Omg...i Might Be On To Something

[AndreaB]

Lyme and TMJ seem to have a connection on the Lyme boards.

That would make perfect sense to me.

Well ladies and gentlemen, I ventured into Lyme Alive territory and plugged in the Energy Wellness machine, hit some buttons, took hold of aluminum rods and turned the dial up until I felt a tingling running up my arms and through my head, my ears popped and I heard hissing sounds, all of this within one minute. For a short time afterwards I heard a ringing in my ears but then it stopped and I felt basically the same but perhaps just a shade brighter. I'm excited about using it again.

For anyone curious Royal Raymond Rife was the inventor of the original one and from it many versions have been created, I think the Bioset may be related but I don't know enough about it to be sure. I do know the Rife machines were based on creating frequencies that killed bacteria in the body and that his machines were used to cure cancer which he identified as a bacteria way back when. I read an article recently, originally published in time magazine in 1957, that identified spirochetes (LYME) in all MS patients and the hope that this would mean a cure for MS. Have I said all this before? I will not go back to find out.

Souns interesting and scary at the same time. Please keep us posted.

Cyber hugs and positive thoughts to all The resident (XY) goof.

Always good to see you Richard.

This describes me EXACTLY...PT guy pulled my head too quickly to the left yesterday and I nearly jumped off the table. If I was bitten on my hiking trip to Vermont years ago, it would have had to been on my head somewhere, cuz I never saw one on my body...I wouldn't have noticed if it was in my hair, which is usually at least shoulder length.

Sounds fishy to me. Maybe you can be referred to Rachel's new doc.

[dlp252]

a drive-by....here's a quick joke I got this morning.....had to share.....

A woman calls her boss one morning and tells him that she is staying home because she is not feeling well.

"What's the matter?" he asks.

"I have a case of anal glaucoma," she says in a weak voice.

"What the hell is anal glaucoma?"

"I can't see my ass coming into work today."

'bye everybody........

See, those quirky artists will love you! (speaking as one who is quirky and used to paint, lol).

Sounds fishy to me. Maybe you can be referred to Rachel's new doc.

Yah, I'm trying to decided WHEN is a good time to ask them, lol. I've only just begun to see them, and I know in Rachel's case they had seen her for a few months and weren't able to help her. They are still in the "I know we can help you" thing, and I'm not sure that they can't, and in fact I think maybe they can, so I'm thinking I should get to the best point they can take me. I don't have the strong reactions to everything like Rachel did, so I'm thinking I should give this all a chance first. On the other hand, if the darned thing is Lyme, I'd want to know that sooner rather than later...that's kind of why I'm thinking BioSET first...that way they can "see" what's wrong and I'd have some idea of where to go from there. I don't know, I can't think straight.

[AndreaB]

Ya'all know I have ALL THOSE symptoms...sheesh!

Donna, You need to get tested.

This is so funny, I had an epiphany, then forgot it ... did I just "Dingo" an idea???

Anyway, it came back, so it must be meant for all of you, too. I never realized people might never have been bitten by a tick, or that they could say, I got bitten in x year. For me, we lived out in the country for a few years when I was about 9-12. Ticks were a way of life! There were times I'd have more than one attached to my head! I never would have seen a rash because of my long, thick hair. I had them constantly. My step-father would burn them off, which I've read is the worst and most dangerous way to remove them from a Lyme perspective. I guess it would be a surprise if I don't have Lyme ... but I'm not jumping to any conclusions ...

I'm thinking you have lyme too, Carla.

I actually think I might do the BioSet thing just to see what it says. If that indicates Lyme at all, maybe I'd pursue it...I don't know if the HN doctors can test for it since they referred Rachel to someone else...I'm debating (with myself, lol) whether to give the mercury removal and treatments at HN a few more months to work, or just go see what's up now.

Do you have to be referred to Rachel's doctor? I don't want you to wait a few more years for possible diagnosis. I wonder if you could go see the bioset lady and then self refer to the doctor.

About the antibiotic treatment for Lyme...are they specific antibiotics, cuz I've surely had plenty of antibiotics during the last 4 years...an astonishingly mind numbing amount...one course was 4,000mg per day of augmentin for about a month...maybe that kept any symptoms (if it was/is Lyme) from being worse.

Makes sense to me.

Looking back, it's no wonder my health went down hill after that. Anyway, my hiking trip in Vermont was just before all this happened...I think in 1994 or 1995--we hiked through the woods and I never wore a hat, but did wear long sleeves and long pants/jeans. Not long after that I started getting repeated bouts of bronchitis, but nothing too serious and started getting really tired and worn down feeling. It wasn't until after my hysterectomy in 2001 that my health really took a bad downturn though developing environmental allergies to nearly everything they tested me for--never had a single allergy before also started having chronic sinus infections and the fatigue was extreme....does that make any sense, lol?

Yes, love the new terminology...dingo an idea!

Yikes! What a time you had! I would think anyone's health would have worsened somewhat, just more for those lyme spirochets (or whatever they're called).

OMG Dingo and idea...... It's perfect, I do it all day long.....

Love it!

Carla, Donna, and Allison.....wow. Are you also Lyme Ladies???? Dang, all signs would point to yes....

I agree.

gotta get ready for something I deeply dread.....a new job. I feel sick. I wanted to wait a few more months before working......could use your prayers. I am going to cry. Maybe throw up. It is sad that I am so worked up over such a menial job. But it's all my poor enfeebled Dingo brain can handle (dingos are much smarter than I). Testing w/ psychologist on exactly why I can't process verbal information resumes next week. Today I am not sure whether to take a Ritalin, or a tranquilizer. or both?

You'll do great!

[rinne]

Everything that Andrea said, thanks Andrea.

OMG Carla.....this is one of the things that they do IN HELL.....that, and excel spreadsheets, they would do this to torture you, that is why.....

scared.....hold me..........

I do the same, even trying to learn some small new thing can just seem so overwhelming to me that I'd rather just avoid it all. I've learned that if I can take things in, in small distinct units I can build my skill levels. Well okay I still haven't figured out how to get a decent avatar up since I took my glamour shot down.

[Rachel--24]

I actually think I might do the BioSet thing just to see what it says. If that indicates Lyme at all, maybe I'd pursue it...I don't know if the HN doctors can test for it since they referred Rachel to someone else...I'm debating (with myself, lol) whether to give the mercury removal and treatments at HN a few more months to work, or just go see what's up now.

Donna,

I think getting the Bioset wouldnt be a bad idea. That way you can get some kind of picture of what might be occurring. If you did have Lyme the HN docs wouldnt be the ones to diagnose or treat this. They have various tests that they use for figuring stuff out. I was sort of dubious about the accuracy of some them. I had a test that checked for antibodies against all kinds of virus's or bacteria. Nothing showed up on the test. One of the bacteria included in the test was the Lyme bacteria. It didnt show anything...but I never took that as a definate "I dont have Lyme". It wasnt proper testing for Lyme. They tested me for mercury in a similar type of bloodtest....looking for antibodies against heavy metals. Again...I was not aware of this type of testing to completely be a reliable way of finding out if there is a metal toxicity.

I am more trusting of the stool tests for parasites, adrenal testing....stuff like that but I wouldnt use their "functional" tests for trying to diagnose something like Lyme or mercury toxicity or anything else that is hard to diagnose and requires very specific testing.

The Bioset lady is good...very *smart* about Lyme, mercury and allergies. If you wanted to see my Dr....you could at any time...you dont need a referal from HN (as Andrea has pointed out).....you could self-refer.

If the Bioset showed Lyme...you could then take that info. and persue Igenix testing or see a qualified Lyme Dr....you could take the info. you get from the test and share it with your doctors and try to go from there. I dont know if Bioset "automatically" tests for Lyme. My Dr. had wrote down "Please test for MCS and Lyme"....and had me give it to her. She almost forgot to test for Lyme...I reminded her and she had to get the Lyme vials from another room....so I'm thinking she doesnt always check for it. So if you do get the test....make sure she checks for Lyme.

Richard, that was very cute, perhaps a miniseries.

Yeah Richard....very cute.

I actually LOVE discovery channel (can you imagine ) so I know I would watch.

I read an article recently, originally published in time magazine in 1957, that identified spirochetes (LYME) in all MS patients and the hope that this would mean a cure for MS. Have I said all this before? I will not go back to find out.

Not sure if you said that before but dont blame you for not wanting to go back....

I think I recall reading that in a study they checked a group (dont recall how many) of people diagnosed with Parkinsons and found that they ALL tested positive for the Lyme bacteria.

[dlp252]

Donna,

I think getting the Bioset wouldnt be a bad idea. That way you can get some kind of picture of what might be occurring. If you did have Lyme the HN docs wouldnt be the ones to diagnose or treat this. They have various tests that they use for figuring stuff out. I was sort of dubious about the accuracy of some them. I had a test that checked for antibodies against all kinds of virus's or bacteria. Nothing showed up on the test. One of the bacteria included in the test was the Lyme bacteria. It didnt show anything...but I never took that as a definate "I dont have Lyme". It wasnt proper testing for Lyme. They tested me for mercury in a similar type of bloodtest....looking for antibodies against heavy metals. Again...I was not aware of this type of testing to completely be a reliable way of finding out if there is a metal toxicity.

I am more trusting of the stool tests for parasites, adrenal testing....stuff like that but I wouldnt use their "functional" tests for trying to diagnose something like Lyme or mercury toxicity or anything else that is hard to diagnose and requires very specific testing.

The Bioset lady is good...very *smart* about Lyme, mercury and allergies. If you wanted to see my Dr....you could at any time...you dont need a referal from HN (as Andrea has pointed out).....you could self-refer.

If the Bioset showed Lyme...you could then take that info. and persue Igenix testing or see a qualified Lyme Dr....you could take the info. you get from the test and share it with your doctors and try to go from there. I dont know if Bioset "automatically" tests for Lyme. My Dr. had wrote down "Please test for MCS and Lyme"....and had me give it to her. She almost forgot to test for Lyme...I reminded her and she had to get the Lyme vials from another room....so I'm thinking she doesnt always check for it. So if you do get the test....make sure she checks for Lyme.

Yep, see, this is kind of how I was thinking too...if you wouldn't mind, would you PM me the name of the BioSET lady? I saw a couple in our area, but yours sounds really good, so I feel better about that than just picking one out of a phone listing or internet list.

[Rachel--24]

just think about the ocean creatures found, off Southern California, to have both male and female reproductive organs.....from all the hormones in our food.

REALLY??

Susan...best of luck today at your new job. You'll do great.

[rinne]

And just a reminder that Lyme is a clinical diagnosis, that is what I received and I can accept it. I am still waiting on my Igenex test results but given my history of rash, decline in health and the fact that I have almost all the symptoms.... regardless of the results I am proceeding with the treatment for Lyme. Hoffman considered the Meridian Stress Assessment and the muscle testing but when it gets right down to it, given that he is a medical doctor, I think he went with the clinical diagnosis.

[Fiddle-Faddle]

Susan, I bet they are all going to totally fall in love with you at your new job. Stay calm, flash that gorgeous smile, and be yourself.

Pretend you're working in Rachelville....

Let us know how it goes!

[Rachel--24]

Yep, see, this is kind of how I was thinking too...if you wouldn't mind, would you PM me the name of the BioSET lady? I saw a couple in our area, but yours sounds really good, so I feel better about that than just picking one out of a phone listing or internet list.

Of course....I'll send you all the info. later on today. I only have a few minutes left on my lunch break but I'll get it to you some time today. I actually have an appt. with her when I get off work....my second treatment.

No, in HELL everyone works for RGIS (they inventory grocery stores and retailers). I know because I worked part time for them (PURGATORY). They give you an adding machine type thing that hangs from your belt, spin you around 5 times and stick you in an aisle to count all of the canned cat food, or ramen noodles, or worse yet all the unmentionables at Victorias Secret (i'm not good at re-folding underpants..sorry ) I cursed my ex-girlfriend (Ms. Parking-Ticket /Ms. I'm-broke-can-you-charge-this-I'll-pay-you-back-later) every late night and weekend hour I spent working for them

OMG...I work in a grocery store and twice a year the inventory crew comes in. They amaze me with their little keypad on their hip.....fingers moving like lightening.

However.....how are they actually *counting* the product if the product is completely "faced" and they are not even touching it??

"I can't see my ass coming into work today."

ROFLMAO....

[rinne]

I think I recall reading that in a study they checked a group (dont recall how many) of people diagnosed with Parkinsons and found that they ALL tested positive for the Lyme bacteria.

My grandmother was diagnosed with Parkinson's in her 60's but by the time she was in her 80's they thought they had made a mistake, the year before she died her body temperature dropped, she was so cold they couldn't tell how cold she was. Did you know that Lyme has the ability to lower a person's body temperature, it is a bacteria that thrives in cold bodies? My mother is icy cold and even in the summer she will be wearing sweaters. She only gets warm in Mexico and in Mexico she has taken Flagyl for parasites, Flagyl is used to treat Lyme. Geeeesssshhhhh!!!!!!!

[Rachel--24]

Did you know that Lyme has the ability to lower a person's body temperature, it is a bacteria that thrives in cold bodies?

When I first became symptomatic...but not really knowing anything was wrong yet....I became very cold. I had ALWAYS been a warm person until this happened. I would be sitting in my office at work (a small room) with the door shut, heater BLASTING and with layers of clothing on including a heavy jacket.

Seriously.....it was totally strange for me to be that COLD....plus I had an OVERACTIVE thyroid....which would normally keep me feeling warm.

People would come knocking on the door and then when I'd open it they would be BLASTED with hot air....they couldnt understand how I could be sitting in the room with the door shut and the heater blasting. They could not even stand to ENTER my office because of the heat and yet I was wanting them to SHUT the door so as to not let in the cold air. It was not even winter at the time and I know for sure that this was the time that my infection was spreading. This was the beginning.

[CarlaB]

Interesting about Parkinsons. My grandmother had it.

Rinne, good point about it being a clinical diagnosis. This is what I've been reading. On one website I took their "test" -- they said if you have more than 7 of the symptoms, you should call your doctor ... I had 28. Similar results on another website. It sure seems like a good match for me, and I have read other stuff on other diseases and it doesn't match up well at all. I'm going to take more salt and vitamin C ... I've been reading about that. Vitamin C can't hurt, you just eliminate the extra, and I can use the extra salt anyway (it's natural sea salt, no additives -- I already have it and don't see the need for tablets because I LIKE the taste of the salt in water -- weird, I know). I have low blood pressure, lowish thyroid, low adrenals, so the salt would be good for me anyway. This way I am at least being a little productive during this month of waiting, yet if it comes out that I do not have it, I've done no harm.

Oh, and I'm always cold, except if I'm outside in the summer, then I don't tolerate the heat well.

[AndreaB]

Sounds like your family could have got this inutero too, Rinne.

[dlp252]

Hum, I'm cold sometimes but not all the time, but I DO have a low body temperature, low blood pressure, and probably low adrenals...I DO almost always have cold hands and feet.

[rinne]

Interesting about Parkinsons. My grandmother had it.

Rinne, good point about it being a clinical diagnosis. This is what I've been reading. On one website I took their "test" -- they said if you have more than 7 of the symptoms, you should call your doctor ... I had 28. Similar results on another website. It sure seems like a good match for me, and I have read other stuff on other diseases and it doesn't match up well at all. I'm going to take more salt and vitamin C ... I've been reading about that. Vitamin C can't hurt, you just eliminate the extra, and I can use the extra salt anyway (it's natural sea salt, no additives -- I already have it and don't see the need for tablets because I LIKE the taste of the salt in water -- weird, I know). I have low blood pressure, lowish thyroid, low adrenals, so the salt would be good for me anyway. This way I am at least being a little productive during this month of waiting, yet if it comes out that I do not have it, I've done no harm.

Oh, and I'm always cold, except if I'm outside in the summer, then I don't tolerate the heat well.

I am still mostly warm although my hands and feet are often cold and like you I don't tolerate heat well which I think also goes with Lyme, it would make sense that if the spirochetes like the cold they would not like the heat.

The salt I am using is the Himalayan Salt and the Redmund Real Salt, they both come from ancient sea beds, the salt people recommend these salts as some sea salt harvested today may be contaminated and given the amount of salt taken on the salt/c best to have the best. I am currently taking two level teaspoons of salt which is 9 grams of salt and 4-6 grams of Vitamin C.

Andrea, yes that is what I think, that my mother was born with it and that all my brothers and sisters have it too, I think the gluten intolerance is where it is manifesting as a crisis in our bodies. It is also possible we were all just exposed to ticks.

I think that if the decline in my health had started at 70 or so I would have accepted it as part of growing old but the suddeness and the rapidity of the decline feels to me like the process has been speeded up. Really, I am the problem I'm just not prepared to accept old age, sickness and death at this point in my life, especially on fast forward.

[AndreaB]

I use Redmund Real Salt for my cooking. Glad to know that it's a good salt.

New avatar. Another one that had my name on it. Don't really have the money....

[rinne]

Open Original Shared Link

This is the link that Hoffman sent me, I had asked him if he had any kind of list with doctors who practiced integrative medicine in the U.S., and I haven't explored it yet so I don't know how helpful it is.

Andrea, am I beginning to see a herd of horses?

[AndreaB]

Andrea, am I beginning to see a herd of horses?

Yep, my herd is growing. Luckily hubby was home when this one was listed. I'm bidding on another one that was listed when he was sleeping. Won't know if I got that one til next week. I didn't copy over all the pictures of all the ones I have.

[CarlaB]

I am still mostly warm although my hands and feet are often cold and like you I don't tolerate heat well which I think also goes with Lyme, it would make sense that if the spirochetes like the cold they would not like the heat.

That would explain why I need a nap after my sauna!

[Green12]

Oh sheeeet! I'm like 10 pages behind.....

Just randomly posting to things-

Laura, I had lots of tests done through Great Smokies Labs. It was some time ago though.

What I find interesting about the stool testing is in one of the links that rinne or Rachel posted the other day one of the leading docs talked about how lousy stool testing is. He said you can only detect parasites and etc. like the first 30 minutes in a fresh stool sample and labs today aren't set up that way. Every stool test I had done always came back clear, so I don't know. IMO, I'm not so sure how helpful they are.

Susie Q- Good luck with your first day on the new job You are probably already there, I think you are going to do great and let us know how it goes.

Great joke too

Oh, and I dl "Mercy Street" and listened to it, LOVE IT!!!!!! You have to listen to "I Grieve" if you haven't already, can't remember if you said you had, it's from the City of Angels Soundtrack.

Um, let's see what else....

Richard, how sweet are you

Talking about Parkinsons makes me think of Alzheimers as well. Alzheimers runs in my family and at that link I referred to above the said lyme bacterias were found in 7 out of 10 Alzheimer patients brains. Wouldn't that be something if lyme is responsible for most of the mysterious diseases today like ALS, Parkinsons, Alzheimers, Jacob Crutzfiled (sp?), etc.

Thanks for everybody's comments on my symptoms from yesterday I just don't detox, all of my detox pathways are blocked/dysfunctional, whatever, so I am literally a walking toxious person I totally think that is what my swelling is, the toxicity trapped in my tissues.

[dlp252]

I am still mostly warm although my hands and feet are often cold and like you I don't tolerate heat well which I think also goes with Lyme, it would make sense that if the spirochetes like the cold they would not like the heat.

Did I mention that I can't tolerate heat, lol!!! Really!

[AndreaB]

Talking about Parkinsons makes me think of Alzheimers as well. Alzheimers runs in my family and at that link I referred to above the said lyme bacterias were found in 7 out of 10 Alzheimer pationts brains. Wouldn't that be something if it is responsible for most of the mysterious diseases today like ALS, Parkinsons, Alzheimers, Jacob Crutzfiled (sp?), etc.

I'm beginning to wonder myself. Dr. Blaylock also linked those with excitotoxins. I would make sense that they are different manifestations of lyme though wouldn't it.

Thanks for everybody's comments on my symptoms from yesterday I just don't detox, all of my detox pathways are blocked/dysfunctional, whatever, so I am literally a walking toxious person I totally think that is what my swelling is, the toxicity trapped in my tissues.

Are you going to check into lyme from igenix? Do you think it's possible any of your breakouts could be something like Rachel was saying she went though?

[happygirl]

x

[AndreaB]

Laura,

Hope you feel better real soon. Have a fun weekend and we'll see you next week.