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Omg...i Might Be On To Something


Rachel--24

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queenofhearts Explorer
Oh, poop. I didn't realize you couldn't eat corn. Sorry, Rachel. :(

I wonder if anybody's ever made millet tortillas....

Seems to me I read somewhere about gluten-free "flour" tortillas, but I don't know what grains they contain. (Not corn, though, I would presume?)

Leah


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Mango04 Enthusiast
Seems to me I read somewhere about gluten-free "flour" tortillas, but I don't know what grains they contain. (Not corn, though, I would presume?)

Leah

Brown rice and tapioca...there's also safflower oil and "vegetable gum." They're made by Food For Life.

Green12 Enthusiast
Brown rice and tapioca...there's also safflower oil and "vegetable gum." They're made by Food For Life.

Ah, my Food For Life brown rice tortillas, how I miss them so..... :(

Mango04 Enthusiast
Ah, my Food For Life brown rice tortillas, how I miss them so..... :(

I saw them for the first time ever today at the co-op...and kind of did a little dance. Don't worry though, you're not missing much B)

Fiddle-Faddle Community Regular
Olive oil - HOLY SPIT, BATMAN!!!!

Open Original Shared Link

ChelsE--you might want to start a whole new thread on this one--lotta people might miss it if they're not following this million-page thread!

Green12 Enthusiast
I saw them for the first time ever today at the co-op...and kind of did a little dance. Don't worry though, you're not missing much B)

You didn't like them Mango? I LOVED them, they were the thing I looked forward to each day :lol::lol: How sad that a tortilla would bring me so much joy!

AndreaB Contributor
Olive oil - HOLY SPIT, BATMAN!!!!

Open Original Shared Link

Do you have any more "good" news Chelsea?

Will people ever leave our food supplies alone? :angry:


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Green12 Enthusiast
ChelsE--you might want to start a whole new thread on this one--lotta people might miss it if they're not following this million-page thread!

I agree, this news must be spread.

AndreaB Contributor
I saw them for the first time ever today at the co-op...and kind of did a little dance. Don't worry though, you're not missing much B)

We just had them tonight for dinner, tacos. We like them! :P

rinne Apprentice

ChelsE thanks for the link.

I was at the deli yesterday talking to the owner about food allergies and such and he told me his cousin just found out she has a soy allergy and it is in everything, even the olive oil that says it is pure olive oil. :angry:

AndreaB Contributor
ChelsE thanks for the link.

I was at the deli yesterday talking to the owner about food allergies and such and he told me his cousin just found out she has a soy allergy and it is in everything, even the olive oil that says it is pure olive oil. :angry:

So how do we find out if ours is pure or not. Have any of you tried grapeseed oil. I use grapeseed in my baking. That's good although expensive. Our olive oil we bought last time is from spectrum, from Spain. It says 100% first cold pressed extra virgin unrefined organic olive oil. It's a big can type (so it's dark inside :) ) 3 liter container.

penguin Community Regular
So how do we find out if ours is pure or not. Have any of you tried grapeseed oil. I use grapeseed in my baking. That's good although expensive. Our olive oil we bought last time is from spectrum, from Spain. It says 100% first cold pressed extra virgin unrefined organic olive oil. It's a big can type (so it's dark inside :) ) 3 liter container.

I listed the Dr. Weil link on how to find actual olive oil on the thread y'all requested I start :)

Real olive oil should have a seal of some kind from an organization.

Rachel--24 Collaborator

ChelsE,

That really sucks about the olive oil!!! :angry:

I react to olive oil sometimes....I wonder if those times I had bought stuff of lesser quality....maybe had some soy in it?? :unsure:

I've thrown more than one bottle of the stuff away cuz of it causing reactions. I'll have to check out the new thread you posted to find out where I can get "real" olive oil.

If the ingredients say 100% olive oil....isnt that what it is??? If thats what it says does it mean its pure??? :huh:

Rachel--24 Collaborator
Rachel,

This is not a lecture, just an observation, but you know the saying, "life is what happens when you are busy making plans...", or something like that? I am in total support of focusing on one's health, but I would hate for anyone to let something pass them by because they were waiting for the "right time". You know what I mean?? Because there never really is the "right time" for anything.

Julie,

Yeah....what you're saying is very true. I'm sure lots of great things have passed me by the last few years and it makes me sad. I thought about that saying alot....it runs through my head all the time....especially as more time passes me by. The sickness has actually taken things away from me...at one point it seemed I would lose everything that meant anything to me at all. I tried to be in a relationship a couple years back but I was just too sick. I had to end it. I never want to feel that way again and that was before all the diet changes.

I certainly wouldnt want to wait until I'm 100% better....just needed to know what was causing the illness and how to control the symptoms so that I can function half-way normally. I did accomplish much of that this past year. Got myself back to work, figured out alot with the diet and supplements just during the past few months on this thread.

I got hurt (a broken heart) at the beginning of all this and maybe never really healed from it cuz of all the focus on my health and being unable to totally move on like I would have under normal circumstances. Maybe I'm afraid of going through all that emotional stuff again...afraid of getting hurt again, etc. I think I figure being sick is bad enough but we all know how stress can worsen things dramatically.

I think the stress I went through in my break-up when I first got sick took so much out of me....I dont think I ever would have gotten to this level of damage had it not been such a stressful time. The stress was not short term. It was chronic and lasted a couple years before the break-up and even over a year after the break-up. Not a good thing for my health at all. :(

I think I've just been protecting myself from anything that might add stress to my life while I heal. Does that make sense? I want to make the best choices for myself so that I dont end up in that same type of relationship again.

Its always the same....I meet a great person, am very happy, they sweep me off my feet, treat me sooo good and then I fall for them. Once that happens I find out they are controlling, jealous, and untrusting. I dont know what it is??? None of my exes are bad people....maybe somehow I just bring out the worst in people...I dunno. :( I dont cheat, I'm loyal and faithful but the people I'm with never see this while we're together. They only see the good in me after the relationship has been destroyed. It sucks and I dont want to go through it again.

I truelly loved the person I was with when I got sick and I whole heartedely believe that the stress from that relationship triggered all this sickness. Because I never left, cuz I wanted it to work, cuz I thought it could get better and because I was in love. In the end all I got was sick.

dlp252 Apprentice

Hi everyone I'm back. Went to Las Vegas for a few days. Didn't win anything, and left plenty of money there, lol.

Think I got glutened or dairied Friday (but had the symptoms yesterday). The whole trip was great...had a slight stomach ache the first day, but not bad. Then yesterday I had D from the moment I woke up. It was pretty bad. I could tell as soon as I finished my lunch yesterday that it was going to come out the other end in a few minutes (and it did). The problem was something that I ate on Friday though, because I had D as soon as I woke up. So whatever I ate on Friday caused my digestive system to go into hypermode, lol. I was being pretty careful, eating mostly stuff I brought with me, but did eat at least one meal a day at a restaurant or buffet, and I tried to pick stuff that seemed safe like plain steamed rice and carved roast beef (that I watched them carve in front of me) and plain veggies. I did eat some sushi (only two small pieces each day) both on Thursday and Friday, THAT might have done it...it didn't look like it had soy sauce in it, but the crab may have been the culprit since I couldn't be sure it was real crab. And, now that I think of it, it may have had rice vinegar in it, which I'm not sure is safe. It was a stupid thing to eat, but I miss sushi, lol. I also had Starbucks every day but I watched them make my stuff to make sure they used soy milk (which only seems to bother me if I have too much in one day) instead of dairy--there was only one time that I couldn't see them make my drink and that was towards the beginning of my trip.

Yes BALANCE and clumsiness is definitely an issue with me when I have a reaction. I was way off balance yesterday and did crash into a few things. Felt light headed most of the day. I also couldn't think straight and had hard time making decisions. I also had a bad headache most of the later half of the day. My vision was also much blurrier. By mid afternoon I was soooo tired I could hardly keep myself upright...unfortunately we had to check out of our room at 11:00 so couldn't even lay down. I think I could have slept for a while had I been able to lay down.

ChelsE - thanks for the birthday wishes and the link.

I'm exhausted today, but I'll read the link and the Olive Oil thread tomorrow. :)

Rachel - glad you are having fun with your new friend! The one statement you made about not wanting to get hurt hit home with me. I've turned down invitations for the same reason and am just about in the same place with not wanting to have a relationship yet. I actually think cutting down on the stress was a good thing for your healing.

About the earring thing...I've been trying to wear them a little more lately. They still cause a little weeping, but not nearly as bad as before I went gluten/dairy free. I'm thinking the longer I am free of the stuff that I'm intolerant to, the better it might get, although I may never be able to wear them every day.

Green12 Enthusiast
Hi everyone I'm back. Went to Las Vegas for a few days. Didn't win anything, and left plenty of money there, lol.

Hi Donna, welcome back :) So sorry something you ate made you sick, get some rest and I hope you feel better real soon!

Mango04 Enthusiast
You didn't like them Mango? I LOVED them, they were the thing I looked forward to each day :lol::lol: How sad that a tortilla would bring me so much joy!

I was actually lying for the sake of the people on this thread who might not be able to eat them :ph34r:. Then I realized my avatar is of me eating pizza (need to change that :)), so that was kind of twisted logic. My true opinion of the tortillas:

They are really good and I am really excited about them :D. I made wraps for lunch yesterday and they were quite tasty.

Rachel--24 Collaborator
I was actually lying for the sake of the people on this thread who might not be able to eat them :ph34r:. Then I realized my avatar is of me eating pizza (need to change that :)), so that was kind of twisted logic. My true opinion of the tortillas:

They are really good and I am really excited about them :D. I made wraps for lunch yesterday and they were quite tasty.

LOL....Mango!!! How cruel and insensitive of you!!!

Just kidding. :D

I liked the tortillas alot too. They were yummy and someday I will eat them again!

AndreaB Contributor
Julie,

I think I've just been protecting myself from anything that might add stress to my life while I heal. Does that make sense? I want to make the best choices for myself so that I dont end up in that same type of relationship again.

Rachel,

I totally understand. It's very traumatic getting over a break up and the added stress, from what I've read, could have made things worse. Take care of yourself and let things progress naturally. If it is meant to be a more serious relationship than things will turn that direction. Easier said than done according to my past. :P You sound like a real nice person and if men can't see that than you are better of without a serious relationship. :( (I know that is also hard sometimes.)

Rachel--24 Collaborator
Yes BALANCE and clumsiness is definitely an issue with me when I have a reaction. I was way off balance yesterday and did crash into a few things. Felt light headed most of the day. I also couldn't think straight and had hard time making decisions. I also had a bad headache most of the later half of the day. My vision was also much blurrier. By mid afternoon I was soooo tired I could hardly keep myself upright...unfortunately we had to check out of our room at 11:00 so couldn't even lay down. I think I could have slept for a while had I been able to lay down.

Donna,

Welcome back!! :)

Sorry you got glutened on your trip. Your reaction is pretty much identical to mine. The same light headedness, unclear thinking, crashing into stuff, headache and blurred vision. I also got reflux too and yes, my ears got infected again for a few days.

I had to leave work early on Fri. cuz I was just sooo tired I could barely stand. Slept all day Friday and only got up to go to the movies. Slept most of Saturday and I've already napped once today. I'd still be sleeping except for getting woken up by the doorbell. The other symptoms are alot better but I just got so drained this time!

Rachel,

I totally understand. It's very traumatic getting over a break up and the added stress, from what I've read, could have made things worse. Take care of yourself and let things progress naturally. If it is meant to be a more serious relationship than things will turn that direction. Easier said than done according to my past. :P You sound like a real nice person and if men can't see that than you are better of without a serious relationship. :( (I know that is also hard sometimes.)

Thanks Andrea :)

Thats pretty much my attitude....go slow, let things happen naturally and if somethings meant to be it will happen when its time....and when I'm ready. :)

I think I'm more ready now than I've ever been since getting sick cuz just the fact that I'm going out, having a good time, and even having these thoughts is a huge change in me.

Green12 Enthusiast
Julie,

Yeah....what you're saying is very true. I'm sure lots of great things have passed me by the last few years and it makes me sad. I thought about that saying alot....it runs through my head all the time....especially as more time passes me by. The sickness has actually taken things away from me...at one point it seemed I would lose everything that meant anything to me at all. I tried to be in a relationship a couple years back but I was just too sick. I had to end it. I never want to feel that way again and that was before all the diet changes.

I certainly wouldnt want to wait until I'm 100% better....just needed to know what was causing the illness and how to control the symptoms so that I can function half-way normally. I did accomplish much of that this past year. Got myself back to work, figured out alot with the diet and supplements just during the past few months on this thread.

I got hurt (a broken heart) at the beginning of all this and maybe never really healed from it cuz of all the focus on my health and being unable to totally move on like I would have under normal circumstances. Maybe I'm afraid of going through all that emotional stuff again...afraid of getting hurt again, etc. I think I figure being sick is bad enough but we all know how stress can worsen things dramatically.

I think the stress I went through in my break-up when I first got sick took so much out of me....I dont think I ever would have gotten to this level of damage had it not been such a stressful time. The stress was not short term. It was chronic and lasted a couple years before the break-up and even over a year after the break-up. Not a good thing for my health at all. :(

I think I've just been protecting myself from anything that might add stress to my life while I heal. Does that make sense? I want to make the best choices for myself so that I dont end up in that same type of relationship again.

Its always the same....I meet a great person, am very happy, they sweep me off my feet, treat me sooo good and then I fall for them. Once that happens I find out they are controlling, jealous, and untrusting. I dont know what it is??? None of my exes are bad people....maybe somehow I just bring out the worst in people...I dunno. :( I dont cheat, I'm loyal and faithful but the people I'm with never see this while we're together. They only see the good in me after the relationship has been destroyed. It sucks and I dont want to go through it again.

I truelly loved the person I was with when I got sick and I whole heartedely believe that the stress from that relationship triggered all this sickness. Because I never left, cuz I wanted it to work, cuz I thought it could get better and because I was in love. In the end all I got was sick.

Rachel,

All of these feelings/points are very valid, and I think when it come to the cycle of illness and the emotional aspects of it, very normal.

There is NO WAY you bring the worst out in other guys, no way! That is crazy talk. Look at you on this board, people flock to you :lol: You bring out the best in everybody here. It sounds like your trust and commitment, and kindness and love, and heart and spirit was taken advantage of. And that is not on you.

Am I going to have to get all Oprah/Dr. Phil on you now?? Just kidding :lol::lol: Well, not really :lol: . Something Oprah has often said really has always resonated with me, that we attract the people in our lives that will open our eyes to parts of ourselves that we don't see, and great lessons can be learned from each and every person that we cross paths with, negative and positive experiences both. If this is true, every guy you have had a relationship was part of a bigger plan and allowed you to learn more about yourself, your strengths and weaknesses. She claims the pattern will keep repeating itself until the lesson is learned, so if you are attracting the same sort of guys and it always seems to play out in the same way, maybe there is something needing to be looked at a little closer? Just a thought.

Maybe for you getting sick, while not a fun thing, was in a way a wake up call on so many levels. To be better to your body, to connect with yourself, to get away from an unhealthy relationship, to stop allowing you to let people and life in general treat you in a certain way, etc. etc. etc, whatever the case may be. I often think this is what happened to me, the universe giving me a sign I was heading in the wrong direction in my life and to stand up and demand something better for myself.

I know it's scary putting yourself out there after getting so hurt. Opening yourself up and letting someone in again is not easy to do. And I know for me, I felt the past broken hearts took so much away from me that I didn't even feel whole, even jaded maybe a little. But then another saying would come to mind, "it's better to love and lose, than not to love at all". And I took a risk, and it was hard, it's still hard work.

I find I have to make myself do the thing I fear most.

AndreaB Contributor

Donna,

I'm sorry you got sick. Hopefully a quick recovery. We've missed you! :P

Rachel--24 Collaborator
Maybe for you getting sick, while not a fun thing, was in a way a wake up call on so many levels. To be better to your body, to connect with yourself, to get away from an unhealthy relationship, to stop allowing you to let people and life in general treat you in a certain way, etc. etc. etc, whatever the case may be. I often think this is what happened to me, the universe giving me a sign I was heading in the wrong direction in my life and to stand up and demand something better for myself.

I know it's scary putting yourself out there after getting so hurt. Opening yourself up and letting someone in again is not easy to do. And I know for me, I felt the past broken hearts took so much away from me that I didn't even feel whole, even jaded maybe a little. But then another saying would come to mind, "it's better to love and lose, than not to love at all". And I took a risk, and it was hard, it's still hard work.

I find I have to make myself do the thing I fear most.

Julie,

Great post...so many things that I've thought about and feared seem to be things you've dealt with in your life as well.

I definately have looked at this illness as a turning point in my life. Its made a better person out of me, I've learned not to take things for granted and to appreciate the "little" things life has to offer. I'm more compassionate. I dont really place blame on anyone for the illness....I figure I brought it on myself. I still very much care for my ex that I was with when all this happened. That wont change. Everything happens for a reason and I thought I was invincible and never took care of myself the way I should have.

I try not to be jaded or feel that life has dealt me a bad hand and yes, its much better to have loved and lost than to never have loved at all. I wouldnt trade that for the world. I feel lucky that I was able to love someone that much. Theres a song by Garth Brooks called The Dance....it always makes me cry when I hear it but it kind of has that same kind of point to it.

I think before I got sick I was alot less sensitive outwardly. I didnt show my feelings and I came off kind of cold. Everyone I was with was more sensitive than I was, I guess my attitude and dissmissiveness created insecurities. I totally took things for granted and didnt do or say the right things to make my partner feel loved or important. I think I'm mostly the same person on the inside but now I'm more conscious of my actions and I think now I wear my heart on my sleeve and express my feelings like never before. I guess that makes me much more vulnerable now. I dont know if being that open is a good thing or a bad thing...judging from my track record though...it probably cant hurt.

I know I'll be a better girlfriend in my next relationship. I'm not someone who wont take blame for my part in whats happened in my past...I've learned from all of it and hopefully I dont make the same mistakes.

Getting sick and losing the person I loved most was the biggest wake-up call of all.

One of the things this new guy said that really struck me was that he'd much rather have someone make him something than go out and buy him something expensive. A homemade gift has much more meaning. This is something I've come to realize myself since being sick...its the littlest things that bring the most joy.

I'm a big scrapbooker and I love to make scrapbook pages or cards...but I find I cant do it if I dont feel a "connection" or a "love" for the person I'm making something for. I'm not sure why but if I'm not "feeling it" the project becomes more of a chore and I just dont enjoy it like I should.

I dont think theres any way he could have known about my hobby when he made his comment but I think if we were to ever be involved I would totally enjoy making him something. :)

rinne Apprentice

Julie, many wise thoughts. I completely agree that if we keep ending up in the same place we need to ask ourselves, why do I chose to be here again?

Its always the same....I meet a great person, am very happy, they sweep me off my feet, treat me sooo good and then I fall for them. Once that happens I find out they are controlling, jealous, and untrusting. I dont know what it is??? None of my exes are bad people....maybe somehow I just bring out the worst in people...I dunno. I dont cheat, I'm loyal and faithful but the people I'm with never see this while we're together. They only see the good in me after the relationship has been destroyed. It sucks and I dont want to go through it again.

This is familiar to me though my story is a little different in that after a first serious love, just like you describe, I swore off men who were controlling. The fact that I had grown up in a house with a father who was abusive and insanely possessive of my mother helped my education along. After that I always chose men who could not commit until I realized that I was the one with the problem in that area, as long as I could focus on the man's lack of commitment I didn't have to look at mine. I was about 30 when I figured that out and not long after fell in love with my sweetie of now twenty years. I remember thinking at the time that much of my problem with men was the lack of a positive father figure and so I created a "father figure voice" inside of me. Not long after we began dating he moved in without our really talking about it I told him, after consulting with that "voice", that he could stay till Christmas, this was October, but that if we weren't getting married he could move out. I didn't think living together worked for me and I wasn't prepared to do it. He proposed not long after and we were married in January.

What I tell all my young women friends is to settle for no less than a man who adores you, if you haven't seen a film called Il Postino, see it and watch for the scene in the bar where he sees her, you'll know what I mean. In his eyes you can see that, for him, the sun and moon rise and set in her. That's the look you want from a man. I've told my husband that I think men are generally impossible but if they love you back as fiercely as you love them then they will do the work to meet you fully. Women should never ever settle for less than that. Okay, I could rant on about this but I'll stop for now. :D

Rachel--24 Collaborator

Rinne,

What a sweet story. :)

I'm glad you found your sweetie and have now been together 20 years.

What I tell all my young women friends is to settle for no less than a man who adores you, if you haven't seen a film called Il Postino, see it and watch for the scene in the bar where he sees her, you'll know what I mean. In his eyes you can see that, for him, the sun and moon rise and set in her. That's the look you want from a man. I've told my husband that I think men are generally impossible but if they love you back as fiercely as you love them then they will do the work to meet you fully. Women should never ever settle for less than that.

Thing is...I did have that "look" and that kind of devotion from the people I was with. Inevitabley though...they become insecure and possessive and I get irritated from the whole thing and drive them further away. I think I take the "look" and everything else that comes with it for granted...as if it can never end. Because of the fights and accussations of cheating, etc. I usually dont care either way by the time the relationship ends but this last time I did still care very much and I still do. I just didnt know how to stop it from happenning. :(

Since it happens to me everytime I think the problem is somewhere within me. Trying to work that out. Its like I just dont want to argue so I turn off completely...I show no emotion...only indifference. It would appear that I dont care even if inside I'm hurting...nobody can see it. I would rarely cry. Since I've been sick though I've cried more than I ever have my entire life...I cry real easy now.

I tried to explain some of this to my ex in my mushy "sweet potato induced haze" last week but I cant explain stuff as easily as I can write it out here. Anyways its been 3 years and there is nothing left except my regrets. It doesnt matter cuz I was told when they loved me my actions and my words chipped away at that love and now its gone. They have a wall up that I cant get past. One day someone will....but I know I dont get another chance so I just have to move on and hopefully dont make that mistake next time.

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      Thanks for sharing, Karen. Certainly a needed reminder what we already knew (and I've posted many times on this forum) but sometimes forget, namely, autoimmune disorders tend to cluster. Where one is found, you can look for others to show up eventually. The thing that is unusual in your son's case is the onset of several of them at such a young age. My sister in law, who is in her early 60's has Crohn's and struggles with constipation so I don't think that is unusual with Crohn's. If nothing else, it's the outcome of not eating much because of the pain. Now that you know what is going on with your son and the Crohn's, we hope he is beginning to improve.
    • Nathan.
      Hi there. My son is turning 16 this month. He had an endoscopy and biopsy to confirm celiac. He went gluten-free and his pain never got any better. I think it got worse. Months went by. The pain started around 7th grade. He missed a lot of school in 8th grade, and a whole lot in 9th grade. He couldn't go to school in 10th grade. All along the gastroenterologist prescribed Hyoscyamine, didn't help at all. Cyproheptadine, no less pain. Peppermint oil, ginger, Miralax, Senna. Doc said he was constipated, but I couldn't get him to have Miralax daily. Eventually he went on Linzess and no senna or Miralax. Sorry this is long, there will be a point.  We gave his school not just a doctors not, but everything, and U of M makes a lot of notes. They still turned us in for Truancy.  I didn't get him enrolled in online school fast enough.  The school would not recommend an online school and i didn't know which one to choose.  Doc thought it was nerve pain and mental. He recommended the u of m my pain program.  Nathan did so good, 3 days a week supposed to be for 4 weeks.  Never missed, always on time.   After two weeks, they discharged him. Said it was not  benefitting him.  Pain went on. I had been asking if there were any other test they could do. Ultrasound, colonoscopy. Doc said we can do it, but I don't think we'll find anything.  Finally he had a colonoscopy and another endoscopy.  Guess what, they did find something. They found a ton of tiny ulcers everywhere, from the esophagus to his rectum. They think Crohn's. I understand they didn't check for that because he was more constipated, not much diarrhea. He is getting an MRI with contrast on Sunday. Also they want him to do a cal-protectin (give a poop sample). Then an appointment on the 16th to talk about treatment. Then the probation officer on the 17th. In the meantime he is taking Budesonide extended release.  $276.00 for 30 pills, and that's with insurance. Also he was diagnosed with hyperthyroidism, Graves disease a few months ago. If it is for sure Crohn's,  it will be three autoimmune diseases. If someone is gluten-free for a month or more, and the pain is no better, don't stop looking. I was beside myself. Did they think he was exaggerating, lying? I was considering taking him to a holistic doctor, who would probably recommend Peppermint oil and ginger.  He's such a good kid. Kind of an introvert. He was on the 9th grade soccer team. He would try to go to practice and kept having to stop, the pain was that bad. Every time he ate, it didn't matter what, gluten-free chicken tenders, mac and cheese, pizza, ice cream, all gluten-free, he would eat a normal amount but stop and say, I can't eat anymore, my stomach hurts.  If anyone reads all this, thank you. I had a gut feeling, no pun intended, that he had an additional problem. They found celiac and stopped looking. If you don't feel better, keep on your doctor to check further, keep looking.   Take care, Karen  
    • Scott Adams
      Most likely cross-contamination I believe.
    • cristiana
      I think it takes different people different amounts of time, but in my own case I had pain,  bloating and loose stools for some time, exacerbated by a lactose intolerance, which eventually went.  I would say the really bad diarrhea got better quite quickly, but the bloating pain carried on for a few months, until I was told to give up lactose for a few weeks.  That helped enormously and once I realised milk and yoghurt was the cause, after a short break I went back to lactose very gradually and felt a lot better.  Now I can tolerate it well. From Coeliac UK "The enzyme lactase is found in the brush border of the small intestine. This is why people with coeliac disease can be deficient in lactase at diagnosis. Once established on a gluten free diet, the gut is able to heal and lactose digestion returns to normal. Lactose intolerance is therefore usually temporary." So if this helps your daughter, this doesn't mean you have to give up lactose forever, especially as dairy is such a good source of calcium for growing kids.   Bear in mind you should be able to reintroduce it. As for fatigue, this can be due to vitamin and mineral deficiencies,such as iron, vitamin D and B12.  Were these levels tested?  If not, I would suggest you get them done.  If your daughter is deficient in these, it is vital you address the deficiencies, and get the tests redone in a few months, particularly the iron, because too much can be dangerous.
    • knitty kitty
      Hello,   The medication in these inhalers can cause a thiamine deficiency if used by someone already low in thiamine.  We don't absorb sufficient amounts of vitamins and minerals due to the inflammation and damage done to our villi in Celiac Disease.  Even a long term strict gluten free diet may not provide sufficient amounts of vitamins and minerals.  There are eight B vitamins that all work together.  Thiamine deficiency often shows up first because our bodies use so much of it and it can't be stored very long. Thiamine deficiency symptoms can appear in as little as three days.  Without thiamine, the other B vitamins may not be able to function properly.   Thiamine is needed to clear lactic acid accumulation caused by the inhalers: Shoshin beriberi provoked by the inhalation of salbutamol https://pubmed.ncbi.nlm.nih.gov/12951730/    Significant Lactic Acidosis from Albuterol https://pmc.ncbi.nlm.nih.gov/articles/PMC5965110/ Albuterol-Induced Type B Lactic Acidosis: Not an Uncommon Finding https://pmc.ncbi.nlm.nih.gov/articles/PMC7263006/ Lessons of the month 1: Salbutamol induced lactic acidosis: clinically recognised but often forgotten https://pmc.ncbi.nlm.nih.gov/articles/PMC6964186/ An Overview of Type B Lactic Acidosis Due to Thiamine (B1) Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC10731935/   Thiamine has antifungal and antibacterial properties.  Thiamine helps keep Candida in check.  Thiamine helps keep SIBO in check.  Thiamine helps with black mold, Aspergillis infection.  Riboflavin helps fight Candida infection in the mouth. Riboflavin Targets the Cellular Metabolic and Ribosomal Pathways of Candida albicans In Vitro and Exhibits Efficacy against Oropharyngeal Candidiasis https://pubmed.ncbi.nlm.nih.gov/36625571/   Thiamine deficiency can make ones voice hoarse and can cause localized edema.  Niacin deficiency can make ones voice hoarse.  (Niacin deficiency and Thiamine deficiency can each cause irritability, agitation, and lability.) Hoarseness in pellagra https://pubmed.ncbi.nlm.nih.gov/21507655/ Hidden Hunger: A Pellagra Case Report https://pmc.ncbi.nlm.nih.gov/articles/PMC8152714/   Anesthesia can cause B12 deficiency.  B12 deficiency can show up as mouth sores and geographic tongue, diarrhea, and dementia. Vitamin deficiency, a neglected risk factor for post-anesthesia complications: a systematic review https://pmc.ncbi.nlm.nih.gov/articles/PMC11823251/ Neurologic degeneration associated with nitrous oxide anesthesia in patients with vitamin B12 deficiency https://pubmed.ncbi.nlm.nih.gov/8250714/ Subacute combined degeneration of the spinal cord following nitrous oxide anesthesia: A systematic review of cases https://pubmed.ncbi.nlm.nih.gov/30144777/ The Effect of Vitamin B12 Infusion on Prevention of Nitrous Oxide-induced Homocysteine Increase: A Double-blind Randomized Controlled Trial https://pmc.ncbi.nlm.nih.gov/articles/PMC4052402/     Eating a diet that is heavy in carbohydrates can precipitate a thiamine deficiency.  As the amount of carbohydrates consumed increases, additional thiamine is needed, otherwise the carbs will be stored as fat.   Thiamine deficiency disorders: a clinical perspective https://pmc.ncbi.nlm.nih.gov/articles/PMC8451766/   Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/   The deficiency symptoms of some of the B vitamins cause gastrointestinal symptoms that resemble the same symptoms as when being glutened.   Thiamine deficiency can present as vomiting, diarrhea and abdominal pain (Gastrointestinal Beriberi).  Niacin deficiency can present as diarrhea (Pellagra = diarrhea, dermatitis, dementia, then death ).  B12 deficiency can present as diarrhea or dementia.  Not everything is caused by hidden gluten.  Gluten free processed foods are not required to be enriched with vitamins lost in processing like gluten containing foods are. Blood tests are not accurate measurements of vitamin levels, but do talk to your doctor and nutritionist about supplementing with the eight B vitamins, Vitamin C, the four fat soluble vitamins and minerals like magnesium.  Your physician can give you a shot of B12 before anesthesia administration.   By the way, Celiac Disease genes have been traced back to having originated in Neanderthals.  I'm not a singing teacher on the net.  I earned a degree in Microbiology after studying nutrition because I wanted to know what vitamins are doing inside the body.  I've experienced nutritional deficiencies myself. Hope this helps!  Keep us posted on your progress!
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