Omg...i Might Be On To Something

[dlp252]

Yep, I get the skin crawly thing too...sometimes bad enough to feel like ants are crawling on me. I never connected it with candida, but I'll bet you're right on that!

[diamondheart]

Rachel, Thanks for the info on MSG. Do you have a website for that? I'll have to print it out.

My gluten-free oats are from Open Original Shared Link. There carry them at one of the local health food chains here, but not at Whole Foods . I believe Boulder is WFs biggest money maker, so you'd think they'd carry them there . I think I paid $11.00 for the bag. I first tested ok with the gluten-free oats before I went through the BioSET clearings. Now, I'm ok with the regular oats too, but I'm not going risk it yet .

The Imagine Beef Broth did not appear to be the source of my digestive problems yesterday. I think it was either the coconut milk and it's antibacterial effect, or I worked out too hard on Saturday night. I was pretty wiped out Sunday. I'm going to have to take a closer look at the stress connection to my digestive problems.

Kefir is still ok .

Donna, Surgery is a b i t c h . My digestive problems got worse after my myomectomy, and I know it's not just adhesions. I think surgery just a huge strain on the body. Just one more straw...

NoGluGirl, I've had heart palpatations since I was a teenager, but different medical issue. I think mine is a congenital electrical issue. I was able to go off my medication once I started taking magnesium and generally taking better care of myself.

Carla, How weird about your temps? Sounds like a low grade fever to me. I need to start taking my temps again, as I'll probably start trying to get pregnant.

[MissMeliss169]

I have been gluten-free for 3 years now and just found out this week that I am also allergic to corn, soy, eggs and dairy! I was wondering if anyone can help me out with some things I can get, especially those that are corn free, as they seem to be the hardest to find. I can't find much and am feeling very defeated by this whole situation. Thanks!

Melissa

[dlp252]

I have been gluten-free for 3 years now and just found out this week that I am also allergic to corn, soy, eggs and dairy! I was wondering if anyone can help me out with some things I can get, especially those that are corn free, as they seem to be the hardest to find. I can't find much and am feeling very defeated by this whole situation. Thanks!

Melissa

Hi Miss Meliss! Welcome to our *little* thread, lol! Many of us on this thread are dealing with the multiple food intolerance/allergy issue. I think there are a couple here who still avoid corn, so I'm sure they'll see and answer you. I am avoiding corn too, but mostly because of a candida issue. Basically, I'm eating meats and vegetables and not much else. I'll be back in a minute with some bookmarked pages that *I* have...

[dlp252]

Well, I only have two that still work:

Open Original Shared Link

Open Original Shared Link

These are still mostly sites that say what NOT to eat though.

[dlp252]

Deleted because the quote I listed was obviously not gluten-free or dairy free...

[CarlaB]

Carla, How weird about your temps? Sounds like a low grade fever to me. I need to start taking my temps again, as I'll probably start trying to get pregnant.

Yes, I thought it might be a fever, but the higher temps are in line with the lower temps earlier in the month. Unless it was a low grade fever when it was below fever level ... who knows.

[AndreaB]

MissMeliss,

I've tried pm'ing and responding to this post but my computer keeps on freezing up. Please check out the gluten, dairy, egg, soy free (except for a few) thread. You can get to it from my profile.

Hopefully this will go through this time.

[Rachel--24]

I have been gluten-free for 3 years now and just found out this week that I am also allergic to corn, soy, eggs and dairy! I was wondering if anyone can help me out with some things I can get, especially those that are corn free, as they seem to be the hardest to find. I can't find much and am feeling very defeated by this whole situation. Thanks!

Melissa

Hi,

Enjoy Life products are free of all of these allergens.

You can eat rice cakes, Tinkyada pasta, Food for Life makes brown rice tortillas. You'll have to read labels but there are plenty of things out there for you. Obviously the veggies and meats are safe.

[miamia]

Hi,

Enjoy Life products are free of all of these allergens.

You can eat rice cakes, Tinkyada pasta, Food for Life makes brown rice tortillas. You'll have to read labels but there are plenty of things out there for you. Obviously the veggies and meats are safe.

Hey does anyone eat the food for life brown rice tortillas I am thinking about trying them

[Rachel--24]

Hey does anyone eat the food for life brown rice tortillas I am thinking about trying them

Me....I used to eat them but they made me sick.

They tasted pretty good though. Well...nothing like a real tortilla.....but hey....I'm not the least bit picky about food these days.

I think the grains give me problems because I'm so sensitive to mycotoxins. All of the grains are usually stored and contain alot of mycotoxin from fungi.....I'm about 99% certain thats why I react to alot of stuff....even rice cakes.

Stupid Fungi.

All you can do is try them....if it doesnt work out....at least you got to try them.

When we get better we can eat these things.....all the gluten free yummys.

[happygirl]

x

[NoGluGirl]

I used to get shooting pains. I've had pain in my hips and joints but its improved alot. Muscle tremors are common with Lyme....but I dont really get them myself. I do get heart palps.

I woder if anyone ever got this strange symptom?? I used to get random and sudden sharp pains....like I was being bit by something. It would hurt enough to make me wince but there were never any bugs biting me....it just FELT like it.

Dear Donna,

It is nice to know there could be an answer to some of this stuff! It has been scary. There are times where you think you are losing your mind. Thank God for this forum! What do you do to test for Lyme, and who are some good doctors and labs? I know the basic tests often are inaccurate.

Dear Rachel,

I get that bug biting feeling sometimes! It is painful. They just come out of nowhere! The heart palpitations do not improve when I do Yoga or Pilates. Maybe I need to reduce my caffeine intake! I like my coffee and chocolate! Those headaches are horrible though! Withdrawal is tough to deal with. Thanks guys!

Sincerely,

NoGluGirl

[NoGluGirl]

Rachel, Thanks for the info on MSG. Do you have a website for that? I'll have to print it out.

My gluten-free oats are from Open Original Shared Link. There carry them at one of the local health food chains here, but not at Whole Foods . I believe Boulder is WFs biggest money maker, so you'd think they'd carry them there . I think I paid $11.00 for the bag. I first tested ok with the gluten-free oats before I went through the BioSET clearings. Now, I'm ok with the regular oats too, but I'm not going risk it yet .

The Imagine Beef Broth did not appear to be the source of my digestive problems yesterday. I think it was either the coconut milk and it's antibacterial effect, or I worked out too hard on Saturday night. I was pretty wiped out Sunday. I'm going to have to take a closer look at the stress connection to my digestive problems.

Kefir is still ok .

Donna, Surgery is a b i t c h . My digestive problems got worse after my myomectomy, and I know it's not just adhesions. I think surgery just a huge strain on the body. Just one more straw...

NoGluGirl, I've had heart palpatations since I was a teenager, but different medical issue. I think mine is a congenital electrical issue. I was able to go off my medication once I started taking magnesium and generally taking better care of myself.

Carla, How weird about your temps? Sounds like a low grade fever to me. I need to start taking my temps again, as I'll probably start trying to get pregnant.

Dear diamondheart,

The doctor did not say anything was abnormal other than a rapid heartbeat. Does that really mean anything? I am worried. Of course, it may be Lyme. I cannot believe I did not think about it because I used to go out in the woods a lot when I was a teenager. I never recall being bit by a tick, but other members said that you do not always know when they bite you. Congenital heart defects (especially electrical ones) are very dangerous. I am surprised they did not decide to implant a pacemaker in you. I know nutritional deficiencies could be to blame.

Sincerely,

NoGluGirl

[AndreaB]

Hey does anyone eat the food for life brown rice tortillas I am thinking about trying them

We love them and eat them frequently.

They don't stay together as well as the wheat ones but it's a full size tortilla.

[miamia]

Me....I used to eat them but they made me sick.

They tasted pretty good though. Well...nothing like a real tortilla.....but hey....I'm not the least bit picky about food these days.

I think the grains give me problems because I'm so sensitive to mycotoxins. All of the grains are usually stored and contain alot of mycotoxin from fungi.....I'm about 99% certain thats why I react to alot of stuff....even rice cakes.

Stupid Fungi.

All you can do is try them....if it doesnt work out....at least you got to try them.

When we get better we can eat these things.....all the gluten free yummys.

thanks rachel and andrea for the feed back

Ok I have them in the freezer I think i might go for it at least theres no yeast and I will just try a bite I usually can tell right away if something is a definite no no for me. I am ok with there sprouted corn tortillas but they have 2 ingredients. I eat them everyday for lunch they are one of the few foods I can eat without a reaction. The brown rice ones have alot more ingredients but it would be so cool to have one more thing to eat that I don't have to make. I feel like I have to cook everything form scratch its so annoying plus I use yeast in some things and I know thats a no no.

[miamia]

Miss Meliss:

If you are super sensitive, note that veggies and meat aren't necessarily safe. Even organic foods can be sprayed with corn derivatives (organic, of course!). I didn't realize that and kept reacting. So make sure to rinse and scrub everything

Even many rices are enriched with corn but Lundberg farms Rice is safe.

The sites that Donna posted are great. I was corn free for a few months and it was really helpful.

Laura-

its good to see you how are you doing? Whats going on with you. I keep meaning to send you a pm , but have been loony bins lately

Miamia

[CarlaB]

What do you do to test for Lyme, and who are some good doctors and labs? I know the basic tests often are inaccurate.

Maybe I need to reduce my caffeine intake! I like my coffee and chocolate! Those headaches are horrible though! Withdrawal is tough to deal with. Thanks guys!

Sincerely,

NoGluGirl

IGenex (Open Original Shared Link) is the lab. I fly to New York for my doctor, I live in Ohio. You can post on Open Original Shared Link and the people there will tell you who treats Lyme and is close to you.

My heart palpitations are definately aggravated by caffeine or red wine. Maybe just lowering your caffeine intake so you don't get the headaches would help. If I drank some caffeine, it didn't bother me, but a lot of it did. Now I don't drink any at all.

[Rachel--24]

My heart palpitations are definately aggravated by caffeine or red wine. Maybe just lowering your caffeine intake so you don't get the headaches would help. If I drank some caffeine, it didn't bother me, but a lot of it did. Now I don't drink any at all.

OMG....caffeine kills me now. I've been avoiding it about 4 years now...ever since I first got sick. It will definately give me heart palps...and a whole bunch of other unwanted symptoms.

Its not good for leaky gut and candida....it wasnt good for my graves disease either.

[rindadas]

I've had the same problems for the last couple of years, think you've quit everything and symptoms come back. I've quit corn, soy, yeast, casein, lactose, gluten, and felt better. Corn in all its forms is a big culprit! Then found out I have Sjogren's Syndrome. As soon as you think some thing bothers you, quit eating it for 3-4 days, go back to a small amount and see how you feel. Keep rotating foods, eat smaller amounts of different kinds stuff so the body doesn't get aggravated by any particular thing. That has helped me. PS, at Passover you can get powdered sugar without corn starch, or make your own with a blender and tapioca starch!

Well I've been struggling for quite some time now. It doesnt matter what I eliminate I'm still sick. Its like it HAS to be something that is constantly in my system because I havent had a single symtom-free day for over 3 years now. Even when I limit myself to 2 safe foods I'm still having symptoms so basically nothing has worked. All meds or supplements have worsened my symptoms. All gluten-free packaged foods bother me. I toatlly eliminated casein and still have problems. It was only one supplement I was taking that had milk in it so I stopped taking it...felt better...started eating more foods and totally symptomatic again.

I was eating Enjoy Life chocolate chips with no problems..also did some baking...no problems. I had one cake mix with all safe ingredients and reacted. The mix only had like 4 ingredients and I tolerate all of them...the only questionable ingredient is Xanthan gum. Its also in every gluten-free product I've reacted to and also rice milks and almond milks and a ton of other stuff I cant have. I found out its from CORN. I never thought about corn...but its in everything. Even when I'm only eating meat and veggies (no corn) I'm still having corn everyday in my thyroid meds and any supplements or vitamins I've ever taken most likely have corn.

Pre gluten-free I never ate much candy or sweets....my favorite snacks were popcorn and Tostitos. These were also the first foods I started avoiding long before I ever heard of gluten because the next day I always had a swollen face and a migraine. I had thought it was from the salt or something. I thought everything was thyroid related since I had Graves so I started avoiding all salt.

I did some research on corn and its in pretty much everything...seems more difficult to avoid then both gluten and dairy. Today at work (I work in a grocery store) I started reading all the labels of the foods I used to eat before I got sick. They ALL have corn. Its in bread, soups, microwave dinners, yogurts, cheese (why is corn in cheese?). Anyways, I've never been corn-free because of my thyroid meds and lots of other things I've tried over the last year. I had posted about getting "glutened" by all the gluten-free cereals. Well they are all corn based....DUH. I dont know why I never thought of this since everything I've had problems with have some form of corn in them.

I really need to eliminate the corn to see if I get better but dont know how I can do this when I need to take thyroid pills everyday. What do people do in a situation like this? What if I'm intolerant to corn all this time and its in the medication I need to take?

The other big question is am I really intolerant to gluten and dairy? If I get better off corn I dont know what to think about that. All the foods that have gluten also have corn so I would likely have to stay off gluten anyways....hmmm...does pizza have corn in it?

Also yogurt and ice cream really mess me up but they also have corn. There ARE some brands and flavors that dont have corn so I would LOVE to not have a problem with dairy!!

I would rather be intolerant to corn and gluten both than have to give up dairy for good.

Does anyone have a corn intolerance? Could I have just developed this out of nowhere and NOT have gluten intolerance...or is it more likely that gluten caused this to happen in the first place? I'm actually hoping I'm corn intolerant cuz as hard as it seems I've been struggling a long time now. The symptoms I've gotten from the stuff I've eaten with xanthan gum are severe....also I had powdered sugar yesterday and had another severe reaction. I have no reaction to cane sugar but when I looked at the ingred. of the powdered stuff its cane suger AND corn starch! Right now I feel exactly like I felt before I ever went gluten-free...everything hurts. This would explain why I dont do well with anything processed or with any supplements or vitamins or medications.

I dont see too many people here with corn problems but hopefully someone has some advice about the thyroid meds??

[Rachel--24]

Ok....from the BioSET files...

I had my appt. with Anna tonight. She was testing all of the foods again....she goes really fast so I cant really keep up. I just usually ask alot of questions that are on my mind.

Apparantly she was checking Lyme related stuff. I think maybe food stuff that might be cross-reacting with Lyme??

In the end she said that I still have big problems with food-borne molds and indoor/outdoor molds. I asked her if I was reacting to all the foods?? She pointed to a short list on the side of the screen and said those were the worst ones.

I dont remember everything that was listed but it was probably 10 or less. Yeah....they were definately very bad foods for me. The ones that I wouldnt touch. This is what I can recall...

Green/Red Grapes

Avocado

Gluten

Raisin

I cant remember anything else but I'm pretty sure the rest were foods high in mold....like the raisins and grapes....in that category.

I dont think its any big shock to see gluten on there. Its one of my biggest problems.

Avocado....WTH??

I've talked about my "issues" with avocados several times on this thread....but I still dont know what exactly it is about the avocados that causes reactions.

I actually tried them again...just this past week. I havent had any for a few months. Nothings changed....I still reacted really bad to the stupid avocado. Now that it came up as one of my worst foods....I guess I wont bother trying again.

Shoot....I love avocados.

So yeah...she said molds are still a big problem. Its not improved. I asked her if its because of the candida?

She said that its because of Lyme.

I was kind of surprised and confused about that.

She said that the molds are cross-reacting with Lyme. I guess thats what she was checking....I saw that it said Lyme on the computer when we started...and then she proceeded with the foods and a bunch of other stuff.

I asked again if she thinks I really could have Lyme??

Yeah...go ahead and say it Carla....DENIAL.

She said yeah....to her it looks like Lyme....its showing up in the testing....its there.

Yeah....but do I have it???

I told her I'm just confused by how much energy I have and lack of joint pain, etc.

She said "Yeah.....but you gotta understand....theres over 300 strains of Lyme....people are affected differently."

So basically she was saying what we already know and have learned here..... but I just cant seem to get it through my head. Its easy to learn about it but in my mind....it doesnt really pertain to me.

I asked her if I should take an antiobiotic challenge and try to get a positive test......or is it unnecessary at this point?? She said that her tests are showing Lyme...its showing up.

So she went on to say that this is exactly why its so difficult for Western Medicine to diagnose Lyme. It manifests itself in so many ways. My case may not look anything like the last guy who had Lyme....so the Dr.'s would not see Lyme in me. They would not even think about Lyme.

One person might be severely affected in the joints...another may have problems in the digestive tract....another may be affected in the brain. It can attack various areas of the body....it might target the thyroid gland in some people.

I have to assume that I've had Lyme longer than what I'd originally thought....its been maybe 8 or 9 years since I started having symptoms with my eyes and hyperthyroidism. I dont believe autoimmune problems just occur for no reason...I do believe its because of infections...."invaders".

I asked her what it meant that the molds were cross reacting with the Lyme.

She said that Lyme is so clever and so good at evading the immune system.....it can change forms (as we've learned) and she said it can also attach itself to antigens. It can do lots of things to fool the immune system so that it can continue to go undetected.

So she said it can bind with an antigen. She used peanut mold as an example. So....if I've got a peanut mold antigen floating around...the Lyme can attach itself to that antigen. Then when the white blood cells come to "attack" the Lyme is basically "cloaking" itself....hiding behind the antigen.

The immune attack would be against the peanut mold and the Lyme would remain "unseen". So it can do this with any antigen and in a sense...sort of train the immune system to attack these antigens...instead of attacking the Lyme itself.

She said people like myself...who are very difficult to treat....alot of times end up falling through the cracks.

She said Dr.'s will throw various supplements or treatments out there and the person will "crash" because they just cant handle it. It keeps happening as the person goes from Dr. to Dr....they cant get better because they "crash" on the treatments. Eventually they give up and stop seeking treatment.

She said she doesnt want that to happen to me. She said that the LLMD from Washington (Derksen) can help more with giving me a more definate answer about Lyme and how to proceed. I didnt get in last time she was here though.....and I'm 4th on the waiting list for March.

Anna said she didnt want to wait to see if I get in....cuz she books up fast. She said there is a test that Derksen does which can detect and "prioritize" my problems much faster than Anna can do it.

She said I might have alot of problems but my immune system may only really be needing help with one thing. The test can put this into perspective as far as figuring out where the priority is.

She said it also can detect specific strains of Lyme and let us know which treatments work best for whatever shows up. So she said this test can help us figure things out alot faster.

That guy I had emailed awhile back....(Scott) Open Original Shared Link .....had told me he was working with Derksen....he told me a little about the test.....its called ART. He was getting trained on how to do this type of test.....he was all excited about it.

Anna said he's gotten good at the testing and hes gonna be testing a few people this month at the BioSET clinic. She said she wants to add me in...have Scott test me...instead of waiting until March to see if I get in with Derksen. She said she was gonna email him about it tonight.

I gotta try to learn more about ART....I'm pretty sure it must be something I can find on Dr. Klinghardt's site. Klinghardt is probably one of the most well known LLMD's there is.....Derksen is his partner. I'm really excited to have another test done....especially if it can narrow things down with more specific info. as to whats going on inside my broken body....and exactly what infections are creating problems.

So....moving forward.....very slowly.....inch by inch...still trying to get all the answers.

In the meantime....I'll see what I can learn about ART.

[Rachel--24]

I found alot of info about ART...but here is the basics....

Autonomic Response Testing (ART) is a fancy name for the simple, yet highly effective biofeedback technique used at NI.H.A. to determine disturbances in your body and possible remedies. It is an advanced form of muscle testing AKA kinesiology. ART is non-invasive, non-electronic, and can be used to assess people of any age.

The

[NoGluGirl]

IGenex (Open Original Shared Link) is the lab. I fly to New York for my doctor, I live in Ohio. You can post on Open Original Shared Link and the people there will tell you who treats Lyme and is close to you.

My heart palpitations are definately aggravated by caffeine or red wine. Maybe just lowering your caffeine intake so you don't get the headaches would help. If I drank some caffeine, it didn't bother me, but a lot of it did. Now I don't drink any at all.

Dear CarlaB,

Thanks a lot! I think I have been on Lyme net before. You know, it is amazing how much you can find! I recall a medical mysteries special I took notes on the other week about a teen suffering from excruciating chronic pain. It turned out it was Lyme, though she had been tested for it previously.

The results had been negative, but after seeing a specific doctor named by another girl she met with the exact same symptoms, and a similar story, she convinced her parents to contact him. I wrote his name down. I will check my notes. The caffeine is something I can do on my own. You see, I also eat chocolate pretty much daily. I need to start watching it! That should help!

Sincerely,

NoGluGirl

[NoGluGirl]

OMG....caffeine kills me now. I've been avoiding it about 4 years now...ever since I first got sick. It will definately give me heart palps...and a whole bunch of other unwanted symptoms.

Its not good for leaky gut and candida....it wasnt good for my graves disease either.

Dear Rachel,

Since you have candida, I was wanting to ask you about a body odor issue. I recall your garlic sauna experience, LOL! My body odor is so strong, it actually smells like onion or garlic, even when I have not eaten any! My feet actually smell like vinegar! Is this common with candida? If not, what else could cause this? This is awful to deal with, because no matter how much I bathe, nothing seems to completely get rid of it. I am so afraid everyone will smell it on me!

Sincerely,

NoGluGirl

[miamia]

I found alot of info about ART...but here is the basics....

Rachel-

again thanks for the info. I have never heard of ART but i think ill do alittle research.

Oh my I have a huge avocado problem too and I LOVE Avocado I swear i could live off of it. I don't know if its the fat content or what but i get extreme reactions to it . I always retry it but end up really sick. The last time i triued it i was sick for days my mom said i'm not allowed to even suggest eating it for 2 years or she'll kill me. I hate it though becasue it is so good and so good for you!!!

I had a dissapointing appt. with my doc yesturday i went into get my shot and he is just really not sure what the shots are doing for me. He is gonna talk to this person i see from a health center i go to to see what she feels but she is not that knowledgable so I don't think thats really gonna lead anywhere. I don't think he is gonna give up on em or anything but I just left his office feeling so hopeless. I even said to him its eems like we really can't figure out wwhats going on and it seems like I'm not gonna get better and he really did not say anything to ressure me or say i was wrong. He is not a mushy doc so I don't expect him to coddle me but god I could use some cooddling right now

Miamia