where your cheese has led me. :lol:

Just like Rachel led me into an ice cream binge. :lol::lol:

Rachel--24 Collaborator

Julie...thanks again for the link. :)

This is what the lady does with me! Thats how she verified the Lyme also...I touched a bunch of glass vials with Lyme bacteria in them. She has a gazzilion glass vials....soo many different substances. After I touch them and she finds out which ones are "bad"...she puts them on the metal plate.

Dr. Voll also discovered that an allergenic substance in a glass vial in contact with a person could influence the EAV measurements. He further discovered that if the allergenic substance was placed on a metal plate into the circuit between the person and the EAV device, there would be a change in the EAV reading. More current research substantiates this(4). Dr. Voll correctly postulated that EAV could not only detect the lower resistance at acupuncture points, but could also be used for diagnostic purposes to measure changes in biological electromagnetic energy corresponding to alterations in disease processes(5). Ongoing research has shown that the electrical activity changes of the acupuncture points demonstrate a change long before pathology appears in the cells and tissues(6).

This is what we did last night but it still doesnt explain how it works.....says its too complex. :(

Desensitization for Effective Elimination of Allergies and Sensitivities

The BioSET™ Desensitization Technique is used to for any sensitivity a person is reacting to. While the patient is "connected" into a virtual electromagnetic circuit with the EAV and the allergen, the practitioner gently taps acupuncture points up and down the spine. This balancing of key acupuncture meridians and the balancing influence through the autonomic nervous system desensitizes the person's body to the previous allergen. The complex physiologic and neurological mechanisms by which this occurs is beyond the scope of this article. Nevertheless, the successful clinical results of this procedure have been proven through thousands of patients over the course of the development of the BioSET™ system of healing

:huh:

Rachel--24 Collaborator

Oh....I also asked her if when my overall toxicity score comes down below 7....will I then notice a reduction in the chemical sensitivities??

She said....occassionally people do....it can happen that way but it all depends on my immune system. She said if its "switched on" to these things that I'm reacting to it wont necessarily "switch off" on its own. It can keep reacting just the same. She said we will have to wait and see which things I'm still reactive to and she will de-sensitize them....basically switching them "off".....so that my immune system forgets about them.

Julie (or anyone),

Is this treatment like N A E T or is it different?? :unsure:

dlp252 Apprentice
Donna,

Your appointment sounds fantastic. Could you pm me what he charges for the removal and placing crowns. I called my dentist and the gal there told me he usually shaves the tooth enough.

Get some rest and relaxation time. Hope you feel better in a bit. :)

Sure, I have all the charges with me...they gave me estimates for the whole mouth...be prepared, it's a shocker, lol. I'll PM you in a bit.

Donna, I am so happy you are starting to make some progress, esp in liking this office and feeling comfortable with them..that makes such a big difference! But I'm sorry you aren't feeling too well tonight. Hope you get a good nights sleep and wake up feeling more refreshed.

xoxo

Thanks Laura!

That was a driveby Donna? :lol::lol::lol:

:lol: Yah, a slow one, lol. I didn't really respond to anyone else's post...just a driveby. :lol:

I wouldn't be surprised if the anesthesia was the cause of you not feeling well, I never felt well when I got shot up in the dentist chair :blink:

One quadrant down, how many to go??

3 more to go...the second one starts on Nov. 8! I was trying to decided if I was reacting to the drugs or if it was something else...I decided to take my blood pressure right after I posted and got off the computer and before I layed down. It was 89/50!!! Yikes! I layed down for a while then retook it and it went up a bit to 93/50ish. I tried taking it twice standing up and it wouldn't get a reading. Anyway, I don't usually react to the dental stuff, but I'm wondering if he uses something different.

This was one of the worst episodes of lightheadedness...I was truly off balance the whole afternoon/evening. I don't remember it being that bad before...it's been bad, but not like that.

And, I woke up again this morning at 1:30, and I was lightheaded and dizzy IN BED!! That lasted until 3:15ish when I think I dozed off again for a bit. If I didn't have to get up at 4:00 I think I could have slept at least another hour.

Wow....a bunch of amalgam under your crowns!! :o

It really could be mercury toxicity for you...werent the crowns gold?? Oooooh...thats alot of mixed metals. <_<

I'm keeping my fingers crossed that this is the answer and that you get better. :)

Yes, a whole bunch of amalgam under a gold crown, lol. I have 4 more gold crowns done by the same dentist, so I'm sure there is a lot of amalgam under those as well.

Ugh. stomach is rumbling and there may be some GBB (gas bomb bloat)...... :huh: Sometimes it really is good that I only live with dogs. :lol::lol::lol:

You and me both then last night...the rumbling started BIG time after I layed down and well, gas bom bloat...didn't have time to bloat...gas bombs kept a coming. :lol:

Donna- Get that stuff outta your mouth! Ii am so happy for you that you are getting those fillings out. I know it's not fun, but in the long run :D

Thanks Bev...I'll be really interested to see if Lyme is a possibility for you!

Laura, I think "Rachelville Resident Happy Girl" would work. :)

Donna, so glad the appointment went well, I really hope this will result in better health for you.

Thanks Rinne...yes, excellent title for Laura!

Rinne....

Would this be the same as me having balls of stress and anxiety in my stomach for no apparant reason but then *looking* for a reason and lashing out because I dont know what the heck is going on??

This seems to happen to me now and then.....when I get really toxic...like last week. It affects my behavior.....it brings the worst out of me but all I really wanna do is make the balls of stress disappear. Except instead I end up making people disappear and create even bigger balls of stress inside me. :(

I do this too from time to time...balls of stress and anxiety is a great to put it...I've been lashing out at work but the people won't disappear. :lol::ph34r::o

diamondheart Newbie

I can never seem to catch up here, but just a quick note to Susan

My ramblings.....well, I was just having a love surge for you guys, and feeling so hopeful about many things for you, saying that I don't quite fit in here :ph34r: as I don't have all the intolerances (mine has been the stinkin' mental/psychological issues), but how much I always learn here and have been able to apply much of it to so many others' stories I seem to be hearing all the time now, in real life.

Susan, one of the ways the food intolerances affect me is mentally. The other day when I had the cookies, it went right to my head, just like alcohol. I then became irrational, irritable, and emotional. My brain was so whacked out by the sugar and whatever else I reacted to. My thoughts were going a mile a minute. I had bizzare dreams. I'm better now. I have learned by watching carefully what food does to my brain. There is a lot about the gut-brain connection in the Autism world, and that is why parents of autistic kids try to heal the gut to heal the brain. We have a lot of nerves in our digestive system.

Also, the food intolerances manifest for me in depression. The only reason I truly believe this is that I see the difference after cutting these things out for a year. I'll provide a link here about my story on this that I posted on another board:

Open Original Shared Link

I'm sure I'm not the only one here who has had these experiences.

take care, Claire

dlp252 Apprentice
I can never seem to catch up here, but just a quick note to Susan

Susan, one of the ways the food intolerances affect me is mentally. The other day when I had the cookies, it went right to my head, just like alcohol. I then became irrational, irritable, and emotional. My brain was so whacked out by the sugar and whatever else I reacted to. My thoughts were going a mile a minute. I had bizzare dreams. I'm better now. I have learned by watching carefully what food does to my brain. There is a lot about the gut-brain connection in the Autism world, and that is why parents of autistic kids try to heal the gut to heal the brain. We have a lot of nerves in our digestive system.

Also, the food intolerances manifest for me in depression. The only reason I truly believe this is that I see the difference after cutting these things out for a year. I'll provide a link here about my story on this that I posted on another board:

Open Original Shared Link

I'm sure I'm not the only one here who has had these experiences.

take care, Claire

Nope, you're not the only one! What I eat directly affects all parts of my body including mental function and emotions, so I'd tend to agree with you!!!! Sugar really does affect me negatively...I get mood swings, etc.

Green12 Enthusiast
Julie (or anyone),

Is this treatment like N A E T or is it different?? :unsure:

It's different, but it sounds like there are some of the same principles.

My experiences with NAET went like this: I am trying to remember it all but some of it is fuzzy............it definitely invovlved the substances in glass vials, and you do one allergy at a time, usually starting out with the basic components of foods, like for example calcium or magnesium, and then you get into whole foods like egg, corn, soy, etc. If I recall correctly there is a certain order as to what you "clear", or desensitize from. You go through the order of vials, and muscle test (applied kinisiology technique) and if you aren't testing sensitive you go on to the next vial until one comes up sensitive, and then that is the allergy you "clear". Of course for me, I was sensitive to all of them so I had to go one by one. Then, the treatment is you hold the vial in your hand and the practitioner does some techniques with kinisiology and acupressure/acupuncture on your back, and it invovles some thumping on your back with a clicker at different energy points, and you lay there for like 15 minutes. Then, for 25 hours following, you can not eat or touch whatever you had cleared, so they give you a sheet with a list of things you have to stay away from. This was the hardest part I thought because when you are doing something like B Vitamins, you can't eat or touch anything made up with B Vitamins- so it meant only eating white rice or cauliflower (2 very stripped down foods, nutritionally speaking) for 25 hours. Then you go back after 25 hours, next day or two, and the substance is tested again with kinisiology and if it is successful you test no longer sensitive to the substance in the vial.

Here is a link to the official NAET page:

Open Original Shared Link

......and a quote from the site:

"What are Nambudripad's Allergy Elimination Techniques?

Nambudripad's Allergy Elimination Techniques, also known as NAET?, are a non-invasive, drug free, natural solution to eliminate allergies of all types and intensities using a blend of selective energy balancing, testing and treatment procedures from acupuncture/acupressure, allopathy, chiropractic, nutritional, and kinesiological disciplines of medicine. One allergen is treated at a time. If you are not severely immune deficient, you may need just one treatment to desensitize one allergen. A person with mild to moderate amount of allergies may take about 15-20 office visits to desensitize 15-20 food and environmental allergens. Basic essential nutrients are treated during the first few visits. Chemicals, environmental allergens, vaccinations, immunizations, etc. are treated after completing about ten basic essential nutrients. NAET? can successfully eliminate adverse reactions to egg, milk, peanuts, penicillin, aspirin, mushrooms, shellfish, latex, grass, ragweed, flowers, perfume, animal dander, animal epithelial, make-up, chemicals, cigarette smoke, pathogens, heat, cold, other environmental agents. NAET? was discovered by Dr. Devi S. Nambudripad in November of 1983. "

As far as I know I am no longer chocolatey or chunky.....maybe it is just your computer :unsure:

Sorry rinne I brought the dairy monster out :blink:

Susie, how is the GBB? I hope better :)

CarlaB Enthusiast

Donna, even with all the right precautions, I still felt very sick when I was having my amalgams removed. Do they have you taking supplements to aide in the detoxing of the mercury? I remember that as long as I took my glutathione regularly -- something like 6 times a day -- I felt good.

Rachel, my acupuncturist told me that modern medicine hasn't been able to explain how it works. The NIH has proven that it does work, but they don't have a clue why. There is the ancient Chinese explanation that Julie posted, but it's not modern scientificness. I think there's just so much about the body that we still do not know -- about the electro-magnetic fields, how the mind and body work together, etc.

dlp252 Apprentice
Donna, even with all the right precautions, I still felt very sick when I was having my amalgams removed. Do they have you taking supplements to aide in the detoxing of the mercury? I remember that as long as I took my glutathione regularly -- something like 6 times a day -- I felt good.

He didn't say anything about supplements...I'll ask him next time, and I'll also ask the internist when I see her tomorrow, and the nutritionist when I see her again. :P

CarlaB Enthusiast
He didn't say anything about supplements...I'll ask him next time, and I'll also ask the internist when I see her tomorrow, and the nutritionist when I see her again. :P

Well, I just googled amalgam removal ... I had mine done over 15 years ago, so I'm sure that the supplement protocol has changed since then, but all the sites I saw still recommended vitamin C and glutathione. I'd definately look into it, and I'd take vitamin C, too, if you can tolerate it. I know the supplements helped me tremendously, otherwise I felt like I had the flu.

DingoGirl Enthusiast

morning all...

Claire - thank you SO much for that, I've bookmarked those links. Yes, I remember just crying in childhood on many days and just feeling like I wanted to die.....but I didn't start to watch what I was eating until end of high school. my mom made me de-bone a chicken and I was so sickened by it that I was an vegetarian for two years, also gave up all sugar. WHY I didn't sitck with that, I don't know...... :huh:

Oops - forgot I'm supposed to get B6 supplements. thanks for the reminder!

dlp252 Apprentice
Well, I just googled amalgam removal ... I had mine done over 15 years ago, so I'm sure that the supplement protocol has changed since then, but all the sites I saw still recommended vitamin C and glutathione. I'd definately look into it, and I'd take vitamin C, too, if you can tolerate it. I know the supplements helped me tremendously, otherwise I felt like I had the flu.

Thanks Carla...I DO have some Vit C supplements at home, maybe I should take those...if I have glutathione it's as old as the hills, but I can pick some up.

CarlaB Enthusiast
Thanks Carla...I DO have some Vit C supplements at home, maybe I should take those...if I have glutathione it's as old as the hills, but I can pick some up.

There was a bunch of other stuff, too, so you might want to Google it in case they work together somehow.

I have a question for all of you ... I'm still suffering from bad d. I know I have no gluten or casein in my diet. I don't think I have other food intolerances. This all started after a couple weeks on my stricter diet, saunas, and supplements. Could it still be detoxing? Yesterday was the first day in over a week I could eat without it causing severe stomach upset and an immediate trip to the bathroom ... the d is still as severe, but not as immediate.

jerseyangel Proficient
There was a bunch of other stuff, too, so you might want to Google it in case they work together somehow.

I have a question for all of you ... I'm still suffering from bad d. I know I have no gluten or casein in my diet. I don't think I have other food intolerances. This all started after a couple weeks on my stricter diet, saunas, and supplements. Could it still be detoxing? Yesterday was the first day in over a week I could eat without it causing severe stomach upset and an immediate trip to the bathroom ... the d is still as severe, but not as immediate.

I don't think its your diet or the saunas--but the supplements, I would question. I don't really know why, but any suppliments I've tried lead to stomach upset and D. (and not at the beginning--after a few days or so) And I mean the so-called good ones that say they contain no gluten, soy, etc. I got much better when I just discontinued all of them. I even reacted to Freeda Multivitamins!

It could be detoxing, too. It's hard to tell, but I would stop the suppliments for a few days and see if there's any change. If not, at least you've ruled them out.

CarlaB Enthusiast
I don't think its your diet or the saunas--but the supplements, I would question. I don't really know why, but any suppliments I've tried lead to stomach upset and D. (and not at the beginning--after a few days or so) And I mean the so-called good ones that say they contain no gluten, soy, etc. I got much better when I just discontinued all of them. I even reacted to Freeda Multivitamins!

It could be detoxing, too. It's hard to tell, but I would stop the suppliments for a few days and see if there's any change. If not, at least you've ruled them out.

Thanks for the suggestion ... Almost all of these supplements I've been taking all along with no problems -- for years and since going gluten-free. I did add a few new ones, but I did what you said and tried discontinuing the new ones, but it didn't do anything. And for a few days, I took none at all because of my stomach upset, but it didn't help.

Yesterday and today I am finally not getting sick immediately after eating .... which is good because even water was making me sick. I actually gained 1 1/2 pounds yesterday to today, probably just from the water. Adam was getting concerned that I was going to need an IV to rehydrate me.

jerseyangel Proficient
Thanks for the suggestion ... Almost all of these supplements I've been taking all along with no problems -- for years and since going gluten-free. I did add a few new ones, but I did what you said and tried discontinuing the new ones, but it didn't do anything. And for a few days, I took none at all because of my stomach upset, but it didn't help.

Yesterday and today I am finally not getting sick immediately after eating .... which is good because even water was making me sick. I actually gained 1 1/2 pounds yesterday to today, probably just from the water. Adam was getting concerned that I was going to need an IV to rehydrate me.

Wow--well, hopefully whatever it is is winding down. It would be so nice if our systems decided to work right, just once in a while! :D

AndreaB Contributor

Carla,

I don't know. I'm with Patti. Hopefully this is winding down and you'll be back on the upswing again.

Hi Claire!

Thanks again Donna. :)

Hi Patti.

Hi Julie.

Hi Susan.

I see you Rachel.

Ok, I had another duh moment. My daughter was up late, late, late last night due to her tummy hurting again. I just looked at our fruit spread......lemon juice! I was beginning to think she had a problem with the chocolate. Don't know if I can find fruit spread without lemon juice. We don't buy the stuff with corn syrup in it. Gotta run out to the store, which I really don't want to do. Mitch didn't get home til 12:30. I was getting really concerned because he had called to tell me to get his paycheck and told me he had to tarp. He was injured 2 years ago tarping. Seth also had a rough time again last night. Maybe tonight will be better.

Hello to everyone else that hasn't posted yet today. :D

Rachel--24 Collaborator
, one of the ways the food intolerances affect me is mentally. The other day when I had the cookies, it went right to my head, just like alcohol. I then became irrational, irritable, and emotional. My brain was so whacked out by the sugar and whatever else I reacted to.

I'm sure I'm not the only one here who has had these experiences.

Yup.... same thing happens to me. It affects everything and that definately includes my moods, behavior and my ability to think clearly (or lack of). :ph34r:

He didn't say anything about supplements...I'll ask him next time, and I'll also ask the internist when I see her tomorrow, and the nutritionist when I see her again. :P

I've always read about Vitamin C. Some people get IV Vit. C before amalgam removal. No matter how catious they are you're always going to be subjucted to *some* amount of mercury. Thats why they dont recommend having alot removed at once....to allow your body time to detox it and to not overwelm your system...especially if you are already toxic. If you are already toxic from mercury...the removal can still cause you to feel bad....even with the safety measures.

I have a question for all of you ... I'm still suffering from bad d. I know I have no gluten or casein in my diet. I don't think I have other food intolerances. This all started after a couple weeks on my stricter diet, saunas, and supplements. Could it still be detoxing? Yesterday was the first day in over a week I could eat without it causing severe stomach upset and an immediate trip to the bathroom ... the d is still as severe, but not as immediate.

I'm not really sure Carla but I'm thinking it could be something in your diet or supplements??

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,244
    • Most Online (within 30 mins)
      7,748

    Peter McGill
    Newest Member
    Peter McGill
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      71.5k

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      There are thirteen essential vitamins:  eight B vitamins, four fat soluble vitamins, and Vitamin C.  They all work together.   If you are deficient in one, you are probably low in the other dozen.  Celiac Disease affects the absorption of all the vitamins, and the dozen or so essential minerals, as well.  Cobalamine Vitamin B12, needs Folate B9 and Pyridoxine B6 to function properly.  Pyridoxine B6 needs Riboflavin B2.  Vitamin C is needed to interact with B12 as well.  Thiamine B1 and Niacin B3 are also needed to provide the energy for these vitamins to function properly.  If one is also low in Folate and Pyridoxine, B12 Cobalamine is not going to be able to function properly and the body doesn't bother to absorb it.   Vitamin D is safe even in high doses.  Vitamin D3 should be supplemented.  Vitamin D2 is not as well utilized because it's synthetic, not a form the body can utilize easily.  Vitamin D must be activated by Thiamine Vitamin B1.  Insufficient Thiamine B1 will make one feel "dopey".  Thiamine is needed for brain function.  The brain uses as much energy just thinking as your muscles do while running a marathon.   Multivitamins do not contain sufficient amounts of essential vitamins to correct nutritional deficiencies.  Supplementing with ALL eight B vitamins, extra Thiamine (don't use the form thiamine mononitrate because it's not absorbed nor utilized well), Vitamin C and the four fat soluble vitamins will be more beneficial than just supplementing one or two vitamins by themselves. With sufficient amounts of essential vitamins, the immune system gets regulated and becomes less reactive to other things like pollen, molds and animal dander.  Sleep apnea is frequently found in Thiamine insufficiency.  The eight essential B vitamins are water soluble and easily excreted if not needed.  The B vitamins all work together.  Supplement them together. Thiamine deficiency disorders: a clinical perspective https://pubmed.ncbi.nlm.nih.gov/33305487/  
    • Jane07
      i have been gluten free for about 2 yrs i had a ttg recently done my blood test was .7 higher then last time. i must be doing something wrong im still not in the normal range. What advice would anyone give?
    • Michelle Amirault-Packard
      He should definitely have his vitamin D and Vitamin B12 checked.  I have celiac and i always felt tired, sometimes i described it as dopy.My vitamin D is always low at times extremely low which can affect you. But  I also did some research and contacted my doctor to see if she checked my Vitamin B12 and She said she didn’t check my vitamin B-12 because a wasn’t Anemic and the normal protocol is , if you are not Anemic they don’t test for B-12.  She had no problem doing the test for me and it came back super super deficient . So I was given a shot of B12 once a week for 4 weeks and I give myself 1 shot intramuscular once a month now for 18 years. Once your B12 is low it can take a long time to bring it back up and sustain it. I think it took about 6 months to get a decent number and about a year to get it right. I do get my Vitamin D checked but not yearly more like every other year because it is a more expensive test and I tend to always be low. I do take a vitamin D supplement but I would talk to your doctor before taking a supplement to make sure you don’t take too much especially if you are already taking a multivitamin. Because too much D can also have some bad side effects.  Celiacs tend to be able to take a higher dose due to our digestive and malabsorption issues but always talk to your doctor before taking. Other things could be making him feel extremely tired  like new allergies like pollens, animals, molds etc.. sleep apnea is a huge one( cause extreme fatigue) and some medications. Just other things he can have checked! Good luck 
    • knitty kitty
      I suggest you eliminate dairy from your son's diet next.  Cow's milk protein, Casein, can trigger tTg IgA antibody production, the same as gluten, because casein contains segments of proteins that resemble gluten protein segments.   Mucosal reactivity to cow's milk protein in coeliac disease https://pmc.ncbi.nlm.nih.gov/articles/PMC1810502/ I cannot consume dairy products.  Some people find they can tolerate A2 dairy without a reaction. Corn is another frequently hard to tolerate food because the protein zein in corn also resembles the protein structure of gluten.   Do research in Dr. Derrick Lonsdale and TTFD thiamine.  Taking TTFD really can make a dramatic difference, speaking from personal experience. https://hormonesmatter.com/energy-deficiency-asd/ Keep us posted on your progress!
    • Scott Adams
      It sounds like you're doing everything right with your gluten-free diet, yet still experiencing significant discomfort, which must be frustrating. Since your stool sample came back normal but symptoms persist, pushing for further investigation—like a colonoscopy or biopsy—is a reasonable next step. You might also want to discuss the possibility of additional conditions, such as IBS, microscopic colitis, or other inflammatory issues, with your doctor. Tracking your symptoms, diet, and triggers in detail could help identify patterns. Don’t hesitate to advocate for yourself—if your current doctor isn’t addressing your concerns, seeking a second opinion or a referral to a gastroenterologist could be beneficial. You’re right to seek answers, and I hope you find relief soon. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
×
×
  • Create New...