Omg...i Might Be On To Something

[Rachel--24]

I'm feeling kind of down today.....I just wanna be better...so I can do all the things I used to do.

People say that there's nothing stopping me from doing these things now....but I cant. I cant because of the chemical sensitivities. I cant go to a party or anything like that where I'd be in close quarters with other people cuz I would react to all the chemicals. This is even more serious to me then the food issues.

I feel like mercury is more to blame for this then Lyme Disease. I just know deep down that mercury is the primary cause of my symptoms....also the candida overgrowth. I think the Lyme might present itself more if the mercury were eliminated but right now I think mercury is enemy #1 and Lyme is just a huge burden on my immune system but I dont have alot of the disabling type symptoms from it....yet. I've read that underlying illnesses come out more after the burden of mercury is lifted off..so I dont excpect to feel 100% with the chelation of mercury but I think its the main cause of the chemical sensitivities. I just feel that it is.

I'm frusterated because who knows when I'll be able to start chelation and then who knows how long I'll have to go through the chelation process. I'm impatient.

At least if the chemical sensitivities improved my life would feel somewhat normal. I have energy and feel almost normal other than reacting to everything. I have the energy and desire to go out and have fun but just cant cuz of the chemicals....its driving me crazy. I'm gonna start going to Bioset twice a week to get through it sooner. I hope it works but if it doesnt I definately dont wanna drag it out. I dont even care about the money.....just wanna get things moving and get through the treatments.

I wanna start chelation because I know I'll never get better without it. Mercury has a half life of 83 years......that means without chelation....in 83 years half of the mercury stored in my tissue will be gone......and this is if I help it with Vit. C or other detoxing methods. Well.....obviously by that time I'll be gone too so I'm thinking chelation therapy now is the only option.

Soooo frusterating having to wait for the Dr. appt.s and everything else. I think my immune system will be sooo much better off w/out having the mercury burden and I think candida will get better as well. Then I think Lyme treatment would be way more effective.

I've read that candida proliferates when there is mercury toxicity...it does so in order to protect us from the mercury....acts as some kind of buffer. Either that or it just overgrows due to the weakened immune system. There is no definative answer but candida is always a problem when there is mercury toxicity.

All I know is that I got chemical sensitivities, candida and every other symptom immediately following the dental stuff and NOT after I got infected with Lyme. I had NO symptoms and NO candida until the exposure to mercury.

In my mind I feel that if it werent for the mercury I would still feel fine....even with the Lyme present. I dont think I would be sick....and if I was....it wouldnt even be close to what I've been dealing with the last 4 years.

I just hope this process moves along in a timely fashion and at least yeilds some positive results along the way....to keep me motivated. Dang....the lady said I wont be reacting to chemicals after her treatments but it just seems impossible for me to believe at this point.

[AndreaB]

I just hope this process moves along in a timely fashion and at least yeilds some positive results along the way....to keep me motivated. Dang....the lady said I wont be reacting to chemicals after her treatments but it just seems impossible for me to believe at this point.

Rachel, I hear you. It's always hard to wait for something, but when it's better health, it's even harder. Try and stay positive. I don't know how this stuff works either, but sounds interesting and I am looking forward to your updates.

HUGS for you.

[CarlaB]

Rachel, I understand exactly what you mean. That's why I'm working so hard on maintaining my weight and keeping hydrated ... I don't want to slow down the detox!! I told Adam just the other day that I'd rather be so uncomfortable that I'm pretty close to useless and get this over with than be more comfortable and have it take longer. Some day this will all be over and nothing more than a memory.

Andrea, I am used to his travelling. He's been in town a lot lately, it's kind of seasonal. Usually it's an overnight here and there, but we're getting into trade show season where there is week after week that he's gone. As much as we like to be together, I think we've grown to appreciate his time away, too. I know it sounds weird, and we're together every second when he's home and wouldn't dream of having it any other way, but living in a household of 8, it's nice to have some space once in a while. He actually has a lot fewer overnights than he used to since we moved to a more central location in his territory.

[Fiddle-Faddle]

Hang in there, Rachel, you'll be doing all the things you love again! One thing at a time for now!

{{{HUGS}}}

[rinne]

I do this too from time to time...balls of stress and anxiety is a great to put it...I've been lashing out at work but the people won't disappear.

I think the negative states associated with stress and anxiety reinforce illness. I also think we can become addicted to those states because the intensity of those states gives us a feeling of energy.

I feel like I have retrieved a memory of the initial infection that was underneath the symptoms of anxiety and emotionality, that memory is of sheer panic. I think my body knew immediately that there was something wrong and my desire to run away, which I was really confused by, was my body's way of trying to communicate that to me.

Rachel, I'm wondering if you have had a feeling of panic and periods of anxiety that seemed inexplicable. I agree with your assessment that it is the mercury that has done the most damage to your health. I was going to say I am not nearly as ill as you and then I realized I haven't received all my test results and don't actually know.

Andrea, I'm so sorry to hear about your Dad. Will you be able to see him soon?

[Rachel--24]

Rachel, I'm wondering if you have had a feeling of panic and periods of anxiety that seemed inexplicable.

Not that I can recall. Are you referring to the period of time before I got really sick? During that time I was fine.....I dont recall anything out of the ordinary. Once I had the dental work nothing was the same and I started to have bouts of anxiety....I'm not sure if the anxiety came from experiencing the symptoms and not knowing the cause or if the anxiety was a symptom all by itself. Probably a combination of both.

[AndreaB]

Andrea, I'm so sorry to hear about your Dad. Will you be able to see him soon?

At this point they don't think I need to come down. I'm hoping the meds will level out at some point and he'll be more coherant.

How have you been? Has it gotten cold where you are at? Where are you north of.....Minnesota?

Talitha's tummy is bothering here a little tonight too so I will be making freezer fruit spread/jam this weekend. I found apple butter with just apples and apple juice concentrate so she can have that. I also bought maple butter.....that sounds wonderful.

What is it with not noticing intolerances until you start to whittle away foods? That's a rhetorical question...

Thanks everyone, I don't know what I'd do without you.

[azmom3]

Laura,

He has kidney failure. He had one removed about 5 years ago because of prostate cancer that had spread. He is on dialysis 3 days a week and now this new med. Maybe it's the med because he wasn't that concerned about dialysis to begin with. I'm wondering what happened that he had to be put on it, and no, I don't know what it is. He was hospitalized in September, got out and was hospitalized again within the week with 1 litre of fluid in his lungs. His kidney is shot. He lives in Arizona which is a warm climate. Don't know if winter blues applies to warm climates or not since they still see lots of sun. Apparently he can't be left alone because his wife's brother came over to watch him while she ran errands.

Andrea,

I'm sorry to hear about your dad. It touched me as I just lost my dad to brain cancer about a month ago. This poem from Chicken Soup for the Survivor's Soul is one of my favorites. I have read it over and over and it applies to anything difficult you may be going through, whether it's your health or someone else's, financial stress, or other worries.

No Road Too Steep

There is no path

so dark,

nor road so steep,

nor hill so slippery

that other people have

not been there

before me

and survived.

May my dark times

teach me to help

the people I love

on similar journeys.

By the way, I'm in Chandler, Arizona, just outside of Phoenix....not sure what part your dad is in, but the weather right now is what us Arizonans wait for all year! (Notice the sunglasses?) The temperatures are perfect, it's sunny, but very comfortable. I think we have more of the "summer blues" here and we won't have that for another 9 months or so. People seem a lot happier at this time of year. If he's able to sit outside or have the sunlight coming through the window, it will do nothing but help. I will keep you, your dad and the rest of your family in my prayers.

[TriticusToxicum]

Okay, enough of that, where's Richard to lighten things up?

better late than never....

Open Original Shared Link I hope you all feel better soon

or if you prefer tough-love click Open Original Shared Link.

[happygirl]

!

[dlp252]

azmom3, that's a great poem!! Thanks!

Andrea - so sorry to hear about your dad. Oh, and I found on my calendar where I wrote the estimates they gave me for removal of the teeth...these were the general estimates they gave me during the consultation appointment: $1,350 for crowns, $250 for small fillings, $300 for larger fillings.

Rachel - I know the frustration of wanting to do something but not being able because of health...and the frustration of just wanting to be well. I have to admit, I'm a little afraid of what comes after the mercury removal. I don't know if or how much the HN doctors know about the chelation/detox stuff. I intend to ask Dr. Carrie today when I see her...I definitely don't want to do it wrong.

Hi everyone.

Holy spit batman...I just spent 20 minutes trying to get 3ml of spit into a tiny vial, lol. That ain't easy!

I had my first full chiropractic and PT sessions yesterday. Wow, I really think they will be able to help me. The PT session alone is so wonderful. The guy spent probably a full five minutes just pressing on one spot in one muscle that is so tight...he pressed until it relaxed a bit, then he'd find a different spot and do the same thing. I have another session today after my visit with the internist. The chiropractor wants me to come 3 times a week for the chiro/PT combo...then they reevaluate each month to see how I'm doing. The PT gave me some neck range of motion exercises to do twice a day. I think on each visit they'll give me more exercises to address some of the different issues. The chiropractor also wants me to have my workstation reevaluated for ergonomicness, lol. The facilities person here said she'll call in the experts...they do that any time someone mentions that their doctor wants it.

[CarlaB]

I also bought maple butter.....that sounds wonderful.

Maple butter is sinful. It has to be, it's waaayyy to good! I love it! Pure sugar (so, of course, I'm not eating it right now).

That was funny, Richard.

Donna, are you serious? Do they really care about ergonomics at your work? If so, that's great!!

[dlp252]

Donna, are you serious? Do they really care about ergonomics at your work? If so, that's great!!

Yep, they do, and especially if someone mentions a doctor wants it, lol. If I hadn't mentioned my doctor wanted me to be reevaluated, they would have just had one of the facilities people come over and look at it, but since the doctor suggested it, they are having a professional come in for insurance purposes.

[Green12]

Just got a call from my dad after trying to reach him for a week. The new med he is on makes him sleepy/loopy. He has a hard time focusing. He said something to the effect that he'll be on the med and dialysis for as long as he's alive, which won't be long. Before he was talking about years.....such a big change from last month.

Andrea my friend, so sorry to hear about your dad. I'm glad you finally got to talk to him after trying to reach him all week. That dialysis is so hard on the body, and I imagine his spirit as well. I just hope that he has good care and he is made as comfortable as possible through all of this. You and he will be in my thoughts

Rachel, I am sorry you are down, must be going around I completely relate to how you are feeling and all that you are reflecting on. I have been wishing the last couple of days that gluten was my only problem, I know that is bad to think/say, but I feel it would be smooth sailing if I only had to stay away from gluten . I wish we all could figure out why we are so intolerant to so many things, why our bodies have been overcome by all the BEASTIES (candida, parasites, bacterias, molds, fungis, etc.) and why there is a total breakdown of bodily functions....Hang in there

Donna, your chiro/PT session sounds great. If you keep that up you will be whipped into shape in no time Are you feeling better since after the removal?

Carla, how are things with you today?

Great poem azmom

Hugs and wub to you all

[CarlaB]

Carla, how are things with you today?

Things are still the same. At least water isn't making me run to the bathroom anymore, so I'm not dehydrated. My weight seems to have stabilized, too. All the rest is the same. I'm pretty fatigued.

[dlp252]

Are you feeling better since after the removal?

Yes, the light-headedness is kind of back to normal, lol. Just comes up a little now and then throughout the day, but at least I'm not staggering around like I was after the appointment. I got a little more sleep last night which helped I think. Course, today, my stomach is a bit off cuz I have to spit in a vial and well, that just makes me sick, lol.

[jerseyangel]

To all my buddies in Rachelville who are going through a rough time, I'm sending out lots of hugs and love!

Rachel, I know it's been such a long haul, and I would imagine it gets harder now that you are really on to something. I hope that today you're feeling more positive--try and take these new developments one day at a time

Julie, I understand the feeling of--well I wish it were "only" gluten. The other foods cause you so many issues, and I know you don't want to have anything more taken away from you.

Andrea, So overwhelmed right now with worries about family. Hope things settle down for you soon!

Carla, I'm glad to see you're not quite as sick as you were. I hope the worst of the healing pains are behind you, and you can get on with things.

Donna, My thoughts are with you as you go through the various appointments, procedures and tests. I just know that this will uncover something key.

Laura, You are so brave--and through all of this, you take the time to write to us. I can't tell you how much I admire you

Susan, How are you today?

Feel better, everyone!

[AndreaB]

Andrea,

I'm sorry to hear about your dad. It touched me as I just lost my dad to brain cancer about a month ago. This poem from Chicken Soup for the Survivor's Soul is one of my favorites. I have read it over and over and it applies to anything difficult you may be going through, whether it's your health or someone else's, financial stress, or other worries.

No Road Too Steep

There is no path

so dark,

nor road so steep,

nor hill so slippery

that other people have

not been there

before me

and survived.

May my dark times

teach me to help

the people I love

on similar journeys.

By the way, I'm in Chandler, Arizona, just outside of Phoenix....not sure what part your dad is in, but the weather right now is what us Arizonans wait for all year!

Thanks Azmom. My dad lives in Tucson. My mom reminded me that he's entering into the good weather now that monsoon season is over.

Yep, they do, and especially if someone mentions a doctor wants it, lol. If I hadn't mentioned my doctor wanted me to be reevaluated, they would have just had one of the facilities people come over and look at it, but since the doctor suggested it, they are having a professional come in for insurance purposes.

Good news about them taking doctors seriously anyway. Maybe you'll get one of those new friendly keyboards.

Andrea my friend, so sorry to hear about your dad. I'm glad you finally got to talk to him after trying to reach him all week. That dialysis is so hard on the body, and I imagine his spirit as well. I just hope that he has good care and he is made as comfortable as possible through all of this. You and he will be in my thoughts

Rachel, I am sorry you are down, must be going around I completely relate to how you are feeling and all that you are reflecting on. I have been wishing the last couple of days that gluten was my only problem, I know that is bad to think/say, but I feel it would be smooth sailing if I only had to stay away from gluten . I wish we all could figure out why we are so intolerant to so many things, why our bodies have been overcome by all the BEASTIES (candida, parasites, bacterias, molds, fungis, etc.) and why there is a total breakdown of bodily functions....Hang in there

Thanks Julie.

I also wonder why we are intolerant to so much. Can't blame mercury on the kids......wait a minute. They still had thimerosal in the vac's when Talitha was born. That could be part of her answer. I know HSP is an autoimmune disease but you never hear of it being linked to celiac. It's not lifelong unless it affects your kidney's though. We are holding the line on vac's with Seth. He won't be having anymore before 2 yrs and we'll be talking to the new doctor since he believes similar to us.

Julie, I understand the feeling of--well I wish it were "only" gluten. The other foods cause you so many issues, and I know you don't want to have anything more taken away from you.

I find it interesting that so many doctors don't believe in intolerances.

Laura, You are so brave--and through all of this, you take the time to write to us. I can't tell you how much I admire you

Susan, How are you today?

Yes, what Patti said.......

[rinne]

Thank you Richard, that was very cute. I'm partial to tough love.

Rachel, I hope today is a better day. I can relate, now that I understand how long this has been affecting me I am able to also acknowledge that I have forgotten what it feels like to be well.

Brain fog has set in and I am off to do the New York Times Crossword, it is my secret (not anymore ) addiction. I realized recently that I started doing it obsessively around the time the neuro stuff started happening. I think now that I intuitively understood I needed to exercise my memory skills. It helped, I no longer need to purchase the collections of Sunday Crosswords and do two a day. Recently a whole week may go by with just the one on Sunday but this has been a rough week.

[Green12]

I also wonder why we are intolerant to so much. Can't blame mercury on the kids......wait a minute. They still had thimerosal in the vac's when Talitha was born. That could be part of her answer.

Well not so fast, do you have amalgams in your mouth Andrea? We were pretty sure that was part of the reason my mercury issues were so bad, my mom has/had a mouth full of metal. She worked for a dentist growing up and he would practice on her, drilling and filling, drilling and filling

Mercury studies that I have read indicate high concentrations of mercury found in fetal tissues, so they are getting it in utero

Hi rinney! Your crossword puzzle sounds like a fun challenge! My best to you.

Calling Susie Where are you Dingo Girl??? Hope you are doing well today.

I have the GBB that you describe today, as well as mass amounts of all over body swelling and edema, must have gained about 15 pounds in the last couple of days One of my poor food choices was a Qdoba naked burrito, they put everything in a bowl . Asked about gluten and they have pretty good practices re that, but I guess I lept before I looked, or ate before I checked the sitch out more carefully. On the website they list a good portion of their menu as containing soy.

[TriticusToxicum]

Thank you Richard, that was very cute. I'm partial to tough love.

Rachel, I hope today is a better day. I can relate, now that I understand how long this has been affecting me I am able to also acknowledge that I have forgotten what it feels like to be well.

Brain fog has set in and I am off to do the New York Times Crossword, it is my secret (not anymore ) addiction. I realized recently that I started doing it obsessively around the time the neuro stuff started happening. I think now that I intuitively understood I needed to exercise my memory skills. It helped, I no longer need to purchase the collections of Sunday Crosswords and do two a day. Recently a whole week may go by with just the one on Sunday but this has been a rough week.

Have you tried Soduku? If not, try it Open Original Shared Link

No memory required

I have a Soduku book (and pencil) I take on long trips... It's addictive but mostly pointless

[AndreaB]

Rinne,

Enjoy your crosswords. It is good to keep the brain engaged.

Hope you are recovering from last week and the party.

Well not so fast, do you have amalgams in your mouth Andrea? We were pretty sure that was part of the reason my mercury issues were so bad, my mom has/had a mouth full of metal. She worked for a dentist growing up and he would practice on her, drilling and filling, drilling and filling

Mercury studies that I have read indicate high concentrations of mercury found in fetal tissues, so they are getting it in utero

What your mom went through.

Ok, I have lots of amalgams. I'm thinking Seth would have got lots more than the other two since I had work done while I was pregnant. Of course we also know it's going through my body, with a little added each day.

Asked about gluten and they have pretty good practices re that, but I guess I lept before I looked, or ate before I checked the sitch out more carefully. On the website they list a good portion of their menu as containing soy.

Uh oh. Hope the GBB heads south quickly.

[Rachel--24]

just a drive by, haven't read this morning yet....but ......wanted to send love and sunshine out to everyone!

Laura....right back at you!

Rachel - I know the frustration of wanting to do something but not being able because of health...and the frustration of just wanting to be well. I have to admit, I'm a little afraid of what comes after the mercury removal. I don't know if or how much the HN doctors know about the chelation/detox stuff. I intend to ask Dr. Carrie today when I see her...I definitely don't want to do it wrong.

I'm pretty sure they would have to refer you to someone else....like they did with me. If you do end up needing chelation make sure you find out *everything* and make sure the Dr. has alot of experience and knows what hes doing.

Holy spit batman...I just spent 20 minutes trying to get 3ml of spit into a tiny vial, lol. That ain't easy!

I remember doing that in the bathroom at work.....it was taking FOREVER! It aint as easy as you would think...thats for sure. Also mine kept being kind of foamy and would have to wait till the "foam" settled and spit again. PITA

Rachel, I am sorry you are down, must be going around I completely relate to how you are feeling and all that you are reflecting on. I have been wishing the last couple of days that gluten was my only problem, I know that is bad to think/say, but I feel it would be smooth sailing if I only had to stay away from gluten

Yeah....I think ALL of us wish it were *just* gluten. OMG...that would be heaven.

I bet if anyone (recently diagnosed Celiac) is really really sad about losing gluten spent some time here in Rachelville....they'd leave pretty happy with their new diet.

It could be like therapy...."How to be gluten-free and grateful".

Rachel, I know it's been such a long haul, and I would imagine it gets harder now that you are really on to something. I hope that today you're feeling more positive--try and take these new developments one day at a time

Yeah.....its harder now! Whats up with that??? Is it because I'm close but yet still miles away??

I wanna be at the doctors everyday....asking questions and DOING something!!

Yes...I know....I'm very very impatient.

It shall pass...I know you've all seen it before...I just get like this sometimes.

I'm doing a little better today....had alot of anxiety in my sleep though. I wanted to call in sick this morning but made myself go in....dont wanna break my record. So far only 2 sick days in 13 months.

Someone left me a really nice card on my car this morning. It was a funny joke about Dr. appt.'s....made me laugh.

Also lots of kind words....a good way to start the day.

How about you Patti? Still feeling good?? I bet you are healing!!

Well not so fast, do you have amalgams in your mouth Andrea? We were pretty sure that was part of the reason my mercury issues were so bad, my mom has/had a mouth full of metal. She worked for a dentist growing up and he would practice on her, drilling and filling, drilling and filling

Donna....good scientificness.

Its true....my mom also had a mouthful of metal....I asked her about this recently. It accumulates....I would have already had some before I was even born...then from my own fillings, and then the massive amounts from the removal and placement of the gold crowns.

When I asked my mom she said she remembers constantly being at the dentist as a teenager...getting alot of work done and ALOT of fillings.

Oh....vaccines too. Did we get those when we were babies??

EDIT:

OOOPS....that was Julies post....not Donna's.

Sheeesh....I'm gonna have to refresh cuz I'm still seeing chunky and chocolate here.

[jerseyangel]

Hi Rachel--good to see you a little more chipper today Yep, I really think this mood is because you're getting close--you want to "get on with it, already!"

Great line about being gluten-free and grateful! We all know a thing or two about that

And, thanks for asking, I'm still doing really well. Hungry again today I'll take it, though and be thankful!

[Rachel--24]

The chiropractor also wants me to have my workstation reevaluated for ergonomicness, lol.

Whats ergonomicness???

Also, Julie....what is GBB??

Ummm...yes...I am very lost today on the wordage.

Confused by what it all means.