Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something


Rachel--24

Recommended Posts

NoGluGirl Contributor

Dear Donna,

I am sorry to hear of your financial and car woes. :( I know what that is like. It sucks. This is incredibly frustrating not having anything although you work for it. The sunshine, walk, and nail polish sound good, though!

Dear Rachel and Mango04,

I know! We could do a search on "spinached geese" and see what happens! :P Now I have to tell this story to everyone about Floridian being "spinached". Man, I have a lot of catching up to do with the old-timers. I have only been on here maybe a few months.

Dear CarlaB,

Movie critics are usually ugly, fat, and untalented anyway. They are jealous of actors, hence the bad reviews! It is so true that many that win awards are not as good as the ones that do not!

Everyone knows the Academy is prejudiced. Spinach the Academy I say! Spinach them!

Sincerely,

NoGluGirl


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 33.4k
  • Created
  • Last Reply
CarlaB Enthusiast

NGG, when you're all caught up we'll talk about the purple glittery bats.

happygirl Collaborator

Rachel,

Thinking of you...hope it went well!!!!! Let us know.....(not that I'm concerned that you won't!)

Laura

jerseyangel Proficient

I'm definately looking forward to the spinach sequel :D

rinne Apprentice

How about a birthday party?

Thanks for the spinach review Rachel, that was hilarious.

Rinne....questioning stuff is something I'm really familiar with. ;)

I can relate to you there. I'm not sure if its swallowing the filling or the fact that whats left in your mouth isnt intact and most likely leaking higher amounts of mercury. I think it would be the latter which would be more damaging in the long run.

I left mine alone for 2 years....maybe during that time I was becoming toxic and then the dental work pushed me over the edge.

I had the filling taken care of quickly but I am sure it still had an effect.

I don't blame you or Rachel for questioning what is causing your symtpoms, although I DO think both of you have lyme...it just may not be what's causing your symptoms.

This is what I'm hoping for me and this is what I told Scott...I just need to know what to start with cuz I just feel like I'm a ship without a rudder now...adrift in a sea of symptoms which could be from any darned thing. :blink::lol:

:lol:

I agree.

I feel for you, I have felt rudderless myself.

In my opinion, if addressing the mercury and the candida gets your Lyme into remission, why bother addressing it? It's my understanding that it's unlikely to ever be totally eradicated, that your immune system eventually has to learn to keep it in check.

However, I don't think that just because you feel better getting rid of mercury and candida that there is no Lyme. I think it's more likely that you are just feeling better getting stress off your immune system. My immune system has been able to handle this Lyme all these years in the absence of stress ... stress is my trigger for symptoms -- big stress, not ordinary stress.

I went back :ph34r: ... Rinne, you had 31, 34, and 39 all show up as IND (not negative). They are all very specific to Lyme ... I wouldn't be questioning it too much ... but I don't think you're wrong on focusing on the candida and mercury. I think the three -- Lyme, mercury, and candida -- all play a role. You could always get retested for the Lyme .... now that you've been stirring it up you might test more strongly positive.

I'm thinking this way too.

This is what I talked to Dr. Harris about at IgeniX. I figure he's the expert at reading these tests right??

I had those bands as IND's too. He said this does not mean I have Lyme or dont have Lyme. It basically means nothing.

It means that the technician running the test wasnt sure. He puts IND when he isnt sure....it doesnt mean anything except that the test should be redone to hopefully get more clear results.

After my talk with him I believe that there is reason to question when the results arent clear. When I asked him if my test results suggest Lyme he said "No". He also said the results dont rule it out. The results are a big ?? when they are IND.

A person can have IND's on their results and NOT have Lyme Disease.

It really doesnt matter which bands are IND....what matters are positives and negatives.

I think its definately possible that me and Rinne both have Lyme but its not a "sure thing" by any means.

Rachel I tend to think my pattern of indeterminates indicating borrelia is a pretty good indication but yes it really goes to understanding what is causing our symptoms. It does no good to treat just Lyme if mercury toxicity is making you ill and if treating the mercury means you still have Lyme but it is not active then I don't see any point in taking antibiotics. It seems to me that just getting treated for just Lyme can create further problems.

Yeah...good times!! :lol:

It was fun gathering up those posts...I was laughing the whole time....I read some really :lol: funny stuff!!! :lol::lol:

I was laughing out loud, just so funny.

I was thinking that since it was so much fun to put that together and because the "OMG" thread is almost 1 year old....if you guys want I'll get together some more clips. We can have more walks down memory lane to celebrate the anniversary of this thread and our friendships. :D

You guys can pick other words of signficance if you like....or I'll just pull up random stuff and see what happens. :lol:

Yes, yes.

NGG, when you're all caught up we'll talk about the purple glittery bats.

:lol::lol::lol:

Rachel--24 Collaborator
Rachel,

Thinking of you...hope it went well!!!!! Let us know.....(not that I'm concerned that you won't!)

Thanks Laura :)

Ha-ha...I just got home and went straight for the computer. :lol:

It went really well. :D

I feel great about my appt. and about Dr. D.

Can I just say that she is AWESOME! It was well worth the 4 months I had to wait to see her.

I had a good idea of what to expect because of my earlier session with Scott...so that was good. I think I was alot less stressed because it wasnt gonna be completely foreign to me.

For the first half hour we went into the back room and she got my history.....looked over my paperwork....looked at prior test results, etc. I told her my story, she asked questions and wrote down everything. She asked me what my goal was for today and what I was hoping to determine from our session.

I told her I just wanna know if Lyme is an issue for me....if it is....how much of an issue is it. I wanna know what my primary issues are, what needs to be addressed and how to go about it.

She wanted to know my primary reason for the visit so that she makes sure to answer whatever questions I have and so she can make sure to address the issues I am wanting to know about....so nothing gets left out.

After that we went into the room they use for ART.

The ART process was alot different this time...mainly because when Scott tested me he went slower and I had a good idea of what was going on because he talked through it. If not to me...to his assistant. I followed along.

She did let me know a few things while she was testing the main issues. Right off the bat she said I was reacting very strongly to metals...not just mercury.

She didnt say alot as she tested my body but I could tell alot by her body launguage.....she was mostly relaying messages to Scott as they went through everything.

She was fast....like Anna is with BioSET. She tested the main issues really fast (maybe 15 minutes) then tested all of my meds and supplements that I'd brought. This is when I really didnt know what was going on because I'm lying down and cant see exactly what shes testing.

She said everything that she finds out she will write up and discuss with me at the end. So I just layed there and she did her thing.

She also tested alot of other stuff because she has to put a treatment plan together for me and she tests all the possibilites for my situation to see what works best....what my body likes...what wont work for me...etc. This is probably what took the longest.

Even though I couldnt see what was being tested I could read her body language and I could tell that some stuff wasnt working too well for me and other stuff was really good.

In the beginning she told me about the metals being an issue. Then she moved on to other things and said that Babesia was showing up pretty clearly. :o

That was about all that she said out loud so I waited anxiously to find out more. :unsure:

After everything was tested she left to write everything up. She had Scott make copies of all my tests and then my mom and I chatted with Scott while we waited for Dr. D to come back.

Scott was telling us about how he went from crying in bed all the time to where he is now...out snowboarding this winter. Its been almost 2 years since he got diagnosed and he's made a ton of improvement but still is making the climb.

My mom asked if he ever had problems with food. He said he couldnt eat wheat for a couple years and he had to avoid sugar and fruit and things that aggravated fungal issues for like 4 years. He said he was gluten free for about a year and then he started testing it and doesnt have any problems anymore.

I strongly suspect when I get better I wont have problems with gluten anymore either.

I asked him if Lyme showed up for me and he said that Lyme and Babesia showed up...no other co-infections.

I pretty much knew that Lyme was showing up because her and Scott were commenting on a few things while she was testing me.

He was wondering if because I've been off my Cats Claw 2 weeks now if that could be why shes seeing it and he didnt. I think I had been off Cats Claw like 5 days when he tested me. She was saying its possible but she was really thinking it was the NDF that caused it to come out.

Scott said that metals, fungus and Lyme/Babesia were all showing up for me...those are my issues.

I tried to ask which was my primary issue....but he said Dr. D would have to answer that.

OMG....I was really nervous about the Lyme and Babs!! :blink:

I said I really feel my metal issue is significant but I'm also aware that pretty much everyone with Lyme has metal problems. I asked him if this was true?? He said most people do have to address metals but its not necessarily significant for *everyone* with Lyme. There are some who dont really have issues with metals....but most of the Lyme patients do have metal and fungal issues.

My mom asked if he had problems with metals. He had went undiagnosed for something like 9 years so yeah...by the time he was diagnosed almost 2 years ago he had all the other issues because of his immune system being suppressed. He also had Babesia, Bartonella and Ehrlichia (co-infections).

For him the other issues were secondary to Lyme/co-infections.

He also told me that this is Dr. D's 3rd trip out here and the patients she has here are all improving. They are testing alot better this time around then they have in the past and they are feeling alot better. He said he had his own appt. today and he also tested alot better. I asked if he *feels* it??

He said that its been slow progress for him...he's getting there and he's so much better than he was. He's still not *there* yet but he does feel so much better. At one time he had major neurological symptoms....and yeah....now he's doing all this stuff working with Dr.'s and on top of that being active, exersizing and snowboarding. Its pretty inspiring!!

So then Dr. D came back and we went over everything.

I asked her about Lyme first...

She said Babesia showed up clearly. She said Babs goes into hiding and comes out and goes back. Its hard to test positive in the blood test (I tested neg. in blood). She said the only residence of Lyme she found in my body was in my head. :huh:

She said everything is going on in my head...this is where all the stress is. Its not just my sinuses....its not my lymphatic system....its everywhere from my shoulders up. :blink:

This is exactly where all my problems are...from the start I've always said that like 99% of my issues are from the shoulders up. Thats were all my pain is. Thats where the symptoms hit me. My head is always feeling swollen.....it hurts...and it sucks!! :angry:

She said the Babesia was also testing clearly in this region.

My mom was saying that I've always been complaining about my head....she asked if this was normal?? Do other people have all this going on mainly in their head?? :huh:

She said....yeah...there are some other people she's seen like this....even over the past few days she's seen a couple others with similar scenario.

I'm thinking its because this is where most of the metals are stored. <_< Probably because I got so much freakin metals from that galvanic reaction. I bet my gums are loaded with metals. :angry: The bacteria and fungus are all in my head!!! LITERALLY!! :blink:

Prior to going into the ART room...I told her all about my dental stuff, galvanic reaction, etc. We didnt talk much about Lyme. She asked me about chelation....did I have any after my amalgams were removed? Was there any improvement when they were removed? etc.

She was the first Dr. who clearly understood what I meant about "galvanic reaction". She obviously knows alot about this stuff. She said that she's had ALOT of experience with chelation. YAY!!!! :)

This is one of the reasons I was *most* excited to see her. No matter if its Lyme, mercury, or both....I know she's worked with Klinghardt and I know she's gotta have alot of experience with this stuff.

I told her about my trial with NDF and how I got sick after I increased the drops really quickly. I also told her something I hadnt posted about yet because I just wasnt sure what to think about it.

She asked me about my BM's.....I told her they were fine...once a day. :)

However, I told her that my urine has been really dark the whole time I've been sick....at times its almost orange. :huh:

The thing is...once I started taking NDF the most noticeable change was in my urine. It was totally clear...too clear. I wasnt drininking more water either....even though I know I should have been. :ph34r:

In one of the posts I put up a few weeks back (when I was posting alot of scientificness about mercury from Dr. Klinghardt)....he had said that clear urine was a sure sign of mercury toxicity. :unsure:

It said something about this means stuff isnt getting through the kidneys....that the kidneys are under stress, etc. He was saying that if you know you ate poorly and worked out, sweated, etc...the next day you should expect to have normal smelly dark urine. If its clear...you should worry about the kidneys.

So yeah...I got really worried about this. It was bugging me. :(

When I told her this she said this is a really good indication that NDF was doing something...it was definately working...it was pulling out metals. She said that what Dr. Klinghardt was referring to was longterm...if your urine is always clear...worry about the kidneys and mercury.

She said what happened with me is that the NDF worked really well....it pulled out the metals and then they didnt have anywhere to go....they might have backed up into my kidneys. She said she would have to see if my kidneys were stressed when she tests me.

I told her right after I stopped the NDF...my urine went back to being dark again. It definately had to be caused by the NDF. She seemed to feel that this was a good sign that my body was releasing metals....it was too much for me to handle but it was good that the NDF was working.

So after when we discussed my results she said that my kidneys were stressed. She said that the NDF tested great for me...my body is wanting to release the metals...its definately ready.

She said these metals will come out but my body is needing other things to make this work. She wants me taking a binder (charcoal) and a couple other things. She said even though the NDF is working great for me my body isnt prepared for it yet. Once it is things will go alot smoother.

So for now she does not want me on NDF at all.....just the other stuff for now. She said Anna will give the green light on when I can take NDF again. She will give Anna all of the info. from my appt.

She said she tested me for things that work...but also "back-up" treatments. In case I stop tolerating something or get a reaction there are other treatments that can be used as back-ups...Anna will get all the info. since she wont be seeing me for awhile.

She said I can call her anytime.

Rachel--24 Collaborator

For Lyme she says that Prima Una De Gato (Cats Claw) is testing really well for me. For Babesia she wants me to take Noni.

She said that in her experience the people who test like I do....with the Lyme and Babs mainly being in my head....she rarely sees these people get positive bloodwork. She said its not surprising to her that all my tests were negative.

She said that NDF really stirred things up in my body and this is probably why the Babesia is showing so clearly now whereas when Scott tested me it wasnt showing at all. It didnt sound like Lyme was showing strongly but it was there for sure.

She also said when people start chelation candida in the gut gets worse and the food allergies get worse. She said I should be taking Nystatin all the time. Also in the first days of chelation she likes to use something stronger like Diflucin.

Scott was telling me Klinghardt believes the immune system allows the fungus to overpopulate in order to cope with the metals. Because the candida....by binding with the metals....keeps it in one place in the body....so that metals arent floating around everywhere. But of course...candida is toxic. :rolleyes:

Dr. D said that I can use the Cats Claw just as I would use antibiotics for a challenge. The Cats Claw can work too if I want to re-test. She said I'd have to work up to a good dose (she said like 15 drops).....when I'm tolerating 15 drops there is a good chance of testing positive.

About the NDF....she said that she's seen people use it all the way through for chelation but its slow and for me she wants to use DMPS. Definately not now...but she said as soon as I'm taking alot of NDF and not feeling anything from it...she wants to start DMPS.

She said that with help my body can get rid of the metals...she wants to get them out. She said that with people like me....who got sick very rapidly and suddenly...but were very healthy prior to that...its a good thing. Even though I got brought all the way down....I can recover.

She said it wont happen as quickly as I got sick....but its faster for people who were healthy and then got sick suddenly. If I'd been sick 20 years with gradual decline in health...it would be harder.

I asked her about food....will I be able to eat normally again?? :huh:

She said she doesnt see any reason that I shouldnt. She doesnt like to use time frames but she'd say 6 to 12 months. It depends on how fast my body can get rid of the metals. It will kind of see-saw for awhile with the metals and Candida but eventually I'll notice less sensitivities....and then eventually I'll be eating normally. :)

I have the fact that this hit me when I was perfectly healthy on my side.....she said its a huge plus for me.

The NDF pulled out metals and they got backed up in my kidneys....the goal now is to start binding metals and pulling them toward the gut as we support kidneys and methylation.

She wants me on B12 for methylation.....she wants Anna to check B12 and methylation pathways. She said I can give shots of B12 to myself or take sublingual. I'll have to find out more about the shots...Scott says he's been doing them for like 6 weeks now.

So finally I asked what my primary issue is......is it Lyme or metals or what??? :unsure:

She said its definately metals. I had a severe reaction to the metals released with the galvanic reaction. My body does not deal well with these metals and it was ALOT of metals to deal with.

When we get them out I can get better. :)

She said Lyme is secondary to the metals. Metals are the biggest factor and the bigest stressor on my body.

I probably had Lyme but wasnt sick at all from it.....I got sick from the metals. It sounds like the Lyme is a stressor but not a huge one so I imagine with getting the metals out I should feel pretty good again.

Scott said that its good that I know Lyme is there though....and now I'm doing something about it with the Cats Claw and I'll also be addressing the Babesia with the Noni. I think this should keep them in check. It doesnt seem like they've gotten very out of hand even through all of this. Babesia is more of a stressor than the Borrelia is.

I think everything went really well. Scott said they'd been going since 7 this morning. I was her last patient and as soon as she got done with me she was headed to catch her flight back to Seattle. She was so nice....I felt really comfortable with her and I'm totally happy with the Dr.'s I've got now.

A year ago I was so anti-doctor. I had so much anger toward them and didnt think I'd ever find any decent ones. Now its such a turnaround for me. I feel I couldnt really get much better than what I've got right now. I'm very grateful. :)

Oh...she talked to my mom about my "outbursts". She said that the feeling you get when you're watching a scary movie....like when all that tension is building up inside and then somebody bursts out and scares you and everything comes to the surface...she said thats the type of feeling I'm dealing with all the time. Basically I can burst at any moment...over anything. :ph34r:

She said I also need to try harder to let my mom know if I'm feeling bad so this doesnt happen....and to apologize and explain when it does happen.

I think thats most of the important stuff. I was with her for at least an hour and a half so there was alot of info. to absorb. I'll probably remember more later. :rolleyes:

This is what my report for ART says:

Regulation: open (good!)

Primary Organ Stress: liver, entire head area/brain

Secondary Issues: Kidneys

Metals/Infections: Metals are a major stressor.

Babesia "blocks" or stresses your nervous sytem

Borrelia shows up mainly in the head area (likely why labs were negative)

Candida is a stessor - continue to treat this since it is often flared up when chelating metals.

So that concludes this very lengthy installment of the ART Files. :P

I'm very tired....need rest....

Night all. :wub:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AndreaB Contributor
How about a birthday party?

Sounds like fun. :)

I'm so glad you're back to posting more often again. You've been missed. :)

:wub:

AndreaB Contributor

Rachel,

That sound like a really good, productive appointment. :)

I'm so excited for you! :D

Can't wait until you start on the new meds and continue improving, step by step. :)

I guess lyme is out of the closet now isn't it? :P

NoGluGirl Contributor

Dear Rachel,

It is such wonderful news to know your appointment went so well. This ART stuff is interesting. I wonder about having mercury toxicity and aluminum toxicity. I have many of the symptoms. I know my holistic physician does chelation. The Lyme and Babs issues however, I do not know of anyone near here who treats those. I did a search on LymeNet, and it just referred me to Igenix.

Naturally, my mother does not believe I have Celiac, Lyme, or anything else. She complains constantly about her stomach and being tired, etc. She refuses to even try giving up gluten for a while.

I told her that Celiac is genetic, and that she probably has it too. It turns out, she, my aunt and uncle all spit up formulas as well as infants like my brother and I, and had to be placed on 2 percent milk. The Lyme issue is serious, but why would she care? It does not concern her.

Dear CarlaB,

Purple glittery bats? I really should do a search on those! I feel so spinached! This should be funny. I need to check this out!

Sincerely,

NoGluGirl

nikki-uk Enthusiast
I'm definately looking forward to the spinach sequel :D

Hee - hee!! :lol:

Dear lord!!! The crazy summer of 06 in the OMG thread!! :lol::lol:

CarlaB Enthusiast
Rachel I tend to think my pattern of indeterminates indicating borrelia is a pretty good indication but yes it really goes to understanding what is causing our symptoms. It does no good to treat just Lyme if mercury toxicity is making you ill and if treating the mercury means you still have Lyme but it is not active then I don't see any point in taking antibiotics. It seems to me that just getting treated for just Lyme can create further problems.

Yes, antibiotics definately present a whole new set of problems. I think sometimes you do get to the point that they are necessary ... but the other three times I've had this, I've been able to take care of it without them. This time none of that worked, so I'm on the meds. -- a LOT of them.

That last stretch I had I think is as good as anyone can expect -- over 10 years! If we hadn't had so much stress in our lives during the past 6 years, I don't think it would have come back now.

I've got somewhere to go today, so I'm going to catch up, but I won't write in till later. Looking forward to reading about Rachel's appt. though, so had to check now!

CarlaB Enthusiast

I skimmed it, Rachel. Sorry about the babesia, that stinks. I have it too, it's very wicked stuff. I'm actually glad that the metals are a bigger problem, and it's a blessing to know the Lyme is there. If I had known, I wouldn't be where I am now, I would have been able to avoid that stress and take things to keep the bacteria/protozoa population low.

I'm taking charcoal, I think it helps.

Good news about Scott and the gluten. I got "glutened" yesterday, it consisted of one trip to the bathroom, that's all. That's a lot different than it used to be. I can see that the intolerance might go away completely. I've had stomach issues since I was a kid, but I've also had Lyme since I was a kid ... as an adult, the stomach stuff has only shown up when the Lyme has.

I've GOT to go now. :)

dlp252 Apprentice
I said I hoped it was in a place covered in cement in NY ... he laughed and said it was at a State Park, but he guesses we won't be going! LOL NO WAY am I going to a State Park in an endemic region for Lyme! :blink: Maybe there will be a resort close by so we can stay there and just go to the inside reunion functions.

:o Yes, as it seems you are a magnet for those nasty little ticks, lol. :lol: Resorts are always nice! :P

Man, I have a lot of catching up to do with the old-timers. I have only been on here maybe a few months.

Just read somewhere around pages 200-400, lol. :lol: That'll catch you up. :lol:

This is what my report for ART says:

Regulation: open (good!)

Primary Organ Stress: liver, entire head area/brain

Secondary Issues: Kidneys

Metals/Infections: Metals are a major stressor.

Babesia "blocks" or stresses your nervous sytem

Borrelia shows up mainly in the head area (likely why labs were negative)

Candida is a stessor - continue to treat this since it is often flared up when chelating metals.

Wow, the whole day sounded GREAT!!! I'm so excited for you!!! And, it's really great that all these people know and work together, so your treatment will be cohesive!

AndreaB Contributor
She said Babesia showed up clearly. She said Babs goes into hiding and comes out and goes back. Its hard to test positive in the blood test (I tested neg. in blood). She said the only residence of Lyme she found in my body was in my head. :huh:

She said everything is going on in my head...this is where all the stress is. Its not just my sinuses....its not my lymphatic system....its everywhere from my shoulders up. :blink:

You got bit on the shoulder, right?

Rachel--24 Collaborator
Fun!!! Random would be fun too! It'll be like a surprise. We'll just log on one day and see a random "clip" of the Rachelville history. :lol:

I'm sure if I just did random stuff it would be hilarious.....no telling what I could find when I go back!! :lol:

I could use that after the last few days. :( I'm a bit down today. But also a bit happy. :huh: How can that be? Split personality perhaps?! :lol:

I have that too....I think I might have had it before I ever got sick though. I'm a Gemini....could be something to do with that. :P

I think I am just rummy from lack of sleep. I haven't been sleeping well again for about two weeks, and then last night some yahoo keeps calling at 2:00 in the morning!!!

I hope you've been able to sleep better now.....stupid yahoo! :angry:

I would turn the phone off.....after I let loose on the person who called at 2 am in the first place. :angry:

But also my car was more than double what I thought it would cost because while they were working on it they found a leak in the exhaust. :( Stupid car repairs, I'm going back to Toyota, lol.

Yeah...same thing happened to me. My car cost me $1000 last week. :(

It overheated because something about the radiator hose and stuff leaking. Some other stuff was damaged too and because of that I had to pay alot because of the labor. They had to take everything out like when they change the timing belt.

I got a new timing belt since they had to take it off anyway. I dont wanna end up paying $400 labor again when its time for a new timing belt. :rolleyes:

Then after that the alternator was bad so I they had to put a new one in....then the new one was defective and still not working right. They had to put another one in...and I got new brake pads and an oil change.

I havent had a tune-up or anything else in over 100,000 miles so yeah....I was pretty much due for all of this. :(

I had to bring the car in 3 days in a row but its ok now. :)

BUT, it's an absolutely BEAUTIFUL day here, so I grabbed my Nano and went for a long really brisk walk, which felt really good and hence why I'm happy I think.

Yes!! At least we have the weather to cheer us up! ;)

Rachel--24 Collaborator
LOL NO WAY am I going to a State Park in an endemic region for Lyme! :blink: Maybe there will be a resort close by so we can stay there and just go to the inside reunion functions.

:lol:

I dont blame you one bit. I'm totally "outdoorsy" but resorts are sounding real good to me these days!! :P

NGG, when you're all caught up we'll talk about the purple glittery bats.

ROFLMAO!!

OK.....I sooooo have to do something to honor our geese and purple glittery bats which have protected us and brought magic to Rachelville for almost 1 year now. :D

Hee - hee!! :lol:

Dear lord!!! The crazy summer of 06 in the OMG thread!! :lol::lol:

Yeah...it was so much fun. My face would hurt even more from all of the laughing! :lol:

I skimmed it, Rachel. Sorry about the babesia, that stinks. I have it to, it's very wicked stuff. I'm actually glad that the metals are a bigger problem, and it's a blessing to know the Lyme is there.

Yeah....I agree. Babesia is a bummer but it could be alot worse. Even though I'm pretty messed up from the metals/candida....I feel lucky about the Lyme situation.

I knew it couldnt be causing my symptoms because of how the symptoms seem directly related to food and chemicals. My limbs and joints dont bother me much at all...they would only hurt if I eat processed foods or smoke or things like that.

Dr. D said that neither Lyme nor Babesia cause sudden dramatic symptoms like what I experienced. She said Babesia doesnt work that way at all.....also they dont cause all that stuff going on in my mouth and head region. For sure this was caused by the metals.

I'm wondering if the Babesia and Lyme are showing up in my head because that is the weakest area in my body right now?? Because when all that metal was coming out and stuff was happening with my teeth and gums and the bone grew out more than an inch....there had to be mercury and other metals getting stored all around this area.....probably my jaw, gums, brain, etc.

I know this has to be my most vulnerable and weakest area....probably even more than my liver and gut. Maybe thats why the Lyme, Babesia and fungus are all hanging out in my head....cuz of their affinity for the metals and because I'm particularly weak there?? :unsure:

I know my immune system is still strong because I dont get sick. I never caught a cold the entire winter. Maybe my immune system wont let these guys take over my body but they stay where they're at in my head...because of the metals. Thats what I'm thinking. <_<

You got bit on the shoulder, right?

I had a bite on my upper arm (kind of near my underarm). I still cant say what caused the bite or if it has anything to do with this. I could have had the Lyme since I was a kid for all I know....I camped all my life....even when I was like 3 years old we were camping nearly every weekend during the summer. I grew up doing this kind of stuff....climbing trees, exploring, etc.

Apparantly I'm not as vulnerable to the Lyme as I am to the metals. Lyme never got me sick. It could have been what was triggering the autoimmune response toward my thyroid though......that would make alot of sense.

I was fine until I would get overly stressed and then the Graves would get triggered. Could be because the Lyme and Babesia were there and when I got stressed my immune system was having to put up a stronger fight. I never had the thyroid symptoms for very long at all. Once the stress resolved my thyroid would stabalize.

Rachel--24 Collaborator
How about a birthday party?

Yeah....a birthday party!!

Wonder if balloons will finally drop for us?? :huh:

I say we all get to eat perfect chemical-free, gluten-free, egg-free- dairy-free...etc....CAKE!! :D

Lots of other treats too. Nobody gets sick at the party.....we eat, laugh, eat some more, and then go back and eat. :P

DingoGirl Enthusiast
I have that too....I think I might have had it before I ever got sick though. I'm a Gemini....could be something to do with that. :

.....or.......bipolar, like me? :wacko:

HI EVERYBODY! I have no idea what's going on here any more......but,

skimming this page, did I just read something about purple glittery bats? :P

diamondheart Newbie

Hi Rachel,

Very interesting ART Files! I'm glad to hear you are getting some answers and you're on your way to healing. Yeah!!

I've been doing pretty good. I wonder if I've been eating too much dairy? Mostly I eat kefir, but I've added cheese back in. I've had this annoying feeling of swollen glands in my neck for about two weeks. I forgot to ask Dr. F about it last time, but I'll have a chance to ask him about it tomorrow. I hope it's not anything serious or thyroid related. It hurts a little to swallow. I hope I'm not just being paranoid.

I saw a friend of Dr. F's last Friday about my hormone stuff. Dr. E was the first doctor to explain to me about the difference between saliva testing and blood testing in a way that made sense! He wants to check my thyroid and adrenal hormones. I'm ready to take a break from testing, but I guess I'll do this one as soon as I figure out how to get my blood drawn for it.

Claire

AndreaB Contributor
HI EVERYBODY! I have no idea what's going on here any more......but,

skimming this page, did I just read something about purple glittery bats? :P

Hey Susan!

We are having a reminising party. Come help us remember all the fun from last summer. :):D

jerseyangel Proficient
.....or.......bipolar, like me? :wacko:

HI EVERYBODY! I have no idea what's going on here any more......but,

skimming this page, did I just read something about purple glittery bats? :P

Susie! :D

I love how just the mere mention of the glittery bats brought you back here! Do you have glittery bat antenna? :lol:

dlp252 Apprentice
I have that too....I think I might have had it before I ever got sick though. I'm a Gemini....could be something to do with that. :P

I hope you've been able to sleep better now.....stupid yahoo! :angry:

I would turn the phone off.....after I let loose on the person who called at 2 am in the first place. :angry:

I slept much better last night. My phone in my room is turned off, but I guess one day I must have turned the volume up on the one downstairs and I could hear it even over my sound machine. :( Stupid yahoo! :lol: I slept very well last night thankfully. All phones which need to be off are off and the volume on the one that needs to be on is on low now, lol. Took me all day to figure out how to turn the stupid thing off, but finally got it. :ph34r::lol:

Yeah...same thing happened to me. My car cost me $1000 last week. :(

It overheated because something about the radiator hose and stuff leaking. Some other stuff was damaged too and because of that I had to pay alot because of the labor. They had to take everything out like when they change the timing belt.

I got a new timing belt since they had to take it off anyway. I dont wanna end up paying $400 labor again when its time for a new timing belt. :rolleyes:

Then after that the alternator was bad so I they had to put a new one in....then the new one was defective and still not working right. They had to put another one in...and I got new brake pads and an oil change.

I havent had a tune-up or anything else in over 100,000 miles so yeah....I was pretty much due for all of this. :(

I had to bring the car in 3 days in a row but its ok now. :)

Yes!! At least we have the weather to cheer us up! ;)

Mine was $1500! I think I must have broke all that stuff when I hit my neighbors car last year. :ph34r: Stupid brain fog! Gee, 3 days! I'm glad they were able to do mine all in one day...they even gave me a loaner car. Still, you're doing very good if you haven't had major service done in over 100,000!

.....or.......bipolar, like me? :wacko:

HI EVERYBODY! I have no idea what's going on here any more......but,

skimming this page, did I just read something about purple glittery bats? :P

Ha, you don't need to know what's going on, your mere presence here always lightens things up! :P

miamia Rookie
Yeah....a birthday party!!

Wonder if balloons will finally drop for us?? :huh:

I say we all get to eat perfect chemical-free, gluten-free, egg-free- dairy-free...etc....CAKE!! :D

Lots of other treats too. Nobody gets sick at the party.....we eat, laugh, eat some more, and then go back and eat. :P

ahh. to eat and not get sick- that sounds like a party to me!!! You guys will have to pull me forcebly from the buffet table though if you want me to stop eating

dlp252 Apprentice
ahh. to eat and not get sick- that sounds like a party to me!!! You guys will have to pull me forcebly from the buffet table though if you want me to stop eating

Ha, won't be a problem if I get there BEFORE you, lol. I love me some buffet! :lol::ph34r:

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,527
    • Most Online (within 30 mins)
      7,748

    Delightful
    Newest Member
    Delightful
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.2k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Lynnard
      Thank you! Eating out/take out has been half of my meals for a while so you are correct that this will be my biggest challenge. This has been a journey and I appreciate your help!
    • trents
      "Bonus points". I like that analogy!  At this point, the following article might be helpful: Eating out will be the biggest challenge and will present the most threat to avoiding gluten since you don't have control over how food is prepared and handled back in the restaurant kitchen. Become comfortable with asking questions of restaurant staff and requesting that your food be cooked in clean pots/pans/surfaces that haven't been used for gluten containing foods since last washed. In time, you will become more comfortable with taking control in these situations and learn to be appropriately assertive. One thing that will take time for you to get a handle on is how sensitive you are to minor amounts of gluten such as you might get in cross contamination scenarios. Each of us is different in that sense and there is no substitute for personal experience. When in doubt, however, avoid foods that you feel may be significantly cross contaminated. Better safe than sorry. In time, you will develop a sixth sense about these things.
    • Lynnard
      Thank you!  Yes - labs are above but Deamidated Gliadin was super high, tTG was a weak positive and Immunoglobulin A was way below normal which gives "bonus points" to the positive tests because it can also cause false negative results.  This information confirms my thinking and I really appreciate your feedback!!!  
    • trents
      By far, the most likely cause of villous atrophy in the Marsh 3 range is celiac disease but there are other possible causes. Did you also have positive antibody tests? My guess is that when you see your physician he/she will declare you to have celiac disease. Of course, the ultimate proof of the pudding will be if you experience definite improvement in symptoms after going gluten free which, since you have now completed testing, you should begin to do.  
    • Lynnard
      Hi again - I received the biopsy results but haven't had follow up appointment with Dr. yet.  Wondering if you could comment on this: "Duodenum, random, Biopsy (Cold Forceps): MILD VILLOUS BLUNTING WITH PROMINENT INTRAEPITHELIAL LYMPHOCYTES, CONSISTENT WITH SPRUE (MARSH TYPE 3A). See Comment. Negative for Infectious Organisms, Dysplasia or Malignancy. COMMENT: While characteristic, the histologic findings are not diagnostic for gluten-sensitive enteropathy / celiac disease. A number of additional entities can enter into the differential diagnosis of celiac disease based on the histologic features, including tropical sprue, bacterial overgrowth / stasis, unclassified sprue, specific food allergies, many drugs including NSAIDs, olmesartan and immune checkpoint inhibitors, and a wide range of autoimmune diseases including adult-onset autoimmune enteropathy, diabetes, thyroiditis, lupus and multiple sclerosis and occasionally common variable immune deficiency. History of drug take, celiac serologies, HLA-DQ status and response to a gluten-free diet might be a key for a definitive diagnosis" They say "consistent with Sprue (Marsh Type 3A)" and then comment that the findings are not diagnostic for celiac disease.  I thought Marsh type 3 was conclusive (and I know that 3A is the best outcome as it relates to intestinal damage). Is this just normal caveat language or am I missing something?  I had appt scheduled for tomorrow but Dr. is sick and now rescheduled to over a week from now.  Appreciate any insight you can offer in the mean time.  Thanks!!
×
×
  • Create New...