Omg...i Might Be On To Something

[Rachel--24]

Is it possible to have a 'naturally' low temp or does it indicate there must be something wrong?

My guess is that if you're not feeling well and having symptoms then there is probably something going on...the low body temp. could be an idication of that.

I know people live with annoying symptoms everyday...people take diferent meds for different things. Stuff for sinus headaches, stuff for diarreah (Patti...thats how you spell it....it took me forever to learn that word ), stuff for acid reflux, stuff for gas, etc, etc.

My belief is that when there is a symptom....its our bodies way of telling us that something isnt right. As Patti said....alot of people dont listen to their bodies....I think its important though. These subtle signs mean something. If nothing was wrong we wouldnt have symptoms....the body is designed to work....if something isnt working....we get symptoms.

The hard part is figuring out what is broken and why???

[Rachel--24]

And I have to hit "next" to get to my favorite smiley=

Patti...you dont have to hit "next".....theres a little drop down for smileys right above the text box...it actually makes it easier.....except they are shuffled around......not good for my brain. I mostly function from habit.....this messes me up.

About the friends thing...what does it do???

Also why are there little "people" above our avatars?? What the heck is that all about....if the person is in color does that mean they are online???

[CarlaB]

diarreah (Patti...thats how you spell it

Actually, it's "diarrhea"

[DingoGirl]

Patti...you dont have to hit "next".....theres a little drop down for smileys right above the text box...it actually makes it easier.....except they are shuffled around......not good for my brain. I mostly function from habit.....this messes me up.

About the friends thing...what does it do???

Also why are there little "people" above our avatars?? What the heck is that all about....if the person is in color does that mean they are online???

oh I don't like this at all no no no no no, do not like this, the emoticons - you have to bring the thing down each time you want to put one in instead of just clicking and clicking......

am scared......confused.......and why are there friends....someone I"ve never heard of asked me to be his/her friend.....

hold me......

[AndreaB]

diarreah (Patti...thats how you spell it....

Carla already said this....but my spell checker says it's Diarrhea.

[AndreaB]

About the friends thing...what does it do???

Also why are there little "people" above our avatars?? What the heck is that all about....if the person is in color does that mean they are online???

Just says who your friends are I think. D/S has friends too but they send you an email when said friend updates their journal. Not sure what this friends does.

The "people" tell us whether that person is online. On your profile page it also has something where you can choose your gender.....if you choose to.

oh I don't like this at all no no no no no, do not like this, the emoticons - you have to bring the thing down each time you want to put one in instead of just clicking and clicking......

am scared......confused.......and why are there friends....someone I"ve never heard of asked me to be his/her friend.....

I haven't tried more than one emoticon and a time before.

Ok here goes.....more than one. That was the pull down menu.

That was the emoticons next to the reply pad. You just click, click, click on that one.

New friend......are you sure it's not Cecile? Pm me the user name.

[CarlaB]

I just thought of something very interesting in light of my Lyme diagnosis ... when I was pregnant with Sadie, I could hardly get out of bed for the first 5 months. I finally decided I was dehydrated as I was always thirsty and water seemed to go right through me without satisfying my thirst at all. I was drinking tons of it. So, I looked up dehydration on the internet. It said that you add 7 tsp. of sugar and 1 tsp. of salt to each quart of water. Now I was getting at least 2, but usually 3 tsps. of salt each day. I felt better from the first day of it.

I thought that was interesting considering the salt/vitamin c treatment for Lyme.

[Rachel--24]

I found your food reactions to be very similar to mine. The rice, specifically Tinkyada--I get the same thing, along with cramping and loose stools. I also do not eat any cereals, as I have spent tons of money on ones that don't agree with me.

Patti....I did some reading about mycotoxins and molds (is anyone surprised? )....I actually thought of you when I was reading some of this stuff. I know alot of our food intolerances are similar.

I'm not too excited about any of this because I absolutely HATE candida. I dont know why.....and I know its not as serious as Lyme but I hate candida much more than I hate Lyme.

I totally need a seperate punching bag just for Candida....I would beat that thing to a pulp!

Ok first....a list of the top 10 foods containing mycotoxins.

1. Alcoholic beverages

Alcohol is the mycotoxin of the Saccharomyces yeast--brewer

[Rachel--24]

Carla already said this....but my spell checker says it's Diarrhea.

And I knew this too!!! See......that darned word mixes me up all the time. Sometimes I spell it...Diarreah and other times its diarrhea and then I forget which one is correct.

Sooo much easier (and less embarrasing) for everyone to just use "d".

[Rachel--24]

On your profile page it also has something where you can choose your gender.....if you choose to.

Ummm...why would I want to be anything other than what I am.....which is female??

Should I choose this....in case people cant tell by my name and my pic???

Oh....and nobody has pm'd me wanting to be friends yet.

[Rachel--24]

Why is the thread too wide now??? All the pages are too wide now.....is it just me???

[CarlaB]

Okay, Rachel, I added you as a friend, but it didn't seem to ask you ... or did it? I wonder what that feature is for????

Interesting scientificness. I have known that I am allergic to mold in foods ... I didn't realize it was in so many.

Alcohol DEFINATELY has a bad effect on me. I was "hungover" for two days, and I never even got "drunk", what's with THAT??? Honey makes me break out in hives ... I always thought that was funny.

The only thing I really consume on that list is sugar and some, but very little, corn. I mostly avoid corn ... popcorn makes me puff up, but I eat it once in a while. I don't have a sweet tooth, but in things like the eggnog latte I had today, there is sugar. I drank it for the calories ... had my braces tightened yesterday and can't eat. With the Lyme causing me to have NO APPETITE it's a really bad combination. Adam quizzes me often on what I've eaten, so I make myself eat ...

[Rachel--24]

Okay, Rachel, I added you as a friend, but it didn't seem to ask you ... or did it? I wonder what that feature is for????

Nope....it didnt ask me anything. It doesnt want me to have friends.

Maybe this new feature was created by my ex???

Carla, when I was healthy I could drink alcohol all night long and never woke up with a hangover. Now...half of a drink will mess me up pretty good for a few days.

[georgie]

Hello everyone smile.gif I've never posted on this thread before but have been following the last few pages with great interest. My problems are ongoing too, but I don't think anywhere near as extreme as some of you. There was discussion a few pages back about body temperature. Forgive me if my question has been covered before! For those of you who have probs with your temps being low, have you figured what's causing it + how to get it up? Is it possible to have a 'naturally' low temp or does it indicate there must be something wrong? My hypothyroidism is supposedly now under control according to the figures (yeah, I know that might not be indicative of the true situation, but I'm not going to get an NHS GP to go behind my test results), but my temp is still consistently low. Also, I find it very difficult to feel the right temperature, it just doesn't seem to want to be stable.

Hi Susie, Did you get that good Dr info I sent you re Thyroid. Low temp + symptoms can still mean low Thyroid despite your labs. Lots of confusion about this but from my Dr - "blood tests should not be taken as biblical'. Broda Barnes, Hertoghe, stopthethyroidmadness, yahoo groups. Plenty of info out there. How much is it to fly to Belgium ? Hertoghe is a great Dr.I know lots that fly from USA to see him. He is training 100s of Drs now around the world but its not fast enough if you are still Hypo and suffering.

I kept asking the endo. if it was normal to get horrible reactions for 2 weeks everytime I increased my dose. I would be in so much pain, depressed, reactive, etc. He would always look at me like he had NO CLUE what the heck I was talking about. He would say..."No.....its not normal..

Actually this is quite a common reaction to Thyroid meds. It can indicate adrenal insufficency. Treatment is by HydroCortisone. There are glandulars out there but most people report that they don't get the right effect from them. Once the adrenal healing happens then you can wean off. Testing by saliva tests - to see if you are AI. Its very common with Hypo.

Open Original Shared Link shows how to track temps so that you can track Hypo, and track adrenal insufficiency.

The salt/ Vit C treatment for Lyne is interesting. Its also a treatment for Adrenal Insufficiency. Celtic Sea Salt - not ordinary salt.

[CarlaB]

Nope....it didnt ask me anything. It doesnt want me to have friends.

Maybe this new feature was created by my ex???

Carla, when I was healthy I could drink alcohol all night long and never woke up with a hangover. Now...half of a drink will mess me up pretty good for a few days.

MY friends say that you are my friend. You are my only friend though. I'll have to add other later! LOL

I NEVER could tolerate alcohol well overall. Sometimes I can tolerate one or two drinks, other times one or two drinks will keep me up all night and make me sick for two days. Now I know why, of course.

Back in college I could drink rum and tequila with no problems. Even relatively recently I have (but only one or two). I've had a glass of red wine (Thanksgiving) with no problem.

But it ALWAYS makes me have insomnia. I seldom drink ... never now that I know what the problem is!! I've never known why I'm so sensitive to it. One time I had two icy drinks out at the pool in Florida from the hotel bar ... OMGOSH!! I was so ILL!!! I never made it out to dinner that night! It was so embarassing, all the kids were there!! I used it as a learning moment ... see, kids, alcohol makes you sick, you shouldn't drink it!!

[Rachel--24]

Actually this is quite a common reaction to Thyroid meds. It can indicate adrenal insufficency. Treatment is by HydroCortisone. There are glandulars out there but most people report that they don't get the right effect from them. Once the adrenal healing happens then you can wean off. Testing by saliva tests - to see if you are AI. Its very common with Hypo.

Actually its not really common to feel more Hypo when increasing your dose....its not logical and noone on the thyroid board seemed to be experiencing the same problems.

Also my T3 was close to 400 (referance range 70-200)....My TSH was very low and showing very Hyper. I was having heart palps and shaky hands but was still cold with all the same symptoms.

It wasnt my thyroid causing those Hypo symtpoms. Whenever I increased my dose I was getting burning sensations all over my skin, worse chemical sensitivities, worse food allergies, burning eyes and tongue, etc.

I couldnt find anyone on the thyroid boards getting these symptoms when they increased their meds. This is not an issue of Hypothyroidism. I had those same symptoms no matter how low or high my TSH was.

I'm happy to keep my TSH in the low normal range (under 1.0) and I dont think I need to foucs on my thyroid when I obviously have many other things going on.

Its kind of like this....if many things are wrong with a car and it isnt running very well....would you just put gas in the car and expect everything else is gonna improve??? I can increase my thyroid meds by 10 and I can support my adrenals but it would be pretty pointless when these things arent functioning right for *other* reasons. Those reasons need to be addressed first.

I would be more concerned if my labs showed Hypo or were unstable....but thats not the case for me.

[rinne]

Also with co-infections and at least 300 different strains of Lyme bacteria...you dont know from the start which antibiotic is gonna be most effective.

This is a point that concerns me and seems to emphasize the importance of a LLMD. I've read that different coinfections have different symptoms.

Susie x

PS does Rachelville need a lawyer, or is that a rude word round here?! lol

Welcome Susie, we have a history of claiming the jobs we want so feel free to lawyer away unless there is something else you would rather do.

oh I don't like this at all no no no no no, do not like this, the emoticons - you have to bring the thing down each time you want to put one in instead of just clicking and clicking......

am scared......confused.......and why are there friends....someone I"ve never heard of asked me to be his/her friend.....

hold me......

Reading along, thanks for all the scientificness Rachel.

Hello to everyone.

[DingoGirl]

RACHEL

THE TRIUMPH CARDS ARRIVED TODAY!!!!!!!!!!!!

thanks, pal. (er, should we thank Cheryl? ) I am so happy to have received them, thank you SO much for your generosity, I hope to use t hem soon!!!

Carla already said this....but my spell checker says it's Diarrhea.

yup, it's D-I-A-R-R-H-E-A.

Oh....and nobody has pm'd me wanting to be friends yet.

okay, to clarify, they don't really ask you to be their friends....they just put you on there. Um, is there a reason we need a friends list?

Rachel excellent scientificness.

Hi to everyone! gotta go eat.

Again, Rach, thanks for the cards.......formal note to arrive later.

[georgie]

No Probs Rachel, But just want to point it out for the others here too.

Actually its not really common to feel more Hypo when increasing your dose....its not logical and noone on the thyroid board seemed to be experiencing the same problems.

I am not sure what boards you were on but know that from the 5 I am on - that it happens a lot. We are prob talking of 1000s. Hertoghe always suspects and treats adrenals. But many Endos don't - hence the problems.

Also my T3 was close to 400 (referance range 70-200)....My TSH was very low and showing very Hyper. I was having heart palps and shaky hands but was still cold with all the same symptoms.

Seem to recall that wasn't a Free T3 test ? TSH is a pituitary hormone .... Its not really used when you have autoimmune thyroid. Its meaningless. Mine is 0.01 I think at the moment ! My Free T3 is 4.0 over range. I am not hyper. I am nearly not hypo either. Just to show how Armour is used. I am NOT saying run away from your Dr and ignore labs. I am saying - its a total picture.

The Lyme and herxing is intiguing. It could well mean something. Its possible that you had a shakeup when you changed meds. Antibiotics have always upset my hubbie. Now ...thinking ..wondering. BUT he has adrenal insufficency ( by labs and symptoms ) and will treat that first. One of the treatments along with meds - is sea salt & Vit C. So he may cure them both at once !

[Rachel--24]

thanks, pal. (er, should we thank Cheryl? ) I am so happy to have received them, thank you SO much for your generosity, I hope to use t hem soon!!!

Susan...YAY...I'm glad they finally arrived.

Yeah....you can thank my mom for that.

I had it ready to go weeks ago.....but...then there was the mailbox to deal with.

I was paying my bills in this same timely fashion.

[Fiddle-Faddle]

Actually its not really common to feel more Hypo when increasing your dose....its not logical and noone on the thyroid board seemed to be experiencing the same problems.

I had a lot of problems last winter where even though I was taking the same dosage of synthroid (from the same batch, even), I kept having these drastic swings between feeling hyperthyroid and hypo. One week I would have all the symptoms, of hypo, the next, hyper. And then I had a couple of months of hyper, but my bloodwork checked out as normal. My endo agreed to lower my dose, and I felt better, but then my bloodwork was off. We raised my dosage again, and I have felt fine as far as I know (and that was right about when I went off gluten), but I still can't figure out what was going on.

This new setup is weird, by the way.

[georgie]

I can't work out these buttons either They even moved the smilies !

Synthroid does that a lot. Before the internet and these opportunities to chat and research - most people didn't have a clue that nearly everyone else was having the same problems. Before Synthroid there was something that used to work beautifully. Armour. Then a rumour was spread that it was unstable. Then Drs wanted to use the new synthetic Synthroid as it was 'more stable'. Armour became 'old fashioned'. Drs told their patients it was difficult to regulate and unstable.

We don't know where this rumour started but we all have our suspicions. By 1970 the hoax had been exposed but by then the Synthroid ball was rolling and there was no stopping it. Research from old text books, and medical books and there appears to be a faulty batch of Armour in 1964. ONE batch. Its possible then to see the literature change opinion. But one faulty batch would not fuel that hoax. Someone else did that ....Huge profits have been made.

And so many people have suffered.

[Rachel--24]

Ok....the rest of my Bioset appt.

My mom went with me and got to meet my fav. Bioset lady. My mom asked her what is happening in the treatment room when I'm lying there with the "bad" stuff. The lady went into full scientifness about Bioset. I was having brainfog but tried to concentrate really hard....it was all very interesting but it didnt quite make it into my memory bank.

So she said that with me having so many problems its like an onion with many layers (how many times have we heard this analogy ). She said that if the onion were bruised you may have to peel back many many layers until the bruise is no longer there.

After peeling back some layers there may be no noticeable change or difference but eventually something will start to change and things will start improving as more and more layers are removed.

She said she cant put percentages on all of my problems and know which ones are having the biggest impact on my health. We just have to continue peeling back layers. She said some things we do may have no noticeable affect...she said when this happens....it tells her that these things arent the biggest problems. She said they may account for a small percentage of my problems....not enough to see a drastic change or any change at all.

One thing could be causing up to 80 - 90% of my problems. She said it could be the candida/mycotoxins.....it could be Lyme...we just dont know yet.

She said stuff *is* happening when we do the treatments whether I notice it or not. She said last week she had a girl who did not clear a particular food in her treatment....it didnt clear and the girl started breaking out in a rash all over her neck and face and they had to hurry and get her back into the room until the food got cleared.

Last night was actually my first experience with "feeling" something happening. It wasnt anything pleasant. I was holding 2 glasses full of mycotoxins that apparantly weaken my immune system pretty badly. Next thing I know I started feeling a symptom that I havent experienced in quite some time. I wont go into detail but it was a "yeasty" type sensation.

I was in the treatment room longer than normal....usually its like 14 minutes....last night she had me stay for like 25 minutes. After the treatment she checked to make sure everything cleared.

When we were doing the testing she checked to see what systems in my body were being affected by these mycotoxins. Some of the things that were being affected were my brain, hormones, joints, parathyroid, adrenals, heart, lymph system and a bunch more.

So with everything showing up and so many systems being affected....even my joints...she said that this could be "mimicking" Lyme.

Like I said earlier today...my joints and brain fog and everything else seem to be directly affected by what I eat.

Candida produces mycotoxins and my body just isnt dealing with these toxins very well at all....she said I will react just as badly to candida die-off. Die-off, herxes, whatever you wanna call it...I'm not gonna do well with the toxins released.

I asked her if she thinks I definately have Lyme. She said that I've definately been exposed to Lyme but it doesnt mean that all of these symptoms are related or caused by Lyme. She said you can get exposed to Lyme and yet never get sick from it. She said you can be born with Lyme and live with it forever and not get sick from it. She said there is much evidence that the immune system can keep the bacteria in check...it can keep it from wreaking havoc.

She said a person can be born with it and go on symptom free and then maybe get into a car accident later in life and injure their neck or shoulder or something. All of a sudden they have alot of problems...the immune system was unable to keep the Lyme in check and now they are sick.

She doesnt know how much the Lyme is contributing in my case....it might not even be a problem for me. She cant say that I have an "active" lyme infection for sure. This *does* give me a little hope....I'd rather be dealing with mercury and candida than those 2 PLUS Lyme.

I have to get a more clear picture before I accept the Lyme diagnosis and make treatment decisions. I decided that it wouldnt be a good idea to do the antiobiotic challenge given all that I learned last night about the candida/mycotoxins. I'm just gonna get on the Samento and see what happens.....maybe retake the WB's later on or something.

At the beginning of my appt I told the lady that I'm just doomed to never get better....that I'm just gonna stay this way.

She said "Not in my clinic.....you're not gonna be my first."

She said she wont let that happen...she seems pretty determined and confident. Its always a *good* thing when they dont mind a challenge.

She said she has like 5 other patients right now who are like me....with this serious candida/mycotoxin stuff. She said the thing that amazes her is how differently we are all affected. She could never *guess* that we all have the same stuff going on.

She said she feels that I'm very disciplined so I'll be able to make it through this and get better.

I cant wait to get my test results back and see what she gets out of them.

[AndreaB]

Ummm...why would I want to be anything other than what I am.....which is female??

Should I choose this....in case people cant tell by my name and my pic???

Oh....and nobody has pm'd me wanting to be friends yet.

Maybe you better put up a pic that doesn't show you close up.....like jetskiing. Then we'll have to figure out what to do about your name.

BTW....you were the first person I added as a friend (this morning). I've added all the regular posters on here (I think).

Wow on your mile long post. I dont' know how you do it. I copied every quote over. Lots of good info in there.

[AndreaB]

I cant wait to get my test results back and see what she gets out of them.

Put me on the can't wait list.