Omg...i Might Be On To Something

[diamondheart]

When the GI came in to my hospital room with my dx he spent all of 10 minutes saying what he had found and his treatment advice to me was two words "Avoid gluten" and with that, he left the room!

Jerk

Question: Is this bioset that some of you go to, is that a lab or what is it exactly?We have naturopathic doctors here that kind of do some of that testing...do you think that is the same thing? I was planning on making an appointment with one of them but after reading what you all wrote, especially Rachel, I'm going to call tomorrow and get an appointment ASAP.

Hi Lauralee,

Someone may have already answered your question about BioSET, but I haven't had time to read everyone's responses. BioSET is a treatment that was developed by a woman in California to treat allergies mainly. I looked to see if there were any BioSET practitioners in Canada, but I didn't see any listed on the Open Original Shared Link. I didn't find much useful on the webpage except for the practitioner list. Maybe there is a contact on the website you can e-mail to find practitioners in Canada. I think seeing your local naturopathic doctor is a good start. If you can get recommendations, that good because not all alternative doctors are created equal either. I've tried several alternative doctors, and they all have their strengths and weaknesses too. Remember what I said about having a team of healers? It's kinda annoying, but that seems to be reality. It's not one-stop-shopping when it comes to your health.

Yeah, it's nice to find people to talk to that have similar problems so that you know you are not nuts! If you have leaky gut, there definitely could be other foods that could be causing you as much problems as gluten right now even if you do not have a true allergy to them. The nice thing about BioSET is that it reverses the immune reactions that leaky gut syndrome causes to foods.

I better get to bed as I was wiped out today.

Claire

[diamondheart]

Hi Rachel,

Your last post was interesting. I think it's good you are going on the drugs for the candida. Might as well whack it good! I also agree about the ice cream. I think our modern dairy is bad news for anyone, whether they tolerate it or not, but my dairy rant will have to wait for another day, as I really should be in bed right now!!

I also have been questioning the whole Enterolab testing. None of my tests came out positive for the stool antibodies, but I may be IgA deficient, so that would explain it. I'm also questioning the genetics. I wish Dr. Fine would publish his studies. There is only one other doctor, Dr. H with the long last name no one can pronounce, who has published studies linking DQ1 genes to gluten ataxia. I know there is some kind of genetic link for me concerning some diseases in my family (Sjogren's syndrome and Asperger's syndrome), but the diet link doesn't seem to be clear. I wish I understood more why gluten and dairy cause so much trouble. Some say it's because these are relatively "modern" foods, but I want to know more about how that actually works in the body. I suppose too that many of our truly modern wheat type foods are super gluten foods since wheat has been messed with genetically to get more gluten in it.

Anyways, till later...

Claire

[LL04]

Claire: Thanks for the info as well on bioSET. Rachel says her lady does go to Canada on occasion so she's going to find out where exactly the next time she gets treatment from her. This problem with doctors is so annoying but I guess when it comes to the medical profession, there are so many issues with the body that no one doctor could be an expert at them all. I just wish the people who are supposed to be "specialists" were actually that...by and large, they have been the worst of the doctors I've seen so far!!

Rachel: WOW I did read all of that post and in addition to believing that you are really on to something I am also really unnerved. I thought that if I got dx'd with Lyme that would solve all my problems. Take some antibiotics and recover, but it looks as though, from your experience and what you posted, that I could be at just the beginning of what looks like a VERY LONG, NEVERENDING road What you posted makes perfect sense to me! I can't believe that when it's all written down like that in black and white that it all looks so very straight forward and simple, but you've gotta know that if you took all that info into a thousand different doctor's offices, they'd all give you that look and send you for a psychiatric evaluation. Doctors are so far behind on this issue, they think they're first and in a few hundred years from now (if any of us still exist that is), the doctors will laugh at these guys, just the way these guys laugh at the doctors from the middle ages. I really hope you have finally found your answer.....

Question: Have any of you had your amalgams removed? I have a ton of them (another reason I know I had celiac disease as a child, I brushed religiously 2 a day, sometimes 3 AND flossed and still everytime I went to the dentist, I had a cavity. My front teeth are so low on enamel that they are see through and almost always have been) Anyways, I want to remove them, but I'm scared to. First of all, I LOVE my dentist (he has been the kindest, gentlest soul. Even my kids LOVE going to the dentist, unheard of in my generation) but I know he's not one of the dentists that sees anything wrong with putting amalgams in, so he's probably not versed in taking them out they way they say they should be. I wonder even what his reaction would be if I asked him if he could remove them...he may laugh! He's at retirement age. Also, most of the info I've read on it says you have to get blood testing done and be on supplements so that you can detox the mercury. Have I got that right? It says a doctor should be able to do this blood testing for you...every blood test my doctor ever does on me comes out normal...what would he think of this? Are most mainstream doctors on board with getting amalgams removed? Would he know what to test for and what to give me in the way of supplements? It sounds like a scary process and I could not bear the thought of becoming more sick than I already am??!! Is it as bad as it sounds?

[AndreaB]

Rachel,

I didn't read everything you posted of that article. Did read everything you wrote though. I don't have any answers. Probably more questions.

Claire,

Check out Open Original Shared Link

He has an article title the Answer with another section in that called "why is the plane of this nations health in a death spiral" (or something similar). He's got some interesting conclusions he's come up with from research he has done.

[Rachel--24]

Rachel,

I didn't read everything you posted of that article. Did read everything you wrote though. I don't have any answers. Probably more questions.

Andrea,

The most significant thing in that entire post was this...

Dr. Nieuwenhuizen, knowing the actual sequence of proteins which trigger celiac disease from the published work of other scientists, had searched the databases available to him through TNO to see if the same sequence existed in other places. It turns out the identical sequence of proteins occur in the cell walls of Candida albicans.

The fact that researchers are saying that the proteins in the cell wall of Candida Albicans are exactly the same as the sequence of proteins in gliadin. Sooooo....if this is true the immune system can still be launching an attack as if gluten were present.....even when its not.

If Candida can trigger the same chemical and immunological reactions as wheat gluten do we can imagine a number of interesting implications.

First, in people with celiac disease, symptoms usually get better rapidly when they eliminate gluten from their diet. This isn't always the case. Even without gluten some people continue to have symptoms. They may have intestinal Candidiasis. The Candida in their gut may be acting like gluten and continues triggering symptoms

I believe that this could definately be a cause for ongoing symptoms.....if candida and gluten have the exact same protein sequence that triggers an immune response....there is no doubt in my mind that the immune system can launch the same attack it would on gluten if candida albicans are present and attached to the intestinal wall.

[Rachel--24]

Also, most of the info I've read on it says you have to get blood testing done and be on supplements so that you can detox the mercury. Have I got that right? It says a doctor should be able to do this blood testing for you...every blood test my doctor ever does on me comes out normal...what would he think of this? Are most mainstream doctors on board with getting amalgams removed? Would he know what to test for and what to give me in the way of supplements? It sounds like a scary process and I could not bear the thought of becoming more sick than I already am??!! Is it as bad as it sounds?

Lauralee....I think amalgam removal was the event that triggered this whole mess for me. Because one of mine broke and my "mainstream" dentist who knows nothing about the dangers of mercury drilled it out along with one other amalgam filling. He didnt do anything to protect me from vapors....he didnt even use a dam to keep the particles from going down my throat. That was when I started getting sick.

Later on I had the remaining two amalgams removed by a mercury-free dentist. The fillings should NEVER be removed by a dentist who doesnt follow the protocol for safe amalgam removal.

I dont know about a blood test??? The only blood test I'm aware of is for compatability of new materials put in place of the amalgams. I had a bloodtest to make sure what the dentist used to replace my fillings was something that my body wouldnt react to.

No...mainstream dr.'s are not on board. The ones that I saw had no idea that mercury could even be harmful.

If you're seeing a dentist who knows the proper steps to take...then it can be done safely. These are usually biological dentists....not regular dentists. The guy I saw was GOOD....Donna is now seeing him and she is currently in the process of having hers removed. She can tell you more since she is in the middle of it and has alot more to remove then I did.

In my case he only removed 2 and it was done in the same day.

[Rachel--24]

I wish I understood more why gluten and dairy cause so much trouble. Some say it's because these are relatively "modern" foods, but I want to know more about how that actually works in the body.

Claire,

Have you read Dangerous Grains??? I highly recommend that book....it will answer some of these questions for you.

[dlp252]

Wow, Rachel I read that whole post, lol. My head is spinning, but I think I agree with it. I think I've had a problem with candida for many years, and only scratched the surface when I did my candida diet a couple of years ago. I wasn't on the diet nearly long enough and although my doctor prescribed Nystatin, I didn't take it nearly long enough I think.

I think I also need to start taking some of the natural antifungals again.

I saw Dr. Rick last night for a followup on the H.Pylori thing and the receptionist wanted to make sure I told him about my sore throat. He said unfortunately that the antibiotics they gave me for the H.Pylori aren't usually very effective for sinus/ear/throat infections, so he wants to treat my infections aggressively with supplements (didn't I tell ya so, lol).

Anyway, he gave me another probiotic to take and wants me to double up on the other one they were having me take (which I was doing because Anna said I should, lol). He also wants me to take 4mg of Vitamin C today. Yikes. I guess I'll be giving the salt/C therapy a whirl after all, lol. I'm a bit nervous about taking that much, and especially since the Bioset lady said I should only take 1 mg daily max.

Not quite sure what to do. I think I may try for the 4 mg today, but just not do it to many days. I don't want to take more antibiotics, so I'll give this a try I guess.

Anyway, I DID mention to him that I had a BioSET appointment, and asked if he'd heard of BioSET, which he said he had. I told him I just wanted to get some idea about foods, because I was unable to get to a place on the elimination diet where I wasn't having diarrhea. So this way, I have some base foods that fit on the elimination diet that also my body likes. He wants me to stick with those base foods because he says my body can't handle adding any more foods in right now. What my body needs is to reduce some of the burdens that are dragging it down. He wants me to get lots of rest, reduce some of the other burdens and not add any new burdens, lol.

Lauralee, yes, I'm in the process now of having my amalgams removed. I had 11 amalgams, almost all of which had been redrilled at least twice. My dentist is doing my mouth in "quadrants". I've had two done so far (back in November), I'm having the third quadrant done today and will probably have the fourth and final quadrant done in about two weeks. Each time I go in he does 2-3 teeth, so not a lot of fun, lol. I wasn't tested prior to the removal, but I think it was kind of obvious in my case that this was a big problem. The BioSET test I had done on Saturday confirmed that.

Anyway, the removal protocol my dentist uses is to keep cool water on the tooth as he is working. He uses a "dam" which is a rubber thing that fits over the tooth that prevents the amalgam particals from getting down into your mouth. He also uses a HUGE vacuum hose which is placed right next to my nose and mouth to vacuum the vapors away...that vacuum is vented to the outside of the building so that the vapors can't seep back into the room.

He recommended that I take selenium (which I haven't done yet) because it binds with the mercury which then gets excreted out. My other doctor recommended I take something called pectasol which also binds with the mercury. I HAVE been using that around each amalgam removal...started taking it yesterday and will continue to take it for a few more days after today.

[CarlaB]

Lauralee, I've had Lyme for over 30 years, but have only recently been diagnosed. In 1991 I had a Lyme flare-up, but didn't know what it was. Docs couldn't tell me. So, I went to a nutritionist who also did ... is it called kinesiology? Anyway, she told me I had candida and sold me a bunch of supplements. I went on the anti-candida diet for a long time.

At the same time, we had just moved to Indianapolis so had a new dentist. He just happened to be a mercury-free dentist. I read a bunch of literature that he had and thought it would be good for my health to have them removed. At least every molar had an amalgam. I think he did it in two stages. He used all the precautions and had me take stuff to detox.

My opinion after reading a lot on mercury is that only those of us with compromised immune systems don't detox it. There is so much in our society today that we need to detox, that some of us can't detox it all. I DO think amalagams are bad, but I don't necessarily think everyone should have them removed. I think NO ONE should have them removed by a dentist that doesn't specialize in it!!

After all the mercury detox supplements and the anti-candida diet, my Lyme went into "remission" for over 10 years. I still battled some of the symptoms, but they weren't enough to slow me down.

[CarlaB]

Rachel, your post was very interesting. I read all of what you wrote, and all the articles except for the last one, which I skimmed over.

It is VERY interesting that gluten and candida are so similar. A couple years ago after 21 days of doxy, which would have upset the Lyme but was giving for something else, I went on the anti-candida diet thinking my joint pain (a Lyme symptom) was from candida. I ate no carbs except for all the veggies I wanted. I also ate a bowl of oatmeal about twice per week or I would get nauseous. With no starchy carbs, I was gluten-free.

The joint pain went away and my energy level increased. It wasn't long before I made the connection that gluten (wheat at the time) made me feel bad. Makes sense since it's similar to candida and I'm pretty sure I also had a candida overgrowth from the antibiotics. So, it's entirely possible that my reaction to gluten was caused by candida.

My grandfather was diagnosed with candida and took nystatin. He was also addicted to wheat and had terrible stomach problems the doctor couldnt' fix. He ended up with cancer of the esophogus. My grandmother and I both think he was gluten intolerant. I highly doubt he had Lyme. He grew up in Florida and lived there his whole life .... BUT in the early 70's they started spending summers in North Carolina .... he built a house in the woods on a golf course (he BUILT it himself with hammer and nails, not a general contractor).

So, was it the Lyme that weakened my immune system and possibly his enough for gluten and candida to take over?

Lauralee, candida and the anti-candida diet are a common topic on the Lyme boards. It's something LLMD's are aware of and address from the beginning since long term antibiotics are involved in Lyme treatment. I think that most, if not all, of the LLMD's are well-versed on supplements and more natural health care as well as conventional methods. They have to be because candida IS a problem and because eventually you need to be able to maintain your health with natural means when you get off the abx. It's not possible to kill off all the bacteria, so you need to strengthen your immune system as you get off the meds so that it doesn't come back.

The diagnosis of Lyme is only an answer to prayers in that you know what you're fighting. The only reason I'm happy about it is that I now know what to do ... it's taken me down 4 times, but now I'm going to be ready next time! It's always after severe stress, so if I ever get under severe stress, I'll start treating it before it even acts up again!!

[AndreaB]

Andrea,

The most significant thing in that entire post was this...

The fact that researchers are saying that the proteins in the cell wall of Candida Albicans are exactly the same as the sequence of proteins in gliadin. Sooooo....if this is true the immune system can still be launching an attack as if gluten were present.....even when its not.

I believe that this could definately be a cause for ongoing symptoms.....if candida and gluten have the exact same protein sequence that triggers an immune response....there is no doubt in my mind that the immune system can launch the same attack it would on gluten if candida albicans are present and attached to the intestinal wall.

I'm curious as to what that would mean with a family like mine who has intolerances but they aren't bad and don't bring us down like they do you guys. I didn't get tested for candida, although I could have with US Biotek. I know the children got mercury from me and between my mercury and the mercury Talitha got in her shots I could assume that is what has contributed to her many intolerances.

This whole thing is just as confusing as everything else. It seems so many things contribute to so many differernt things.

When I had my crowns done 2 years ago I swallowed when I wasn't supposed to so who know how much mercury I took in at that time. I guess the point would be if we continue developing more intolerances to check for candida and/or somehow check for more accurate mercury levels. My hair test didn't show a lot mercury. It was outside the range for arsenic though.

[Rachel--24]

This whole thing is just as confusing as everything else. It seems so many things contribute to so many differernt things.

Yeah....its confusing but unfortunately thats the way it works. The body doesnt break down in a day...there are many factors piling up onto each other over time.

Someone who takes a round of antibiotics and ends up chronically ill didnt just get that way from the antibiotics....there were things leading up to that.

On the candida boards so many people would say that antibiotics ruined their lives because it gave them candida. They would talk about how they took tons of antibiotics as kids or during the time they developed symptoms. I would always have to ask the question.....*why* were you taking all those antibiotics to begin with?? Obviously something wasnt right prior to the antibiotics....a healthy immune system doesnt continue to develop infections which require antibiotic treatment.

A healthy immune system doesnt let candida get out of control either. When this happens there is something else going on.

Andrea....its like my Dr. said....the immune system can keep things under control but when the conditions are just right for these opportunistic pathogens....one sequence of events which may be too much for the immune system to handle can cause a whole cascade of events that can ultimately take us down. Yeah...I believe 100% that these are the types of "triggers" that lead us to become gluten intolerant.

I think if *everyone* took intolerance testing (IgG)......some foods are gonna show up. Some of these "positives" may be real problems and others may not be. The tests arent known for their accuracy. Like everything else we have to listen to our bodies first....if there are problems the body lets us know.

This is what it says about Candida triggering Celiac...

An acute Candida infection may trigger the onset of celiac disease. Even if the Candida is treated and eliminated, the person could be left with a permanent sensitivity to wheat gluten. Candida infections occur frequently with antibiotic usage. [b]In people genetically susceptible to celiac, extra caution should be exercised when using antibiotics to prevent Candida overgrowth.

See now....this is important to know since you all have Celiac genes. Take extra precautions while on antibiotics. Dont take antibiotics at all unless absolutely necessary....this goes for *everyone*. Antibiotics shouldnt be taken for viruses....because they dont kill viruses. Dr.'s and dentists routinely give out antibiotics for all sorts of things that dont actually require treatment. They should only be prescribed when there is an actual infection which needs treatment.

My wonderful dentist who drilled out my first 2 fillings without taking any precautionary measures also prescribed antibiotics after the procedure. Amoxicillan. Why??? I did not have an infection.....but I was VERY uneducated and trusted that the Dr.'s and dentists knew what the heck they were doing.

So this is how a chain of events can easily turn good health upside down. I most likely had Lyme which was under control by my immune system. Everytime I got stressed out it triggered bouts of symptoms.....although very short lived....and my thyroid would become overactive but then correct itself. I think at some point....due to an overworked immune system, poor diet and LOTS of stress...the gut flora may have been altered so that it would have been easy for me to develop leaky gut.

Possibly a gluten intolerance developed before I actually got sick. I gained alot of weight during the year before I got sick. I was happy about the weight gain but it wasnt "normal" for me. Also...most of the weight was in my gut...I'm sure I was probably getting bloated.

Then with alot of stress in my daily life I blindly let this dentist drill out amalgam fillings. I did not even know they contained mercury....I knew NOTHING.

So mercury is definately a catalyst for Candida. Its well known that mercury toxicity causes candida overgrowth. So if the mercury wasnt enough....I definately helped the process by taking antibiotics at this critical time where alot of things were already occurring in my body. Of course my thyroid went overactive again.

Who knows what the *real* sequence of events was but the point is that if you arent *aware* of the dangers from so many of the various things we've discussed in this thread...you can easily set yourself up for disaster without even realizing it.

So Andrea, I dont think a sequence of events like this will occur and affect your health so drastically because you are arming yourself with alot of info. and you've already taken precautions to keep your family safe.

I dont think you really have alot to worry about with Candida because you are healthy and your immune system will deal with it. Just dont set yourself up for it by taking steroids, antibiotics, birth control and the other things that can lead to an overgrowth.....especially since you believe that you have high levels of mercury.

Not everyone with amalgams get sick though...some people detox just fine and never have any problems. If you *do* get sick....whether from Lyme or gluten or candida or anything else that creates a more toxic environment....mercury levels will then rise due to to the body's impaired ability to detoxify. This doesnt mean that mercury made you sick....it means that your liver is no longer able to detox it.

The article I quoted says that extra precautions should be taken while on antibiotics when genetically susceptible to Celiac.....but I think *everyone* should take the same precautions because gluten can still cause an autoimmune response in non-celiacs. We KNOW this is true.

I've seen lots of people post that their troubles with gluten began after taking antibiotics for an infection. I dont think its a "coincidence that one of the *top* foods to avoid while on a candida diet is WHEAT. You will not feel better on a candida diet if you are consuming wheat....period.

[AndreaB]

Thanks for the post Rachel.

I think we are generally low risk for candida, although I was on bc for 9 years and did use a lot of amoxicillan for a year or two for sinus infections (probably about 12 years ago). Other than that I wasn't on a lot of meds when I was younger and since then I've been on something for a couple sinus infections once a year for two weeks. Haven't had a sinus infection since we moved away from Rochester 2 1/2 years ago.

I've always been against meds and won't take them unless absolutely necessary. I went of pain meds after my c-sections within a day of getting home from the hospital. I always try to deal with as much as I can and don't give the children meds either if it can be avoided.

Don't remember if I posted this but I talked to Patti yesterday. She's doing good and behaving herself. Her comupter time will be limited until she's comfortable sitting at the computer for longer stretches.

[dlp252]

Don't remember if I posted this but I talked to Patti yesterday. She's doing good and behaving herself. Her comupter time will be limited until she's comfortable sitting at the computer for longer stretches.

Yay, I'm glad she's doing well and is following orders, lol!

[diamondheart]

My wonderful dentist who drilled out my first 2 fillings without taking any precautionary measures also prescribed antibiotics after the procedure. Amoxicillan. Why??? I did not have an infection.....but I was VERY uneducated and trusted that the Dr.'s and dentists knew what the heck they were doing.

I have mitral valve prolapse and supraventricular tachycardia - both minor heart problems - and was diagnosed 20 years ago. However, dentists routinely want you to take antibiotics before they clean your teeth if you have MVP because they are afraid that bacteria they dislodge during the teeth cleaning will get into your bloodstream and attach to your mitral valve in your heart and then cause a heart infection. I think I maybe took antibiotics once, but then decided if I just took echinachea, I'd be ok. I always lie when the dentist asks me if I took antibiotics, "oh yes!" . It seems like overkill to me, but I know it's CYA for them.

I'll have to dust off my copy of "Dangerous Grains" and read it again. I also know DogtorJ from another celiac disease/GS board! Interesting guy.

I had some digestive issues today, and I think it's because Dr. F ran out of the Probioplex (immunoglobins) I was taking. My gut is definitely NOT healed, but not as bad as it used to be. I think I'll eliminate my foods that I was previously cleared for just to be on the safe side. Of course, I was still getting these problems even when I was on a very restricted diet, so even the elimination didn't help everything. I felt so nauseous this morning, I wanted to go home from work. It does eventually pass. I only get it when I have to go #2 for some weird reason, shortly before and for some time afterwards. Anyone else experience that?

Claire

[CarlaB]

Rachel, I agree with what you said. Our immune systems can only handle so much.

Andrea, I think Rachel's right about how you are taking care of your family will help prevent future immune system breakdowns. I was very healthy from 1991 (my most recent Lyme flare-up prior to this one) ... so healthy, people wondered how I did it all. But, I was on supplements, got plenty of rest, ate right, exercised, watched my sugar intake, etc. I think that's what kept me healthy.

So, I started Artemisia Annua a few days ago. By Sunday, I got up feeling fine, then went downhill as the day progressed and woke up four times with night sweats. Yesterday I didn't get out of bed till dinner, except for my sauna ... I felt horrible. This was the first time I think the sauna actually made me feel better. It must have detoxed some of the bad stuff. Today I slept in. Adam is working from home today so he could take care of me . So, we both went to the gym at lunchtime. I knew I wouldn't be able to stay and lift weights without him motivating me. We went to Kroger on the way home, now I'm getting ready to take another sauna. Today I'm feeling much better, though I'm still very achey. I think it's pretty clear it was a herx ... I'm just glad the worst part of it is over. My brain is still not as functional as it should be, which was very apparent at the grocery.

A poster in Lymenet suggested to another that he/she take artemesia to challenge whether or not he/she had babesia. The poster said he'd know within a few days by whether or not he herxed. I don't have my coinfection test results yet (I'm sure my doc won't call and I'll have to drive over there to get them ), but it's clear that babesia is one I have.

[AndreaB]

Carla,

Glad you are over the worst of your herx.....at least it sounds like it. Does herxing go in cycles too? How nice to have Adam home even though he's working.

Your appointment is only 1 1/2 weeks away!

[CarlaB]

Carla,

Glad you are over the worst of your herx.....at least it sounds like it. Does herxing go in cycles too? How nice to have Adam home even though he's working.

Your appointment is only 1 1/2 weeks away!

I think this herx was from starting the artemisia. I've never had any of it go in cycles ... I know it's supposed to ... it does seem that the worst is over.

Adam was concerned I wouldn't eat ... yesterday I didn't have the energy to fix myself lunch, so I didn't ... so he stayed home to be sure I ate!! It's really good that he has the flexibility to stay home. For years he worked out of the house.

My appt. is almost here!

[Rachel--24]

He said unfortunately that the antibiotics they gave me for the H.Pylori aren't usually very effective for sinus/ear/throat infections, so he wants to treat my infections aggressively with supplements (didn't I tell ya so, lol).

Yeah....supplements and more supplements! I think they kicked me to the curb because I couldnt tolerate any supplements and they just didnt know what else to do with me.

My new Dr. is having the same problem but he understands what is causing it and I'm pretty sure he wont kick me to the curb.

He doesnt try to give me any supplements right now at all.

I need to go to HN to get some probiotics....I really like that particular brand....the HLC probiotics. There are two types and one doesnt have FOS...so I prefer that one. Gotta go get some cuz the doc wants me taking probiotics again.

The Dr. said I can get better.

I asked him if I can get all the way back to the way I was before this happened and he said I can. YAY!!

My mom told him that I have a bad attitude sometimes...which isnt exactly true.

I told him that sometimes I get overwhelmed with everything and it all seems very complicated and I sometimes wonder how I will ever figure it all out. My mom said I dont need to figure it out because he's there to help me.

I think when you get into that mode where you know you need to care of yourself becuase the Dr.'s have failed you....its not so easy to just hand your health over to someone else. I feel I need to continue educating myself. Its nice to be able to converse with the Dr. and be on the same page and not totally in the dark....and its nice to have help....but I'm still in charge.

Anyway the Dr. said its very good to be intellectual about everything but if I get overwhelmed or the research causes me to feel fear, anxiety, stress or anything negative then its not beneficial to us as far as getting my health back on track. He said negative or fearfulness is gonna set me back everytime. So he talked to me about feelings and stuff like that....stuff that might be causing me to have setbacks.

I told him the holidays were hard but I'm better now. I told him there is nothing in my life keeping me unhappy or causing negative feelings except for the illness...which occassionally brings me down.

It was funny cuz he asked about my relationship with Dave. All this time he had thought we were a couple. He was really surprised we werent. I told him.....how can I be in a relationship with anyone with all this going on right now??

[dlp252]

Yeah....supplements and more supplements! I think they kicked me to the curb because I couldnt tolerate any supplements and they just didnt know what else to do with me.

My new Dr. is having the same problem but he understands what is causing it and I'm pretty sure he wont kick me to the curb.

He doesnt try to give me any supplements right now at all.

I need to go to HN to get some probiotics....I really like that particular brand....the HLC probiotics. There are two types and one doesnt have FOS...so I prefer that one. Gotta go get some cuz the doc wants me taking probiotics again.

Yep, I think I've got the one with out FOS...HLC Intensive Capsules. Other Ingredients: cellulose, silica & vegetable magnesium stearate. I'm taking two per day plus another one they gave me called Florastor which doesn't list ingredients.

a day or so ago I was wishing they would kick me to the curb, lol, but I'm over that now I think.

The Dr. said I can get better.

I asked him if I can get all the way back to the way I was before this happened and he said I can. YAY!!

My mom told him that I have a bad attitude sometimes...which isnt exactly true.

I told him that sometimes I get overwhelmed with everything and it all seems very complicated and I sometimes wonder how I will ever figure it all out. My mom said I dont need to figure it out because he's there to help me.

I think when you get into that mode where you know you need to care of yourself becuase the Dr.'s have failed you....its not so easy to just hand your health over to someone else. I feel I need to continue educating myself. Its nice to be able to converse with the Dr. and be on the same page and not totally in the dark....and its nice to have help....but I'm still in charge.

YAY!! See he can be positive too, lol. It's really hard to trust any doctor though after having been treated the way most of have been treated by the majority of them. I think it's wise for all of us to remember that ultimately we are in charge.

Anyway the Dr. said its very good to be intellectual about everything but if I get overwhelmed or the research causes me to feel fear, anxiety, stress or anything negative then its not beneficial to us as far as getting my health back on track. He said negative or fearfulness is gonna set me back everytime. So he talked to me about feelings and stuff like that....stuff that might be causing me to have setbacks.

Yep, I've had a couple of doctors tell me something similar lately and Anna said basically the same thing. Dr. Rick stressed this idea yesterday but in different terminology.

It was funny cuz he asked about my relationship with Dave. All this time he had thought we were a couple. He was really surprised we werent. I told him.....how can I be in a relationship with anyone with all this going on right now??

I'll bet a lot of people have this same idea.

Okay, I gotta go lay down, I'm not feeling too good. I think I am herxing myself today from the Vitamin C and probably a little bit from the no sugar diet...also stomach is a little off and not sure if that's because of the Vitamin C or because of the dentist visit, lol. Doc had to stop and massage my jaw, lol. His assistant is excellent at understanding "mouth full of equipment" speak. Anyway, had to take a couple of Advil when I got home...it's going to be a sore evening I think.

[CarlaB]

It was funny cuz he asked about my relationship with Dave. All this time he had thought we were a couple. He was really surprised we werent. I told him.....how can I be in a relationship with anyone with all this going on right now??

Yes, but it's rare to have a guy go to a doctor's appt. with your unless he's your dad, your brother, or your boyfriend ... not to mention, I'm sure he noticed Dave is interested ... we all did!!

You're right about feeling like you need to understand what's going on. I would have a lot of trouble trusting any doctor implicitly at this point. I've had too many let me down. I think I was about 5 when I stopped trusting doctors and about 9 when I decided most dentists were idiots (mine seemed to be, I've since softened my stance on dentists ). I definately need to understand everything about what the doc wants to do. I'm sure LLMD's are used to people like me! So many of us who go through so much to get diagnosed ...

It is bad for your health to have negative feelings. It's just a drain. When you're sick, you have to get selfish in some ways ... not self-centered as in a bad way, but concerned with what your feelings are, whether you're getting enough rest, how your diet is, that you're not around toxic people, etc. This has been very hard for me. I'm used to taking care of everyone else.

[CarlaB]

Okay, I gotta go lay down, I'm not feeling too good. I think I am herxing myself today from the Vitamin C and probably a little bit from the no sugar diet...also stomach is a little off and not sure if that's because of the Vitamin C or because of the dentist visit, lol. Doc had to stop and massage my jaw, lol. His assistant is excellent at understanding "mouth full of equipment" speak. Anyway, had to take a couple of Advil when I got home...it's going to be a sore evening I think.

Sorry you're feeling bad. I felt sick when my amalgams were removed, too. It felt like the flu for a few days. I hope it passes soon. Don't let up on the C!!!!

[dlp252]

Your appointment is only 1 1/2 weeks away!

Yay!!! CAn't wait to hear about this!

[dlp252]

Sorry you're feeling bad. I felt sick when my amalgams were removed, too. It felt like the flu for a few days. I hope it passes soon. Don't let up on the C!!!!

Thanks Carla! So far I've taken 2500mg of C...I don't think I'll take any more until I eat something more substantial though. Not sure what I'll eat though since I can't feel my mouth yet.

[CarlaB]

Thanks Carla! So far I've taken 2500mg of C...I don't think I'll take any more until I eat something more substantial though. Not sure what I'll eat though since I can't feel my mouth yet.

I've been taking C for quite a few weeks now and I've only last week been able to work up to 4500 mg. It takes time sometimes.

It's strange, vitamin C has always made me sick ... I always thought I was allergic to it! I guess it would just make me herx.