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Omg...i Might Be On To Something


Rachel--24

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AndreaB Contributor
No not yet....trained them at home somewhat, but need them to go before they are 6 months. They are almost there already! :ph34r:

I can just see you trying to train two dogs at a time. :lol:

I know, it doesn't work that way.

Correct me if I'm wrong.....it's been awhile since I was helping show dogs.......dogs lead on your left side right? Horses lead on our right side. Seems to me I remember dogs being different.

Now you need to figure out class with work. That ought to make things more interesting. :)


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Green12 Enthusiast
Hi everybody! I'm back, just coming in here where it's safe :D I just had a 2 hour phone conversation with my mother. I'm suddenly feeling anxious--I swear she still does not 'get it' and I don't think she ever will. I get the feeling that she is always trying to "match" what I go through by picking up on things that happened years ago and retelling them to make it sound like they were a terrible long standing problem that she had to deal with.

Not to sound petty, but just once, I'd like to feel taken care of (by her). There are things that she just won't hear--just glosses over. I used to go along with it, but now it really gets to me. It really helps to write all this out--I know you guys care, so don't feel you need to answer--I just had to vent. :)

Patti I am glad you feel safe with us to share and vent :) And absolutely we care!

I am so sorry about the strained relationship with your mother and feelings of anxiety you have after talking to her :( .

I think Andrea and Carla gave great advice.

I don't have anything really profound to add, just that I can relate as well. While I love my mother, I don't think she can relate to me when it comes down to it, and often I don't feel nurtured in the way that I guess I would like to be. That probably sounds really selfish. Relationships are hard as it is but when it comes to family there is just so much added "stuff", the parent/child dynamic especially. I try to practice acceptance but it's hard, I guess no matter our age we want our mothers to be our mothers and for us to be the child, and often that isn't the case. Maybe this is helpful, or maybe it isn't, but try to focus on the things you can relate with each other on and build a bridge there, and like Carla suggested, leave the issues that might cause friction out of the converstaion- and see how that goes.

Feel better :)

The Dave!! Thanks for sharing the new picture of the puppies. I don't think you ever said what their names were, or maybe you did but I missed it a couple hundred pages back :lol: They are so cute!

Can't say that Britney Spears pops into my head, nope, never.........well only when she is walking barefoot in a gas station bathroom :lol:

I agree we need an additional title for Laura. Your titles were easy because you stormed in here and stirred up trouble with a capitol "T" from the get go :lol: Just kidding!

Laura, what are your hobbies, interests, skills? Tell us more about yourself :)

jerseyangel Proficient

Thanks Julie,

You're so right about relationships! Thanks so much for all of the kind, wise words :)

Rachel--24 Collaborator

A quick drive-by.....

Just wanting to say have a great night everyone!!

Hugs for everyone here. :wub:

G'nite....leaving skid marks...... B)

dlp252 Apprentice
I'm seeing my physiatrist on Tuesday. I cannot wait. Oh- a physiatrist is someone who works like a PT but is also am MD and can prescribe medications. The thing I like about mine is that he really wants to treat the whole person. Unlike an orthopedic who will diagnose you, prescribe meds and PT or opt for surgery, physiatrists will try to help you find the root cause of problems and rehabilitate it.

I've never heard of a physiatrist...sounds interesting and wonderful!

jerseyangel Proficient
A quick drive-by.....

Just wanting to say have a great night everyone!!

Hugs for everyone here. :wub:

G'nite....leaving skid marks...... B)

:lol::lol: You said "skid marks" :lol::lol:

'night Rachel!

dlp252 Apprentice
Hi everybody! I'm back, just coming in here where it's safe :D I just had a 2 hour phone conversation with my mother. I'm suddenly feeling anxious--I swear she still does not 'get it' and I don't think she ever will. I get the feeling that she is always trying to "match" what I go through by picking up on things that happened years ago and retelling them to make it sound like they were a terrible long standing problem that she had to deal with.

Not to sound petty, but just once, I'd like to feel taken care of (by her). There are things that she just won't hear--just glosses over. I used to go along with it, but now it really gets to me. It really helps to write all this out--I know you guys care, so don't feel you need to answer--I just had to vent. :)

Oh Patti, that's not petty at all! Sometimes we just need our moms! We just need them to be moms. I'm glad you feel like you can come here to let it out!

Hi Donna. :) I see you.

Just was talking to Mitch about yours and Rachel's dentist. Now he says I have 2 reasons to go down there to have my work done. Of course with Susan, that would be 3.

Could you see if he know of any dentists in the Washington/Northern Oregon area?

I'll come down there, if need be, whenever I have my work done. I don't want to push things with the other work that still needs to be done. I already got mercuried (new word, think glutened) with my other work.

Hi, I was so busy at work and had a few minutes that I thought I could get caught up, but ya'all were busy, lol. I'll ask him when I see him on the 8th.


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jerseyangel Proficient
Oh Patti, that's not petty at all! Sometimes we just need our moms! We just need them to be moms. I'm glad you feel like you can come here to let it out!

Thanks, Donna :) ,

You guys are the absolute best!

I feel like such a weenie :ph34r:

Hey Richard--I see you! Venturing in here at night--huh? B)

dlp252 Apprentice
Donna - 4 more!!!! Wow!

Guy - "So, what do you like to do in your spare time"

Donna - "Get amalgam's removed, you?" :lol: j/k

Hi everyone else!

Ouch! That sucks. Sorry to hear that :(

:lol::lol::lol::lol::lol:

dlp252 Apprentice

Patti you are NOT a weenie, now cut it out! :lol: (said in my best imitation of a motherly voice)

Phew, back from the doctors...what a marathon. I had my 2nd half of my evaluation with the internist...second half because my first half took soo long...as did this one. We had people knocking on the door telling us to get out, lol. She is very thorough though. I asked her if she thought I should take supplementation whilst de-amalgamming and she said yes, but suggested one...can't remember the name, but she said it binds with the heavy metals...she said to take it 4-5 days around the removal...she didn't want me to take that with Vit C or other supplements though, so I guess the Vit C and glut... the rest of the time. I still intend to ask the dentist too.

Then, after I finished with her I had the PT and Chiro appointments. The Chiro was able to make an adjustment in my back that my old chiro never could. I was amazed actually. The PT really worked me over, so as I type here I have an icepack on my neck held in place with a binder clip, lol. :lol:

Oh lordy, I have to stay up til 10:00 to spit for the last time, lol. Not sure how I'll do it... -_-

jerseyangel Proficient

My gosh Donna--what a day you had! I can just picture you sitting there typing with an ice pack and binder clip :lol:

Got to keep your eye on the big picture--this is all going to lead to better things ;) What a switch, though, from most doctors--taking TOO much time. That right there is a good sign.

Hope you're comfortable enough to get some sleep tonight--after you spit, of course! :D

AndreaB Contributor
The PT really worked me over, so as I type here I have an icepack on my neck held in place with a binder clip, lol. :lol:

Oh lordy, I have to stay up til 10:00 to spit for the last time, lol. Not sure how I'll do it... -_-

:lol::lol:

Take a 1/2-1 hour nap if need be.....be sure to set the alarm.

happygirl Collaborator

x

Mtndog Collaborator
Thanks, Donna :) ,

You guys are the absolute best!

I feel like such a weenie :ph34r:

Hey Richard--I see you! Venturing in here at night--huh? B)

Patti said weenie - heh heh heh :D And rachel said skid marks :P:P:P

Patti- You are not being lame or whiny. I think it must be incredibly frustrating to have that experience with your mom. I'm sorry that this happened to you...BIG HUGS.

The Bev-mobile survived. It was just the timing belt.... valaves and pistions not damaged. YESSSSSSSSSSS!!!!!! Got it back this afternnon- so happy!

Also found a clinic I think I'm going to make an appointment with. Check this out and let me know what you think:

Open Original Shared Link

And......now I havve anoter reason requiring scientificness. Here's the weird thing about the joint pain, neck and muscular stiffness, etc that I experience. It gets much worse when constipated. Once i finally get it out- my muscles instantly relax.

julie- thanks for attempting to help me figure out the phenergan effect. I think it has something to do with the antihistamine too. Very odd- my doctor told me to try taking pepcid and claritin to see if it would have the same effect. Both have anti-his. That combo didn't.

Here's the other weird thing....phenergan is a distant cousin of thorazine...the sedative they used to give to schizophrenics. MAYBE IT IS ALL IN MY HEAD :ph34r::P:P:P

Green12 Enthusiast
Phew, back from the doctors...what a marathon. I had my 2nd half of my evaluation with the internist...second half because my first half took soo long...as did this one. We had people knocking on the door telling us to get out, lol. She is very thorough though. I asked her if she thought I should take supplementation whilst de-amalgamming and she said yes, but suggested one...can't remember the name, but she said it binds with the heavy metals...she said to take it 4-5 days around the removal...she didn't want me to take that with Vit C or other supplements though, so I guess the Vit C and glut... the rest of the time. I still intend to ask the dentist too.

Then, after I finished with her I had the PT and Chiro appointments. The Chiro was able to make an adjustment in my back that my old chiro never could. I was amazed actually. The PT really worked me over, so as I type here I have an icepack on my neck held in place with a binder clip, lol. :lol:

Wow Donna, you did have a marathon day of appts. Sounds like you were really worked over at your chiro appt. I always feel a little sore after an adjustment but in the long run it really pays off, I feel more in alignment and experience much less pain/stiffness in the back, neck. Hope it helps :)

Kind of off topic but I have a question. Does anybody have any thoughts or opinions about green tea??

edit* It's late for me, heading to bed but I don't want you guys, Laura and Bev, to think I overlooked your posts - I will write tomorrow :)

Goodnight all!

TriticusToxicum Explorer
Hey Richard--I see you! Venturing in here at night--huh? B)

Just checking the board for ghosts :ph34r:

jerseyangel Proficient
Just checking the board for ghosts :ph34r:

So.....Did ya find any? :unsure:

Daxin Explorer

Rachel -- I don't know if this has ben suggested yet, but DW says that a good massage can help with lymphatic drainage. She recommends finding a good massage therapist in your area and asking some questions. Your Lymph system, as part of your immune system needs help from time to time ( as we here in Rachelville are well aware of).

There has been a tonne of activity here in the last few days, but I think I'm caught up now.

Hope everyone else is doing well, and has an excellent weekend.

I am off to take DD to a costume party this afternoon. She is not a fan of dressing up, but we'll see if she responds better when she is surrounded by children in costumes.

Fell better all!

happygirl Collaborator

x

rinne Apprentice

Premature post but couldn't resist:

Yeah.....its harder now! Whats up with that??? Is it because I'm close but yet still miles away??

I wanna be at the doctors everyday....asking questions and DOING something!!

Yes...I know....I'm very very impatient.

It shall pass...I know you've all seen it before...I just get like this sometimes.

Sounds like you want to Rachel the treatment. :ph34r::lol::P Me too. I envy you your doctors close by I don't know what I am going to do once I have a treatment plan.

Oh, yesterday someone lent me a Rifing machine, have you heard of Royal Raymond Rife? Rifing machines are used to treat Lyme and Cancer and all manner of illness. Here's one of those fortuitous events I love so much - I met this man about four months ago and he plays chrystal bowls, they make the most incredible sounds, and the day I met him I had read a thread on a Lyme site about Rifing machines and I brought it up in regards to the power of sound to transform the body and he said, "I have a Rifing machine upstairs". :lol: I had never heard of them until that day. Anyways we have gotten to be friends and yesterday he lent it to me and now I am reading all this information about frequencies and treatments for detoxification and will report back. I am going to experiment on myself, I have entered Lyme Alive territory and girls do things like that here. :lol::ph34r::lol:

rinne Apprentice
Yeah, I used to be swimming, completely submerged, in all the scientificness of mercury toxicity, sadly a lot of it has exited my brain :lol: Maybe it's the chunky chocolatey-ness that is to blame....

I found a lot of clues to my personal situation, the in utero mercury toxicity, vaccinations (standard ones given as baby and toddler and then a forced measles at age 18), my own dental work and amalgam fillings, and another interesting clue.......chlorine is known to kill all the good bacteria in the intestinal tract- I was a competetive swimmer and lived in chlorinated pools for a good 14 years :o . So my defenses were down, undiagnosed celiac thrown in on top of it....a recipe for disaster.

So I know whats wrong, just don't know how to fix it <_< .

Julie, I am sorry that you suffered such an assault on your health doing something that I am assuming you loved. :( I wish you could find someone who understands how to help you.

I think that I had always tended to be anxious and have a tender tummy, but when I had my severe meltdown it LITERALLY seemed to come out of nowhere.

I still get the urge to run away or "get out of my body" when I get glutened and it is one of sheer panic. No one could EVER explain the length and intensity of my initial anxiety attacks and depression. I went from slightly sad about a breakup with a boyfriend to utter panic- literally overnight. It was the strangest and scariest thing that has ever happened to me.

.......

So I'm wondering if the antihistamine property or the sedative property are what also provides the muscle relaxant effect. Anyone have any thoughts. I'm wondering if some kind of "allergy" is causing my muscle stiffness and joint pain (I'm thinking maybe another food intolerance that I haven't figured out yet).

Oh yeah- and it brightens my mood but that could be because it makes me feel better. Don't know?????????

It makes sense to me that medication works but I am concerned that the danger to that is then we are treating only the symptoms and not the cause and if it is Lyme Disease then it has more time to attack us on the metabollic level and we are tuned out to it because we are not feeling anxious. I have never taken any medication to deal with my circumstances, I think of it as the plus side to Lyme paranoia. :lol: I don't think that doing what I have done is the best thing because I know the constant pain and lack of sleep exhausted my adrenal system at one point and there have been way too many days when I have been a starts with a capital B and rhymes with :ph34r: .

Hi everybody! I'm back, just coming in here where it's safe :D I just had a 2 hour phone conversation with my mother. I'm suddenly feeling anxious--I swear she still does not 'get it' and I don't think she ever will. I get the feeling that she is always trying to "match" what I go through by picking up on things that happened years ago and retelling them to make it sound like they were a terrible long standing problem that she had to deal with.

Not to sound petty, but just once, I'd like to feel taken care of (by her). There are things that she just won't hear--just glosses over. I used to go along with it, but now it really gets to me. It really helps to write all this out--I know you guys care, so don't feel you need to answer--I just had to vent. :)

Big hugs to you. :)

Where is our Dingo Girl? The GBB is too funny.

Laura, thank you for your post. I am so glad you have such wonderful supports in your life.

And good morning to everyone else.

It feels like real change is afoot.

Fiddle-Faddle Community Regular

So do all competitive swimmers suffer strange after-effects of the chlorine? That would be a good thing to research, not that anyone wouyld do anything about it :ph34r: . They've known for years that hairdressers have a high rate of miscarriage, but all they do is wear gloves, they don't have anything to protect them from the perm and dye fumes.

I swim every day--it's part of my PT for my shoulder and also helps maintain my sanity. Oh, please don't tell me I have to give that up, too! :(

DingoGirl Enthusiast

hi everybody.....dang, I just skimmed everything and dont' know what's going on EXACTLY.....Andrea, I don't know what is precisely happening with your father, even, but I pray for his health.....and you, you seem to always wear yourself - I mean spread yourself so thin. OUr mother hen.

I am having four days of pure hell, doc has put me on Ritalin, and I am a mess, the first day, took 5 mg., half a pill, and it was fabulous - - -my BRAIN WOKE UP. but not too hyper, it was as though the fog cleared. And then......it's been hell. Very agitated, cranky, TIRED and have felt smashed by steam roller all week.....truly miserable. So....I can't take ritalin, and everything else is freaking expensive, though those things didn't have this effect on me. Am supposed to start my new job next week.....I am about to cry....that feeling of being enshrouded in fog and not quite knowing why, hardly being able to think/process clearly and knowing I have to start trying to be capable and smart and perform well next week...makes me desparately anxious and sick. Quit caffeine this week, too (though it was half-caf in coffee the weeks prior to this).....stomach is in a bomb every day...... :( Could still be reacting to gluten binge as have breakouts that are not normally this bad.

Is there another forum where I should talk my brain stuff? Except that I don't wanna leave. :( And meet any new people. I am safe here with you guys......

My brain and its futility makes me want to......well I won't even go into how utterly despondent it makes me and the thoughts I ahve of this lifetime of struggle.

Love you guys.....am going to TRY to hang a curtain rod today with the Dremmel, we will see if it works, TRY to do some yard work...TRY to do so many things. am in a fog and a blur - - it took THREE klonepin last night to fall asleep and I don't think I'm quite awake. And, I'm so internally agitated that my normal fun/relaxing things are just NOT Fun at all.....

so sorry to be such a downer....no more Ritalin for me - it's hell - - so i'll just be detoxing from taht for a few days.

BTW, Sudoko or Sooduko or soduko or whatever it's called is what they play in HELL. That form of torture that they call a "game" had me almost in tears....... :huh:

AndreaB Contributor
Hope everyone else is doing well, and has an excellent weekend.

Good to see you Ryan!

Is there another forum where I should talk my brain stuff? Except that I don't wanna leave. :( And meet any new people. I am safe here with you guys......

so sorry to be such a downer....no more Ritalin for me - it's hell - - so i'll just be detoxing from taht for a few days.

BTW, Sudoko or Sooduko or soduko or whatever it's called is what they play in HELL. That form of torture that they call a "game" had me almost in tears....... :huh:

You don't need to go anywhere else to talk about brain stuff. This is an ever evolving thread that deals with all our health concerns. We want to keep you safe. :)

You are not a downer......quit thinking like that. You are our wonderful Susie Q, Susan, Dingogirl. We've missed you.

I haven't played that game and don't think I better. I'm the kind that gets easily addicted to games. :P

jerseyangel Proficient

Yea Susan, You don't need to go anywhere else! Stay right here, where you're safe, and we'll all do what we can to help and support you.

I also have issues with anxiety--my depression had gotten a ton better on the diet, but I'm so anxious a lot of the time. It's no fun to be foggy :(

When you feel particularly sad, either come here or PM me or anyone of us that you feel comfortable with. Sometimes, talking things out with another person can help.

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    • trents
      Welcome to the forum, Linda! Many on this forum can sympathize with you. It can be extremely difficult to get reliable information about gluten when it comes to meds, supplements and oral hygiene products. This is especially true since so much of this stuff is generic and comes from over seas. I will deflect with regard to your question about meds and oral products but take you in another direction. Have you tried a low iodine diet. Iodine is known to exacerbate dermatitis herpetiformis and some find that a low iodine diet helps reduce the number of outbreaks. By the way, have you had your celiac antibodies retested recently? If they are elevated that might be a clue that you are getting gluten in your oral hygiene products or meds.
    • Itsabit
      Hi. I’m 70 years old, and a 22 year survivor of head and neck cancer treated with chemo-radiation, which resulted in non-existent submandibular salivary glands and extreme dry mouth and altered oral mucosa. I have been using dry mouth toothpaste, Rx oral dentrifices and moisturizers for years.  I’ve recently been diagnosed with severe celiac dermatitis herpetiformis. I was being treated with oral Dapsone, but it was not effective and I developed some serious side effects. So, the medication was stopped and I was started on Doxycycline (another antibiotic) for inflammation. I’ve been using Rx Betamethasone steroid ointment with little to no effect. I have tried every oral and topical antihistamine treatment available OTC. None have touched this horrible relentless itching. That is my history.  Now to my question. Does anybody know about gluten free toothpastes and mouth moisturizers? I ask because a very common dry mouth brand stated to me that they were indeed gluten free. But as I am not getting any better with my dermatitis herpetiformis, I was wondering if I was getting glutenized some way other than diet as  I have been following a strict clean gluten free diet, but I am not seeing any improvement at all. So, I started looking up the toothpastes and moisturizer ingredients individually and nine (9) of the eleven (11) or so listed showed up as   containing gluten or that may have gluten! Am I getting glutenized orally by these products?  As an aside, I checked on my favorite lavender scented baby lotion which is supposed to be gluten free, but many of those ingredients when investigated separately, show they  do contain or may contain gluten as well. I stopped using the lotion. But I cannot forgo my dental care. I was unable to get any information from the manufacturer of my current brand of chewable multivitamins either. They told me to check with my doctor. If THEY don’t know what’s in their product, how do they think a PCP will?  In light of all this, I am confused and angry that I might keep getting contaminated with gluten through products I am using that are supposedly gluten safe. *I should also state that I have a nickel allergy since I was about 12-13 years old. And I developed a contact allergy to latex (gloves) when I was a student nurse at 19 years old.  I know and I’m sorry that this is so lengthy. I’m trying to do everything I can to combat this condition, and I’m feeling very confused, anxious and angry about not getting adequate information as I try to educate and advocate for myself. I’m hoping someone here is more knowledgeable than me of how to navigate through all of this. Can anyone offer any advice?  Thank you for your time.  Respectfully,  Linda
    • trents
      Welcome to the forum, @Cathijean90! I went 13 years from the first laboratory evidence of celiac disease onset before I was diagnosed. But there were symptoms of celiac disease many years before that like a lot of gas. The first laboratory evidence was a rejected Red Cross blood donation because of elevated liver enzymes. They assume you have hepatitis if your liver enzymes are elevated. But I was checked for all varieties of hepatitis and that wasn't it. Liver enzymes continued to slowly creep up for another 13 years and my PCP tested me for a lot of stuff and it was all negative. He ran out of ideas. By that time, iron stores were dropping as was albumin and total protein. Finally, I took it upon myself to schedule an appointment with a GI doc and the first thing he did was test me for celiac disease. I was positive of course. After three months of gluten free eating the liver enzymes were back in normal range. That was back in about 1992. Your story and mine are more typical than not. I think the average time to diagnosis from the onset of symptoms and initial investigation into causes for symptom is about 10 years. Things are improving as there is more general awareness in the medical community about celiac disease than there used to be years ago. The risk of small bowel lymphoma in the celiac population is 4x that of the general population. That's the bad news is.  The good news is, it's still pretty rare as a whole. Yes, absolutely! You can expect substantial healing even after all these years if you begin to observe a strict gluten free diet. Take heart! But I have one question. What exactly did the paperwork from 15 years ago say about your having celiac disease? Was it a test result? Was it an official diagnosis? Can you share the specifics please? If you have any celiac blood antibody test results could you post them, along with the reference ranges for each test? Did you have an endoscopy/biopsy to confirm the blood test results?
    • Cathijean90
      I’ve just learned that I had been diagnosed with celiac and didn’t even know. I found it on paperwork from 15 years ago. No idea how this was missed by every doctor I’ve seen after the fact. I’m sitting here in tears because I have really awful symptoms that have been pushed off for years onto other medical conditions. My teeth are now ruined from vomiting, I have horrible rashes on my hands, I’ve lost a lot of weight, I’m always in pain, I haven’t had a period in about 8-9 months. I’m so scared. I have children and I saw it can cause cancer, infertility, heart and liver problems😭 I’ve been in my room crying for the last 20minutes praying. This going untreated for so long has me feeling like I’m ruined and it’s going to take me away from my babies. I found this site googling and I don’t know really what has me posting this besides wanting to hear from others that went a long time with symptoms but still didn’t know to quit gluten. I’m quitting today, I won’t touch gluten ever again and I’m making an appointment somewhere to get checked for everything that could be damaged. Is this an automatic sentence for cancer and heart/liver damage after all these symptoms and years? Is there still a good chance that quitting gluten and being proactive from here on out that I’ll be okay? That I could still heal myself and possibly have more children? Has anyone had it left untreated for this amount of time and not had cancer, heart, fertility issues or liver problems that couldn’t be fixed? I’m sure I sound insane but my anxiety is through the roof. I don’t wanna die 😭 I don’t want something taking me from my babies. I’d gladly take anyone’s advice or hear your story of how long you had it before being diagnosed and if you’re still okay? 
    • trents
      Genetic testing cannot be used to diagnose celiac disease but it can be used to rule it out and also to establish the potential to develop celiac disease. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% actually develop it. To develop celiac disease when you have the genetic potential also requires some kind of trigger to turn the latent genes "on", as it were. The trigger can be a lot of things and is the big mystery component of the celiac disease puzzle at this point in time with regard to the state of our knowledge.  Your IGA serum score would seem to indicate you are not IGA deficient and your tTG-IGA score looks to be in the normal range but in the future please include the reference ranges for negative vs. positive because different labs used different reference ranges. There is no industry standard.
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