Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something


Rachel--24

Recommended Posts

christine 25 Newbie
Armetta,

Thank you so much for sharing your story.

You were very lucky that your dad had that Dr. come to your house. I'm glad it worked out for you.

You've definately given me something to think about. I dont have excrutiating pain so far...probably the worst day I ever had with the ovary pain was last week but ususally I can deal with it....it doesnt prevent me from doing anything. Can an MRI see something that the ultrasound couldnt see? Does anyone know if my appendix could also be seen on that ultrasound? Nobody ever mentioned anything about my appendix so I assumed it looks good. :unsure:

if they suspect appendicitis, they can do a ct scan of the lower quadrant of your abdominal area, to rule that out and also, the right fallopian tube and ovary lie near the appendix so that can mimic appendix pain.

If it was your appendix you would have excrutiating pain and it would not let up and you would have a fever and eventually your appendix could rupture, sending you to the ER.

Its hard to diagnose, the floor I work on, the doctors preform 75% laprascopic appendix removals, and some of them are not necessary, and turn out to be other thing, ie a girl last week turned out to have PID, or pelvic inflammatory disease,,,ie and STD. opps!

I also take care of patients who have had diverticulitis, galbladder surger, colon cancer, bowel resectioning, ostomy surgerys, genernal digestive surgies, also some breast reductions, gyno, and some Nasal septum,, ent surgeries.

One thing I have noticed is that most of the paitents are young, and also that they have also had galbladder problems too, and other issues with digestion.

Most of the patients smoke or have bad diets too, they actually go outside to smoke after their surgery.

I think you need to see the gyn about the ovary pain, get another ultrasound done, and some blood hormone tests, tell her about your missed periods and acne, loosing hair, etc.

and general problems, but dont go into all the MSG stuff, that will just go over her head, maybe on the second appt or if you really feel comfortable.

I wouldnt start jumping from one body organ to the other, its prob the ovary, because they said it was oversized and had a cyst, they are prob right.

WIsh you could get in sooner to the doctor,,,,,,

this could be a sperate issue from your puffiness and etc,,,, tho

cause Ive always had intermittent ovary pain even before my immune system went hyper sensitive.

Christina


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 33.4k
  • Created
  • Last Reply
AndreaB Contributor
You can have a religious or medical exemption. You can have a medical exemption for the MMR if you are allergic to eggs, for example, as the MMR is egg-based.

Julie,

The other exemption I was talking about is personal belief or philisophical exemption. Some states accept those, others do not. Pneumococcal has soy protein in it so that would be another medical exemption one. I have a book called The Vaccine Guide by Randall Neustaedter OMD which is good. There is also a chapter in Health and Nutrition Secrets that can Change Your Life by Dr. Russell Blaylock. He has a lot of good info about a lot of things. He says to reduce or eliminate vaccines. That will vary depending on which state you live in. Don't know colorado laws on that. Some states like Mississippi where he lives are very strict. He says in strict states your options are (1) move to another state, (2) home school your children an avoid day care centers, or (3) fight it in court. The easiest recourse is the second option. He also says if you get vaccines to get the 6 months apart, one at a time to give the immune system a chance to recover. Do not get any vaccine with mercury in it or any live vaccine (if you get live vaccines have them separated, ie don't get the MMR together). Varicella is also live. He also says to improve nutrition during pregnancy and the breast feed. An anti vaccine website if you want to look at it is www.thinktwice.com. NVIC is a great site, seeking to educate parents so they can make informed choices. www.nvic.org.

Green12 Enthusiast
Thanks for all that info. Julie. :)

The thing is I wouldnt call my pain excrutiating at all. Its just more of a dull pain that comes and goes throughout the day. I feel it more depending on how I move...like if I bend over. The pain doesnt escalate as I get near my period either....it stays the same. Its probably at its worst when I'm ovulating. I actually had written this in my journal 2 years back. I wrote that whenever I ovulate I get worse symptoms and bad abdominal cramps.

When I spent the first 2 years at endless doctor appts I never brought up the abdominal pain because it was at the bottom of my symptom list as far as pain goes. I just never really paid alot of attention to it because other symptoms like head pain and blurred vision were far worse.

Rachel,

Maybe what you could do is go over your journal and pinpoint when you have the pain in relation to the cycle (ovulation, start of flow, etc.) , describe the pain, and note how long it lasted. Have yourself armed with the details, then you can present this to your doctor. Explain to her that before you were dealing with more pressing symptoms and now that you have them "sort" of under control and taking the backseat for the moment you are finding that as a result your symptoms surrounding your menstrual cycle/hormones and etc. are more noticeable and everpresent.

I agree that you need to get checked out to make sure everything is ok, just to rule out that it isn't anything other than regular run of the mill period pain.

Please keep us posted :)

Green12 Enthusiast
Julie,

The other exemption I was talking about is personal belief or philisophical exemption. Some states accept those, others do not. Pneumococcal has soy protein in it so that would be another medical exemption one. I have a book called The Vaccine Guide by Randall Neustaedter OMD which is good. There is also a chapter in Health and Nutrition Secrets that can Change Your Life by Dr. Russell Blaylock. He has a lot of good info about a lot of things. He says to reduce or eliminate vaccines. That will vary depending on which state you live in. Don't know colorado laws on that. Some states like Mississippi where he lives are very strict. He says in strict states your options are (1) move to another state, (2) home school your children an avoid day care centers, or (3) fight it in court. The easiest recourse is the second option. He also says if you get vaccines to get the 6 months apart, one at a time to give the immune system a chance to recover. Do not get any vaccine with mercury in it or any live vaccine (if you get live vaccines have them separated, ie don't get the MMR together). Varicella is also live. He also says to improve nutrition during pregnancy and the breast feed. An anti vaccine website if you want to look at it is www.thinktwice.com. NVIC is a great site, seeking to educate parents so they can make informed choices. www.nvic.org.

Thanks Andrea for the book suggestion and the website addresses to check out.

I don't know what the laws are in my state, but the more I think about this issue I really should find out what they are. I do recall having to have records of all the required vaccinations to get into high schools and colleges here, and if you didn't have them then you either had to go get vaccinated or you were not allowed to attend that school- so it makes me think my state is strict as well.

This is just one more issue for me to worry about when it comes to having kids. I have heard several stories about parents raising their child on a macrobiotic diet or a raw foods diet and they were charged with child abuse and thrown in jail. I wouldn't be surprised if the vaccination issue gets more serious with the hype over bird flu and HPV- they want to vaccinate EVERY young girl with an HPV vaccination. To me this is scary.

AndreaB Contributor
Thanks Andrea for the book suggestion and the websites addresses to check out.

I don't know what the laws are in my state, but the more I think about this issue I really should find out what they are. I do recall having to have records of all the required vaccinations to get into high schools and colleges here, and if you didn't have them then you either had to go get vaccinated or you were not allowed to attend that school- so it makes me think my state is strict as well.

This is just one more issue for me to worry about when it comes to having kids. I have heard several stories about parents raising their child on a macrobiotic diet or a raw foods diet and they were charged with child abuse and thrown in jail. I wouldn't be surprised if the vaccination issue gets more serious with the hype over bird flu and HPV- they want to vaccinate EVERY young girl with an HPV vaccination. To me this is scary.

It's only going to get worse as far as our rights are concerned. As far as I know for schooling through high school you can sign a form about exemption for personal, religious or medical reasons. At least our state still allows that. I know I found the info online. Computer crashed since then so I'll have to dig around in my files on my computer and see if that had been backed up.

Green12 Enthusiast
I almost got a belly piercing, but one of my co-workers got one around the same time and she had trouble with hers to I chickened out, lol.

NOT OLD!!! I'm older than you so that would make me ancient, lol. I'm going to be 51 in a few days!

Okay, I finally figured out that I DO get mouth blisters. Got one this morning (or at least noticed it this morning). It definitely wasn't there yesterday...guess what I had yesterday evening...BUMBLE BAR! I know I've said on this thread before that they give me bowel noises, but I keep trying them thinking it's all in my head. I had just finished showering this morning and happened to feel it, so ran to look in the mirror--usually when I get these I'm not near a mirror so by the time I get to one, it doesn't look like a blister anymore. This one wasn't black and was hardly white, but it was definitely blister-like.

The next thing I want to test is chicken. I haven't had any in over a week and oddly enough I haven't had any leg or heel itching since then, so I want to test to see if THAT is what has been causing my itching. I've been using coconut oil on my legs for about the same amount of time, so it could be that, but I've tried lotions and creams and even vaselline before and nothing has stopped the itching, so this will be interesting.

OMG dlp, I would have never guessed your age! I'm terrible with guessing age as it is. Everyone here has such a young energy about them :lol::lol:

Floridian 44 is not old! 40 is suppose to be the new 30, heck 50 is suppose to be the new 30 :lol::lol:

Keep us posted on your chicken challenge dlp.

Rachel--24 Collaborator
I think you need to see the gyn about the ovary pain, get another ultrasound done, and some blood hormone tests, tell her about your missed periods and acne, loosing hair, etc.

and general problems, but dont go into all the MSG stuff, that will just go over her head, maybe on the second appt or if you really feel comfortable.

I wouldnt start jumping from one body organ to the other, its prob the ovary, because they said it was oversized and had a cyst, they are prob right.

I dont discuss my food intolerances...let alone MSG with any mainstream doctors. They are clueless...if I had left my health in their hands I would still be unable to get out of bed and by now would have lost my home and who knows what else. I just need them to run the tests so I can get a better picture of whats wrong with me... and go from there. As of right now my doctor could care less that I have cysts and pain...I'm not dumb enough to think she's gonna care if I start talking about MSG. :blink:

She'll write me off as a hypocondriach for sure.

I am going to the gyno about the ovary pain and cysts....thats what the appt. is for. They already said they're gonna do another ultrasound so I'm not worried about that either. I never missed a period and I dont have acne but my last period was 2 weeks late...I'll let them know that.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AndreaB Contributor

Julie,

That must be a casualty of my computer crashing a few months back. I probably just searched for (state) immunization laws.

Floridian,

If you're old and a grandparent then where does that put me at 39 with my oldest being 6? :P

Green12 Enthusiast
I dont discuss my food intolerances...let alone MSG with any mainstream doctors. They are clueless...if I had left my health in their hands I would still be unable to get out of bed and by now would have lost my home and who knows what else. I just need them to run the tests so I can get a better picture of whats wrong with me... and go from there. As of right now my doctor could care less that I have cysts and pain...I'm not dumb enough to think she's gonna care if I start talking about MSG. :blink:

She'll write me off as a hypocondriach for sure.

I am going to the gyno about the ovary pain and cysts....thats what the appt. is for. They already said they're gonna do another ultrasound so I'm not worried about that either. I never missed a period and I dont have acne but my last period was 2 weeks late...I'll let them know that.

I wish you could go to a gyn like mine. She's actually a naturopath and a nurse practitioner with a specialty in OB/GYN. She is really great when it comes to alternative medicine and understanding auto-immune illnesses and food allergies. Could you find someone like that in your area?

It's only going to get worse as far as our rights are concerned. As far as I know for schooling through high school you can sign a form about exemption for personal, religious or medical reasons. At least our state still allows that. I know I found the info online. Computer crashed since then so I'll have to dig around in my files on my computer and see if that had been backed up.

Ok, you've given me great resources to get started with Andrea, so thank you so much.

Floridian,

If you're old and a grandparent then where does that put me at 39 with my oldest being 6? :P

That will be me too Andrea, at Floridian's age with a toddler. I can only hope anyway.

Rachel--24 Collaborator
Rachel,

Maybe what you could do is go over your journal and pinpoint when you have the pain in relation to the cycle (ovulation, start of flow, etc.) , describe the pain, and note how long it lasted. Have yourself armed with the details, then you can present this to your doctor. Explain to her that before you were dealing with more pressing symptoms and now that you have them "sort" of under control and taking the backseat for the moment you are finding that as a result your symptoms surrounding your menstrual cycle/hormones and etc. are more noticeable and everpresent.

Julie,

I sure wish I would have been more thorough with my journals but I didnt write about how long the pain lasted or when I started my period, flow, ovulation, etc. Somedays I wrote alot, some days a little, some days nothing at all. :(

I'll have one period before my appt. so I dont have alot to give them. The majority of what I wrote about had to do with my other complaints. Its very true though that as my other symptoms are "sort" of under control I am noticing this other stuff so much more.

I'll definately keep everyone informed...it feels like my appt. is so far away though. I always regret that I didnt do a better job with my journal because what I did write down helped me alot in the long run...but even knowing how useful it is I'm still lazy with my journal. :rolleyes:

I wish you could go to a gyn like mine. She's actually a naturopath and a nurse paractitioner with a specialty in OB/GYN. She is really great when it comes to alternative medicine and understanding auto-immune illnesses and food allergies. Could you find someone like that in your area?

Ok, you've given me great resources to get started with Andrea, so thank you so much.

That will be me too Andrea, at Floridian's age with a toddler. I can only hope anyway.

I would love a doctor like yours. I'm sure there is someone around here like that....I'd have to take the time to search one out though. Maybe my functional medicine doctors know someone they can recommend. I'll have to ask them. I think that should definately be my next step if the OBGYN doesnt help me. I'm keeping my fingers crossed that the appt. will be beneficial but not holding my breath. B)

jerseyangel Proficient
heck 50 is suppose to be the new 30 :lol::lol:

Bless you for that, Julie :D;)

Green12 Enthusiast
Julie,

I sure wish I would have been more thorough with my journals but I didnt write about how long the pain lasted or when I started my period, flow, ovulation, etc. Somedays I wrote alot, some days a little, some days nothing at all. :(

I'll have one period before my appt. so I dont have alot to give them. The majority of what I wrote about had to do with my other complaints. Its very true though that as my other symptoms are "sort" of under control I am noticing this other stuff so much more.

I'll definately keep everyone informed...it feels like my appt. is so far away though. I always regret that I didnt do a better job with my journal because what I did write down helped me alot in the long run...but even knowing how useful it is I'm still lazy with my journal. :rolleyes:

And I did the opposite of you! I kept really good records of what was going on with my cycles and things related to it, and not so much what was going on with other issues, like food reactivity and etc.. Ah well, hindsight, looking back we always wish we would have done it differently. :lol:

I would love a doctor like yours. I'm sure there is someone around here like that....I'd have to take the time to search one out though. Maybe my functional medicine doctors know someone they can recommend. I'll have to ask them. I think that should definately be my next step if the OBGYN doesnt help me. I'm keeping my fingers crossed that the appt. will be beneficial but not holding my breath. B)

I can call my gyn's office and see if she has any collegues in your area, if you like? Just let me know what area exactly :lol: Great idea to ask you functional med doctor for a referral.

I too hope you can get this issue resolved, and quickly.

Bless you for that, Julie :D;)

:lol::lol: jersey :lol::lol:

It's true you know!

dlp252 Apprentice
Bless you for that, Julie :D;)

Amen! :D

CarlaB Enthusiast
You can have a religious or medical exemption. You can have a medical exemption for the MMR if you are allergic to eggs, for example, as the MMR is egg-based.

In some states the religious exemption does not exist, like Ohio. However, you can take at least a philosophical exemption in all states.

penguin Community Regular
40 is suppose to be the new 30, heck 50 is suppose to be the new 30 :lol::lol:

So...does that mean 22 is the new 12? What the heck am I doing being married and working!? :P

Green12 Enthusiast
So...does that mean 22 is the new 12? What the heck am I doing being married and working!? :P

No, see you are the age you are until you hit 30, and then you just stay 30, forever and ever. It's amazing how that happens :lol::lol:

dlp, stay away from the Bumble Bar. We are going to have to come down there, or up there, wherever you are and have a Bumble Bar intervention :lol::lol:

dlp252 Apprentice
No, see you are the age you are until you hit 30, and then you just stay 30, forever and ever. It's amazing how that happens

YEP!!! That's exactly how it works!!!! :lol: Although people DO tell me I look like I'm in my 30s.

dlp, stay away from the Bumble Bar. We are going to have to come down there, or up there, wherever you are and have a Bumble Bar intervention :lol::lol:

I might be too far gone for intervention! Do they have Bumble Bar rehab?? :lol:Did I mention I bought like 12 of them on Saturday? :ph34r:

dlp252 Apprentice
:lol: Bumble Bar AA :lol: So that would make it BA?? :ph34r:

BA fits in so many different ways. :lol:

jerseyangel Proficient

Floridian--I'm glad that you went ahead and replaced all that stuff in your kitchen. I did this a few months into my diet, and definately noticed a difference. It's also so nice to not have to give any utensil or pan a second thought. People often ask about the kitchen stuff and the personal care products--I found that these two things were vitally important to my healing. The hard part for me was figuring out my many intolerances! After a whole year of changing most everything I use on my body, eat and drink, I'm finally making progress :blink:

I would love a doctor like yours. I'm sure there is someone around here like that....I'd have to take the time to search one out though. Maybe my functional medicine doctors know someone they can recommend. I'll have to ask them. I think that should definately be my next step if the OBGYN doesnt help me. I'm keeping my fingers crossed that the appt. will be beneficial but not holding my breath. B)

Good idea--I'll bet your functional doctor has GYN's that they can recommend. I would give this doctor one more chance to really listen, and then not waste any more time with him/her. I would love to switch to a "better listener/open minded" GYN, but I wouldn't know where to start looking. I had a great one (in the same practice as this one) but she deceided to stay home with her baby. Can't blame her there, though ;)

No, see you are the age you are until you hit 30, and then you just stay 30, forever and ever. It's amazing how that happens :lol::lol:

Everyone listen to Julie, cuz she's got this right! :D

Rachel--24 Collaborator
Rachel, I hope you didn't get your feelings hurt by my funny a while back :ph34r: .... you know I think you're a sweety and I would never EVER want to hurt your feelings! :)

:huh:

I dont remember reading anything from you that could have hurt my feelings...I love reading your posts. :)

Dont worry....I'm tough skinned...I can take anything you dish out! :P

Congrats on getting all the new kitchen stuff. I dont know if my old stuff ever caused me any problems but its nice to not have to worry. My Mom bought me new pots, pans and utensils like my first week of the diet. I used to drag them back and forth from my house to her house, where I stay during the week. This past Xmas I got all new stuff so I can eat safely without dragging pots and pans with me every week. :D

I can call my gyn's office and see if she has any collegues in your area, if you like? Just let me know what area exactly :lol: Great idea to ask you functional med doctor for a referral.

That would be awesome Julie! I'm in CA...anywhere in the Bay Area would be ok for me. That would be great if she knows of someone here. :)

No, see you are the age you are until you hit 30, and then you just stay 30, forever and ever. It's amazing how that happens :lol::lol:

:D That works for me!

I might be too far gone for intervention! Do they have Bumble Bar rehab?? :lol:Did I mention I bought like 12 of them on Saturday? :ph34r:

12 more!! :o

If you're anything like me you'll eat all 12 too...blisters or not. :lol:

Its called denial. ;)

All I can say is bring them back!!! I've done that too many times to count. Whole foods is good about taking back everything I cant eat. I think they probably wanna run away when they see me coming in with my bag of stuff though. :lol::lol:

Green12 Enthusiast
That would be awesome Julie! I'm in CA...anywhere in the Bay Area would be ok for me. That would be great if she knows of someone here. :)

Rachel,

I called her and she doesn't know of anyone personally :( ....But she gave me the address of the website for the American Association of Naturopathic Physicians. You can do a search of your surrounding cities for a naturopath that has any emphasis area, including gyneclology.

Here is the link:

Open Original Shared Link

At the top of the homepage it says, "Looking for a Naturopathic Physician?", and then click on, "Find", then you plug in all your info, state, city, etc.

Good luck, I hope there is one with a gynecology emphasis in your area!

Rachel--24 Collaborator
Rachel,

I called her and she doesn't know of anyone personally :( ....But she gave me the address of the website for the American Association of Naturopathic Physicians. You can do a search of your surrounding cities for a naturopath that has any emphasis area, including gyneclology.

Here is the link:

Open Original Shared Link

At the top of the homepage it says, "Looking for a Naturopathic Physician?", and then click on, "Find", then you plug in all your info, state, city, etc.

Good luck, I hope there is one with a gynecology emphasis in your area!

Thanks for trying Julie...that was sweet. :)

I'll check the link and see what I can come up with. B)

Rachel--24 Collaborator
:( I guess potatoes are out for me.... :( was having problems with them, not bad but bad enough, then I read that your body processes potatoes into gluten.... ohhhh brother... :blink:

:blink: I've never heard that before. Where did you read that cuz I'm pretty sure potatoes are safe for Celiacs?

Alot of people are sensitive to nightshades though. Potato is a nightshade. They bug me but I'm not sure why...they are the one thing I can eat and KNOW its gonna cause bloating and fluid retention...at the very least.

Rachel--24 Collaborator
Here it is.... ms_sillyak_screwed... if you look at her signature it gives you her web site...

Ahhh..I know who she is.

Well, I dont wanna come right out and say that shes wrong....but....yeah I think she's wrong on that one. I say that with confidence too. :D

I've done alot of research too and I've never read anything like that. It doesnt even make sense. Gluten is the protein found in wheat, barley and rye. Potatoes dont have that protein and I dont see how our bodies can create gluten form something that doesnt contain it to begin with. :unsure:

I'd love to hear an explanation on how this can happen though cuz I'm open minded and always willing to learn new stuff but I'm a little skeptical about this. <_<

Has anyone else ever heard this? I do have potato problems.

dlp252 Apprentice
:huh:

12 more!! :o

If you're anything like me you'll eat all 12 too...blisters or not. :lol:

Its called denial. ;)

All I can say is bring them back!!! I've done that too many times to count. Whole foods is good about taking back everything I cant eat. I think they probably wanna run away when they see me coming in with my bag of stuff though. :lol::lol:

Okay, I exaggerated just a bit...I actually only bought 8. :rolleyes: I've been sort of good though...I've had those in the house and only ate the 1st one last night. I should take them back, but I can't bring myself to do it, lol. It's truly intervention material here. Change a couple of letters of my name and it spells DENIAL! :lol:

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - RMJ replied to Rhenriksen's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      8

      Just diagnosed with Celiac! Scared and feel alone.

    2. - trents replied to Iris Kraft's topic in Gluten-Free Foods, Products, Shopping & Medications
      15

      Inhaler problem

    3. - Ann13 replied to Iris Kraft's topic in Gluten-Free Foods, Products, Shopping & Medications
      15

      Inhaler problem

    4. - trents replied to Iris Kraft's topic in Gluten-Free Foods, Products, Shopping & Medications
      15

      Inhaler problem

    5. - Ann13 replied to Iris Kraft's topic in Gluten-Free Foods, Products, Shopping & Medications
      15

      Inhaler problem


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,825
    • Most Online (within 30 mins)
      7,748

    Tschultz465
    Newest Member
    Tschultz465
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      71.2k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • RMJ
      If your celiac antibody tests are still positive that may explain the ongoing symptoms.  You might examine your diet and try to get those tests in the normal range before doing something like an MRI or CT scan.  It took me almost six years to get all of my antibody tests in the normal range.  At first I thought I was eating gluten free by avoiding wheat, rye and barley in the ingredient list.  Then I made sure foods were labeled gluten free, one antibody was still positive.  Now if I eat processed foods I buy certified gluten free or foods labeled gluten free from companies with good reputations in the celiac community. 
    • trents
      @Ann13, thanks for the clarification. I think I understand your point now. Yes, I realize gluten can produce non Gi Reactions. Let us know if you find out that there is gluten in these inhalers. I have my doubts but gluten does show up in strange places. It could also be manufacturer dependent of these inhaler products are generic.
    • Ann13
      Not everyone will be allergic to whatever they're using in food. There is another forum re people who are posting they have vocal cord & throat issues after they eat breads & pastas which stopped after they removed those foods from their diets. Same as me...gluten doesn't react as gastrointestinal it reacts orally. Which is why I'm saying ensure all your food isn't what you're having a reaction to.  ...& I used Cornflakes as an example because some gluten free people would assume it's gluten free but if they're allergic to barley they will have a reaction...nothing to do with their inhaler.  You're missing my points a lot & frustrating so I'm done commenting. You really need to ensure your food isn't what's causing the issue. I am checking with symbicort manufacturer to check their ingredients.  Good bye... I'm done with this. 
    • trents
      I certainly agree with all that. However, you also mentioned cornflakes with barley malt but that would obviously not be gluten free since barley is a gluten-containing grain. And the chemicals they spray on grains would affect everyone, not just those with gluten disorders. I'm just trying to figure out what this thread has to do with the main subject this online community is focused on. Is the point of this thread that having a gluten disorder makes someone more susceptible to reacting adversely to inhalers? That could be but it may have nothing to do with the inhaler having gluten. It could have to do with, say, having higher systemic yeast counts because the celiac community generally suffers from gut dysbiosis. So it would be easier for celiacs using inhalers to develop thrush.
    • Ann13
      Re food,  I said the gluten free thing isn't necessarily about gluten itself, but chemical sprays they use on GRAINS which cause allergic throat & vocal cord issues regardless of the inhaler you're using.  Your issue may not be the inhaler but eating gluten free food that still will bother you because they have been sprayed with certain chemicals. Barley & oats cause vocal and throat issues with me as well as gluten free flours. We didn't have gluten issues in the world yrs ago...the food changed somehow or they're using sprays that cause reactions in some people.  Re inhaler: Symbicort is registered as gluten free but companies can change their ingredients at any time so you may want to check with the company who makes it and get an ingredient list.  I don't believe I'm reacting to the inhaler...I believe it's a gluten free pasta I've been eating so I'm taking it out of my diet. I've used the inhaler for over 1 year and no problems up until now so I suspect it's the pasta. 
×
×
  • Create New...