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Omg...i Might Be On To Something

Rachel--24

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lonewolf Collaborator
lonewolf
Posted
Dear lonewolf,

I am not sure where you live. However, I was poking around on Google and found this forum, Open Original Shared Link which talks about dentists who remove metal amalgams. I also found some good sites about the dangers of mercury toxicity. I will send those URLs to you in a future post if you want. Just say the word! The people on this forum might be able to help you locate a dentist in your area doing this type of work.

Sincerely,

NoGluGirl

Thanks! I'm at work, so I'll check this out tonight. Any information you can give me will be much appreciated!

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lonewolf Collaborator
lonewolf
Posted
As far as cost...my portion of the whole process (for 11 amalgam removals--5 crowns) was around $8,000 I think. I only have a $2,000 dental benefit each year and even then I couldn't use all of it.

:o:(

Yikes! We have a $1500 max each year. I don't think I have 11 amalgams left though. This will be spread out over several years if it's this expensive. Good thing I'm not so sick I feel desperate.

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
As far as cost...my portion of the whole process (for 11 amalgam removals--5 crowns) was around $8,000 I think. I only have a $2,000 dental benefit each year and even then I couldn't use all of it.

Yikes is right! :o

I dont rememeber my bill but I only had 2 fillings removed and it was done in one visit. I did have two other composites that were put in by the regular dentist (that I dont like :angry: ) and since we didnt know what materials were used he removed those and used materials that I tested compatible with.

I know my bill had to of been around $1000....not much more or not much less. I had to pay about $350 for the compatibility test which was done by an outside lab.

I probably could have gotten some or all of it paid for by insurance but I was too sick to figure stuff like that out. :huh: I just wanted the fillings removed.

Yeah...I would say I was beyond desperate. :lol:

Rachel--24 Collaborator
Rachel--24
Posted
  • Author

Can you get those chlorine filter thingys for the bath (not showerhead)?? :unsure:

Anyone know??

AndreaB Contributor
AndreaB
Posted
Can you get those chlorine filter thingys for the bath (not showerhead)?? :unsure:

Anyone know??

I know the guy we bought stuff from doesn't sell anything like that. I had mentioned the kids and baths. I would assume no because bath spouts are all different sizes.

For Seth's baths I just use the showerhead to fill up his tub. Could you do that with your baths?

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
Open Original Shared Link

Carla...that is an awesome list of mercury free dentists!!

Why couldnt I find anything like that when I was desperately searching?? My brain wasnt working all that well but I would have been really happy to have a list like that in front of me!! :o

I did end up with a good dentist though...looks like there are quite a few in my area...I'm happy with who I got. :)

I would recommend Dr. Adams to anyone who's looking in the Bay Area. :)

jerseyangel Proficient
jerseyangel
Posted
Can you get those chlorine filter thingys for the bath (not showerhead)?? :unsure:

Anyone know??

Here's a company that has one--it looks simple enough, and not terribly expensive. I assume you could use it without the bubbles....

Open Original Shared Link

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CarlaB Enthusiast
CarlaB
Posted
Can you get those chlorine filter thingys for the bath (not showerhead)?? :unsure:

Anyone know??

How about filling up the bath from the shower? :P

dlp252 Apprentice
dlp252
Posted
:o:(

Yikes! We have a $1500 max each year. I don't think I have 11 amalgams left though. This will be spread out over several years if it's this expensive. Good thing I'm not so sick I feel desperate.

Yes, and keep in mind that that included replacing 5 crowns which are way more expensive. On almost all of them he had to put in a "post" whatever that means, which also cost more. And, several of the teeth were so drilled out to begin with that he had to build some of them up. Stupid amalgams. :angry:

My dentist was able to give me an estimate before we began of what my share would be. The posts and build ups were not part of that because those were things he couldn't tell until got in there.

Also, he told me that even porcelain crowns contain metal...at least the ones put in by my "regular" dentist did, so even those would not necessarily be good if there is still amalgam under there (which was the case for me).

dlp252 Apprentice
dlp252
Posted
I would recommend Dr. Adams to anyone who's looking in the Bay Area. :)

Me too, lol. He has quite the sense of humor, lol.

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
Here's a company that has one--it looks simple enough, and not terribly expensive. I assume you could use it without the bubbles....

Open Original Shared Link

Thanks Patti!

I wonder if they have these kinds of things at Bed Bath and Beyond or places like that....I'm gonna look around. I might end up ordering from this site if I dont find anything in the store. This gives me a better idea of what I'm looking for. :)

Anyone know about how long they last??

AndreaB Contributor
AndreaB
Posted
Anyone know about how long they last??

Mine lasts six months.

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
Mine lasts six months.

Thanks Andrea. I just did a serach and OMG...this is not as difficult as I thought it would be. :rolleyes:

The one Patti posted seemed pretty easy to use....no installation even. I found a bunch more...they are just balls that hang from the bath and the water passes over it while it runs. After the bath is full you kind of drag the ball through the water a few times. (I guess this collects the clorine and other bad stuff). The prices vary from site to site.

I also found some crystals that you can pour into the bath which remove chlorine as well.

Open Original Shared Link

One of the sites said it lasts 300 baths or 1 year.....not bad.

Do these things really work?? I think it would really help since I read that NDF works alot better on the metals when you remove chlorine from the water.....since it will always bind with chlorine first.

Also...It seems like chlorine is not good for us!

happygirl Collaborator
happygirl
Posted

x

CarlaB Enthusiast
CarlaB
Posted

Laura, hang in there, this is good progress. Your mystery illness is identified and you are treating it. It's a tough pill to swallow, and I sometimes still can't believe it myself, but it's really good to know what it is so you can fix it.

What abx is he starting you on?

AndreaB Contributor
AndreaB
Posted
Just wanted to give you a quick update....made a big change today.

Had an app't with my doctor and based on my symtpoms, my equivocal testing, my + RMSF, + mycoplasma, that we are going to start treating for LD and its other issues. I actually was able to start today.

Thanks for the update Laura. I've been wondering how you were doing.

What is RMSF?

Keep us posted on how the IV goes.

We are here for your support as well, if you need it. :wub:

CarlaB Enthusiast
CarlaB
Posted
What is RMSF?

Rocky Mountain Spotted Fever

happygirl Collaborator
happygirl
Posted

x

CarlaB Enthusiast
CarlaB
Posted

Omnicef? I just started that one Friday.

Judyin Philly Enthusiast
Judyin Philly
Posted

PRAYERS FOR ALL YOU LADIES..

SO MUCH GOING ON HERE. JUST WANT YOU TO KNOW I CARE.

LAURA, WOW AFTER ALL THIS TIME..FINALLY A DX.

JUDY

happygirl Collaborator
happygirl
Posted

x

CarlaB Enthusiast
CarlaB
Posted
Carla, Yes, I think thats the one. I am going to start it probably over the weekend.

I jumped in at the full dose on Friday night, started herxing Saturday. I'm still feeling bad now. You might want to start slow. I'm on so many things though, when I started all the first stuff I didn't herx for a month.

Keep us posted. I'm actually excited for you that you FINALLY know what's going on.

Has your doc started you on probiotics?

happygirl Collaborator
happygirl
Posted

x

dlp252 Apprentice
dlp252
Posted
xoxo

Wow, thanks for the update and I'm so happy that at least you have a diagnosis and can start treatments. It sounds like a great plan to start your meds as few at a time as possible to know which one is the culprit if you react.

dlp252 Apprentice
dlp252
Posted
PRAYERS FOR ALL YOU LADIES..

SO MUCH GOING ON HERE. JUST WANT YOU TO KNOW I CARE.

LAURA, WOW AFTER ALL THIS TIME..FINALLY A DX.

JUDY

Hi Judy! Anything new with YOUR testing?

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    • trents
      Autoimmune Reaction to SO many foods

      By trents · Posted

      I'm a little confused. In your second post you said, "but these symptoms have been ongoing for a long time before the pregnancy" while in your most recent post you say, "I was doing a lot better on the AIP diet. However, I was unable to do the full reintroduction process because I went off the AIP diet when I got pregnant and was experiences chronic nausea." CBC = Complete Blood Count. This is the typical bloodwork most people would have done routinely with an annual wellness checkup. I would include things like iron levels, various blood cell counts including reds and whites and other infection fighters. CMP = Complete Metabolic Panel. This would measure things like blood sugar, kidney and liver function, plasma proteins and various enzymes. Non cellular things that the body produces. Also typical of an annual wellness check. Have you tried cutting out dairy and oats? These two are the most common cross reactors in the celiac community. I know it must be tough trying to get adequate calories and nutrition when you are pregnant while at the same time eliminating foods that are good sources of those things.
    • Maura Gissen
      Autoimmune Reaction to SO many foods

      By Maura Gissen · Posted

      They did. I was doing a lot better on the AIP diet. However, I was unable to do the full reintroduction process because I went off the AIP diet when I got pregnant and was experiences chronic nausea. This is what makes me believe it's food related.  I do check all of my food products and supplements and I am very careful about them being gluten free and trying to stay away from corn starch etc. However, I am eating gluten free breads that sometimes have rice flour, yeast, etc. - I seem to do fine with these breads/bread products some days, but then am sick other days.  I have never really had any GI symptoms outside of bloating. My symptoms are dizziness, brain fog, and a general feeling of unwellness or malaise, sort of like when you're going to get the flu.  I have had a lot of bloodwork done over the last three years, but I don't recall doing the CBC, CMP, or a celiac-specific test recently. That's helpful so that could at least provide some insight to see if I'm still being exposed.  Do you see most individual with celiacs having to take a period of time away from even gluten free breads and other cross-reactive foods to let their guts heal? I'm not sure how restrictive to get with my diet again since it's so challenging. 
    • trents
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      Did the symptoms commence after you discontinued the AIP diet? Have you checked all nutritional supplements and oral hygiene products for possible gluten content? Have you recently checked all the labels of purchased processed foods in your pantry to check for formulation changes that might have introduced gluten? Historically, when "glutened" did you have GI symptoms or were you a "silent" celiac whose symptoms were non GI. Is what you are experiencing now like what you were experiencing at the time of diagnosis? Have you had recent blood work done (CBC and CMP) and if so, were there any parameters out of norm? I know you have Hashimoto's but you say that is well controlled now? It certainly wouldn't hurt to get celiac antibodies rechecked. Because you are essentially gluten free I would not expect to see any big departures from normal levels but if there are even weak positives it could indicate you are getting glutened from some unexpected source.
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      Autoimmune Reaction to SO many foods

      By Maura Gissen · Posted

      Hi Trent! Thanks so much for your warm welcome and questions! They do, but these symptoms have been ongoing for a long time before the pregnancy. However, it's hard for me to know what's a celiac response vs. a Hashimotos one. I haven't, maybe it's worth getting those checked again? 
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      Autoimmune Reaction to SO many foods

      By trents · Posted

      Welcome to the forum, @Maura Gissen! Don't those same symptoms often come along with the territory when pregnant? And then throw in Hashimoto's.  Have you had your celiac antibody levels checked recently?
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