Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something


Rachel--24

Recommended Posts

dlp252 Apprentice
Other sources of mold might include a leaky dishwasher (water dripping just a bit under the dishwasher, where it wouldn't be able to evaporate) and under and even inside a washing machine.

Fortunately no dishwasher or washing machine, lol...but the bathroom has enough for all of us.

I havent been on the candida boards the last couple months...unfortunately my favorite board was taken over by some rather "unpleasant" type people. I dunno...maybe too many candida toxins affecting their brains?? :huh:

I think I may have been part of that same board, lol. Went back there a few weeks ago and the tone was very different.

I still love my Celiac friends the best.
Me too! This is just a very comfortable place. Even admist the strife sometimes, there is always this little corner of the board which is safe and calm.

Are we all going to be on here in like 5 years?!!!

I think I will, lol. No matter whether I feel "healed" or not, I'll probably be around a long time, just to offer support. I've been a part of a fitness forum for about 4 years now I think.

YEAH!! I'll be here....I'm never going to forget all of you and I'll never forget how everyone here got me through this!!

I love you guys. :wub:

...

I met such a great bunch of people on this thread that I know I'll never forget any of the people I've shared so much with here. You guys have been the best. :wub:

Definitely :wub: I feel the same way. This board has helped me more than anything else. I've gotten the names of doctors and clinics that have helped me when no other doctors have, so yah, this place is a special place for me!

Speaking of :wub:, Andrea how are you today?

I came home early from work yesterday, and I'll be staying home today as well. I'm not feeling any worse than yesterday, so that's good, but I'm still really tired. My throat feel weird but not sore as long as I'm taking the Vit C...weird huh!?! I think that part might be power of suggestion, but I'll take it, lol. Also, my legs started itching again yesterday...for about a half hour around 4:00...what's that all about...then it went away...my legs havn't itched in weeks now and they haven't itched since yesterday. Weird.

I'm wondering if the last time I got sick wasn't because I cleaned the bathroom (if you can't tell already, I RARELY clean the sucker, lol :lol: ). I didn't keep a log or anything, but I know I cleaned it around that time. I'll be keeping records from now on to see if there is any connection.

I'm going to call and see if I can get in earlier than 3:00 for my chiro/PT appointment, then I'm just going to lay on the couch and watch DVDs, lol.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 33.4k
  • Created
  • Last Reply
CarlaB Enthusiast

%&*^$!!!! I'm on my kids' computer, and it decided to go to a different page and deleted my post!! STUPID COMPUTER!!!

Anyway, I was just saying that the people here not only are supportive, but also understand because we're all in the same boat ... chronic illness. :wub:

I learned about my Lyme Disease here, but I would have eventually found out about it. A friend of mine was diagnosed a couple weeks before me ... we both have the same spiritual director, who knows I've been sick for a long time (because I have been on a leave of absence of sorts from the youth work I used to do). Anyway, I saw this priest a couple weeks ago and he asked if I had ever looked into Lyme Disease!!

However, it was through everyone's research here that I really understood Lyme Disease! When my friend got diagnosed she was discouraged and seemed scared. When I got diagnosed, I understood what it was and what it would take to get better. There's a fighting spirit here because all of us REFUSE to be sick!!!

We might be able to get support from our families, but here we all understand each other ... that's the difference. That's what keeps us coming back to a board to "chat" with people we've never actually met!! LOL ;):lol:

I've also come to realize from reading Lymenet that I'm doing wonderfully well considering how long I've had it. I think this is because I have been on an anti-candida diet (or anti-candida maintenance allowing a few more treats) since 1991. 1991 was my last flare, and that's when I had my amalgams out. Both of those are essential to Lyme treatment. So is detoxing ... and I've been aware of eating and taking supplements to help detox for about 10 years.

We're all on very similar paths ...

CarlaB Enthusiast
the irony *might* be that I'm not even a "true" Celiac

That's okay, I'm not either. But gluten makes me sick!!

AndreaB Contributor
Speaking of :wub:, Andrea how are you today?

I'm doing good today so far. I talked to mom for about 1 hour yesterday. She told me that she didn't get to say goodbye to her mother either. Although her mother died of a heart attack, the point she was trying to make is that you don't usually get to say goodbye as in most cases death is quick/unplanned. Anyway I'll probably call his wife sometime in the next week or two and find out about dad's estate. Sound like, from talking to my mom that when he contacted us five years ago for info for his life insurance that he'd had a change of mind about leaving us anything. We also want to see if they are going to write an obit or not as we'd like a copy.

Mom says I'll have many days where I feel like crying and miss him, but many more that I'll be ok.

We got our van back. Was twice as much as I was hoping. We had to list our LH DVD's to help make up for some of the difference. It is nice to have a slider working again though.

Now I've got to go buy a black ink to see if our printer is going out or if it was just bad cartridges. Our printer is almost 12 years old.

AndreaB Contributor

Donna,

I'll be interested in what your log shows. Sounds suspicious to me.

Hope you can get your appointment changed to earlier. :)

CarlaB Enthusiast
Now I've got to go buy a black ink to see if our printer is going out or if it was just bad cartridges. Our printer is almost 12 years old.

OMGosh!!! I've never heard of such a thing!!! Twelve years old!

Don't worry too much if it's bad, anymore the ink cartridges are almost as expensive as a new printer.

CarlaB Enthusiast
you don't usually get to say goodbye as in most cases death is quick/unplanned.

This is why it's SO important to treat each moment with each loved one in your life like it might be the last ... because sometime it will be.

You DID get to say goodbye to your dad! Last Thanksgiving ... I'm sure HE knew it was goodbye even if you weren't sure. Don't have regrets about any of your actions ... you did the right thing and your dad went knowing you love him. That's what's important.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rachel--24 Collaborator
Me too! This is just a very comfortable place. Even admist the strife sometimes, there is always this little corner of the board which is safe and calm.

Donna I totally agree. :)

Everytime I try to venture out into other threads I find I'm always being brought down by strife and nasty negativity. :(

Today....out of nowhere I am attacked for being against scientificness!! :blink:

Apparantly this conclusion about me came from the Rachelville sub-title "no scientificness here". :unsure:

So yeah....I guess that somehow implies that the thread is for bashing scientificness??? :unsure:

Yes...I am Rachel...and I HATE science!! :lol::lol::lol:

OMG...that is freakin hilarious. I mean....WTF??? :blink:

Oh yeah.....forgot to the mention the part about how this person doesnt "share my pleasures" because this person is all about helping people....and I, (Rachel who HATES science) am not interested in helping other people. :rolleyes:

ROFLMAO....ummmm yeah....its soooo much safer in this little corner of the board. :)

As Susan would say...."Hold me ....I'm scared." :ph34r:

Happy Valentines Day everyone!!!!

:lol::lol:

Yeah....I think I will be laughing all day long about the fact that I'm labeled a "Science Basher"....I'm a protomer of all things against scientificness. Sometimes you just gotta laugh.... :P

Rachel--24 Collaborator
Don't worry too much if it's bad, anymore the ink cartridges are almost as expensive as a new printer.

Aint that the truth. :lol::lol:

I could never comprehend why ink is so darn expensive....I mean its INK??? Am I missing something?? :unsure:

With all the printing of photos I do when scrapbooking....I would sometimes go through a color cartridge in one weekend. :blink:

I was gonna need another job to pay for my ink! :rolleyes:

Rachel--24 Collaborator

Oh yeah...I have BioSET tonight. :)

My appts got changed to Wednesadys instead of Tuesdays.

Jestgar Rising Star
Today....out of nowhere I am attacked for being against scientificness!!

Yeah....I think I will be laughing all day long about the fact that I'm labeled a "Science Basher"....I'm a promoter of all things against scientificness.

As a scientist I'd like to mention that you are the better scientists I've "met". I'm sorry you weren't nerdly enough in appearance to actually adopt science as a profession, but I'm sure we could let you into the club if you promise to get some big thick glasses and sturdy, sensible shoes.

AndreaB Contributor
OMGosh!!! I've never heard of such a thing!!! Twelve years old!

Don't worry too much if it's bad, anymore the ink cartridges are almost as expensive as a new printer.

The black cartridge didn't work. I do have another print head but it does print color. I'd rather sell the print head on ebay and buy another printer.

This is why it's SO important to treat each moment with each loved one in your life like it might be the last ... because sometime it will be.

You DID get to say goodbye to your dad! Last Thanksgiving ... I'm sure HE knew it was goodbye even if you weren't sure. Don't have regrets about any of your actions ... you did the right thing and your dad went knowing you love him. That's what's important.

Thanks Carla. I'll definately be looking at things differently and make sure everyone know I love them, including all of you guys here. :wub:

:lol::lol:

Yeah....I think I will be laughing all day long about the fact that I'm labeled a "Science Basher"....I'm a protomer of all things against scientificness. Sometimes you just gotta laugh.... :P

Absolutely incredible! How could they totally miss this epic of a thread?

Well, we know differently and appreciate all the time you take researching stuff. :)

Aint that the truth. :lol::lol:

I could never comprehend why ink is so darn expensive....I mean its INK??? Am I missing something?? :unsure:

With all the printing of photos I do when scrapbooking....I would sometimes go through a color cartridge in one weekend. :blink:

I was gonna need another job to pay for my ink! :rolleyes:

I hear you. :P

As a scientist I'd like to mention that you are the better scientists I've "met". I'm sorry you weren't nerdly enough in appearance to actually adopt science as a profession, but I'm sure we could let you into the club if you promise to get some big thick glasses and sturdy, sensible shoes.

:lol:

CarlaB Enthusiast
As a scientist I'd like to mention that you are the better scientists I've "met". I'm sorry you weren't nerdly enough in appearance to actually adopt science as a profession, but I'm sure we could let you into the club if you promise to get some big thick glasses and sturdy, sensible shoes.

Uh, looking at that avatar, I can't imagine you wearing sensible shoes. :lol:

CarlaB Enthusiast

Rachel -- HYSTERICAL!! :lol::lol::lol: I mean, you COINED THE TERM SCIENTIFICNESS!!!!!

Sorry, I couldn't help myself ... had to yell ... :lol:

Jestgar Rising Star
Uh, looking at that avatar, I can't imagine you wearing sensible shoes. :lol:

I'm pretty hard core nerd at work, but for Hallowe'en last year I dressed up as a neo punk girl with pink hair and fishnet stockings and a black spiderweb on my face. It was so unexpectedly out of character that everyone practically peed their pants laughing.

Now I'm back to the hard core nerd who laughs for days at dumb science jokes like: RNA - the OTHER nucleic acid.

CarlaB Enthusiast

There was a guy at the gym I worked out in in Indiana who wore a t-shirt that said, "There are only 10 types of people in the world -- those who understand binary, and those who don't." I always thought it was hysterical. Yeah, I was a math nerd who took calculus for my electives in business school. :blink:

Jestgar Rising Star
There are only 10 types of people in the world -- those who understand binary, and those who don't."

I love that joke!!

CarlaB Enthusiast

Rachel, I think I know who it was who said you were not scientific ... :lol::lol::lol: ... he took your advice and is posting on the Funny Pages thread.

Cruiser Bob Newbie

Having just relocated to CA, thus I'm out of my food element, I'd have to say this is a wonderful BB, wtih lots of good people and information.

As for getting better - it takes time. I've been gluten-free for 7 years now, stalled on health issues for about 4 years, around a gluten-free family for over 12 years, and I'm still trying to learn how to operate this new body of mine.

I will say that progress is unique to all of us, but for me my most progressive moments come from alternative sources - not the medical community, but others who are going through similar things in their lives, reading a whole bunch and alternative medical practitioners. This thread has been most informative.

I've had a mercury suspicion for a while, but haven't chased it down. Mold - wow is my nose sensitive anymore, and living in an old structure - ok basically a "college" type apartment here in Tahoe has all sorts of icky smells - heck I can smell mold in buildings just walking by them. And they let the Fed Ex and UPS guys smoke in their trucks around here - ick on my gluten-free food orders. I've also noted that I can't tolerate many chemicals that ordinarily live in my shop - when I had one.

Bob

gluten-free-1999

Still working on the rest

CarlaB Enthusiast

Welcome, Bob!

We have been here for pages and pages hammering out why we didn't get better "just" going gluten-free. I agree with you on alternative meds ... researching on your own is best, too. That way you "hire" the doctor to help, but don't rely on him for your total health.

I DID have my amalgams out over 15 years ago. I'm so happy I did! I can smell some molds just like you mention.

Even though I prefer alternative medicine, I happen to be on a boatload of prescriptions right now! :P My Lyme doc is an alternative doc and even has acupuncture, supplements, etc. available in his office. He says that IF Lyme could be treated with alternative medicine, he would treat it that way (my doc's opinion). He's working on building my immune system, though, at the same time I'm on the meds.

I hope you get to the bottom of your health challenges. I assume you've looked into other food intolerances? Dairy? Eggs? Grains?

Stick around here, we have some fun and learn a lot.

dlp252 Apprentice
I'm doing good today so far. I talked to mom for about 1 hour yesterday. She told me that she didn't get to say goodbye to her mother either. Although her mother died of a heart attack, the point she was trying to make is that you don't usually get to say goodbye as in most cases death is quick/unplanned. Anyway I'll probably call his wife sometime in the next week or two and find out about dad's estate. Sound like, from talking to my mom that when he contacted us five years ago for info for his life insurance that he'd had a change of mind about leaving us anything. We also want to see if they are going to write an obit or not as we'd like a copy.

Glad to hear you are doing well today.

Hope you can get your appointment changed to earlier. :)

Yep, did indeed! It's so nice to not have to battle the heavy traffic at my normal time.

This is why it's SO important to treat each moment with each loved one in your life like it might be the last ... because sometime it will be.

You DID get to say goodbye to your dad! Last Thanksgiving ... I'm sure HE knew it was goodbye even if you weren't sure. Don't have regrets about any of your actions ... you did the right thing and your dad went knowing you love him. That's what's important.

I agree! For a long time after my dad died I went around telling everyone I loved them, but you know, time kind of snuck up on me...I think it's time to remind everyone again. That's one reason why every so often I tell you all how much you all have helped me!

Today....out of nowhere I am attacked for being against scientificness!! :blink:

Apparantly this conclusion about me came from the Rachelville sub-title "no scientificness here". :unsure:

So yeah....I guess that somehow implies that the thread is for bashing scientificness??? :unsure:

Yes...I am Rachel...and I HATE science!! :lol::lol::lol:

OMG...that is freakin hilarious. I mean....WTF??? :blink:

OMGosh how very funny! :lol: I can hardly believe it really.

As a scientist I'd like to mention that you are the better scientists I've "met". I'm sorry you weren't nerdly enough in appearance to actually adopt science as a profession, but I'm sure we could let you into the club if you promise to get some big thick glasses and sturdy, sensible shoes.

:lol:

Having just relocated to CA, thus I'm out of my food element, I'd have to say this is a wonderful BB, wtih lots of good people and information.

As for getting better - it takes time. I've been gluten-free for 7 years now, stalled on health issues for about 4 years, around a gluten-free family for over 12 years, and I'm still trying to learn how to operate this new body of mine.

I will say that progress is unique to all of us, but for me my most progressive moments come from alternative sources - not the medical community, but others who are going through similar things in their lives, reading a whole bunch and alternative medical practitioners. This thread has been most informative.

I've had a mercury suspicion for a while, but haven't chased it down. Mold - wow is my nose sensitive anymore, and living in an old structure - ok basically a "college" type apartment here in Tahoe has all sorts of icky smells - heck I can smell mold in buildings just walking by them. And they let the Fed Ex and UPS guys smoke in their trucks around here - ick on my gluten-free food orders. I've also noted that I can't tolerate many chemicals that ordinarily live in my shop - when I had one.

Hi Bob, welcome!!! Yes, it was because of the discussions we've had here that I even thought about the mercury issue. I sort of knew about the mold thing, but just was ignoring it for a long time. Golly, did you read the whole thread...if so I commend you, lol! Even reading part of it would be quite an accomplishment.

Rachel--24 Collaborator
As a scientist I'd like to mention that you are the better scientists I've "met". I'm sorry you weren't nerdly enough in appearance to actually adopt science as a profession, but I'm sure we could let you into the club if you promise to get some big thick glasses and sturdy, sensible shoes.

LMAO!!

:lol::lol:

Damn....I wasnt really aware of my nerdliness until quite recently...I think it was lurking within??

Anyways.....call me a late bloomer. :D

Apparantly, I do need the glasses and super sturdy shoes :huh: ....without them I seem to be mistaken for a mischief maker...gathering everyone who wants to rebel against science into my own private "science bashers club". :P

I need a makeover.....or a makeunder....or something... :lol::lol:

Does this mean I have to give up clothes shopping?? :o

P.S.

Are you really a scientist??? That is VERY cool. :)

Actually....before I became allergic to the world....I did have some interest in science.....although it was a completely different type of fascinating scientificness....and it didnt involve me being sick (which was good). :D

I was TOTALLY and COMPLETELY fascinated by crime solving. Used to watch Court TV non-stop...Forensic Files,...those types of shows. I didnt just "watch" though....I was always trying to solve the mystery....trying to put all the pieces together. <_<

In my mind I was there....solving the mystery and bringing down the bad guys! B)

I guess this is "kind of" the same. I'm still solving a mystery....piece by piece.....ultimately trying to take the bad guys down. ;)

Its just alot harder to focus now.....stupid toxins making my brain all fuzzy and stuff. :rolleyes:

Good thing I never became a detective huh?? :blink:

Rachel--24 Collaborator
Rachel, I think I know who it was who said you were not scientific ... :lol::lol::lol: ... he took your advice and is posting on the Funny Pages thread.

LOL...

Yeah...I think maybe he needs to "de-stress" a little?? :unsure:

Laughter is good medicine...I hope it will help. :D

Although after reading some posts on a more recent thread....I'm thinking he might need another dose of the funny pages. :rolleyes:

I dunno....this is the second time I've been attacked by the same poster in a weeks time. :huh:

I think maybe it all stems from the fact that I have an offensive science-hating thread which pollutes the board with its unsubstantiated fantasies and beliefs???

I think this could be the reason behind the attacks..... :unsure:

(see....I'm going into detective mode again ;) )

ROFLMAO

"Rachelville....a place to express disdain for fact and truth". The anti-science thread. :lol::lol:

Yeah....maybe I've had too much ice-cream today but I'm still finding this hilarious. :D

Oh...I went back on ice cream. :ph34r:

Mainly due to the fact that I was experiencing excrutiating head pain from all the "healthy" foods. :huh:

I actually found another person who seems to go through the same issues with the produce dept. feeling somewhat like a minefield. The culprit is FUNGUS. :angry:

So yeah....I think I'll stick to my ice cream...which is probably totally "dead" food....no chance for fungi survival. B)

It suits my needs for now....so I guess I gotta eat it. :P

Rachel--24 Collaborator
"There are only 10 types of people in the world -- those who understand binary, and those who don't."

I DONT GET IT?????? :unsure:

OMG....What does this mean??? Am I not qualified for scientism?? :o:ph34r:

Rachel--24 Collaborator
I will say that progress is unique to all of us, but for me my most progressive moments come from alternative sources - not the medical community, but others who are going through similar things in their lives, reading a whole bunch and alternative medical practitioners. This thread has been most informative.

Hi Bob :)

Welcome to the board....and also to Ca!!

I whole heartedly agree with your post. The medical community offered me nothing....instead of making steps forward I was actually taking big steps in the wrong direction. Having access to the internet and to alternative sources has been a "life-saver" for me.

Almost immediately after stepping into the world of alternative and integrative medicine I felt a huge weight lifted off of me. I am now filled with excitement for whats ahead....knowing that each step I make is going to bring me closer to reclaiming my health. Instead of the nightmare this started out as....it has now become a wonderful and enlightening journey. :)

I look forward to what each day will bring.

I'm glad you have found this thread to be a helpful resource. :)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,223
    • Most Online (within 30 mins)
      7,748

    Noddy989
    Newest Member
    Noddy989
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      @EricaFilpi, please tell us more about your recovery...did you need to take iron infusions or supplements? What other supplements are you taking? I'll assume you've been gluten-free since August.
    • joleenrae
      We have been tested and tested negative. But we have not done the gene testing. 
    • cristiana
      So true, @trents, I was a skeptic myself!  
    • trents
      Although I disagree with interjecting the element of dermatitis herpetiformis since this is not a real issue for the OP, I think Rogo72 gives good advice about how to navigate social situations as a celiac when finding yourself in unsympathetic company. It requires developing somewhat of a tuff skin and holding your ground in order to be safe. The psychology of these situations is that family and friends try to make you as the celiac feel that you have a mental problem rather than a medical one. The fact is, they are the ones with the mental problem (ignorance and arrogance). It helps to avoid the brow beatdown to reframe it in that sense. But at the same time you must avoid the temptation to develop bitterness toward them which will destroy relationships. Rise above that and keep this one issue in its place so that it doesn't commandeer the whole of the relationships involved. As I mentioned above, I'm sure we can all remember times when we misjudged others because we were ignorant of the facts. One thing that sometimes happens in the celiac social experience is when some of those who were skeptical and critical of a celiac friend or family member find out they themselves have celiac disease. Boy, how that can change their attitude! And keep in mind, some studies have shown that almost 50% of the first degree relatives of those with celiac disease will themselves develop celiac disease. So, @sillyyak52, you may have the last laugh!
    • EricaFilpi
      Hey SicilyGirl, I feel your pain, I am 51 and was diagnosed in August with Celiac and actually had to have iron transfusions because my iron was so low. I never had energy, going to one store wiped me out, it was horrible. Then the weirdest thing happened two weeks ago, I realized I had energy when I was talking on a phone and moving heavy Christmas boxes around like they were nothing, and then I ran off to make dinner. Talk to your doctor about your concerns and give yourself some grace. 
×
×
  • Create New...