Omg...i Might Be On To Something

[CarlaB]

Open Original Shared Link

Nystatin comes as a tablet and a liquid to take by mouth; a soft lozenge (pastille) to be dissolved slowly in the mouth; a tablet and vaginal cream to be inserted into the vagina; and in powder, ointment, and cream to be applied to the skin.

I guess there are more than three forms of it. Since I don't seem to be having candida issues, I'll stick with this one ... but if candida becomes a problem, I'll ask for the powder.

[CarlaB]

Wouldn't be a bad idea.

It would be a good idea ... I mean, don't you wish someone told you once in a while that you were right, they had Lyme and you had brought it up to them? It's good to know you helped someone because then you know you're doing the right thing by mentioning it.

[Rachel--24]

I guess there are more than three forms of it.

Yeah...I wasnt including the topical stuff....just 3 forms of oral nystatin.

I know about the topical stuff cuz in their confusion about nystatin powder they gave me the topical powder. WTH??? What if I would have taken it home and taken it orally??

I was not too happy with the pharmacy.

[rinne]

Andrea- You should be a statistician- you are so good at recording all this stuff.

OK- news. Drive by post for which I apologize but I had to get up at 6 to drive into Boston for a small bowel XRay. NORMAL humans drink 2 cups of barium, get a few pics taken and are out of there in an hour. It took me 5 cups of barium, 2 shots of some nasty stuff called gastro and the radiologist using some weirrd paddle to much my intestines around- 4 hours! They said the recors is 11 hours so I guess I'm lucky. I'll find out the results in a few days (Crohn's I believe).

.....

Andrea, very impressive tracking.

Bev, what a lot to go through, I hope you get some answers from it.

I'm with Susan about the emoticons, grrrrrr, I have to go back over and over again to get my posts through and then only when I delete all your emoticons from the quotes.

And Susan, you are definitely in the babe category.

I sent off an email yesterday to the doctor I saw in Calgary asking to be removed from their mailing list, I was snarky I said, "In conclusion, I would like to say that Dr.Blanketyblank's behavior regarding the tests, i.e. the Igenix, was so typical of conventional doctors that it was laughable, unfortunately at the time I had no sense of humor about it. That has changed."

Today he phoned. And he was mad. I didn't feel like talking to him, he started bullying right away regarding how "aggressive" I was in my email so I told him I was busy and would call him back. I am thinking I may email him but I don't think I really want to talk to him. How ridiculous is he, finally he is insulted.

I did see something recently about women and being tested for ovarian cancer, apparently there is a simple test, not so expensive - $75.00 or so, that can diagnose it very early. I'll try and find a link. I recall that it talked about sudden bloating.

I don't take anything with gluten in it, even to the extent of avoiding homeopathic rememedies in grain based alcohol.

[miamia]

Well....I think I'm locked out of page 1051.

I read the page but cant recall what I wanted to respond to except Miamia was saying something about rice cakes feeding candida??

I did wanna say that lots of other things you're eating will also feed candida...like those chicken nuggets. If you get a particularly strong reaction to a certain food....like the rice cakes...its more likely you are reacting to something in the food. Yes...it would still feed candida but I doubt thats why you reacted.

Its mostly white starches (i.e. white rice, potatoes) that rapidly turn to sugar. My candida situation is pretty bad but I still ate potatoes, and dont forget the ice cream (with actual cane sugar and milk sugar), plus apples and popcorn. I was feeding the candida plenty but I did not get reactions to these foods because apparantly they were pretty safe as far as molds and chemicals.

However, a single bite of a rice cake and I'm reacting pretty noticeably...half of a rice cake has me pretty messed up for at least 2 days.

Its like this with alot of foods. The more I ate the ice cream and fed the candida...the more sensitive I became to molds and chemicals. I've come to learn that the reactions are not actually from "feeding" the candida. If candida is consistently causing a problem...its not going to cause dramatic symptoms after one meal or snack. Those reactions are occurring because having the candida means you get alot of sensitivities to various things.

You especially become sensitive to yeast and molds. If you eat something with vinegar...or drink wine (which is loaded with yeast).....you will react quite strongly and most likely feel bad for days.

I dont think the candida got especially happy with the rice cakes...I think its more likely you are sensitive to them.

I'm pretty sure my candida was feeling pretty darn good having 1-2 pints of chocolate ice cream everyday....I dont think my problems with rice and rice cakes comes from the candida consuming sugar. If that was the case I'd have been pretty miserable those 8 months I ate ice cream everyday.

If you can eat homemade pizza, chicken nuggets and other foods and be ok....then theres something about the rice cakes. If it had to do with feeding candida you would have the same problem with these other foods....because they feed candida as well.

Thats my guess.

I dont eat ice cream, popcorn or apples anymore....(yeah..I know....it about time I got smart about this ) but I still do eat some potatoes and oatmeal...which are very starchy. I also had yams.

Anna told me to never eat the starches like potatoes by themselves...this is when they will rapidly turn to sugar. She said to always eat them with protein...which slows it down and allows less sugar for the yeast. There must be truth in it because if I eat the potato by itself...I get more head "fullness". If I eat it with meat...I barely notice anything after eating.

This would not work for me with rice cakes because I'm actually reacting to the rice cake itself....its nothing to do with it turning to sugar. Plus I always ate brown rice cakes...never white.

Rachel-

I agree with you I think the rice cakes are the problem- because I am able to tolerate otherr things that I know are "bad" the thing is I react to so many things and am so underwight I can't see cutting these things out. I do best iwth a balance of carbs/protein/ veggies - too much of any one thing kills me. Thats why if I make pizza I add ground lamb and vegees- etc.

God if I was gonna have to be sick for three days I wish it would have at leastbeen over something good. I had an appt at the health center I go to and I feel a bit better .

Tomorrow I ahve my appt for cranio. therpy. I am really interested in exactly what it entails- Rinne- did you say you did this once?

and I agree Susan no way do you look 45

[CarlaB]

Yeah...I wasnt including the topical stuff....just 3 forms of oral nystatin.

Actually, four -- the powder, the liquid, the tablets (that you swallow), and the lozengers (that you suck on)

I'd be upset about the pharmacy mistake, too.

[Rachel--24]

It would be a good idea ... I mean, don't you wish someone told you once in a while that you were right, they had Lyme and you had brought it up to them? It's good to know you helped someone because then you know you're doing the right thing by mentioning it.

I know....everytime I see one of his posts I think of writing to him.

I actually knew about Lyme before he brought it up to me. It was in my mind because of the symptoms and all of my camping. Also all the deer I was feeding at my campsite right before I got sick. I had asked the neurologist if I could have Lyme and she said "NO."

Also my Dr. said it was rare in our area. Everytime I tried to get some info. I would end up getting nowhere....I even tried to call the parks and rec. people to see if Lyme was ever reported in the county where I camped. I never could get anywhere with it so just gave up.

When he emailed me it just made me push harder....thats when my Doc sent me to the infectious disease idiot...who was worse than anyone I've ever seen in the medical profession.

So yeah....because of my insurance plan (HMO)....I wasnt able to get anywhere for 3 years.

I couldnt switch insurance until Jan. of last year....the Dr. at HN (Dr. Rick) tested me for Lyme antibodies...but it was not the WB's and it wasnt Igenix.....it wasnt a good test for Lyme.

It was only really great luck that he ended up sending to me an office full of LLMD's....to see if I was mercury toxic. Weird how things turn out huh.

Patti....remember how you were saying how things in our life...even if they seem insignificant at the time can totally steer your whole life in a new direction??

Thats how I feel about this whole health "adventure" I've been on....all these little things just came along and steered me to where I'm at now.

Even though I've rersearched plenty.....all of the things to get me where I'm at as far as Dr.'s has just been plain luck.

Even when I switched health plans and was able to see whoever I wanted...I had no idea where to go.

I was crying that day...just totally stressed out about Dr.'s. Then I went to a health store and my mom picked up a flyer which happened to have a list of Dr.'s knowledgeable about Gluten Intolerance/Celiac. Thats how I ended up at the HN clinic and from there to my LLMD...and from there to Anna....and from there to Dr. Amy...and its all really one big circle now.

Carla...I definately will write to Groovy2 and let him know he helped me and that he was doing the right thing in bringing it up. I also told him all that at the time....whether I had Lyme or not I was not gonna blast him for emailing me about it. He was really worried about that and I'm sure most people he tried to bring it up to...probably did get upset with him. I'm just not that way. I wanted to find out what was wrong with me and Lyme was something I wanted ruled in or out.

I would have tested for anything that could have been a cause for my symptoms. It sucks that I wasnt given that opportunity.

At the time I had no idea how prevelant Lyme really is....but I did know that I was always hanging out where ticks would be....even if I never saw one on me.

[Rachel--24]

I don't take anything with gluten in it, even to the extent of avoiding homeopathic rememedies in grain based alcohol.

I put my homeopathic drops in glasses of hot water and let them sit for awhile....the alcohol evaporates. Dont know if that takes care of any gluten that might be present but I havent had any problems with my homeopathic drops at all.

My NDF actually says "gluten free alcohol" on the label. I dont put this one in hot water cuz its my chelator and I'm only taking one drop anyway.

My Dr. made one homeopath for me without adding alcohol and I have one other which is alcohol free. I take 5 homeopaths, NDF, Cats Claw, PC-Noni, whey protein (has all the essential amino acids to help detox), charcoal, Nystatin, comprehensive minerals and magnesium.

I have to add in Transfer Factor....its sitting in the fridge...I havent been brave enough to start it yet.

The minerals and magnesium are important part of my treatment except I'm always on and off of them...not sure if they're causing me problems or not. Its usually a food or something else that messes me up but I always stop my supplements cuz I get freaked out.

I can eat eggs now.

I never thought I could eat eggs...I dont know if I was always blaming eggs when it was really other foods I was eating with the eggs or if things are improving.

I'm eating eggs all the time now...and I use them to make my oatmeal cookies.

A few months back I added eggs in and thought I was ok but then I started having alot of head symptoms....I had been drinking kefir the same time. I suspected the eggs but cut out both just to be sure. Recently I started the kefir again...because I was convinced it was the eggs that messed me up.

After a week of kefir all the symptoms came back.

I stopped the kefir....got better and started eating eggs. So far none of those symptoms came back.

I hope I stay good with the eggs....Anna wants me eating egg yolk, garlic or onion...foods rich in sulfur. Garlic causes me problems though.

[CarlaB]

Maybe it was the yeast in the kefir.

How do you make your oatmeal cookies? I'd love to have a snack like that! They don't have sugar, right?

[AndreaB]

I can eat eggs now.

I'm eating eggs all the time now...and I use them to make my oatmeal cookies.

Yay on the eggs! I hope you continue to do well with them too.

[Rachel--24]

Oh yeah....I also take Folate.....cuz I was deficient. Thats all my supps.

Maybe it was the yeast in the kefir.

Yeah...I'm pretty sure it was the yeast. Anna was saying that the yeast in kefir is good yeast...and not pathogenic like candida. She said it could be die-off.....but then again if I've got candida so bad that I'm highly sensitive to yeast and molds....I would think I would still react to yeast...good or bad. She said that it could be that too. I guess it could even be BOTH.

How do you make your oatmeal cookies? I'd love to have a snack like that! They don't have sugar, right?

Nope...no sugar.

I took the recipe off the box of McCans quick oats and modified it.

I use 2 cups of the quick cooking oats

1 egg

4 tablespoons Spectrum Organic all vegetable shortening.....(instead of vegetable or canola oil)

(I melt the shortening in the microwave first)

2 packets of stevia....instead of 1/2 cup brown sugar.

I mix it all real good in a bowl and then put spoonfuls on the baking sheet. I shape them and bake them at 350 for about 15 minutes

The directions on the box say to leave the ingredients to soak for like 15 minutes first. I never did this...I didnt even notice it till now.

The recipe calls for 2 tabelspoons maple syrup....I just omit this. I've used some alcohol-free vanilla flavoring a couple times though.

I might try to switch oatmeal since McCanns probably has pesticides right?? Its not organic.

I wasnt even thinking about it until yesterday. I'm gonna get organic oats instead....but then I'm worried about more mold because of no fungicides???

I just cant win.

I also wanna look into organic stevia. I havent seen it but I'm sure it must exist.

[diamondheart]

Thanks for the oatmeal cookie recipe Rachel! I'm going to experiment with it. I've been dying for cookies, but the ones I can get at the store are too sweet. I'll let you know how my experiment goes. If I didn't have to go to bed now, I'd make a batch right this second! I'm thinking of grinding some of the oats into a flour first. It's easy to do in my mini-Cuisinart.

Susan, age is a question of mind over matter. If you don't mind, it don't matter ! I know a couple of older women and younger guy couples. Anyhoo, I can relate with the tiredness thing and getting overwhelmed and depression. Get all those free tests so you can start figuring out what's causing the problems.

Jin, I'm doing ok. Glad to see you're putting your name in your siggy now. I started my mid-life crisis Sunday, according to the astrologer . It's ok. At least I'm not obsessing by the minute about my fertility. I think my body is working out the hormones that I took last month. My basal body temps were going up and down, but now they are levelling out. I think that means that my liver was stressed, probably from clearing out the toxins of the last cycle. In Chinese medicine, they call it liver chi stagnation.

Hey Susan! I just thought of a way you could check your thyroid yourself while you are waiting for your blood tests. Get a basal body temperature thermometer. You can get digital or use a mercury one. Take your temperature first thing in the morning before you get out of bed. If it's low, like below 97.0 degrees, you can pretty much count on something being wrong with your thyroid. Check it through out your cycle. I think the first half of your cycle before you ovulate will give you a better idea if your thyroid is out of whack or not. You just have to get in the habit of taking it every morning before you do anything. After you ovulate, your temps may not rise that much if your thyroid is hypo. If it's hyper, your BBTs will be high.

So I have a question about floaters. If I'm looking up at the sky, say watching clouds go by, I often see squiggely things moving around, kinda like this: . I know it's my eyes and not the sky! Could that be from lyme? Are those the spirochetes? I've always wondered what that is. I've had it for a long time.

Claire

[Clark Bent as Stupor-Man]

Charlie, I've checked all the meds I've taken before I took them for their gluten-free status, but I forgot to for the minocycline. I'm taking it now. I don't worry about the other stuff, but if you're really concerned, you could go to a compounding pharmacy.

Do you know what manuf. makes the minocyline you're taking? Watson is the one I'll probably end up taking but I know there's a few different companies making it..

I wouldn't really be concerned at all about its gluten-free status after looking through the active and inactive ingredients, but the pharmacist on the phone from the company went over the top in stressing that she didn't know if it was gluten-free... I'm sure it's just for liability reasons but she seemed to dodge even simple, straightforward questions and default to the "I can't say if it's gluten-free" stance.. I'm pretty sure it's gluten-free and my only real concern is the corn starch...

My only rx's are my thyroid meds and Nystatin. I dont use the compounding pharmacy anymore....I only did that when I was tring to see if corn was causing all this. Obviously it wasnt corn...so I dont worry about it anymore.

The Nystatin is the same exact stuff whether I get it from the compounding pharmacy or not...only thing is that they put it in capsules and I have to pay $50 instead of $10.

My co-pay for compounded stuff is $40 more...so I dont see the point.

so I guess you've been taking thyroid meds with corn in them for a while, right?

I've avoided so many foods entirely for months (some like gluten, eggs, and dairy for over a year now) that I'm hesitant to add them back in even though I think I should probably be fine having a small amount of something like corn starch in a pill.. I was considering compounding through a pharmacy my sister has had meds compounded at and received quickly, but I don't know how much I'll have to pay and I'm probably just going to fill this prescription tomorrow and not worry about the corn..

[Clark Bent as Stupor-Man]

So I have a question about floaters. If I'm looking up at the sky, say watching clouds go by, I often see squiggely things moving around, kinda like this: . I know it's my eyes and not the sky! Could that be from lyme? Are those the spirochetes? I've always wondered what that is. I've had it for a long time.

I don't know what that is, but it doesn't sound like floaters to me... floaters, at least as far as I'm familiar with them, don't move unless your eyes move... they're basically specks in your vision, and if you look left, the floater goes left with your eye... that's why a number of us think we see things in our peripheral vision and then look over to have the thing we saw move away and once again, move back to the same position when we look back to our original view...

lyme can cause a number of visual problems, and it's possible that what you're seeing is some other visual problem being caused by lyme but it could be a lot of other things too... I would try and google and see if you can pinpoint exactly what it is called that you see...

[NoGluGirl]

Dear Andrea and Mia,

It is very difficult to prioritize all of this. With the illnesses, the best thing to do is go with the most dangerous and take care of them first. Financially, that is more complicated. This becomes frustrating fast. However, pursuing the other from a legal angle may work out. I just have to be patient and hope for the best. That is all I can do!

Dear Bev,

I hate barium tests! I will not do them anymore! The barium nauseated me even worse. It would help if it tasted better. I think though, I would prefer not to put my body through that again. My body took it hard. They have me three bottles, and I could only choke down half of one. That was seven years ago! My gallstone showed up in the abdominal CT, but the idiot doctor I was with at the time missed it! It was the very first test I had run when I began getting so ill!

I am so glad your celiac disease-57 results came back. Even better, I am happy that you found something out that is significant. I doubt you have Crohn's either. It is more likely to be Lyme. That disease is hard on your digestive tract and everything else.

Dear SuzieQ,

I thought you were in my age bracket or close to it! You are 21 years older than me? Now freakin' way! You must be one of those people who found the fountain of youth or something. You do not want a guy like that little dweeb that was hitting on you anyway. Men just cannot handle a mature, intelligent woman. He sure was a prick. Forget him! He does not deserve a woman like you!

He deserves a slutty little gold-digging, lazy moron equivalent to himself!

Dear Donna,

I love the new pic! You are so cute! That appointment sure sounded exhaustive. The mold is a big concern. It is wonderful that you met a handyman that could help! God just put him right there for you!

Dear Rachel,

Yep, Candida sucks. Maybe it is the corn, but only to an extent. You might be able to handle it in small amounts, but not over like a cup a day, or something like that. Also, if it is genetically modified corn, that may be the trouble. One of our fellow posters on the forum told me he reacts to genetically modified corn, but not organic.

As you said, anything high in carbs can cause a reaction. Feeding the yeast causes a lot of trouble. I got really sick from beans twice now. The odd thing is I ate them two days in a row without trouble. Why they made me so sick the third day (despite consuming a smaller quantity) I will never know.

I read the same thing about the Nystatin. I have "The Yeast Syndrome". It really is a great book. I think it was funny they talked about Clarissa Candida. It was cute! I think Dr. Crook in his book also said the pure powder for Nystatin was the best to eliminate the yeast.

Dear Mia,

It is such a bummer to learn about your terrible reaction being from a less than tasty treat. That is just plain unfair. I had a bad reaction to beans lately. The Candida is a really big issue. I am having an extremely difficult time with it as well. I am so sore it hurts to sit down!

Dear Claire,

Congratulations on your mid-life crisis! It at least sounds like a positive thing for you according to the astrologer. You know, you reminded me of something. Have you ever heard of qi-gong (chee-kong)? The Chinese practice it. Masters can actually physically heal you, and sense energy blockages in your body! One woman had a heart condition and it healed her completely!

Sincerely,

Jin

P.S. I have a question. Can Fibroids cause your menstrual blood to have a foul odor? The blood is also very dark at times. I am worried about this. I have never done anything to cause an infection. I have never been sexually active or anything. I also hurt and it feels like my uterus is swollen. I had a pelvic exam not too long ago. Shouldn't Fibroids have shown up if they were there?

[dlp252]

I had an incident when Talitha was a baby (I think it was her and not Micah) where I couldn't move my hands, couldn't make a fist. Scared me to death. I think it lasted around 20 minutes. I called the doctor but they were no help.

That is really scarey...at least I could still sort of make a fist...couldn't squeeze hard or anything, but I think it would have been enough to hold on to the steering wheel, lol. At least the doctor was being very good about it. She practically walked around the building with me...and the staff was really good too...making sure I could drive home and all.

So yeah....because of my insurance plan (HMO)....I wasnt able to get anywhere for 3 years.

I couldnt switch insurance until Jan. of last year....the Dr. at HN (Dr. Rick) tested me for Lyme antibodies...but it was not the WB's and it wasnt Igenix.....it wasnt a good test for Lyme.

I wondered about this...when I told him I was testing with Dr. S for lyme, Dr. Rick mentioned that they tested there too, so I was thinking, that was good cuz they would understand the test results...that explains why Dr. Carrie thought my test was negative.

I don't know what that is, but it doesn't sound like floaters to me... floaters, at least as far as I'm familiar with them, don't move unless your eyes move... they're basically specks in your vision, and if you look left, the floater goes left with your eye... that's why a number of us think we see things in our peripheral vision and then look over to have the thing we saw move away and once again, move back to the same position when we look back to our original view...

Yes, this is exactly the kind of floaters I have...they move left when I look left. I used to only have one decent sized floater...in the last week or so I've developed many more smaller ones.

P.S. I have a question. Can Fibroids cause your menstrual blood to have a foul odor? The blood is also very dark at times. I am worried about this. I have never done anything to cause an infection. I have never been sexually active or anything. I also hurt and it feels like my uterus is swollen. I had a pelvic exam not too long ago. Shouldn't Fibroids have shown up if they were there?

Hum, I'm not sure about the odor...I wouldn't think so, but it's possible I guess. They can hurt, or not. My abdomen was definitely swollen, but I had more than 20 fibroids at the time. They did find mine in a pelvic exam (but she only found one I think), the ultrasound wasn't clear so I had to have an internal ultrasound which picked up a couple and it wasn't until I had the surgery that the doctor found all the others. So, if they are small they may not be picked up in a pelvic exam, but they could cause some pain depending on where they are located. Some fibroids have trunks and if the fibroid becomes twisted somehow, that can be painful. Many, many people have fibroids and don't even know it though, so they don't automatically cause pain or distention, etc. I think the doctor was able to find the one in the exam because of its location, and I think that was one of my larger ones.

[CarlaB]

Hey Susan! I just thought of a way you could check your thyroid yourself while you are waiting for your blood tests. Get a basal body temperature thermometer. You can get digital or use a mercury one. Take your temperature first thing in the morning before you get out of bed. If it's low, like below 97.0 degrees, you can pretty much count on something being wrong with your thyroid. Check it through out your cycle. I think the first half of your cycle before you ovulate will give you a better idea if your thyroid is out of whack or not. You just have to get in the habit of taking it every morning before you do anything. After you ovulate, your temps may not rise that much if your thyroid is hypo. If it's hyper, your BBTs will be high.

This is true. I taught natural family planning for 7 years. I found that anyone who had temperatures of 97.4 or below generally had thyroid issues, sometimes subclinical. You can Google Dr. Broda Barnes, who pioneered the research on this. Generally everyone will have a 4/10 of a degree shift after ovulation ... I never saw it make a difference how low the temperatures started out, everyone shifted 4/10 of a degree. So you want to use the first half of the month for the thyroid temps.

After I did the salt/vitamin C therapy, my temps were normal and I stopped taking thryoid.

I have those squiggly floaters, too, not off to the sides like others have been talking about floaters. Mine look just like the spirochetes and cysts on Open Original Shared Link, though people on Lymenet say it's not possible that I'm seeing spirichetes ... all I can say is that I can even see that they are corkscrew shaped. When I saw the pictures on that website, I was CERTAIN I had Lyme.

My floaters stay in the same place like everyone is describing, but I also think they have moved around in that place ... they're shaped like two spirochetes and a cyst ... sometimes they look one way or another, but they're always in the same place. Whether they are spirochetes, I don't know.

Charlie, I don't know the brand of mino I'm on.

[dlp252]

My floater that I've had for a long time looks like the picture in the upper left picture, and the ones I've developed in the last week or so look more like the bottom left picture.

[AndreaB]

Mine look just like the spirochetes and cysts on Open Original Shared Link, though people on Lymenet say it's not possible that I'm seeing spirichetes ... all I can say is that I can even see that they are corkscrew shaped. When I saw the pictures on that website, I was CERTAIN I had Lyme.

Are those all in the eyes?!?!

My floater that I've had for a long time looks like the picture in the upper left picture, and the ones I've developed in the last week or so look more like the bottom left picture.

That looks very bothersome.

[NoGluGirl]

Dear Donna,

I think the blood may just be old. However, the pain is a problem. I wonder though, if the yeast is causing all of this. I know it effects hormones and causes all kinds of trouble. I would not be surprised.

As far as floaters go, I do not get those. I get these little blue sparkling specks. They disappear as soon as I turn my head. I suppose that floaters do not look like that. At least, according to the pics, mine look nothing like the spirochetes.

Sincerely,

NoGluGirl

[AndreaB]

So I have a question about floaters. If I'm looking up at the sky, say watching clouds go by, I often see squiggely things moving around, kinda like this: . I know it's my eyes and not the sky! Could that be from lyme? Are those the spirochetes? I've always wondered what that is. I've had it for a long time.

I don't know if those are floaters or not but if you do have lyme I wonder if that could be impacting your fertility.

[Mtndog]

I don't know if those are floaters or not but if you do have lyme I wonder if that could be impacting your fertility.

I was wondering the same thing about me! Wouldn't it be great if you treated the Lyme and ended up fertile Myrtle (that's what we call my sis who supposedly has no estrogen and gets pregnant at the drop of a hat!).

[dlp252]

It would be great if that were the case for both of you!!!!

[Rachel--24]

is it a herx? and you and Laura on the same herx - - guess that happens here, like women all on the same menstrual cycle when hanging out......

Susan....you crack me up.

Love the new pic too.

I am thinking I may email him but I don't think I really want to talk to him. How ridiculous is he, finally he is insulted.

Rinne....even though the guy is obviously ignorant...I would still write him and let him know exactly how you feel. I would do it so that my words wouldnt put him on the defensive but rather so that he could understand how and why he FAILED to provide the service you had paid for and expected.

I would inform him of his apparant lack of knowledge regarding Lyme testing and the fact that he wasnt even prepared for your appt. with him. Its guess its kind of hard to say all this "nicely" huh?

Somehow I would try to let him know where he went wrong and I would try to "inform" him about properly reviewing tests before dismissing things that may be pertinent.

He's obviously made a big impact on how you feel about Dr.s....and he has caused trust issues due to his "unthoroughness".

I would probably want the Dr. to know all that so that maybe he takes it to heart and is more attentive in the future. He might not care.....but it might make you feel better to get it all out.

Or maybe you already did that in your first email.

If I didn't have to go to bed now, I'd make a batch right this second!

When I read this last night it was about 9:30....and I was waiting for my cookies to finish baking. My mom saw your post and said "At least some people know when its time for bed!!"

Yeah...I needed my cookies first.

I was tired but I WANTED ccokies more than I wanted sleep.

P.S. I have a question. Can Fibroids cause your menstrual blood to have a foul odor? The blood is also very dark at times.

I had very dark blood during my menstrual cycle back when I was really sick. It seemed like the blood was old and also I wouldnt have a normal flow. It was just old blood for maybe a day or two.

It was like that for 2 years...I had bad PMS too. I changed my diet...eliminated chemicals, processed foods, etc....I had my period less than a week after I started the diet and it was NORMAL.

I had no PMS...the flow was normal and it lasted 4 or 5 days. I havent had that dark old looking blood ever since.

I wondered about this...when I told him I was testing with Dr. S for lyme, Dr. Rick mentioned that they tested there too, so I was thinking, that was good cuz they would understand the test results...that explains why Dr. Carrie thought my test was negative.

Donna....they know alot about certain things...but Lyme is NOT one of those things. Neither is mercury. They're probably only a tiny bit more knowledgeable than the mainstream docs as far as that goes. Its just not what they specialize in and they dont use the proper tests to rule these things in or out.

The lab they use isnt nearly as qualified for testing as Igenix and they arent doing Western Blots. Since their lab doesnt do Western Blots...I'm pretty sure Dr. Carrie might not have ever even seen a Western Blot before....let alone know how to interpret it.

I could be wrong but thats my guess based on the testing I had done there.

[Rachel--24]

I think I may want to get tested for hypercoagulation at some point....just to know if its an issue or not. Its one of those things that can stand in the way of recovery. Some people cant get better if they have hypercoagulated blood.

If anyone doesnt know what that is I've got a couple links.

Open Original Shared Link

Open Original Shared Link

Jins post about dark blood made me think about this again.

Hypercoagulation causes thickened and dark blood.

David Berg of Hemex Laboratories has been studying the hypercoagulation often found in patients with chronic disease. This list currently includes CFS/FMS, myofascial pain syndrome, osteonecrosis of the jaw, fetal loss, multiple sclerosis, Crohn's disease, Sjogren's syndrome, IBS, Lyme disease, autism, gulf war illness and ADD.

Research conducted by Dr. David Berg and others at Hemex Laboratories1 has found hypercoagulation to be a factor in many patients with chronic fatigue syndrome (CFS), fibromyalgia (FM), myofascial pain syndrome (MPS), and other disorders such as osteonecrosis (bone loss due to inadequate blood supply), and fetal loss.

Since then, David Berg has learned that the best chance of success involves treating both the hypercoagulation and the underlying pathogen(s). Ideally, a blood thinner such as heparin is prescribed one month before beginning antibiotics for bacteria (for example mycoplasma or chlamydia pneumonia) and/or transfer factor for viruses (such as HHV6, CMV and EBV). The heparin is continued throughout, and then slightly beyond, the course of anti-microbial treatment. It dissolves the fibrin, making the virus and/or bacteria more vulnerable, thus improving the treatment's effectiveness.

Lots of people on the Lyme board have hypercoagulated blood....it makes it harder to fight the bacteria.