Omg...i Might Be On To Something

[CarlaB]

Thanks Andrea and Patti, it's actually my Regnum Christi meeting (www.regnumchristi.com) .... it's the one thing I haven't cut out as it "feeds" me and I need it. I've belonged to this group for ten years and was actually one of the founders of it in Indiana. I've done a lot of youth work with them, but have been on a leave of absence from it for a while now ... we haven't decided whether I should turn my position over to someone else yet. I coordinate youth work for OH, KY, and IN ... it involves some travel, but I love it. I still go to the weekly meetings, they're not really meetings, we get together for scripture reading, prayer, and theological analysis of real life situations. It's not a meeting about the work we do as all of us do different things.

Since all of us here are from different backgrounds, I don't talk much about this here, but it's been a really important part of my life for the past decade. I don't work, so this youth work is my "work", it's what makes me feel that I'm doing something constructive. I go even if I don't feel well. Afterward, I went to Starbucks with Adam for a soy chai latte.

I'm concerned about Evie, too. Hopefully we'll hear from her daughter today.

I love the 10 Commandments.

Oh, at my RC meeting today I found out that a woman who is on another RC team who I know really well just got diagnosed with Lyme Disease. It's funny because about four years ago when I lived in Ohio she and I were both searching for what was wrong with us. We shared a lot of the same symptoms and were always telling each other about this health book or that health book that we had read. It was one of those health books that led me to a rotation diet which made me discover wheat made me sick. I plan on calling her this afternoon. She flew up to NY to see a doc about it. I sure wish it was a local guy!

[Fiddle-Faddle]

Um, ahem, would just like to clarify that it was our dear Patti who used the word Conundrum. And yes, that is a good wine.

I didn't want to mention this before.....but C. Diff does kill one-third of patients who get it. Yes, I am beyond worried too....Judy I know you'll let us know as soon as you hear anything.

And, the reaction to antibiotics is FAR higher than 1 in 400,000 - - - the numbers are shocking, actually, for the particular one that my friend's daughter was on....it is so common and I have forgotten the name....there are huge lawsuits against the manufacturing company.

I suppose I should not even be surprised--but I am shocked. How did our medical system get THIS bad????

[CarlaB]

How did our medical system get THIS bad????

Lawyers and insurance?

Also, when they turned away from health care and into medicine.

[AndreaB]

Oh, at my RC meeting today I found out that a woman who is on another RC team who I know really well just got diagnosed with Lyme Disease. It's funny because about four years ago when I lived in Ohio she and I were both searching for what was wrong with us. We shared a lot of the same symptoms and were always telling each other about this health book or that health book that we had read. It was one of those health books that led me to a rotation diet which made me discover wheat made me sick. I plan on calling her this afternoon. She flew up to NY to see a doc about it. I sure wish it was a local guy!

Glad you enjoy your meetings. That's important. Interesting about the woman diagnosed with Lyme. Keep us posted.

Rinne,

Have you got your results from Igenix yet? Soon?

[Rachel--24]

Insurance is a big part of it....I believe its got alot to do with the refusal to acknowledge chronic Lyme Disease as a legitimate illness. My Dr. said the insurance companies would be under tremendous strain if Dr.'s started treating chronic Lyme conditions. It wont happen.....now they have made that new law not allowing a Dr. to treat Lyme for more than 3 weeks. How Crazy is that!!!

It doesnt matter if the treatment is *working* and the patient is getting better....they will refuse treatment after 3 weeks and if the patient is still sick?? Oh well.

[DingoGirl]

Insurance is a big part of it....I believe its got alot to do with the refusal to acknowledge chronic Lyme Disease as a legitimate illness. My Dr. said the insurance companies would be under tremendous strain if Dr.'s started treating chronic Lyme conditions. It wont happen.....now they have made that new law not allowing a Dr. to treat Lyme for more than 3 weeks. How Crazy is that!!!

It doesnt matter if the treatment is *working* and the patient is getting better....they will refuse treatment after 3 weeks and if the patient is still sick?? Oh well.

It is all about MONEY. And it is SO terrible, and yes, Andrea, the world IS going to hell in a handbasket.

[Rachel--24]

I'm concerned now. I'm really concerned now. Yes, her last post sounded scared/worried about her condition.

C-Diff is soooo scary. I never got sick from it even though they said I had it and treated me for it. All I know is that the GI said it was good that I was treated because it *might* have been a big problem later on. Who knows....maybe the next round of antibiotics would have been enough to set it off.

What Susan said is right...it can kill people. I've been scared since the day Evie posted that she has it. I've been really worried about her. Its really bad when a small child or an elderly person gets it. I just want her to be ok and I'm praying for some good news to come.

[dlp252]

What Susan said is right...it can kill people. I've been scared since the day Evie posted that she has it. I've been really worried about her. Its really bad when a small child or an elderly person gets it. I just want her to be ok and I'm praying for some good news to come.

Ditto!!

[jerseyangel]

All this talk about the medical industry is disheartening. Putting limits on how long they will treat an illness? What the heck is that??? I'm afraid the days of treating a *person* are gone. If you don't fall into a clear-cut category, and if--God forbid--you are in a grey area or subclinical state, you're pretty much resigned to figuring it out for yourself. That is if you are so inclined and have the resources available. Truly, a sad state of affairs.

Carla, I'm glad then that you went to your meeting. It sounds like a real source of comfort for you The post-meeting latte sounds delightful

[AndreaB]

Would I be correct in assuming that the alternative doctors wouldn't be affected by this.

Do you think the md's gone more alternative would still be able to practice under the alternative/holistic approach?

[Fiddle-Faddle]

I love the 10 Commandments.

Me, too! Me, too!

I saw the most wonderful poster at a synagogue once. It said:

What part of "Thou shalt not" don't you understand?

All this talk about the medical industry is disheartening. Putting limits on how long they will treat an illness? What the heck is that???

Oh, they have been doing this for years, now--at least 8 by our experience.

When my son was diagnosed as autistic, and needed speech therapy and OT, we were covered for EIGHT sessions. That was it. I asked the insurance representative if they thought he was cured now. She refused to answer my question.

[CarlaB]

Would I be correct in assuming that the alternative doctors wouldn't be affected by this.

Do you think the md's gone more alternative would still be able to practice under the alternative/holistic approach?

I would think that any of them "could" still treat you ... it just wouldn't be covered by insurance. Of course, I think that it's the insurance companies now who dictate what diseases even exist, and I don't know that many docs would go against that.

[AndreaB]

I would think that any of them "could" still treat you ... it just wouldn't be covered by insurance. Of course, I think that it's the insurance companies now who dictate what diseases even exist, and I don't know that many docs would go against that.

The doctor that I'm seeing for our intolerances isn't covered by our insurance. I'd cancel if it I didn't think of it like car insurance. We don't have the money to pay out of pocket either and we aren't really sick.

Yes Patti, it is quite disheartening. My church organization has tons of doctors. I would have to hope that those who believe in God or a higher being than themselves would be open to sliding fees if it came down to that. They need to live yes, but so do many others who can't afford quality health care. I would also guess that those who got into the practice to help people would do everything they could to help them.

Maybe I'm still being idealistic instead of realistic.

[jerseyangel]

I agree that the alternative doctors wouldn't be affected by this--the ones I've had experience with have never been coverd by my insurance anyway, so I've paid out of pocket.

Naturopathic doctors are not even able to be licensed in New Jersey, so the insurance companies wouldn't have any say there. That's not the case everywhere.

As far as an MD who incorporates alternative medicine, I don't know. I suppose it would depend on your coverage or if you were paying it yourself.

Yep--looks like everything comes down to the bottom line.

[AndreaB]

I think my little guy is teething. He had a really bad night last night and is now running a low grade fever. He only has 3 teeth so far. He seems to have more trouble with teething than my other two did.

[jerseyangel]

I think my little guy is teething. He had a really bad night last night and is now running a low grade fever. He only has 3 teeth so far. He seems to have more trouble with teething than my other two did.

Teething can be so rough. I hope it dosen't last too long.

[CarlaB]

I just got off the phone with my friend who was just diagnosed with Lyme Disease. She had taken her daughter to a pediatric Lyme specialist in Conn. because she wash having major health issues and they had found a tick on her. The doctor said that one tick bite that recently could not have caused the level of disease that she had and started asking my friend questions about her own health, which has been bad since she was in HS. The doctor said he thought the daughter got the Lyme in utero from the mother and that she needed to see a specialist in NY. This specialist diagnosed my friend before the blood test, but used Igenex ... the results aren't back yet, but he's positive she has it. She wasn't home, but when she gets home she's going to give me this guy's number. Looks like I finally get to go to NYC! I have a friend up there, and the doc is about an hour north.

What a funny/strange coincedence. We've been sharing the same health issues for years ...

[AndreaB]

Wow Carla! If that isn't providence that you two would talk about this today.

Keep us posted.

[CarlaB]

Wow Carla! If that isn't providence that you two would talk about this today.

Keep us posted.

It's definately providence that we've been dealing with this side by side for four years ... but today -- I called her to talk about it.

[jerseyangel]

Wow Carla, that's amazing!

[DingoGirl]

When my son was diagnosed as autistic, and needed speech therapy and OT, we were covered for EIGHT sessions. That was it. I asked the insurance representative if they thought he was cured now. She refused to answer my question.

Allison I don't know whether to make the angry face or the cackling face because I am both furious and astonished and lauging at the lunacy of it all at once......and I am glad you said that to her, you sassy gal

I would think that any of them "could" still treat you ... it just wouldn't be covered by insurance. Of course, I think that it's the insurance companies now who dictate what diseases even exist, and I don't know that many docs would go against that.

this gives me fits and makes me want to HURT them!!!

Carla - amazing! So when are you going? Also your church meeting this morning sounds great. glad you have them.

Andrea.....I can't relate to the whole teething thing since I was too young to remember when I had it but I do hope you and Seth and everybody in your house gets lots of sleep tonight. Poor little guy....

[happygirl]

v

[CarlaB]

Carla - amazing! So when are you going? Also your church meeting this morning sounds great. glad you have them.

She just called me back with the doctor's name and number. I tried calling but they're already closed. She said she had a six week wait, so I guess that means it will be January. I have a friend from high school who lives in NYC, so I'll try to coordinate with her so we can visit while I'm there ... she travels extensively for work.

We'll be anxious to hear!!

[rinne]

Rinne,

Have you got your results from Igenix yet? Soon?

I have a phone consult with Hoffman on the 21st assuming they are back by then.

I hope the teething doesn't last too long.

I just got off the phone with my friend who was just diagnosed with Lyme Disease. She had taken her daughter to a pediatric Lyme specialist in Conn. because she wash having major health issues and they had found a tick on her. The doctor said that one tick bite that recently could not have caused the level of disease that she had and started asking my friend questions about her own health, which has been bad since she was in HS. The doctor said he thought the daughter got the Lyme in utero from the mother and that she needed to see a specialist in NY. This specialist diagnosed my friend before the blood test, but used Igenex ... the results aren't back yet, but he's positive she has it. She wasn't home, but when she gets home she's going to give me this guy's number. Looks like I finally get to go to NYC! I have a friend up there, and the doc is about an hour north.

What a funny/strange coincedence. We've been sharing the same health issues for years ...

Lyme Clan.

[Green12]

These should be the 10 commandments of Rachelville!! All in favor???

These are great Rachel!!!! I am totally in favor

My personal favorites....#1...2...3....5 and 9.....these apply most in my life since I got sick.

#1 2 and 5 make me want to get violent.

Julie...this is when I would need my punching bag!