Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something

Rachel--24

Recommended Posts

happygirl Collaborator
happygirl
Posted

x

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 33.4k
  • Created
  • Last Reply
Rachel--24 Collaborator
Rachel--24
Posted
  • Author
A clean filter may help in both houses. It's something many people neglect to change regularly. Does cracking a window help at all? I try not to keep the house closed up too long. If the weather's nice at all, I try to open a window for a little while. In the winter the house is just closed up way too long! Sometimes I'll even open a window for a while when it's really cold out.

Carla, I read that when the house is closed up and heaters are going..the indoor pollution level rises VERY high. :o Its far worse than the city air outside.

OK...I'm REALLY going to the mailbox this time..... :lol:

Green12 Enthusiast
Green12
Posted
You really should choose a Lyme dr by talking to several HAPPY SATISFIED CUSTOMERS first. I have an "official" list of drs. He's not on it. His website sounds good, but I caution you to find several happy patients of his before spending money on it.

Just my 2 cents worth. I have 6 yrs of experience in referring people to LLMD's.

Hi Lymetoo :)

Any doctors on your list in the Colorado area by chance??

happygirl Collaborator
happygirl
Posted

x

rinne Apprentice
rinne
Posted

I think you have a good point Lymetoo, I liked my doctor and he knew something of Lyme but just enough to be dangerous. :lol: The trouble is how do you find those happy patients when most people on the Lyme boards seem to be struggling to find doctors? I guess your list is the answer to that. Thanks for your help. :)

cheryl50 Newbie
cheryl50
Posted

Hi Rachel,

Ray changed the heater filter and closed the vent to your room. Hopefully it is safe for you now.

Good idea. Go to the mail box.

Love,

Mom

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
Hi Rachel,

Ray changed the heater filter and closed the vent to your room. Hopefully it is safe for you now.

Good idea. Go to the mail box.

Love,

Mom

Thanks Mom. :)

I went to the mailbox.....there was nothing from Igenix. :(

Maybe the holidays have caused a delay. <sigh>

Gotta wait till next weekend. Then I see my Dr. on Monday the 4th.

I think you have a good point Lymetoo, I liked my doctor and he knew something of Lyme but just enough to be dangerous. :lol:

:lol::lol:

Rinne....luckily you are smarter than him. ;)

If anyone wants the list of LLMD's let me know. Lymetoo pm'd me the list.....you can also find it on the LymeNet message board. You can get recommendations for an LLMD in your area from the members of that board but nothing will be shared openly on the board. They protect the identity of the LLMD's because of all the politics surrounding Lyme. I imagine its worse now that they've passed this new law about the antibiotics.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


happygirl Collaborator
happygirl
Posted

x

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
rachel,

please share about the new law?

thanks,

Laura

I posted about it after my last Dr. appt.

I'll try to find my post with a search.....since it was much fresher in my mind at the time. :rolleyes:

Rachel--24 Collaborator
Rachel--24
Posted
  • Author

Ok...going back is not so scary when you use the search feature. :)

I asked him why so much controversy surrounding Lyme??? He said it all comes down to politics. Half of the medical community is still saying that "chronic Lyme" does not exsist....the other half (who he likes to call the more "intelligent" half :) ) are aware of the fact that Lyme Disease is a long term disease that requires more than 2-3 weeks of antibiotics. He said that unfortuately people like me are suffering and going undiagnosed and untreated for years. He said if the whole medical community were to acknowlege Lyme Disease for what it truelly is...the insurance companies would not be able to cope. If every person were diagnosed and able to recieve antibiotic treatment the numbers would be staggering and the costs for longterm treatment for all Lyme patients would exceed what the insurance companies can handle. So instead....they bury their heads in the sand and ignore Lyme Disease.

Even worse....he said that just last week they have made it law...that no Dr. shall treat a Lyme patient for more than 3 weeks with antibiotics. :o

This cannot be good for the future of those who have Lyme. :angry:

I know that this is something that has been going on for quite some time now....the controversy of Lyme Disease. I've noticed that on the Lyme boards they DO NOT post the names of their Dr.'s....to protect them...because these Dr.'s are treating Lyme Disease as a chronic illness and can suffer the scrutiny of the medical profession if they are "found out".

How scary is that?? :unsure:

So I dont know what will happen now.....with this new law. I dont know if my Dr. is only going to treat me with 3 weeks antibiotics or if he will go beyond that. He said as of right now it is not a felony to do so.....but it is VERY VERY frowned upon.

The controversy surrounding Lyme is also a large part of what the documentary "Under Our Skin" will be about. They are half-way through production but need more funding to complete the film.

happygirl Collaborator
happygirl
Posted

x

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
wow that is terrifying. :(

Yeah....it all comes down to the insurance companies not wanting to pay for the massive amounts of antibiotics that would be needed if Dr.'s were allowed to treat Lyme Disease as it *should* be treated.....long-term.

WildCondor talked about this in her story as well.

miamia Rookie
miamia
Posted
Thanks Mom. :)

I went to the mailbox.....there was nothing from Igenix. :(

Maybe the holidays have caused a delay. <sigh>

Gotta wait till next weekend. Then I see my Dr. on Monday the 4th.

:lol::lol:

Rinne....luckily you are smarter than him. ;)

If anyone wants the list of LLMD's let me know. Lymetoo pm'd me the list.....you can also find it on the LymeNet message board. You can get recommendations for an LLMD in your area from the members of that board but nothing will be shared openly on the board. They protect the identity of the LLMD's because of all the politics surrounding Lyme. I imagine its worse now that they've passed this new law about the antibiotics.

Rachel-

I woudl love it if you could send me the list

Miamia

happygirl Collaborator
happygirl
Posted

x

miamia Rookie
miamia
Posted
M-I have it and I'll send it to you. It is not all-inclusive but it would be a great start. xo

thanks laura-

that would be great. From everything it souds like about lyme no matter what my tests show i think it would be good to contact someone whos specialty is Lyme.

I have to go in tomorrow to get all the blood work done- at 2 different labs which is a drag but at least I will hopefully get it done and be a step closer to finding something out

Miamia

miamia Rookie
miamia
Posted

Laura-

3 of them are in my area- I just googled them- all seem reputable and really different in their approaches. I'll have to do some more research.

Rachel-

the heater thing- I have been feeling the same thing since the heater has come on I definitly feel affected by it -

Green12 Enthusiast
Green12
Posted

I would like the list as well, or at least anyone who is in my state.

Thanks :)

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
Rachel-

the heater thing- I have been feeling the same thing since the heater has come on I definitly feel affected by it -

Winter sucks. :angry:

I've always said I feel way worse in the winter....now I know why! I normally BLAST the heater all winter because I hate being cold. I'm realizing that the more you eliminate things that are bothersome in your diet and environment....the more obvious the things that are still there become. Its VERY obvious to me right now that the heater is affecting me. :angry:

In the past I would have blamed it on my food....but its not my food. Still eating the same 5 things.....no change there. :rolleyes:

miamia Rookie
miamia
Posted
I would like the list as well, or at least anyone who is in my state.

Thanks :)

julie-

i just sent it to you

CarlaB Enthusiast
CarlaB
Posted

Laura, is the doctor I emailed you on the list? Will you please email me the list? Maybe there's someone closer to me.

Rachel, I always feel better if I just wear a lot of clothes and wrap up in a blanket. I feel like I'm suffocating when it's warm inside in the winter. It's like there's no oxegen in the air when it's warm inside. I don't like it reallly cold, but 67-69 is what it's usually set on. And I'm usually freezing, but drink hot things and wear sweatshirts and Ugg slippers all the time.

happygirl Collaborator
happygirl
Posted

x

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
julie-

i just sent it to you

me too.....sorry...I'm a little slow. :rolleyes:

DingoGirl Enthusiast
DingoGirl
Posted
Hi Rachel,

Ray changed the heater filter and closed the vent to your room. Hopefully it is safe for you now.

Good idea. Go to the mail box.

Love,

Mom

:lol::lol: Hi Cheryl! OMG, this just cracked me up, Rachel's mom posting about the filter. :lol::lol::lol: And the gentle nudge to go to the mailbox. thanks for the laugh! :P

happygirl Collaborator
happygirl
Posted

susan----i love your new avatar, by the way :)

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
And the gentle nudge to go to the mailbox. thanks for the laugh! :P

:lol::lol:

ROFL....you noticed that too huh. :ph34r:

She will be pleased....tomorrow I will bring to her....MAIL. :lol:

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Di Wallace's topic in Related Issues & Disorders
      1

      Mucus discharge

      We usually see mucus in the stool in those with undiagnosed celiac disease and those not adhering to a gluten free diet. However, the mucus could also be coming from lower down in the intestinal track. I would seek a physician consult. You might also check into getting a follow-p endoscopy/biopsy on the small bowel to check for healing progress since going...
    2. trents
      - trents replied to ARSTONE's topic in Gluten-Free Foods, Products, Shopping & Medications
      4

      Feel Good gluten free chicken soup dumplings

      @ARSTONE, not to be picky because there has been evolution in the terminology with regard to gluten disorders. And the terms "gluten intolerance" and "gluten sensitivity" are still used by some interchangeably. But with time, "gluten intolerance" has become synonymous with celiac disease with "gluten sensitivity" referring to NCGS (Non Celiac Gluten Sensitivity...
    3. knitty kitty
      - knitty kitty replied to Leslie Clark's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Hidden Gluten in distilled vinegar

      @Manaan2, You may want to consider switching from Miralax (polyethylene glycol) to magnesium citrate and Thiamine supplements. When I was prescribed Miralax for constipation, I developed worsened gastrointestinal problems, including worsening leaky gut syndrome. Since polyethylene glycol is a synthetic chemical made from petroleum or coal byproducts...
    4. Di Wallace
      - Di Wallace posted a topic in Related Issues & Disorders
      1

      Mucus discharge

      I don't know if anyone can help. I was diagnosed with celiac last June. Since going gluten free the diarrhea has stopped, in fact things have gone the other way. What is bothering me is the occasional rectal mucus discharge. I have no other symptoms and it doesn't happen very often. As I haven't seen anyone since my diagnosis, I don't know if this is normal...
    5. ARSTONE
      - ARSTONE replied to ARSTONE's topic in Gluten-Free Foods, Products, Shopping & Medications
      4

      Feel Good gluten free chicken soup dumplings

      The issue is I'm not actually celiac but gluten intolerant. So do t know why I am so sick from this. It's been two days.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,824
    • Most Online (within 30 mins)
      7,748
    Maciek
    Newest Member
    Maciek
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Mucus discharge

      By trents · Posted

      We usually see mucus in the stool in those with undiagnosed celiac disease and those not adhering to a gluten free diet. However, the mucus could also be coming from lower down in the intestinal track. I would seek a physician consult. You might also check into getting a follow-p endoscopy/biopsy on the small bowel to check for healing progress since going gluten free.
    • trents
      Feel Good gluten free chicken soup dumplings

      By trents · Posted

      @ARSTONE, not to be picky because there has been evolution in the terminology with regard to gluten disorders. And the terms "gluten intolerance" and "gluten sensitivity" are still used by some interchangeably. But with time, "gluten intolerance" has become synonymous with celiac disease with "gluten sensitivity" referring to NCGS (Non Celiac Gluten Sensitivity). Having said that, whatever it may be, apparently there is an ingredient in that product that doesn't agree with you.
    • knitty kitty
      Hidden Gluten in distilled vinegar

      By knitty kitty · Posted

      @Manaan2, You may want to consider switching from Miralax (polyethylene glycol) to magnesium citrate and Thiamine supplements.   When I was prescribed Miralax for constipation, I developed worsened gastrointestinal problems, including worsening leaky gut syndrome.  Since polyethylene glycol is a synthetic chemical made from petroleum or coal byproducts, I was uncomfortable with that.   Miralax can cause poor vitamin absorption, flushing vitamins and minerals away before they can be absorbed.  Miralax can cause electrolyte imbalances, meaning low magnesium.  Low magnesium levels can cause constipation.  Low Thiamine Vitamin B1 can cause constipation as well.  Magnesium and Thiamine work together to make life sustaining enzymes.  Without sufficient thiamine and magnesium, the gastrointestinal tract slows down resulting in constipation, a sort of catch twenty-two.   I quit taking Miralax.  I took a form of Thiamine, Benfotiamine 250-300 mg, at the beginning of every meal and 200mg magnesium citrate or magnesium glycinate or magnesium l-threonate (Neuromag) at the end of every meal.  My constipation resolved quickly.  When my stool got too loose, I simply reduced the amount of magnesium.  I did not reduce Benfotiamine which has been shown to promote intestinal health and reduce leaky gut syndrome.  If thiamine at night gives too much energy to fall asleep at night, skip the Benfotiamine at the last evening meal. Blood tests ate not accurate measures of vitamin sufficiency.  The best way to check for Thiamine insufficiency is to take it and look for health improvement within a few days.  Thiamine is water soluble, easily excreted in urine if not needed.  Thiamine is safe and nontoxic when used in high doses.  No harm in trying, just to rule this out.   Best wishes.  Do keep us posted on your daughter's progress!
    • Di Wallace
      Mucus discharge

      By Di Wallace · Posted

      I don't know if anyone can help. I was diagnosed with celiac last June. Since going gluten free the diarrhea has stopped, in fact things have gone the other way. What is bothering me is the occasional rectal mucus discharge. I have no other symptoms and it doesn't happen very often. As I haven't seen anyone since my diagnosis, I don't know if this is normal or not
    • ARSTONE
      Feel Good gluten free chicken soup dumplings

      By ARSTONE · Posted

      The issue is I'm not actually celiac but gluten intolerant. So do t know why I am so sick from this. It's been two days. 
×
×
  • Create New...