Omg...i Might Be On To Something

[AndreaB]

This resonates with me though for me it also includes message boards.

I have been without motivation to do anything through so much of this winter, only recently have I begun to feel like I can imagine doing something other than laying around. I am so glad to find Rachelville continuing and am sorry for my lack of attention.

Good to see you Rinne! I do wonder how you are doing a lot.

We are always here when you need us and can communicate.

Well, I had a followup appointment with the Dr. Rick at HN yesterday. He reminded me that I HAVE made some improvements even if I don't feel like it, lol. One thing he reminded me of is my dizzyness...I haven't had that in a long time, whereas when I first went to see them it was a daily occurrence...now I just get it once in a while.

Good to hear that your doctor has seen some improvement.

Glad your massage helped with the stairs.

Now I have to wonder aside from the h pylori being taken care of by the doctor, has bioset been behind your other improvements? A little of both?

Still trying to figure out when/whether to do the elimination diet, especially for T. I had her skip the probiotic this morning in case that was what was causing her problems. I don't want to say she's a habitual liar but she does lie. She had leftovers to finish this morning and said the beef made her tummy hurt. I have over 75 pounds of ground beef in the freezer so I certainly hope that's not becoming a problem too. We stocked up on beef to last us through the summer. I haven't had a chance to talk to hubby about it. T would have a big problem giving up her bread (or limiting it). She's not real fond of veggies. An elimination diet might help us to get the kids to eat more veggies and they might just be stubborn and eat very little.

I really want to get T in for bioset. Still haven't gotten the check that my mom was supposed to split between my brother and I so I'm thinking we may not get it unless my dad's wife decides to send it anyway, even though the state gets back what she was going to send up. It would be enough to cover T's initial visit (I'm assuming) with a little left over. Depending on how much the initial visit is and if they'd give a group consult deduction I may be able to swing S as well. Wouldn't be able to do treatments though until fall unless I could figure out how to sqeeze out some more money for just once a month. Isn't it recommended to go once a week?

[CarlaB]

Andrea, if I thought a kid was possibly lying about a tummy ache, I'd send them to bed to rest for quite a while, then I'd make their favorite dish using that item for the rest of the family and make her something different. When she asks why, I'd say because this makes your tummy hurt. That would be the end of lying about tummy aches! Yeah, I'm mean.

If it's not bothered her before, I'd bet she's told a story, especially if she didn't complain last night (would she normally complain about a tummy ache?) ... you are working on your family's health so much that I'm sure the kids are tuned into the fact that you are concerned how they feel after they eat. They can and will use that against you.

How old is she? You might just tell her that you can't help her find out what's bothering her when she isn't telling the truth, that she has to be an honest part of the process. I hate lies. I have been through that with two of mine ...

Is she sensitive to dairy? Many probiotics contain dairy. Also, if you don't start out slow, they can cause stomach upset.

[Rachel--24]

I have been without motivation to do anything through so much of this winter, only recently have I begun to feel like I can imagine doing something other than laying around. I am so glad to find Rachelville continuing and am sorry for my lack of attention.

Rinne,

Like Donna said....we're like a family. We're here when you need us and if you need a break...there is no need for apologies. We all understand.

I just want you to feel well.

Maybe the winter and the cold wasnt good for you.....I know my body pretty much hates winter. Spring is almost here.

My stool test results came back and I am H.PYLORI FREE!!! Yay! That confirms what Anna's test showed so I can be doubly confident that it's gone.

YAY!!

Great news Donna!!

Stupid H. Pylori got its eviction notice!!

Wow, that was powerful! As I read it I thought that I should take a copy to the doctor's offices that haven't even tried to figure out what is wrong and leave it there.

YEAH....I would LOVE to do that.....unfortunately I still dont think they'd "get it".

I think you have lyme.

Heck...I guess I might be the only one thinking I dont have it.

Yeah....you're probably right but its just wierd that its not causing too much problems.

I'm suspicious....wondering what it could be up to.

Rachel, your logic, as usual, is sound. However, back in 1991 when I addressed the mercury and the candida, I got completely better and lived very normally until 2003, my next Lyme flare. I definately think addressing the mercury and candida helped and changed my health for the better, but the Lyme was there all along probably instigating the problem to begin with.

My mercury and candida problem is severe....I cant address it on my own and this whole thing was severe enough to take me off work for two years. My body is not gonna recover without intervention and alot of work. I guess I wouldnt call the past 4 years a flare-up for me.....I got pretty much taken down by whatever this is.

Thats why I wonder why Lyme isnt showing itself to be a problem....I dont think I could possibly be more vulnerable than I've been the past 4 years....especially the first 2. I dont know how my immune system could possibly keep it in check through all of this.

By the time I made diet changes it seemed sort of like a matter of life or death. I really thought I was gonna die if nothing changed for me. I was also severely depressed and sometimes suicidal...so it was pretty bad. I could barely walk at one point so I just dont know how Lyme wouldnt have been able to take over during those first years. Is this possible????

I guess only time will tell. I'll be having alot of questions about this for Dr. D when she comes.

Also....one of the reasons I thought for sure Lyme must have been with me for a number of years was the fact that my thyroid was going overactive under stress. To me this indicates some type of problem long before I got taken down.

I dont think autoimmune stuff just "happens"....there was definately something there triggering it.

Check this out though.....

I just learned that my mom had 16 amalgams put in when she was a teenager.

She had me at age 20.

I'm thinking this is significant exposure for me....enough to say that I had to of been mercury toxic at birth!

Could it be I just accumulated enough mercury through my life to cause me problems with autoimmune thyroid and then having the unsafe amalgam removal plus a year living with galvanic reaction....maybe I exceeded my limit??

I would think that if Lyme were there my unhealthy lifestyle and diet alone....would have been enough to give it the upper hand looooong before I had the dental work done.

But, even if you get mostly better, you still might want to look at the Lyme one more time before you write it off. You don't want to backslide after all this work.

NO WAY......no backsliding for me!!

Even if nothing EVER shows up clearly for Lyme I'm still gonna take my Cats Claw....maybe even for life!! I think I've been traumatized by this enough....I cant imagine myself writing *anything* off after all this.

Maybe I better never have kids cuz I might just be the worlds most "paranoid" mom.

[AndreaB]

How old is she? You might just tell her that you can't help her find out what's bothering her when she isn't telling the truth, that she has to be an honest part of the process. I hate lies. I have been through that with two of mine ...

Is she sensitive to dairy? Many probiotics contain dairy. Also, if you don't start out slow, they can cause stomach upset.

She's 7. She didn't test sensitive to dairy or goat but who knows. There were a couple times that she complained after eating cheddar cheese though.

Our probiotics are cultured from goat milk.

I'll have her skip tomorrow as well and see how she does. We are trying to determine if it's probiotics or her cereal/juice.

She's minimally sensitive to garlic which I do use (although I've cut back drastically), so that could also be part of the problem.

I need to work on her understanding the importance of trying the elmination diet and being honest with how she feels so we can accurately pinpoint what could be causing her problems.

[AndreaB]

Maybe I better never have kids cuz I might just be the worlds most "paranoid" mom.

I'm already getting paranoid about my kids.

Deal with the mercury/candida first then maybe you can do that short antibiotic challenge for the lyme.

I'll be curious as to what Dr D says as well.

[CarlaB]

Heck...I guess I might be the only one thinking I dont have it.

Yeah....you're probably right but its just wierd that its not causing too much problems.

I'm suspicious....wondering what it could be up to.

I guess I wouldnt call the past 4 years a flare-up for me.....I got pretty much taken down by whatever this is.

Thats why I wonder why Lyme isnt showing itself to be a problem....I dont think I could possibly be more vulnerable than I've been the past 4 years....especially the first 2. I dont know how my immune system could possibly keep it in check through all of this.

I just dont know how Lyme wouldnt have been able to take over during those first years. Is this possible????

I call it a flare-up for lack of a better description, it's pretty much brought me down, too, each of the four times I refer to as a "flare-up."

It's in the nature of Lyme Disease that it has symptoms that come and go and move around. One day my knee will hurt, the next day my muscles will ache, etc. Some times in my life I've been perfectly "healthy." Others I can't get out of bed.

Borrelia is a slow growing bacteria interested in it's own survival so it must have just been doing a good job hiding. Plus, maybe you were starting to have symptoms then, but didn't notice them until they were magnified by the dental work.

Who knows? But it's apparent that the mercury and candida are bigger issues right now.

[CarlaB]

I need to work on her understanding the importance of trying the elmination diet and being honest with how she feels so we can accurately pinpoint what could be causing her problems.

I try to make my kids be responsible for stuff like this. It's really impossible for you to help her without her cooperation. All you can do is tell her you want to help, but that you don't feel like she's always honest about how she feels and if she's not honest about it, you cannot help her. Then in her own time, she can decide to work with you on it, or not. If she's part of the decision making process about it in this way, she will be more cooperative. Either she cares about getting better or she doesn't.

The key is, don't worry about it until she's willing to cooperate. You want it to be her decision. Once she gets to be a teenager, she will have to be the one to make the decision because there will be times you won't be looking over her shoulder and she'll eat what she wants. If it's her decision now, she will be more likely to stick with it. You CAN say things like, "Oh, your tummy hurts, I'm so sorry, can I get anything for you to make you feel better? Are you ready to start working on finding out what's wrong so it stops hurting like this?"

It's really an art to balance respecting your children's free-will (and form it!!) and trying to protect them. If you don't take into account both, then they will eventually rebel from being over-protected. They'll see making a decision as choosing the opposite of what you'd choose. I saw that so much when I was homeschooling ... I'm FOR homeschooling, totally for it, but the more over-protected kids would get to college or high school (if they didn't get homeschooled through hs) and spread their wings sometimes in a very negative way.

I'm not saying you're over-protective .... when your kids are little, you take care of them in one way where you're totally in charge. Then as they get older, the style has to change ... with the first one, that's a really hard transition. Let T. be part of the decision making process for her health, and you'll probably have better luck with it.

Sorry for the free advice ...

Obviously, I'm not paranoid! And, don't worry, they'll grow up to be good people .... it's fun now to see my kids closer to adulthood and see the people they are turning out to be.

[AndreaB]

Sorry for the free advice ...

No need to apologize.

I have lots of things to work on which I've dropped this last year, and that has only made things worse as far as her behaviour.

[CarlaB]

No need to apologize.

I have lots of things to work on which I've dropped this last year, and that has only made things worse as far as her behaviour.

How old is she? I forget.

[AndreaB]

How old is she? I forget.

She's 7.

She's working on some dishes right now.

[dlp252]

Now I have to wonder aside from the h pylori being taken care of by the doctor, has bioset been behind your other improvements? A little of both?

...

Isn't it recommended to go once a week?

Yes both I think. I really DO think the BioSET is helping in some way. At the very least, BioSET identified some of my problem foods and nutrition stuff and avoiding those things has probably helped a lot. See, according to BioSET some of the "safe" foods on the elimination diet were not good for me...so that's why I wasn't seeing a lot of improvement whilst on it. I think BioSET MUST be responsible for me being able to eat eggs again. In the initial testing, I tested okay for eggs (as I did on the Enterolab test), but they were making me feel nauseated when I ate them scrambled or fried, but I did NOT test okay for sulfur...they cleared something to do with sulfur and now I can eat eggs any way AND I can eat garlic which I couldn't eat before.

All that was a long way to say what my doctor said yesterday...I just took one more piece of the burden off my body and so now it has time to work on other things.

As far as frequency, they (the ladies where I go) suggest at least once per week, but they also say you can still see improvement going less frequently. I just think you see the most improvement the more often you go...that also keeps your treatments fairly fresh in their minds.

Heck...I guess I might be the only one thinking I dont have it.

Yeah....you're probably right but its just wierd that its not causing too much problems.

I'm suspicious....wondering what it could be up to.

Questioning is healthy I think to a point and I think you're still at the okay point, lol.

I need to work on her understanding the importance of trying the elmination diet and being honest with how she feels so we can accurately pinpoint what could be causing her problems.

Yeah, this point was hard for me to grasp too.

[CarlaB]

She's 7.

She's working on some dishes right now.

She looks older in the picture. I have a daughter who's 8. They do start wanting to have a say in things, that's for sure! I find if I let them make some decisions about some things, then they'll more easily comply with the things I'm not so flexible on. Seven is a good age ... wait till puberty. I have four words to say about puberty -- Oil of Evening Primrose!!

Good luck with getting her to agree to a rotation diet!

[AndreaB]

Yeah, this point was hard for me to grasp too.

Uh oh, I'm in trouble then. :lol:

Seven is a good age ... wait till puberty. I have four words to say about puberty -- Oil of Evening Primrose!!

Good luck with getting her to agree to a rotation diet!

I'm not looking forward to that if we can't get her calmed down soon.

[Rachel--24]

It's in the nature of Lyme Disease that it has symptoms that come and go and move around. One day my knee will hurt, the next day my muscles will ache, etc. Some times in my life I've been perfectly "healthy." Others I can't get out of bed.

Yup...Lyme Disease does do this and pains tend to move around.....this is exactly why I doubt it is really an issue for me. I didnt go through this pattern of ups and downs that you experienced through life....I was healthy until the dental work. I had never experienced any types of aches or pains...nothing even remotely there to suggest an illness like Lyme could be lurking.

It was like on a scale of 1-10....my health went from a 15 to a 0 in the blink of an eye.

All of the times that you became ill you were able to pull out of it on your own and go back to good health....so even though it brought you down...it didnt keep you down....not until this last time.

No matter what I do I cannot pull myself out of this on my own....the Dr. and Anna said this isnt something my body can overcome on its own....no matter how hard I try.

Thats why its definately got to be mercury in my case.....because I cant do anything about it without removing the mercury....things just stay exactly the same....which is pretty frusterating.

With Lyme I would be having some ups and downs as the bacteria goes through its cycle....this isnt happening with me.

In some ways I "fit" for Lyme but in alot of ways I dont....so its really all just a big mystery.

Who knows? But it's apparent that the mercury and candida are bigger issues right now

Yeah....this is true and this is what I gotta focus on but I would be alot more at ease with everything having some closure as far as Lyme.

Right now alot of the time I'm wondering if I even have it all....its just kind of looming in the background and I'm not really comfortable with that.

Its like the Boogeyman or something.

[Rachel--24]

If you don't take into account both, then they will eventually rebel from being over-protected. They'll see making a decision as choosing the opposite of what you'd choose.

I dont think I was an over-protected child....and I did make my own choices. Somehow I ended up soooo rebelious though. To this day I will always choose the opposite of what someone *tells* me....and I'm not sure why.

My mom has said this my entire life...that I cannot conform to any types of rules or structure at all.

I'm trying really hard to change this or at least to mellow out but its like its just a part of me that I cant seem to shake.

It doesnt matter what it is...I will FIGHT it if someone tells me what to do.

Even with the smallest thing...if in my mind I tell myself I want to take care of my bills or run an errand and have it all planned out and then my mom comes in and starts telling me she wants me to do these things....I WONT do it.

I can actually feel my blood kind of boil and I just get angry because now I wont get it done because I've been TOLD to do it. Its no longer something I want to do on my own.

It was the same when I was going through the process of quitting smoking. I would only do it for myself....as soon as someone told me to quit I would light up a smoke...right then and there.

I dont know why I got to be like this.....or why I have to rebel or be completely stubborn about EVERYTHING.....I was like this in school and I'm like this at work.

I really notice it now because of being sick....when I get all stressed out inside from someone telling me what to do....and my blood gets all hot...its not a good thing as far as keeping my symptoms at bay. My body cant handle it.

I just dont know how to say "Ok...yes...I will do that" without having some kind of anxiety attack inside or something. I know its a really bad "trait" that I have.....I just dont know why it sticks with me.

Maybe its the mercury.

[dlp252]

Maybe its the mercury.

Stupid Mercury!!!

[AndreaB]

Maybe its the mercury.

Yep, blame mercury for everything......that's what I'm doing too.

[CarlaB]

All of the times that you became ill you were able to pull out of it on your own and go back to good health....so even though it brought you down...it didnt keep you down....not until this last time.

No matter what I do I cannot pull myself out of this on my own....the Dr. and Anna said this isnt something my body can overcome on its own....no matter how hard I try.

Yes, but the time before this one, I did go through the mercury removal and candida treatment.

Plus, I went from age 9 to age 19 without one symptom whatsoever. Major stress finally set it off when I was 19.

I don't think you'll have the answer until the mercury and candida are taken care of ... so just close the closet door and leave the boogeyman in there until a later time, then look to see if he's still there.

[CarlaB]

I dont think I was an over-protected child....and I did make my own choices. Somehow I ended up soooo rebelious though. To this day I will always choose the opposite of what someone *tells* me....and I'm not sure why.

I have a kid like this. He has even admitted to doing things when he was younger to purposely annoy me. He's 16 now.

Maybe you just need to be able to make the choice ... just because someone tells you to do something doesn't mean you don't get to make a choice ... you get to decide whether you are going to do it or not! You could just tell your mom that you were planning on it, that way she knows you made the choice. Or even, "That's a good idea!" That shows that you agree and are choosing to do it.

I don't know, just an idea to try to overcome it so your blood doesn't boil so often, now go out and have a cigarette! I certainly won't tell you not to smoke after what you just said!!

[Rachel--24]

Yep, blame mercury for everything......that's what I'm doing too.

I think its the most logical reason for my bad attitude.

My mom doesnt want me talking about mercury...she feels guilty I think. I'm not blaming her for anything....I just want to try to piece things together to see what might have caused my health to plummet into near oblivion....thats all.

Now she says it might not have been 16 fillings she had....maybe it was only 4.

How do you go from 16 to 4???

My mom always took my brother and I to the dentist and orthodontist. She wanted us to have nice teeth because she never had dental visits herself until she was a teen and had alot of cavities.

So yeah....I do have nice teeth and I never get cavities. I only had the 4 fillings from when I was a kid.....yet here I sit...totally poisoned.

[CarlaB]

I only had the 4 fillings from when I was a kid.....yet here I sit...totally poisoned.

Wow, what great teeth!! Every single one of my back teeth had a big amalgam filling in it!

[Rachel--24]

I don't know, just an idea to try to overcome it so your blood doesn't boil so often, now go out and have a cigarette! I certainly won't tell you not to smoke after what you just said!!

Fortunately I wont pick up a cigarette no matter how much my blood boils!! My blood could boil until I pass out but I wont be taking any drags off a cigarette.

My body cannot handle smoking at all now.....I'll be just as toxic as if I'd had a couple beers.....its soooo not worth it.

[AndreaB]

I don't think you'll have the answer until the mercury and candida are taken care of ... so just close the closet door and leave the boogeyman in there until a later time, then look to see if he's still there.

I think that's a great idea!

I don't know, just an idea to try to overcome it so your blood doesn't boil so often, now go out and have a cigarette! I certainly won't tell you not to smoke after what you just said!!

Hm, I think I'm in trouble because I always "advise" on what would be a better choice in my opinion. Rachel, you must not be too mad (ie blood boiling) at me since you still talk to me.

[AndreaB]

I think its the most logical reason for my bad attitude.

Yeah, I'm hoping this (mercury) is the case with T bad attitude anyway.

[Rachel--24]

This sounds alot like me....

It came from a site about multiple chemical sensitivities. Stupid chemicals are driving me crazy today....the whole inside of my nose feels burnt.

Clearly, chemical pollutants in our environment are the primary culprit in MCS and other allergic problems. It is no wonder MCS is so controversial: it shatters the myth of "safe levels" of toxic chemicals in our environment. As our environment becomes more toxic, we become more overloaded with toxins, and more people become sensitive and allergenic.

Subsequent generations are born allergic, as it is a basic law of allergies that a child will inherit a tendency for both parent's allergies. Sensitivities and allergies usually become more severe and more deeply ingrained in the person's constitution over time. Increased toxicity levels in the body cause increased reactivity. Humanity is becoming more allergic and more sensitive, and our collective karma for our toxic lifestyles and shameless priorities comes due.

A commonly repeated scenario in my practice is as follows: a person grows up in our toxic environment, eats processed food full of chemicals, and gets cavities. Dental cavities are commonly filled with "silver" amalgam fillings (50% mercury plus silver, copper, tin and zinc). According to Dr. Hal Huggins, the dentist who pioneered the safest protocol for the removal of these fillings, 90% of the population is allergic to mercury; 95% is allergic to copper.

The person's health is compromised by the fillings in many ways, including the following: mercury follows a kidney pattern in Chinese medicine, lodging primarily in the brain, bones, teeth, pituitary gland and kidneys. Endocrine functions are thrown out of balance; brain damage ensues; and sinus, ear and bladder infections are all common. Each time the person chews, mercury is released and enters the digestive system, ultimately compromising digestion.

Mercury has the paradoxical nature of being both hot and cold simultaneously in its actions on the body. Mercury's cold nature harms the spleen; its hot nature harms the kidney and heart yin.

Mercury toxic environments are ideal for invasive fungal strains of candida albicans, which then proliferates in the sinus cavities, ears, bladder and gut in particular. The invasive, damp nature of candida further compromises the spleen and causes "leaky gut" syndrome by perforating the intestines, which shows up as yin deficiency of the colon.

It is commonly believed that food particles that are too large pass through the compromised intestinal wall into the blood system are then attacked as foreign intruders; thus, food allergies are born. Candida dumps acetaldehyde into the system, which is damp, extremely toxic, and affects the liver in particular. Each time the person inhales, they breathe in mercury vapors continually from their fillings, especially when they chew, clench or grind their teeth.

The person now has spleen deficiency, kidney yin deficiency, large intestine yin deficiency, heart yin deficiency, liver qi stagnation, liver dampness and lung qi deficiency. They may have a great deal of phlegm and dampness in their systems. They are allergic to metals, foods and food chemicals, and are especially allergic to aldehydes, petroleum products and mercury. Pesticides follow a petroleum pattern: hot and systemic. (The body translates allergies from one item to another as if they are similar.) This person has become reactive to most (if not all) chemicals.

This person has little in reserve to handle a major stress. They may or may not have serious or overt allergy symptoms, but generally they do not feel well. Now imagine of the person's home or office gets remodeled; they get a new car; or they move into a brand new building, any of which involves a major exposure to formaldehyde, a substance prevalent in new, man-made materials. At this point, the person's health collapses. They easily become a universal reactor, allergic to everything.

The factors in this scenario are at work on all of us to a greater or lesser extent. Each if us has a unique threshold of toxicity tolerance that, when overwhelmed, leads to allergies. Some people can tolerate this chemical onslaught better than others, but no one is unaffected. Most people have allergies they are unaware of, and allergies tend to get worse over time, leading to a myriad of health imbalances.

I have all the problems mentioned above....this is the most significant issue with my health.

Its interesting what is written about "dampness". When I went to an acupunturist....I mentioned to him that I suspected I had candida. I asked him if he knew what candida was...he started talking about damp heat in my intestinal tract. I had no idea what he was taking about but he said it while he was inspecting my tongue.

Denise at BioSET looked at my tongue a couple weeks ago. I was telling her about how I get this "coating" that just comes right up after I eat...I can actually see it spread over my tongue as I breathe. Its like the air is extremely hot and sometimes it feels like theres a fire inside me.

She said this is what chinese medicine calls "damp heat"....she said its the worst kind of heat.

After reading this it sounds like the damp heat is coming from the toxins produced by candida.....specifically acetaldehyde.

Oh man....my gut must be so extremely toxic....no wonder I have MCS.