Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something


Rachel--24

Recommended Posts

lonewolf Collaborator
Dear lonewolf,

I am not sure where you live. However, I was poking around on Google and found this forum, Open Original Shared Link which talks about dentists who remove metal amalgams. I also found some good sites about the dangers of mercury toxicity. I will send those URLs to you in a future post if you want. Just say the word! The people on this forum might be able to help you locate a dentist in your area doing this type of work.

Sincerely,

NoGluGirl

Thanks! I'm at work, so I'll check this out tonight. Any information you can give me will be much appreciated!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 33.4k
  • Created
  • Last Reply
lonewolf Collaborator
As far as cost...my portion of the whole process (for 11 amalgam removals--5 crowns) was around $8,000 I think. I only have a $2,000 dental benefit each year and even then I couldn't use all of it.

:o:(

Yikes! We have a $1500 max each year. I don't think I have 11 amalgams left though. This will be spread out over several years if it's this expensive. Good thing I'm not so sick I feel desperate.

Rachel--24 Collaborator
As far as cost...my portion of the whole process (for 11 amalgam removals--5 crowns) was around $8,000 I think. I only have a $2,000 dental benefit each year and even then I couldn't use all of it.

Yikes is right! :o

I dont rememeber my bill but I only had 2 fillings removed and it was done in one visit. I did have two other composites that were put in by the regular dentist (that I dont like :angry: ) and since we didnt know what materials were used he removed those and used materials that I tested compatible with.

I know my bill had to of been around $1000....not much more or not much less. I had to pay about $350 for the compatibility test which was done by an outside lab.

I probably could have gotten some or all of it paid for by insurance but I was too sick to figure stuff like that out. :huh: I just wanted the fillings removed.

Yeah...I would say I was beyond desperate. :lol:

Rachel--24 Collaborator

Can you get those chlorine filter thingys for the bath (not showerhead)?? :unsure:

Anyone know??

AndreaB Contributor
Can you get those chlorine filter thingys for the bath (not showerhead)?? :unsure:

Anyone know??

I know the guy we bought stuff from doesn't sell anything like that. I had mentioned the kids and baths. I would assume no because bath spouts are all different sizes.

For Seth's baths I just use the showerhead to fill up his tub. Could you do that with your baths?

Rachel--24 Collaborator
Open Original Shared Link

Carla...that is an awesome list of mercury free dentists!!

Why couldnt I find anything like that when I was desperately searching?? My brain wasnt working all that well but I would have been really happy to have a list like that in front of me!! :o

I did end up with a good dentist though...looks like there are quite a few in my area...I'm happy with who I got. :)

I would recommend Dr. Adams to anyone who's looking in the Bay Area. :)

jerseyangel Proficient
Can you get those chlorine filter thingys for the bath (not showerhead)?? :unsure:

Anyone know??

Here's a company that has one--it looks simple enough, and not terribly expensive. I assume you could use it without the bubbles....

Open Original Shared Link


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CarlaB Enthusiast
Can you get those chlorine filter thingys for the bath (not showerhead)?? :unsure:

Anyone know??

How about filling up the bath from the shower? :P

dlp252 Apprentice
:o:(

Yikes! We have a $1500 max each year. I don't think I have 11 amalgams left though. This will be spread out over several years if it's this expensive. Good thing I'm not so sick I feel desperate.

Yes, and keep in mind that that included replacing 5 crowns which are way more expensive. On almost all of them he had to put in a "post" whatever that means, which also cost more. And, several of the teeth were so drilled out to begin with that he had to build some of them up. Stupid amalgams. :angry:

My dentist was able to give me an estimate before we began of what my share would be. The posts and build ups were not part of that because those were things he couldn't tell until got in there.

Also, he told me that even porcelain crowns contain metal...at least the ones put in by my "regular" dentist did, so even those would not necessarily be good if there is still amalgam under there (which was the case for me).

dlp252 Apprentice
I would recommend Dr. Adams to anyone who's looking in the Bay Area. :)

Me too, lol. He has quite the sense of humor, lol.

Rachel--24 Collaborator
Here's a company that has one--it looks simple enough, and not terribly expensive. I assume you could use it without the bubbles....

Open Original Shared Link

Thanks Patti!

I wonder if they have these kinds of things at Bed Bath and Beyond or places like that....I'm gonna look around. I might end up ordering from this site if I dont find anything in the store. This gives me a better idea of what I'm looking for. :)

Anyone know about how long they last??

AndreaB Contributor
Anyone know about how long they last??

Mine lasts six months.

Rachel--24 Collaborator
Mine lasts six months.

Thanks Andrea. I just did a serach and OMG...this is not as difficult as I thought it would be. :rolleyes:

The one Patti posted seemed pretty easy to use....no installation even. I found a bunch more...they are just balls that hang from the bath and the water passes over it while it runs. After the bath is full you kind of drag the ball through the water a few times. (I guess this collects the clorine and other bad stuff). The prices vary from site to site.

I also found some crystals that you can pour into the bath which remove chlorine as well.

Open Original Shared Link

One of the sites said it lasts 300 baths or 1 year.....not bad.

Do these things really work?? I think it would really help since I read that NDF works alot better on the metals when you remove chlorine from the water.....since it will always bind with chlorine first.

Also...It seems like chlorine is not good for us!

happygirl Collaborator

x

CarlaB Enthusiast

Laura, hang in there, this is good progress. Your mystery illness is identified and you are treating it. It's a tough pill to swallow, and I sometimes still can't believe it myself, but it's really good to know what it is so you can fix it.

What abx is he starting you on?

AndreaB Contributor
Just wanted to give you a quick update....made a big change today.

Had an app't with my doctor and based on my symtpoms, my equivocal testing, my + RMSF, + mycoplasma, that we are going to start treating for LD and its other issues. I actually was able to start today.

Thanks for the update Laura. I've been wondering how you were doing.

What is RMSF?

Keep us posted on how the IV goes.

We are here for your support as well, if you need it. :wub:

CarlaB Enthusiast
What is RMSF?

Rocky Mountain Spotted Fever

happygirl Collaborator

x

CarlaB Enthusiast

Omnicef? I just started that one Friday.

Judyin Philly Enthusiast

PRAYERS FOR ALL YOU LADIES..

SO MUCH GOING ON HERE. JUST WANT YOU TO KNOW I CARE.

LAURA, WOW AFTER ALL THIS TIME..FINALLY A DX.

JUDY

happygirl Collaborator

x

CarlaB Enthusiast
Carla, Yes, I think thats the one. I am going to start it probably over the weekend.

I jumped in at the full dose on Friday night, started herxing Saturday. I'm still feeling bad now. You might want to start slow. I'm on so many things though, when I started all the first stuff I didn't herx for a month.

Keep us posted. I'm actually excited for you that you FINALLY know what's going on.

Has your doc started you on probiotics?

happygirl Collaborator

x

dlp252 Apprentice
xoxo

Wow, thanks for the update and I'm so happy that at least you have a diagnosis and can start treatments. It sounds like a great plan to start your meds as few at a time as possible to know which one is the culprit if you react.

dlp252 Apprentice
PRAYERS FOR ALL YOU LADIES..

SO MUCH GOING ON HERE. JUST WANT YOU TO KNOW I CARE.

LAURA, WOW AFTER ALL THIS TIME..FINALLY A DX.

JUDY

Hi Judy! Anything new with YOUR testing?

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,309
    • Most Online (within 30 mins)
      7,748

    jarheadmp3
    Newest Member
    jarheadmp3
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.8k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Cathijean90! I went 13 years from the first laboratory evidence of celiac disease onset before I was diagnosed. But there were symptoms of celiac disease many years before that like a lot of gas. The first laboratory evidence was a rejected Red Cross blood donation because of elevated liver enzymes. They assume you have hepatitis if your liver enzymes are elevated. But I was checked for all varieties of hepatitis and that wasn't it. Liver enzymes continued to slowly creep up for another 13 years and my PCP tested me for a lot of stuff and it was all negative. He ran out of ideas. By that time, iron stores were dropping as was albumin and total protein. Finally, I took it upon myself to schedule an appointment with a GI doc and the first thing he did was test me for celiac disease. I was positive of course. After three months of gluten free eating the liver enzymes were back in normal range. That was back in about 1992. Your story and mine are more typical than not. I think the average time to diagnosis from the onset of symptoms and initial investigation into causes for symptom is about 10 years. Things are improving as there is more general awareness in the medical community about celiac disease than there used to be years ago. The risk of small bowel lymphoma in the celiac population is 4x that of the general population. That's the bad news is.  The good news is, it's still pretty rare as a whole. Yes, absolutely! You can expect substantial healing even after all these years if you begin to observe a strict gluten free diet. Take heart! But I have one question. What exactly did the paperwork from 15 years ago say about your having celiac disease? Was it a test result? Was it an official diagnosis? Can you share the specifics please? If you have any celiac blood antibody test results could you post them, along with the reference ranges for each test? Did you have an endoscopy/biopsy to confirm the blood test results?
    • Cathijean90
      I’ve just learned that I had been diagnosed with celiac and didn’t even know. I found it on paperwork from 15 years ago. No idea how this was missed by every doctor I’ve seen after the fact. I’m sitting here in tears because I have really awful symptoms that have been pushed off for years onto other medical conditions. My teeth are now ruined from vomiting, I have horrible rashes on my hands, I’ve lost a lot of weight, I’m always in pain, I haven’t had a period in about 8-9 months. I’m so scared. I have children and I saw it can cause cancer, infertility, heart and liver problems😭 I’ve been in my room crying for the last 20minutes praying. This going untreated for so long has me feeling like I’m ruined and it’s going to take me away from my babies. I found this site googling and I don’t know really what has me posting this besides wanting to hear from others that went a long time with symptoms but still didn’t know to quit gluten. I’m quitting today, I won’t touch gluten ever again and I’m making an appointment somewhere to get checked for everything that could be damaged. Is this an automatic sentence for cancer and heart/liver damage after all these symptoms and years? Is there still a good chance that quitting gluten and being proactive from here on out that I’ll be okay? That I could still heal myself and possibly have more children? Has anyone had it left untreated for this amount of time and not had cancer, heart, fertility issues or liver problems that couldn’t be fixed? I’m sure I sound insane but my anxiety is through the roof. I don’t wanna die 😭 I don’t want something taking me from my babies. I’d gladly take anyone’s advice or hear your story of how long you had it before being diagnosed and if you’re still okay? 
    • trents
      Genetic testing cannot be used to diagnose celiac disease but it can be used to rule it out and also to establish the potential to develop celiac disease. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% actually develop it. To develop celiac disease when you have the genetic potential also requires some kind of trigger to turn the latent genes "on", as it were. The trigger can be a lot of things and is the big mystery component of the celiac disease puzzle at this point in time with regard to the state of our knowledge.  Your IGA serum score would seem to indicate you are not IGA deficient and your tTG-IGA score looks to be in the normal range but in the future please include the reference ranges for negative vs. positive because different labs used different reference ranges. There is no industry standard.
    • Scott Adams
      Since nearly 40% of the population have the genes for celiac disease, but only ~1% end up getting it, a genetic test will only tell you that it is possible that you could one day get celiac disease, it would not be able to tell whether you currently have it or not.
    • KDeL
      so much to it.  the genetic testing will help if i don’t have it right? If theres no gene found then I definitely don’t have celiac?  I guess genetic testing, plus ruling out h.pylori, plus gluten challenge will be a good way to confirm yes or no for celiac. 
×
×
  • Create New...