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Omg...i Might Be On To Something

Rachel--24

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rinne Apprentice
rinne
Posted

Open Original Shared Link

The information on this site provides lots of reasons to hope for recovery, they are doing studies with Samento and seeing real improvements in late stage Lyme patients.

My Nutramedix Samento is sitting here in front of me, I set the timer so that I would remember to take it before I ate but I ignored the timer :rolleyes: because I thought I wouldn't forget. As Susan says, "harumph". :lol: I am only taking one drop a day at this point but tomorrow I will go to two drops and slowly work up to the maximum dose which is about 17 drops a day for me I think.

I think hope makes an enormous difference, if only because regardless of how we feel if we have hope we have found a source to draw strength from and from there we can fall toward the pillows. I am very serious about pillows you know. :angry: Not angry, but I needed a strong and stern emoticon. :lol:

I spent 50 years throwing myself on the rocks, example: 5 years ago I started a new job and that first night I went out and twisted my ankle so badly I could barely stand the next day. I went to work. I know now that I should have taken to bed for at least a week but I didn't know how to do that. I didn't know that I had a choice, I was such a well trained little citizen that my corporate obligations :lol: were more important than my health. Rocks. I know a lot about rocks.

Pillows, I don't know so much about but I am trying to learn. I think of Rachelville as a Pillow Place. :)

When do you leave Andrea? When is Thanksgiving down there?

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happygirl Collaborator
happygirl
Posted

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jerseyangel Proficient
jerseyangel
Posted

Laura,

I'm sitting here, actually crying while reading your account of the wedding. What a wonderful, thoughtful thing your friends did in honor of you. It is beyond words. And that you thought of us at that moment--that is so touching. :)

I'm so incredibly happy that you were really able to enjoy yourself, and didn't get sick. I prayed for that for you--to have this one weekend free of the worry and discomfort.

Too funny about telling your parent's the wrong time :D Darn good thing they were close by!

Thanks for staying up to tell us all about it--I was headed to bed myself (really bad day) and saw you were posting. I just had to stick around to see how you did!

The picture is lovely--you both look beautiful B)

Rachel--24 Collaborator
Rachel--24
Posted
  • Author

Laura,

That is the most thoughtful thing....you have the sweetest best friend. I cried as I read your post....very touching. Thanks for sharing the events of the wedding day with us. :)

It sounds like it couldnt have been more perfect. ;)

I'm sooo happy that you had such a perfect and blissfully happy day! You deserve lots of these days with all you've been going through. :)

happygirl Collaborator
happygirl
Posted

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AndreaB Contributor
AndreaB
Posted
When do you leave Andrea? When is Thanksgiving down there?

I agree, we are trained to fall on the rocks, get the job done, no matter your health. We all need to learn to fall on pillows when it is needed. :)

We leave on the 23rd, which is Thanksgiving, and come back the 27th. We actually get in about 2 am on the 28th. Don't know what I'll do without this thread for 4-5 days. I'll be behind big time unless I can use Dad's computer.

So glad you had a wonderful time! That's fantastic that they did the donation for the wedding favors! I teared up too.

CarlaB Enthusiast
CarlaB
Posted

Laura, that was really sweet of your friend to honor you like that on her wedding day! Thank you for sharing and for thinking of us! :wub::wub::wub:

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rinne Apprentice
rinne
Posted

Laura, how wonderful, I'm teary too. :)

DingoGirl Enthusiast
DingoGirl
Posted

this crazy thing is not letting me do regular reply, have to do fast reply, wha twill I do without emoticons.... :o

Rinne...I have read CAdillac Desert, many years ago, it was wonderful, now somewhat dated (we discussed it last night). There is another well-known best-selling author who stirs up trouble and also writes about California issues (including the murder of his own father), my new friend last night were talking about the fact that this guy had written about some cotton/agriculture issues in central Cal, and that he (my new friend) wanted to get together with that author and write a book on water issues.....just so happens that that author lives here in town, right next door to my best friend.... (big laughing face here).....

I certainly would not turn down a date with Bev either, just to clarify. :)

LAURA - I was overjoyed at yoru first post, of the wedding, and I somehow got chills, good chills, at your followup post. What an incredible friend and a wonderful day for you. How unbelievably thoughtful and special.

Off to dinner at brother's friends' house.....

see you :)

p.s. am wondering if my new friend from the pub is a ROCK or a PILLOW?????

Guest melannen
Guest melannen
Posted

Finally caught up :)

Feels like forever since I've been over here...though it was less then 24 hours :lol: I usually check this thread a couple times through the day but was wiped out by a migraine and have been sleeping it off (feeling much better now).

Susan - So glad you had fun! Sounds like a great guy :)

Andrea - Glad to hear you're going to visit your dad, hope you and the fam have a great time

Laura - That is so sweet!! So happy you had fun and didn't get sick!

ummmm...dang, I know there was more...have to go back and skim to see what I forgot :o

*Edit*

Rachel - I hope you work out the perfume problem, I've never gotten perfumed mail but I HATE how some magazines have a million different scented perfume adds....makes the mag smell like a perfume store :P

Rinne - lyme beetle :lol:

Carla - glad you're getting more energy, I hope this trend continues :)

rinne Apprentice
rinne
Posted
Rinne...I have read CAdillac Desert, many years ago, it was wonderful, now somewhat dated (we discussed it last night). There is another well-known best-selling author who stirs up trouble and also writes about California issues (including the murder of his own father), my new friend last night were talking about the fact that this guy had written about some cotton/agriculture issues in central Cal, and that he (my new friend) wanted to get together with that author and write a book on water issues.....just so happens that that author lives here in town, right next door to my best friend.... (big laughing face here).....

p.s. am wondering if my new friend from the pub is a ROCK or a PILLOW?????

I read Cadillac Desert many years ago and found it a good read in addition to be informative. When we had our organic garden farm I was involved in water issues and was much more informed about the issues. I suspect many of them are the same but only more urgently so now.

I'm hoping he is a PILLOW. :lol:

Jessica, sorry to hear about the migraine. I've had them. :( I hope you feel better soon.

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

Laura, what a beautiful photo! And your post brought tears to my eyes, too...

Judyin Philly Enthusiast
Judyin Philly
Posted

Laura

put some thoughts on your other thread but wanted to tell you have beautiful you both looked.

so happy for you.

nite

judy

Simply-V Newbie
Simply-V
Posted
Apparently, instead of doing wedding favors, Meghan and Brian made a contribution to the Celiac Disease Foundation in honor of me. They had apparently wanted to do something for me since I have been so sick lately, and so instead of spending money on favors that people don't really remember, they wanted to do something meaningful. So on one of the tables in the front, they had a frame with the announcement of the donation to the Celiac Disease Foundation and had a write-up about what Celiac was.

That is just amazingly thoughtful and touching. Thank you for sharing. :)

georgie Enthusiast
georgie
Posted
I dont get all these people accepting a life of pain due to Fibromyalgia. Am I missing something?? huh.gif

I have a book about TMJ....in the book it says TMJ goes hand in hand with Fibromyalgia. WTH??? unsure.gif

I tried to learn about Fibromyalgia (since I have TMJ) and the whole thing just didnt make sense to me. I *still* dont know what it really is.....or what suppossedly causes it. WHAT IS FIBROMYALGIA?????

Undertreated Thyroid? I notice Rachel that you have Graves. Read Open Original Shared Link and you may have get inspiration.

miamia Rookie
miamia
Posted

Laura-

that is a great story- I think when we are sick alot of people don't know how to act. I know I have experienced alot of weird reactions from friends just becuase they don't know what to do but that is truly an amazing story and shows that she is really a great friend- you are very lucky

Miamia

CarlaB Enthusiast
CarlaB
Posted
Carla,

That's interesting about your dairy.....I'll be watching for updates.

I'm fine today. I am questioning whether my number from Enterolab was so high because I ate so much dairy before and more than likely have a leaky gut. I know Reece's Pieces have casein, and I can only assume the popcorn did, too. I'm not going to test again till next week because we're going to IU to see Morgan this weekend ... haircut/color, and IU game.

AndreaB Contributor
AndreaB
Posted

So quiet in here this morning. I'm used to taking quite a bit of time to catch up. :)

Carla,

Maybe you can tolerate smaller doses of dairy.

Miamia,

Hi! Hope you are doing better this week.

Hi Ryan!

CarlaB Enthusiast
CarlaB
Posted
Carla,

Maybe you can tolerate smaller doses of dairy.

That's what I'm thinking.

evie Rookie
evie
Posted

Sorry to break in here...am going to Dr. soon..still having bad diarrhea, worse. not be surprised if hospitalized..getting very weak..your prayers and concerns have kept me going...thanks so much.

Love to all, evie

CarlaB Enthusiast
CarlaB
Posted

Evie, I hope they find out what is wrong very quickly. We'll be praying for you.

jerseyangel Proficient
jerseyangel
Posted
Sorry to break in here...am going to Dr. soon..still having bad diarrhea, worse. not be surprised if hospitalized..getting very weak..your prayers and concerns have kept me going...thanks so much.

Love to all, evie

Evie, I was wondering how you were doing! I'm sorry that things have not improved :(

Good luck at the doctor--I will say a prayer for you :)

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
Undertreated Thyroid? I notice Rachel that you have Graves. Read Open Original Shared Link and you may have get inspiration.

Actually Graves Disease is OVERactive thyroid....it means the thyroid is already producing too much hormone all on its own. People with Graves do not take thyroid hormone replacement....that would just worsen the problem.

In my case I had radioactive iodine treatment to treat Graves and shut down my thyroid for good. :(

Now I do need to take thyroid hormone and I'm definately not undertreated.....I already take natural thyroid (Armour) and I'm doing fine with it. :)

My Hypothyroid symptoms consist of dry hair, hairloss, dry skin, carpul tunnel, orange spots on my palms and fatigue. I dont get Fibromyalgia symptoms when I'm not on enough Armour.

I think I am actually on too much Armour right now and will be decreasing my dose after I get test results back.

rinne Apprentice
rinne
Posted

Evie, I have been wondering how you are, I am so sorry to hear that you are feeling weaker. I hope that you will be feeling better soon. I am keeping you in my prayers, I am so glad you posted.

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
Sorry to break in here...am going to Dr. soon..still having bad diarrhea, worse. not be surprised if hospitalized..getting very weak..your prayers and concerns have kept me going...thanks so much.

Love to all, evie

Evie,

I was worried about you all weekend. I was hoping to hear back some good news. :( What are they giving you for the C.Diff? I'll continue with the prayers and I'm glad you are gaining some strength from the support and love from the people here. Get well soon ok. :)

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    • knitty kitty
      Getting sick much more often

      By knitty kitty · Posted

      Hello there! @Jordan Carlson , you said "Now the last 3 ish years I have been sick more than I ever have been in my life. Could it be my immune system was so tired/fatigued prior to diagnosis that it just wouldnt turn on anymore? And now that my stress and inflammation is down its functioning stronger?" I think you may have that backwards.  Your immune system was running in high gear with undiagnosed Celiac Disease, and therefore fighting infections like colds and viruses before you had any symptoms.  Now that you've gone gluten free, your immune system may be depressed and not able to mount a strong immune response to colds and viruses because it is running low in essential vitamins and minerals needed for that immune response.  Hence you have more infections and worse symptoms now.   For strong immune responses, our bodies need vitamins and minerals that may be lacking on the gluten free diet.  Supplementing with essential nutrients boosts our ability to absorb the vitamins and minerals while our intestinal villi are healing in the first few years of recovery.   Many are low in vitamins and minerals that help our immune system, like Vitamin D, Vitamin C, zinc, iron, the eight B vitamins, especially Thiamine, selenium, and magnesium.   Have you talked to your doctor and nutritionist about supplementing with vitamins and minerals?   Correcting nutritional deficiencies is frequently overlooked after diagnosis.  
    • Jordan Carlson
      Getting sick much more often

      By Jordan Carlson · Posted

      @trents I do take all the recommended vitamins and excersize regularly. Basically do all things labeled as a healthy lifestyle haha. Thats why I was thinking more this is my immune system now having the energy to fight viruses rather than being too stressed out as I have heard that it is a common thing when your body is over stressed due to underlying autoimmune diseases
    • trents
      Getting sick much more often

      By trents · Posted

      Jordan Carlson, Wheat flour is fortified with vitamins ("enriched") where as gluten free facsimile flours are not. So when you eliminate wheat flour from your diet you may lose a significant source of nutrition. At the same time, gluten-free prepackaged foods are practically devoid of vitamins and minerals, consisting mostly of highly processed high carbohydrate grain substitutes. Lots of rice flour and tapioca. Have you compensated by adding in some high quality gluten free vitamin and mineral supplements? We typically recommend this for new celiacs, especially at the front end of recovery before there has been very much healing of the small bowel villous lining and nutritional absorption is still poor. Edit: I edited my other post to direct it to Sanna King's post.
    • Jordan Carlson
      Getting sick much more often

      By Jordan Carlson · Posted

      Hey there @trents. I wish I could edit my original post. I am talking about getting a cold way more often, not gluten poisoning.
    • trents
      Getting sick much more often

      By trents · Posted

      Reply to Sanna King: As you have withdrawn gluten from your diet you have lost all tolerance to it that you had when consuming it on a regular basis. This is normal. Not everyone experiences it but it is common. It has been my experience as well. When I was consuming gluten every meal every day for years after the onset of celiac disease but before diagnosis I would experience mild GI symptoms like a little occasional diarrhea. After being gluten free for a significant time, any major exposure to gluten would make me violently ill. Hours of severe cramps and vomiting followed by hours of diarrhea. Like when my wife made me gluten-free biscuits and made herself wheat flour biscuits and I got them mixed up and ate a couple. I am not a super sensitive celiac in the sense of being made ill by small amounts of cross contamination but if I get a significant exposure like I just described it is awful. 
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